After suffering for 8 years I can't believe iv just come across this on KZread, I'm now going to look for the website.

So great to see this video I'm now chair bound due to CES and so nice to see other who understand

The patients who have suffered with CES have shown themselves to be very Brave. Speaking as someone who has CES.

I have CES not dignose as of yet but my mri shows At L5-S1, i looked it up what it meant and blow on behold this came up, the pain is tremoudus, im not having any help, im a big lady but thats beside the point, ive not being going out im stuck at home, i cannot belive that the drs have not picked this up i can relate to everyone the video i watched with these people im crying

I am also cauda equina syndromes my surgery done at 09/02/2022

@alkalineforlife9033

Жыл бұрын

How about the result

@Amitkumar-tp9mc

Жыл бұрын

@@alkalineforlife9033 mujhe abhi bhi urine incontinence aur bowel problem hai

Thank heavens ive found you please can i be part or help or even talk to any of you. x x x

Is this charity still up and running in the UK ???

I'm 21 and people still don't believe that I'm a CES patient.

@rosesnape6367

6 жыл бұрын

hannaa W I'm only 18 and my doctors think I have it..

@alkalineforlife9033

Жыл бұрын

Me too

@harilalts8995

Жыл бұрын

Me too

Boa noite sou portuguesa ,fui operada ha um ano duas vezes síndrome de cauda equina ,sinto me perdida pois não conheço apoio em Portugal para esta condição será que sabem se ha em Portugal alguma instituição que ajude e Oriente quem sofre desse síndrome?

@prisgobbogobbo3046

2 жыл бұрын

olá. Ana. Também fui operada de emergência com essa síndrome cauda equina e novamente vou reoperar para colocar protese na região lombar. vc teve duas síndromes?