Cauda Equina Syndrome Core Outcome Set (CESCOS) - Dr Nish Srikandarajah, Neurosurgery Registrar
Жүктеу.....
Пікірлер: 11
@michaelstevenson8772 ай бұрын
Glad to hear this talk.emergency surgery nearly five yes ago.I had cauda equine.outcome bladder bowel and all fine.had to learn to walk again rehab worked.but left with drop foot can't move toes numbness slight ankle swelling nerves haven't returned never missed one days exercise. Walk with limp on no tablets.Lucky not in wheelchair
@patsyray45762 жыл бұрын
I have Cauda Equina Hell. Please help.
@elizabethferrari13465 ай бұрын
I have cauda equina syndrome. Spinal stenosis, sciatica, disc degeneration, neuropathy, arthritis, etc.
@neelamr30
16 күн бұрын
How r u now
@elizabethferrari1346
16 күн бұрын
@@neelamr30 I'm getting a hip replacement
@neelamr30
16 күн бұрын
@@elizabethferrari1346 oh
@patjackson1775 Жыл бұрын
I just want to walk comfortably…. Cauda aqua.is frightening as heck.It terrifying me P any more.I don’t care about sex any more 🎉
@elizabethferrari1346
14 күн бұрын
@patjackson1775 I have it too. It all scares the hell out of me. Especially since no one understands
@michellestratford97533 ай бұрын
10 years since onset for me. I have the extreme end as you've described here. You missed listing the extreme neuropathic pain in your intro. I have been bed bound and in agony for 10 years. This is not a life😢. Quality of Life??? There isn't one! I can't sit, stand or walk. I can't work or even go out for a cup of tea with a friend! Yes, I'm one of those who tried to kill herself..do you blame me?
@aurorealis3249
Ай бұрын
I can only imagine the distress you must feel. I can relate to a limited degree. I have been diagnosed with CES and beginning the journey that will have many repercussions. I hope you know you are not alone in this difficult process of life altering health conditions. My prayers and thoughts go out to you. You need support and validation. Please call the US 24 hour National Suicide crisis line at 988 if you are experiencing suicidal feelings.
@elizabethferrari1346
14 күн бұрын
@michellestratford9753 I'm Ellie. I'm 7 years in on a long list of maladies. I know exactly what you are dealing with. I force myself to get up and around. I do physical therapy on my own and do as much as I can each day. Zero quality of life. Overdosed on meds several times. Tried self medicating with alcohol. I long for the lord to take me gently in my sleep. I'll pray for us both. Take care hun.
Пікірлер: 11
Glad to hear this talk.emergency surgery nearly five yes ago.I had cauda equine.outcome bladder bowel and all fine.had to learn to walk again rehab worked.but left with drop foot can't move toes numbness slight ankle swelling nerves haven't returned never missed one days exercise. Walk with limp on no tablets.Lucky not in wheelchair
I have Cauda Equina Hell. Please help.
I have cauda equina syndrome. Spinal stenosis, sciatica, disc degeneration, neuropathy, arthritis, etc.
@neelamr30
16 күн бұрын
How r u now
@elizabethferrari1346
16 күн бұрын
@@neelamr30 I'm getting a hip replacement
@neelamr30
16 күн бұрын
@@elizabethferrari1346 oh
I just want to walk comfortably…. Cauda aqua.is frightening as heck.It terrifying me P any more.I don’t care about sex any more 🎉
@elizabethferrari1346
14 күн бұрын
@patjackson1775 I have it too. It all scares the hell out of me. Especially since no one understands
10 years since onset for me. I have the extreme end as you've described here. You missed listing the extreme neuropathic pain in your intro. I have been bed bound and in agony for 10 years. This is not a life😢. Quality of Life??? There isn't one! I can't sit, stand or walk. I can't work or even go out for a cup of tea with a friend! Yes, I'm one of those who tried to kill herself..do you blame me?
@aurorealis3249
Ай бұрын
I can only imagine the distress you must feel. I can relate to a limited degree. I have been diagnosed with CES and beginning the journey that will have many repercussions. I hope you know you are not alone in this difficult process of life altering health conditions. My prayers and thoughts go out to you. You need support and validation. Please call the US 24 hour National Suicide crisis line at 988 if you are experiencing suicidal feelings.
@elizabethferrari1346
14 күн бұрын
@michellestratford9753 I'm Ellie. I'm 7 years in on a long list of maladies. I know exactly what you are dealing with. I force myself to get up and around. I do physical therapy on my own and do as much as I can each day. Zero quality of life. Overdosed on meds several times. Tried self medicating with alcohol. I long for the lord to take me gently in my sleep. I'll pray for us both. Take care hun.