My wife has been on Remicade for the last 15 years, she started it when she was 18 years old and prior to that had been struggling at getting her Colitis under control for 8 years prior (diagnosed at around 10 years old). Prior to Remicade she had been bedridden on and off during flare ups, received multiple blood transfusions and had times where should couldn’t even walk. I can say with pride she has been pretty much symptom free for the last 12-13 years and all thanks to Remicade! She lives a completely normal life now and eats, drinks what she wants and receives infusions every 8 weeks. I highly recommend to anyone on the fence to try it. I wish you all the best of luck! 🙏🏻

@mrs.nogueira2017

6 ай бұрын

Thank you so much for sharing your wife’s positive experience! 🙏

My 9 year old is about to start infusion's, we don't know what he will be getting yet. He was diagnosed at 7 with UC and just underwent his second scope this past week. The strength I see from the people suffering with IBD is mind blowing. Wish you well and thank you for sharing❤️

Prayers I hope you’re doing better since this video

got my first Infliximab infusion yesterday and had no bad reactions at all, 2 hours on the hospital and got back home felling pretty normal

@battyxdarko

3 ай бұрын

How are you now? I start on Wednesday and I am terrified

@wennlys

3 ай бұрын

@@battyxdarko infliximab didn`t work as intended so i`m switching to vedolizumab. but overall i`m fine. don`t be terrified, most of people get almost no colateral effects. you`ll be fine!

Oh man... I just found your channel. Just watched the scene where you talk about where they have been really hard on your veins. Do you ever wish that you'd gotten a port for your infusions?

Thank you so much for this video, I'm going through this. 19 days in the hospital and had a second infusion. Last night I was in extreme pain in my kneecaps and I'm wondering if it's a side effect?

Been on remicade for a year and a half. Started getting reactions to it during the infusion around the holidays. Full body itching from head to toe and large bumps on my forehead and small ones on my neck and back. They hooked up an antihistamine to the IV and it stopped the itching. Woke up with "burning leg" syndrome for a day which was rather unpleasant. After my last infusion, the bottoms of my feet were constantly spasming for a week and some change. Other leg pains as well from time to time. I'm talking to my GI today to figure out what to do going forward b/c I'm not a fan of this medication and the effect its having on my body. Everyone is different so your experience may differ, etc.

@anthonymarkowitz6824

5 ай бұрын

Holy crap I thought I was the only one, that explains why I get so itchy!

Also just got it yesterday woo! With a hefty steroid load. Love when they do that. I just sit and do schools work/grade the whole time.

I have colitis and have been on remicade for 12 years!

@maudecote1957

2 жыл бұрын

I'm starting remicade in October for behcet disease

@HarpreetKaur-mp5kg

2 жыл бұрын

How long did it take for remission

@inluvwithglitter

2 жыл бұрын

A few treatments but I saw major improvement after one

@jerryxreyna

Жыл бұрын

Did your diet change?? After improvement

Your description of IV Benadryl is hilarious lol …

I've got ulcerative colitis and I'm currently on the infleximab infusions and I must say I'm not seeing much improvement. X

I'm supposed to start Remicade on Friday. They said if I don't want it I don't have to take it but I can offer them another option that may be safer. Any idea on what I should do? I have just been diagnosed with Ulcerative Colitis on March 22 2024. .I was on Ozempic and quit taking it and starting to slowly feel better since I stopped it on March 11th..anything helps thanks

How are you now? Still getting remicade? I first diagnosed after pandemics. Nothing has helped, just started remicade. First 2 doses failed helping. Got my 3rd one, now hoping that this time I will start feeling better. I have had enough rough times with this disease and so tired of it. My life got ruined by this uc, soo tired of flare ups steroids diet and all of it. I hope some kind of magic will happen and I will never ever have this crazy thing in my life again.👎🏻

Have you tried entyvio?

Kudos for blending Audrey Hepburn charade scenes into your video!

After being in remission on 3g of Lialda for 6 years, that medication is no longer working, and I start Remicade in a few days... I’m nervous

@almostaustin

3 жыл бұрын

Hi Amanda - I hope your experience with the Remicade infusion went well and that it works for your UC (:

@amandastein6247

3 жыл бұрын

@@almostaustin thank you ❤️ it went well, no reactions with the first infusion. I go back for the second treatment soon. Hopefully it will put me back in remission. I hope you are doing well.

@abcnit

3 жыл бұрын

@@amandastein6247 it will be ok I was nervous aswell,the health professionals were very nice,

Went on Remicade for arthritis, it gave me lymphoma, now I have a terminal illness. It wasn’t worth it.

Can we be in touch bro ?? Im newly diagnosed with ibd

Im diagnosed about a month ago i just changed my foodstyle i feel good now

@MissJane777

3 жыл бұрын

Wow. Must be nice.

@aletalykes1986

3 жыл бұрын

Be careful with that...it helps a lot but it is not a guarantee. I have had it for almost 30 years and it is autoimmune just as it says. But remember the longer you have it the more you change. Take care.

@sandeepshah105

2 ай бұрын

​@aletalykes1986 Hi, people who have recently been diagnosed, always wounder, how will my life be with it, can I make it, mental health. I am in my late 30s and recently diagnosed, I just wish I can last 30 years without any life threatening complications. What's your 2 cents on that?

Third for me also. Shortness of breath and hot with pulse rate to 110.

Thankyou

I just got diagnosed with crohn last month and I blame taltz and yup iv Benadryl is crazy it fucks me up

My wife has been receiving Remicade Infusion for her Ulcerative Colitis since 2016. I've been wondering if somebody who receives one and has taken the Covid-19 vaccine, Pfizer or Moderna in particualr.

@inluvwithglitter

3 жыл бұрын

Yup! No issues. I got pfizer

@cmetzg03

2 жыл бұрын

@@inluvwithglitter “yet”

@inluvwithglitter

2 жыл бұрын

@@cmetzg03 still goin strong and killing it in my phd program 🕴

@christianh4723

2 жыл бұрын

@@inluvwithglitter He wasn't talking about a few months...

@inluvwithglitter

2 жыл бұрын

@@christianh4723 thats funny. your username is different from the original poster but you somehow can read their mind 👀. Pretty wild powers

I also had a bad reaction and experience with Remicade

Going to start my remicade treatment I hope it goes well

@IzzyandZee

Жыл бұрын

How are you going with remicade. I’ve been told by my gastro team that we should do remicade before surgery. Did you have to get surgery

@Newchiii

10 ай бұрын

@@IzzyandZeemy wife has been on Remicade for just under 15 years now.. after 2 blood transfusions when she was younger, being bed ridden and half the weight she should be I can say very happily she has pretty much 0 symptoms for the last 10 years now! Remicade has given her a normal life finally I wish you all the best!

@bobhanson540

9 күн бұрын

How much is remicade

I had my third infusion and I have a terrible abdominal pain and terrible gas.Anybody had those side effects?I truly suffer

@DRFOODITALIA

5 ай бұрын

Me also .any body can tell why?

First infusion in 2 days 💪💪

DO you have tiktok

@almostaustin

3 жыл бұрын

Haha - No! Should I make one?

OMG that nerve pain sounds AWFUL!

@almostaustin

3 жыл бұрын

Indeed... 0/10 would not recommend.

i went through almost all drugs all failed too. new drug rinvoq failed too. maybe spiritual problem like a bad spirit attachment to you

There are natural solutions for not needing the remicade. Check out the properties of turmeric. It can only help you without prolonging its use. I had my first attack of ulcerative colitis in 2011. Since around 2012-13, I have managed my attacks on my own with a small recipe of turmeric.

@TheFunnyBang

2 жыл бұрын

What recipe

@presidentdutoaster7921

2 жыл бұрын

@@TheFunnyBang In a glass, you put: 1 spoon of turmeric, a spoon of olive oil and a little pf black pepper. I took it on an empty stomach in the morning and before going to bed. The recipe sounds wacky but it has helped me on several occasions.

@auroregallaire9040

2 жыл бұрын

Sometimes you just need the remicade and have no other choice. I tried so many natural solutions...nothing worked and my colitis became very bad.

@presidentdutoaster7921

2 жыл бұрын

@@auroregallaire9040 Sorry but I prefer to find solutions and try them than to be filled by pharmaceuticals. We clog up our system a lot through food, the easiest way is to clean it with the right foods… my point of view

@auroregallaire9040

2 жыл бұрын

You are totally right. If it works, well much better than taking drugs. I just wanted to reassure and relieve the guilt if people who are afraid of taking this drug. If didn t want to take it at all and was afraid. Would have preferred a natural solution.

My doctor told me today about remicade, now I'm scared 😨

@almostaustin

3 жыл бұрын

Don't be! The infusion is not that bad. 😁. Like I said, my first experience was perfectly normal - just make sure you drink enough water. Good luck with whatever treatment option you go with.

@luisangeltorrestorres6493

3 жыл бұрын

@@almostaustin Thanks

@amandastein6247

3 жыл бұрын

What did your dr say that was scary for you?

@luisangeltorrestorres6493

3 жыл бұрын

@@amandastein6247 I was just referring about having a bad experience with it and that it doesn't work for everybody so I was scared.

@luisangeltorrestorres6493

3 жыл бұрын

The first infusion helped me a little for a few days, I'm about to get the second one this week. I didn't have any problems or reactions to the first one. I ate and drank water before going just to be sure.

They want me on it cause humira stop working for hs

@mj25600

2 жыл бұрын

I've been asked to take it for the same reason. Have you started yet and if so how are you?

@bobhanson540

9 күн бұрын

How much does humira cost if on medicare

@changelivesheroes

9 күн бұрын

@@bobhanson540 0 dollars you can get it for 5 if not

Oh yeah bendryl messes you up