Hi friends!
My name is Lii Borossy, I'm a Swedish mom of 2 living in Spain. And as of resent I was diagnosed with Multiple Sclerosis. My life was turned upside down and I'm now on this new journey in life trying to battle a incurable disease while living the best life possible, being a mom and starting my new career. This stage of my life is very unpredictable and scary but also I have never been more happy before. I want to be a encouragement to you guys but also show you what it's really like living with MS.
🤰🏼🤱🏼👱🏼♀️☕️🗝
"Your life is your message to the world. Make sure its inspiring."
XOXO
Пікірлер
You came up in my feed. what a brave, beautiful person you are! I am recovering from Achilles tendon repair surgery. This is my first week being able to put full weight on my foot. I’ve been using crutches and a knee scooter. How I feel about it at this point is that you do what you gotta do sweetheart to take care of yourself, so you can take care of your family. I’m glad I found you. I’m going to follow you and I hope things get better and smoother in your life.
Be proud of yourself I too have MS we are superior fighters in our days to face MS. I bought a fancy cane, it so nice I get compliments of it, be mysterious be YOU
Lovely to catch up again, I hope everything went well yesterday with your results 💕💕
Are you doing any physiotherapy? Not exercising leads to muscle atrophy. It is very possible that you had a bad relapse but now if you are not doing physiotherapy and exercising your leg you may always need a mobility aid. I also have been diagnosed with MS and have had problems walking. .
OMG! 🙏
This is a huge thing for you to acknowledge and thank you for having the courage to share your struggles. It helps us to feel less isolated.❤
I’m not sure I’d use the wrist band. I’ve heard if you happen to fall and the band is on you could break your wrist. It’s better for the cane to just fall than your wrist attached to it. Just a thought. 🌸 your daughter is so right.
Beautiful cane
Thank you 😊
Hi !!!! Thanks for posting this kind of vidéos. I 'm 51 , and I have MS for 15 years Now. I had UPS and downs. AT one point , I had a walking stick ( around 42 years old ) and my mom had to push me in a wheel chair sometimes because I could walk Much moré than a few minutes AT a Time. I was in Ocrevus trial phase 3. I know you took this médecine. For me Ocrevus has change my life. I no longer use the walking stick or the wheel chair. So , things can get better. I know you think that this person is the New you but not necessarly. Ocrevus migth not help you like IT helped me, but another medicine can !!!! I had to stop Ocrevus 2 years ago, I had too Many infections. I am Now taking Mavenclad. I 'm Starting Year 2 tomorrow. Have a look at IT. I know how you feel , people Do Look. But after a very short Time you won't care anymore. When they Stare at you, smile to Them. A lot of the Time they Smiled back at me and IT was a Much more positive mood after that. I hope you continue to improve from this flare Up. I'm Marie from Québec City Canada 😘😘😘
Hi Marie! Wow Canada! How cool is that. 🤗 Thank you for sharing your story with me. I love reading about your experiences and see what works for you and what doesn’t. We can all learn so much from each other! I wish you all the best! Much love ❤️
@@LiiBorossy the same to you dear ! I very Much like your attitude! Yes we can encourage each other ans learn. You are young and strong, There is so Much hope.
Lol see, your children don’t know stigma. As result, they have joy Re telling you to stare back. (See my previous comment). Don’t ever let anyone take that (joy) away from them. Don’t ever let anyone take that (joy) from you for by way of you anyone will take it from your children.
We need to protect our joy and remind ourselves that joy is always possible! We got this! 🙏🏼🤗🧡
Walking cane: no big deal
😄💪🏼🙌🏼🧡
Ego is a big time waster, you best not listen to it, it only takes joy from people. You could be telling yourself there’s no such thing as stigma Homo sapiens make it up it’s make-believe. There’s no stigma about canes where I come from. I grew up with a grandfather who used one I saw it as a natural extension of himself it worked and he worked these worked together. That’s more than stigma will ever give you. Congratulations on your mobility, keep it up
I spent a lot of time with my grandparents too and they teach us so much. 🙏🏼🧡
@@LiiBorossy I agree they show us the difference between what is necessary and what is not as two generations apart
Your daughter is right..dont worry, people will always stare.. thanks for sharing :))
We might as well give them something interesting to stare at 😉
I'm so proud of you - you have already come such a long way from not even being able to let us know what it was to giving a tutorial on it. I completely understand how strange it feels when you first start using a cane. (I don't have MS but do have to use mobility aids). When I first started using my cane, it felt like everyone was watching me. Now I know that most people are busy thinking about themselves and their own lives. Then, I felt that way again when I started using a motorized cart in the grocery store - that one took awhile to get used to, but these things help me live my life so I have adjusted. I don't always have to use them but more often than not. You're right - there is a mourning period and that is just the way it works. Good luck on Wednesday and wishing you the very best.
Thank you Cindy!! 🧡 I’m a bit nervous about the appointment but interesting to hear about what the blood test shows. Can I ask how come you have to use a mobility aid? I’m currently being tested for other things a part from MS. My sister for example has EDS and I just recently started reading about the condition 🤯 and well let’s just say I wouldn’t be surprised if I had it too. We will see what the doctor thinks. Xx
@@LiiBorossy I have lupus and also have severe arthritis in one little bone in my right foot that makes it very painful to walk and impossible to walk very far. I get steroid injections in it and that helps for awhile. I can get a fusion surgery but I am just not ready for that yet - long recovery. I stopped my lupus drug for awhile and then I started having a lot of pain in both feet. I thought it was arthritis but started my lupus med back and it has gotten much better so that part must have been related to the lupus. Sometimes it's hard to tease different problems out. MS and lupus are alike in that you have flares. I was very disabled with pain when I was first diagnosed with lupus in my 20's and I thought it would always be like that but after treatment, it got much better and has never been that severe again. Anyway, I hope that you are just in a bad flare and improve too.
Lii , it's a lovely stick. I have a similar one. Love and hugs. X
That’s nice! I think there are a lot of cute ones out there but for the price I really like it. ☺️
Please don't worry about using your ( very pretty) cane in public. Your lovely little daughter is so right, if anyone should stare, you just stare right back. ❤
🥰🥰🥰🥰🥰🥰🥰 I will, thank you ☺️
Lii, My precious aunt had MS (she passed away in old age of something entirely different) so I have lived the pain of having to see her struggle, her lows as well as her highs and I know the seriousness of it. On a lighter note, it was so funny of your daughter to say to stare back😅 and I have seen Barbie with a walking stick recently. So you are a Barbie with yours beautiful lady!
Hihi thank you! 😄 That’s me lol Barbie with her walking stick! 🩷😋
Even though I can’t believe you would be worried what strangers thought I would probably be the same way initially the Walking stick is really cute and stylish and at the end of The day was most important is that it helps you continue to live your life with your family and your friends! Colorado USA
You are so right! ❤️❤️ Wow I think it’s so cool when you guys tell me where you are from! Our community is crowing across the world! 🌎 it’s mind blowing. All the best to you Alicia 🧡
Thanks for sharing
You are welcome. ☺️
I'm on Ocrevus, I am following your journey and you are in my ❤️
How long have you been on Ocrevus? How has your experience been so far? 🧡
@@LiiBorossyI started Ocrevus in October my mobility has suffered so bad. Have Neurologist on Wednesday for a review as I don't want to continue on Ocrevus for this reason x
Buy several in different colours. I use crutches❤
I know its Psychologically Challenging Lii, but Embrace IT with a Humourous pragmatic Smile. Tell Yourself you have a Bullet proof Soul. I use them. I also use a Rollator. (On good AND BAD DAYS) Its my 100% default setting to use One, after Many GREY-OUTS & a few BLACK-OUTS. Especially in Heat. Grey Outs are almost scarier, Because of the Morbid Expectation of Blacking Out. I don't tell Anyone, its a Private Battle. YES! OTHERS tend to profile You with Walking aids. (Their Problem). But with a Walking Stick you retain your IQ in the eyes of the Facile Humans. With a Rollator, they think me Stupid & Deaf and speak to me like a Child. Not everyone but Enough to Hurt my feelings. Maybe This is a Particular Australian problem. (Normalised BULLYING). Hopefully Swedes & Spaniards have more Respect & Empathy & Soul. (If not you have a weapon to wield)
I’m sorry to hear that. I wish people would understand and show more empathy and respect. Stay strong my friend.
@@LiiBorossy Thank You Lii. BTW, I can tell by the timbre of your VOICE that You ARE The Same {Sweet & Sensitive & Lovely} Person that makes you YOU. Despite the MS Autoimmunity Bio-Civil War. And THAT is Important - To honour & nurture your Nature in the Battle. It's hard to Stay true to your Nature & not become cynical & hardened Like a Warrior. Eg: I want so very much to go to the NGV to see the Pharoahs Egyptian Exhibition in Melbourne (without THINKING about..) but their Thermostat is always dialled up for Everyone Else who feels the Cöld. So if I go, I have to wear a Wet Beanie which makes me look ridiculous but it's my Heat Intolerance Reality. (Why the Ice Hockey Rink is my Happy Place, especially in Summer). PS: My Son was Studying Nursing during COVID but it got too Hard doing it Online. His ambition was to Graduate and Work in Sweden. How good is That Ambition. Anyway Much Love to you and Your family Lii ❤️
Thinking of you always ❤
Thank you dear❤️
Take a look at Dr. Brooke Goldner’s goodbye auto immune protocol. Loads of testimonials, lots of free information. It reversed my rheumatoid arthritis in 2 weeks. I stuck with the highest level of the dietary program for six full months and then added in one cooked vegan meal a day in addition to all of the hyper nourishment.
Hello! Please check out the KZread channel Cabana Chronicles. She is a fellow MS sufferer who has forged her own path to remission via a very intensive dietary intervention. She was diagnosed in 2016 and was wheelchair reliant for much of the last 8 years. In 2023, she went to an entirely animal-based diet. One year later, she has no MS symptoms anymore. She is currently fighting to have her MS diagnosis removed (for health insurance reasons) and is scheduled for an MRI in August to check the status of her brain lesions. Her community is waiting alongside her with bated breath to see if her lesions have reduced in size or even healed. She is not the only MS sufferer who has used an animal-based diet to manage their symptoms, but as far as I know she is the only one so far who will be documenting her MRI scans publicly. This is pretty huge, as modern medicine largely regards MS as an incurable progressive disease, but Rebecca and several others have proven that, at the very least, the symptoms can be put into remission without the use of medication. I'm personally looking forward to her MRI results, as she may be the first person in history to show definitively that MS is curable. That aside, I wish you well, and all the other MS sufferers in your community, too. I lived with chronic fatigue, arthritis, and severe mental health problems for many years before I changed to an animal based diet and healed everything...so while I definitely do not know the hell that MS is, I can at least relate to the suffering of having an invisible chronic illness. Nobody deserves it. Everyone deserves a chance to be healthy and live without pain.
Get something to eat, and let me know. I am covered on my brain with burnout's. And I am covered in them. I have fallen more, thatn I could count. Stop Drinking and smoke weed at night time. And I have major foot drop.
Hi Lii my name is Carrie I have been here for a while I have commented before. I have MS I have had it for 19 years. I am a mom of 2 kiddos 18 and 10. I have to say I admire your strength. You got this. One thing I can say about having MS is its a illness of many Griefs but we learn to live with changes and challenges but the truth is there isn’t anything a Mother won’t do to be strong and resilient for her children and her family. I believe in you. Those tears you cry are tears of uncertainty which is normal be easy on your self you are stronger then you know. I will be here watching! MS is what we have but it’s not who we ARE!!!!’ ❤
Thank you dear. Your comment was the first I read this morning and I it was just what I needed to hear. 🙏🏼❤️ Thank you for being here and showing your support. I appreciate you very much. Much love to you and your family 🧡
💙
This stuff should not happen. MS is inflamatory disease guess what counter attack that magnesiun the vegetables that you eat every single day. Crops in the U.S are low in minerals thats why it happens, people getting cancer at 30, 40 that should not happen i live south america we dont have cancer cases at 30 or 40.
It's hard to believe how life can change :(
Yes 🥺 but we can still live good lives. 🙏🏼❤️
🙏🏾
So glad to see you are feeling more positive! You got this!!!!
Thank you sweetheart ❤️
Jab side-effects?
Oh! That reminds me I knew of a lady decades ago who had MS and she was a lawyer. You don’t have to lose income just because of MS there’s surely options where you are.
Looks like a type of IVY (English word for your plant you wondered about) these generally cover walls and fences these are a beautiful feature for homes
Yes! Thank you, IVY why couldn’t I think of that?! 🤭 It’s one of my favorite plants 🪴 and this one is special because my mom gave it to me. She has one just the same covering her wall around her house! 🥰 it’s so pretty.
@@LiiBorossy yes these are a fantastic addition to any home!
Tomato plants that’s super, good for you
🥰🌱🍅🙏🏼❤️🧡
Congratulations on your feeling free to use your cane you deserve a toast get your family involved to give you one lol 👍
Thank you! This was a very big deal for me. But my cane is quickly becoming a part of my daily routine.
@@LiiBorossy it’s a natural thing don’t be embarrassed by it, it’s no different than if you were walking in the woods and you picked up a stick to tag along. You could even take it on as a family project and paint it like people do their casts depending on what you have
You don’t have to apologize it’s your page you do as you need
No apologies needed. Thank you for the update. I’m glad to hear that you’re feeling a little stronger. Many prayers given for you!!
I think as the corticosteroids are wearing off mentally I’m feeling better. 🙏🏼 I’m might be in denial though 😅
You are a lovely energy, so don’t let your emotions beat you up. I want to suggest physio, have you asked your doctor about it or a physiotherapist? I don’t know much about MS and the treatment they give you, but as you are in the early stages I don’t see why they’re spending so much time poking and prodding that may only send the wrong signals to your body. There’s an old saying ‘if you don’t use it you lose it’ so I would think physio is a better way to utilize this time or at least include in this time. For could it stimulate what needs motivation to detract from the course it’s currently on? Maybe that’s unlikely but ‘it won’t hurt to try’ if that’s what the physiologist says. If you remember, as my grandfather practiced moving every day he was able to walk a year later even though he was told he’d never walk again. Had he not practiced movement (and it wasn’t even recommended by doctors he thought of it himself) the polio would have only set in then if that’s what was happening. It never hurts to try what nobody else is doing. Because you just never know what your body-as an individual-needs. People ARE individuals this is never taken into consideration they’re somewhat pigeonholed in the medical fields. That’s why it’s so important to try different things it could be a very simple answer and you just don’t know until you try.
Absolutely! I told my doctor I want to start physical therapy again. But in the meantime I’m doing it at home. Very simple stuff but I think it’s making a difference. 🙂🙏🏼
@@LiiBorossy yes absolutely at home is just as well you have more time there and you can focus on that time. Usually physiotherapists will show you what you need to do on your own (if you can or have family to help) so that you don’t have to pay for every visit or maybe you’re covered but whatever the case they’re very helpful it’s one of the most important studies a person could have actually it’s really beneficial I’ve never heard anything but remarkable things about them good for you I’m glad you’re moving forward keeps the mind moving forward too
Aaaaawwww I wish I could take away your pain.I also have MS mine is secondary progressive now& I'm 54 had it since early 20s.I take so many tablets& have morphine patches.I can't walk very well& I use a scooter to get around.I walk a few steps.I can get tired all time& it's just so shitty.I won't give up though.Im praying for you & god bless you.xx
I’m so sorry! Are you on any DMT? Or have you stopped that? ❤️
Me encantan tus plantitas! es la mejor terapia! quedó muy bonito ese espacio. Te mando un abrazo!
¡Siii! Son muy lindos y me encantan. Cada mañana antes empezaban el calor me siento un rato mirándolos. 🥰🌱
Shirley here I have a bad hip that need replaced and my back is so weak when I walk I have to us a cane and my legs tire out so fast. I oil what it must be like to have MS. but you look great.
I’m sorry you are struggling too. Whatever condition you have, dealing with pains/disabilities of any kind is hard. I send you strength and a hug!
@@LiiBorossy Awe you you to sweetie.
Glad you’re in a much better headspace, take care and praying 🤲🏻 for u !!
Yes the last time you saw me I was probably at my worst or close to that… Thank you for your prayers 🙏🏼❤️it helps ☺️
You don't have to say sorry, when I was first diagnosed and was dealing with a massive relapse I was a mess, really never been like that in my entire life, I was broken. Emotionally I was just as broken down as I was physically. It is a lot for anyone to go through, I am glad you are feeling a bit better and glad you are enjoying the beautiful things in life. :) Hoping you continue to improve <3
Thank you! Yes you are 100% right and I hate that you had to go through that!! Makes me angry to know that you guys are suffering too. I wish we could just make it go away… but back to more positive thoughts and hopefully improving.🤞🏼🙏🏼🧡
Dress your cane up! Bedazzle…her bling her up! Make her look fun!!
Love this idea! Make it more fun 🤩
Nooo you said absolutely nothing out of bounds or offensive! Don’t even worry about it. I have been wondering how you are doing. I hope you are able to get whatever disability and mobility things you can!
Thank you! Yes I hope so too. It would be very helpful to be able to park in a handicap parking spot for example. 😢 Now I can’t do a simple tasks if it requires me to walk many steps. Very frustrating but I’m learning.
So glad you are in better spirits Lii - that's the most important and most difficult part🧡. Thank you for showing your garden - little pleasures can keep us going! P.S. Nothing you said was offensive, don't worry. You have helped me so very much and I thank you with love from Lee
I think we help each other 🙏🏼🧡 sooooo many times have you helped me stay strong and keep going. So thank you and much love
@@LiiBorossy You made my day🤗
@@MamaV6531 🥰🥰🥰🥰
This is a totally random comment but make sure to prune away the suckers (de sidoskott som växer upp i grenvecken) on your tomato plants so the plant will focus on producing fruit instead of more offshoot branches 🙂🙂
Yes! Great advice! I’ll do that tomorrow 🥰
I too have MS, jumped from an EDSS of 2.0 to 6.5, and now use a rollator full-time. It took many years to be diagnosed and have just started on Ocrevus. I live in Canada and and am affected by the hot summers and cold winters. Thank-you for sharing your journey.
How long have you been on Ocrevus for? I hope you get the help you need. If there is anything I can do to help please let me know. Much love and strength 🧡