i'd love to know who has gave me a thumbs down, all i'm trying to do is show people they're not alone.

@johnofthefamilycrossley-st6832

9 жыл бұрын

yes i am - chat away :)

@figureitout6

9 жыл бұрын

Hi John, perhaps people haven't dis-liked your video to show that they don't like it but rather them disliking the idea of somebody suffering from parkinson's at such a young age

@tiffanymarks9609

7 жыл бұрын

John of the family: crossley-stanbury I'm sure the 👎 people are referring to the disease and not the making of the video. Many people miscommunicate the very same way.

@Noahnyann

7 жыл бұрын

John of the family: crossley-stanbury How did your symptoms start? What did you notice at first? Any pain? or when you hold your head still did it kind of shake?

@QWNSWORDS

6 жыл бұрын

People are just ignorant sweetheart. Fuck um. Thank you for your courage and generosity.

I got diagnosed when I'm 20. Your channel inspired me ❤️

I've also got early parkinsons. Lets hope for a cure. I love your sense of humour.

Bless his heart...he's a strong one.

@johnofthefamilycrossley-st6832

7 жыл бұрын

A Soldier Of Freedom thank you

I'm such an ass for complaining about the things in my life.

@johnofthefamilycrossley-st6832

5 жыл бұрын

without the challenges we have no life.

Thank you for your video. My dad was diagnosed in his thirties... thank you for helping bring awareness to this and I wish you all the best .

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you for your comment and I am sorry to hear about your dad and I wish you both the best too 😊

Bless your heart John! Ignore the negative comments or thumbs down. You are doing a wonderful selfless thing by sharing your PD. Stay strong and positive as you already are. Wishing you ALL the best.

Your honesty is great, and your attitude is amazing. I hope you continue this crazy journey of life with an abundance of love. I also, hope you win the lottery. :)

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you for the great vibes. You sound like you are spiritually aware, are you?

Just saw your video. It is spot on. The fact that you have PD and could only find info with elderly people....really resonates with me. Although it's a different disease, my daughter at 21 was diagnosed with a rare form of leukemia (only 5% of population under 55 have it) she had no one to relate to; plus finding the right doctor/hospital to treat her was nearly impossible. She was soooo lonely -on top of the diagnosis. My point is I believe you have and will continue to help people in ways medicine alone can not. Oh by the way my mom was recently diagnosed. I will follow you and hopefully be able to support your efforts. Peace

@GR-Dermatologyandwellness

8 жыл бұрын

+Karen Fuller leukemia is a sickness of toxic blood. please clean her diet. help her eat healthy by eating more raw fruits and leafy greens. speak to Dr. Bergman on you tube or email him on his website... you could also look for holistic doctors in your area.

@johnofthefamilycrossley-st6832

5 жыл бұрын

hi, i have a new channel now

I just saw this video and found it interesting and funny. I live in new Zealand and have had juvenile onset parkinsons since age 8. Have seen many neroligist through out my life (which Im 44). I have been told that i am the youngest that they have seen and wont delevelop into the older age parkinsons. The meds i am on are sinemet 1/2 pill 100/25mg every 3 hours, Benztrop 2mg twice a day, symmetrel 100mg 3x day, tasmar 100mg 3x day, and apomine injections when i m having a bad day/time. I work 10.30AM - 3.00pm, as a primary school librarian. Have never been able or allowed to drive. I dont have any children but have an extremely loyal and loving partner, we have been together 10 years, but have been best friends since we were teenagers. My way of thinking can be quite strange because i dont sit around and feel sorry for myself. I think this is because i was so young when i got it, so i havent had to change my live around it unlike when you get the early or degentive one I stil have down days which are awful but have tried to cope,. My friends and family are very supportive and help when i need it. Thanks for reading this.

@elizabethrose4487

7 жыл бұрын

Michell Guthrie, Hi Michell, thank you for your story it was really inspiring to hear your story. My boyfriend has Parkinson's and he is 32. He was diagnosed when he was 26. He has just had the condition spread to both sides of his body in the last 8 months and is struggling with everyday life. There is not much information out there in terms of information for early onset. I was wondering if you had any advice for coping with the progression of the disease at such a young age and if you know of anything that can help with the symptoms of tremors. Thanks

@johnofthefamilycrossley-st6832

5 жыл бұрын

@@elizabethrose4487 i wrote this to help and encourage other patients and their families through it: www.amazon.co.uk/Early-Onset-Parkinsons-Living-Condition/dp/1447775104/ref=sr_1_1?ie=UTF8&qid=1542316844&sr=8-1&keywords=early+onset+parkinsons

The love between these two is not just inspirational, but a testament to the gift of living for another.

@johnofthefamilycrossley-st6832

3 жыл бұрын

yeah we separated but she is a great woman and a superb mother to our son!

"Wow, you're the best neurologist in the world mate". 😂😂😂

Well done hun for just getting on with life and being positive...I am looking after my mum a positive 72 year old with Parkinson’s. I do worry a little bit that I might be showing some signs but as I suffer other conditions it’s hard to know.

love this man's positive attitude and incredible sense of humor. praying he will get well and medical advances will greatly improve...all my best to him and his lovely lady ❤😊👍

Lyme disease is sometimes mid-diagnosed as Parkinson's. It is the great imitator - can also be mid-diagnosed as Alzheimers(Kris Kristofferson), lupus, MS, ALS. Many times people don't even know they were bitten(nymphs are the size of a poppy seed and many don't get the bullseye rash. Lyme is in every state .

@MrNicholaslarghi

7 жыл бұрын

yea but they don't just look at you and diagnose you. They do treatments that would indicate you have PD

Thanks for having the strength to put yourself on film what a lovely couple, people take using a mobile phone even the simplest task for granted but i can tell you this chap has got guts i wish him all the best god bless you a big thumbs up 👍

your positivity is amazing!

@johnofthefamilycrossley-st6832

4 жыл бұрын

So too is your inspirational comment 😃

Hi! I am 36 and I have Parkinson's, and have had it for quite a few years. Thank you for this honest and encouraging video! Had a few of those down days myself, and I know how important it is to snap yourself out of it and just keep moving forward!

@edesgnr45

10 жыл бұрын

Have you ever taken Ritalin when you were younger?

@johnofthefamilycrossley-st6832

10 жыл бұрын

TOO RIGHT - it is so important to just let it out sometimes too- it is so frustrating sometimes, it's hard to focus on the good. Here for you Cori when you need me :D

Thank you 4 making this video! My ex-boyfriend has Parkinsons & he is 40. He's had it for about 6 -7 years, maybe longer.He also had a brain tumor that he received chemo for & it receded. We broke up bc of his intense anger & irritability. I didn't know if it was the PD or his personality, so I stayed longer in a bad relationship than I should've, 1yr I felt guilty about my decision 2 leave bc I thought PD was making him mean. I can see that U can have a healthy relationship even if you have PD.

He has such great positive attitude and he is aldo very blessed to have such good loving woman. Love heals depression and frustration, love from your woman helps you to go on. You are a warrior, don't give up

I just finished watching your video and you seem to be the type of person that will not let this disease get the best of you. I am researching videos on parkinson's for my brother. He is a Functional Neurologist and wants to put out as much information about this disease so people can combat this problem. Some information I would like to give you is check out Functional Neurology, Dr. Ted Carrick and the Carrick Brain Institute. My brother has been treating a Parkinson's patient and one of the biggest things this patient is happy about is that he can sign his name again and being able to move on command.

Good video you made for younger people. God bless you, I got it at 60.

Friend my wife is 32 and have Parkinson's she and I crack jokes about it a the time that's the only way for her get on with her life. Thank you for your story

my grandfather got Parkinson at a young age. when he would hug us we called it rockin and rollin with grandpop. unfortunately he died when I was 10, but I will always remember the rockin and rollin in his arms. good luck to you and God bless.

Thank you for this inspiring video!

Hi John. .I take my hat off to you for explaining what it is like living with parkinson's. .age does not discriminate ..you take care💖👍

@johnofthefamilycrossley-st6832

4 жыл бұрын

Hi Ruth I am very grateful for your comment and I wish you all the best.

I want to hug you, seriously. I will include you in my prayers. You are awesome, and brave and so much more, than having PD. Be happy and take care. 😘

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you for the positive feedback and mint energy 🙂✌🏼

I'm not sure if John is still looking at the comments but I'm in the UK and have very likely YOPD too, I'm 30 now but have had symptoms all of my 20s, having trouble getting a definite diagnosis though. Happy to chat to you John, or I'm in a great PD support group on FB called #nevergiveup Parkinsons and Dystonia =) Stay strong!

@johnofthefamilycrossley-st6832

3 жыл бұрын

hi suzy yes i am hehe. hhow are you??

I was diagnosed at 27 with Parkinson’s disease I live in the USA on the east coast stay strong and keep pushing brother

God bless you you have an amazing outlook and perspective 👍👍

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you for such a wonderful comment and all the best

What a attitude. Good on you. My husband is awaiting a diagnosis. We have a video call to a neurologist tomorrow in fact. We are having video link as the corona virus is here and we can't get to Walton to face to face.

Sweet couple. Educational video. you for sharing your story with us.

well done be strong don't give up, I'm 53 I have been diagnosing with Parkinson for16years, I spend lot of money to treat this disease and is not easy life, I feel lonely hiding from friends and family, and then I learn to leave with it and have lovely children, I hope one day they come up with solution to this disease,, good luck and bless your girl friend for supporting you bless and respect.........

@reneMvalencia

8 жыл бұрын

My parkinsonism started 4 years ago when I was 50, my dad has parkinsons so is hard to live with this condition. You miss doing a lot of things using your hands, hopefully someday soon there will be a cure for this and other diseases and conditions.

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you for your comment and well wishes and I hope your situation improves and I wish you all the best.

Hi Chris glad to hear you've accomplished things b4 the grey hair kicked in - only 29 and have grey hairs amassing everywhere lol. That is one thing I have noticed - I'm trying to get things done that I've always wanted to do, before the symptoms get too much. This is detrimental though as you find yourself in isolation because you just want to crack on. This obviously has an affect on loved one's also.

This disease is horrible. One day, I was shaking, I've googled my symptoms, and convinced myself I have this disease turns out I don't, but I have discovered this disease in detail, and I now want to help in any way I can. This horrible disease has to be stopped.

i am 13 and i am diagnosed with parkinsons i know how hard it can be i drop things but i get help from others it is very rare in our case its not fun and people should never make fun of this disese its wrong i get bullied becuase i drop everything i struggle to write so i have to use computers or i work at home if its that bd i cant walk i have stiffness in my arms and legs and i am seeing the neruosergon on the 4th of march its for children who have complex brain disorders im bringing awearness just like you to make sure people know what its like and not to bully thank you

@kerstinyeager7153

7 жыл бұрын

mary arblastek we have a juvenile Parkinson's group on FB facebook.com/groups/662279513923541/

@tiffanymarks9609

7 жыл бұрын

mary arblastek I understand the earliest of early onset Parkinson's was a boy diagnosed at two years of age. Shocking.

@johnofthefamilycrossley-st6832

5 жыл бұрын

thank you

@johnofthefamilycrossley-st6832

5 жыл бұрын

you are so strong, spread your story, be inspiring

@johnofthefamilycrossley-st6832

4 жыл бұрын

How are you going.?

This guy is awesome. Crack on mate.

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you for the positive response and vibrations. Awesome

Thanks for getting in touch Indeed, having PD puts an extra strain on relationships but it is certainly possible to remain in a relationship. Don't feel guilty about decisions of the past, but instead take the good from it - the lessons learned. Thanks for getting in touch and I wish you all the best Epiphany715

Bless you Bro.

I liked very much to watch this vid specialy the humour. Thanks so much

It isn't a good thing guys but you have to use it as a positive - embrace the change.

how you deal with life with Parkinson! I wonder If you get so used to the tremors that you forget about it or are you awere of it all the time and does it hurt ? Thanks for talking about and showing us whats its like. Love youre attitude !

May I ask (politely) John. How are you getting on mate? Any better? Any worse? Thank you for doing this video, was very good of you. Give us a little update when you get a moment.

Everyone with Parkinson's experiences different symptoms and reacts differently to the various treatments availabe - so you may or may not be able to work where as other people your age may be the oposite - everyone is different. Hope that helps :)

he seems so sweet. god bless!

@johnofthefamilycrossley-st6832

5 жыл бұрын

thank you

Awww God bless ya :) fab video ... thankyou

i love your spirit..

John your very inspirational because like me I just can't seem to get my head around the fact that i ain't in control of my actions and personality so have contemplated suicide loads of times. The best way for me has been to pretend I don't exist and just get on with it but it's hard coz non existent dopamine causes no motivation, concentration and attention.

@johnofthefamilycrossley-st6832

4 жыл бұрын

I have been in this position and I just kept saying, "I'm here and I'm happy and I will do this!!!" I hope you find my advice useful and I wish you all the best!

I've read an article once that stated the earliest case known was a reported at the age of 18 years.

@kerstinyeager7153

7 жыл бұрын

TheLGBTCow the youngest we heard of was 3 years old.

@tiffanymarks9609

7 жыл бұрын

Chris Job Make that two years old. Stunning!

I have parkisons . I got it when I was 46 . I find it very had every day. I am a fan ove. Mj fox he help me a lot

I love how he can laugh and smile even though he knows he has pretty much has been given a death sentance

@tiffanymarks9609

7 жыл бұрын

William The Beast Parkinson's is not a "death sentence." It does not shorten the lifespan, unless you fall, have a car accident, or something like that which can be directly associated with the disease.

35 and diagnosed with PD 2 month ago still taking it in... l like what you say "just crack on"

@johnofthefamilycrossley-st6832

5 жыл бұрын

i'm sorry to hear that how are you now?`

my name john am 46 and have just been diagnosed with Parkinson I find it hard to do daily stuff now my hand as a tremor and walking is hard bumping into things hands so stiff cant believe this is happening

@johnofthefamilycrossley-st6832

10 жыл бұрын

HI John, sorry I totally missed your post.I think you are in the "period of frustration" where you have no clue and no hope. i know exactly what you are going through. Below is an excerpt from my new book which is out soon: It can take an extremely long time to come to terms with a diagnosis of Parkinson’s and the news comes as a big shock. The realisation that Parkinson’s is a degenerative condition is earth shattering and incomprehensible until faced with a similar situation yourself. The condition will only get better as and when the medication works but this is only temporary. Eventually the condition will deteriorate and thus at the same time so will you. It is not easy to accept that you have Parkinson’s and accepting what having Parkinson’s means is also difficult because no two people with this condition experience the exact same symptoms, so arriving at a solid conclusion at the the start is not feasible. There is no easy way to deal with the diagnosis or understand the implications of it. Some need their own space and time to reflect whilst others prefer to be surrounded by family and friends. It is an exceptionally difficult time but finding the courage to embrace it as a good thing is, others and myself have found, a good coping strategy. By convincing yourself that it can actually better your life rather than hinder it, you can subsequently remove most of the burden of a new diagnosis, probably because you are accepting it and looking at it in a positive light. Equally, believing that you were somehow predestined to have Parkinson’s may also help. Coincidently as well as being a big shock it is also a great relief. Finally you know what is causing your symptoms and having the capability to explain what, why and how to people helps enormously if your symptoms are noticeable. Finally after weeks, months or even years of waiting you have the answer you have been looking for. However, suddenly you are faced with a new set of questions that require plausible and accurate answers. It is for this reason I recommend that to begin with it is better to only consult legitimate information resources. Some websites as previously mentioned contain videos of the condition in its advanced stages and this is both upsetting and daunting for a newly diagnosed person. Please use the ‘Contacts List’ in the back of this book. The news of the diagnosis is tremendously upsetting for everyone involved. Friends and family will be disheartened too and it can be a challenging time for a relationship. Your partner will in all likelihood stand by you but you need to understand that at some point, it may not necessarily be that your partner does not love you and want to support you but that your partner feels that they are unable to commit to such an immense responsibility. It is important that you talk with each other about your partner’s feelings on a regular basis because if you have Parkinson’s, theoretically speaking so too has your partner. As arranged with my neurologist I went to see him one week after my DaTSCAN for the results. The results, to my ultimate dismay were not back yet. I asked him if he would kindly call me when the results arrived, regardless of what the results showed because I just wanted to know if they had discovered anything new and if not, what the next step was. The next day I received a phone call from my neurologist. He confirmed whether or not I was comfortable with him telling me over the phone. He continued to inform me that the scan had confirmed his thoughts about my symptoms and the cause. At this point he had already made a diagnosis of Benign Essential Tremor and mild Dystonia but I had an inclining that he suspected something else. He said he was sorry but he had to tell me that the results were consistent to those that showed Parkinson’s. He explained what it was and how it is extremely rare in people of my age. He said that he wanted to see me as soon as possible and that I should take someone with me. We arranged the appointment, he asked if I had any questions and then we ended the call. I turned to my friend and said, “I have Parkinson’s .” He replied, “Parkinson’s? Oh no, that’s terrible! What’s Parkinson’s?” I gave a little smile, shrugged my shoulders and told him what little I knew about the condition. I knew that having Parkinson’s could not have been a good thing and despite having an excellent support network I felt alone and isolated. Now that I look back I felt alone at this time because I did not know anything about it and I had never had any experience with the condition. I just thought “It’s all over!” I invited my mum and my girlfriend, Debs (now my wife) to come with me to see the consultant. In all honesty I wanted to go alone because I needed to understand everything in its entirety before unleashing the news. I also needed time to overcome the initial shock which, unbeknown to me at the time would take nearly a year to overcome. I did however ask my mum and Debs not to ask questions just yet as they might have asked a question that I was not prepared to know the answer to at this early stage. At the appointment my neurologist explained everything in immense detail but in a way that was simple to understand. He asked if we had any questions but I was still processing what he had said and contemplating my now uncertain future of living with Parkinson’s. We all walked away shocked and my mum and Debs were understandably heartbroken - so was I. My mum had tears in her eyes and apparently passionately said, “Why not me? I’ve lived my life. Why?” I asked myself a similar question, “Why me?” many times and I considered many different answers: Because I was unlucky, because I had done something terrible in a past life. The list was endless but still I had no valid answer - eventually I knew I never would. I realised that I was ultimately in control of my own thoughts and only I was capable of picking myself back up. I remained positive and in reality I had no other choice. Deep down inside however, I was still in turmoil. I knew it would get worse over time and just knowing that I didn’t know what to expect was both frightening and deeply upsetting. The idea of living one day at a time was unimaginable, I just merely existed. The DVD from the then Parkinson’s Disease Society (now known as Parkinson’s UK) was extremely informative but for someone of my age it did not really help. I watched it well over 100 times and each time I cried. There was no one near my age on it and at 23 years old it was not ideal viewing for me. Despite the DVD having been made to help people during the diagnosis period it inadvertently made me feel even more isolated, anxious and afraid. Although the PDS are there to help everyone affected by Parkinson’s, at that time there wasn’t many people my age living with Parkinson’s and if there were, none had come forward to help raise awareness that young people could also be affected by Parkinson’s. Due to the business I had very little time to myself and so my mind was kept occupied most of the day. Slowly but surely I accepted my new life and I began to embrace it. It took me about a year to come to terms with having Parkinson’s and part of that process was re-evaluating who I was and who I wanted to be. It is not easy to put yourself in a different mindset and it takes time. Please don’t misinterpret what I’m trying to say. I understand that Parkinson’s is not a good thing and we would all prefer not to live with it if we could. But as long as we have to, we need to keep thinking of it only as a good thing. You can take this terrible situation that you’ve found yourself in and use it as an opportunity to help others and also yourself. It has the ability to change who you are in two different ways:- • You are in control of what you think and feel. You are still the same old you but you have a passion for helping others in similar circumstances. You become a more positive person and as a result you begin to notice that more and more people begin to take a liking to you. You find people start to refer to you as ‘inspirational’ and you give them hope too. This in turn makes you happy and proud that you are able to take control of something which in the beginning seamed uncontrollable. You haven’t defeated your illness but you have learnt how to recognise it as a powerful tool that can help yourself and others. You have accepted that some things cannot be changed and you just have to do your best and live with it. • You don’t want to follow this bullet point as advice, just be aware of it. You could allow it to take over your life, viewing everything as an unsurpassable challenge. Things will become much harder, much quicker. You’ll burden your family and friends with worry and sadness. You will begin to stay indoors and as time passes you’ll become a recluse. People will eventually begin to want to see you less and soon not at all. The more you see yourself as unable to think positively and capable of getting out of this rut you’re in, the less likely it is that it will happen. However, I still have my down days, which I suppose everybody does. When I have a day like this I normally just put some music on and have myself a good sing song and even a little dance if my legs want to (not that I can dance). This tends to cheer me up and it works for most other people too. Just smile and remember there are many others who are in a worse position than you. If you begin thinking on a negative level you will attract negative thoughts and it is extremely difficult to brake out of this mindset once you’re there. END QUOTE I hope this advice helps people. If anyone has positive comments/suggestions please add to it. John Baxter (formally Crossley-Stanbury)

@edesgnr45

10 жыл бұрын

Have you ever taken Ritalin when you were younger?

@johnofthefamilycrossley-st6832

10 жыл бұрын

yeah mate fucked me up - made tremmor worse same with roprinirole hydrochloride

@johnofthefamilycrossley-st6832

10 жыл бұрын

you know my mums mum's surname was Winn not a common name, and don't know much about her.

@ajphillips9898

10 жыл бұрын

Look up PIENO (Parkinson's information exchange network) - they helped me hold together when I was diagnosed.

At least he's a cool dancer now

I love you sir.

Beautiful!

Hey great video, so honest, I have it since i'm 29, 40 now.

I'm just a little scared but I've got a good doctor now who is actually listening to me and I'm thankful because I finally got referred to a neurologist and have other things that I need to do medically finally to figure it out

Hang in there man.

I was diagnosed with Parkinson diesease on 2016 thur an exam called the datscan. Since then my diesease has become worest, in and out of hospitals even went to the university hospital in New York, which suppose to specialize on patients with parkinson, but no hope. Again from hospital to hospitals and another datscan which resulted positive, I found the Mayor clinic located in Jacksonville Florida where they too only specialize on patients with parkinson. Now their saying that I dont have parkinson but now they saying that I have a disorder. Iam so confues. Any questions, concerns, or answers.

I miss hiking and being able to walk normally. I miss me.

I'm 21 and I may have parkinson's. I've had autonomic dysfunction for years with no known cause, my grandmother had it, and I'm starting to have serious tremors. It's terrifying to think that my life could get any more difficult.

@christianschwalbach7561

7 жыл бұрын

Nikita Liane ans dysfunction can also be due to Acetylcholine issues. parkinsons is mainly a dopamine based condition, so while there can be a connection, there is much to.imvestigate first

@nikitaliane1183

7 жыл бұрын

Christian Schwalbach dysautonomia can be caused by a plethora of things really, and I've had Electrodiagnostic testing which rules out most acetylcholine disorders (plus none of them make sense anyway). Parkinson's makes more sense than anything else I've heard about at this current point in time.

@shanuyadav7273

4 жыл бұрын

Nikita Liane How you doing ?What were the results

My grand father has Parkinson Disease he found out last winter he had it I will have to take care of him pretty soon when he gets worse which he will , the sad thing is there's NO CURE , He's strong tho.

Hi Tarra, sorry to hear that - how ar you doing?

I'm 17 years old and I've been diagnosed with Parkinson's. I'm extremely scared. I don't know what to do.. I'm only 17..

Im 28, living with pd for 10 years now. Can you work?

I have tremor disorders at this point and they are mostly essential and they've been happening for the past year and a half also the past 4 years in my legs I'm trying to figure it out

You have hand down it?

Though there is no cure yet, it might relieve to know that there are many early onset Parkinson's out there. I'm 38 and considered eoP, too. My Neuologist is planning on DBS Deep Brain Stimulation in 5-6 years. He has amazing results especially for younger people with P. I hope to stay most symptom free as long as I can. Take care and thank you for sharing this video.

@johnofthefamilycrossley-st6832

10 жыл бұрын

will post another video asap

@johnofthefamilycrossley-st6832

10 жыл бұрын

just had dbs - posted links on here - will upload update shortly

I'm 19 and i've been having many symptoms that look similar to Parkinsons. I'm still trying to get diagnosed though, i've been undiagnosed for 6 months so far but hopefully I'll get a proper diagnosis soon

@redlavish7027

9 жыл бұрын

19 is when I think my problems started but I ignored it for so long so maybe getting the right treatment early will stop more dopamine cells dying, that's if u do have parkinsons , hopefully you don't. What symptoms do you have?

@GR-Dermatologyandwellness

8 жыл бұрын

+music4everz95 please go see a corrective chiropractor and have your spine realigned! look up Dr. Bergman on you tube and find the videos on Parkinson's.

@tiffanymarks9609

7 жыл бұрын

music4everz95 Treatment at the earliest possible date is highly recommended. Exercise is also a must.

@johnofthefamilycrossley-st6832

5 жыл бұрын

hope you have had a lesser diagnosis and its sorted now. all the best

I swear there's some sort of a link with cigarettes and parkinsons. I smoke 7 a day and have tremors, fatigue, mood swings, stiffness concentration problems. When I stopped smoking 2 months ago these symptoms increased astronomically I.e frequent tremors, can't concentrate on absolutely anything and etc. I thought it was nicotine withdrawal but it lasted for 6 weeks so made me think other wise. I started smoking again not because I wanted to but just to ease the symptoms, which it has but still feel like rubbish. A neurologists suggested that as soon as i stop smoking take some, mucuna pruiens, green tea, coq10 and adrenal support formulas all to make sure more dopamine cells receptors and dopamine is not lost. I don't believe this will work as I probably already have inflicted parkinsons. Anyone have this problem with cigarettes and parkinsons or isit a load of nonsense.

@Quercuspalustris50

8 жыл бұрын

+Nikesh Hindocha The dopaminergic affect of cigarette smoking masks the Parkinson's symptoms and may or may not be neuroprotective. They say people that drink caffeine are less likely to get PD than those who don't.

@GR-Dermatologyandwellness

8 жыл бұрын

+Nikesh Hindocha do your research, while smoking is not good for your health at all and you should try quitting, take a look at Dr. Bergman's videos on you tube and look at his Parkinson's studies. Go see a corrective chiropractor and don't let them do any back or neck surgery your spine and disks can regenerate... ask these 7 questions when looking for a chiropractor, if he or she says yes to all 7 you are in a good place. 1. Do you take x-rays? (essential to find the subluxations) 2. Do you get listings off of x-rays? (shows where to adjust) 3. Do you take post x-rays to document structural changes

@GR-Dermatologyandwellness

8 жыл бұрын

+Nikesh Hindocha 4. Are your treatment goals to reshape and restore the natural curves? 5. Are you familiar with correcting disc injuries? 6. Do you work on post surgical patients? 7. Can you reverse arthritis?

@Quercuspalustris50

8 жыл бұрын

Also you could use nicotine gum in place of the smoking and that would still fire up your dopamine levels. Use one of the higher strengths of the gum or patch.

Love the positive outlook and sense of humour.

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you for the inspiring comment 😊

I have it I'm 51 . Mucuna seed works really well for me.I'm also looking at a diet regiment .also an exercise regiment which I'm not looking forward to but i need it.

@reneMvalencia

8 жыл бұрын

Will see if I give Mucuna seed a try because exercise is not my thing. My son has CP and he does really work hard with his OT, PT and speech therapy

See "How I Reversed My Parkinson's Symptoms" by John Gray on You Tube. God bless you.

@tiffanymarks9609

7 жыл бұрын

gardeniabee Uh oh. Proceed with caution.

You are very brave. I was diagnosed at 38. Do you get dyskinesia?

@johnofthefamilycrossley-st6832

5 жыл бұрын

yes frequently

How are you now brother?

r.i.p muhamed ali

Too right and thanks for the 1st comment :) and ps you gotta have a sense of humor else it's all over.

Most people don't know what Parkinsons is or what the symptoms are. They think i am just drunk sometimes and when I tell them they never remember. Some don't believe me.

@GR-Dermatologyandwellness

8 жыл бұрын

+KZreadViewer :( its going to be okay... ask God to give you strength... ill pray for you.. and inform your self on this dis-ease... clean your diet and live healthier... Go SEE A CORECTIVE CHIROPRATOR!

I was a high flying corporate Banker..though I feel much better post DBS, my cruel employers are keeping me in the dumps..I have more stamina still with me than those SoBs in our HO..

Parkinson's, mild Parkinson's

Alcohol makes Parkinson's worse.Doctors advise not drinking when you have Parkinson's. It said in some studies that alcohol causes Parkinson's

How fast do the early onset cases of Parkinson's progress?

@kiznisha2562

8 жыл бұрын

It depends but usually symptoms become very noticeable within a couple of years. (the guy in this video likely had minor symptoms a year or more before seeing a doctor)

I have epilepsy and I notice my shaking is getting worse. someone told me about Parkinson's and idk if I should talk to my doctor about it. it really is scary for me, I also have a heart problem, social anxiety and PTSD. I don't know what I should do.

@ontarioanglingbros6755

7 жыл бұрын

I also have epilepsy and have experienced several nocturnal seizures, i take medication every day but when i hold out my hands they shake slightly but i cant stop it unless i close them to make a fist or perform a task....

hey i am also 23 and my left hand sometimes shakes not as much as him in this video but may be 5 times less with less amplitude and i can control it as soon as someone realizes me that I am shaking. This usually happens twice or thrice in two to three months. I first felt it first last year or so. My hand shakes too much when I am very nervous. Can it be a very early symptom of this disease.

@johnofthefamilycrossley-st6832

10 жыл бұрын

it can be, but it can also be a one of many conditions. it is best to see a neurologist. not saying it is Parkinson's but my tremor was similar to yours and if it is Parkinson's there is nothing to say that your tremor will get as bad as mine. Chin Up

Hi, I'm raising funds for Parkinsons' in memory of my grandad who had this condition. Could I please use your video on my fundraising homepage?

@johnofthefamilycrossley-st6832

10 жыл бұрын

yeah sure you can, sorry for the late reply

Don't worry about the wankers that gave you a thumbs down. You gave me a smile after my doctor told me he thinks I might have Parkinson's and I want to thank you for that. Well done.;9)

Very good video. I was just dx with some similar symptoms plus dystonia at 32. Ive yet to meet anyone my age yet?

@johnofthefamilycrossley-st6832

9 жыл бұрын

Larry Harrison im dot on 32 in april

I'm 24, recently diagnosed with Parkinson's Disease. It's quite frustrating trying to live an independent life on your own, while being afraid your brain will make you do something that could hurt you.

@johnofthefamilycrossley-st6832

10 жыл бұрын

will post another video aasap with an update to this video and a reply

@fashiongrl2010

10 жыл бұрын

How can you tell when you're first getting parkinsons? I feel like i could be a hypochondriac but essentialy i have several symptoms. my hands don't tremour but my fingers and my leg does. joint pain, insomnia, up and dwon depression. I could just be overreacting but what were your first sypmtoms?

@SarahJaneB

10 жыл бұрын

fashiongrl2010 I always tell people not to assume they have it. It could be a number of other things. I would check with your doctor and see if he can set you up an appointment with a neurologist. They have different ways to check on what's going on. The initial symptom that made me go to the doctor was my hand tremors. I almost dropped a pot of boiling water on myself. First, they thought I was faking. Then, they thought it was an Essential Tremor (which is quite common and fits many of the same symptoms as PD). Finally, they did a DaTSCAN, which showed abnormal dopamine levels in my brain. This is a major indicator of PD.

@johnofthefamilycrossley-st6832

10 жыл бұрын

fashiongrl2010 Hi to you. What is common is a lack of smell or the inability to identify or differentiate between smells. You could try a smell test but ultimately Sarah is spot on. We're here for one-another :)

@johnofthefamilycrossley-st6832

10 жыл бұрын

Sarah Jane B. Bonjour you may have Parkinson's but by the sound of it Your Parkinson's doesn't have you. Unfortunately the frustration becomes frustrating and slowly you may find yourself becoming angry. A few things help. you can always fluff (or defluff as the case may be) your pillows and cushions - show 'em who's boss with no need to buy chocs and a 'GET WELL SOON CARD' afterwards Laugh at your predicament - i.e. you've been waiting for ??? for Dinner all day but you can't get it to your mouth, by now you're mouth's watering for the taste, oo ooo nearly, we touched it with our tongue this time - damm that tastes mighty fine too. s**t, now you're physically drooling for a fork full of that lovely stuff but to end this particular course of embarrassment and 'self-inflicted' torture, you just decide to GOK yourself and think that it looks better if you wear it. Voila, Spaghetti ala mi face WAN eat your heart out.

I can see some commonalities between Parkinson's, Huntington's, Alzheimer's and even MS. I remember Rosemary Fletcher on KZread (see 'durian king' chanel called 'Amazing healing. This will make you cry with joy.' who talks a lot about her MS preventing it from progressing further by the food she eats. I also know someone who has Huntington's and doesn't eat any veg or even dessert. Maybe there is some good in looking at the food that you eat to slow it down.

Good luck for the future

@johnofthefamilycrossley-st6832

4 жыл бұрын

Thank you, all the best to you too!

I was diagnosed at 30 and it sucks!

@GR-Dermatologyandwellness

8 жыл бұрын

+KZreadViewer please go see a corrective chiropractor in your area ask these seven questions and make sure he/she answers yes to all 7. hopefully you havent had back or neck surgery yet... remember your disks can regenerate! 1. Do you take x-rays? (essential to find the subluxations) 2. Do you get listings off of x-rays? (shows where to adjust) 3. Do you take post x-rays to document structural changes +Nikesh Hindocha do your research, while smoking is not good for your health at all and you should try quitting, take a look at  Dr. Bergman's videos on you tube and look at his Parkinson's studies. Go see a corrective chiropractor and don't let them do any back or neck surgery your spine and disks can regenerate... ask these 7 questions when looking for a chiropractor, if he or she says yes to all 7 you are in a good place.   1. Do you take x-rays? (essential to find the subluxations) 2. Do you get listings off of x-rays? (shows where to adjust) 3. Do you take post x-rays to document structural changes Read more Show less 4. Are your treatment goals to reshape and restore the natural curves? 5. Are you familiar with correcting disc injuries? 6. Do you work on post surgical patients? 7. Can you reverse arthritis? · 1 ▼ Edit Remove this comment

how does Parkinsons affect the sex drive ?

many thanks i will look into it

First symptoms: premature ejaculation ,low libido ,low sex drive ....

I have found 4 other people on face book that had been given Ritalin as kid who now have Parkinson's. I have also found a woman who abused Adderall when she was in college who is now 26 and has Parkinson's.

@redlavish7027

9 жыл бұрын

Makes sense as they both damage the natural production of dopamine receptors. The link between adhd and parkinsons is becoming more and more recognised as they both involve a lack of dopamine. I have adhd and showing signs of parkinsons, tremor, stiffness, concentration problems, constipation. I been advised to take green tea, mucuna pruiens and coq10, maybe this may help you.

@redlavish7027

9 жыл бұрын

What was your diagnosis in the end? Is your tremor constant and where is it? Try what I said, they all naturally build dopamine. My main problems are non motor I.e depression, fatigue etc. my motor symptoms seem to help by smoking cigarettes which I want to quit but it helps my movement slightly which is odd.

@johnofthefamilycrossley-st6832

9 жыл бұрын

Nikesh Hindocha tobacco nsturally increases dopamine production. my exact diagnosis is benign essential tremor with dystonic tremor and dystonia caused by early onset parkinson's.

@redlavish7027

9 жыл бұрын

John mate cheers for the reply. Yh I got told I had Parkinson's a year ago at the age of 27. My fingers especially pinkie would twitch and my movement was so slow and my arm wouldn't swing. I've had the acting out dreams. Constant fatigue, anxiety, constipation and dandruff and at least 3 of these problems are with me every minute of my life. Smoking helps my motor symptoms but does nothing for my anxiety and confusion. John do u smoke?. I truly don't give two monkies about my movement problems, tremors Etc lol it's just the personality change, fatigue and confusion which is ticking me off. Do you take any meds for your mood?

@redlavish7027

9 жыл бұрын

Frugivore yh I tried that 80,10,10 diet at the early stage of my symptoms when I thought I had some problem called candida but after a year it ended up being parkinsons. I've had problems with my stomach for over 4 years and the doctors couldn't figure out what the hell it was and now I do. I met a guy from Australia and he got parkinsons at 24 and now he's 27. He does a similar sort of diet that you do, takes mucuna pruiens, green tea and adrenal support supplemnts for 2 years and he hasn't taken any of the meds that the doctors prescribed him and he told me 90% of his symptoms have gone. I knew I was gonna get some sort of a neurological disorder due my dads side of the family all suffering from adhd low dopamine but like a idiot my lifestyle made it worse and triggered the parkinsons.

Freelea 'the banana girl' from '30 bananas a day' channel has some good tips on eating raw consciously. I personally try incorporate 5-15 ripe (meaning freckled up otherwise it constipates) bananas a day because I haven't quite got use to it 100%. I also found a really good meal replacement for when Im on the go from 'Garden of Life RAW Vanilla Meal Beyond Organic Meal Replacement Formula 1.1kg' which helps as opposed to always cooking your own healthy meals.

I have Parkinson ..ive had it for 7 years im now 40..i understand

how is he today.. 2016 ?

@reneMvalencia

8 жыл бұрын

That is absolutely what I wanted to ask too.

@murdermuseum8280

6 жыл бұрын

probably in a wheelchair and in a nursing home. my mother in law has this. it's a fucking terrible disease.

@johnofthefamilycrossley-st6832

5 жыл бұрын

I'M STILL HERE HAHA

So for you it increases your sex drive that's interesting I'm trying to figure out what's going on with me. Neurologically there is something happening I've got appointments lined up but I've been noticing changes and it's scary