Rainbow Hospice and Palliative Care provides comfort and dignity for individuals at the end of their lives and is proud to be among the oldest and largest non-profit hospice organizations serving Chicagoland. The organization extends that comfort to support bereaved loved ones of Rainbow Hospice patients and others in the greater Chicago community. Rainbow Hospice and Palliative Care serves residents of Cook, Lake, McHenry, Kane, DuPage and Will Counties.
Join us on Facebook at: www.Facebook.com/HospiceFan
Пікірлер
My mom was offered hospice after a fall that left her unable to safely get up and do anything. She lost all interest in eating and 3 months later she died. I was just so glad to get the chance to say goodbye and do one last Christmas tradition we always did when I was younger. She didn't recognize me a lot but strangely always remembered my daughter, her granddaughter. After she died I learned that at least two generations past without the grandparents died without meeting granddaughters. I broke the trend. I was just so glad she remembered her every time we went to visit.
I’m also going through this with my father. My mom & dad were in home hospice from August 2023 through January 2024, but my mom fell again, she has been falling and being hospitalized since June 1st 2013, though she fell hard in May 2012, but she wasn’t hospitalized until 2013, she nearly died in 2013, her team of specialists told us on June 20, 2013, she had very little chance of living. In January, 3 of my sisters and my brother were visiting my parents and mom fell off her walker and cracked her femur, my parents both had to be put in a 24 hour Hospice Home, because none of me and my siblings live in Southern California, we live all over the USA, I went down with my husband 1st of February, my mom and I had such a special relationship, I was the first born, honeymoon baby, the eldest daughter, my mom begged me to stay with her and be with her till the end. My dad has had dementia since 2011 & he’s deaf, so it’s been so hard, my husband caught Covid mid February and we returned home and got well so we could go back asap, because I knew my mom was dying for real this time. It was just me and my husband,my siblings all went home. On March 16th, as soon as I walked in to their room I knew my mom had started her transition, I have watched so many Nurse Julie Hospice videos,including the trigger warning ones on active dying, so I knew what it looked like. My mom had managed to tell me over and over on March 15th “You are so beautiful, I love you, I love you, I love you. My dad became very lucid on March 17th, he knew she was dying and he cried on my shoulders for 45 minutes before the nurse came, to corroborate her transition, the night before, the head of their hospice came and he told me he had been trying to talk to my brother, I called my brother that Saturday night and let Rumel tell him that mom was dying right now and forget his flight on Wednesday, I also texted my sister, they drove from Utah and arrived on Sunday night. My mom passed away on Tuesday night at 7:03pm, March 19th, I was checking mom’s shallow breathing and comforting my dad, my siblings had gone to the airport to bring my brother in law, mom was waiting from 4 till they arrived, then she let go, I promised her over and over, that we would make sure dad was taken care of. Mom’s funeral was the most beautiful funeral I have ever been to. I had to leave to go home, but I am going back in a few weeks to visit dad and try to determine how he’s doing. He is having trouble swallowing food, that started on March 17th, my niece was feeding him stew, but the pieces were to big and he kept choking, I showed Kara to cut the pieces up, like for a baby. My dad is now refusing food and he doesn’t want to drink, he has asphsia, he lost the ability to stand and walk in early February, and now he has lost his talking, he did manage to say “I miss her” on Monday. My mom and I had plans to celebrate our birthdays together but we can’t, so I am going to take flowers to her grave and talk to her for my birthday, I just hope my dad is okay, I hope I make it back down there. My brother cleaned their hoarder house and 1/2 acre property, he’s been working on it since 2018, but we called in all the help we could get & the house funded yesterday, my brother needs that money to pay for my dad’s care. This is soooo hard. I miss my mama so much and I’m losing my beloved dad too, he deserves to be with my mom, they have been together since she was 18& he was 19, this year would have been their 70th Anniversary in August, my heart is broken 💔
For some reason I could barely hear this. I thought dementia had 7 stages
Hi Cassandra, how's your day going with you?
My mother is more than likely at this middle stage of having dementia, everything you’ve said in the video describes her situation perfectly. She was a very independent hard working RN, but now shes forgetting loved ones and can’t even hold a proper conversation. And she’s only 53. It breaks my heart every single day 💔
dementia can be heal , use vegetable oils in your food , coconut , avocado oil . eat only fruits , vegetables , nuts and seeds . do breathing exercizes . nuts look like a brain... so its good for your brain . learn meditating and focus on your brain , so u have blood circulation . Yoga is healty . U need lots of magnezium , favorit food of your brain . Cacaou , spinich , stinging nettle , alfalfa . Avoid burned oils , chemicals , acidic foods .
The final stage is joe 💀
Is there a point where one forgets what people even are? I notice the commonality of them forgetting WHO people are, but is there a deeper stage where they cant recognize WHAT a human is?
Mom mom wrote in her journal what I think answer yuor question; "I have pinpointed my own memory loss. Please don't assume I can't understand. Include me. Of course, in time, I will lose all." And if a person lives long enough with memory disease, yes, they will lose the ability to think about anything. They will not even remember to eat or drink.
Lines are kind of blurred between Early and Late stages of Dementia. Gramps for the last 6? years has had early stages but also some late stage symptoms, he's 93 now. Still has speech, could not for the last 7 years pay bills correctly, delusions, hallucinations, memory loss, that grew or remained stagnant for years as well as many of the larger problems from dementia. He remained this way for a good 6~7 years I taken care of him. Almost overnight he dropped most of his vocabulary, complete personality change, aggressive, depressed, doesn't eat, and many other problems around personality. A wild experience, couldn't really spend more than 30 minutes without finding him trying to pack up and saying he has lost his home and everything (when he owns the deed and has nothing to worry about). No amount of trying to show him he's safe worked, it's just a constant battle with him to remain and it seems the only option is to lock him down despite him being able to walk and carry himself through the day. I'm 38 and my hair started to turn grey from constantly battling him over a year. We were doing fine then one day it all went away.
My wife has Lewy Bodies dementia and it is like the "step child" of dementia most people have not heard of it, even medical people. Care giving is tough and getting tougher.
My relative just passed away a few days ago. She was old, and our family first detected something that was suspect of dementia three years ago. I miss her and love her so much and blame myself I couldn't spend time with her because she lived in another country. She was so sweet and kind to me. 😢
A word salad? Might a holder of very high office produce such speech?
CAR don't C = correct A = argue R = reason with people with dementia.
no sound
😕Once you need people to do everything for you, and when you're also blind, life is pretty much over!! My dad's only pleasure in his final stages of life, was eating chocolate pudding!! But on his last day he had trouble swallowing and was even spitting the food out!! And couldn't use a straw to drink with anymore!! I would rather be dead than blind, even if I was healthy!!
DOES THAT APPLY TO LEWY BODIES DEMENTIA ALSO?
If I end up with shit, anyone I know has full permission to smother me with a pillow!
No! The final stage is you steal a presidential election and turn the greatest country ever into a flaming s@#thole.
My dad was forced to have the toxic experimental clot shots against his will. His early stage dementia went off the map very shortly afterwards. He died! I’m angry!
That’s not fair for the other person around them
Thank you for these videos... going through this now with my 87 year old aunt for whom I am the primary care provider and decision maker.
I need this. I’m very very close to my Aunt who now is in SNF advanced Lewy body. Trying to figure out when I visit what I should discuss that’s not about her illness
Stage 6 has no description
Excellent presentation
I wonder how long dementia has been around? Did people pre-WWI or WW2 experience this in the aged?
Yes people have always suffered from this but it was called other things like senility. People are living longer now so naturally there will be more and more people experiencing this disease.
My Dad is currently suffering with end stage dementia. It's very hard to watch. 💕
This has to be the WORST DISEASE EVER!!!!
And their memories are all scrutched up like EATEOT stage 5.
Possible herbal cure for ALS,diabetes,herpes, cancer,tinnitus,hearing loss,Alzheimer,etc at Dr. Ogbebor herbal centre on KZread,I was treated and cured from 16yrs diabetes 2 with the use of Dr. Ogbebor powerful herbal medicine within 3 weeks, his herbal remedies are very effective and cure guaranteed 🍀 🌾
I think hospice is one of the worst organizations there are for elderly patients especially with the dying process and dementia I had hospice which was a big mistake for my father the last 4 months of his life that he was in a nursing home because of a fall in the doctor suggested hospice me stupid as I was said yes without even knowing what hospital was really all about all it is is an early death sentence and they make you die in peace and quiet and dignity
I saw this first hand with my father and if I had to do it again I could kick myself in the ass for saying yes okay bring hospice in and let them start him on morphine he was on in fentanyl patch due to spinal stenosis so me as an a****** just thought they were using morphine because it was a stronger pain killer it wasn't just stronger pain killer they used to morphine to slowly dignify his body and cause him to slowly pass away little by little inch by inch day by day by increasing the dose of his methadone me as stupid as I was so they will increase because of pain let's have it awake state so he could finally stop eating peeing having fecal problems and just lay there going to comatose state and pass away and guess what it worked because I caught on to the when the woman came to me the first day of my house instead you could actually going to watch your father pass away now why would somebody say that if they didn't have a game plan all set for my father when he came home from the rehab he was walking around he was eating he was had an attitude happy one would get up or talk to me and we'd have fun together yes she was in bed alone and he was bad winning but I was able to get him in a wheelchair take him into the family room bring him into the kitchen to eat and then hospice comes in and all the slowly dissipates with a just about gave him an egg for breakfast and all of a sudden when I saw all the food in the refrigerator the answer to me was oh he stopped eating how come when I paw
why whenever I would bring food over he would say oh good find me some food no one even gives me any food here and I'm starving he didn't lose his mind he was watching The history channel the AMC channel and all the channels and programs and laughed and still had laughter and stories to tell the morphine I felt destroyed the quality of his life by doing it hospice's way they wanted to also put him on Ativan and I found out that it's a number one killer chip progress the advancements of a demise person on hospice care to let them pass on quicker hospice finally told me your father's living too long he doesn't belong on hospice for this long of a period he's draining us financially I overheard this in a meeting they had because of what's going on 7 months why after a month later when my mother was born in it because she had a UTI she never came home I get a call three days later all your mother stopped eating so we gave her morphine which I totally objected to along with housing I did not want halcyon Ativan or morphine and yet they still didn't behind my back and I have a serious lawsuit going on behind their back with Dave yet to find out take it from me do all your homework before you hire a hospice to come in they make it sound so easy for the caregiver you don't need to take him to the doctor anymore you get everything for you no more picking up prescriptions
No more going shopping they made everything seem so simple and so easy we open all we also often respite care so you have a few days off too where we come and take over for a few days and take on to thethe patience responsibilities yes so they can see how far off the patience is and how much more they have to do to increase his mortality to die sooner I've had it with hospice there's a lawsuit going on and I will never recommend hospice for any elderly patient again the object is to slowly kill the patients with dignity and always use the excuse well he was going downhill anyway so we thought them morphine would help my father wouldn't my mother went in hospice without any pain killer and no pain what she doing on morphine I said oh she had a we thought she'd be more comfortable I stated in my chart no morphine allowed the only thing I allowed was a lot of those oxycontin if she was in any pain at all what is she getting a milligram of Ativan every four hours 24 around the clock you know what that does to the brain it knocks you out and kills you because you fall down that's not a hospital cares that's a hospice that wants money to have another patient die will all just numbers to hospice and I finally found that out the hard way I've lost both my parents and to this day I miss them with all my heart but I know that in my heart they are with me in spirit day and night and thanking me for the 9 years of my life that I had given them do not take on hospice no matter how hard it gets they will destroy whatever dignity and life your elderly person has left mark my words and remember my words because you will be able to tell by the advancement of the progression of the illness and how fast they begin to stop eating and going to a coma and watch how fast they will begin paint control excuse with morphine well in fact morphine dog is slow the body down so it finally stops and what guess what it did its job and they won they might have won the battle but they sure did not win the war
I meant
I meant morphine not methadone and the sentences above the snow I apologize I was just in distress in their very upset morphine not methadone
What if the dementia patient refuses or won't except any help.
I just read your comment and I totally disagree with what you say working for hospice hospice to me is the biggest rip off I had it for my father and was taken in by the rules and regulations all hospice to me is a way to kill somebody faster if I had known that my father was going to be put on message to be put on morphine is eating not get him up out of bed to his dad and I found that very appalling and degrading I was told that they switched extensional patch to morphine because it's pain has gotten worse he's pain hadn't gotten worse he was living too long on methadone to on more hospice so he had to go they increased his benzodiazepine which is a wrong thing to do with someone is living with dementia because it makes him more confused more eligible for false infractions and more cases to be hospitalized equals sooner death I wish I was more a hearable to what hospice actually does to patients it actually allows them to die at a fast rate when my mother came time to have hospice I put my foot down I had many in arguments with a detox because they stressed methadone and I forbid any methadone to be injected into my mother till the day she died I forbid any house on I forbid and he mental drugs such as Adam and Xanax Clinton you name it I objected it I was not going to have my mother be a guinea pig or because I heard they had no still the doctor this patient has to go she's been living too long and taking up too much money she was over 6 months and getting stable on dementia and all of a sudden they won because somehow she was ended up in the hospital and she never regained consciousness and never came home because they put it on method don't behind my back and I wish that I know this I would have sued the hell out of vitas out of Middlebury Connecticut they are the worst hospice to ever ever send a patient too if you want to kill a loved one send them to hospital I have no sympathy for the nurses I don't care how much they have to work how much they overloaded they did this to themselves their object is to let the patient die and take the tea in the most fashionable fastest manner possible no matter what it takes at what cost with what prescriptions I had my mother switch to oxycontin no match mentally and she lives over 8 months on hospice care perfectly and died of natural causes why because I put my foot down it was on top of everything they did when they send my mother couldn't eat anymore I forced my mother to eat she had no exacerbation going too long she had no liver loving infections she had no food going down the wrong pipe because I took my time with her and I went the extra mile to make sure she has the longest life possible I don't just stop feeding my mother because she couldn't swallow that's not the way somebody who loves their mother treats their parents remember the saying a mother racist six children and never complains but when one child raises one mother they complain so my change everybody out there who was thinking of putting your parents in vitas
'Dad, what's my name?' 'Give us a clue'. 'My name begins with J'. 'Jim. Joseph ....give up'. 'Dad my name's Jon'. 'That's amazing, I've got a son called Jon'. 'Dad, that's me'. 'You're my son. Well what do you know. I didn't realise I was that old'.
Nursing homes doesn’t do much to help these patients . Too expensive. If you have someone to at home to help them it’s better . Why pay for someone to deteriorate faster
My neighbor is in late stage. He needs to be bathed, fed, and cannot walk unassisted becuase his knees do not straighten.He leans to one side and on a chair he will slide down to the floor becuase he cannot sit up straight.He has had this disease for over 10 years.He is now nonverbal.He is alert and babbles in his own language.His wife is in denial and won't leet him is a wheelchair and keeps taking him for phyhsical therapy thinking he will walk again. How long do peolple stay on like this?
my dads in the end stage, hasnt walked, said more than a word or recognized me in years, he had a 15 minute seizure this morning. Its sad but when you've seen the decline over years and years, the ending is almost welcomed, you dont want to see them suffer anymore with no hope. Im going to see him tomorrow. I hope he didnt suffer during the seizure. Has anyone else dealt with this at the end stage?
my left ear hears everything
My mom has dementia 😥, my heart breaks for her. She’s gotten to the point in which she doesn’t remember me and it broke me. We were so close always. I’m not sure how to handle this😢
Just be there for her, touch is very important , I am going through the same thing, it’s so hard for everyone involved. My heart goes out to you ❤❤❤❤
@@lynettesmith6971 Thank you so much for your words of encouragement. I am sorry that you are also going thru this. I will keep you in prayers♥️
You're not alone, at all. My mom too, but she still remembers me so far, and she's late stage. I take care of her full time, though, and tell her who I am all the time. Sometimes she says, "Yes, I know who you are." Saddest thing ever to go through.
I’m getting very forgetful! Is that normal?
You don't realize the value until it becomes a (burning memory)
I’m watching this to understand what’s happening to Brandon.
You are not alone😬 … came here to see if the non blinking for 40 seconds has anything to do with his dementia ..
Thanks to Dr Igudia on KZread who cured my genital herpes with his natural herbs remedies which I ordered from him. I must tell the world about your treatment Dr Igudia
That was great!!
dont listen to this with headphones
I am the caregiver (and grandson) of 2 dementia patients. They are 93 and 95, and are both in the final stages. I can state with certainty, this video is absolutely accurate. 🤧😔
Hope they’re in a better place spiritually and I hope you’re also in a better place mentally ❤️
Caregiving is the most rewarding job. God bless you.
God bless you...take care of your life as well..
I hope you and your family found peace and calmness. Life can be hard but enjoying the small things can get us trough it. Love from the Netherlands!
I'm in the same boat with my grandparents one just passed other is in final and I've been here 5 years what a Loong strange trip it's been.
The exotic force perplexingly bore because tent intringuingly admit following a guttural H habitual needle. ruthless, robust bat
Now My dad is in this stage ☹️ from last 2 days he is very aggressive towards all he wants to go out but he can't walk.. He is bed ridden he just keeps shouting my mom that we are trying to torture him 😣
My father has frontotemporal dementia (FTD). Me and and my mom are taking care of him since we diagnosed with it 3 years ago. It started as minor language issues such as using different or unusual words to complete the sentence and telling yes for no, we'll be confused what he's trying to say and minor personality and behavioural changes. A lot has changed, now he's mute, don't know if he recognises us because he doesn't say a word and doesn't try to, he won't stay focused to anything for more than 4-5 seconds, has trouble swallowing, twitching and tremors on left leg and left hand, loosing balance while walking and getting up ( probably due to medicines). Main issue is schizophrenia, he will try to harm us, especially me, with hands by grabbing the neck, pinching pushing. I'm 24 I had to quit my job to take care of him, my mom is now working but she's planning to quit her job and send me to work so that my future will be effected. We can't find a home nurse or care taker because of his aggressive behaviour. Whatever dementia your loved one has the most effected will be the family only. You just think that your loved one doesn't not have to deal with any pain or fear of operations like in other life threatening diseases. All the pain will be handled by us. Just hope they'll find their peace soon that's the best thing we can think of.
God will help you ❤️❤️❤️
My husband was diagnosed with FTD/PPA in 2013…passed in 2020. They gave him 8 years from dx and it took me 3.5 years to get a dx and trying to convince the doctors he didn’t have Alzheimer’s. After much experimenting with drug cocktails, CBD oil and medical marijuana and Brintellix (SSRI) helped more than all the meds they threw at him. They kept trying to medicate his behavior..I finally stopped it all. I don’t regret it. I was able to stay at home with him. It was very hard but he was properly cared for Better than a facility. Especially during the height of covid. God bless all the caregivers and families associated with this horrible disease. Oh they added in ALS as additional diagnosis and the Air Force assumed responsibility.
My husband had the same sickness, but it was during Covi d
Dementia, as I understand it, is an “umbrella” term that covers Alzheimer’s, Parkinson’s, and other neurological disorders. My dad passed from Parkinson’s in 2020 and my mom appears to have stage 3 Alzheimer’s. The symptoms are similar but noticeably different. It’s really tough on my mom - she is aware but yet doesn’t want to be moved in to a care facility so she won’t admit it. Pretty sad.
Really true Arjun I too face same situation
Put them down
No
You may be one of “them” sooner than you think.
@@susansummers768 i doubt so pal. Doesn't run in my family, im healthy as a bull. Id knock your 80 year old mother up
@@susansummers768 I'd choose death.
Horrendous sound quality
Our Mom is dealing with dementia and has developed major tremors in her arms/hands making it very difficult for her to eat without assistance. Is there anything that helps the tremors? I plan to discuss with her neurologist during her next appointment; but, would appreciate any helpful suggestions. Thank you.