So glad you’re doing so well! Hope to hear more great improvements in your personal battle with this most complicated situation. I notice this being a few years after this Vidio that our situation is coming more into the mainstream of doctors care (3/15//2024). I’m on Vyndamax for the heart issue of this situation. I’m fortunate to have insurance that will pay for this drug as it cost $800 a day for this med. I’m hoping that this drug will come down in price as It’s way to high for the average insurance situations. Anyway to all who have Amyloidosis may god be with you and help you maintain a steady course on your recovery programs. Jon

@DanLier

4 ай бұрын

thanks for sharing Jon… and sending you good thoughts, energy and prayers. Lots of good things happening in the AMY world. I’ll be sharing some exciting news soon.

Hello Dan, hope all is good with you. Really missing your updates.

Dan this all extraordinary great news! Very happy for you and your family, Praise The Lord!!! My wife and I will continue to keep you in our prayers!

@DanLier

3 жыл бұрын

Thank you Stephan

Hello Dan, happy new year to you and Jennifer, I have been following your journey for over 2 years and I am glad of your achievements. Please give us an update on the pacemaker. Hope that 2021 will be even a better year for you. Ronnie Shand, Jupiter Florida

Great update! So happy for you and your family. Praying for continued healing! 🙏🙏🙏

@DanLier

3 жыл бұрын

Thank you Randy!

Glad to hear about the great update. Continued prayers.

@DanLier

3 жыл бұрын

Thank you Shana!

Hi Dan, Great to hear from you! You are looking good!! I am feeling good as well- been the best I have been in a long time. Keep going in this direction. Prayers on the journey!

@DanLier

3 жыл бұрын

Thanks Tom. Glad to hear you're feeling well also! Let's do it!

Can’t wait to hear your latest supplement regime.

Lovely news!! Many more progress to come :)

@DanLier

3 жыл бұрын

Thank you Houssam!

Fantastic news! Love it when those light chains are going down!

God bless you dr...my mom passed away due to this amyloidosis...only 53 yrs old..very heart broken...I miss her souch...she was our family's backbone

@DanLier

3 жыл бұрын

Oh, I'm so sorry Kartika. So sad. Sending you thoughts and prayers... wish I could do more.

You look great, I'm glad things are going well for you . I'm hoping the doctor can help you with your intestinal issue. I'm still feeling fine, just tired. Keep smiling and maintain your positive outlook on life.

@DanLier

3 жыл бұрын

Thank you. The G.I. specialist has helped me. Feeling much better. Thank you!!

I’ve heard of a nutritionalist who had some kind of cancer and he was very unhealthy, he changed his life started eating supper healthy, vegetables and supper foods, celery juice, and carrot juice, and wheat grass juices and other kind of vegetable juices he would make to detox the body, to clean out his system after I believe a year of that consistently his cancer went away, Ik you work out and stuff but maybe idk if you do juices but maybe that can help , I hope this could be any idea to help with your health, but I wish you the best I will send some prayers over

Sad to say, it's pretty obvious why you have no more updates. I really thought you would beat this disease.

@DanLier

Жыл бұрын

I'm still here!... doing well thank you!

@billinct860

Жыл бұрын

@@DanLier No more video updates? So glad I was wrong!

@DanLier

Жыл бұрын

@@billinct860 Thank you. I am going to make an update soon. A few people have sent me messages... thank you!

Nice change dan in the results.. Keep going and go for the stem cell transplant.. Take care

@DanLier

3 жыл бұрын

Thank you. Only if I have to... Thank you... you too!!

I came here today wanting to see a recent update on your condition. I hope you are still in decent health... despite seeing it's been over a year since the last update or reply. My brother-in-law died several years ago from this. His case saw him decline rapidly while doing chemo pills and having had a pacemaker put in.

So Happy to hear this great report!

@DanLier

3 жыл бұрын

Thank you!

I just found your channel. I’d really love to talk with you. I left a comment on another video. Telling you about myself.

Hi, I am a genetic amyloid patient in Korea. Nice to meet you. Can I know what kind of treatment you get?

Hey Dan ... I am a fellow Amyloidosis survivor” ... Stem cell transplant at Mayo - Rochester, MN on 8/14/18. Slowly improving slowly improving the past 2 years. However, I have persistent GI issues. I have been to so many GI docs I’ve lost count ... Please give me the name of your GI doc. Thx Randy Anderson

@DanLier

3 жыл бұрын

Wow, that's amazing... and congratulations. My GI doc that just helped me a lot is Dr. Balan in the Phx Mayo Clinic.

@TransplantHelper

3 жыл бұрын

I’m just getting started on this journey. I looking forward to learning from you all.

Hi Dan I just came across your channel after I discovered amyloidosis from doing various searches on the internet. From what I’ve read it is fairly likely that this is what I’ve been experiencing as well. Doctors have been absolutely no help so far, but now that I know about this I may reach out to them again. What I really wanted to talk to you about is the use of CBD oil. I started fumbling around with it about three years ago and I have figured out a regiment that I have had slow but steady success with. Have you looked into it, or do you have experience with it?

@DanLier

3 жыл бұрын

I do. Yes, it's an unregulated market and after lots of research, an isolate is your ONLY way to go... and some companies claim isolate, and then by the *asterisk, they will say... full spectrum isolate, which is NOT an isolate. www.DragonflyPure.com 10% promo code at checkout: Healing Full disclosure... #1 CBD brand in Europe, now available in the U.S. They asked me to be their U.S. Brand Ambassador after seeing my youtube videos. We are operating ABOVE the "grey area"... only isolate products for people who care what goes into their body.

What are the supplements you're taking if you don't mind me asking?

My brother in law had ttr cardiac amyloidosis since five years. But no treatment. Pacemaker put to heart. To this type patient Pfrejer company Tafamidis tablets are approved by world health organization. But so much costly. It is not possible to purchase because he had no money. Is there any way to treat him. He is in India.

How are you ? My college has cardiac amyloidosis now. Which medication you get ? May be, it will help to know the most modern way. Kind regards Susanne

What supplements are you taking for your heart?

what's the new news?