I am 30 years into a severe TBI. Happened on my wedding day. Groomsmen took off with me thrown over their shoulder (as a joke) and they dropped me straight onto the concrete. I have struggled this whole time. Depression, anxiety, severe headaches, pinched nerves, stenosis and arthritis of the cervical spine. I wonder sometimes what I would have been like had this not happened to me. I am mentally tired on the daily. Constant dizziness, nausea, and mental fog. Sometimes I think I am crazy because I am always having some kind of "issue". I am grateful that God saw fit for me to survive. I am blessed with a great husband, two wonderful kids, and family support. I pray for everyone on here! I understand your frustrations and hope we can all push through it!

Ppl who don't have it don't understand. You can tell by how she tries to explain it to us "they uhhh have problems with how they solve problems".. which is true but its deeper than that. Our thoughts can not form too complex. They're like surface thoughts sometimes. Complex layered thoughts can get lost and not successfully get figured out because it's too much - it's over stimulation, in a negative way. ❤

Moderate tbi here 2013... brain bleed and skull fracture. Its so true. These things change you for a lifetine. I watch videos online made by and for clinicians and they tell each other "oh the person should be fine in two weeks" which is just a set up for disaster. There are no real supports for tbi, its an awful invisible disability because everyone assumes your fine. Stay in courage my fellow warrior's. We have survived 100% of our worse days so far.

Major TBI 56 years ago. Concussion 8 years ago. Lifetime of emotional dysregulation, depression anxiety anger. Trouble with words. It just sucks.

Living with brain damage is a real suffering course because there is no escape, not even a moment's respite. It follows you everywhere like a shadow, even in your dreams where it takes the form of bizarre personifications and strange, broken landscapes.

It's so nice to read the comments. It reminds you that others share your struggles. That you're not as alone as you are made to feel each and every day. I wish you all strength and better times ahead.

@revelacion3241

7 ай бұрын

yeah to read or heard all this help a lot when you have a tbi because in the normal world they don t get it about this they think we are normal people like them but not you can woke up one day happy other day like hell is weird of this

A mild TBI survivor here and mine was happened in 2013. It's very true that brain injury will last very very long or maybe i can say until the end of our life. My condition is far better than 1st year of having it but yeah, there's still some issues. My neurofatigue still showed up sometimes. 🥴

@scubadiva666

8 ай бұрын

There are no minor TBIs!

@revelacion3241

7 ай бұрын

i got a tbi 4 year ego and now ia worses i can t control my emotions i see alucinations and sometimes i have problems with colors sometimes i don t want go out because i feel im a danger driven or in any things i do

@romeogamer6860

6 ай бұрын

@berliancahyadi279 What is your tbi incident

@graciegracie

3 ай бұрын

Prioritize sleep, sleep twice a day if possible ​@revelacion3241 you're hallucinating because of sleep deprivation

I suffered a TBI at age 5 when the dog I was walking jumped off a retaining wall and I fell six feet and hit headfirst on concrete. I was never the same. I have experienced a lifetime of severe social and emotional dysregulation, sensory processing disorders, leaning disabilities, substance abuse disorders, eating disorders, and decades of being given a new mental health diagnosis every time I saw a new therapist because the thing was, I was never mentally ill. It was finally discovered at my 4th in-patient confinement (my first three were before age 21) the correlation between the TBI and why I couldn't keep myself in one piece for very long in life. This was later confirmed by a neuro doc and neuropsych that there was legit brain damage that gave me like dozens of traits of dozens of mental illnesses. I mean, before my meds, I was so out of control of myself...like walking around trying to do life as a teenager, a young adult, while contending with what manifested like I had OCD, ADHD, ASD, Schizophrenia, Bipolar, everything on the Cluster B tree, Major Depression, Generalized Anxiety, ODD, and the list probably goes on... I was trying to continue to move through life but I just really couldn't. Finally, they stopped trying to follow traditional patterns of medication for specific mental illnesses and started treating the traits. I'm on five or six medications now to essentially compensate for what's messed up in there and even though it took me almost three decades after the accident, I'm now stable on these meds and sober and have two master's degrees and a teaching career and a happy marriage and two precious daughters. Like it is crazy because in the late 80's when this happened to me, the fricking neuroscience hadn't even yet gotten advanced enough to have correlated this long-term damage with the injury bc they still bought into the whole neuroplasticity of child brains thing I think. Anyway, it happened. I cant go back and change it. I have to accept it as being what it is and do my best to live my best and understand that my best might not look like someone who is neurotypical and that's okay.

@EdgarAllanGo

5 ай бұрын

God bless you. The medical gaslighting is unreal. You should never have experienced that incompetence. I’m sorry you went through that for so long.

@peacelovejoyandhappiness

Ай бұрын

Your story is intense. Thank you so much for having the wisdom, courage and strength to help others. You are doing God’s work.

My brother suffered from one a bit over a year ago. He is still recovering but doing well. TBI isn’t something anyone should suffer.

Can last for the rest of your life, take it from me from an 18 year oldcar injury.

@taiweannoona1204

10 ай бұрын

Agreed. Its def con 1 everyday. It makes you literally so tired.❤

I have a chronic concussion on top of already complex mental health disorders. I flipped in my vehicle after being hit in sept 2022 and have been dealing with issues from a concussion and whiplash. My short term memory is by far my biggest issue has its constantly effected by my anxiety and episodes in bipolar disorder. My anxiety, my OCD and my ADHD blew up, and we (doctors and I) can not seem to regulate myself or find a pattern. Unfortunately because I'm high functioning as is, and still am, its hard to get a lot of doctors to listen or take me seriously. In all reality to an extent I feel as if I'm a different version of me as I have lost and gained qualities of my self. I'm hoping one day, I'll finally be able to find a comfortable place in my stability.

@scubadiva666

7 ай бұрын

TBI survivor 1981 here; it was a severe intercranial head bleed + coma x 4 weeks. No one denies that the trauma happened, but I found many people wanted to erase me because I was-and have been-so inconvenient to have around. On an unrelated note, I found out I'm probably autistic; I was tested in two sessions and am waiting to hear back from the neuropsychologist.

TBI .. You only know it if you live it!!

When I was 17, I was working under my pickup. Unfortunately one thing failed causing the whole back end to fall on my head. I think I'm doing pretty well being that I wasn't supposed to survive.

@scubadiva666

8 ай бұрын

I wasn't either; I had an injury in 1981 that-had it happened a few years earlier-I probably wouldn't have survived at all. [Massive intercranial head bleed + coma x 4 weeks + multiple skeletal injuries]

@BigBlueGuy

8 ай бұрын

@@scubadiva666 that's crazy! I'm glad you're still with us and here to share your story. Continue doing that, you never know who you may impact in a positive way. God has a plan for you

@scubadiva666

8 ай бұрын

@@BigBlueGuy After I stabilized, I was transported to Gaylord hospital in Wallingford, CT, where I learned to walk again. There I met a guy whose med school had been interrupted by his TBI; he had been driving back from a hunting trip with his buddies. He was in the "death seat" [passenger seat] of the car; the car hit a patch of "black ice," his door opened and he rolled out: the car wheel rolled over his head. I lost touch with him because he had a very jealous girlfriend at the time, and I just figured it wasn't worth it.

@BigBlueGuy

8 ай бұрын

@@scubadiva666 good choice! The less drama and stress the better. It sucks when people get the wrong idea? I have a friend who was hit by a pickup when he was crossing the road which caused him to have a TBI to. It really does change your life. However it's up to you to decide which way you want to take it

I think any brain injury will carry some form of partially permanent damage,I had recovered from a benzodiazepine brain injury it took about 5 years and the injury reactivated itself after I had panic attacks after a very stressful event,and the reason would be because the brain cells do not replenish themselves,they only grow out and try to heal around the damaged area… it is truly similar to death to live with this fatigue and 24/7 body anxiety and pain and all the other symptoms..

I hurt my brain about four months ago. I slipped on the top step, fell back hit back of my head, blacked out, came to flat on my back bottom of a full flight of stairs. I think I bounced my head on every step. Whiplash, and a whole lot of impact injuries, top, sides, and back of my head. I was fortunate I didn't hit low enough on the back of my skull to damage vision centers. I can drive, and walk pretty well. It was only soft tissue damage, and the associated pain for the first 17 days. Then the head pain started, changing over time, here, or over here. Was awful for two months. Then the really substantial confusion and exhaustion started. Physically I'm improving, but the flat out exhaustion, it's real. I sleep 11 hours a day, at times any effort feels like too much. That is the current experience, I'm sure it will keep changing. The longterm outcome is unknowable. That much I have taken to heart, it's not over yet. And it could be a long while till it really is resolved.

Me here with a severe traumatic brain injury since i was 7 from a board falling on my head from about 8ft apparently i had forgotten everything for 3 days im 27 now and only remember about 10 days of march but very little definitely not the whole day i had forgotten i turned 27 in January about week ago😵‍💫yet none of that makes sense to myself 😅we'll always have to deal with the crap sadly

I get no support. I can't get through the process of applying for disability. I have been encouraged to lie and pretend I have problems I don't have to make the process easier. I can't get through to them that I'll never get through the initial paperwork without hand holding. They won't listen. I seem okay. I am able to speak coherently. I can't pretend to have vertigo like the woman at the health department kept telling me. It took me awhile to get it. She just kept telling me I had vertigo and balance problems. I said: But I don't. She said: You have balance issues, you should start using a cane. It took me a long time to figure out that she was telling me to lie. I'm not going to do that. Just because my problems are difficult to see at first, I shouldn't be discarded, or be forced to commit fraud. I have a feeling I'm just going to keep getting worse and worse until I am forced to bow out.

Tough to watch when you know all to well what they are talking about ptsd is like your shadow it goes where ever you go

I had a traumatic brain injury back in March after an accident at work. I was in critical care and put into an induced coma for one week and in hospital for six weeks. It took me another six weeks to feel able to start and potter about my house. I’m left with loss of smell, which isn’t the worst thing in the world, but annoying, and my sequencing memory and attention memory has been a little affected. I’m now suffering from a bout of Vertigo, but unsure if that is related to my brain injury.

@taiweannoona1204

10 ай бұрын

I have a lot of problems with sequencing. No one realizes the far reaching effects just this one thing alone has on every function, every day. You get lost in the steps of just preparing to leave home for the day or getting ready in the morning. This is my daily life, so I just wanted to let you know I hear you. I WISH the people around me understood and could help me strategize ways to get around it, but its so hard. Also affected is my concept of time. So I get lost often in a day. ❤

@eveoakley6270

10 ай бұрын

@@taiweannoona1204 ah, I totally understand you, and it’s lovely to hear from someone who is going through similar. What really annoys me, although I don’t let it show, is the silly things people say to you, like “ are you ok now” “have you got over your brain injury”. Then when I tell them I have memory problems or that exhaustion hits me like a brick wall, they say “we all forget from time to time” or “my memory is terrible” or “well we all get tired”. It makes me exasperated because most just don’t have a clue. Thanks for reaching out 👍🏼

@lauriaktahi

10 ай бұрын

@@eveoakley6270 I totally relate to you both. Ive coped for 50 years now with systemic dysfunction. I also have vagus nerve damage. People have no clue what it's like. Vertigo is a symptom. But drs relate it to heart and blood, before brain...go figure

@eveoakley6270

9 ай бұрын

@@lauriaktahithank you, but my heart is absolutely fine. I’m an extremely fit, slim and athletic runner 👍🏼

@motisingh845

8 ай бұрын

@@eveoakley6270 how r u brother... Did u recover completely?

I am in the UK. I suffered a brain injury over 7 years ago. I am completely desperate from trying to live with severe cognitive and physical fatigue. It makes me not want to go on. I use all the management strategies etc. but the fatigue is so severe I am just existing rather than living. I have to rest my body and mind so much I can't do anything. I am so desperate. If anyone knows anything that can help, I would be very grateful.

@_blew_a_fuse_7372

9 ай бұрын

Alpha lipoic acid heals the neurons look into it it's not a drug and it's safe

@aphysique

9 ай бұрын

May God be wit you!!+ 🙏🏻 the struggle is real

@_inveterate

8 ай бұрын

Sorry… I’ve lived with a TBI for almost 50 years. It’s rough. Have you tried neurofeeback?

@rodrey

6 ай бұрын

I keep hearing and magic mushrooms i had a possitive experience

@graciegracie

4 ай бұрын

This is not a replacement for a medical advice. Please consult your doctor. Citicoline, 1 ml every 2 days helped me have a clearer mind, carnivore diet(please consult your doctor for blood cholesterol concerns), sleeping twice a day, ~4 hours each time, reduced sugar intake, read books, sunlight exposure 20 min/day.

It’s Hell 😔

@AndrewB221

3 ай бұрын

I think tonight I’m taking a massive dose of Melatonin and praying not to wake up and face my dreams and Heaven and escape this nightmare

@elysia3928

3 ай бұрын

​@@AndrewB221 how are you doing? is everything okay

Well, duh…the effects of TBI are long-lasting, and I lost at least 50 IQ points as a result of mine. I had a massive concussion as the result of a car crash in 1981: coma x 4 weeks, broken bones, physical therapy, and impaired speech. No way you're going to be "the same" after a major insult to the brain. Double whammy time: I was diagnosed with autism a few weeks ago. Yes, I can be worse.

@Hallucinatory_Denial

4 ай бұрын

They're just figuring out this isn't an overnight thing ? Doubtful. Mine was 2006 and the Dr's knew then I would be affected for life. It staggers my broken mind to comprehend how little understanding some people without TBI's have for them. I'd say at least 50 points is accurate. Not to be conceited; I had genius level IQ before. High 140's. Now I get lost in the plots of uncomplicated, simple movies. I know our situation is a little different, but they say Elon Musk is on the spectrum. Empathize. Hopefully you can make it work for you.

@atheistbewildered2987

2 ай бұрын

My performance IQ dropped 30 points. Verbal IQ dropped 20. I have problems with complex movements and I don’t know if this was pre or post TBIs

It’s so hard…I feel like I’m at my Whitts end…I need to find out what’s wrong with my brain

I was recently diagnosed with TBI.

@_inveterate

8 ай бұрын

I feel for you…

2014 had my TBI and I still have Tinnitus

Same location of where i got my first brain injury shortly after failing bootcamp

Thank you ❤

It’s hard to stay focus mature and organize sometimes memory lost and diffulty talking and expressing my needs I get overwhelmed and confuse with headaches migraines etc 😢

I tbi when I'm 7 now I'm 34,last my 27 I'm suffer from my trauma after long term,so pain.. 😢, suicide feel to

my friend so called joseph wilson says you have been very active lately why did you go from their to here. then i ask are tracking me he says no your being paranoid ? i eventually got my car smashed into by a private health and oil company i woke with my head being stitched up an nhs hospital in oxford i have not been same since the lock down when every one recieved grants for locking me down has i had worked for everything they are now granted the damage on my car does not match the injury the company van insurance from south east london (marker study) has not helped with the explanation of what has happened the police wont tell me as they say gdpr prohibits them yet my data is all over the telly and everyone seems to know my life well thats ok but now i am refusing the public to not know the nhs is a corporate company how? how is it a national health service if its corporate ?

Ya i definitely needed help i wouldn't have been able to do that cone toe thing for like a solid year at least

Its a never ending

Can tbi cause OCD sir

@taiweannoona1204

10 ай бұрын

Yes. I've read studies that it does.❤

@_blew_a_fuse_7372

9 ай бұрын

It will fade in time I had harm ocd so your not alone

Can the neuralink fix it?

❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤its so tough. Notebook city. I have now started writing backwards what im reading. Lol crazy.

My son hit by a car riding a bike.

@taiweannoona1204

10 ай бұрын

I'm so so sorry 😢❤

Yes they do. Im in OHIO

Yes❤

I thought that I br back in month boy was I wrong

Yhe Concussion Fix Dr Cameron Marshall

@taiweannoona1204

10 ай бұрын

Is this a helpful book you read?

Some people turn gay some are sooo racist lol I just take it all in when I go to Abi resources

@1conservativegrl

Ай бұрын

Is that true that a person not racist at all can become racist out of the blue?

It is great to know that I'm not the only person who can't figure out what the hell is going on with me. I'm 72 years old and I wish that what time I have left I could enjoy a somewhat normal life. What ever normal is.