Lovely presentation about life with RP.

@Henshaws

2 жыл бұрын

Thank you!

Totally agree with Dave. Am in the same boat.

@Henshaws

3 жыл бұрын

Thanks for your comment Amin, glad you have found this video relatable, which is exactly what we are trying to achieve with these peer-support videos.

Thank you Dave for sharing your story, it really resonated with me especially about dropping things (laughing face) I will be looking at some of the Facebook groups for support on my own RP journey as a blind photographer. Thank you Henshaws for giving a platform to the many eye-conditions out there and hopefully bring awareness and understanding to more sighted people.

@Henshaws

2 жыл бұрын

Glad you enjoyed it

A beautiful and inspiring account of your sight loss Dave, thank you. I have shared it will people I work with and on my FB page.

@Henshaws

3 жыл бұрын

Thank you so much for sharing this video Andrea! You can find more of our powerful InSights videos on our website at www.Henshaws.org.uk/insights

Yes it's TRUE. People try to see if they can see what up with your eye. By lookin at them. 🙄. I have a 3/4 cane. But frighten to use it. As it makes me feel vulnerable. 😲😲

@Henshaws

3 жыл бұрын

We find this is a feeling many people experience when first contemplating using a cane, it’s a big step. We sometimes suggest using it when you're away from your home, maybe a street away, you’ll be familiar with your own area. Why not use it folded up first, then progress to it unfolded, It’s a case of building up your confidence. It really is worth having a go, the benefits then become apparent. It’s worth trying it on public transport, areas with plenty of people, it helps make people aware, less need for explanation, etc. Then you’ll find you forget to put it away one day and arrive at home with it still out.

@andreasmethurst4656

3 жыл бұрын

I train people to use canes and I would advise having a few sessions with your local Rehabilitation officer from the local authority to build up your skills and confidence whilst having their support. In my experience, when cane use becomes more familiar and the advantages to your travel and life may outweigh the negatives, then hopefully your confidence will come. When you walk with purpose, you will look more confident too to other people. You have your life to lead, and cane use can help people move forward with that. All the best, Andrea.

I relate 100%.

@Henshaws

3 жыл бұрын

Hi Kenny, thank you for commenting. We’re pleased you can relate to our InSights video, as that was our aim, to create a vehicle for peer support 👍

Dave really sounds like how I feel but I really struggle to push past it and it certainly stops me. I just don't want to fail and end up feeling worse

@Henshaws

3 жыл бұрын

Thank you for your comment Matt. So sorry to hear you are feeling low, but we hope it helped a little to be able to hear someone in a similar position talk about their experiences. If you live in the Greater Manchester area, please get in touch to see if we can support you.

@mattwoolfenden8837

3 жыл бұрын

@@Henshaws I am and I've been involved with Henshaws a few times throughout my live, when I was a kid and in my early 20s especially

@Henshaws

3 жыл бұрын

That’s good to hear Matt; well we are always here if you need further support 👍

I've also got RP but a different type. My vision has been poor from birth and never had any clear sight l. Always struggled with it and still do. Totally get not wanting to go out as I avoid it more and more because its just too stressful

@Henshaws

3 жыл бұрын

We agree that going out can be stressful when you are living with sight loss, and the COVID restrictions have made this even worse. Please don’t feel like you are alone though, as there are people who can support you with your independence.