I think the most depressing part of this is knowing it was nearly 7 years ago and that most of these kind people have likely passed away or are a shell of themselves. Such a cruel illness to take someone away mentally while their body is still healthy.

If it should ever come to such a point that I am rendered legally incapable of making my own decisions, I would choose to be euthenized.

Blessed be, and thank you for your story. My mom developed a rapid onset dementia earlier this year and is already in the final stage. Stories like these help. I am so sorry for any family out there struggling with dementia or alzheimers at any level, may you all find peace. Blessed be. Peace

@waywardsoul3562

3 жыл бұрын

Thank you for the suggestion. She passed away September 4.

@Jane5720

3 жыл бұрын

I'm sorry

@raymondwalcott4531

3 жыл бұрын

1a

@aaammma868

2 жыл бұрын

How old was she when she got the early onset?

@waywardsoul3562

2 жыл бұрын

She has just turned seventy, which I know isn’t young, but the rapid onset was the worst, she was fine o e day and then had the dementia the next, then a few short months later she was gone… I wish peace for anyone who has gone through this or lost a loved one… blessed be

I’m 38, and have signs of dementia. And I’m sitting here with the curtains drawn, been isolating for years with dwindling cognition and all I can do is cry when I see these communities. I’m in the US, and there’s nothing like this here unless you can pay sometimes upwards of $75,000 per month or have good insurance. So we just get extremely depressed, told we’re crazy until we can’t function anymore or die, and then if we’re lucky enough to make it, we end up in understaffed homes which were the places of what essentially added up as eldercide as we still fight covid. I had a complex brain injury four years ago. A chemo drug caused it, and I had amnesia for two months. The injury is getting worse by other measures (increased spasticity of muscles, crane neck deformation, increased tremor) but the depression is absolutely crippling. I think that’s what struck me, is that depression is very much part of what I’m going through. Although these make me sad, it also makes me happy that some places care for the neurologically ill, and that these people have somewhere safe to be.

@kimgloria6094

Жыл бұрын

Maggie Kelly , I feel so sad for you. I know all too well about depression. I have suffered my entire life fighting depression which affects my cognitive abilities and also memory. It seems like its getting worse. Maybe it's early onset or MCI or just my depression. I have spent years unable to function from depression and could not even string a sentence together to have a conversation so did not speak to anyone for 4 years back in 2011. My Brain has not been the same. I feel as though it's damaged. I have brain fog when I am depressed which is the worst. It's just so uncomfortable. . You are so right about a good assist living , memory care, nursing homes are so so expensive for good homes across the USA. I live here too. There are a lot of beautiful homes like fancy hotels. But only for the wealthily. The state run nursing homes are horrible. I've walked though those places and they are awful. I would rather be dead. Maybe your signs of dementia are symptoms of depression and not dementia. If you are depressed and it sounds that you are. You memory and cognitive dwindling is from depression. When I am in a state of depression it's awful. I cannot remember anything or even speak well. My words are all mixed up , my thoughts all scattered , I'm lightheaded, forgetful, I can't think. I make tons of mistakes. I once sent out my bills with no check inside of the envelopes. But it's depression. I've been depressed since I was only 10 years old I am 60 now. I know all about depression, and what it can do to one's brain. I am depressed now too. It's awful not to feel joy in your life and everything is a struggle. I open my eyes every morning dreading the day, Just living is painful. I get it. Maggie Kelly I will say a prayer for you tonight. I wish I could wash away your pain.

@kimgloria6094

Жыл бұрын

Maggie Kelly, All your dementia like symptoms and dwindling cognition maybe cause by your major depression. Perhaps the brain injury is not progressing or degenerative. I have suffered from depression for years and years and I know it affects cognition. When I was your age I was so depressed I could not string a sentence together. I am 62 now. My memory is great and my cognition is good unless I become depressed again. Don't be sad sweetheart . Perhaps you do not have dementia. I too live in the US too. In this country only the rich have it made and can live their old age in comfort. Not me. I am poor but when I'm not depressed. I'm happy.

@LeynaRyallsThisnthat

3 ай бұрын

Has there been any changes to your life? How are you now? I hope things have changed for the better.

@maggiekelley259

3 ай бұрын

@@LeynaRyallsThisnthat I... really appreciate you asked a year later. We get these little bits of people's lives and never know what happened after. I would love to say everything is improving, but that is just not the case. So changes over the last year: My memory has deteriorated to the point I have emergency neuropsych testing on the ready, pending evaluation for a surgery for a benign bone tumor recurrence after 25 years? Doctors finally noticed how bad things got for me after they realized I was having a difficult time remembering really... anything. I lose my train of thought often and have to be reminded of what I was talking about. I never remember now. Basically my short term memory is so deteriorated, it's not storing memories long-term. My ability to type and write is mostly intact, but slower and sometimes I can't do the keyboard swiping due to tremor. My spiral (intention tremor test) is messier. Speaking is becoming difficult. I accidentally hit my head the other day due to my increasing poor proprioception of my neck, and was mumbling when I thought I was speaking. I have dysphagia from my cervical dystonia now, and tend to inhale mostly spit. The dystonia is now peripheral, affecting my eyes and hand at rest due to a nerve getting activated. I *just* got approved to have a "behavioral health worker" who is going to help me with daily tasks of living. Though I'm not a primary mental health case, my depression quickly qualifies me for it, where the testing to get a state waiver for a PCA (not even guaranteed to get the service) is a lot harder. They would be much more qualified and I'm honestly tired of behavioral health workers because they tend to cross inappropriate boundaries much more often. I spent my spring, summer, and fall living with a very abusive and controlling woman who nearly pushed me into a garbage can a few days before my birthday. She would herd me like I was cattle to control me. An example is if she wanted me to use the dishwasher, she would stand behind me and block my way and then open the dishwasher. They are basically on vacation for the entire winter and my partner and I, now in late stage renal disease, need to find housing that's accessible in less than two months. I'm 39 now.

@LeynaRyallsThisnthat

3 ай бұрын

@@maggiekelley259 this is honestly so sad to hear, I'm am so sorry you are going through this. The American health service sounds just as bad as the NHS but you have to pay insurance for it. I'm currently studying Forensic Psychology and were literally taught ethics and how people have the right to autonomy and should be treated with respect. I am so sorry whoever this behavioural health nurse is, they need reporting or atleast getting some one else sent out to you. I do worry about people with memory issues because people can manipulate and gaslight you and its just so horrid and inhumane. Do you have anyone who is helping with physio? Surely with dystonia you'd benefit from some physio, to try and help with you muscles. I think with the illness deriving from a brain injury, they've probably send a mental health worker, because it affects cognition, and memory, and they are what neuropsychologist specialise in. The fact that you are only 39 really gets me. I'm 33 in April, and I feel like we always worry about theses things later on in life, like we never expect it at young ages. It's just beyond sad.

This is wonderful! I have young onset dementia and have NO Services. It’s as though we are not important anymore. I’m in the USA.

@SocialCareTV

6 жыл бұрын

Thank you for your kind reply.

@aprilapril2

5 жыл бұрын

There was a story recently of an American family who flew their dad to uk and left him in the street as they knew he would get care that they didn’t want to pay for

@alicesamekbenoit5990

3 жыл бұрын

*So sad, but anyone who has looked after a loved one with dementia will know how hard it is physically and mentally. My heart goes out to anyone/everyone affected by Alzheimer/Dementia.A huge shout out to any caregiver doing this alone! I feel your journey. I feel your pain because I've been there. My mom was also diagnosed in her 60s. Feeling absolutely shattered, heartbroken and drained, working with different physicians across the country with little or no improvement. I was exhausted and overwhelmed to look any further. Crying a lot through frustration, anger and despair, But today with the help of Homeocure Worldwide Natural Medicine, my mother is completely healthy and well again. I think we only need more support and sunlight to overcome this dreadful disease. Search for support regardless and don't stop until you get it. With Homeocure Worldwide treatment, there is hope, don't give up! contact them on their youtube channel for more info*

@geoh404

3 жыл бұрын

How's it going now?

@carrickwinson3763

2 жыл бұрын

I once believed Alzheimer's disease has no cure. Well, it is true with western medication, but not with herbal medicine. My Dad's experience opened my eyes to the reality of a cure through herbs. My Father was diagnosed with mild dementia in 2013 but now he's finally free with herbs from Dr. Rohan.. You can reach out with the doctor via dr.rohanronjohn@gmail.com

I think you're doing remarkable work !!! What a great service for this particular group of people ! And let's face it ... at any stage in life , it can / could be us !!! Love Herma 👍💖💖💖 ( 56 yrs old )

wonderful Wendy sooooo proud of you xxx

Dementia. If I get a diagnosis I hope it come in time for me to book my ticket to Switzerland

@carrickwinson3763

2 жыл бұрын

I once believed Alzheimer's disease has no cure. Well, it is true with western medication, but not with herbal medicine. My Dad's experience opened my eyes to the reality of a cure through herbs. My Father was diagnosed with mild dementia in 2013 but now he's finally free with herbs from Dr. Rohan.. You can reach out with the doctor via dr.rohanronjohn@gmail.com

@evamoustaka4048

2 жыл бұрын

Do not despair.....dont manifest your fear.ldo undersrand your first reaction ....but dont livevin that space

I think it's wonderful that you all help each other, my mum was unfortunately given a diagnosis... It was 10. Years before we found out, she lived onthe other side of the equator, by that time she had been coaxed into some sort of "religious"group that messed her up, took advantage of her belongings, kindness, naivety, money, they even still had her going door to door.........

Dementia is not necessarily more common,it was ignored,now people are diagnosed by neurologists.In the past it was labeled as mania or madness, ignored by local communities,most were put in old Victorian mental hospitals to die.

Little is known about the needs and experiences of people living with young onset dementia and they are a group that commonly overlooked in research. This video is a great insight into how younger people are living with dementia in the UK.

Bless you🙏🙏🙏

They(doctors) did this to me with my CRPS

People are not willing try alternative health they stick to this Dr made up disease. there is no pharmaceutical cure for it try alternative. alternative Methods.

One word for helping with Dementia... KETOGENIC diet !!!!

A dentist with not very good teeth!

@GloriaViolet

5 жыл бұрын

I noticed ... perhaps he let himself go a little where dental hygene is concerned ??? Love Herma 💖💖

@corinnalopez9343

5 жыл бұрын

For the most part folks in the UK aren't as obsessed with veneers and having BIG white fake chicklets ;)

@aprilapril2

5 жыл бұрын

Uk dentistry has mostly been about function rather than cosmetic.

@carolynsears1710

5 жыл бұрын

Hey guys, stop talking about these beautiful people. Geez!

@carolynsears1710

5 жыл бұрын

Honey Pea that’s socialism. No cosmetic surgery paid for by government