Bravissimo Dan, I am so glad you are doing awesome.

@amyloidosismyjourneytosucc4995

20 күн бұрын

thank you so much.. How are you?

Good to see you again! I like that white hair!

@amyloidosismyjourneytosucc4995

17 күн бұрын

Thank you... and Thank you!

Good to see you, Dan!

@amyloidosismyjourneytosucc4995

17 күн бұрын

HI... thank you!!

Great to see you again Dan! I was diagnosed in 2018 and am on kidney dialysis. It's not fun, but I still feel so much better than I did before my kidneys failed. I had chemotherapy for about 18 months in 2019 and 2020 and my numbers are still good. I'm so happy that you are doing so well Dan! Keep us informed!

@amyloidosismyjourneytosucc4995

17 күн бұрын

Hi Elizabeth.. glad you are feeling better. No, doesn't sound like fun. Hang in there and hopefully I'll see you on our next Wednesday zoom

Hi Dan, I am very glad you are getting better. I was diagnosed in late 2020 with stage 1 AL light chain amyloidosis, had in early 2021 six weeks therapy with CyBorD and mid April the autologous stem cell transplantation after high dose chematherapy. I am "clean" since then and take no medication. As a passionated cyclist I started cycling a month after the transplantation, constanlty gaining my strenght back. Never felt better in my life! Greetings from Switzerland!

@DanLier

14 күн бұрын

wow, that’s incredible. Good for you! Thank you for sharing!!

That’s great. I’m so happy your numbers are in the normal range or at least going down! Are you on Dara?

@amyloidosismyjourneytosucc4995

17 күн бұрын

Thank you... no, Dara wasn't available when I started. I'm on Venclexta right now.

Register Here: us06web.zoom.us/meeting/register/tZAuf-GuqzgsEta_IXHOSmCoFu9Lj-oRXE1C

🤍🤍🤍

@DanLier

15 күн бұрын

Hi Gina!

I was diagnosed in 2021 with aa amyloidosis. I'm on dialysis I'm having a hard time finding a doctor. I live in Philly do u have any suggestions?

@amyloidosismyjourneytosucc4995

17 күн бұрын

Let me see what I can find out....

@pinkyrose2116

2 күн бұрын

Can you help me also I am in egypt (arabic country) with renal amyloidosis and on dialysis but not diagnosed type of amyloidosis till now ....only on dialysis ​@@amyloidosismyjourneytosucc4995