DAY IN THE LIFE OF A 7 YEAR OLD WITH ANGELMAN SYNDROME

This is the day in the life of Griffin, our 7 year old with Angelman Syndrome.
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Пікірлер: 120

  • @BasicBerry_
    @BasicBerry_10 ай бұрын

    I've been waiting for this video! As a twin myself, I know that we know each other on a different level and Sawyer and Griffin do too. Sawyer did such a good job hanging with Griffin. Hope you guys are doing well!

  • @Prime_JAY-
    @Prime_JAY-10 ай бұрын

    If it’s ever hard for you I am here and everyone 😊hope you guys the best of luck 👍👍👍👍

  • @ItsAubJoi
    @ItsAubJoi9 ай бұрын

    My younger brother has Autism too! Im glad theres people who knows what it feels like to see people who with mental disabilities get treated so badly at school, Terrible. thank you for these videos ☺️

  • @user-vh6eh3vu4g

    @user-vh6eh3vu4g

    6 ай бұрын

    Hi my sister has a mental disability that goes under cerebral palsy so I know what your brother is going through

  • @phillisob
    @phillisob8 ай бұрын

    I'm here thinking the partition is brilliant whether your child has Angelman Syndrome or not lol! But seriously...you have to be able to drive them safely so many places, and you can't just move him to another car. This way, he's part of the family and can't ruin the drive (unintentionally, of course!). Awesome job!! ❤ Edit: For some reason, your videos haven't popped up for me recently, but I have to say that the progress I see in just a couple months is absolutely wild. His walking, communication, and DEFINITELY his behavior have improved dramatically. I'm a little choked up! 🥹

  • @ashleyhelms8010
    @ashleyhelms80109 ай бұрын

    I love seeing Day in the Griffin. ❤❤❤ y’all have awesome family ❤❤

  • @kortneykennedy7303

    @kortneykennedy7303

    10 күн бұрын

    What are you doing tonight

  • @OneRandomDragonLover
    @OneRandomDragonLover13 күн бұрын

    Given that he's non-verbal, him saying words like "open" is a great achievement.

  • @valerielowery5453
    @valerielowery545310 ай бұрын

    I love seeing Griffin’s day😊❤️He’s such a handsome kid and so funny

  • @bethaniefranks7680
    @bethaniefranks76809 ай бұрын

    Good to see you. I love you guys. ❤ You are doing great.

  • @melissakimmel2944
    @melissakimmel29449 ай бұрын

    I llove you guys so much! Such great parents! Griffin is doing so good!!

  • @thekaerichtexas
    @thekaerichtexas6 ай бұрын

    I must say you have a good looking family, adorable well mannered kids, and a super great mom n dad❤ keep up the great work

  • @Prime_JAY-
    @Prime_JAY-10 ай бұрын

    You guys are the best🎉!

  • @christophercruz5891
    @christophercruz5891Ай бұрын

    Love you Griff Dog! (that’s what a friend with the same name at camp wanted to be called). God has blessed you with so many wonderful people. I don’t consider this a disability I consider it a different ability. I’m blind and autistic and also have major anxiety.

  • @akflanigan
    @akflanigan10 ай бұрын

    You and Will are amazing parents. Griffin has come a long way and I think its because of your commitment to your kids and them being the best they can be ❤️

  • @Eqecrochet2012
    @Eqecrochet2012Ай бұрын

    1:40 I like how the twins play with each other 👍🏽

  • @allisontruttling4288
    @allisontruttling428810 ай бұрын

    Hello! I just stumbled upon your channel and am very grateful to see this little window into Mr. Griffin’s lifestyle. I have a few questions, if you’re comfortable responding, great, if not, no worries! One of my students is an angel and I’m always trying to find new ways to better meet their needs and set them up for success. Recently I’ve been troubleshooting some posture stuff at the table and LOVE that activity chair you guys were using during breakfast, and think my friend could benefit from one. What brand chair are you guys using? I’ve looked into the Ruffin activity chair (looks like maybe that’s what y’all have?) Also, do you have anything you love/hate about it? Would you have a different one if you could?

  • @user-ru1kv7ol8n
    @user-ru1kv7ol8nАй бұрын

    I love it when you do day in the life's ❤

  • @ZeldaTearsOfTheKingdom517
    @ZeldaTearsOfTheKingdom5177 ай бұрын

    Wow I really relate to what you said about Griffin I love kids and I love playing. I am also a youtuber and a eagles fan.

  • @KimWhaley-jq5hq
    @KimWhaley-jq5hq3 ай бұрын

    Happy birthday Grifen

  • @maasdiner
    @maasdiner10 ай бұрын

    i love how he is automatically happy when he wakes up❤

  • @JacobPense

    @JacobPense

    10 ай бұрын

    Angelmen syndrome makes him look happy 24/7 but he is not actually always happy 24/7

  • @sophiamarylouiseoates4560
    @sophiamarylouiseoates456010 ай бұрын

    Griffin Is So Brave!,Btw Im New To The Channel

  • @larissagarcia3951
    @larissagarcia395110 ай бұрын

    Great job family and specially mom for taking this good care of Griffin!

  • @lilyrowhani7731
    @lilyrowhani773110 ай бұрын

    Griffin is the cutest kid ever and is such a warrior ❤❤❤❤

  • @mysmileys4life

    @mysmileys4life

    10 ай бұрын

    FR i liv him

  • @mysmileys4life

    @mysmileys4life

    10 ай бұрын

    *luv

  • @lilyrowhani7731

    @lilyrowhani7731

    10 ай бұрын

    @@mysmileys4life me too!!! ❤️❤️❤️❤️

  • @this_user_is_nonhumann

    @this_user_is_nonhumann

    9 ай бұрын

    Yes

  • @SabrinarosemarieHarderpo-vs7py
    @SabrinarosemarieHarderpo-vs7py6 ай бұрын

    I have a brother with autism really bad he jumps up and down

  • @waynechidlow675
    @waynechidlow6755 ай бұрын

    I'm autistic and I have a sister with angleman syndrome type upd double female

  • @Abby-zk5tt
    @Abby-zk5tt10 ай бұрын

    We love you griffin!

  • @JoeE-oo9gg
    @JoeE-oo9gg10 ай бұрын

    I have someone in my life who is 7 and is in diapers 24/7. I was just wondering what type of diapers Griffin wears? I was also wondering if you use booster or stuffers in griffins diapers? I was also wondering how often you check griffin’s diaper as well? I find the person who I know leaks a lot, just trying different brands. Thank you very much.

  • @johnmarshall2436
    @johnmarshall24369 ай бұрын

    What size diapers did you wear? And you can use but diaper on can't get it What brand are they

  • @faithperry9978
    @faithperry99785 ай бұрын

    Wow your house it's so organized looking do you get help services with your kids i only have twin girls who live with me and not as organized .

  • @kcjo2924
    @kcjo292410 ай бұрын

    ❤Love

  • @puppy_unicornbb9360
    @puppy_unicornbb936016 күн бұрын

    I have a question will he ever be able to talk? I know he's noverbial but when he's older will he be able to? He's so sweet x

  • @user-qd8nx7mu4g
    @user-qd8nx7mu4g8 ай бұрын

    Since griffin always looks happy how do you know when he is happy or sad

  • @TRR36079
    @TRR3607927 күн бұрын

    Can you do a video about griffins communication device?

  • @Juicyet
    @Juicyet10 ай бұрын

    4:12 this is me when I have to brush my teeth not actually

  • @Friedmankara9134
    @Friedmankara91349 ай бұрын

    Does griffin qualify for any of secure studies to see where his seizures come from

  • @supercreeperstar5976
    @supercreeperstar597610 ай бұрын

    Are you going to do one of swayer?

  • @JacobPense

    @JacobPense

    10 ай бұрын

    Yes she said she would on another comment.

  • @supercreeperstar5976

    @supercreeperstar5976

    10 ай бұрын

    Thx for the info

  • @catiehays3361
    @catiehays336110 ай бұрын

    It's important 2 say 2 him No Griffin, we don't throw our things. If you continue I'll have 2 take it away.. Cuz you know, he understands everything..

  • @JacobPense

    @JacobPense

    10 ай бұрын

    I think it really depends on the child

  • @missdonutaltaccount1380
    @missdonutaltaccount13806 ай бұрын

    Can I ask why there is a glass pane in between the two seats in the back, can people with Angelman's Syndrome get aggressive so it's there to protect other passengers?

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    2 ай бұрын

    No it's so he doesn't accidentally grab anyone

  • @user-ll5ib7yg4z
    @user-ll5ib7yg4z10 ай бұрын

    Are you gonna do a day in the life of sawyer cause they are really helpful to see

  • @ItsOurWonderfulLife

    @ItsOurWonderfulLife

    10 ай бұрын

    Yes

  • @this_user_is_nonhumann

    @this_user_is_nonhumann

    9 ай бұрын

    ​@@ItsOurWonderfulLifeyour an amazing parent

  • @MJLover100

    @MJLover100

    Ай бұрын

    What does Pigeon Toed mean?

  • @lgleave9599
    @lgleave959910 ай бұрын

    There is a place it is a amusement park for the special needs kids the rides are made just for special to and they have calming rooms for kids like Sawyer and kids without special needs to too and if you have special needs you can cut the lines for rides and get discounts it is in s an Antoine

  • @irelandkingumu8153
    @irelandkingumu815319 күн бұрын

    I have a epilepsy. I have to go get EG just like you little boy weapon but he is a really nice boy and videos. You look so nice and handsome.

  • @irelandkingumu8153

    @irelandkingumu8153

    19 күн бұрын

    1234567

  • @Bella_Kania_on_Youtube
    @Bella_Kania_on_Youtube2 ай бұрын

    What therapies does Griffin do in ABA therapy Does he receive anything else during ABA other than therapy (such as music gym or nap time) Does he get reading or math

  • @bethbaumgardt5908
    @bethbaumgardt59085 ай бұрын

    I have I have two siblings that have autism as well like Sawyer and their names are Kiersten and Connor😃😃😃😃😃😃😃😃😃😃😃😃😃😃😃😃😃

  • @jjamesgames6573
    @jjamesgames65738 ай бұрын

    Since Griffin has his communication tablet, does that mean he can read?

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    7 ай бұрын

    He can't read his device has pictures and words so he just kinda knows the pictures

  • @jjamesgames6573

    @jjamesgames6573

    7 ай бұрын

    @@Bella_Kania_on_KZread ohh gotcha

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    7 ай бұрын

    @@jjamesgames6573 I bet he also remembers seeing the pictures and remembers where they are on the device

  • @TheoutsidersXHarrypotter
    @TheoutsidersXHarrypotter10 ай бұрын

    Please answer this. I was wondering if griffin ever had. An absent seizure in public? If you don't want to answer this you don't have to I was just wondering

  • @BethanyShafer-fb8sg
    @BethanyShafer-fb8sg10 ай бұрын

    Can you do an episode about your other daughter?

  • @Herbiesgamingchannel.

    @Herbiesgamingchannel.

    10 ай бұрын

    Which one

  • @BethanyShafer-fb8sg

    @BethanyShafer-fb8sg

    10 ай бұрын

    @thegamingrcman Wynn

  • @adysoncunningham8420
    @adysoncunningham842027 күн бұрын

    If you don’t mind me asking, what is Angelman syndrome? I’m very curious and I’m not trying to insult Griffin about having an disorder

  • @johnnelson1471
    @johnnelson1471Ай бұрын

    Is. John. Nelson

  • @richardscourner3196
    @richardscourner319610 ай бұрын

    Why is there a wall in the car?

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    7 ай бұрын

    It's for Griffin

  • @Tracie.....
    @Tracie.....10 ай бұрын

    What wrong with Christmas music? You mean i shouldn't be singing Christmas songs

  • @MichelleNoel-kc6wv
    @MichelleNoel-kc6wv26 күн бұрын

    Hi griffin

  • @Hoffmans.Slowedz.Audioz
    @Hoffmans.Slowedz.Audioz10 ай бұрын

    You should change ur about since they are not all 5 years and under anymore

  • @Malgal
    @Malgal10 ай бұрын

    Does your daughter use the same communication app as Griffin?

  • @Pekkle520
    @Pekkle52010 ай бұрын

    Why do u need a partition in the car?

  • @franceswallace2531

    @franceswallace2531

    10 ай бұрын

    Because Griffin grabs his siblings, doesn’t realize how hard he can hurt them.

  • @albussnape2
    @albussnape210 ай бұрын

    👏👍 ❤ to you all 😊

  • @Prime_JAY-
    @Prime_JAY-10 ай бұрын

    Can you make a short

  • @Prime_JAY-

    @Prime_JAY-

    10 ай бұрын

    👍

  • @user-jm3fg6ll6l
    @user-jm3fg6ll6l10 ай бұрын

    Why does griffin where a Binky

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    7 ай бұрын

    He has developmental delays which causes him to use a pacifier even though he is 7

  • @andrewtaylor9708
    @andrewtaylor970810 ай бұрын

    dose griffin ever cry

  • @JacobPense

    @JacobPense

    10 ай бұрын

    In a video she said that due to angelmen syndrome he looks happy all the time even when he is not.

  • @Nannyfam2024
    @Nannyfam202410 ай бұрын

    When Sawyer day in life coming

  • @JacobPense

    @JacobPense

    10 ай бұрын

    She said on another comment she would do one.

  • @pip163pix
    @pip163pix9 ай бұрын

    Can Griffin talk?

  • @christinecapps1175

    @christinecapps1175

    7 ай бұрын

    No they’ve said before that he is nonverbal

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    7 ай бұрын

    No he uses a communication device.

  • @amysargeant9102

    @amysargeant9102

    Ай бұрын

    Griffin uses a communication device

  • @pip163pix

    @pip163pix

    Ай бұрын

    @@amysargeant9102 oh ok thanks for telling me I was curious

  • @tazeemnasib9371

    @tazeemnasib9371

    Ай бұрын

    No

  • @convictions831
    @convictions83110 ай бұрын

    Cpd

  • @convictions831

    @convictions831

    10 ай бұрын

    CBD oil will help seizures and other things

  • @JacobPense

    @JacobPense

    10 ай бұрын

    He is only 6

  • @JacobPense

    @JacobPense

    10 ай бұрын

    I mean 7 but still he is too you young for CBD oils

  • @allisontruttling4288

    @allisontruttling4288

    10 ай бұрын

    7 and 6 are surprisingly not too young for CBD, but either way, we should not be making treatment suggestions because we are civilians, and not a part of this person’s care team. If you have information you really want to share, maybe try sharing a peer reviewed article.

  • @Avlee123
    @Avlee1237 ай бұрын

    Is soyer in school

  • @user-ti8qb5xy7z
    @user-ti8qb5xy7zАй бұрын

    Im got Autism

  • @user-ti8qb5xy7z

    @user-ti8qb5xy7z

    Ай бұрын

    Autisme

  • @cloudybluesky14
    @cloudybluesky1410 ай бұрын

    Do you have a P.O. Box? I would love to add you to my holiday card list!😊

  • @AgentRains
    @AgentRains10 ай бұрын

    Thos isn't a day in the life because yiu just talk the whole time

  • @JosephFerrare
    @JosephFerrare7 ай бұрын

    Does Angeman’s mean mental retardation? Like is Griffin smart, but just can’t communicate? Or severely intellectually disabled

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    7 ай бұрын

    No not exactly. Angelman Syndrome causes developmental delays intellectual disabilities speech balance and sleep problems but it does cause mental restrictions which is what an intellectual disability is

  • @Itsmehi456
    @Itsmehi4568 ай бұрын

    Why don’t you reply to anyone’s questions here? 🙄

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    2 ай бұрын

    She might not have enough time with 6 kids it must be hard to find time

  • @ingridmileham3281
    @ingridmileham32819 ай бұрын

    Why does griffin have a pacifier I'm not judging I also have a pacifier I'm 11

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    7 ай бұрын

    He has developmental delays which causes him to still use a pacifier even though he is 7

  • @JosephFerrare
    @JosephFerrare7 ай бұрын

    What do you mean can’t react? Kid threw his tablet across the room. Behavioral disorder or not, he needs to learn. I’m sure he can comprehend punishment, he’s not stupid

  • @Bella_Kania_on_Youtube

    @Bella_Kania_on_Youtube

    2 ай бұрын

    If she reacts it might make it worse. He might not understand throwing is not good

  • @AgentRains
    @AgentRains10 ай бұрын

    Mom needs to learn how to brush teeth that did nothing.

  • @kathryncotter4933

    @kathryncotter4933

    10 ай бұрын

    You saw it was difficult he was pulling away