This video was helpful on a different level. I'm coming up on the fourth year since I've had my stroke. I'm a pretty positive person even throughout this whole process. There are times well I've felt hopeless and times I've felt like I can do it! One of the things that were messing with my head was watching stroke survivors that have made these quick turnabouts and gotten back to life so quickly and a friend of mine had a stroke and her life is awesome. I celebrate these people and encourage others. But I'd be lying if I said as the years started going by I didn't start wondering what am I doing wrong? Why aren't I this far yet? And in those moments I'd see an immediate decline in morale. But you put it out there first. There are many factors in recovery. Support, financial situation, resources, how severe and where your stroke was. I absorbed that and the journaling would be an awesome idea. Like a boost for strength and my will to go on and stay optimistic🙂🙏🏿✌🏾

@PostStrokeOrg

2 жыл бұрын

@dontagotti, Thank you so much for sharing your experiences. I hope others reading these comments will feel less alone in their comparison experiences. We're human and comparison is a very natural process. It just gets in the way if it limits progress or causes you to beat yourself up! ❤️ Glad you liked the journaling idea!

Your videos often make me cry because you really understand. From a seven year stroke survivor. Thank You!! ❤️

@PostStrokeOrg

Жыл бұрын

Thank you for the kind words. I’m so glad you find my content helpful!❤️

THANK YOU SOOO MUCH...I NEEDED THIS TODAY!!😇😇😇😇🤗🤗🤗

@PostStrokeOrg

2 жыл бұрын

@octoberopal, You are so welcome! Glad it came at the right time ❤️

Very encouraging words. Thank you Elyse😊

@PostStrokeOrg

2 жыл бұрын

@denisejackson, You are so welcome ❤️ Hope you're well!

Thank you, I'm guilty especially when asking others things like, How long did this or that take you to regain or recover?

@PostStrokeOrg

2 жыл бұрын

@tjharris, You are so welcome. But don't forget, comparison is normal. It only become a problem when you start beating yourself up for not making enough progress or making more progress than someone else. It's perfectly fine to be curious about others' journeys! ❤️

@tjharris6530

2 жыл бұрын

@@PostStrokeOrg copy that thank you!!!

I like your bookshelf items. And thank you for this post.

@PostStrokeOrg

2 жыл бұрын

@dianeweisberg, Thank you ❤️ I'm a big sci-fi nerd! 😊

Thanks Dr Elyse real motivation

@PostStrokeOrg

2 жыл бұрын

@hoorainzaheer, You're so welcome! 😊

Thank you so much 👍👍👍🙏1️⃣

Thank you for another fantastic video, Elyse! I am a 21-year-old stroke survivor and the second type of comparison ("survivor's guilt") plays out in my head every time I achieve something. Your patients are so lucky to have a knowledgeable and experienced OT like yourself! Your videos either perfectly describe my situation, or help fix a problem I didn't even know I had.

@PostStrokeOrg

2 жыл бұрын

@mingjiawang, Thank you so much for your kind words. ❤️ As I've mentioned in a few other comments, we're all human and comparison is a very natural process. It's just when it starts getting in the way or causing us to feel bad that it becomes a problem. But I hope you shout your achievements to the stars! Be unapologetically proud 😁❤️ And if you think of other topics you'd like to see videos on, feel free to comment! I love to hear from y'all!

@MingjiaWang272

2 жыл бұрын

@@PostStrokeOrg I think one thing I need help on is how to reduce biceps/brachialis tone. This is mainly about arm swing when walking, but my elbow tends to bend when I’m getting out of cars and I get bicep activation when I’m reaching for things on shelves. I’ve seen a couple other videos advocating for bicep stretches against a doorway but was curious if you have a recommended approach to keeping the arm straight and relaxed during walking/movements.

It’s coming up 3 years since my stroke and while I have not kept a log of wins I see and experience the things i do on a daily basis that would’ve been so difficult to do at the start of my recovery. I learned it was important to manage expectations (I thought i’d be back to normal a month after throwing myself hard at the in patient OT and PT) My body and brain disabused me of that notion so I prepared and settled in for the long haul. I’ve accepted that there’s no going back to normal but I can achieve a new normal.

@PostStrokeOrg

2 жыл бұрын

@nypedestrian, Setting and managing expectations for recovery is another huge part of the process. Thank you for sharing your experiences!

Thank you so much!!!

@PostStrokeOrg

7 ай бұрын

You're so welcome!

Thank you so much 👍👍😘👍1️⃣🙏🙏

@PostStrokeOrg

2 жыл бұрын

@huseinalghazali, You are so welcome! 😊

I had a right frontal stroke I used to love to journal but it's that part of my brain effected. Multitasking is hard. And I do also have a app for journaling but it's just as hard because I don't always have the words to describe my feelings.

Great explanation. Frequently discussed on Stroke Support India group. Will share.

@PostStrokeOrg

2 жыл бұрын

@strokesupportindia, Thank you very much! ❤️

You fulfilling great Job ma'am. But why i can't do little heavy exercise if I do this my both legs become weak at night while iam sleeping...

Thank you for sharing... I am stroke survivor.. 1yr post hemorrhagic stroke.. And I'm losing hope because my family wants me to die because before I am the breadwinner but now since I've been stroked I can't provide for them . So thanks

@PostStrokeOrg

2 жыл бұрын

@annafantasya, I'm so sorry you're dealing with this situation. I know the loss of being able to work doesn't just hit your family hard, it hits you hard, too. Please try to keep your chin up and look for both financial and mental health resources in your area!

@dontagotti2449

2 жыл бұрын

I'm so sorry that you feel that way and your family is being that way. One of the first things you said is you are a stroke survivor. That word means alot to all of us. Survivor. Our lives may have changed in ways we or our family and or friends don't like. But we are still here and still have purpose. Never give up on yourself and where your going to go. If your family makes you feel less than or worthless they aren't good family, support, nor energy to have around you. Like Elyse said take advantage of financial and mental resources that are available. Remember you didn't die. You survived. So live, smile, and keep fighting. Stay strong beautiful. 😁🌹

@annadionisio1635

2 жыл бұрын

Thank you so much

@annadionisio1635

2 жыл бұрын

@@PostStrokeOrg must restore my mental health. Through you tube I learned a lot specially when other stroke survivor send message. And thank you because you notice my comment ❤️

I did that. First Minnie stroke took a few weeks to recover and walk with a stick. Second stroke three years later very very slow recovery. Disappointed and exhausted all the time. So you cant really compare with yourself either.

@PostStrokeOrg

2 жыл бұрын

@annlove, I'm so sorry to hear about your experience with multiple strokes. Every person is just so different in how they recover. And mini strokes and full stroke recovery can be very different. I hope you are still making some progress. Thank you for sharing your experience here ❤️

That’s the big thing is access to resources . I’m doing everything on my own, just what I can find by doing research on the internet

@PostStrokeOrg

2 жыл бұрын

@stevekierstead, 100%! Access to resources, especially in the U.S., can be so difficult. There are no great government programs that help. Everything is left up to patients to find and piecemeal things together. It's one of the reasons I started making videos! I hope you're doing well. I always enjoy seeing your comments 😊

@mrstevek118

2 жыл бұрын

@@PostStrokeOrg that’s why I’m happy I found your videos . I can follow them and do the exercises. Even if there not the ones I want any exercise will help, right

I had a acute stroke which obviously damaged my brain . Im only 24 I was discharged after 1week from the hospital & then i had a home therapist for almost 1 month and i was being able to go therapy centre by myself. Thankfully i can walk now but stil there is a problem with my hand i can hardly move the fingers its been 2 & half month. Living Only with one guilt that i cant quit smoking since i was dischrged from hospital i use to smoke 10-15 ciggrates now im tryn to reduce my habbit of smoking . Im quite satisfied with the physiotherapy result . My concern is how much it is disturbing my recovery??????

@PostStrokeOrg

Жыл бұрын

@adenthapa, I'm so sorry to hear about your stroke and especially having one so young. I'm really glad to hear that you're trying to reduce your habit of smoking, but I know it's really hard! I won't lie to you, it's definitely not good. Smoking not only damages your lungs but can cause increased blood pressure and damage to your blood vessels. These last two issues are what are particularly concerning for stroke risk. Keep on trying to reduce how many cigarettes you smoke and talk to your doctor to see if there's anything that can help you come off of them! ❤️ You got this

Do you have any exercises for being impatient after my stoke I’m always rushing to talk and eat

@PostStrokeOrg

2 жыл бұрын

@bethmccahill, I don't currently, but that is a great recommendation! Thank you for sharing and I'll add it to the list.

❤️❤️❤️❤️❤️

I have 1year from str0ke I lose all motivation for live and life I want to die! Is better for everyone's I'm a big stone for evryone near me

@PostStrokeOrg

Жыл бұрын

@villiandan, I'm so sorry to hear this. Please take time to reach out to friends or other support, a mental health therapist if possible, if you are living with depression and suicidal thoughts. You can also reach out to the Romanian Alliance for Suicide Prevention at 0800 801 200 between 19:00 - 07:00. Please take care ❤️

Hi hi. Even though I exercise regularly what can I do to make my affected arm stronger? Lifting little things is extremely hard a year and a half post stroke.

@PostStrokeOrg

2 жыл бұрын

@hemasookram, Great question! You could work on increasing the resistance or repetitions to start building more strength. If you have a physician or therapist who can prescribe something individualized for you, that would be best!

@hemasookram4655

2 жыл бұрын

@@PostStrokeOrg thanks but in my country of Trinidad I’ve gotten no help from the hospitals. The only thing left is private care and that’s expensive. I was a private caterer but I cannot do much in that department anymore atm. Made my progress through the help of KZread and you❤️ I use 2 pound weights and resistance bands or working out.

The toughest part of this is everyone has different reactions to a stroke. I feel like I'm not meeting the expectations of others, so that's a failure for me..

@PostStrokeOrg

2 жыл бұрын

@cjnthn, Absolutely. It's really difficult when there's no definitive answer and everything is usually, "It depends." It's much easier to say this than to do it, but I hope you can find peace with focusing on meeting your own expectations versus trying to please others. ❤️ Thank you for being vulnerable and sharing. I know you're not the only one who feels this way.

@Tito-xo2ke

2 жыл бұрын

Only a survivor and ofcourse my favourite OT Miss Elyse that truly understand in totality our struggles. It is all about your expectations because others cannot help basiing their judgement of you unfortunately on their current abilities that truly are not weighed down by deficits of any kind This is your journey and yours alone with a couple of fans to cheer you on..Hang in there...🙏

My grandmother recently got stroke and she is not able to move her left arm and leg...she is 77 years young.. But the thing is she is sleeping a lot like almost a day.. Can u please tell me why is these so....

@PostStrokeOrg

2 жыл бұрын

@sakshinemade, I'm so sorry to hear about your grandmother. I know that can be so scary. Her need to rest a lot is normal. If you've ever had an injury or been sick, you've likely been tired and wanted to rest, too. When a stroke happens, this is an injury to the brain. It takes a lot of energy to keep all the functions of the body working while also trying to repair the injury in the brain. So, let her sleep and rest. She needs it! ❤️ I hope this helps!

@sakshinemade3389

2 жыл бұрын

@@PostStrokeOrg she will be alright na?? Cause everyone is speking scary things but I will surely not give up on her and I know she will be fine sonner... And Thanku so much to reply ur words is surely giving me hope

@PostStrokeOrg

2 жыл бұрын

I really hope so and will be thinking about her. Unfortunately, I’m not a neurologist or physician so I can’t diagnose or make a prognosis. Listen to her medical team even if it’s scary, but continue to hope and be there for her. ❤️

👍👍👍❤️❤️

@PostStrokeOrg

2 жыл бұрын

❤️

I can’t understand why they’ve so far ahead in there recovery . I think I’m doing everything I can

@PostStrokeOrg

2 жыл бұрын

@stevekierstead, Like I mention in the video, everyone is different. Literally different strokes impact folks differently. So that means that people will recover differently, too. ❤️

@mrstevek118

2 жыл бұрын

@@PostStrokeOrg True I have to accept that