Wow! This is the most fantastic information that I've heard in so long! Mold, lyme, lupus, fibromyalgia, ME/CFS.. is everything I have been diagnosed with and nowhere to turn! Thank you Dr. Patterson

Thank you to Dr Patterson and his team for their continued dedication to solving long covid and CFS conditions.

I’m also stunned watching dr. Patterson share how his patients use their hands at the side of their head When they describe their head filling up! It’s exactly what I do when I’m describing how my brain feels. I’ve been waiting for data to catch up with what I’m suffering from. I feel sorry for people who have been suffering so long with me cfs- it takes a pandemic and thousands of people who are now experiencing these debilitating symptoms before there is an interest from the medical community to get motivated to do the research! The stigma that people have had to put up with is terrible. Silver lining that now science is paying appropriate attention and treatment can improve. There’s nothing worse than feeling ignored by doctors who think it’s a mental health issue. I’m a counselor in healthcare and I teach CBT. CBT actually worsens symptoms and so for a whole year I’ve been pushing myself- trying to ignore my symptoms and walk everyday as the PT told me and now I have learned the exact opposite- stay in my envelope to avoid the crashes! Misdiagnosing a patient is awful. We r our own best advocates and we need to push our doctors and do our own research- trust in ourselves and what we are feeling

@barbarafisher1749

4 ай бұрын

My 14 y/o granddaughter said she felt like she has cotton balls stuffed in her ears. It better after IVM FLCCC treatment.

Sick 22 months and 3 days, lost career, hobbies, independence- hoping Dr. Patterson’s research and scientists like him will get me back on my feet.

@AlbaLynxQueen

2 жыл бұрын

did you try his protocol?

@danielharrang1513

2 жыл бұрын

@@AlbaLynxQueen my healthcare is with Kaiser and they cannot do anything outside their own protocols- of which they have none for post viral ME/CFS other than antidepressants and gabapentin.

@returnfreedom

2 жыл бұрын

you need to go to Longcovidhauler.com and sign up. They will get you lab work and start a treatment plan. I just started and I am waiting on my blood test, it seems like a slow process but they can prescribe the treatment, it may come out of your pocket depending on insurance.

@shilk4301

2 жыл бұрын

@@returnfreedom this website does not work . Can you please verify and share it . I have been going through long covd since March 2020 and at this point am just looking for ways to rule out issues . Kind of tired I guess . If ther is a doc who can order all the related tests that will be so wonderful

@RC-9

2 жыл бұрын

Sorry to hear that Daniel, I struggle too and know how demoralising it is.. 😕. Good luck fella hope you find peace one day.. 🤞

Thank you Dr Patterson I have fybromyalgia for 20years now. Can no end to this invisible sickness.

Thank you, from the first day that I've heard the symptomps of long covid I realised that they are some kind of same thing with my condition ME\CFS and I have started hoping that the doctors will come up with something for ME/CFS! For years I felt not cared!

@adonnaprice9676

Жыл бұрын

Also so hope we get justice for the hell we have been thru..

Thank you to Dr. Patterson for devoting time and valuable work to trying to help solve ME/CFS. We are a patient group in desperate need of help.

This is amazing to hear about the underlying chemistry that explains my symptoms of neuropathy, fibromyalgia and POTS. Great work and really a miracle to behold! Thanks for all your hard work Dr. Patterson! Get your papers out!

I tested positive just before Christmas was sick for 3 or 4 days but the headache, joint pain and extreme fatigue a little brain fog and a few other things. Can't wait to start feeling better

I'm a mast cell practitioner, have it myself and dealt with an explosion of long covid in my practice. I had the original strain long covid for 10 months. I did not have the head symptoms, neuropathy or vasodilation to my knowledge. In fact I put an end to my long covid lung and heart symptoms with Iver, 5HTP w/B6 and flushing Niacin based on some research I found. Shortly after starting the 5HTP & Niacin I had a severe "covid headache" at the base of my neck. An acute horrific encephalitis/meningitis type headache. Which is when I started Iver. I took 2 doses 24 hours apart and have had no issues since. No more fatigue, exercise difficulties, heart issues or anything else since. I've run into others that followed that researchers suggestions successfully too. My sense, and the researchers assertion, was that it was flushing something from the vascular wall. Maybe the monocytes? I keep wondering if some people with leaky BBB's get the head parts of this while others don't. And is this more about inappropriate vascular dilation that can vary throughout the body. Verses just vasodilation. Seems possible with what we know about POTS. My experience is certainly counter to what's been mentioned here but I still was fortunate enough to have a successful outcome.

@heatherlavender8236

2 жыл бұрын

I was wondering what was going on with me in November of 2020 till around July of 2021 I almost felt like I had slight asthma though I have never had it and it slowed down as the months progressed. My exhaustion lasted for around 4 months and that all of a sudden just stopped and I realized I was better and I had a sore throat with drainage too from my huge covid experience. I really didn't know about it and this year I got Delta after a year and week between and it seemed to get better in half the time with quercetin with Bromelain and other things like Turmeric, fish oil, flax oil, and ashwoganda to help deal with inflammation and it worked. Is this similar to some long haulers of covid or is this too short? Thanks for sharing you're experience it helps me know I am not the only one out there. Hopefully you're new year is going well and take care! I might have Omicron now so that would be three times, but never the same symptoms which is interesting.

@lukesmith3283

2 жыл бұрын

Hi Lesley I have been suffering from omicron for five weeks now. I also have this encephalitis/meningitis type headaches non stop, also a white veining back throat for awhile. Any advice on getting rid of this? Besides Ivermectin?

@heatherlavender8236

2 жыл бұрын

Hi Luke, I have a way to get rid of anything in the mouth with a homemade concoction I have taken to deal with mouth and throat issues. My experience is that on the 6th of January I had a bad headache and then my sinuses ran like crazy. The next day I had a bad heartburn that lasted all day then went away and my headache and sinuses were still there too. Throughout the rest of the week I had nausea when I was hungry I got rid of that with a essential oil called Digeztion from Doterra company. I also had a film in my mouth from my roof to my tongue and all over I couldn't ever get off. Well someone had given me an idea with this concoction I had said that helped it go away after a few days, it is: 1 garlic clove that you squeeze out of a garlic press for 15 minutes, then while this is happening you mix 4 oz. lemon juice, 2 tablespoons honey, 2 tablespoons ginger, 1 tablespoons cinnamon, and one half tablespoon chili powder. Mix it all together and take one tablespoon three times a day and swished it around the mouth and gargle a few times and swallow it. It may taste strong, but it really helps and it also helps build the immune system too. 1 tablespoon a day can boost the immune system and 3 tablespoons is good for an infection. My biggest problem now that took me forever is the heartburn thing I got it a week later after I had it the first week and off and on ever since, shortness of breath slightly, a thick tongue it's hard to pronounce words fast when I talk, and exhaustion, and sinus issues. My heartburn has been slowing down as long as I have Apple Cider Vinegar in water with food , exercise, and laying on the left side at first it really helps. I am thinking I got hit in the gi track including the osoghigus with the heartburn problem and I have inflammation down there and it's finally feeling better, so it maybe going away yeah! It has taken almost two months fully so we shall see how it goes now I am just so relieved it is getting better. I hope that helps you and you can get over what you have quickly now. I am just a long covid person, but it's not as long as the first one I had so I feel blessed and my immune system is working and my immune system is stronger for it. Let me know if you have anymore questions? Thanks and we can get through this and take care!

@leslyrae6025

2 жыл бұрын

@@lukesmith3283 not the inflammation at the back of the head. I'd used several things with some relief but Ivy is what clinched my getting rid of it. And fast. Within 48 hours it was reduced by 75%. Completely resolved within another few days. (2 doses total) CBD/THC - some relief. Boswellia & Curcumin - some minor relief. Infrared light - some relief. As for throat stuff I've always loved ACV (Apple Cider Vinegar) and fresh Garlic. Often together. It can be quite painful if the throat is raw but seems to wipe out anything that sits in the throat of our family. I hope you get relief soon. I'm grateful my symptoms were short term. It was painful and show stopping.

@lukesmith3283

2 жыл бұрын

Hi Heather thank you, I may try this and see what happens. I do have a very week digestive track from poor eating habits from the past. I had a bad experience with apple cider vinegar once and ruined my digestive tract and got very sick in March 2020 when the pandemic first hit. I’m going this week to see a GI doctor and get to the bottom of my stomach issues and see how bad omicron has flared my stomach/GI tract. This is day 43 for me post infection of omicron. I wonder, omicron started in the gut with horrible stomach pain. I wonder now if omicron is “gone” if it induced my stomach esophagus and head with a bacterial infection. I keep asking doctors about my throat but to no avail. I’m guessing you came down with the original strain Nov 2020 as did I. However the original strain did not put me through the ringer like omicron is. When I got covid nov 2020 it lasted 12 days after three days of fever it wasn’t that bad. I tried going back to normal working out after two weeks with omicron however it caught up to me by the third day of working out with a massive headache and heart palpitations. Any case if you want to exchange emails and talk offline I would appreciate that to exchange ideas to get over this somehow.

Thank you so much! I will spread this video to anyone I can! Now if only my doctor would watch this…

36 years old male, and i am ill over a year. I am living hell. And it isn't about the respiratory system. Before covid i had gi issues like ibs flatulence etc.. but i could live with them. After covid it is like my GI problems started to have their own neurological problems. Involuntarily swallowing (!) started. My tongue and jaw started to loosen. It is unseen. I felt like there was a tremor and tension through my throat-esophagus track. After losing 15 pounds, 3-4 weeks later i got little better and gained my appetite, but then i spit light red blood like 15-20 times with stomachache and throatache. I did endoscopy immediately but they didn't find anything. Then everything got worse. I lost my appetite for good over a year. I am experiencing a worsening throatache that no ENT professors can detect with camera. I have examined by over 60 professors. Gastroenterologists, ENT Professors, Neurologists etc.. i did blood tests, endoscopies, colonoscopy, CTs, MRs even EMGs. I did Dr. Patterson's incellkine interleukine bloodtest panel. VEGF and CCL5 (rantes) parameters came up high. But the doctors can not make a connection between these parameters and my symptoms. Throat pain is killing me. Loss of appetite, fatigue.. these are also challenging. I have other symptoms but i dont know how can i bare this throat pain. Gabapentine isn't working. Diclofenac isn't working. They can not tell any reason other than long covid. Do you have any suggestion?

I had long haul from vaccine with peripheral neuropathy, vascular inflammation. And reactivation of HS1 and zoster. None of my doctors would admit it was vaccine.

@knrock5163

2 жыл бұрын

me too, absolutely vaccine induced!

@shilk4301

2 жыл бұрын

How do you diagnose this . Am so lost :(

Finally, has anyone here actually gone through the treatment described by Dr Patterson? With so many people treated, you'd think there would a few people willing to share their story. But I can't find even one willing to talk to me. That would be anedotal at best, but it's more than I have now.

@jennifernepean2957

2 жыл бұрын

My last comment seems to have disappeared. I went thru his protocol. Just finishing it.

@bradsalz4084

2 жыл бұрын

@@jennifernepean2957 And the result is ... ? (drum roll)

@jennifernepean2957

2 жыл бұрын

@Brad Salz I'm better now:) i was a vax long hauler and sick for 8 months.

@bradsalz4084

2 жыл бұрын

@@jennifernepean2957 And now my comment seems to have disappeared so let me try again: How long did your treatment last and do you think you are "cured" or are there remaining symptoms not cleared yet? I had many more questions ending with an email address to take this conversation private as it would be long and off-topic for many other people scrolling through comments. Maybe that's what got this deleted.

@jennifernepean2957

2 жыл бұрын

@@bradsalz4084 i feel cured. No unresolved symptoms. I was treated for 3 months.

Thank you for being out there for people like me who had covid for at least 4 months and beyond with shortness of breath dwindling off after six months and then I never got it till around 6 months after that with Delta. Now maybe Omicron so I got pretty much every symptom that is on the list and never got the same symptom twice except fever, achy body flu, and inflammation. Thanks and I am glad I found you guys today and keep up the great work!

All my ME\CFS symptoms got worse after vaccination!

@adriabaker6668

2 жыл бұрын

I was diagnosed with Fibromyalgia and CFS by two different specialists. When I got so much worse after vaccination neither my family doctor or either specialist told me it was impossible to get long haulers from a vaccine. Some times doctors are so frustrating.

@susanthomas2599

2 жыл бұрын

All my symptoms disappeared immediately with the first vaccine and I stayed in remission for 60 days. Has this happened to others?

@andocobo

2 жыл бұрын

All mine got MUCH worse after covid (got it well before vaccination was available). As bad as covid vaccination may be for people with CFS, I think it’s likely better than getting covid completely unvaccinated. Covid almost killed me, it’s made my health unimaginably worse and it’s been almost 2 years since I got it.

@forisma

2 жыл бұрын

@@andocobo indeed.. 🙈 Also, vaccination seems to be safe for a lot people with ME. I am fine (had Pfizer shots, 3 already). I have ME/CFS.

Also, are there other long-COVID or ME/CFS researchers citing Dr Patterson's reseach? If not, why would it be ignored for so long? Are other long-COVID clinics using his test panel or copying his therapy? If so, where can I find such a clinic?

I am 34 and am rapidly declining with connective tissue failure, along with other typical symptoms for LH-C19. I am one of many…interested in hearing about what is causing these connective tissue problems to be so severe and spine injury implications. Again, I am one of many… thank you

@africkinamerican

2 жыл бұрын

Are you supplementing with nutrients important for connective tissue? Especially, LOTS of vitamin C, also collagen? " vitamin C has multiple mechanisms for fighting degenerative diseases that extend beyond its antioxidant abilities (such as collagen formation, osteoblast formation, maintenance of the ground substance, and others)." Thomas E Levy MD, "Primal Panacea." Search that name, you'll get lots of information.

@xokallista9955

2 жыл бұрын

I have been using vitamin c and collagen as well as following a custom protocol set up for me by a neurologist who is familiar with long Covid and long vax it is based around reducing inflamation in the body and reducing the headaches especially.

@TheKayannh

2 жыл бұрын

With connective tissue disorders, tryptase (a protease) is your enemy. I suggest you look into tryptase, aka ‘the meat tenderiser’, and which cells release it. I’d also recommend reading about Bioflavonoids, like Quercetin. I can’t send links so perhaps google ‘quercetin + sunflower lecithin’ for an interesting read on pubmed.

@2hff728

2 жыл бұрын

@Anson - have you been tested for anti-collagen Type II antibodies?

@anson.meadows

2 жыл бұрын

@@2hff728 never..what would this test likely indicate for me?

SOOOOOOO THANKFUL FOR YOU!!!!!! I'm one of your patients for a few months now :) Godspeed!

@xtian384

2 жыл бұрын

@@auggie1790 we'll never know of course

Such encouraging work!

Has Dr. Patterson seen similar improvements in ME/CFS patients on CCR5 antagonist or statin medications he mentioned? I have the exact "head fullness" he described.

@Jennifer-gr7hn

Жыл бұрын

I was on it and felt my BEST. Was on for a year. Now on other things, but yes! The marairoc as well fluox

I wish I could get into a study as a patient. I tested positive for Mononucleosis, Rocky Mountain Spotted Fever, Chicken Pox and Shingles 2 months after my first boutique with Covid. I have had covid 3 or 4 times and live with Long Covid for 2 years 6 months plus. We have been trying various meds but my doctors have not suggested statins yet.

LOVED the cytokine/symptom chart

God bless Dr.Ayomede on KZread, all my life will keep thanking you for the great help and for your product which actually works in eradicating herpes virus out of my body system

@johnthurein9777

2 жыл бұрын

Can I know what’s she prescribed to you. Thanks

@catrinaashlynn3289

2 жыл бұрын

@@johnthurein9777 He prepared roots and herbs for me Dr Ayomede

@roonbooks1418

2 жыл бұрын

Scammer!!!

@hilarymurray7800

2 жыл бұрын

Any herbal treatment for long covid?

I'm considering starting Bruce Patterson's protocol CCR5 anatagonist (maravoric), statin (Pravastatin), plus other components. Can Dr Patterson explain why Ivermectin is included? This made my PCP suspicious of the entire approach and refused to prescribe for it. My PCP couldn't attend the 20 minute consultation with Dr Kreimer at IncellDX and now there is no way to close that loop. Also, can Dr Patterson explain why Leronlimab, another CCR5 antagonist, is no longer used? I though there was phase 2 trials being done. What happened?

@caroconga

2 жыл бұрын

Good luck with that. Please keep us updated if you see any improvement in your health. I would be very interested as I have ME/CFS for more than 30 years now. Best of luck.

@maureenhartnett2953

2 жыл бұрын

Ivermectin(IVM) is recommended by many scientists and doctors as part of LH protocol. I found it to push back my POTS symptoms about 40% and within two days IVM resolved my shoulder and hip bursitis so it doesn't surprise me to see it on Dr. Patterson's protocol. IVM has amazing anti-inflammatory and anti-viral properties. There are about 65 studies on IVM. It is both safe and effective.

@heatherlavender8236

2 жыл бұрын

I asked about Ivermectin with a ER doctor and he said no it is only for those who have bugs in their bodies so I guess it kills them. So I had to get over Delta with my own immune system, luckily I did my protocol I used last part of 2020 for the Alpha variant. The main different thing I have been using this time is quercetin with Bromelain and these two are helping the immune system and inflammation and more Turmeric and flax oil and fish oil. All this seemed to help with exhaustion and that was my main problem with the first experience I had with covid, it took me almost four months to get rid of exhaustion and some of the doctors are saying it is a sign of inflammation. I am pretty sure I got rid of inflammation in half the time with the Delta two months ago. I also used garlic cloves in applesauce which helps with sinuses wherever it is clears me up like a natural antibiotic. Now I got something else that may be Omicron and I will find it out since I just got tested yesterday. The funny thing is I have never had the same symptoms so I am pretty sure I have had all the symptoms that is on the list. I hope all works out for you guys and we need to know their are others like us out there. Does anyone have like a Thyroid problem? Because my hands have gotten so cold and that only happens when my Thyroid is unhealthy, and I am taking my medicine for it so I guess it's affecting my Thyroid all three times so that is another reason I think I have it. Okay thanks for sharing you're thoughts and take care!

Has anyone had any success with Patterson's protocols? I haven't read any success stories in the comments.

You are giving us hope 💖

VitC 1000 zinc l-lysine Monolaurin has helped more than anything major meds which my system cannot tolerate! We need an RNA vaccine for EBV!

@forisma

2 жыл бұрын

Vit C helps stabilize my mast cells too. Do you think an mRna vaccin would help with an existing EBV infection?

@djVania08

2 жыл бұрын

@@forisma there is no RNA vaccine for ebv

@forisma

2 жыл бұрын

@@djVania08 I know

When Dr Patterson is finished with this ...hopefully he can figure out why ppl with connective tissue disorders (Ehlers-Danlos, Hypermobility Spectrum, Marfans Syndromes). Somehow we as a population get MCAS, POTS, chemical sensitivities, ME/CFS, fibromyalgia, etc.

I have long covid on and off. How much statins and maravarac have been used?

Odd question: has anyone lost their body's response to sexual stimuli? I wondered if it could have something to do with the vascular inflammation and micro clots? (Had vascular ultrasounds last year as had leg heaviness and couldnt walk far...results showed abnormality..but since I have no visual leg symptoms...vascular said there was nothing there..though my PCP rushed a referral to vascular.) Makes me think that vascular dept wasnt up to date with latest research.

How can I find a clinic that is collaborating with your program near me?

Why doesn't he just treat reactivated EBV in these patients instead of charging thousands and putting them on statins etc..

@artansadiki3244

2 жыл бұрын

Because you can't effectively treat EBV. For ME, it seems that EBV doesn't even need to be replicating itself, it just needs to inhibit a tiny bit of viral RNA to cause the inflammation.

Has anyone been treated according to Dr. Patterson's scheme? What are the results?

Why does Dr. Patterson's first slide have a footer that says "Strictly Confidential"? Seems odd since this is posted on KZread.

@wizzboy18

2 жыл бұрын

I think it's because all this stuff is a work in progress and the treatments are still going through trials. He mentions speaking at a convention in Rome which is probably what he used these slides for. You have to take all the theories and online personalities equally. You have the microclot stuff on the other side of the planet and then you have Patterson over here. Stay strong is all I can say.

@roonbooks1418

2 жыл бұрын

Could be he has a patten on this protocol?

Red mineral algae/green Kratom / Chyanne pepper just give them a try

@mdh5075

2 жыл бұрын

Why kratom?

@rayyar9325

Жыл бұрын

It just is