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• 
  @hannw7Күн бұрын

  Kudos for being realistic about your health. Bouncing back culture is so toxic. Good luck!

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  @plantinaseed3 күн бұрын

  As someone who is just getting more serious about weight loss/muscle gain, I'm looking forward to this series :) I hope you may be able to give some tips on training, schedules, and tips for someone who has little muscle and is just starting out. Thank you!

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  @Kittensforchrist29 күн бұрын

  Nice work!

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  @AnnAblettАй бұрын

  Xavier. But whatever u decide, that might not be his name the first time u get a look at his beautiful face.

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  @olilumgbalu56532 ай бұрын

  It seems like they should have found some sort of gene therapy for this. Maybe try stem cell therapy for the retina as well.

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  @HomeSweetHomewithLaura2 ай бұрын

  I was diagnosed at 37 years old. At first they didn't know what was wrong and after several testing and specialist they found out that I have it. Thankfully, since diagnosis I have not had a lot of changes or decline. I am like you. I do not see the black. It's just my brain kind of fills in the gaps where things are missing. Thank you so much for reaching out and being a voice. For a few years I just kept it quiet and didn't let anybody know. But now I am able to talk about it more and just let people know that we can live the same life. We just might live it a little differently and find different ways to do things❤

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  @lisaloftis64342 ай бұрын

  Jessica, thank you for this message of hope and positivity. I am newly diagnosed at 57 and have been struggling with the implications- will I be able to keep working? Will I lose my ability to drive? Will I end up blind and alone in an old folks home? It was a negative spiral. But you helped me- as well as the positive comments here. I am wondering if there is a support group online? If not, maybe you can start one.

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  @JessicaParsell3 ай бұрын

  UPDATED DISCOUNT CODE: JESSICA20 20% off discount

• 
  @stevenparsell3 ай бұрын

  ❤

• 
  @JessicaParsell3 ай бұрын

  🥰

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  @j-manmarkus75914 ай бұрын

  Thank you for sharing this. I'm trying to help my friend, whose eight year old daughter was just diagnosed with it. We're trying to get her into clinical trials. I hear they have a modified vitamin A drug coming out that may help treat it. Are eye injections dangerous, even if they are FDA approved? Thanks again!

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  @j-manmarkus75914 ай бұрын

  Thank you for sharing! My friend's eight year old daughter just got diagnosed with it and we're looking for ways to treat it through clinical trials. I hear there is a new medication that may come out soon and we're hoping it becomes available soon.

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  @denisebucknall15915 ай бұрын

  ❤❤ how lovely congratulations

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  @speakeasypaw5 ай бұрын

  She's hot

• 
  @evelynrespass53856 ай бұрын

  I can't tell you how much I admire & respect you, Jessica. I am 63 & a while back I started losing central vision. I was absolutely TERRIFIED & thought "I am way too young for this." It didn't take long to learn that is definitely not true. The drs have all gone back & forth about my diagnosis but finally settled on "a form of macular degeneration" which is, of course, very similar to Stargardt. It is ironic that I stumbled across your video because lately I've started to become really passionate about the importance of RAISING AWARENESS. I feel that God has put it on my heart to "DO SOMETHING." You're so right that 1 really easy thing people can do to be helpful is actually identify themselves when they see us. When someone is close by who we've known for years it sometimes puzzles or even annoys them that we don't speak.. (I actually had that happen!) So when people learn we 'literally' can't tell who they are they will know next time what to do. Another thing I believe would be very helpful is for employers to actually educate new employees that when someone says, "I can't see that" when asked to 'tap a button' at check-out in a store/restaurant they may actually need a little help. Not knowing how severe our vision issues are they will often simply push the machine closer, which, of course, will not make any difference to some of us. Pointing to the correct button, or asking a "yes" or "no" question & then telling us, "Ok, push the red button, or green button, etc." Obviously that is something anyone in line can do as well. We don't mind, rather we appreciate your kindness. Anyway, THANK YOU, Jessica for what you are doing. You are a beautiful young woman, inside & out. HAPPY NEW YEAR, everyone!!!

• 
  @ElizabethIsaacs-ph9tn6 ай бұрын

  Hi do you have medication this disease

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  @TrishL3336 ай бұрын

  What was your eyesight at the time leegally blind no peripheral but some central vision?

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  @shelly82mm6 ай бұрын

  Thank You for this video! It was so refreshing to watch how positive you are especially with your Condition. My husband was just diagnosed with Stargardt back in August. It's been so hard for us because his vision has been perfect up until a year or so ago but has been getting increasingly worse these past 6 months. He no longer can drive and it effected his work to the point where he can't perform his job duties, so pretty much is not working right now and in the process of trying to figure out what he can do to provide for our children. What really gets me upset is the Dr. Who diagnosed my husband was pretty much this is your disease, there's nothing g I can do for you so no need to come back here and sent us on our way! He gave us no references, no direction no help what so ever! He left us to figure everything out on our own and we have no idea what we are doing. 😔 It's been a challenge and I am hoping eventually my husband will become more positive and embrace his condition, I know it will happen he just needs to find his place in life again. I'm glad I found your channel 💙

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  @JegErBrittnee6 ай бұрын

  I know this is an old video so you probably already know, but the braille on the shirt tells you the color of the shirt/clothing

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  @kathbrown68496 ай бұрын

  My daughter who is 44 has this disease diagnosed at 18, she's amazing and has adapted amazingly,I'm so proud of her and what she's achieving,she never asks for help and has a 17year old son, and is a wonderful mother. 😊

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  @Justallartsxx7 ай бұрын

  I am 14 nd just got diognosed

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  @allabuker15848 ай бұрын

  Hey i got diagnosed this year, i wanna ask when do you start to see the black dots? and does every stargart patient eventually see them?

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  @howardhudson54758 ай бұрын

  I was diagnosed while I was in the Army from Stargardt's disease. It has progressed to the point that my vision can no longer be corrected. I do see the floaties but dark spots as well and one large blur spot when I move my eyes. Cataract surgery helped some but in some ways made things worse as I can no longer read small txt without the aid of my camera on my phone.

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  @shaziabegsiddiqi14429 ай бұрын

  Thank u for sharing! I have the same disease and this really helped me

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  @louisesilverstein21529 ай бұрын

  Hi Jessica. I’m 68 and have been Dx with Stargarts. Early stage. I play a game on my iPad and there is a part of it where you use Magic Eye. I have been trying to improve but am having no luck. I think it could be the Stargarts. It IS scary. Thanks for doing this video. Lots of helpful info. My Dr. told me it is hereditary though I am not aware of anyone in my family having this?

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  @allabuker15848 ай бұрын

  Hey i got diagnosed this year, i wanna ask when do you start to see the black dots? and does every stargart patient eventually see them?

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  @lesegomotsomane58759 ай бұрын

  Im 42 was diagnosed with stargat in 2019 i have exactly the same symtomps im so far i have accepted how i should live my life. And i thank God im not blind i can still see things even though my. Central vision cannot. See properly

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  @aszulllo10 ай бұрын

  Exactly the same issues - drink my beer when everyone else reading menus - walked into the wrong restroom oops - many microwave mishaps - constantly misplacing things can spend a whole afternoon looking for keys - thx for the video

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  @pinguinspass10 ай бұрын

  Beispielsweise Hunde schütteln ihre Beute, um sie zu töten. Es ist doch logisch, dass das Schütteln des Babys ähnliche Auswirkungen hat. Außerdem muss doch klar sein, dass das Baby nicht weint, damit es geschüttelt wird. Das Schütteln des Babys kann also nicht das Bedürfnis des Baby befriedigen und ist daher keine Lösung des Problems. Solche Fälle sind ein Versagen der Politik. Es wird viel zu wenig auf Hilfsangebote hingewiesen und Hilfe anzunehmen ist viel zu stark stigmatisiert. Sei stark und hol dir Hilfe! Flyer und Infobroschüren zu Hilfsangeboten sollten in gynäkologischen Praxen, bei Hebammen, auf der Geburtenstation und bei Kinderärzten ausliegen, Eltern sollten bei der Geburt, spätestens mit der Geburtsurkunde Flyer und Infoheftchen mit Hilfsangeboten erhalten. Dem Alter entsprechend sollten in Kindergärten, Schulen, Sportvereinen und anderen Aufenthaltsorten von Kindern und Jugendlichen Informationsmaterialen zu Hilfsangeboten ausliegen, die sich einerseits an die Eltern richten und andererseits an die Kinder und Jugendlichen richten, beispielsweise wohin kann sich ein Kind oder Jugendlichen wenden, wenn es zu Hause vernachlässigt oder missbraucht wird oder es zu häuslicher Gewalt kommt. Die Städte sind zugepflastert mit Werbeflächen, auf diesen läuft meistens Werbung für etwas Unnötiges. Die Politik könnte auf 10% (oder mehr) der Werbeflächen auf die verschiedenen Hilfsangebote aufmerksam machen. Die Politik könnte einen zentralen Hilfsservice mit einer kurzen prägnanten Telefonnummer, E-Mail-Adresse und Webseitedomain einrichten. Dieser Service sollte 24/7 leicht erreichbar sein, denn schwierige Situationen können sich jederzeit ereignen. Alle Menschen, egal ob Kind oder Erwachsen, können sich an diese Stelle wenden, wenn sie Hilfe benötigen, egal aus welchem Grund. Da ist es egal, ob man mit dem Baby, dem Kind oder Jugendlichen überfordert ist, ob man psychisch krank ist, ob die Liebesbeziehung auseinander gebrochen ist, ob man zu Hause Gewalt erfährt, ob man mit der Pflege eines Angehörigen nervlich am Ende ist oder sich um jemanden sorgt. Bei Notfällen wird man direkt zur Leitstelle durchgestellt, bei allen anderen Fällen wird man dann an die entsprechende Hilfsstelle durchgestellt, mit denen man dann die Hilfe absprechen und organisieren kann. So eine zentrale Anlaufstelle für alle Hilfegesuche würde es erheblich vereinfachen, die richtigen Hilfen zu erhalten.

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  @MayaAgrippine10 ай бұрын

  This is amazing. Love every one of them and will for sure play around and restyle my oldies <3 Thank you :)

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  @kawikagarciaperez290010 ай бұрын

  That fan is marshlands

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  @joyalbiji297411 ай бұрын

  Im 18 and im also facing this problem

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  @allabuker15848 ай бұрын

  Do you see black dots?

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  @kerrywheeler107811 ай бұрын

  I just got diagnosed with it. My biggest problem is getting my eyes to adjust to a room after I've been outside in the daylight. Does anyone else have this problem? Thank you for this video you posted Jessica!

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  @gowtamk547310 ай бұрын

  Yes , i have the same problem

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  @afridikhan52737 ай бұрын

  Yes even I have this problem adjusting in less light after bright place

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  @palomashaw435111 ай бұрын

  After you have 1 child you find out that all these items are so unnecessary 😂 I have this bag and it is just so heavy by itself, now adding all the baby things is like carrying a rock, I ended up buying a baggu backpack for like $30 bucks and it has been perfect, never in my life used those bottle insulated things or pacifiers holders which are a germ incubator.

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  @mikestarkey7989 Жыл бұрын

  Banana+toffee = banoffee

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  @kevinbanecker7757 Жыл бұрын

  Hey, so my Blindspot isn’t black, it’s like three colors like the three printer colors. It’s kind of trippy looking. Is this uncommon for Stargardt’s? Do most people just not see anything in a certain area?

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  @jaywnd690 Жыл бұрын

  I also have that condition

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  @HeatherOwens-up7om Жыл бұрын

  These are my favorite oliver preston Aidan hunter matthew karter eli parker Bentley weston

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  @HeatherOwens-up7om Жыл бұрын

  Im so happy for u guys and love ur vlogs

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  @OxBigly2010 Жыл бұрын

  What price point is this box?

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  @JaredHuffaker Жыл бұрын

  I am currently 33 years old and have been living with Stargardt’s for 22 years.My vision has progressed passed 20/500. My eyes still play the trick that you talked about where you don’t really see the black dots in the middle. I have noticed that the “voids” are getting more and more prominent as my vision loss progresses. I have used my vision loss as inspiration to become a teacher of the visually impaired. I am hoping to help the community as much as I can as well, but I especially have a soft spot for kids.

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  @marciejade1408 Жыл бұрын

  I feel like Stargardt is so misunderstood! Would love more awareness and association that this is a blindness! Since we aren’t fully blind people think we just have some random vision loss. But things like reading, driving, working just basic life skills are so challenging for us and can’t be cured or fixed with regular glasses.

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  @allabuker15848 ай бұрын

  Hey i got diagnosed this year, i wanna ask when do you start to see the black dots? and does every stargart patient eventually see them?

• 
  @TravelLand1 Жыл бұрын

  Hi there, I was also diagnosed with Stargatz and I was wondering if you became aware of any treatment or cure to suggest by any chance. Thank you 🙏🏼

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  @babygrowth15 Жыл бұрын

  kzread.info/dash/bejne/fIVop5WbmrW_otY.html

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  @chuckmcmullen3624 Жыл бұрын

  you are right when you say at an early age when you get stargardts like you I got diagnosed at a very early age thirteen or fourteen /and didn't really deal with it just kept doing everything everybody else did all my buddies and I think that helped me a lot dealing with it// I feel bad for the folks who get it later on in life and are used to a seeing life 20/20 so to speak// like you I have a younger brother that it didn't happen to him until he was in his thirties it's hard to get used to it that time in life// probably like you I don't remember having great vision very much in my younger days before I was diagnosed but I am 71 years Young and I'm quite used to being this way/// good luck in your future endeavors young lady

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  @allabuker15848 ай бұрын

  Hey i got diagnosed this year, i wanna ask when do you start to see the black dots? and does every stargart patient eventually see them?

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  @allenshannon4291 Жыл бұрын

  Could you have had SD from birth but actually been living through it without knowing ? I’m 24 and I may have had it from birth I’ve never had 20/20 vision but horrible vision with no glasses and about 20/50 or 20/60 with glasses . They may diagnose me with it but I’m thinking I may have had it already

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  @marciejade1408 Жыл бұрын

  It’s a genetic disease so everyone who has it was born with the mutation.

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  @enchantedvoodoo7373 Жыл бұрын

  I AM SITTING HERE BAWLING LIKE A BABY!!!!

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  @GreenVenus Жыл бұрын

  Oh my gosh, I went to Ross last weekend and did the same thing, which made me search for tshirt cutting videos. This is literally perfect for what I was looking for! Haha

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  @danielmassey3157 Жыл бұрын

  Lol Big

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  @pammietime4495 Жыл бұрын

  Thank you for your vid! People at my work don't believe me and it is very upsetting.I struggle everyday and the union I pay money to every month to protect my rights are even questioning my disease because I have a restriction to work 9 hours a day 5 days a week.This is the worst situation only because they have no idea what I go thru as a mail carrier!

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  @seatherny_y Жыл бұрын

  My best friends mother has this disease and I asked her about it she does have the black dot in her vision

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  @hl3818 Жыл бұрын

  Soooo sweet 🥰🥰🥰🥰🥰🥰🥰🥰 !! Great Grandma 🥰🥰🥰🥰🥰🥰🥰🥰 !!!!