As a parent of an autistic child myself, I completely sympathize and understand everything your family goes through. It isn’t easy, I pray everyday for families going through this. Watching this channel has helped me out over the last several years. Thank you for continuing sharing your experiences.

@carmelserle425

Жыл бұрын

Thanks so much for sending me a like on my like

I was Diagnosed with autism at a young age and I had trouble interacting with others, and I had some problems but as I got older I improved myself and in doing good!

I’m the same age as Ian and I suffer with autism as well. I know you probably remind him of this every single day being the supportive parents you are, but please let him know he’s not alone

@PraveenSriram

2 жыл бұрын

I wish when I was Ian’s age there was better treatment for autism back in the mid 1990s

@vanessalang2018

2 жыл бұрын

@@PraveenSriram me too.

@Yeet_Foot

2 жыл бұрын

Ya!

@deannahenry8925

2 жыл бұрын

What age is Ian because I'll 17 now and have high functioning autism. Is Ian 17 to?

@avagreene-taub9710

Жыл бұрын

I believe he is around 13-14 years old

My child is Autistic also, and we opted out of medication because we knew we wanted to take a different approach, and it's been our luck that it works for us. For parents with no other choice, they do what's best for their children. Because it's like being between a wall and a sword. I'm glad that you chose to be transparent even when you didn't owe anybody any explanation, I dont understand why people still have that 'one size fits all' mentality.

@mohaklondhe3020

2 жыл бұрын

Which medications?

@vinaykambli8298

Жыл бұрын

There is no such medicine

@alialmansour541

Жыл бұрын

Buspirone good for autism

@billybandyk0720

3 ай бұрын

​@@alialmansour541Get real, buddy. Psych meds r "chemical pacifiers" (i.e.:designed 2 silence u when getting abused, bullied, & harassed--a.k.a.: TRIGGERS--by others). Can u please tell me how Buspirone addresses & resolves those a4mentioned triggers?

Such a brave family to open up their lives to help educate other families dealing with autism. Much more admiration as they are also very open to hearing out input (constructive and not conspiracy), that takes a lot of character. Kudos to this family. Sending you all much love and prayers!

@Jovviial

2 жыл бұрын

no families "deal with autism". you have an autistic child/sibling/parent. when you objectify autism like that you objectify the person. we ARE autistic, you cannot separate us from it. please mindful of your language and how you refer to autistic people! hope you you have a good day 😊

@rawmilkmike

2 жыл бұрын

I agree 99%. Because we need to be careful what we call a conspiracy. The previous response to your comment is a perfect example. I agree with people like that in so far as we all want to be accepted and you should never talk about an autistic child in front of them. I would never tell my daughter she's autistic. I make sure we have healthy animal-based foods like steak and eggs in the house and try to discourage exposure to plant-based junk foods pancakes and oatmeal. It's amazing how that alone can make such a difference.

I knew immediately those weren’t stims when I saw them, but I thought they were tics because some autistic people also have tic disorders. I’m glad to see you guys jumping on this new term so quickly. You guys are wonderful parents.

@reneawallen7616

2 жыл бұрын

Tourettes Syndrome (Tics, uncontrollable movements) My daughter had it as a child.

@saidohn8126

2 жыл бұрын

@@reneawallen7616 my son is 6 and he developed these tics now , if you don't mind plz does your daughter stopped and when thanks

@reneawallen7616

2 жыл бұрын

@@saidohn8126 She stopped when she stopped medicine @ 19yrs old.Still has ADHD tho. Don't take any meds now just Tylenol only.Hates taking pills at all.She has Hbp and don't take nothing for it. Her daughter born March10,2020 was a Preemie cause pre-eclampsia.Praying baby not Autistic.Tourettes is inherited but medication I think was cause of her issues mostly.she still has night terrors from PTSD.Daughter is 29 now. sometimes they get better with age.

@Infinity-lo1ov

2 жыл бұрын

Lol I have turrets syndrome, ADHD, autism, and OCD and I'm only 11

@Jitmommy33

Жыл бұрын

@@Infinity-lo1ov me too. Plus anxiety depression and PTSD, agoraphobia etc.

As a single parent raising my autistic son alone can and has been sometimes challenging but so much more rewarding for us both. I have never had my son on any medication but I was never able to afford it so we manage without it. I dislike where others try to tell us how to raise our children, especially since every autistic child acts differently with their own personalities and there parents really know them far better, than people just watching there videos do, that's why I don't push my opinions on anyone else. I just love being part of a community that understands what I am going through and that is a great comfort to me in itself. God bless all the parents bringing up there children with special needs you are all amazing in my humble opinion. ❤❤❤

Being an autism parent comes with constant research and yet, it’s never enough. Melatonin has side effects with long term use (insomnia, mood swings, aggression). I thought I had done a good enough job researching side effects and spoke to our pediatrician and neurologist. Both initially recommended even higher doses than I chose to give my son. When he turned into a raging pre-teen that was almost my size, I had no idea until I took a deep dive into his meds and started the research process all over to try an pinpoint a potential source. We are just parents trying our best and you guys are doing a great one. I’m happy to hear the med change is being handled well and continues to be well into the distance future. Thanks for sharing.

So we had to immediately take my son off Abilify after he experienced significant TD like movements. He's 8. I took him to the ER after my aunt(Nurse) saw a video I took of him sitting in my van. She said get him to the ER before he has a heart attack. I never really gave much thought about someone saying "something will make your heart explode", until I saw what the Abilify did to my son's heart rate and blood pressure. We were able to stop the TD movements and switched him to Guanfacine ER which is an extended release. Consider looking into it. He takes Guanfacine for the behaviors and we added Sertraline to help with mood and anxiety. Both are much easier on the child body.

Hey guys, I have commented on most of your videos. I suffer from an anxiety disorder as well as atypical autism. Watching your channel makes me feel more "normal" and I appreciate that very much. You helped me through many tough times and I want to thank you for that. I wish Ian all the best, he is a very nice guy!

You guys are doing the best you can as parents. Were all learning humans... 🦋 Bless Ian's heart.... I wish him the best.

My family has gone through the different meds and unfortunately we end up with the more severe end of side effects making it very difficult to take a chance with continued trial and error. End of the day as parents all we want is to ease the struggle of our loved ones in which ever way we can.

@alliefoss1432

2 жыл бұрын

I myself and I have to go through these struggles so much my son is high functioning the medication I did put them on at one point totally made him a zombie and I took him off of it and we just work with autism we do autism that's what we do but I would like to say that I helped raise my sister's kids second oldest which is exactly the way you're explaining and I'd like it if you read the comment that I left a few moments ago it's kind of long but I've known families that I've brought this up to in person not on online that have completely had to change everything about what they were doing with their medications my sister did exactly what you're doing it's been 22 years now and we just finally figured something out a little bit kind of with the testing for the mph of our chromosome the best of luck to you and yours and just remember when people tell you you're enabling your kid just tell them it's not enabling it's negotiating with the terrorist I say that and I completely non-violent or crappy way that's what I tell people I do I have to double 07 just to get him into any room in a timely manner I'm not enabling I'm negotiating with the terrorists we do autism

@bradyemily6082

2 жыл бұрын

Thank you so much for posting this video. It is so difficult to help my son when he has anxiety. He's only five. You are doing the best you can. You are brave loving parents towards your son.

I believe I have TD as well. A few years ago I was prescribed some brand new antidepressant with a booster when I was not actually depressed, just had a bad period of anxiety. I had random laughing and crying spells at the time which I'm pretty sure were seizures, and I still have jolts in my head/neck, arms and hips with occasional tremors. It can't be confirmed but all I know is that I never experienced these before that medication. Glad you guys are advocating for Ian on this and I hope everyone is doing well.

Its Simple: Your Ian’s parents and you choose what’s best for your kids! Don’t let anyone tell you differently!!!

@JD-zh5nv

2 жыл бұрын

That's a simplistic attitude to a complicated responsibility. It's about what is actually best for a child (not the adult). Just because a parent decided something is appropriate for a child it doesn't mean it is.

@littlejonathorn6860

2 жыл бұрын

@@JD-zh5nv Ok

@beanj580

2 жыл бұрын

But Ian cannot chose for himself, so his parents make the best, most informed decision they can. That's the point

I personally find the short meltdown clips extremely helpful. My first born has autism and I honestly never knew whether he was having a tantrum verse a meltdown when he was younger. I sometimes would discipline meltdowns when I definitely should not have because of not having any other autistic kids to compare to and just not knowing. Your videos have helped me so much in such a short amount of time. Thank you💕

As a child who was in that situation, all people helping always said meds were better for me. They made me a shell of a person. My anxiety was inseparable to who I was; any little thing would trigger my ocd or normalcy causing meltdown. I have tried using all the meds possible that Fda approved, they made me and my anxiety worse daily, as well as made me hate this earth and my life. But on the other hand, PRN meds for anxiety is what works for my meltdowns. I pray for you and your fam during this major developmental time.

Thank you for sharing. There are thousands of families in the same situation and this segment of the population needs all of our support and compassion to better their lives in anyway possible. Praying for your son.👶

What wonderful parents. So calm and genuinely looking to share and help educate others. I've suddenly been plunged into this with my 15 year old who has always shown signs of being different but due to a recent health scare has developed health anxiety and spasms/extreme tics. I'm in tears as its been 3 weeks of dealing with him in a constant panic. I've never been so worried in my life. The whole family is exhausted. Thank you for your videos as I know I'm not the only one and that hopefully one day we get our children comfortable and happy x

I agree with you on this but please do be aware that if a child is on medication for a long time, not only can their bodies get used to it, but going through hormone changes can also have devastating consequences i (now 26) was actually on the same med set Ian was on for most of my childhood, when i got older about 13-14 ish, I was having bad side effects from the meds and we had to switch meds and made sure it wasn't a name brand switch. plus new interactive toys to keep stimulation distraction frequent. it helped me a lot and has helped a lot of the people i know on the spectrum as well, puberty and meds effects everybody differently as well as doses like half a pill to a whole, liquid form vs hard gel pills, environmental, seasonal, surroundings, etc. It just takes time to figure out which is the best way to effectively help redirect negative into positive, as much as us autistics don't like change, its actually a lot more healthy for us to have change. wish you guys all the best on your journey

I’m a single mom of an autistic child. It’s hard but I have chosen to not medicate him. I hope Ian is doing well. You are great parents because you’re doing everything for your kids well-being.

@JZGreengo

Жыл бұрын

Jeez

@winterdream5710

Жыл бұрын

@@JZGreengo "Jeez" what

@serendipitysisters84

11 ай бұрын

Everyone is different 😊 some are so very different 😮 I have been lucky enough to have a number of autistic children in my school at the same time, and my goodness it’s crazy how different each one is! People are already so different as it is, it blows my mind haha

I can't imagine how scary that would be to find out that the meds that were helping so much may have been causing a whole _new_ problem. That must've been terrifying... I'm a student, and I'd just like to thank you for all the resources you've put out here with your experiences. The footage is fascinating and very educational

Hi family! Thanks for the video! I don't jude about what is good or bad for Ian. You are the parent and you know what the best is for him. Autism is an every day struggle. I know that, because I have autism. I hope that the children, you and your wife are very well. And thanks for what you do. Making the video's and everything to educate about autism. I look forward to the next video. A big hug from the Netherlands! 🇳🇱😃❤🇺🇲

Special needs teacher here- I have been watching your families videos for 3 + years and want to give you an applause for the work you both do when your children. A lot of my students have been getting off the same med bc years on it have led to involuntary twitched and even causing stuttering when speaking (this is very common) also as you mentioned the growth of breasts is another effect. Abilify seems to have less harsh effects so I hope it works out for you guys!

@rewatchme7365

2 жыл бұрын

I just read this and my eyes had tears now.. I had 4 years old son same situation... Thanks for appreciation its give us more hope

Much respect to you and your wife! I admire your resolve not to quit, but continually try to make the best life possible for your children. Please know that your videos are a huge help to others. One thing we have had to learn through our own experiences with autism.... We did the best at the time with the knowledge we had! It took a therapist to tell me that to get over the guilt!

I pray that Ian feels better soon 🙏🥰 You guys are amazing and thank you for sharing this. May God bless you family with happiness and prosperity 🙏💕

You guys are so amazing to share so much information as you go along and are learning. I’m so proud of my big bro and his beautiful fam! I love you guys! Biggest hugs to Ian for all that he is going through. ❤️

My son was taking that medication as well. I noticed him having tics and tourettes. He started meds at about age 6 then weaned him off by age 10. The side effects stopped after a month. His behavior worsen before it got better. But I worked with him all day to help him live without meds. He never had to take meds for ADHD/Bipolar after that. He is a grown adult now. I worked hard to teach him how to handle his temper, meltdowns and tantrums. He is a grown independent father now. He is living a normal productive life. He went to school and now works. Doctors are too quick to put our kids on meds instead of trying other methods. Each case is different but I believe many kids are put on meds when they shouldn't be. Risperdal, lithium, and other meds to treat ADHD,Bipolar, Autism.. can cause serious side effects.

I have a 8 year old girl with autism and nonverbal and I totally understand you you guys are a great parents god bless you all

Hi from Turkey. Mother of 4,5 years old autistic boy. We started abilify today. I was questioning the use of meds for a year, with so many doubts and sadnesses. I am well informed that this isn’t a cure for autism but that it helps the self-regulation and that way, accelerate the learning process. I forced my son, myself and our therapists to do all with education but at some point, I felt blocked with the increasing aggressivity of my son, with also his increasing physical strength. I am not dreaming of miracles with medication and I feel still sad and I am still questioning the destiny. But… watching your video reminded me that I am not alone. Thank you, thank you very much.

@AutismFamilyChannel

10 ай бұрын

You are very welcome

You guys are amazing parents to Ian I’ve watched him growing up on this channel as I have friends who are autistic who I have been able to help thanks to your channel

As the autistic child, I wish I could support endeavors involving medication, but all of my research is showing me that medicating autism ALWAYS causes lasting harm. Technically I was medicated for ADHD(Straterra - a move which I am finding out actually worsens autism) because I was not diagnosed with autism at the time, but Straterra's method of action is in the stimulation of Norepinephrine - a move which on its own will increase stress levels. Some medications may be more effective than this, but I would instead recommend that lifestyle changes be used - notably, efforts be taken so that meltdowns occur in a more controlled way, and also that he be taught how to recognize when meltdowns are about to occur and how to alert those around them that what they are doing isn't ok as well as working to develop the prefrontal cortex which can assist with emotional regulation. Teaching him how to code is a good way to do this - I for example solved my emotional regulation problems by literally programming an operating system for my own mind!

@Servant_of_Yeshua96

2 жыл бұрын

Man my mom wondered if I had aspergers once because of other issues aside ADHD, we never got confirmation, but oh well. I was on vyvanse and it was the best for me. Also emotional dysregulation is horrible.

THANK YOU SO MUCH my brother is autistic and also takes carbamazepine and risperidone. In Canada Ottawa the only doctor has a 1 out of 5 rating that treats “autistic adults” neurologically and I’m not so smart with this since he’s my brother. But I can’t take seeing him change and it’s been years and my mom isn’t giving him the meds & I know she’s helpless (I live in a different city - Toronto) but after seeing your video and you sharing this: it gave me strength to know I shouldn’t make my mom feel helpless because my brother will never be. Not when there’s information out there, a sister like me, and amazing community and people like you. That took time to share and post this. For someone that might be curious or on the same road of research. THANK You I might be all over the place with this message but it’s cause u opened that door that I needed the extra push to not lay back and hear but to reach out and speak !!!! Thank you going to find him an MRI doctor and pay out of pocket to start but also get him a doctors app. With his physician asap because similarities in attitude, and even behaviour is so a like in a negative way it’s defiantly the medication (which I know) but just signified it!!! Thank you and hope your family is blessed and healthy!

Absolutely love you guys, as parents all we try to do is help our children to be their best self, to have a happy and healthy life. Clearly sometimes children have to be medicated there is no choice as they are not happy and can't live a good life, i hope you manage to fine the mix that works for Ian. My asd boy is 12 and currently not medicated at school he normally keeps it together quite well but sometimes he's a bit out of control at home, medication is always in the back of my mind but for now we are doing ok mostly, sending love to you all from the uk❤

I hope that the new medication works for Ian. I can relate to having a adverse reaction to a medication, mine was to an antidepressant. Hang in there Ian you’re doing just fine, and we’re all proud of the young man you’ve become.

I am an adult on the spectrum and very much appreciate your channel. For over 20 years I've gone through the medication issue...For me I've had to weigh the following: Effectiveness vs. Side Effects vs. Organ toxicity vs. Compliance vs. Desire to 'not need help' and on and on and on. Right now I am in a semi-Non compliance phase. However, of all the best for me regarding outbursts, anger and extreme irritability was Trileptal. Like you say about Ian, it was night and day for me. Only when I stopped taking it did I realize it was, or seemed to, buffer my sound sensitivities which are a huge source of anger and irritability. I could say a lot more about all of this. But will just say Thank you again for your work here on the channel.

I am Autistic(55y) as is my son(17y). Proper diet, exercise, good sleep, Neurofeedback, volunteering and treating MTHFR. The only meds either of us are on are Keppra. We both have seizures. No need for any antipysch, adhd or anxiety drugs. We have seen numerous P.doc, Neurologists and family physians at CHOP and Hershey Med here in PA.

@justsomerandominternetuser6379

2 жыл бұрын

I’m also autistic (24) and I take Keppra for my seizures too. I also use CBD for my anxiety, CPTSD and Lupus and Fibromyalgia pain. It is helping so far but it is expensive. Plus finding a good CBD brand is challenging. If you have questions, you can ask me but I’m not a doctor. I don’t want to take anything other than the Keppra because I hate taking medicine. (Sensory issues around taking medications) anyways, I haven’t heard of Neurofeedback but I’m intrigued to know what it is/does. Also enlighten me on MTHFR, please! Have a wonderful day!

@nialldeclan6275

2 жыл бұрын

neurofeedback a friend of mine as well as my step brother have had it, they both said it's helped them a lot

@rick3747

2 жыл бұрын

@@justsomerandominternetuser6379 MTHFR is a gene issue that 70% of the people on the planet have. Some feel it affects Autistics more than NTs. Proper b, Folate(not Folic Acid) can help as can eating a good diet esp beans, lentils. Left untreated it may contribute to excess anxiety, depression, adhd, heart disease....... Neurofeedback was invented by NASA to prevent seizures and sickness in space. It works for most ppl but the skill of the technician is most imp. Many T.Doc offer this as do some Neurologists. Shop around! Mine was cheap $30.00 session. Some others here in Lehigh Valley PA charge $130.00 per session!

I am an avid comment reader because sometimes I pick up 1 thing...1 tiny thing that helps me with things im dealing with my kiddos. I never made the connection our daughter is on this med and she's having more severe of the common side effects you mentioned. In all the looking into i did before letting her take the med I never saw td. Never. I didn't want to play the medication game with her but we had to. We would love as parents to not have to have our daughter take them but with her issues its just not possible. I feel for everyone dealing with this. Its not easy but we can all help each other! 💙💙💙

@billybandyk0720

3 ай бұрын

Ginabina76; U did NOT have 2 have ur daughter on psych meds. U blindly trusted the mental health system & the so-called "chemical imbalance" philosophy. Had u taken the time & done research RE: psych meds (especially in "treating" autism), u'd have a better idea of how toxic psych meds really r. It's also called "informed consent".

02/10/24. I just recently found your channel and I am so thankful. Every single video you post I need to see including the meltdown videos. In fact the meltdown videos have helped me more than anything because I can see so many similarities with my son that it is helpful to see how you deal with it as well know that my child isn’t the only one that acts like that. I don’t know why people have complained about you posting meltdown videos because they are very helpful. My son takes Risperidone all throughout the day and just started Tenex. I super appreciate you referencing medication’s your children take, side effects you’ve noticed and other medication‘s iCan mentioned to his psychiatrist. Again I appreciate every single video you post. Have an amazing day and please keep posting. 🙏😘

I hope ian is doing OK

Your videos are super helpfull and valuable to me as a mother of a boy with autism, thank you for posting them and sharing your experiences!

You are great parents with great boys you’re awesome 🤩

@NickyJohnK219

2 жыл бұрын

@Dr Yuching Lee ok

As a parent with a nonverbal autistic daughter your video hit home. We have recently put her on Risperidone and are noticing a huge change in mood, she does this strange side clenching with her teeth now, she’s can’t get comfortable and when she gets up she stumbles/sides steps and is looking down and off to the side, any of this make a sense. It took us a good 2 years before we decided to put her on any medication for her agitation and anxiety mainly because she is nonverbal and can’t really tell us exactly what is wrong. I messaged her specialist today and will be waiting to hear back from them. All I know is I want her off the meds, see how it goes and maybe try another one if need be necessary. I’m so glad I came across your video and am now following you. It’s a relief to know there are other people out there that get it and can sympathize in certain ways with what you’re going through. Having a child on the spectrum isn’t easy nor is it a black or white living experience. Autism is such a huge grey thing that keeps you on your toes every single day. Thank you again for your post.

I’ll pray for Ian so he’ll get better.

Been a follower of your videos for a few years now, also with three special boys on the spectrum :) Tricky thing with our situation that “trial and error” things like diet and meds will always be a one way thing… always moving forward. We can’t turn back time and have a do-over, or “back to square 1”. Majority of the time it will take months, even years, before seeing any changes and we always pray that they are for the better. You guys are doing an awesome job, your patience is #goals 🙌😁 Also, have you guys considered looking into neurofeedback? We did the recommended number of sessions for our two boys (alongside their therapies) and it helped a lot! We didn’t mention it to their speech therapist and she commented on the marked difference without knowing they had started NF. There’s plenty of videos on YT about it to start you off if you want to know more about it. Lots of love and prayers from us, from the Philippines 🙏

It's not only antipsychotics, I take Sertaline and I also have those side effects. I am autistic and have OCD and it's kind of bothering to have those tics but I definitely prefer that to having to deal with depression, anxiety and intrusive thoughts without meds. I hope Ian gets better results with that medication.

@menotyou6932

2 жыл бұрын

I take Sertraline and Resperidone. I've apparently had TD off and on for decades. Other antidepressants have caused the same ticks. Thanks for posting this; you saved ne some research.

@amberallen4181

Жыл бұрын

My son is autistic, ADHD, and possibly OCD. We are thinking of try Abilify but we're scared of TD.

I am relieved that your comments are turned back on to be able to read a genuine concern! Hoping Ian finds the right medication for his current symptoms. I know finding one without major side effects can be difficult. Thank you for this video and informing your viewers on TD.

🎉We appreciate your family for being so transparent & brave enough to make these videos. 🫂

Just want to say I'm finding these videos helpful related to the possiblity of working closely with a high-functiong austistic college age student for my job. They give me some ideas of what to expect in terms of quirks, how to explain things, how to set boundaries, how to redirect to a task, ect.

@justsomerandominternetuser6379

2 жыл бұрын

My input (Autistic, 24 year old female here) is: -Set a routine (we love our routines, it reduces anxiety) -Make rules clear -Give him/her a few breaks -Refrain from using idioms, sarcasm, etc until after you get to know your student on the Spectrum. -We tend to take things literally, so that’s why I say that in the last ‘bullet.’ (I’m guilty and have a hilarious story about that if you want to know) -You might notice repetitive motions or speech (hand flapping, rocking, biting/chewing, etc.) don’t stop them from doing these behaviors unless it’s hurting them or others. Those behaviors help us calm down and cope with sensory overload. -Sensory sensitivity (light/brightness, noise, touch, smells, etc can be too much. Everyone is different. Ask your ASD student what sensory input bothers them. Sensory overload happens when there is too much of one or more senses becoming overwhelming. -There may be one or two areas of interests (trains, cars, science, math, TV shows, etc) that they know pretty much everything about, and would be ecstatic to tell you everything about it. These are referred to as ‘autistic special interests’. (My special interests are medical science and music.) -Some to most of us ASD people don’t understand social cues like facial expressions and body language. Some of us don’t understand our own feelings too. (Guilty of both) I have more, but I don’t want to overload you haha. Please reach out to me if you have questions. I’m not a doctor or therapist, but I have autism and I’d be happy to help. Have a fantastic day, friend!

I love your family, I understand the trials and tribulations you as parents go through having children with autism. God bless you all. ❤️❤️❤️❤️❤️

We have a a high functioning autistic son who is 9 and is on multiple medications. It is so frustrating when it doesn't react to him well and causes more aggression. We are really struggling right now :( we so badly want the same to not have him on medications but we would constantly live in fear of what he could do or would do to himself and others. My son also takes a quick release risperadone when needed but is on Invega for his aggression and his dose was just increased today. We are praying it helps. Thank you so much for your videos they are so helpful!!! You guys are doing incredible!! Also we are going to try a brain balance assessment at a Brain Balance Center to see what they say about our son because we are out of options.

@AutismFamilyChannel

2 жыл бұрын

We will pray for you. All the best.

@andrewditch1658

2 жыл бұрын

A lot of medications had effected me and my communication problems and involuntary movements and many side effects. Rersparadal gave me bad side effects. Most of antipsychotics had overestimated me. Abilify had caused me body Jenkins, problems communication, problems responding to me and my environment. Abilify helped me with my anxiety, behaviors and actually it had the only medications that had helped my sensory problems that no other medications ever helped my sensory problems.

@andrewditch1658

2 жыл бұрын

Can you try Numanda it really helps me. I take benadryl, help me. I really want to help you. Ean is so much like me. I feel so awful that your son goes through the same things I go through. I want you to know, I am doing good and getting services to help me. I don't want you upset about what I am going through. I have my parents help. I didn't know I had dads help but my communication problems I learned differently. I also agree with ean, life is difficult for us, we feel bad about upset others and after we calm down to realize that we did something bad. Ben there done that. Its just not fair for us to meltdown. My communication problems effects my behavior, namanda helps me with this. My doctors are looking into an anxiety medication for me too. Unlike ean, I have tourrets disorder too. My anxiety effects my tourrets. My autism effects my anxiety and depression. My being in diapers and self care and not having anyone listening to me and my needs effects my depression. I have a lot of support and dad is helping the professionals who want to help me. They have a lawyer who is working on getting me opwdd services again. I had dd services as a child, I also learned recently that opwdd hads records from 1992, 1994, 1997, 1999 on me and because I had providers who sent me to mental health system after getting dd system services i lost my dd services. New York state actually hid that information from my workers when trying to fight to get me services. Now a lawyer is involved i may be getting services again.

@alliefoss1432

2 жыл бұрын

I know all too well of the lifestyle that you're writing about with your son my sister and I have been doing it with her second oldest for 22 years now it's like having a 6-ft 3 two year old tantrums and all split second attitude whole day shot broke out a car window last summer with a shovel because they sent a different worker to his group home the best advice I can give you what you probably might already know is routine inconsistency I find that is so important with these kids so important my son has issues with transitioning from one thing to the next even if he loves both things all he hears you say is we're done doing the one thing that he's doing that at that moment total meltdown it's tiring scheduling picture schedulings visual scheduling knowing what you're going to be doing from one minute to the next ahead of time it just makes so much difference sometimes. The other advice I'm going to give you is too read my comment that I made a few minutes ago about the MTHFR chromosome that's a big contributor to a lot of kids that are like that it causes more aggression things like that look into it not everybody has it but it's quite interesting and it could possibly be exactly what he has going on that's what happened with my nephew and you just recently got tested for it cuz it's pretty new out there well kind of basically some medications more than others and especially multiple ones at once are making them ticking time bombs because their bodies can't process it toxins the way ours can

@autismmomjoy4214

2 жыл бұрын

I'm trying Bacopa naturally right now HOPEFUL

Yeah. My son with autism was prescribed 8 different meds. One day at a restaurant when my son took one new pill...I witnessed clear cut immediate dyskinesia! I ordered our food wrapped up and went straight to the ER. Some time later my son asked me if he could go off his 8 meds. He said he "felt like a zombie." I weaned him off gradually. Now he only smokes medical cannabis (California). Some kids with extreme behaviors need meds. It takes a good shrink to work with finding the right med, or combo of meds. It is an art. I think most docs are essentially still clueless about autism, and just throw whatever med they have at the diagnosis. Basically they are all psych meds. I will never risk tardive dyskinesia again...watching that happening to my son was it for me. He is fine self regulating with cannabis most of the time. A therapy animal, also a tremendous help

don't blame yourself for maybe choosing the "wrong" medication for ian. every single one of these drugs has sideeffects and sometimes it's better to have those than going through life without the good effects of the drug. also diffenrent people react differently to things. it's always a process of finding out what is the best option for each individual. i never took abilify myself but i knew a few people a couple years ago who took it at that time or have taken it at some point in their life. one thing they all had in common regarding side effects was that they were extremely restless while taking it. some ran around a lot, went on long walks in the middle of the night, when sitting tapping their feet non stop, standing up abruptly because they couldn't sit still and so on. i'm not saying this is not worth trying abilify but the restlessmess seems to be a very common side effect which can probably be very stressful over a longer period of time so it might be worth watching out for this. i wish you the best of luck in finding the right medication for your son and hope he feels better soon and can experience life with less stress and anxiety!

thank you so much for posting this video. i know how hard this is and you are the best parents for him actually. its unavoidable side effect of medication which means its never your fault. your main goal was and still keeping your lovely son calm. and by the way there are some medications that manage these symptoms called "anticholinergic agents" you can discuss this with your doctor.

I'm autistic along with several other diagnoses related to my autsim. I have been fortunate enough to find the med combo that works for me and the side effects are mild enough that I would rather be on them than off them.

Just wanted to say...the fact that you guys took the comment into consideration rather than responding defensively....says a lot about you both as people and parents. 👍 I pray the road to finding a successful alternative is a pretty smooth and timely transition for both y'all and Ian. Remember to give YOURSELVES some mercy by not feeling too guilty....all parents can do is try....and it's obvious you both try your very best! 🥰 Our "children" are all grown up (30's)😉...I remember what it was like ....giving myself a hard time.... for not ALWAYS KNOWING EVERYTHING. 😏😇

God bless your family and Ian! I'm just starting my son today on Latuda for his recent agressive outbursts! He is just started high school and had a very bad outburst in a class so I knew it was time to start a medication so he could feel better! I pray he gets the relief he needs from his anxiety!

Keep up the good work and spirit. Best of luck to you!

My daughter is seventeen and been on Abilify for three years, so far she is ok. She does struggle weight wise, but when she can eat right, she does okay at maintaining a healthy weight. One thing to ask your doctor that I had done for my daughter is genesite test, basically it tests your genetics against all mental health medications including ADHD, antipsychotics, depression medications and it helps understand the absorption and whether it's a compatible drug. It's really helpful and insurance pays, you can ask your son's doctor about submitting one.

I'm 19 and I've have ASD, ADHD and other disorders. I've been on medications since I was 11 (the UK mental health services are really bad and it takes years to get any form of support). I used to take anti-psychotic medication along with some other ones, I was then given ritalin which turned out to work a lot better, especially since weight gain was a side effect of the anti-psychotic. I think you're an amazing KZread channel and family and I wish you all the best.

@AutismTwinsUs

2 жыл бұрын

We’re in England , and my twins both on the spectrum, it’s a very difficult situation and as you say the mental health service in the uk isn’t the best, can I ask do you personally feel medication is useful for you ! Regards Adam

@doctordavidchan1044

2 жыл бұрын

@@AutismTwinsUs the medication has helped a lot more since it was changed from an anti-psychotic to ritalin, in addition to sertraline and other medications.

Y'all are in my prayers.❤️Medications are hard to *understand* completely, meaning that they can get the job done BUT sometimes it's only for short while and choosing what is the best way of living for your child can be challenging. Personal Thought (along with the web)- When I was a teenager I was given 2 types of ADD medications (due to building an immunity towards them). . . I now live with an enlarged heart and messed up thyroid but those decisions were made up by my, late, father & step-mother just so I could be and honor student like my siblings(rotten idea, I know). Along with doing tons of research . .I can not take any medications for my thyroid because all it does is give me heart trouble. I now live on a strict food matter diet, take vitamins, and do my best to avoid foods that can trigger something horrible(long story short). As a parent of an ASD child. . .We have to make the choice on keeping the medication for epilepsy . .it sucks because we know about the side effects but at the same time how do you keep a small child from going into seizures. . of all types? I understand what you are going through but at the same I do not. 💝

I am thankful for your family, the information you disperse, and showing how you are navigating the A-life. God bless your family in Jesus' Name!

Hugs to you all I have 2 kids now late teens and we went through the medication roller coaster when you find the right Dr ..peditrician that work together and form a care team and not doubt each other and have the back n forth that can happen you win all the best to you all stay strong and keep advocating for ian he is a champ

I appreciate your videos so much. My (just turned) 6 yo was diagnosed as epileptic at 6 months, severe ADHD at 4 years, dyspraxia at 5, and just within the past two weeks, he received a level 1 ASD diagnosis (which we KNEW was coming). While i am so thankful that NOW we will have better access to resources to help him adjust to life…it’s overwhelming. What would you recommend as a “first step” to parents of newly diagnosed kiddos? Ours is having such a hard time at school, and we are at a loss. We have no idea how to help him regulate his nervous system, emotions, anxiety, etc. and we do t really know where to go to ask for help. Any advice is welcomed. Thank you for these videos, truly.

Totally relatable here. My daughter is asd. We stayed away from pharmaceuticals thou and chose a more natural route and lots of therapy. it's a long tough road but it's get better. hope you guys find a treatment that works for him. Thank you for your upload!

I have a 26 year old adorable Son with Autism, he takes 2.5 milligrams of Risperdal at night. He has take this for years. The doctor checks his liver every year and that is it. This medicine has made a difference in our lives. Can you tell me how many milligrams you would give your dearest Son. Thank you so much for charing.

Just wanted to reach out and say it’s ok mate. It’s ok to have doubts about what is right and what is wrong when it comes to meds. We had the same thought process and ultimately the same outcome last year. Blair has gained huge weight since starting resperidone around 7 years ago. It’s a common side affect. Before lockdown he started supported living but due for poor staffing we brought him home again. The next 18 months were great. He was a joy to be around. We did loads of trips on (vids on this channel) and we looked forward to the future. Then I read about weight gain issues and the meds. So we very slowly weened him off them. First couple of months were ok. This was during lockdown. He’s has several massive meltdowns during lockdown. Routines smashed, shops closed, day centre closed etc. I figured maybe the meds made no difference. Month three of meds the violent attacks ramped up. He looked very unhappy almost all the time. We had to have e police assistance three times. He’s a big lad. He’s back on meds and much happier. He’s still his happy self but they don’t make him weird or zombie like that some have suggested to me. Just a happy boy. Sure we still have the odd outburst but it’s a few seconds of temper because it’s time to finish something or the shop was closed etc. Anyway, just wanted to share as a long time viewer, first time commenting as we’d gone through this too. Take care, love to the family.

I've never heard of TD. But ive had a tick off and on for decades due to antidepressants. It hasnt stopped with the addition of Risperidone. Thanks for posting. -Tiffany

Pray for you and your family 💜 ❤

Having followed you for some time, I am comfortable in saying you most definitely did not make a mistake. One can only act on the information they have access to. As long as effort is put forth to make your best call, it is not a "mistake". A mistake would be either not doing due diligent research or acting on only internet/social media "opinions." As you appropriately stated, every person is unique. Not everyone responds to medications the same way or experiences the same (or all) side effects. (Just as every Autistic person is unique.) If there is a failure, it would be both the pharmaceutical company and the prescribing physicians for not informing patience of new previously seen effects when or as these new findings surface. This would include the tendency to only mention the higher frequency issues and withhold lesser ones. Yes, there will always be potentials for side effects. As a parent, you are fulfilling your obligation by weighing the benefits against other potentials. As Ian gets older, I am sure he will be contributing to those decisions.

Hi. I am profoundly autistic but have finally thrived pretty well. A doctor prescribed me haldol when I was in a serious shutdown/meltdown in a major life transition in my early 20's. I had very severe tardive dyskinesia within maybe 24 hours. I figured it was the medicine and symptoms stopped right away when I quit taking. I was thrown around like demon posssessed. Worst day of my life. So frightening and devastating that I could not pull out of the shutdown for quite a while because of the severe trauma that caused. I would say severe PTSD from that trauma. I am 71 now and still refuse to take any pharmaceuticals at all. I do understand the need for something for uncontrolled disruptive and destructive behavior in school and elsewhere. Some can tolerate the anti-psychotics and show some improvements. I just cannot. I know you do best you can and boys are well taken care of. I see you watch any meds you try very closely and will change course if it looks negative with a particular drug. God bless you. It's tough. You and wife show a lot of love and caring.

I work in a group home for men with autism Days are rough lack of communication skills makes it difficult to understand needs and wants when you get in the meltdown period things feel lost or just overwhelming but patience is key and that continued attempts at communication to figured out what can help It's extremely exhausting just to be a full time worker there and I couldn't imagine not getting atleast 10 hrs of silence in my house after work bc of how loud it is

Nicely said! Our 16 yr old son truly struggles without medication (0.5 mg risperidone & 5 mg abilify) we never wanted him to be on risperidone but it absolutely works for him even at a tiny dose. Unfortunately, he did gain some weight and has "man boobs" but it's a worthwhile trade off so he's happy and calm vs in a constant rage destroying classrooms. You have to do what works for your child.

I know that with any medication for these disorders and conditions, that it does make you seem like Jekyll and Hyde. My mom used to say to me when I was off my ADHD medication as a teenager that I was a different person. I have it managed more as an adult but as a teenager I was very difficult for myself and others. Sometimes when I stopped it, it was an immediate difference, but after awhile I would revert back to being inattentive, quick to anger, speech all over the place, and forgetting and starting arguments and just seeming to be a jerk if I wasn’t being happy go lucky. I miss that happy part. Anyway, I think at times if you stop after having it for so long, the symptoms that were essentially bandaged if you will, all come back to the surface at once. That’s I think why Ian got in trouble so quick. The storm happened fast because it was building already, but the meds managed it. I know with my nephew who has mild aspergers and ADHD, this happens with him. Even on meds he’s a little temperamental, but if he doesn’t have any meds and you know how to be gentle with him, he does great. I try to show my sister how to handle the difficult moments with him. Even for me being with him it’s not always easy, but with him you have to have patience and be understanding as best you can. If you can’t stay calm even a little I feel you need to get help for yourself as well, so you can both be at peace. I’m speaking of my sister and her son of course. You guys do wonderful with your kids. And I know I don’t have autism but my moderate to severe ADHD, especially when I was a teen, gives me some understanding. Even now as an adult it’s hard to understand why I react the way I do, or can’t finish school work in time or have motivation or even just be still and calm. I do pray that those who attempt to call you or your kids out or my sister’s kid or anyone’s kid, at least do research before speaking like they understand. I have my perspective and experience on how ADHD made things hard for me and now because of my nephew, I understand how I could’ve been making it hard for my parents. Although my father has never tried to understand and just thinks I have an attention problem. Again people need to research. Still if it was hard for me to manage my symptoms off meds suddenly , I know it’s hard for Ian and my nephew. I wonder if I’ll have to experience this with my kid, but no matter what, I will love him with all my heart. God bless you guys. Virtual hugs for you all.

I just want to say…You and your wife are amazing parents, I have so much respect for both of you…And your son’s are lovely 😊 Stay strong 💪 and positive 🇲🇦

Good information. Appreciated.

You and your wife are great parents！You do the rights to your kids!Add oil!(meaning is endeavour)!God bless all of you💪🏻

Thanks for the video. I have two on the spectrum. Both boys exhibit physical aggression, and self injurious behaviors. One son is on Abilify (we keep upping the dose), and the second son is on Risperidone. We still haven’t found that one medication that we felt gave us the most reduction in physical aggression. I’m not expecting anything to take it all away completely. Hopefully one day. One of my sons has PDA autism. Trying to figure out how best to approach him has been a huge learning experience.

My son is 15 autistic, non verbal. This past summer we saw a change in his behavior and talking to his neurologist, she mentioned guafasin, risperidon, but we opted for Medical cannabis. We are thankful that in Texas, it has been approved for autism. We knew that traditional meds would probably have a more negative effect than the medical cannabis. I hope your son is doing better.

@vanessaperalta5340

Жыл бұрын

Good evening Nora H I have a question What kind of medical cannabis can they prescribe for kids with autism?

@juniormako6184

Жыл бұрын

Your herbs has work wonders in my family. Thanks for the help Dr Oyalo for saving my son from autism spectrum with your herbs. Your herbs is the best

How is Ian doing? I hope he is doing well! Sending best wishes to your family 🙏🏼

I dont have kids with autisme nor have any kids at all I Just think you guys do a great jib tk educate People alot and I have huge respect for the way you deal with it. Thank you

Hi as the mother of a 29 year old autistic man , I to had to learn as we went along. ABA worked until puberty then we had to put him on medications. Each person is different so each medication is. We went through 3 different meds until we ended up with Zoloft . This medication comes with terrible stomach pain for the first month but now after 10 years it’s still working to reduce his severe anxiety . Good luck and my thoughts are with you daily.

You DONT need to apologize to ANYONE..my god...all you do for those boys...I admire and respect both of you!

Hi I am new to your channel- I am catching up on your vids! Great Topic to discuss, that us parents of autistic children think about . I just posted a vid on my youngest when he was a toddler, showing no symptoms. Love your channel, great calm voice, keep sharing !

Hi Autism family. I greatly appreciate your videos. Thank you for sharing your stories so that it may better help autistic families like mine. I am curious to know if you have ever used DMG?

You are wonderful parents and definitely not to blame for these side effects. Like you said you don’t know what you don’t know. The meds are doctor recommended. God bless you always.

we are starting with risperidone in my boi (7 years) , two months, entrance dosification.. and meltdowns got better.. but sometimes I see him with some "stims" I am almost sure never saw before.. as some sequences of repetitive short head movements.. But as you said if we just take them off, he will be having 5? crisis a day? (he is still discovering that) I'll be on the watch 👍

@joycerivera8133

2 жыл бұрын

Yes .. I go though the same thing with my daughter...I'm glad I read this message.

As a parent of children with health problems I know how hard it is to make the decision to medicate or not medicate your children. We can only make the best decisions with the information we have and that’s exactly what you did for Ian. God bless your family.

I, an autistic woman who btw used to take risperidal/risperidone, will keep y’all in my mind and prayers

Well said. You have very sweet boys.

What a beautiful parents .god bless you all❤

Hi I have a couple question for you guys my first question is why do kid with autism run away for school and or home is it because they are curious about stuff and one more question how can you explain or tell your parents you think you have autism and one more why when Ian was young or with all of you kids have you ever considered getting and autism service dog and I just want to say I love you guys KZread channel and your family and I hope things get better with your family love you guys.

@AutismFamilyChannel

2 жыл бұрын

They run away oftentimes because they get overwhelmed. We thought of a service dog, but we are doing our best to put food on the table for our kids without worrying about food in a doggie bowl. We love dogs though ;)

Thank you for this video. Although I’m seeing this a year later this video was very encouraging. I’m a parent new to this and was starting to feel guilty for agreeing to use this medication.

Risperidone in the beginning for our 15 year old Autistic son worked surprisingly well- we put him on it to reduce his aggressive behavior, which became a problem at his school and at home. For the first couple months it really did a good job, he was less anxious, less irritable, and not aggressive at all. That was then, NOW he's developed a strange swallowing problem, where he barely wants to drink or eat anything, almost like he doesn't have feeling in his throat. His doctor has advised us to take him off immediately, this was yesterday and were waiting to see what happens when the drug clears his system. Has anybody else seen this from Risperidone? Thank you for your channel, it's good that we're all in it together- God bless

Thank you for sharing 💙

Hello, thank you for all your videos. I wanted to say I am a nurse and that side effects of not tapering someone off antipsychotic medication can cause mood imbalance. In which for Ian caused aggression. Always taper off a medication completely. Take a waiting period after the tapering for starting a new medication. This process can take anywhere from 3-6 months or longer depending on strength of medication and length of time the person was taking the medication. Again thanks I love your videos. They help me alot with my 17yr and 4yr autistic sons.

As I commented in another video,I have aspburgers among other mental stuff and I'm on anti psychotics,like depakote,Seroquel,hydroxide,lithium, melatonin for sleep.etc And my wife is on some anti depressants,and was on ability,I was on abilify but it was too expensive and it made my mind feel like it was sinking into sluggish mud.and me and my wife have aspburgers. Yet my dad who is type 2 bipolar (I'm type 1). He said abilify is a lifesaver for him. I think it's just down right crazy for anyone to tell people what they should do with their child,cause nobody sees what life is like with a family and the family dynamics as a whole.i feel that you guys like other trying to do good families are being very humble and very vonerable to let us in on aspects of your life and for that we as watchers should respect. Your privacy,your decisions and be greatful that you are willing to share your story and the ups and downs.

As a nurse and mother if a child that has had to take risperdal, it takes quite a while before the bad long term effects kick in. Each time the patient comes to the doctor, the doc is suppose to be checking for any of these side effects during the visit. It doesn't take but a minute or two. Blood levels need monitoring also. My son was on this for his bipolar for years and never had trouble because the levels were kept at a range that was therapeutic and safe. Best of luck with your search for the right medication. It might mean you will need more than one med. I am surprised the doctor just stopped the drug so far from starting the new one.

Just wondering if you've considered going back to cbd/making a follow up video on cbd treatment? Thinking of getting some for my 5 year old daughter

I know you dont think this, because you just keep doing your best for the love of your child. My life looks so easy when I see such bravery in battle.

I hope you saw my Facebook comment. Education never hurts !