The caretaker really brought to light the horrors of this illness

@jakedebarr9675

3 жыл бұрын

Im taking a break in stage two to look into this. My grandfather likely has dementia and this isn't something I wanna think about in my sophomore year in Study Hall but uh... Anxiety go brrr

@achromatopsium903

3 жыл бұрын

@@jakedebarr9675 Make sure you tell your grandfather you love him.

@jakedebarr9675

3 жыл бұрын

@@achromatopsium903 Alright. Next time I see him I will. :)

@2eleven48

2 жыл бұрын

@@jakedebarr9675 ....it needs to be first established that your grandfather has indeed got some form of dementia. I imagine there would be family and possibly health agencies at some stage who will become involved if so. You need to get your priorities right, however. You no doubt have loving feelings towards him, but your granddad would be the first, I am sure, to urge you to get on with your studies. Robert, UK.

@downylithe

2 жыл бұрын

@@jakedebarr9675 I also had to take a break at stage 2, it was weighing a little too much on me by the end

The sooner you realise that your loved one is moving towards death, the better you cope with that fact. This is not a time for tears, but to be strong, and ensure their well-being and give them all the love you can. My mother is now in the very last stages of dementia, and each time I visit her - she lives in a care home - I give a little gasp, but then get right down to doing whatever I can: combing her hair, lotioning and gently massaging her hands, stroking her face, softly singing to her, just being there as a loving presence, whether she understands who I am or not (that sort of thing doesn't matter to me) RobertE.

@millionairesplendor2751

4 жыл бұрын

God bless you

@johnyerkov1553

4 жыл бұрын

She knows Robert I took care of my mom 10 years. She would give me a little smile when she see me come in the room she was also in the last stages of Alzheimer's to I put her to bed then I came up 15 minutes later and she was gone. She had a seizure. I know what you are going through it takes a special person and a son to show his mother that much love

@peacechildrasta91

3 жыл бұрын

God bless you, you are an angel

@florcontreras254

3 жыл бұрын

It's very disturbing and sad to see the progressive or last stage of alzamier little by little it takes that persons identity and became totally Patients. As they loose Speech, movement and their dignity.

@lalani888blue

3 жыл бұрын

💜

I am the caregiver (and grandson) of 2 dementia patients. They are 93 and 95, and are both in the final stages. I can state with certainty, this video is absolutely accurate. 🤧😔

@bigcheese2128

Жыл бұрын

Hope they’re in a better place spiritually and I hope you’re also in a better place mentally ❤️

@vivianwadida3292

Жыл бұрын

Caregiving is the most rewarding job. God bless you.

@confusingmaverick892

10 ай бұрын

God bless you...take care of your life as well..

@tomhdk

4 ай бұрын

I hope you and your family found peace and calmness. Life can be hard but enjoying the small things can get us trough it. Love from the Netherlands!

@DeadHeadCrypto

4 ай бұрын

I'm in the same boat with my grandparents one just passed other is in final and I've been here 5 years what a Loong strange trip it's been.

My sister had Lewy Bodies Dementia for 7 year Four years in her home in Ridgefield, CT, with round the clock caregivers, The last 3, at The Residence, in Darien, CT. She passed away peacefully on Jan 27th, 2021. God bless the medical staff and hospice, who took really great care of my sister. I salute all of u!

@whocaressuperstar2534

2 жыл бұрын

My wife just got diagnosed with levy bodies dementia she’s only 57 years old …I don’t believe she has that no matter what the neurologist says .How was your sister when she was first diagnosed my wife still works and seems good sure there’s a few changes but overall still looks good.

@ooeygooeycheese

2 жыл бұрын

My condolences. May she Rest In Peace. She’s with God now. ❤️

@germangonzales2008

2 жыл бұрын

@@whocaressuperstar2534 hello sorry for the late response but i think she definitely has dementia and there is no doubt it will progress so you would need to accept that in order to confront her disease head on

There’s no good end to the final stage. I’ve worked in high dependency dementia units and sufferers are lucky if they succumb to a heart attack or infection that mercifully ends their despair. I nursed my amazing mum in law and watched as she literally starved to death. In the early stage she begged me to end her life. And I didn’t. I feel I left her to a painful horrendous death. It’s not all sweetness and light, it’s not about keeping them safe and making them loved. It’s about keeping these tormented souls alive because we are not allowed to end their suffering. There is no dignity in dying under present conditions, but we must keep pressure on to change laws. There is no cause to dementia (except in circumstances such as brain trauma, drugs, alcohol etc, and a cure is nowhere in sight. I’ve seen many ppl with dementia, doctors, teachers, vicars, housewives. It’s random. I am praying should I get it assisted dying is allowed. The best I can hope for is to be sedated with morphine should I be in pain. It’s one of the worst diseases I have seen.

@HeyLOOK-aSQUIRREL

2 жыл бұрын

This really resonated with me. My mother has vascular dementia and has been bedridden & on hospice for a year. You know how some people dangle by a thread? She seems to be dangling by a steel wire.

@richardhincemon9423

2 жыл бұрын

@@HeyLOOK-aSQUIRREL 🙏🙏

@kristinaa9476

2 жыл бұрын

Yes these diseases are awful, but it’s Gods choice to give or take life, not men’s. And these diseases do have a lot to do with diet and lifestyle. I believe they are also linked with harboring long term unforgiveness. If a person is following the leading of the Holy Spirit (to eat well, to fast and pray and read the Word of God, to truly forgive, not just saying it but really doing it, and to change their entire life according to what the Holy Spirit leads them to do, I doubt they would become sick at all) I’m not flippantly saying this, I am a caretaker also, but there have been some miraculous recoveries, the best option isn’t to be put to death. The best option is to get right with God and follow His leading while you have time. I’d say that my time as a caregiver has made me take the leading of the Holy Spirit more seriously, bc if I’m not truly following the Lord & my protection is removed. He is often leading us to change our food bc He is trying to help our physical health. Even as believers physical consequences to our actions still exist.

@tennillefeltham9696

Жыл бұрын

I couldn’t agree more to this honest and frank statement. My mum has pick’s disease which is front temporal lobe, she was 58 and now 72 , She remained home with Dad untill he sadly Died of lung cancer . My brothers and I looked after mum with carers untill she went in to a home where now she’s fed via a syringe even when her mouths closed or head turned away they will still pump food in to her , Iv Tryed over and over with getting the swallow team to come and assess where they have told them to only give a max 100ml of liquid every hour (IF ) the mouth openes , she’s suffering from aspiration but still there staff have there own opinions and are over feeding against mums and palliative care nurse advice and not following care plan . I’m exhausted to trying to fight for mums rights, she’s non verbal, contorted, bedbound , it’s horrendous. Watching someone you live in this hell. I’m there everyday as long as I can but still when I leave this over feeding continues . Iv every sympathy for anyone going through similar

@brandyhuffman8672

Жыл бұрын

Yes, it's slow long death sentence, I am a CNA in a nursing home, I have also seen residents starve to death, I would pray for there suffering to end, I believe in assisted dying from this wicked disease, There no words I can say to explain all te suffering I've seen.

The caretakers suffer along with the patient!!!🙏

I say my aunt that way. It was terrible. It got to the point that she just stayed in bed and they didn't feed her any longer and it took 13 days for her to die. What a terrible way to go. Sometimes I think it would have been better had they given her something so she would have gone quickly instead of suffering even if they don't know that.

@nikolajmadsen1002

3 жыл бұрын

So they just starved her?

@Brothersall

3 жыл бұрын

Nikolaj Madsen in my opinion yes

@nikolajmadsen1002

3 жыл бұрын

@@Brothersall that's terrible, were anyone sued for that?

@Brothersall

3 жыл бұрын

Nikolaj Madsen no. They tell us that they don’t feel it and they don’t feel like eating. How do they know that since they didn’t go through that. They did the same with her daughter at a different hospice and she lasted 14 days. All she did was sleep like my aunt. My brother lasted 5 days. They all had cancer. Perhaps a hospice nurse would answer this reasoning better than I can.

@johnyerkov1553

3 жыл бұрын

That is so sad I took care of my mom for 9 years. She was being fed through a feeding tube also it was terrible on the family after my mom raised me she was a good woman and for that to happen to her. The doctor told our family that the siblings have a 50% greater chance of getting alzheimer's than a regular person. Now my brother has it my older brother. So I pulled up the Alzheimer's Association and they told me your chances did not greatly increase now it is when you are going to get it I wish he never told me that I think of it every day

Thank you for this video. My grandfather has dementia and fully denies it. from these videos I would say he is at stage 3. It has become so stressful to care for him. Understanding the symptoms helps a lot more.

@azzankhan7149

3 жыл бұрын

How is your father?

@cjcuster7350

2 жыл бұрын

@@azzankhan7149 probably not around anymore

My mother has dementia. She lives in Pittsburgh and she’s in a facility there. I live in California and since COVID-19, it’s been extremely difficult. She hasn’t had visitors since March. Even if I were there they wouldn’t allow me in to see her. Her husband can’t even get in to see her. As I read through these comments and seeing the care that some people have been able to provide their parents or other family members, it breaks my heart that I can’t do any of that. I get a chance to FaceTime her every Tuesday but lately, she hasn’t wanted to wake up for it. I’m feeling like she’s in the final stages and I won’t even get a chance to see her in person… I’m praying that I will get a chance to see my mother before she passes🤦🏽‍♀️🙏🏾💞

@jeniselamarbrown

3 жыл бұрын

hi Tracy...i'm in a somewhat similar situation...but since my mom is on hospice in her facility, family CAN visit...hope something works out for you to be with her.

@b3njys235

2 жыл бұрын

Are you joking me lady ? You are letting a couple of BS rules prevent you from seeing the most important person in your life for the last time ever ?

@CollboyGamez

2 жыл бұрын

@@b3njys235 its not that simple, if they wont let you, you cant just hijack a plane and storm it into the building

@b3njys235

2 жыл бұрын

Missing your last opportunity to see your mum ever again or doing a few weeks in jail for pushing your way past a minimum wage fat ass security guard ? What do you choose ? Bro you ain’t breaking into a bank you are entering an elderly care home

My mother has dementia, she is confined to a wheel chair,a hospital bed, and oxygen. It is hard for any of my family members to accept the fact that she is slowly fading away in a painful matter. At this point in time she has trouble chewing, and swallowing her food. So I reconfigure her issues with chewing and swallowing her food by purchasing a portable baby food grinder that takes out the worries of swallowing her food because she cannot grind the food properly. Henceforth; still provide all the nutrients that she needs in order to survive. We take for granted, a simple chewing of the food, along with swallowing helps us survive in life. Even sipping on a straw is very difficult for her to do. A simple two step method is complicated for her. I have shed many tears the minute I found out she has dementia, I feel for her pain, but I cannot reach her. I watch her face decrease from smiles, to scared and not knowing where she is going. Much like a wondering child who wonders away from her child in a grocery store. Scared, and alone. I can hear that child from the distance crying for his mother, but to a person who has dementia there is no crying...just confusion.

@firemedic542

8 жыл бұрын

My heart aches for you. I'm witnessing this very thing myself. My mother is becoming non verbal now. I'm so lost. I will keep you and your mother in my thoughts and prayers.

@suzy318

8 жыл бұрын

its not uncommon for family members not to understand or want to accept whats going on ask them to read up about what it is your mother has maybe get in touch with an Alzeimers and Dementia support group its not just for you it can be for anyone whos finding it hard to understand and learn to cope they have to understand its not going to just go away it never is easy my own father died of dementia even though i work with people with this it doesnt prepare you when your faced with it i hope iv been able to help you

@firemedic542

8 жыл бұрын

Suzy Drane thank you for your support and kind words

@suzy318

8 жыл бұрын

most welcome

@antonelabakavic4045

7 жыл бұрын

Pepsicarwash I know that I am reading your comment after 2 yrs but just wanted to tell you that I deeply feel for you and that your comment really thouched me and helped me to realize many things about dementia. I am a care giver for a family member a great and brave 86 yrs old lady who also suffered a stroke,so she in bed allfthe time and now is in late stage of dementia. But the most difficult part is that she is completely blind what makes it so much worse. I am very attached to her and no matter how hard I try to comprehend and prepare for her soon death it is so heartbreaking and overwhelming. I simply can't cope that we will soon lose her. But,as much as I am helping her,she is in her unique way actually helping me to become humble and compasionate person and not to take every small joy in life for granted. If you have any advice for me,I would be very thankful. sorry,my english is not so good. Regards from Germany

Been taking care of a neighbor with dementia and parkinsons for 6 years. 2 years ago she could walk unaided, dance, say a few words answer some questions. Now wheelchair bound, does not follow direction, cannot stand or walk and talking is the word yes. Everyone has been trying to put her in a nursing home, from her health plan, she gets 45 hrs care a week, to DCF, to her family, neighbors and friends. Only her husband and I have fought keeping her home. She had this for over 10 years, besides dementia her health is perfect. No agencies want to care for her, her plan doesnt want to pay. I cannot believe she has much time left. Do I keep fighting to keep her home?

@johnyerkov1553

3 жыл бұрын

Devin I took care of my mom for 9 years you do what you think is right I thought to myself my mom raised me so I will take care of her I had three other brothers and one sister and my sister-in-law is a nurse they never once asked me or my father do I need a hand I did not have no choice that was my mom she brought me into this world and I would not be here if it was not for her

@devonmorrison5267

3 жыл бұрын

@@johnyerkov1553 her husband died in May. I had been taking care of them 24 7 for 6 months because the agency quit. 3 months after her husband died I had no choice but to put her in a rehab vs nursing home. Her sons were no help and since I tore all the muscles in my back picking her up I just had no choice. Heartbreaking even tho she was a neighbor and not a relative.

@johnyerkov1553

3 жыл бұрын

Devon there is a place called Jewish employment vocational services I am from Philadelphia Pennsylvania originally and they used to give my brother free home health care 56 hours a week. But I took care of my mom for 10 years and my brother for 9 and 1/2 from the age of 19 years old until I was 40. So actually it was 21 years. What you do here on Earth you are paying your rent for when you get into heaven. When it is time for you to meet your maker he has all the good stuff that you have done in your life put down if there is a God which I believe there is he will remember all the good that you have done. You know who those famous words are from Muhammad Ali

@johnyerkov1553

3 жыл бұрын

@@devonmorrison5267 there is a special place for people like you and I once we make the transition from here on Earth to the other side that place is called heaven we have paid our dues you and I and that is where we are going to go

@devonmorrison5267

3 жыл бұрын

@@johnyerkov1553 thank you, I hope so. The woman I took care of passed December 5. I will miss her. Loved her tons.

My father has frontotemporal dementia (FTD). Me and and my mom are taking care of him since we diagnosed with it 3 years ago. It started as minor language issues such as using different or unusual words to complete the sentence and telling yes for no, we'll be confused what he's trying to say and minor personality and behavioural changes. A lot has changed, now he's mute, don't know if he recognises us because he doesn't say a word and doesn't try to, he won't stay focused to anything for more than 4-5 seconds, has trouble swallowing, twitching and tremors on left leg and left hand, loosing balance while walking and getting up ( probably due to medicines). Main issue is schizophrenia, he will try to harm us, especially me, with hands by grabbing the neck, pinching pushing. I'm 24 I had to quit my job to take care of him, my mom is now working but she's planning to quit her job and send me to work so that my future will be effected. We can't find a home nurse or care taker because of his aggressive behaviour. Whatever dementia your loved one has the most effected will be the family only. You just think that your loved one doesn't not have to deal with any pain or fear of operations like in other life threatening diseases. All the pain will be handled by us. Just hope they'll find their peace soon that's the best thing we can think of.

@roadtobeastmode6951

Жыл бұрын

God will help you ❤️❤️❤️

@Brown.Eyed.Girl.

Жыл бұрын

My husband was diagnosed with FTD/PPA in 2013…passed in 2020. They gave him 8 years from dx and it took me 3.5 years to get a dx and trying to convince the doctors he didn’t have Alzheimer’s. After much experimenting with drug cocktails, CBD oil and medical marijuana and Brintellix (SSRI) helped more than all the meds they threw at him. They kept trying to medicate his behavior..I finally stopped it all. I don’t regret it. I was able to stay at home with him. It was very hard but he was properly cared for Better than a facility. Especially during the height of covid. God bless all the caregivers and families associated with this horrible disease. Oh they added in ALS as additional diagnosis and the Air Force assumed responsibility.

@aaltienkuipers8768

11 ай бұрын

My husband had the same sickness, but it was during Covi d

@Encourageable

11 ай бұрын

Dementia, as I understand it, is an “umbrella” term that covers Alzheimer’s, Parkinson’s, and other neurological disorders. My dad passed from Parkinson’s in 2020 and my mom appears to have stage 3 Alzheimer’s. The symptoms are similar but noticeably different. It’s really tough on my mom - she is aware but yet doesn’t want to be moved in to a care facility so she won’t admit it. Pretty sad.

@civileasyS

2 ай бұрын

Really true Arjun I too face same situation

I am a in home caregiver , I take care of people with this , it can be rough at times

@rain5920

5 жыл бұрын

my brother gives my mother a whole bag of sugar to my mother regularly with the tea for years I didn't notice what was happening until my mother got stuck in a box for 15 hours and my brother doesn't care that mother was stuck in a box and my brother hates it when I try to prevent my mother from getting a lot of sugar my brother said he wants cut my throat multiple times before I am starting to have very intense pain in my back and abdomen after I eat the bad smelling pizza it feels like swelling on my left side of my back I was groaning very intensely next to my mother on the couch but she is just laying there on her side not doing anything

@nachc6459

3 жыл бұрын

Bless you

@janablang

3 жыл бұрын

I take care of a man in his late stages. It can be difficult at times.

@adain6047

3 жыл бұрын

@@rain5920 are you okay?!

@chrisitl

2 жыл бұрын

Thank you for everything you do. My mom is also a caregiver, it is a tough job. Always remember to also take care of yourself 💖

My dad was like that. We had to put my dad in a group home where there were 2 other men. The final time I saw him, he thought I was a nice lady. Days later, he fell out of his bed. Nothing could be done and he was sent back and made as comfortable as possible. Was in a coma until he died days later. Will never forget what he looked like when my mom let me know he had died. It was like a horror movie. So thin and his eyes were open. My mom was sitting on the bed next to him. I wish I didn't have that memory as it comes back to haunt me.

@stephaniedebeer4261

2 жыл бұрын

Im currently looking after my 75 year old dimentia mother, who is currently going into the final stage, im now a friend to her, but i know in her soul she knows it is me, she sings for me, more humming, but oneday soon, i will be humming for her. 😭

@michelep1984

2 жыл бұрын

@@stephaniedebeer4261 w

@thegamesbrotherssvk5135

2 жыл бұрын

@@stephaniedebeer4261 so sad 😭

@terrence57able

2 жыл бұрын

I never knew there was a platform for Dementia Caregivers. I am reading some of your stories and feel your heavy hearts ❤️ God Bless you all. First it was my Grandmother then Mom now my brother. I thought it would be easier but it never gets easier. Each one had there own way down the path. This illness has robbed my family for years. When it started with my brother I thought it would be easier to know what I was doing, Wrong!!! I call it The Family Of The Uncharted Abyss. Sorry if that offended any of you. This illness gets no attention, funding or discussions where it needs to be. I have been 24/7 almost three years now with my brother. He has progressed fast this past year and now needs to be placed. The first thing they do is ask does he have a home. Then there's trying to find the right place it can be overwhelming and care facilities can be misleading. Then theres, well if he's at that stage we can't take him. It's a circus 🎪 God Bless every one of you. I really respect the ones who stand up for your loved ones. Thank you for this forum.

Stage 6 is without description.

@burr69

3 жыл бұрын

I woke up at like 4:00am from a nightmare. Watched a video covering the caretakers album. And have been watching hours of videos about dementia I work in an Alzheimer’s lab and now am even more motivated than ever

THANK U. GOING THROUGH THIS RIGHT NOW WITH MY 81 YEAR OLD MOTHER. GOD BLESS❤

my dads in the end stage, hasnt walked, said more than a word or recognized me in years, he had a 15 minute seizure this morning. Its sad but when you've seen the decline over years and years, the ending is almost welcomed, you dont want to see them suffer anymore with no hope. Im going to see him tomorrow. I hope he didnt suffer during the seizure. Has anyone else dealt with this at the end stage?

My mom was offered hospice after a fall that left her unable to safely get up and do anything. She lost all interest in eating and 3 months later she died. I was just so glad to get the chance to say goodbye and do one last Christmas tradition we always did when I was younger. She didn't recognize me a lot but strangely always remembered my daughter, her granddaughter. After she died I learned that at least two generations past without the grandparents died without meeting granddaughters. I broke the trend. I was just so glad she remembered her every time we went to visit.

My relative just passed away a few days ago. She was old, and our family first detected something that was suspect of dementia three years ago. I miss her and love her so much and blame myself I couldn't spend time with her because she lived in another country. She was so sweet and kind to me. 😢

My grandma died of this last month. I miss u lots and love u always

@danoelmucho2503

3 жыл бұрын

My condolences, I hope he went peaceful

@rodney5969

3 жыл бұрын

@@danoelmucho2503 she*

@danoelmucho2503

3 жыл бұрын

@@rodney5969 made a mistake and forgot the S.

@monarene44

3 жыл бұрын

I’m sorry. My grandma died when I was 13. She was my world. She had a stroke. Blood pressure medicines save a lot of lives nowadays.

Thank you for this information.

So much information in this video. Best is…..assurance…..let the person know what is being done and he or she is safe. Say it daily. I was sole provider for nearly a year the first time. Second relative, almost four years. It was dark ages in 1995. Better in 2014, but realized then…we need to share what information we have. The tools are not there, improvements are desperately needed. No innovation to be found at any price. What is needed can be improvised, but the ideas have to be shared. We need to network.

Thank You ❤️

It is a completely heart breaking disease I am caring for my mum who has vascular dementia and has had a stroke to cope with the changes you have to take it day by day and treasure those moments

@marysoares8120

3 жыл бұрын

Same here. I'm dealing with my mother who's deteriorating everyday.

@katherineearplightworker2515

3 жыл бұрын

@@marysoares8120 Sending Love and Light, God Bless you Mary Xxxxxxxxxx Kathy UK

@marysoares8120

3 жыл бұрын

@@katherineearplightworker2515 God bless you too♥️

@sydbarrett9762

3 жыл бұрын

My mum just got to a stage where she cant walk......refuses to eat.....wearing adult diapers and constantly fighting with me when i try to feed and clean her.......i am losing my mind.

@katherineearplightworker2515

3 жыл бұрын

@@sydbarrett9762 Sending Love and Light from the UK I know it is a difficult journey I live in the presence of those moments in the day when my Beautiful Mum smiles the sounds of her laughter she loves to listen to music the changes in behaviour during this journey I say be kind to yourself and know that your love will see you through this process God Bless you

I'm praying for my Aunt Deloris. She has dementia

@daceliepins9108

3 жыл бұрын

Love to her and your family. ❤🌹🙏

Hospice has been cracking down. My father was in a world of hurt and decline and was denied hospice because it was too painful to run tests to give him a diagnosis and the doctor said it didn't matter because any intervention would just kill him. He did get palliative care though, which helped a lot.

@nessesitoburrito8873

2 жыл бұрын

Also it’s also good to get multiple opinions from multiple physicians some are just downright wrong.

@jeanniestaller797

2 жыл бұрын

@@nessesitoburrito8873 his physician signed off on him getting hospice. It was the hospice evaluation that denied him care.

THX 4 others' 2 c.

Thanks for the comment jlr. If you're looking for more information on symptoms and how to care for your grandfather, the Alzheimer's Association provides a pretty good written guide that can be downloaded at the link in the video description above.

It is so sad to watch a friend or family member live through this terrible disease. I have a close friend with Demetria and she is in denial and now wants to end her own life. All I can be is a good friend and listen. She lives in another state so I can’t physically help her. But it’s so hard to say the long goodbye.

@liwbyung8538

3 жыл бұрын

My lovely friend how are you doing please can I know more about this if you don't mind ❤️❤️💜💓💓

They may refuse bathing and teeth brushing and become quite agitated when efforts are made to provide that. Sedating them drains what little motivation they had to start with. On some level they know they don’t have control over anything and that is depressing and disorienting to them-like flying a plane upside down. Consistency and routine is helpful. Skin care and nutrition are paramount. If they won’t eat, try to get them to drink Ensure or one of those type products. Music playing on the radio or a tv playing can be helpful. If they can still walk or even sit in a chair that is stimulating and enjoyable in itself.

@carle5538

3 жыл бұрын

Sedating them will kill them faster my friendl.

My mother has dementia. I've been taking care of her for the last few years. I hate this disease and what it does to people.

@thegamesbrotherssvk5135

2 жыл бұрын

It really is the worst disease ever along with rabies

70% of symptoms are showing at my dad, big time. And he was diagnosed 5 weeks ago.

@Dragonmongamer

3 жыл бұрын

Oh god I hope you’re doing okay

@joskojansa1235

3 жыл бұрын

@@Dragonmongamer i live on. I breathe, eat food and drink water. I guess I'm doing excellent, considering. Its all about perspective and point of view.

@joskojansa1235

3 жыл бұрын

@@Dragonmongamer I'm also invicinble professional deep sea diver with 15 years experiance. 28 of my friends stayed under, and I loved them all. I guess, its much easier for me. But its really not. Not in the slightest.

@joskojansa1235

3 жыл бұрын

@@Dragonmongamer Thanks for your caring about me. Its appreciated. You're a good person.

@compound00

3 жыл бұрын

Hang in there 🙏💓

My 93 year old mother is now at the stage where she needs much more in home care due to her Stage 4-5 Alzheimers. Mother already refuses to allow her daily carers to perform simple household tasks because she resents their presence. When she has a fuller and more involved care package,mother will be even worse. We fully expect her to be in a Care Home because of her stubborness, pride and total lack of gratitude or understanding, by the end of the year.

@nosuchthing8

Жыл бұрын

How do you pay for all this? I have an aged parent with dementia at my house. I'm at my wits end.

@janetfishwick8887

Жыл бұрын

@@nosuchthing8 We paid for mothers carers from her pension allowances. The Living Allowance benefits were provided by the Government as well as the Adult Social Care Services. My brother and I were mothers POA’s throughout her Alzheimers journey . I really wish you the best for the future as your journey with Dementia continues. It is so difficult. My mother died in December 2022, at the age of almost 95.

My Dad is currently suffering with end stage dementia. It's very hard to watch. 💕

Question - walking is becoming painful to legs and buttocks was pacing for past 18 months prior, but speech still there although confused, coughing after eating feels like a tickle...is this final

The worlds scariest disease

@anonymousmobster2444

3 жыл бұрын

Ahahahah no. Look up fatal familial insomnia.

@thegamesbrotherssvk5135

2 жыл бұрын

@@anonymousmobster2444 no

Post awareness stage 6 is without description.

my left ear hears everything

The audio is not functional on this video.

Now My dad is in this stage ☹️ from last 2 days he is very aggressive towards all he wants to go out but he can't walk.. He is bed ridden he just keeps shouting my mom that we are trying to torture him 😣

I have Parkinson's disease and Vascular Dementia from my stroke till today I can't remember anything my stroke back I can remember everything I hate it forgetting where your at have to use. A GPS to get around its a lot more than just forgetting it's sad

@NekyFreestyle

4 жыл бұрын

i feel like you are bragging a bit, stop showing off, will you?

@ArizonaWillful

4 жыл бұрын

@@NekyFreestyle Bragging about having Parkinsons and Dementia after a stroke? Are you nuts?

@nikkiwillis1122

3 жыл бұрын

*Our Mom Alzheimer's disease story:* *kzread.info/dash/bejne/c3ajspdwqresc8o.html*

@Archman155

3 жыл бұрын

@@NekyFreestyle you are sick, you lunatic

@NekyFreestyle

3 жыл бұрын

@@Archman155 I'm actually pretty healthy, but if I wasn't, I would not brag about it to get some wet-ass pussy.

my darling sister is suffering form vascular dementia,,,, i am so helpless

@monarene44

3 жыл бұрын

You must reach out to her primary care physician and get all of the support you will require. Your sister needs you to be strong for her. If you have other more primary obligations and can’t give personal care, .then facilitate getting your sister into the proper institutional setting. You can still be an advocate for her either way. And yes, it’s crushing and devastating, but she stills needs you to do what you can. Only you can figure out what that is a day at a time.

My grandma is going through dimensia and its really sad

Stage 6 has no description

You don't realize the value until it becomes a (burning memory)

My 84 year old father is at home. He is hardly eating, but my mom feeds him like a king: the best food one can cook or bake. But he is very skinny, bony, can't understand anything or cries a lot. Now we don't know what to do, since he doesn't want to eat. He is DNR, specifically didn't want any tube feeding, but how can we just watch him starve and die? It's inhuman!! So we are thinking to tube feed him, so he wouldn't starve, but I don't know how to be, what to do

@ashjoma

2 жыл бұрын

My father was 94 and he just stopped eating. A few mouthfuls of food maybe and he would say he was full. He became very thin. It’s the body winding down I think. A few days before he died, he stopped eating and drinking altogether. He literally wasted away in front of me.

@e.r.4077

Жыл бұрын

Please leave him be, especially if you know he didn't want tube feeding . Dying is a part of life that he is trying to accept as well as he can. When animals know that their end is near, they too stop eating and drinking. You must let him go peacefully in the fullness of his time. Witness life, and its end, with him. That is all you have to do.

@abeesohussain8389

Жыл бұрын

@@ashjoma May I kindly ask what was the time scale between him eating less and less and in the end stopped eating and drinking altogether.

@ashjoma

Жыл бұрын

@@abeesohussain8389 About a month.

My was suffereing with this dementia her age is below 60 but she is in fourth stage this is very difficult to digest why she was like this.She was talking herself always scared about something and even she dont know any thing she did.main problem urinating frequently.

@liwbyung8538

3 жыл бұрын

My lovely friend how are you doing please can I know more about this if you don't mind ❤️❤️💜💓💓

@culturematters4157

Жыл бұрын

@@liwbyung8538 Are you looking for a green card?

What if the dementia patient refuses or won't except any help.

My grand ma stays up all night and sleeps all day

Been with mom 24/7 for over a year.hired a sitter in Jan and i do not want Hospice ,They came and they went,went back with homehealth,and MD2U,when shes ready to go home to the Lord Fin but till then She will not be doped out of her mind ,

DOES THAT APPLY TO LEWY BODIES DEMENTIA ALSO?

I wonder how long dementia has been around? Did people pre-WWI or WW2 experience this in the aged?

@nighthawk_predator1877

Жыл бұрын

Yes people have always suffered from this but it was called other things like senility. People are living longer now so naturally there will be more and more people experiencing this disease.

no sound

Is there a point where one forgets what people even are? I notice the commonality of them forgetting WHO people are, but is there a deeper stage where they cant recognize WHAT a human is?

@kpadalldotablet1009

2 ай бұрын

Mom mom wrote in her journal what I think answer yuor question; "I have pinpointed my own memory loss. Please don't assume I can't understand. Include me. Of course, in time, I will lose all." And if a person lives long enough with memory disease, yes, they will lose the ability to think about anything. They will not even remember to eat or drink.

I would like to add that the ruptures we have, and are ignored, because it might be costly to repair us all, as they have been ignoring all ruptures, and called them all tummy tuck.. This may lead to poor circulation and less oxygen.. both able to bring on some dementia.. I would be checked for ruptured abdomen.. is I were you. I know i need repairs badly after the colonoscopy, but no one will help me. I am just telling you for your own good as well Please have them repaired. xox

@paulohlsson27

2 ай бұрын

Hi Mary, how's your day going with you?

My great grandmother thought I was my sister....and told me I was the ugliest little girl 😬 I was 6.....dementia sucks

Nursing homes doesn’t do much to help these patients . Too expensive. If you have someone to at home to help them it’s better . Why pay for someone to deteriorate faster

The medical system in the United States discriminates and is insensitive against these kinds of patients with dementia. The more advanced they are in the stages the more they get neglected, until they die either directly related or indirectly related. My grandmother was killed at a nursing home by the nurses there. If you care about your family support them at home by getting them an asssistant. Hospitals support nursing homes. They probably get a commission or something. I would not trust a nursing home to take care of another member of my family. The nursing home system in this country is based on greed, not on love to care for the sick or the vulnerable like these residents are. Dont be misled by all that flowery talk from nursing homes and hospitals. It is all business. Show your family you care by keeping them at home. Do not give your money to these nursing homes.

@DriftyAlison0

6 жыл бұрын

Not all nursing homes are bad. The one I work at takes real good care of their residents. Shame it had to happen, but don't be putting a bad name to all nursing homes because 1 was piss poor.

@karencolon5152

6 жыл бұрын

Some people just don't have the capability to do home care. Sometimes it's personal. Sometimes it's because their home is a very old design. Whatever the reason. the people who have to put their loved ones in a nursing home should not be made to feel guilty. They can advocate for their loved one, and all others at the nursing home by going there and being a part of it all. If more loved ones were always around these long term care facilities would have more accountability, in real time. I am sorry for your loss. We can only hope to make these nursing homes more accountable, because the aging population is growing, and more nursing homes will be needed.

@applejellypucci

6 жыл бұрын

Home care is very difficult. My grandmother is getting to the point where we can't understand anything she is saying anymore. We take care of her at home but she cannot be left by herself, not even for a minute. Thankfully she's still mobile, but home care is not always possible for everyone.

@titinwijata2428

5 жыл бұрын

I completely agree with the good nursing home comments, they make such a good job that makes my mum happy. We can't provide that level of care even when we want to.

My Mom have TIA and Vascular dementia Not an easy task

This point is far beyond the moment when euthenasia should heve been given.

@freddygigliotti7214

3 жыл бұрын

Agreed! We treat cats and dogs better. There should be laws passed that when you are in your right mind you can make the desicion to be euthanized if you come down with this. But there are none. Like I said, we treat our pets with more compassion.

@Angelaius

2 жыл бұрын

Its because stupid christianity. They want you to suffer.

@jennaluvhugs8252

2 жыл бұрын

My mother needed euthanasia 6 months ago She’s still suffering now, with multiple organ failure, various cancers , end of life dementia . She’s a skeleton covered with tissue like skin .

@chrisitl

2 жыл бұрын

This is true. If there is no getting better, if you will suffer and die in pain, we should be able to choose to die in peace and not in pain.

@FaithAloneSavesForever

Жыл бұрын

No. That's evil.

I’m watching this to understand what’s happening to Brandon.

@ohhmy3791

Жыл бұрын

You are not alone😬 … came here to see if the non blinking for 40 seconds has anything to do with his dementia ..

Death-weakening muscles Weak muscles

@r.chavez5513

3 жыл бұрын

When you have weakness in muscles u die?

My right ear is getting lonely

And their memories are all scrutched up like EATEOT stage 5.

For some reason I could barely hear this. I thought dementia had 7 stages

@paulohlsson27

2 ай бұрын

Hi Cassandra, how's your day going with you?

That was too brief

My sister was 64

@paulohlsson27

2 ай бұрын

Hi Sally, how's your day going with you?

My mother in law poop and peeing anywhere she wants to… What stage is this?

@kingkerr3

2 жыл бұрын

Could be stage 3-4 my grandad did this around those stages

@byungroberts7555

2 жыл бұрын

@@kingkerr3 so sad…

This has to be the WORST DISEASE EVER!!!!

dont listen to this with headphones

Sir you are way behind in the final stages of Alzheimer's I was there with my mom it was terrible. The worst disease is out there possible it robbed my mom of everything the last stages are you lose your hearing you go blind you cannot eat you cannot move you cannot go to the bathroom on your own you are totally dependent upon others there are seizures numerous other things that I have went through with my mother not able to eat fats to a stomach tube and your siblings have a 50 greater percent chance of getting it. So you are way behind on what you are talkin about you should not even be on the describing the later stages this is nowhere near the later stages I know I experienced it with my mother

@tarrasque419

4 жыл бұрын

Im so sorry

@johnyerkov1553

4 жыл бұрын

@@tarrasque419 thank you Jimmy you are a kind man for listening to my story I love my mom I did not move out of the house she was the main woman in my life. I worked and I took care of her and when I went to work I hired a nurse to take care of her she had 24 hour Round the Clock care. It is a shame she was diagnosed with it in her early fifties. A person can get it when they are in their twenties in very rare cases. Now my older brother has it so my chances greatly increased. They told me at the Alzheimers Association that my chances did not increase now it is when I will get it.

@davidaleksidze3381

3 жыл бұрын

@@johnyerkov1553 John, try anything that correlates with delayed symptoms. Learn a new language, for example.

@johnyerkov1553

3 жыл бұрын

@@davidaleksidze3381 thank you David I heard that can help produce more brain cells and also another thing is if you are left-handed tried doing everything with your right hand like eating comb your hair trusting yourself it stimulates the brain cells you are on the ball David

@johnyerkov1553

3 жыл бұрын

@@davidaleksidze3381 David I learned a new language f*** you

Horrendous sound quality

Those whose brains are completely shot to Hell can only look forward to gruesome death (very grim). Cheers!

The final stage is joe 💀

Put them down

@FaithAloneSavesForever

Жыл бұрын

No

@susansummers768

Жыл бұрын

You may be one of “them” sooner than you think.

@ROLFCOPTERZZ

Жыл бұрын

@@susansummers768 i doubt so pal. Doesn't run in my family, im healthy as a bull. Id knock your 80 year old mother up

@saeed7099

Жыл бұрын

​@@susansummers768 I'd choose death.

Good information for democrats with Joe Biden

@candy123444

2 жыл бұрын

Im not a democrat, but I'll take dementia ridden Joe Biden over racist pig Donald Dump any day. Good night.

@grandmagarcia7274

Жыл бұрын

Is not the moment to be funny or for politics

I just read your comment and I totally disagree with what you say working for hospice hospice to me is the biggest rip off I had it for my father and was taken in by the rules and regulations all hospice to me is a way to kill somebody faster if I had known that my father was going to be put on message to be put on morphine is eating not get him up out of bed to his dad and I found that very appalling and degrading I was told that they switched extensional patch to morphine because it's pain has gotten worse he's pain hadn't gotten worse he was living too long on methadone to on more hospice so he had to go they increased his benzodiazepine which is a wrong thing to do with someone is living with dementia because it makes him more confused more eligible for false infractions and more cases to be hospitalized equals sooner death I wish I was more a hearable to what hospice actually does to patients it actually allows them to die at a fast rate when my mother came time to have hospice I put my foot down I had many in arguments with a detox because they stressed methadone and I forbid any methadone to be injected into my mother till the day she died I forbid any house on I forbid and he mental drugs such as Adam and Xanax Clinton you name it I objected it I was not going to have my mother be a guinea pig or because I heard they had no still the doctor this patient has to go she's been living too long and taking up too much money she was over 6 months and getting stable on dementia and all of a sudden they won because somehow she was ended up in the hospital and she never regained consciousness and never came home because they put it on method don't behind my back and I wish that I know this I would have sued the hell out of vitas out of Middlebury Connecticut they are the worst hospice to ever ever send a patient too if you want to kill a loved one send them to hospital I have no sympathy for the nurses I don't care how much they have to work how much they overloaded they did this to themselves their object is to let the patient die and take the tea in the most fashionable fastest manner possible no matter what it takes at what cost with what prescriptions I had my mother switch to oxycontin no match mentally and she lives over 8 months on hospice care perfectly and died of natural causes why because I put my foot down it was on top of everything they did when they send my mother couldn't eat anymore I forced my mother to eat she had no exacerbation going too long she had no liver loving infections she had no food going down the wrong pipe because I took my time with her and I went the extra mile to make sure she has the longest life possible I don't just stop feeding my mother because she couldn't swallow that's not the way somebody who loves their mother treats their parents remember the saying a mother racist six children and never complains but when one child raises one mother they complain so my change everybody out there who was thinking of putting your parents in vitas

I thought the final stage of dementia was being elected president.

@richardhincemon9423

2 жыл бұрын

Dementia doesn't care what political party you vote for!!!🙏 that it never affects you or someone in your family.

@howardstenlund2324

2 жыл бұрын

@Richard Hincemon it has...that's how I recognize the symptoms, and joe biden shows them all.

@richardhincemon9423

2 жыл бұрын

@@howardstenlund2324 yes I agree Joe Biden has dementia but I will pray for him and you especially for what is going on in the world right now!!!🙏

@howardstenlund2324

2 жыл бұрын

@@richardhincemon9423 thank you.

Good to know so bozo joe won’t last!! Explains why the CNA said she had to get my 2nd uncle to drink mass gainer cause without it he’d be losing weight very rapidly.

@chrisitl

2 жыл бұрын

Bozo joe? Get out of here with your political bs. Dementia is a terrible thing to have a loved one go through. It's nothing to joke about. I've lost 2 close family members to this. It's a nightmare to see someone you love so dearly go through this.

😕Once you need people to do everything for you, and when you're also blind, life is pretty much over!! My dad's only pleasure in his final stages of life, was eating chocolate pudding!! But on his last day he had trouble swallowing and was even spitting the food out!! And couldn't use a straw to drink with anymore!! I would rather be dead than blind, even if I was healthy!!