Thanks every single one of you for your comments and support, you guys are amazing. As I'm extremely overstimulated by electronics and cognitive tasks, I haven't replied but please know that I've read everything and it means the world to me. Much love,

@wholeearthlearningchannel3737

5 жыл бұрын

Praying for u black seed oil works for me

@geneboris185

4 жыл бұрын

Have you looked into hyperthermia treatment? i've been in contact with a former patient of a clinic in germany called "st. georg klinic". She is lyme bacteria free now. it is very expensive. but it is the only thing so far..that is known to completely kill the bacteria. i am working on going there. hope you get healed..take care

@14764

3 жыл бұрын

Im so extremely glad you found out. God bless

@BeingErikaWhite

3 жыл бұрын

I thought Lyme was curable with antibiotics.

@l.c.345

3 жыл бұрын

@@BeingErikaWhite only if you're treated when you're first bitten and then for 1 month with high doses of doxycycline twice a day. However if you're genetically tested and your immune system does not recognize Lyme it may not work then either.

Your video may have saved my mothers life.... because of you i had mom tested after she was written off as dementia. She tested positive! With treatment we are watching her become her again! I and my children also have the same disease❤️ thank you for THIS POST!

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

@davidfrost7493

Жыл бұрын

I have lyme disease as well. I was treated with the Cowden protocol and beat it once. I had my strength back and everything. I was doing yardwork at my dad and mom's house. The next morning I woke to see a tick on my shoulder. So I am on this journey again. If I can beat it the first time with God's help I hope to do it again.

@Tinyteacher1111

8 ай бұрын

YAY!!!

I just found out I have Lyme and I’m in late stages as well.... I’ve felt like shit for so long and finally found out a few weeks ago myself. To all of us who have this crap, were all in this journey together, let’s hang in there, we can do this!

@MustangsTrainsMowers

4 жыл бұрын

My tick bite was in the early 80’s. My diagnosis was in June 2013.

@whatsnewshetalks5784

2 жыл бұрын

@@MustangsTrainsMowers what cure are you taking?does it help?

@vividvisions693

Жыл бұрын

@@MustangsTrainsMowers Found any remedies to help along the way? I've heard turmeric can help with inflammation - sometimes when my fingers or toes start getting cold I will make a cup! seems to help for a few

@MustangsTrainsMowers

Жыл бұрын

@@vividvisions693 I’ve been taking turmeric and Curcumin almost 6 years now.

@vividvisions693

Жыл бұрын

@@MustangsTrainsMowers guessing it helps then !

I’ve suffered for years, been through treatments. I was doing so good until I was under extra stress. Anyone that finds a way to get through this, a cure praying someday will be here. It’s so much.

At least you were finally diagnosed dude. In Australia our government refuses to acknowledge it's existence here. Yet i was bitten by a large tick aged 3. Then growing up going to school i had major sensitivity to light (had to wear dark glasses to get to school) Headaches/migraines, chronic fatigue, then about aged 6 i was temporarily paralyzed the hospital tested for meningitis and all sorts of things and a week later i could walk again and was sent home with no diagnosis. Through my teenage years i still suffered fatigue, headaches/migraines (so bad i nearly had to go to hospital) and sleeping for 12-15 hrs still feeling fatigued. Then once into 20's the body aches and pains started. They say ''Fibromyalgia'' ''Depression'' ''Arthritis'' etc etc. You can't get tested for it here it's crazy! All the best anyway. Just thought i'd share what it's like having all the symptoms and living in Australia. People have sent their blood to the U.S and came back pos+ for Lymes so go figure.

@SimpLich

3 жыл бұрын

Tod have you gave up in Australia?

@gothops2632

Жыл бұрын

Tod, have you tried Ozone therapy for Lyme disease?

You are NOT alone. I live with late stage Lyme's also. Thank you for your vlog. Very uplifting. Peace and light to you.

Hugo, I have late stage lymes. I'm a wildlife officer in St. Augustine Florida. My doctor says I've had this for 5 or so years. I relate totally to what you are going thru. I'm in my 6th month of antibiotics. I'm getting better slowly. Stay positive, and know our bodies are amazing and can heal if we give it what it needs. My doctor is perscribing many herbs as well. Best wishes and I have no doubt you will recover! GOD BLESS!

I feel you. I've just been diagnosed with late stage chronic Lyme too. We have to keep fighting 💚💚💚💚

@stylishskater92

5 жыл бұрын

How are you doing so far? Is the treatment working?

@kellygibsonbrooks1454

4 жыл бұрын

I’ve just started sharing my journey with chronic Lyme on here too. I hope you are feeling better and able to manage it! X

@datruth4099

3 жыл бұрын

how are you feeling?

@douglasmcleod7481

3 жыл бұрын

are you trying the rife machine?

@melissareeder99

3 жыл бұрын

How did you get diagnosed? My husband has chronic, severe pain and multiple systemic issues.

I have been living with HIV for 36+ years now. I was recently diagnosed with Lyme's and likely had it for several years. I am going to approach this condition as I have with HIV where knowledge is power where better health is freedom. I hope to hear more of your journey as challenging as it may be. Be well Hugo!

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

Thank you for having the courage to share your story. We are Lyme warriors! 💪🏼 Sending continued prayers your way.

I'm praying for your recovery. What a courageous person you are, thank you for bringing so much awareness to lyme disease

May God Bless You with the miracle of healing. As a person who has had Lyme Disease for 18 years, I understand the journey that you face. I pray that you will be successful in your journey.🙏❤🙏

@crystallawson2557

5 ай бұрын

Me 14 years untreated my sister 18 months older 24 yrs untreated No Dr's nearby that treat or accept medical medicare

I have you in my prayers!! I wish you all the best and I hope you can still travel and do all the stuff you love to do! Thanks for sharing! Love from Switzerland - Jas

I completely understand all of this, i am so sorry. And since your going through it alone like me, its horrible. I think its so much worse being so alone. Love and light to you and thank you for this video.

You're going to get through this Hugo and I know you'll be making awesome Travel Videos again when you're ready. Take care of yourself first, that's the most important thing. Well said video, from the heart.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

@imnotaskippingstone

4 жыл бұрын

Hugo Alexander pn

So sorry that you are suffering. Sending prayers. Keep up the good fight! My son is 20...suffering for years now. People have been so cruel due to having no knowledge. I'm now 53 and have been sick for 3 years this month. We are on our own. My husband, his father left. Reach out to everyone here and for support. Be proud of yourself for your courage and strength! Thank you for sharing! CFS was both of my son's diagnoses and mine. Really needed to see this! Always helps to not feel alone! Sure hope you have good support! Blessings to you. ❤👍☺💚 You CAN beat this!

Hugo, I have never seen you before but I wanted to let you know I have late stage Lyme as well and my heart is with you. I know we will make it through this...look how long we have survived through this. I chose to try natural because I wasnt strong enough for antibiotics. I went to Hansa Center in the USA and have been making great progress. You are beautiful and in my prayers.

Never give up brother! I’m with you even if you think you’re alone

Thanks for sharing!!! It’s a hard but beautiful journey with late stage Lyme. I’ve been treating for 4 years after years of searching for answers. Praying for you & praying for healing! I love the Lyme community on here & on instagram!! We got this 💪🏻

@TheFracturedfuture

2 жыл бұрын

Sorry but there's nothing beautiful about this illness.

Ohhh this video had me in tears Hugo! I know you’ll get through this and you’d still be making epic travel videos and great photos on the road soon! Can’t wait for that!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I'll be taking all this in as you go along. I have been sick with Lyme for over 20 years. Thank you for letting people in on this.

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

Hi Hugo! Thank you for sharing this. It took courage and strength, exactly what you need right now so I know you have all the tools you need to fight this. I'm glad you were able to get excellent medical care. We're all with ya in this!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Wow Hugo! This is powerful. Im so glad you have answers and that you 're staying positive. There are days where it seems to much but you can overcome. We're here and believe in you. Stay strong and thank you for sharing. -Ash

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Wow bro I came across your vlogs this afternoon and have really enjoyed the content but most of all your genuine persona and love for traveling, different cultures and appreciation in the smallest things in life. Then I watched this vlog wow Hugo I wish you all the strength in this solo journey. There are more and more cases these days were people have fought off diseases I nearly lost my best friend 5 years ago and he is still standing wish all the best Hugo!

Thanks for sharing your story Hugo, we've loved watching your videos and will be following and supporting you on your journey!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Thank you a lot for sharing all the vlogs. I've been watching many of them and just now saw this one, it really isn't an easy thing to go through, the good thing is that as you said, you know what are you dealing with. It's just another challenge to go through, you are a great person and spirit, and I send you my prayers and wishes to get well soon and get back on the adventure track really soon !

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

My doctor said the exact same thing to me when I got diagnosed... it honestly was a relief to finally have an answer and also overwhelming! There are lots of us fighting chronic Lyme and we will find a way to win! Wishing you luck on your treatment

@battfamily435

2 жыл бұрын

Look into Ozone therapy. I heard it helps a lot

@Tinyteacher1111

Жыл бұрын

@@battfamily435it’s the great imitator!! My grown son is getting those treatments, plus, blood cleaning, electric impulse therapy, herbal drops, binders, antihistamines because when h had covid a year ago, the body pain, excruciating headaches, mast cell activation, and insidious other symptoms, including neurological and psychological issues started. It’s been over a year of this, which began with mold toxicity, and it’s been over 2 years since he’s has to come and live with me. He has Lyme rage, is negative and complaining constantly, and in terrible pain. I knew nothing about Lyme coinfectiins, until I volunteered at a community garden after I moved from my dream condo that had mold, and I became sicker and sicker. My dog died from mold, and I recently tested positive for live Babesia Mycroti and other tick-borne infections. I’ve been sick for almost 20 year’s beginning with breast implants, mold , autoimmune diseases, weird infections, lost my teaching career from cognitive decline, pain, my condo, family members and relationships. It’s a sad state of our broken medical system that won’t recognize this illness, and it costs tons if money to get tested and treated! I also broke my shoulder and arm, so I can’t drive, and we are so isolated! 🙏💕💕

Wow, this really hits me hard! This must have been so difficult for you guys because you were doing AMAZING! Just know that you guys have been such an inspiring and beautiful couple for me and many of my friends and we're all there!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Hello Hugo, I wish you all the best. A lot of power for the future. It is certainly not easy to talk about such a disease. Greetings from Frankfurt / Germany

Hugo, sending so much love and support your way. You continue to inspire us all, thank you. Steven & Hayley

I am dealing with chronic Lyme as well. Like you, doing it alone. It's hard, but please stay strong. You have thousands in your corner...cheering you on.

@SimpLich

3 жыл бұрын

How are you now?

Powerful speaking from your heart, may you overcome Lyme Disease and inspire others.

My mom has Lyme and I heard her talking to her doctor saying that she doesn't know how she can get through this. Lyme can be so hard, and it's a long way until it gets better and sometimes it seems like there will never be any healing. I'm afraid that this might be the case for my mom. Thank you for sharing your journey and you are giving me strength right now to be there for my mom. Greetings from Germany (Ignore the grammar, still in High School and learning English)

@Tinyteacher1111

Жыл бұрын

I’m a mom and have it as well. I’m the caregiver if my grown who has had mold and now had mold which lowered his immune system and he got Lyme co-infections. Then, he got Covid and he’s been in chronic pain and has neurological and psychological problems including paranoia. I’m sick as heck and have a broken arm and shoulder, so I can’t drive. I wish you guys well! Tell your mom to hang in there! If I can be sick from all kinds of toxins and weird infections starting with breast implants, doctors who lie, and a plethora of autoimmune diseases, she can do it! Tell her to leave me a note here and I’ll talk to her. I’ve lost everyone else I’m my life because I’ve been sick, and I’m useless to them! My daughter, who lives 3 streets away, won’t even bring my granddaughter to visit me, and in the meantime, communicates with my sisters who ignore me and not one person calls me except my friend in Virginia. I live in Michgan. All my beaus have left me because my ex-husband is here every night and weekend, and I can’t get away! 🙏💕💫

Hi Hugo. I've been following your channel for a while now, and I have thoroughly enjoyed watching your videos and following your journey. I'm so sad to hear that you are going through this, and I wish you all the best in every way. I am glad that you've decided to document this journey as well. Your positive outlook on life is inspiring, and I truly believe that you will get better and be able to have the extraordinary life you deserve. All the best, Anne-Li.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I have had Lyme since 2008. Please don't be embarrassed, but I am so happy to see someone else has those same speech issues that I have because of Lyme! It's not just me. I call it a stutter, but it's not really a stutter, something just doesn't connect when I try to talk sometimes. I've always been shy, and it makes that much more difficult. I am so relieved to see someone else have this symptom too. It got worse when I was on doxycycline. Building up the immune system for us is very important. I have a pre-blood cancer condition which those of us with Lyme also need to watch for because our immune systems are so exhausted. My hematologist-oncologist is the only doctor who takes my diagnosis seriously, but he can't treat me. Thank you, take care.

@SimpLich

3 жыл бұрын

Jessica how are you now?

@YARI589

Жыл бұрын

Same I have exact same symptoms

@rcjward

Жыл бұрын

I have same issues but don’t know how to prove it’s Chronic or Late Stage Lyme. Conventional Lyme testing comes back negative.

Oh man... we wish you all the best and send you all the strength you need. Hope you feel our love ❤️

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Wow I'm so sorry to hear this. Lyme can be a debilitating. Praying your treatments are going well. I'm not sure if it would help you but on my Lyme and coinfection treatment and recovery I've found that Pure leaf, organic Stevia extract in alcohol, cats claw, teasle root, coconut, Olive oil (or Olive leaf extract), a good high quality probiotic and magnesium to be super helpful. Pure organic Stevia leaf extract in alcohol has been scientificly proven to kill all forms of Lyme and dig them out of their biofilm in labs conditions. Teasle root is what deer eat and deer, even when bitten, do not develop Lyme. Probiotics, Cats claw, Olive oil, and Coconut all kill muiliptle type of yeast, bacteria, parasites and candida. (coinfections) And since Lyme needs magnesium to complete its life cycle it will use up all of the hosts. Humans need magnesium for over 300 functions in the body. So most Lyme patients should supplement with good quality magnesium. And of course lots of high quality Vit D and C. And bone broth can be very helpful as well. Lyme is one of the worst pestilence right now that is under reported. Well over 300,000 people will be diagnosed in the US this year alone. That doesn't include all those who are looking for a diagnosis, or are misdiagnosed with MS, ALS, chronic fatigue, Lupus, fibromyalgia, rheumatoid arthritis, Parkinson's, ect. It is called the great immigrator for a reason.

@anibrito4553

3 жыл бұрын

Thank you for this information.

@fourshore502

3 жыл бұрын

imitator*

@danny4866

2 жыл бұрын

Very informative information. Thanks.

@kristaroseden5582

Жыл бұрын

Thank you for sharing

You can get through this Hugo! We'll be praying for you. Stay strong and we hope and pray that you will be well soon! God bless! xoxo

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I was wondering all these months why you guys stopped vlogging. To watch this video brought me to tears. I am so hopeful for the journey you are going to be taking alone. You are strong, and I know it. As someone who loves traveling, I believe that anyone who loves the most satisfying things in life deserves to live them, which is why I have hope for your recovery. And I know that your parents would be proud knowing what you've already done in your life. Hope you get well soon :) :)

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I Appreciate you and your courage and honesty about what you’re going through good luck to you

Shit man..sry to hear this...crazy I was lit just thinking about you guys and you just uploaded this vid..I'm glad ur fighting and keeping fighting...I have faith in you...

Am being tested right now for LD and also have CFS, Leaky Gutt and Fibromyalgia to name a few. 2 of my 5 sons have something very similar. Thanks for sharing that a parent / mother can pass it on at birth. I will talk to my dr about that. I had no idea I had these diseases or the beginnings of them back before they were born, but now that makes a whole lot of sense. Now I really feel like a heel! I appreciate it tho and God bless you with a FULL recovery!!

Stay strong and positiv Hugo! You got this! Take care of yourself🤗 The journey continues!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Thanks for such an honest and genuine video. You are such an inspiration. Both you and Noemie have inspired me to travel more. Will be going to Sri Lanka soon and your videos have been amazing in helping me choose places to visit while I’m there. You will get through this and recover! Stay positive and happy as you have always been. Sending much love and prayers your way.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Hi Hugo, your videos have deeply touched me. From all the Asia travel vlog, I can tell you re such a nice guy!! I can't believe this happened to you, really hoping and praying for you to get better soon. And people with good heart always gets good karma in return. Sending you all the positive vibes and energy, the world is waiting for you to explore further!!

@stephaniehenderson8279

5 жыл бұрын

On the plus side..you do have a diagnosis to be able to receive treatment. My prayers are with you. Have faith, and stay srong.

Stay strong brother. We are all fighting our own wars, you're not alone.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Sending you love, light and healing vibes Hugo. Much love xx

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Hi Hugo, you're one of the most inspiring person that I have met. I know you'll get through this, thanks for sharing your life with us.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Stay always like this: strong and positive!! You can make it out of this darkness!! I will support you and follow you through this new journey! I'm with you Hugo!!!!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

We are so sad to hear this 😔 But you will win against the disease! Pretty sure. We wish you all the best and a lot of power for your journey ☘️ Thanks for sharing!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

That the same with my mother, we never knew. I'm in late stage and without advocacy scared. No personal support or understanding it's hard... you've helped make it another day to be human and sharing, you have helped me tonight. I will have to heal with only air lol... faith and God only knows. I'm just going with it I'm in a scary place. You have inspired me on more day, I'm so tired....you understand.

@michiejewel5989

5 жыл бұрын

Elise Spears just checking up on u and I hope u are much better

@nobueno7756

5 жыл бұрын

Wow, thank you. It not a lot of changes for me as of now, no. Few check in on me, so appreciated. Just hanging on.... much love ♡♡♡

Hi Hugo.. I was shocked bout the condition, i hope that you will improve and improve more about your health. Be stronger than before

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Please hang in there! I believe in your full recovery!

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

Wat een heftig verhaal! It must be some kind of relief to know what the reason is you're feeling this way. Sending you a lot of strength and power to get through this. Not sure if you want go hear this, but maybe search for 'Lisanne Leeft'. She's Dutch too and also has chronic Lyme. She just had treatment in Germany.

Thank you for sharing! I’ve started sharing my journey with Chronic Lyme too. Hope you’re feeling well these days and managing it. Xx

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

Hi Hugo, My partner and I, coincidentally, were always a couple months behind you on our own journey throughout SE Asia, watching your vlogs along the way to get travel tips and also to have a bit of a laugh when you two experienced similar circumstances as us. I'm so sorry to hear that you are battling this illness, but your bravery and hopefulness seem to be your some of your best weapons. Our trip also came to a screeching halt after my partner needed hospitalization (from Gili to Lombok, finally made it to Singapore!) and it really puts life into perspective. The world is beautiful because of its gorgeous oceanside and historical buildings, but sometimes the beauty in our own daily struggles- the love you find for yourself and others in it- surpasses it all. We look forward to getting a glimpse into your experience in the vlogs you share with us along the way. I'm wishing you the best of luck and giving you thanks for continued inspiration

@hugorijpstra.netherlands

6 жыл бұрын

❤️

inspirational words ... such a touching story of life told from your personal very difficult POV beautifully. I'm going to test for lyme myself as it was a test I neglected to follow up on years ago when I got that 'ring' rash around a tick bite which was negative at that time. I was diagnosed with fibromyalgia years ago but some of the symptoms seem more akin to late lyme. Your words are inspiring and shows true courage to the deeper core of what connects us all spiritually and that is very uplifting to hear. Thank you once again for sharing this wonderful video.

Wow, very heavy story, I wish you all the luck and I hope you can win this challege!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Today is my first day of antibiotics

keep strong your mind. you are the best travel vlogger i have seen about sri lanka. As a sri lankan i m wondering about my country through your past travel vlog - sri lanka. i also dessapointing why they stop vlog last few months. after long time so happy to see you again. You are not alone Hugo. All asians are with you. world is waiting for you......

Think of you so often Hugo. I always check your website + whisper a prayer you are still alive. I know you are debilitated and bed bound now. I got lyme + co from my mom too. We are all rooting for you.

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

Thank you for sharing your journey with us. We pray 🙏 for those affected and hope there are ways you can find comfort and strength along the way. 😎 💘

Wow. Your eventual diagnosis was exactly like mine. For me it took over year to get diagnosed and when I eventually found out, we went out for a slap-up meal to celebrate no longer being in the dark. Nearly four years, life is much better but also very different and I ended up medically retired at 53. I do bits of manual part time work now but resulting brain damage prevents me from doing any work requiring cognition.

Wishing you all the best, love, healing and faith xx

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I have missed your videos. hope you get well soon. I will be praying for you. take care and stay positive.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

My thoughts and prayers are with you Hugo!!!!!! I wish you battle and win this fight!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Thanks for sharing, so important to share our stories. Think I have had this my entire life too. Healing now is the goal.

I have chronic Lyme and made it through. It’s a fight everyday but I have learned to love the fight and be thankful for every moment I have. Now I make videos to try and help others who suffer from Lyme. I have never felt so much love from strangers as I have from this community and I just want to spread love and positivity however I can. Fight Forever, Lyme Warriors. We stand united.

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

@donapaulin2600

Жыл бұрын

What did you use for treatment?

Thanks for this great vid wishing you well Hugo

Thanks for make it understandable. And may God bless you in your fight. 🙏

I hope your battle is going in your favour dude. I got bit back in September then had the em rash and 3weeks antibiotics....but I still have symptoms. I am waiting on a referral for further testing and maybe treatment. Here's hoping for us both and all long haulers. X

@JP-xs5lo

Жыл бұрын

You can beat it if you get proper testing and treatment igenex for testing you have to go to private doctor that treats Lyme disease llmd

I have chronic Lyme too, so you’re not alone. I’ll be keeping you in my prayers and thoughts Hugo🙏😊

wish you well and look forward to seeing you filming in Sri Lanka again. Hope Noemi is well.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

hope you will get well soon, Hugo! Stay strong!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

You are amazing and definitely not alone in this. I have it too with many long term symptoms as well. We can, all of us who have it, get better

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

Bro you are not alone in this one, we don't know you on a personal level but we will support you however we can and we will stand by you don't you ever forget that! You will get through this and bring us beautiful content again.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Like many I was wandering why you stopped vloging! Your words are inspiring, i wish you health and happiness.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I feel your pain brother. I have the same struggle since I remember, as a little child. It invalidated me around 10 years ago. Never give up fighting.

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

@johnM-Jr

Жыл бұрын

​@@hugorijpstra.netherlandsyou are his caregiver. He is fortunate to have one. I'd like to treat Lyme I have, but feel part of the healing process is being with people who understand. I'm looking for a group to live near or communal who understand.

Our prayers are with you Hugo! Stay strong!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Good luck bro. Keep on fighting.

Stay strong brother and keep up the optimism

Stay strong! Hoping that you will get well soon... Prayers from Norway🙌🏻

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I can't wait to see your journey. So inspirational :) You're in my thoughts amd prayers!

@hugorijpstra.netherlands

6 жыл бұрын

❤️

your not alone ! we lymies are everywhere .I pray for all of us and the ones that will be infected soon and latter . These infections are no joke

Will be subscribing to follow how you heal. I was just diagnosed with late stage lyme too.

Yes I understand young man... I too have advanced Lyme's Disease. Hang in there and may God be with You ✌️😎😴🕊️

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

stay strong .. i hope that you are better now. and you are not alone in this world

Me too. I've lost hope though. I've been sick for 30 years. 3 years ago I hit the wall and have been confined to the house since. I hope you find your healing. Myself, I'm just ready for the end.

Thank You for sharing your story. I hope you are feeling better.

So courageous man thanks for sharing! Can you give an update on how you feel today?

Godspeed to you . I once had a chronical illness as well . I managed to defeat this and got pronounced healed by the doctors. Just hang on and stay strong 👊🏼

@hugorijpstra.netherlands

6 жыл бұрын

❤️

I hope your doing better! Would love to hear a good news and anything that has worked for you. I am from America and have late stage chronic neuro Lyme disease and I have had remissions so their is hope. Currently undergoing another horrible flare but I am hopeful and pray we all figure out a cure 💕

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

Best of luck to you Hugo, keep it up!

Missed you guys . Hope you recover soon

This is so hard to watch. I'm so sorry you have to go through this but always remember you're not ALONE. We are with you. Be strong and keep the faith, Hugo :")

@hugorijpstra.netherlands

6 жыл бұрын

❤️

It's been a year in April I've been fighting Lyme. Diet is a big thing. And Monnolaurin will dissolve the bio film that these critters live and hide in. Thanks for your courage.

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

@tarag1136

2 жыл бұрын

May I ask which diet you are using?

Hang in there Hugo. I too remember being told 10/2/2015 that I too have Lyme after suffering with horrible migraines, crippling fatigue, heart arrhythmias, osteoarthritis in my knees hips shortness of breath a spot on my brain and many other symptoms. My diagnosis wasn’t positive until by random chance when I too began to not be able to speak full sentences and had problems waking it happened be at the same time of testing the bacteria came out to reproduce long enough to be discovered. It took years to be semi Normal. I thought I was doing pretty good until about eight months ago when I’ve been under tremendous stress I have noticed here lately I’m back to swelling again with chronic Adema again heart palpitations shortness of breath brain fog and joint pain and of course excessive weight gain that nothing cost to go away no matter how hard I try so I guess that means it goes into remission and I’m just trying to do each day one day at a time

@hugorijpstra.netherlands

2 жыл бұрын

Hi there,
 Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :( This is a reply sent to everyone on KZread who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. Below you can find the two recent updates: 2 YEARS POST CROWDFUNDING - PART 1 of 3 WHAT HAS CHANGED? facebook.com/hugo.alexander.page/videos/854949998537329/ 2 YEARS POST CROWDFUNDING - part 2 of 3 HOW IS HUGO’S HEALTH? facebook.com/hugo.alexander.page/posts/1835575429969803
 For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through: facebook.com/hugo.alexander.page instagram.com/hugo.alexander.page Thank you! 🙏🏻

We took a lot of inspiration from your videos and really influenced our videos. Thanks for such an honest video. Much apprecaited.

@hugorijpstra.netherlands

6 жыл бұрын

❤️

Your not alone ....... I wish you strength better health, much love and light to you and ALL (Lyme gal from oz)

God bless you. I was diagnosed with lyme disease just over a year ago. Woke up last week totally crippled up. Knee pain, leg pain, shoulder pain... Can barely walk around.