Who else is watching this after she’s passed ? God she was always in such a chipper mood , even when she was having a tough time she was still loving and just a beacon of light .

@tinywewolf2960

Жыл бұрын

She.. she pasted?

@sarahmo9708

5 ай бұрын

​@@tinywewolf29601/4/21

@Peas286

4 ай бұрын

O no 😢

@danikagulbis

2 ай бұрын

She passed away? When?😮😥

@JessChandler

2 ай бұрын

@@danikagulbis April 2021 i believe

This just popped up in my recommended. Goodnight Amy, you were such a warrior. Love & light to Tom & your whole family. 🥺❤️❤️❤️❤️

@YukiMokazu

3 жыл бұрын

This happened to me, as well. I wish her family well, especially Tom. We love you, Amy ❤️

@kbellmurray

3 жыл бұрын

Same ❤️

@anniejderose1234

3 жыл бұрын

Sams🥺🥺😭

@Bethany0420

3 жыл бұрын

Same 😭

@sheep1ewe

3 жыл бұрын

Yes, strange indeed, but good that the algoritms does good and help spreading important information for once instead of cause harm to people as usual. However i remember talking with friends about this topic elsewhere long time ago when a guy asked about tips to bring the katheter with him in public, That's why i opned it since i wanted to know more from someone who actualy had experience.

I love how professional you are in this and not awkward! Most videos people would be awkward or embarrassed to talk about it yet alone show it!

@MsGingerBread0216

5 жыл бұрын

I know

@zozoguh

4 жыл бұрын

*let alone

@jasonleeds1

4 жыл бұрын

Nαια Novak-Winchester apparently you clearly understood what Stephanie stated in her comment as you corrected her. Does correcting people make you feel good or make you feel like a better person? I understood what she was saying and I am quite sure many others have as well.

@zozoguh

4 жыл бұрын

Jason leeds I just wanted to inform them, maybe they didn’t know how to properly say it and now they do, prevent them from making further mistakes. It doesn’t make me feel any better of a person, but maybe I’m being helpful. It’s called constructive criticism.

@jasonleeds1

4 жыл бұрын

Nαια Novak-Winchester that makes sense and clearly you did not want to make Stephanie feel bad or poorly educated. I would not have said anything if that was stated that in your reply (correction). Now that I am aware, I apologize. I hope you enjoy the rest of your day. Ciao.

I'm a 30 year old guy who somehow stumbled upon this right now..after a couple of rum-drinks and whiles eating a whole grilled chicken. And I must say I'm glad I did. No one should feel awkward or embarrassed about medical things or different life situations. And spreading awareness and inform ignorant people helps allot I think. So keep up the good work and I wish you and everyone in the comment section the best. You are all strong and courageous, if someone gives you a look or a comment in bad taste, they are the problem.

@esppupsnkits4560

4 жыл бұрын

RevonowS this is wonderfully wholesome. Thank you

@faith9196

4 жыл бұрын

I honestly appreciate this comment so much. I’m also impressed about eating an entire grilled chicken...

@FallenMerick

4 жыл бұрын

Turn that chicken into some chicken nuggets next time my dude. Grilled chicken is _sooooo_ dry... why would you do that to yourself?

@jbrownnn

4 жыл бұрын

RevonowS all of this is so true!

@DJcyberslash

4 жыл бұрын

Forget the rum, get a second chicken next time bro!

You are getting better and better at explaining this kind of stuff Amy. So proud of you. I said it the first time you talked about Caths and I will say it again: do not feel ashamed of having to use certain tools to help you have a better quality of life. You deserve to feel comfortable with however that looks for you

you would be a great nurse you explain it so well makes it less awkward you inspire so many another great video

@MsGingerBread0216

5 жыл бұрын

I know

@lionessofyah8725

4 жыл бұрын

Oh my gosh yes!

I have glasses. Without my glasses I am legally blind. My glasses are the accommodation I need to function in the world. No one looks at my glasses and thinks it's odd or pities me for my glasses. It should be the same for people in wheelchairs, or oxygen, etc.

@brinrin7029

4 жыл бұрын

Or walkers, especially if you look like you're in your 20s.

@mellowminty

4 жыл бұрын

God, I have severe fibromyalgia and it makes me ... well, handicapped. The longer I walk, the more pain I’m in, and the higher chance I have of falling due to muscle weakness/spasms and general lightheadedness and being a clumsy nightmare (and if I fall - I can get myself up, but it will cause a major flareup that makes getting out of bed even harder). I also have a handicapped placard and park in handicapped parking spaces. Since I’m 22 and, by appearance, look perfectly healthy, I get the ... dirtiest looks, usually from people twice or three times my age. I know they think I’m faking it. It’s like ... why are people so judgemental? Having an invisible illness is such a huge pain. People seem offended by my general existence.

@tenaciouszebra5691

4 жыл бұрын

Brinrin I’m 15 and a have a walker. I know someone under ten who has one.

@kittenmimi5326

4 жыл бұрын

Hmm so should we just act like its nothing?

@almaoscarlett9272

4 жыл бұрын

@@brinrin7029 I feel you there; I try not to leave my house because it's just too many questions to answer when I go out with my walker

I’ve just been going round Amy’s channel watching all her old videos sad that we will never see her speak and so full of life again :(

I have so much respect for how down to earth and candid you are about this stuff. its really refreshing.

You are doing a lot with your life. Your videos make people more aware of what those with chronic illness go through on a daily basis. You are giving many people hope by showing you can live a full life despite your condition. You are an amazing young lady!

I'm 23 and have a 'surgical' supra-pubic (spc) catheter and it's basically a regular long-term Foley catheter just through a hole in my belly into the top of my bladder, rather than through my urethra and in to my bladder. Getting an SPC Initial insertion is generally done in theatre under a general anesthetic; they basically find your bladder and insert this long metal needle in the top of your bladder through the skin and then take the metal bit out and thread a catheter through the hole. The catheters they use for a supra-pubic catheter are a higher French (Ch) than the ones they use for regular catheters; this means that spc ones are thicker (16 Ch and up) than urethral ones which are generally for adult females around 12Ch. They can be latex or silicone. When I went in to theatre I stupidly thought it wouldn't hurt as it's only a small hole; when I woke up I needed three rounds of IV fentynl because it hurt so much but that was just my experience, I know others who just had mild discomfort afterwards. Surgical after care One thing I would say is it's in an area that initially when you're moving about, reaching things, picking things up, bending down, rolling over, stretching, or twisting, it pulls a lot and can hurt. If you have young kids that you're picking up and things you might want some help with them for a few days, or if you're in quite a strenuous or busy physical job, you might to take a week off to recover. It's still a surgical wound and needs time to heal so you won't be able to do strenuous exercise during that time (usually about 6 weeks, but each surgeon says differently) and for the first week after surgery you might not be able to get it wet, but the surgical team will advise you on things like that. For some people their stoma is in line with their waistband, for others it's under or above their waistband. If you're going into hospital to get an spc, then I'd recommend taking underwear that has a waistband that sits quite high up, are loose fitting and comfortable; as well as loose fitting and comfortable trousers/shorts/skirt/dress. You'll probably need clothing like that for a couple of weeks after until it's feeling more settled. When you first get an spc you will probably need to have a dressing on it for a few weeks until it's healed, because it'll bleed and be quite mucky to start with; remember it's an open wound and try to keep it clean and dry, wash your hands thoroughly and try to wear sterile gloves when dressing your stoma as it'll prevent infections. Catheter clips are well worth using to prevent the catheter or tubing pulling on your stoma (I use the Ugo catheter clips, but I know Bard is another brand of them and they call them Bard Statlocks); these can be and along with catheter retaining straps too, there is a large variety of products that secure catheters and the tubing. Changing Supra-pubic catheter tubes Every 12 weeks a nurse (or some people do it themselves) pulls the tube out and puts a new one in. The first few tube changes can be sore, but it gets easier with each change as the stoma heals and the tube tract forms. I've found that even after a year my tube changes are always a bit sore and uncomfortable (particularly if my site is infected or sore anyway). In my experience when the old tube is being pulled out it does feel a bit weird, like your guts are being pulled out of a tiny hole; you may or may not feel the deflated balloon of the catheter catch slightly on the top of your bladder as it's coming out, it's just because the balloon has been inflated for 12 weeks so when it's deflated it's a bit saggy and less streamlined than when it was put in. I usually find my stoma and lower stomach are a bit sore and achey for a couple of days after a tube change, but that's not uncommon. My stoma after a tube change usually bleeds a little for a few days after and takes about a week to settle back down; one thing that I've found definitely helps is Manuka honey (it needs to be medical grade - it's around £6 for a tube on Amazon that lasts up to 3 months once opened. Some NHS trusts will give you it on prescription if you meet their criteria for it). Infections in 12 months I've had over 20 infections, all originated in my stoma causing an infection there and then some spread to my bladder causing a UTI. Skin is very unique in that it has so many different types of bacteria that live on the skin (skin flora) to protect us, but things like staph in an open wound can lead to infection, which is the risk of spc catheters. I've had so many staph infections in my stoma that its colonised there now, and it keeps reaching such high numbers that it becomes dangerous and causes an infection. When my stoma is infected it gets red raw to the point where the smallest thing will make it bleed, it produces a load of pus, is sore, can smell a bit like rotting flesh, and it can develop small ulcers on the inside of my stoma. You will get to know your stoma, if you notice something unusual about your stoma, such as it getting more mucky or sore, then ask your district nurse or doctor about it. They then may do a wound swab to send to a microbiology lab at a hospital to check for bacteria; if they find bacteria that is likely to be causing an infection then they will test in the lab to find the best antibiotic for it. Why did I get an SPC? I got an spc because I am in urinary retention because of my EDS, and Foley catheters were blocking every other day and a nurse would have to come out and replace it. It could take the nurses up to 12 hours to arrive and all that time with a blocked catheter was painful as my bladder would get fuller and fuller and wouldn't be able to empty. Then when the nurses arrived it could take them an hour to get a new catheter in which wasn't pleasant! Even with all the infections and stoma care the spc catheter is worth it for me because I don't need to worry about it blocking, it's easy to change, more comfortable, more dignified and as I'm in a wheelchair full time having to sit on a Foley catheter tube all day was so uncomfortable! Why couldn't I use intermittent catheters? Firstly I'm incredibly difficult to catheterise, also my mobility and eye sight would make it very difficult for me, and I'd have to worry about getting to the toilet and on to the toilet, it would just make life a lot harder. For me having a tap on my catheter that I can turn on when my bladder is full and drain in to a leg/night bag and then turn off again is better suited to my needs. Products There are many different brands, types, and variations of catheter supplies, if one isn't working out for you then don't hesitate to try other brands and products until you find ones that suit your needs. Many companies will offer free samples if you go on to their websites or email them. When I left hospital with a catheter I was given one nights worth of supplies, I wasn't told what I would need or anything, I was just given the number of the supplier that the NHS has the contract with in my county. I called them up and told them I was clueless about what I needed, and they talked me through what I would need and the quantities and said what other people find useful; she talked through everything from the options about the different types of drainage tap I wanted on the leg bags, to whether I wanted leg bags with long or short tubing, to whether I wanted single use or drainable night bags. I was on the phone to them for over an hour, and they answered every question I had. Since then there are a couple of products I've changed and I've changed brands of leg bags and night bags, but the help of that lady that day and her vast knowledge was invaluable. Never be afraid to ask your nurses or suppliers questions because there always has been someone in your situation before, and even if they don't know the answer quite often they'll find out for you. I hope that explains about supra-pubic catheters!!

@sarahnobbs1957

5 жыл бұрын

Wow thank you so much for sharing that information. I never knew anything about them so knowing all that information now is amazing

@abiA5

5 жыл бұрын

@@sarahnobbs1957 You're welcome, it's the information that I wish I had known before getting mine! I'm glad that it was useful!

@kinseybay97

5 жыл бұрын

I've been using caths (supra-pubic then intermittent through mytrofanoff) since I was little with infections coming almost every other month and what I've found best for personal infection prevention is sterile saline bladder flush which I get from my urologist office and D-mannose otc. Now I can go about 4-6mo without an infection and it's great

@WilsonsWonderland

5 жыл бұрын

Thank you for sharing your experience and knowledge regarding your type of catheter! I find it fascinating to hear from everyone how they deal with the daily life of living with different medical conditions. I wish you all the best!

@abiA5

5 жыл бұрын

@@kinseybay97 thank you! I've tried those on and off but without any success as the infection comes from my stoma rather than bladder. I shall try getting them done regularly and see if it helps! Thank you. I have MSSA colonised, so it's impossible to get rid of, so everytime I'm off antibiotics they rapidly increase in numbers until it reaches dangerously high levels which then causes infection. I've even tried chlorhexadine scrub (the stuff surgeons clean their hands with in surgery) but without any real success. I've been in hospital for 14 months now due to EDS and neuro issues, which more than likely has a lot to do with infections, it'll be interesting to see if the infections improve when I eventually get out of here! They reckon I'm going to be in for a minimum of 6 more months to a year yet. Hopefully it won't be that long!! Thank you for your tip, I'll definitely try doing saline flushes more regularly to see if it improves things. x

Amy is AMAZING and I LOVE her so much, I would watch her channel all day

I'm so happy that you're being so open about this!! You're both educating the world as well as destroying the "shame" that shouldn't even be there in the first place! You go girl!

From an Arabian, Muslim girl.. I love you Amy. "Let your light shine as an inspiration to humanity and BE THE REASON someone believes in the goodness of people."

I love how you are breaking stigma regarding bathroom issues. I had a lot of poop troubles in elementary school. I got constipated a lot and had to take a lot of different laxatives. I had to drink water with fiber powder every day twice a day. I got a lot of gas and stomach pains. But now I don’t have anymore poop issues and I’m glad for that.

You're great Amy. Never think you're not making a difference. You encourage me each time I watch your videos, because you've been through so much & still are and your spirit is beautiful. I too have a chronic ailment, and I deal with pain and difficulty daily. However, watching you helps me stay strong and motivated. Be Blessed!

Thank you for saying those of us with visible health issues are normal. I have to wear oxygen 24/7 and I do get the "looks" everywhere I go.

@CloverElf

5 жыл бұрын

Weird question: do you wear eyeglasses? There's a combination glasses/nasal cannula out there that makes the tubing almost invisible--the brand is called Oxy-View. I have zero idea if it works, but it's a pretty brilliant idea!

@jackiecosta7620

4 жыл бұрын

In my opinion I truly feel most people in general are just Curious about medical issues... just look right back at them with confidence that you are smartly taking care of yourself and your special needs. As for those who stare like they think they are superior, well, guess what those few bad humans are Not worth worrying about... just stay positive and just ignore them. There are so many in this world who are GOOD people like Amy who want to spread awareness about EDS and all of it s effects on the human body. As her followers, we help her and help spread awareness by subscribing to her channel.

Great job Amy! So happy you’re raising awareness & breaking the stigma! I’ve had different types of catheters too (& am having surgery to try to improve it soon🤞🏽) I’m planning to talk about it all on my channel soon as this made me realise how important it is to normalise it! 😊

@GeorginasJourney

5 жыл бұрын

A Foley catheter is a type of indwelling catheter btw, think that’s the scientific term you were wondering about? But I just call it a foley too :)

@GeorginasJourney

5 жыл бұрын

And the suprapubic catheter can be used like you said, with a valve to drain when you need to go, or it can be used with a collection bag like a Foley catheter :) Hope this helps people in the comments!

@GeorginasJourney

5 жыл бұрын

Might write it as a second comment actually so people can actually see it, rather than writing it to myself down here 😂

@GeorginasJourney

5 жыл бұрын

Novelyn Sumampong thank you 😊 You too, I hope you’re doing well today :)

4:25 it's like the "I forgot a tampon/pad" situation it shouldn't be weird but society has made it stigmatised

You seem to handle all if this very well... I am very sure you have your bad days like "why me" but girl you seem so positive and even tho I don't know you, I think your brilliant for sharing your information even when its more "personal" YOUR AWESOME!

I always get someone to cather me because IT HURTS SO MUCH. You're so strong for doing it yourself I could never

This vid has helped me so much!! I’m 14 & recently started with bladder issues but a couple weeks ago it fully stopped and I was admitted to hospital for 2 weeks. I’ve had a foley cath in but they’re wanting to teach me self catheterisation, but I’m petrified to do it. I’ll be getting taught in the next couple weeks. But I must say this vid has helped it be a bit less daunting 💖

@ojo6178

4 жыл бұрын

i’ve also been hospitalized for bladder issues with a foley catheter but under anesthesia and they *also* wanted to teach me, but my Mum told them i was just getting in a state so they cancelled. i rlly do not want to learn because it looks painful

@imakelonelinessworkforme9120

4 жыл бұрын

очень одинокий wow I didn’t know they could do it under anaesthesia! But I will say, it sounds much scarier than it is. And once you get over the mental hurdle it does get easier ❤️

I've said it before, and I'll say it again- you are AMAZING, Amy! The grace and ease you share your daily struggles living with EDS and your other conditions really needs commending on! You're such an inspiration! I absolutely LOVE how you educate your viewers about all the things going on! You're so easy to listen to and very literate! I'm so glad I stumbled across your channel last August! I look forward to each and every video you put out! Thank you for sharing your world with us! It's so comforting, especially to those of us who also have EDS and other medical issues that affect our daily lives! Thank you once again, Amy. You're AWESOME!

Yas! Let's break the stigma! I'm so tired of being stared at lol

@suann9790

3 жыл бұрын

Hey Jane, may I ask, do people stare at you for using a catheter? How do others know how you go to the bathroom? I'm sorry if this a stupid question, maybe I'm missing something. I'm just curious to learn, and I definitely do not want to be one the people who make you feel awkward!

Dunno how I ended up here but... a friend of our family, then in his late 70's had to have a catheter fitted. He was somewhat deaf and a bit confused. In discussion with the surgeon he kept referring to it as a cafeteria, causing everyone to laugh so much that the operation was delayed while the surgical team pulled themselves together! 😂

girl it's awesome you're talking about this and raising awareness! you're such a good role model!

Just stumbled on these videos by Amy. You have my total respect and admiration. How brave and thoughtful of you to talk openly about your personal experiences to try and help others. I wish you nothing but the best for the future. And you are right not to be embarrassed, perfectly normal bodily function for absolutely all of us.

I didn’t even know you had one 😂 it’s definitely interesting to know about though, I’m surprised how (unintentionally) ignorant I was about this stuff but here I am and I’m learning 👍🏻

@Torriaw1

5 жыл бұрын

I love how well put you wrote this. Same for me as well! I have to explain to people on the daily how yes I am a type one diabetic but no that does not mean sugar will cause my death lol. When it comes to even my own disease I am ignorant.

@heidicatherine2668

5 жыл бұрын

I LOVE YOUR PFP 💛💛💛 ||-//

@uhlineey9049

5 жыл бұрын

||-//

@daniellakatz4370

5 жыл бұрын

Torria Wittenberg I’m also type one diabetic! It’s so cool reading random comments and finding that!!

@cayden114

5 жыл бұрын

||-//

💜So sorry for your loss Tom and Amy's family...lots of hugs to her doggy💙sending you all lots of prayers ...God Bless 🌻😇🙏

Great work! I'm a medical student and I found it very interesting and informative to listen about all this from someone who actually has to go through it! Keep going Amy!! ✌

Thanks for sharing your story with so much detail. I have had to use catheters for about 13 years now and still find shame in doing it, feel like I have to hide it and be embarrassed. Hate having to go in public!! You are so right that it shouldn't be something that ppl question...it's our "normal". There's nothing wrong with having medical problems, but ppl are curious about things they know nothing about. Thanks again for being open and making it seem like catheterization is no big deal. Awareness and education are everything!

Love how open and honest you are. You make a very difficult subject light heated and approachable. I'm sure this video will help and spread awareness to so many people!

You’re bloody amazing girl 👏🏼❤️Can’t imagine how many people this will help love how open and honest you are !!! Xxx

I have been through the catheter ordeal too, never had to do it myself but my heart goes out to you because it isn’t pleasant ♥️♥️

Amy, I just started watching your videos. I am a new nurse and just been so interested in what it’s really like for my patients. So listening to different people with all different disorders and syndromes has really helped me learn. Especially the part where you talk about how medical professionals just “hoped” you would figure out how to cath on your own. Good gracious! This really opened my eyes up to how I should teach someone in the future. Thank you so much for sharing your experiences and your tips and tricks at home. I bet this is helping so many people around the world. You are such a beautiful, kind, smart women! Keep doing what your doing! ❤️

Amy, I don't personally have a chronic illness like yourself, but I have friends that do. Watching your videos has taught me a lot about what they may go through on a daily basis. I appreciate your openness and how candid you are in your videos. It has taught me to pause before judging anyone I see on the street no matter their situation.

I am not entirely sure why youtube recommended this, but i was intrigued. i watched the entire video, and wanted to say Thank You, it was very informative.

I love this video!! I love how honest and frank you are. I had urinary issues after having my first child. I suffered from temporary nerve damage and I couldn't empty my bladder myself. I had to self catheterise for around 6 months before my body got back to normal and I wish I had seen this video before all that. It would have been a huge help. Loving your videos, I'm sure there are lots of people that you are helping ❤

I stumble upon this channel and I really love how you talk and normalize everything, and how you're so bright and hip! I'm sure you have your down days, but seeing how positive you are on camera brights up my days. You earned yourself a subscriber, Amy!

I recently discovered your channel and watching this video brought a smile to my face. I’ve been Catheterised since I was 2 years old when I got surgery done on my bladder that saved my life. The types of Catheters I have are Intermittent ones and I’m now 19 years old and I’m still till this day alive and well. I remember I told my friends about my catheter and they were very supportive and they know about the other health problems I also have. And I also want to say I fully agree with what you said at the beginning, I full on agree that it should be talked about like a normal as heck thing and not be weirded out by it.

You are so brave to be so honest like this for do many people. Proud of you and you are one strong lady! 💖💗💖💗

You explained it all really well! One thing I’d add is that the suprapubic catheter can be used with a valve like you said, to drain when you need to go, but they can also be used with a collection bag like a Foley catheter :) Hope this helps!

@GeorginasJourney

5 жыл бұрын

and you might not see this since you get so many comments now but huge congrats for 150K subscribers! 😊🎉

I think it’s amazing how you are making this so educational and not awkward at all! Great job spreading awareness and helping people in the same situation 💗

I am SO HAPPY I just found your channel. You are AMAZING. I am a nurse in NY. We could REALLY use you in our hospitals. Keep spreading your love and knowledge. I will be here every post you put up and I will follow you on Instagram. Huge love and prayers ❤🙏

Thank you for being so open and honest with a subject like this. I also don't know what it feels like to be completely healthy but you let me know I'm not alone! Anatomy is one of those things we all have but tend to know little about until something goes wrong. Happy thoughts!

Thank you for this! I’m a Medtech and they never have training on this type stuff *except to clean around it* this is sooooo helpful and informative.

So proud of you, Amy! Taking a page from your book. You have been so inspirational to me through my current health journey. You've given me the power to keep pushing on and stay positive even when times are tough. Sending the love from Brisbane. Xx

You are a BIG encouragement to me. Thank you for taking the fear out of what I've always viewed as terrible procedures.

You are an amazing person staying so positive with the hand you have been dealt. Thank you for sharing your story for those who do not know about EDS.

I have a suprapubic catheter and you explained how it is placed beautifully. It is actually a Foley catheter placed through a hole in the abdomen into the bladder (just like a feeding tube) mine is hooked to drain bag at night and a leg bag during the day however you can have the little valve thingie to just empty when you need to.

@amyleefisher52

5 жыл бұрын

Chronically Justified thank you! ❤️

How well you are dealing with the illness 💪💪 hatts off girl.. U r my inspiration. I am a 20 year old suffering from a chronic kidney disease. I used to cry and break down a lot. But strong warriors like u give me strength to fight and get better one day. You are not alone. We are with you 😘😘. Keep fighting with that lovely smile on your face. Bless you. Get better soon 💟

You're fantastic! I work at a hospital and am always learning new things about how people live with different conditions and different bodies. It's amazing and absolutely should be talked about candidly so that people know more about each other and themselves. Thank you for what you do!!

i love your confidence and strength in all of your videos so empowering to all the other people out there that are embarrassed to talk about topics like this and for you to give them that little bit extra boost in confidence is amazing

Wow, this was a super thorough explanation. Very practical. I think you'll help a lot of people with this video! 💙

They NEED to use your channel as an educational one! You're common sense approach to your body and issues and the things you have to do to stay welll is amazing. You demystify subjects which most of us haven't a clue about.

Love love love how open you are about this. I’m 20 and intermittently catheterise. I don’t know anyone else who does and not many people know about it. It’s a normal part of life for me so it’s great to see someone talk so openly about it.

@charmed092

2 жыл бұрын

I just started. Do u have any tips or anything? I have struggled with Urinary Retention for many years now. If u prefer to email instead let me know because as u know Amy did give alot of info on it compared to most, but can't answer questions because of whatever gave her wings, but being so new to it & still waiting on proper help & affordable self catheters i'm desperate to do something to stop uti's & needing to do 3 urinations in 20mins & still feeling sore, not quite empty etc. The tests they done on me showed that I can retain up to around 250mls, I got almost an entire cup out using a self cath & it made me feel so relieved. Still lots to learn so I can do this as safely & hygienically possible to not irritate or cause infections accidentally where possible to prevent. If others want to comment feel free to as i'm not ashamed to be a part of those who need to occasionally use these as I can partially or sometimes empty ¾ of what I believe is left then either uti or a decent 20mins where it stops, then I try again, then again & eventually drain what I am able to on my own but can't always do this or may hold too long not knowing I need to urinate-(no idea why)

Much love like always. Your an amazing and ungodly brave human Amy. Don’t ever forget it. ♥️ ps. I generally appreciate that you “showed” people who are new at this how to do it. Those stupid cartoons don’t do anything ( I’m only comparing it the first time I used a tampon. I don’t use catheters)

I just got recommended one of your morning routines and decided to check out your channel and you uploaded a video 1 minute ago! How amazing! You’re so inspiring, even with your illness❤️❤️subscribed and now onto binge watching your videos😉☺️💞

This is AWESOME! I catheterize myself about 4 times a day and have used foleys before. I'm so glad to see someone actually talking about it.

Amy: *goes to pee* Amy: ASSUME THE POSITION

You never have a need to be sorry for not uploading ... if anything we just worry about your wellbeing not about waiting for your next video .... your an inspiration keep on going your teaching us so much 😍

You’re SO right Amy!! It shouldn’t be taboo!!...Which is why i too, am going to share a good bit of my experience/journey-without young people like us sharing, we are unlikely to banish that taboo!! I’m sure, talking about issues such as this, will help many young people in the future!! I’m sorry if this is TMI for some-but it concerns a bodily function that all of us have-it’s just some of us have to deal with it differently to others!!! I had to have a suprapubic catheter (SPC) placed in 2016, after having to intermittently catheterise for several years prior to the SPC. They drained a bit under 3 litres from my bladder when they worked out I had a problem. I had been admitted to hospital with an unrelated infection (not bladder), & had been admitted or over 36hrs when a nurse said to me “have u been to the toilet? No one has said/documented you have”. I was that sick, I couldn’t remember myself!! They scanned my bladder, & I had “over 2.5L” in it. I had no idea-except for feeling a bit uncomfortable/crampy. They then drained just under 3L with an intermittent catheter. They suspect I had had an issue for a long time for my bladder to be that stretched, but just didn’t know-they were astounded that I wasn’t getting much sensation at all until I had over 2.5 litres! As you described, from that point on, lots of tests, trial voids (they once let me go to the point where I had close to 3.5 litres trying to get me to void on my own without catheterising me-it was excruciating!), measuring input/output, “in & outs” (as my nurses called them-when I was full up to my ears but just couldn’t go), then ultimately failing with voiding myself more often than not-so I was taught to intermittently catheterise-(but unlike you it seems Ams), I had an awesome clinical nurse consultant that taught me. She would come to my hospital room whenever I was “due” to catheterise, & she would walk me thru it/show me. I felt SO embarrassed, but she really reassured me, & helped me SO much!!! She came everyday (except weekends) for nearly 2 weeks, until I was confident, then I was discharged. I think it was her that really had a huge impact on how successful I was learning self catheterisation-&, I’m sure, meant that I didn’t get many infections while self catheterising. Unfortunately, due to botched surgery, I had to have the SPC placed in 2016-which has resulted in tons & tons of downs, more so than ups!! It’s easier than intermittently catheterising some times, but much, much, worse at (most) other times. You basically covered most of it fairly accurately with what you said about SPC’s Amy-for some, like me, I have to have a bag on all the time-like you do with a foley. I have a smaller “leg bag” that the SPC connected to all the time, then at night, I connect another larger bag to the leg bag, so I’m not having to constantly empty overnight-which I just disconnect in the morning, leaving the leg bag in place. For some others, you can put a valve on the end of the SPC & just empty at set times (if you have no sensation), or empty when you feel you need-or a combo of the both. For me, I’ve found that having an SPC can be quite uncomfortable at best-but sore/painful, a lot of the time-like the feeling/pain/discomfort most get with a foley that is in for the medium to long term. My bladder does a full time job of trying to eject the catheter, even on good days-so I have lots of painful bladder spasms that have resulted in me needing meds-so I have a patch that delivers a small dose of meds 24/7-as taking “as needed” meds didn’t really work for me-although I do have the “as needed” meds available too, if the patch isn’t cutting it, & I need a top up. One of the biggest issues tho, is that I have tons of issues with infection, since I’m immunosuppressed-not only bladder infections, but infections of the “tract” or “stoma” that the tube goes through. It seems as if I’m on antibiotics more than not, & being immunosuppressed, means that I get unusual, & antibiotic resistant bugs all the time. If you have to catheterise, it may seem as though having an SPC would seem easier/less hassle than intermittently catheterising-but, trust me, (for me at least)-it’s not-I would have kept doing intermittent catheterisation any day, if I had had the option. As a nurse that can no longer work due to my health issues, you covered intermittent catheterisation awesomely well!! I was taught tho to use baby wipes instead of the Chlorhexidine as it can be associated with contributing to resistant bugs/skin sensitivity/stinging. With the baby wipes I was taught to use 3, & to not to clean the area in circles-just 1 really good/firm “swipe”-but 3 times-1 wipe for each “swipe”. But you have to have the area stretched out really well & be able to hold that position until the catheter is inserted and draining-I hope you get what I mean!! The only other thing I was taught that you didn’t mention, was to press down on my bladder as I was withdrawing the catheter-as it helps with emptying the bladder properly. Such an awesome video!! Thankyou so much for raising awareness of bladder issues, & for helping younger people like myself, feel like we are not alone!!! Chronic illness can be so isolating as it is-but adding on bladder problems can make you feel so incredibly embarrassed!! It gives me so much comfort knowing I’m not the only one, as so many times when I go to clinic, the waiting room is full with much older people than me. THANKYOU!!!

I think you're really good explaining this stuff. I work as an assistant nurse so I do and see this everyday basically. These types of videos really needs to be out there . ❤🙌🏻

I came across to your channel 3 months ago and I just want to say that you are very strong and positive. I wish people find and see your videos one day. They will learn to love themselves and learn how to be enough. Social media nowadays makes people feel envy. I’m glad I came to the right side of KZread. I can feel the power from you. thank you! And keep up with the good work ! You’re doing great💗

Well done Amy, the correct level of wit, information and practicality. Thank you.

Rest In Peace Amy 🥺✝️

@gossimgirl

3 жыл бұрын

Wait what?!

@daepits

3 жыл бұрын

@@gossimgirl Unfortunately, she passed away on the 1st of April

@gossimgirl

3 жыл бұрын

@@daepits omg :( Poor girl. That’s so sad and shocked me. I hope she is flying high and pain free ❤️

Amy was just so down to earth and so good at explaining things in a very matter of fact way with no spoofing fantastic such a great loss

This is so sweet and important!! I’m so glad you don’t have to be weird or awkward about it!! We need people like you!!

Tom just a little note I Miss Amy so much and I know you miss her I'm in shock my heart is breaking but I know she's in a better place that she doesn't have any pain I want a down here with us minutes unselfish I'm in pain 24/7 and she was I'm a warrior she was a warrior she was a great warrior and she encouraged all of us other Warriors who are going through things and we will miss her like crazy the thank you and the family for just letting this be so that we could just see as much of her as we can and compare respects to the family I love her so much and I can't believe she's gone I'm so glad you guys got the house so that she can enjoy it for the time that she had it take care

Some people have the hardest time for the simplest of things. Thank you so much for sharing. Love your spirit!

Oh my gosh you totally brought me to tears with the ending of your video , thank you for sharing and being here for everyone ... absolute hero!

I just came across your video and want to say I believe you are one of the most caring, kind and generous people I have seen. Thank you for trying to help people who just need to make a connection with someone who understands. God Bless You. You are an angel I believe.

Thank you for being so open and honest about everything! I know it must be difficult but it really does help to educate us and I appreciate it

Great job Amy!! So proud of you to get this out there...making it more part of everyday life!!

Just saw this post. I’ve been self catheterizing for years and like you I had to figure it out for myself! I wished I would have seen something like this when I was learning. Your instructions were right on and perfect examples. Thank you for doing this video it is very helpful for beginners because it is so overwhelming and you make it easy. Your a lifesaver!

I was always scared of getting a catheter in the hospital but you make it sound so easy and nothing to worry about, I’ve never thought they were weird or gross and it’s so interesting learning more about them!

I've had bladder issues for as long as I can remember and have had the same emergency having to rush to the hospital in absolute agony to be cathed. SO, so painful. Every tiny little bump in the road was horrific. I absolutely understand your pain on that (literally)

I am now very informed on how to do this! Thank you for raising awareness 😘

Thank goodness there is a channel, such as yours, so that other young people in the world can learn this kind of information if they also need to use a catheter, not to mention just all around informing people and destigmatizing medical needs. I think it's really just so cool and such an awesome thing you're doing, keep it up girl!

I swear your the sweetest person out there!! I love that you're open to so many subjects that people see as tabu. Thanks for being yourself and all your awesomeness!!

Amy! I work in the urology department here in the states. I’m sorry you had to have a urody done! Not fun... love you!

R.I.P. Amy. 💜 Don't flush gauze down the drain. It might flush through the toilet, but it isn't going to be dissolved in the pipes. Throw it in the waste bin instead. If you want to see if something will dissolve in the pipes (like toilet paper vs wet wipes etc), simply place the item in a blender with water and turn the blender on. If you don't end up with a weird, gross slushy, it won't dissolve in the pipes any more than it did in your blender.

Amy you are such a amazing person xx it's fantastic how you explain to people and give advice on how to manage with certain situations and procedures that you deal with everyday xxx

Although she is no longer among us, Amy still continues to help so many. Found out today that I need to start using catheters as my bladder apparently does not empty fully. I will receive some training for that soon, but this video made it much less scary for me to go into that. Now I feel like I know what to expect.

Thank you Amy for doing this! I havent used it in my life but I appreciate you do these videos that educate and help others!:)

Hello, I'm a carer for elderly and done some young serivce users too and I've changed catheters and clostmy bags (sorry can't spell it)... love my job knowing I help people young or old every day✔ You are amazing and beautiful girl very brave to share your stories and how you change your leg bag 🤟 don't ever change your amazing girl 💜

Thank you for explaining how it’s done, i was so ignorant about it, like a taboo thing. But it’s so natural now that I watched your video. Thank you, you’re making a difference 💕

This was so incredibly interesting and educational!!! Thank you for taking the time to share this with us and for teaching us about something many of us would never have come across in our personal lives. I'm sure this was awkward, but I am sure this will help so many people having to learn how to self-cath. You are so amazing, Amy!!!

My ex was paralyzed from the sternum down from an accident. He has to cath every 3 hours because he can't feel when he has to pee. He has a condom cath at night for sleeping. He didn't always make it in time unfortunately, but we tried our best to keep him dry!

@frances2871

4 жыл бұрын

Sami86K condom cath 😂😂 not heard anyone call it that before. I used to use to conveen catheters while working within complex care for my clients

@BeautiLovr

4 жыл бұрын

@@frances2871 ive always called them condom catheters as well!

@brothertn708

4 жыл бұрын

Sami86K why did y’all break up?

@coreythompson843

4 жыл бұрын

@@brothertn708 wouldnt have anything to do with him being paralyzed now would it ?

@bunnylacy2097

4 жыл бұрын

Corey Thompson don’t you think that’s a rude question?

Totally off topic but this vid is gold for innuendo bingo! In all seriousness, I love that you are so open! So many people will benifit from this, thank you.

This is really great! I'm at school to becaume a nurse and having someone who uses one regularly tell me her procedures will really help me in the future! Thank you Amy

I got catheters placed regularely when i was 7 years old and then when i was about 14 years old because of a disease i had. it was the worst feeling ever and i hated it so much. just the thought of doing that every day makes me feel so awful. i dont think i could do that. you have all my respect and i think its so awesome that you talk about that stuff and show so much of it.

Thank you for sharing......I have MS and have difficulty doing it sitting down...problem can't stand up for long....You did an amazing job describing to us!

Girl you have an illness please don’t opologise for not posting it’s amazing you post the amount you do ❤️❤️ you slay at life & I look up to your positivity

You absolutely gave me hope. My bowels have quit working and I’m miserable. I’ve had one small bowel movement in two months. Thank you for doing this!

You’re amazing! I can’t believe you do this everyday! I am so grateful that I have the life I have and could not imagine doing what you do everyday!

Thank you so much!!!! This helped me understand your life a little bit better!! Love you Amy!

You are so brave to tell this story! Thank you!! I learned so much. If I ever need to use one, I’ll be a professional. Love you and your videos!

Thank you SO much for this- I’m new to self catheters and this has made me feel at ease, Foley catheters just ain’t it for me either! I’ve got a Foley in at the moment and I really want to give self catheters a fair shot and this has given me confidence. Big love to you x

I had post surgical urinary retention, it’s terribly uncomfortable. I’m sorry you are dealing with this daily. You are an inspiration.