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How Five Feet Apart has Changed Cystic Fibrosis [05.07.19]
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Since the movie Five Feet Apart hit theaters, it has drastically shifted the landscape of Cystic Fibrosis and the public perception and knowledge. How you may ask? Check out the video and let me tell you about some awesome interactions I’ve had, along with how you can get involved and continue raising awareness and funds for CF!
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Пікірлер: 125
I wish Claire was here to see it. That’s all I thought when I was seeing it. ❤️
@kathleenbeaman6712
5 жыл бұрын
Alexus Alone she sees, she sees. She’s perfect now. 🙏🏼💜🙂
@kathleenbeaman6712
5 жыл бұрын
I started a Cystic Fibrosis fund raiser via FB. Donations go straight to the foundation, and I am “ computer illiterate” I’ve never done it before and raised more than I ever expected. Changed my goal three times. That’s a good thing!!! 💃💃🎚💃💃
@alexusnicole207
5 жыл бұрын
kathleen beaman wow I am truly inspired that’s great!!!
@janinebosse2217
5 жыл бұрын
❤️
@clarejean3309
5 ай бұрын
Me too I think that’s the real heartbreaking thing about five feet apart was that Claire didn’t ever get to see it 😢😢😢😢😢😢
*me coughing like crazy* *person staring at me* Person: You catching it too huh? Me: No, I was born with Cystic Fibrosis. Person: Yeah I have asthma. It's tough, I understand. Me: Yeah, you totally understand. There will come a day where this almost DAILY conversation won't happen anymore. 👏🏻👏🏻👏🏻
i actually found this channel through that movie, after i watched it i search up cystic fibrosis and found your videos :)
@alisonpetruccelli3116
5 жыл бұрын
Same!! And Morgan's message is helping other understand his condition too!
@personneinconnue
5 жыл бұрын
Eli Von me too
@Nordap1986
4 жыл бұрын
Same and I also found the Frey life channel. I had never heard of cystic fibrosis until after the movie.
I am going to school to be a teacher, and CF is one of the conditions talked about in one of our textbooks. CF awareness is on the rise. :)
Five Feet Apart really did change public knowledge. I never knew about CF until I saw it and found this channel through it. So happy that I saw it.
10:40 Literally me😅😂 but tbh, after I read the book and watched the movie, I did SO MUCH research on cystic fibrosis. I’m only in grade 7, but I really hope I have the opportunity to do a project on cf.
My cousin has Cystic Fibrosis and when she was younger I did a little research, but I didn't know all of the aspects of it. Seeing your videos and doing more research about it really helped me understand. I was also apparently tested for it as a pre-teen. Now that I know about what the diagnosis brings, it terrifies me that they thought I had it!
I loved the movie. It really hit home because I lost my bestfriend to CF almost 3 years ago...she made it to 25 and 2 months later she passed away. They were talking about possibly doing a lung transplant and she didn't really want it. She always said she wanted to die "whole" meaning she wanted all of her own organs. Well she got her wish even if it was hard for us to take in...I miss her so much
@JulieJSchmidt
5 жыл бұрын
Oh wow.
I have Cystic Fibrosis, and this movie was one of the best I've ever seen! I love your videos by the way!
I am so overwhelmed with the passion that Justin and the actors put into the movie. After I saw the more, I watched your reaction video, you are amazing and the passion that you have for the move and the awareness that it has created warms my heart. I love you and the passion that you have.
I am doing a project on CF and I am sooo thrilled to be spreading awareness. I am in 7th grade so I love that I get the opportunity to spread awareness in the younger generation.
@elenagibbons4719
5 жыл бұрын
Shelby Smith I did a project on CF in 7th grade too! I’d recommend checking out Claire Wineland. She sadly passed away last year, but her videos are still on KZread.
@shelbyparkersmith7998
5 жыл бұрын
Thank you! I'll check her out.
I just shared this to Ellen on Twitter! She needs to have you on for CF awareness!!!!
I have a friend with CF, but since she has a milder case (I think... during high school she was never hospitalised) I really only knew the basics, but the movie really opened my eyes to the full condition. Also today in New Zealand it has been announced that the drug Kalydeco will be funded for cf-ers, which they have been fighting for since 2015, so progress is being made!
I had never heard about cf until my granddaughter was diagnosed with it a 2 days old after emergency surgery. Since then I have studied really hard to learn as much as I can. The movie was great and we love the walks. Love your videos.
Another thing that I personally think made the movie so successful and impactful was its depth. Not only in its accuracies and spotlight on all things CF, but in regards to heavier, but very-real topics that aren’t sugar coated like you see in other movies. Because even CF aside, the movie to me was also just a positive discussion of what it means to live/value life, of the power and need for physical intimacy, of diving into/“exposing” people’s fascinations around death and dying-getting rid of the taboo of talking about it ... Its maturity was relatable and SO refreshing for “teen love story” in that I think many people of any age could walk away feeling thought-provoked and that’s just shows how well it was written. Then on top of that this movie has the pride, honor, and respect of doing the CF community justice by educating and spreading awareness- just wow 👏🏽👏🏽😭, I can’t get over it [clearly haha]. These are the discussions that need to happen and I’m glad it has done just that!
You should do a Audio commentary of the film when it hits home release like a bring your own movie type deal !
I’ve lost count on how many times I’ve seen Five Feet Apart, I just love it.
@clarejean3309
5 ай бұрын
You and me both!
Gah I’ve been pining for your review of the movie since it came out in theaters!
I'm so happy that finally a movie like Five Feet Apart came out, when my friends and I went to see it we all honestly thought we were going to see the tipical romance movie with Cole Sprouse in it, when the movie end we all were in years it literally changed our lives, all the people in the cinema came out being totally different people. After we saw we really tried to envolve and help with everything we could, we started an Instagram account talking about CF and cfers, we started a collection of money in our school and made a presentation, we really hope that we can help cfers and CF awareness, now all my school is donating. I really admire all cfers because they appreciate every single thing about life, they've been through a lot and are extremely kind and admirable humans. I really admire Justin Baldoni for doing this. All cfers need to know that they will never be alone. ❤
Found this channel because of the film. I'm from the UK and it was/Is huge. I knew the name of it but I didn't know what it was. I've seen it so many times and I love it
G'day from Down Unda! Keep doing what you're doing Morgan 😁 Its great to hear how people from the Five Feet Apart production have reached out to you. I saw Hayley reference your review video on an interview! Would've been cool to be in touch with them 😊
@sophia4150
5 жыл бұрын
Go Australia!
Found your channel a few months ago been binge watching ever since! Supporting you all the way from the UK!🇬🇧
I just enjoy watching and seeing someone who recognizes what the film was and what it was trying to do....I have seen WAY too many CF people bashing the movie amd attacking it instead of taking the movie for what it was and using it as a positive platform to bring more awareness to the illness
At my school we do a living museum and you dress up as a famous person so I chose Claire wineland I don’t have cf but the movie made me want to help out and be a pulmonologist and help people with cf and before that I had never heard of cystic fibrosis and because of that I wanted to help more ! I love your channel too ❤️
I loved the movie because the movie circles around cystic fibrosis, not the other way round. CF wasn’t used as just another tool to emphasize two teens’ great love or whatever. It was more about two cfers’ struggles and busting their ass off to keep their hopes alive.
I almost never write comments but now I just wanted to reach out and tell that trailer to the movie has brought me to your channel and I have been loving it since ❤️ You and all of the people, fighting with CF, as well as other disease are the most badass people I have ever seen! 👏 Keep up the good fight 👊 P.S.: Ukraine 🇺🇦
Are they donating any of the profit from the movie to research or any foundation? I do wish they would make a Fibromyalgia movie.
Yayyyy sponsorships! Your positivity is radiating ❤️
The first time i watch it just because cole sprouse and i never heard CF before, then i start looking out about CF more and find your video and i watch five feet apart again to see from another perspective.
Love the movie- I’ve watched it 5 times and counting! Love your account, thank you!
I love what you do with your channel! Having chronic illnesses myself, I could learn a lot from you! I also think that Claire wineland’s impact on the film has a lot to do with the accuracy in the movie
I found your channel because my friend told me about your reaction video
Love your videos and loved this movie can't explain how much I loved it your amazing 💖
Dude...I first became familiar with you through the spoonie community on Instagram. First off, it is so awesome to see the success that you've been having online. I, too, saw the negative things people were saying before the movie came out and it was just like "don't you realize that any exposure to this is good?" It's MAJOR when an illness that is not well understood or known gets the limelight in a HOLLYWOOD movie. Even if they didn't get all the facts right it can pique people's interest and possibly get them to do some research of their own. Exposure = good, even if it was bad exposure at least it would start a bigger dialogue where things could be set straight and knowledge could be spread. SO HAPPY to hear that you've had so many people writing to you about CF and even striking up convos just when out and about! That's amazing!! I have Fibro and most people just think we're making it up and are hypochondriacs or something, but if someone were to come up to me and start asking me questions about it with genuine interest...I would be BLOWN away haha I wish I could give you a hug...so happy for you and the CF community dude...so happy!!
My daughter had her bff spend the night a few.wks ago and I woke up and she was reading "Five Feet Apart" book and at first I thought it was mine...then realized it was her own book!!
Just watched it on DVD last night. It was amazing and she'd so much light to CF. Absolutely heartbreaking. Thank you for sharing your thoughts and helping she'd more light to the story
This video gave me the chills actually knowing how much CF is in the forefront now! Big names or not it’s making a difference!!
you're awesome... the movie was awesome i'm definitely going to search and help the guys that have this illness in my country
When I was a little girl I read a book about a little girl that had CF and passed away at 8 years old ( I'm pretty sure she was 8) it is called Alex: the life of a child. It was so heartbreaking but really made me understand what CF is even as a young as I was!
My law firm is fund raising for great strides now, as an adult with cf, I’m so thrilled to see the interest. It’s our “ice bucket challenge”
Hey man! I'm from a little country called New Zealand!!! - I first heard of Five Feet Apart when it was still in the making as I follow Justin Baldoni from watching Jane the Virgin and follow his We are Man Enough Campaign... I watched this movie for the first time at the end of September purely cause of the fact I knew it would tug on my heartstrings alot so I put it of (LOL). I felt like I had been hit by at truck after watching this. I had never heard of C.F before this movie but I watched Justins interviews and your videos which showed how accurate the portrayal of C.F is( to an extent). It's a week later and I still can't get it off my mind... I'm a little obsessed thank you for your videos (you have a new subscriber)
We share the same name just found out and I’ve watched loads of your videos. I literally watched Five Feet Apart three times. I didn’t go to the cinema. I watched it on Putlocker. I loved the movie and the song they made for the movie called Don’t Give Up On Me. It was great how accurate it was.
@MorganSolo
5 жыл бұрын
morgan north Since I’m from North Carolina, I guess that makes me Morgan South. Eyyy ohhhh!!!! *ba dum tsss*
Five Feet Apart was the first movie to make me cry cry
Zero unlikes! As it should be!
The Five Feet Apart movie is so popular in Canada where I live aswell!!! It also opened me up and allowed me to discover & see this awesome channel of yours when I saw your reaction video to the movie!! And I am supporting you every step of the way!!!💛
I haven't seen the movie yet, but the accuracy in the book about just being in the hospital as a young person is so wonderful. I don't think people often understand that it's such a life shaping thing to be chronically ill and spend a lot of time in the hospital as a kid/teen
Tbh I didn’t know about cf antill the movie and now I am doing a project that disides if I go to 7th grade I hope more people will spread awareness
I'm about to be 50 in a few months, growing up in the 70's No one knew what cf was. My parents had to explain what it was, even though we didn't know the depths of this disease. You have a huge following, would be nice if like once a month or whatever do a tribute to the friends we've lost. 👍
Clair would be so proud 💜 Morgan u inspire me 💜 love u
Love your videos!! I, as you said, started to research a lot about CF. And it upsets me sooo much, that kids still are dying. I'm starting nursery studies next fall and I'm gonna be real pissed if it isn't anything said or brought up during the education. It needs to be brought up.
Love this video! I felt like this movie was really good at portraying the mental aspect of cf. I have cf and, as you probably know, the mental aspects have as much of as an impact as the physical aspects of the disease. I think this movie will also help raise awareness for people who don't know anything about cf. CF is a difficult disease to live with, but with more awareness and treatments, we choose to live. I live my best life with cf. I can see that you do too. Good luck with your food challenge lol!
I found you and then watched the movie
I’m hoping this movie has inspired lots of teens to become the medical researchers of the future!! Without medical research, and lots of it, we won’t have cures for CF, and other devastating diseases!
awesome channel i hope my community not just watched but learned from the movie too greetings from Lebanon 🇱🇧
ahem, my boy. I see my son Sephiroth, :3. Also, I've noticed people who never knew about are now donating and are interested. It really is cool.
AAAh, still waiting till its out in France, I can find it nowhere on streaming !!! (if someone has a link hihi O:) )
This is so cool!! I was hoping so much that this was really making a difference!!
I just watched five feet apart and damn that movie was really good and it was so sad when I saw Cole Sprouse aka will in the movie when he gave up his lungs for Stella aka Haley Lu Richardson and also Poe aka Moisés Arias died in the hospital after celebrating will’s birthday was heart breaking even though I didn’t cry I felt the emotions of the build up of the movie over time and damn that’s so sad but it shows you how touch can change someone’s life as they show in this movie
We're still waiting for the detailed video on Five feet apart :)
@izzysuarez9013
4 жыл бұрын
Still hasn't posted ittttttttttttttttt
@izzysuarez9013
4 жыл бұрын
Hi
You would stream and answer questions while I'm at work. Morgan I have so many questions about CF. I just hope that they do come out with better medications for people with CF. ❤
My disability prevents me from going to movie theaters, but I will definitely be buying the DVD when it comes out!!!
@JulieJSchmidt
5 жыл бұрын
Me too!
@elenagibbons4719
5 жыл бұрын
Would it be rude for me to ask what your disability is? If so, I completely understand, but if not, I’d love to know! I don’t have any disabilities of my own but I think it’s important to learn about them.
@livingwhilementallyill7398
5 жыл бұрын
@@elenagibbons4719 Not rude at all! I have a few, actually. I am Cathy, and I have cerebral palsy. While I can still walk, certain things, like movie theater seats, are horribly uncomfortable. Also, I have bipolar schizoaffective disorder, which is basically a mixture of bipolar disorder and schizophrenia. What generally keeps me housebound, however, is my agoraphobia and social anxiety disorder. agoraphobia is an intense fear of crowds and public places. If you have any other questions, please feel free to ask, or check out my KZread channel, where my fiancee and I post 4-5 times a week about living with mental illnesses! Hope this helped, and have a great day!!! 😁👍
i’m just a fan from brazil but i’m so proud of you.💖
I love this video!! I agree with everything you have said!!! Keep up the amazing work!! Can't wait to see your next video!!!
Such a cute intro
I completely relate to that. I'm a type 1 diabetic and people always say something about type 2 diabetes cause its more common. So frustrating!!!!
I have seen the movie five times now😂 it was such an amazing movie and I’m glad it is spreading awareness for cf😁😁😁
I donated to the CFF also when I was listening to the radio Andy grammar started talking about cf
I had to re-watch this because the first time I feel asleep while watching
I had no idea what cf was before i watched the movie
This movie did definitely something for that disease not only for US. I'm from Poland and I see now how many bookstagrammers are writtings about book based on movie (yeah, I'm from "this" part of internet xD). To be honest, I don't know anyone with CF so before watching the movie I just knew that is really serious thing. Only because we had this sad, government (I belive) ad in TV years ago. When I watched "Five Feet Apart" I was like... okey, It's not brilliant movie, but It's just do the job. Teens are going to love that story and I see heart put to education about CF. Then I read the book and I'm a little bit sad. I know that idea for movie was first, then they just create the book. And I've got problem with it as the adaptation. Good adaptation has something new to say and this book... don't. It's just the script of movie, changed to be a book. And that's not cool. I saw heart in movie, but not in that adaptation. They could do so lot of cool staff with that idea. For example, they could tell us story of Barb's patients who were in love and died. They could show us diffrent perspective. Focus on Poe or Stella's parents. They could tell totally diffrent story, even not related to the movie so much. But they didn't. We just have book which is basically script, but it's selling as a novel. And that's just heartless and passionless. :(
the movie Comes to german cinemas on the 20th june. it kills me! I wanna watch it so bad. I cant wait to get it on DVD as soon it hits the stores. i listened to the Audio book so many times by now. Love Enni
I can’t love this ENOUGH!!! ❤️❤️🔥🔥🔥
I have cystic fibrosis i love five feet apart i love your vids
You should read the book “Five Feet Apart”! Such a good book. Much more detailed than the movie. And does plenty of justice for the CFers out there. ❤️
This makes me so happy ❤
Five feet apart will be released on digital may 24 !! Hopefully you. And maybe you can make the accuracies video when it comes out on digital
I’m been doing the walk for 11 years I’m 13 thanks to my parents
I found your channel because I also googled it. I'm from Belgium (Europe)
i also had this sort of experience i thought i was the only one who had Epilepsy then i met a friend at an Epilepsy Awareness month event at my college two years ago in November i always say i have small seizures(absence seizure) and she has medium and large ones (tonic clonics and partials) which if you ever want to know about the basics of seizures just ask.
Five feet apart sequel is coming out it’s called six feet apart 😂 it’s will be a big franchise like Star Wars
@venusqueen2610
5 жыл бұрын
Normal Life ? - Cystic Fibrosis wait really
@NormalLifeGaming
5 жыл бұрын
Abbey Smith I agree
Who else wants him to learn about Claire journey and react to her video about her CF journey
Love this video. First like comment and view! Xxxx
I found you from your reaction video.
I was literally staring at you for about 3 min like WHO DOES THIS GUY LOOK LIKE .... I gave up but then I remembered at the end of the vid. Dude ya kinda look like Jon Snow lol
Morgan! Love your hair!! ^_^
@xrosebladex780
5 жыл бұрын
Or the "book I read" I read the book then saw it in movies. While I read it I was like what is this word n that word so when I saw movie it was really cool to see it.
the dvd comes out in my birthday
I think I might have cf. Sorry I keep commenting on your vids, I could just really use someone to relate with right now
i love your videos... also go falcons
*even if they are doing this because they have a crush on Cole Sprouse* Hahahaba. I died😂😂😂😂 your not wrong but hey C.f. is getting what it needs!!!
Tbh I'm going to into art therapy in college, I saw this twice movie, I cryed hard eatch, because I'm a sensitive person, anyway i want help out someone with cf, through art because I want to help someone express their emotions out about what there feeling, and be someone for people to talk to, I hope that sounds like an okey idea,
where can I watch the movie? For free!
@MorganSolo
5 жыл бұрын
On DVD when it comes out to support the art. :)
In France we can't see the movie it isn't available on our theaters so I watch him on streaming but it wasn't good quality. I hope we can have it soon as possible in DVD. I have CF too, is not the same word in french but it's the same shit if I can say that (if not sorry). I understand when you tell us that the movie change others opinion about CF but in France we already give a day to people with CF and give money to associations. Every year we have TV show about a celebrity who has CF but lot of people didn't know the desease and don't understand what is it about when I tell them I have CF. It's really strange, I think, with the access of the information with Internet now.. By the way I realy like the movie, I though it was really realistic !
I heard one review from one cf patient and she said that 6 feet is the maximum I just wanna clarify it and I wanna ask what would happened to them if they don't use their oxygen?would they die?
@CureCF4myAs
5 жыл бұрын
Gorgeous Life is it because technically that’s how far germs travel when airborne, but they take a foot back. About the oxygen.. no they won’t die. Typically only people with low lung function need oxygen (just like in any lung disease or illness/cancer) CF is a progressive disease so it varies by person how severe it gets and when. Also most that need oxygen are low enough they are on a transplant list
@alyssajane7856
5 жыл бұрын
@@CureCF4myAs thanks for answering my questions!💛
Look HOW YOUNG , you LOOK
First! 🤣 lol love your channel!
the one dislike better have been an accident
🇧🇷
I'm the 666 like 😂😂