National Tremor Foundation

National Tremor Foundation

Explain the science

Explain the science

The Journey Week 6 & 7

The Journey Week 6 & 7

Journey week 3

Journey week 3

Journey week 2

Journey week 2

The Journey: Week 1 review

The Journey: Week 1 review

Пікірлер

  • @RohitSingh-jw1lc
    @RohitSingh-jw1lcАй бұрын

    How Ryan got fixed, i mean he seems fine, how ??

  • @georgecottam2387
    @georgecottam23874 ай бұрын

    im 25, i’ve noticed my tremor since i was about 12 but didnt know it till about 16-17 the shaking has effected me with getting good jobs because i would rather hide away than actually be seen especially with my hands but when i was playing football i was also playing darts a lot and i felt good being seen more, then i got a bad knee injury and has stopped me from exercising and playing football so that has made my anxiety blow up really bad, i just feel like im going insane all the time tbh

  • @HBD777
    @HBD7774 ай бұрын

    I’m 33 and have et. Had to leave a dispatch job because of that and depression. I was put on propranolol as well which contributed to depression. Recently got off propranolol and put on primidone. I’m hoping at 50mg it will help. It’s funny because I could go skateboard and do some crazy and tedious tricks and not shake at all. Then I could be at a store and my hands and head start to shake. Even if I’m not anxious. People have thought I was hungover or on drugs as well lol it’s funny because I quit drinking over a year ago. Anyway, thanks for the vid, cheers man!

  • @happylife4734
    @happylife47345 ай бұрын

    Bad recording low voice volume

  • @felixotoo4361
    @felixotoo43619 ай бұрын

    This is reassuring to watch considering I also am dealing with essential tremor. My first experience long before I had a diagnosis was struggling to write the number 3.

  • @metiafmohamed3919
    @metiafmohamed3919 Жыл бұрын

    كيف تخلصت منها أو كيف عالجتها

  • @JamesDThomas1981
    @JamesDThomas1981 Жыл бұрын

    I am 41 years old and have ET. I got mine from my mother. One natural way to reduce is effect is to stay in good shape working out. Running reduces your resting hear rate and this will reduce the tremmor. Mine is geetting worst as i get older. So i literally just got prescribed propanolol. Hopefully is works pretty good. In any case, i will not let ET stop me from doing what i want to do in this lifetime 😊.

  • @lilhadnmavn4486
    @lilhadnmavn4486 Жыл бұрын

    Its just so hard when youre younger and you get the tremors in an interview cause you get automatically passed on

  • @lilhadnmavn4486
    @lilhadnmavn4486 Жыл бұрын

    I just turned 19 bro im in fucking tears. You have named everything that has happened in my life. Im scared to get a job cause of the inerview. No one has ever brought this up to me and everyone makes so much fun of me for it

  • @JamesDThomas1981
    @JamesDThomas1981 Жыл бұрын

    I am so sorry this happened to you. I have ET too. Fuck those people. I often think there are so many people who have worse problems and still get stuff done.

  • @christinehoytaylor3026
    @christinehoytaylor3026 Жыл бұрын

    So glad this treatment worked for him. My husband had severe tremors in both hands, shoulders and head. DBS unfortunately didn’t work and affected his balance quite severely.

  • @christinehoytaylor3026
    @christinehoytaylor3026 Жыл бұрын

    I had no idea this forum existed. I have a partner with essential tremor. He had DBS with minor success and after surgery developed a severe balance problem. This has greatly impacted his quality of life and is on par with the severity of his hand tremors. He also has shoulder tremors and a yes yes head tremor. We are desperate for knowledge and/or help. Is there any research ongoing into the effect of B vitamins, particularly B1, helping essential tremor does anyone know?

  • @chrisharris1705
    @chrisharris17052 жыл бұрын

    hi im Chris I've had essential tremors since I was 6 years old I'm now 39 you give hope and encouragement to all of us thank you

  • @ExacoMvm
    @ExacoMvm2 жыл бұрын

    I relate a lot, but my problem is full body shaking induced by stress, excitement or fear/phobia just as intense as hands so when at doctor I might not even shake if I feel alright. Not sure if it's common in Essential Tremor but pretty sure it started mostly with hands, which I've noticed first time when I was 9yo using a laser on airsoft gun. I was also 17 when trying to get diagnosis, but doctors didn't found anything, maybe they ignored it because I was doing it at the same time as doing health check for future military service, so ppl usually lie and complain about various things just to get denied but ofc I got approved and years later denied when the actual service was about to start because of all the psychological issues such as GAD and Depression I've developed thanks to the tremor.

  • @swatikhatuwalahongkong4165
    @swatikhatuwalahongkong41652 жыл бұрын

    Hello do u have this treatment in India or hongkong

  • @kimfab1973
    @kimfab19732 жыл бұрын

    Thanks for sharing your experience, you're a handsome and attractive young man! I hope you all the best.

  • @kimfab1973
    @kimfab19732 жыл бұрын

    Thanks Ryan. I have myself an essential tremor, my head is shaking and It's becoming a big social problem. You're handsome and attractive and I wish you all the best!

  • @anjanaperera4689
    @anjanaperera46892 жыл бұрын

    This is inspiring.

  • @HamaBenji
    @HamaBenji2 жыл бұрын

    Get right with the lord Jesus Christ before it’s too late repent and put ur faith in Christ. Jesus Christ died on the cross for our sins and risen on the third day he’s the only way to salvation John 14:6 John 3:36 John 3:16 Romans 10:9.

  • @kimfab1973
    @kimfab19732 жыл бұрын

    If you were a true believer you would respect and be compassionate. Learn to listen and not judge.

  • @HamaBenji
    @HamaBenji2 жыл бұрын

    @@kimfab1973 how am I judging? I am simply sharing the gospel because I love everyone enough to warn them and tell them the truth I don’t want anymore people to go to hell especially knowing how to get to salvation and who you get salvation from. God bless u, have a wonderful rest of your day, and remember Jesus Christ loves you

  • @kimspringall5128
    @kimspringall51282 жыл бұрын

    This is really comforting to hear. I’ve recently started a degree in nursing and It’s heightened how much my hands tremor and it’s making me question if I’ve chosen the right career. I’ve been shaky in my hands since about 16 but its been easier to mask and rather mild. I haven’t got a diagnosis yet but have recently had my bloods taken to rule out anything else, although it’s not caused by anxiety it does make it significantly worse and I find a few glasses of alcohol reduces my tremors to that of someone without tremors. It’s causing a lot of anxiety but hearing other peoples experiences really helps. Especially from younger generations. Thanks for the video

  • @elvin2374
    @elvin23742 жыл бұрын

    I’m a nurse and I shake and a lot of nurses do as well. You will do great 😉

  • @raniasham3176
    @raniasham317610 ай бұрын

    @@elvin2374me too I’m a nurse and I have it … it get worse when someone around me and they say why you shaking 😢I get nervous and I start to shake more …. Also when I need to start iv or withdraw blood 😢

  • @Gyomei_the_strongest_hashira
    @Gyomei_the_strongest_hashira7 ай бұрын

    ​@@raniasham3176parkinson maybe cause also my father has and he started consuming alcohol recently often

  • @hexxjayonyt_ismyepic
    @hexxjayonyt_ismyepic5 ай бұрын

    @@raniasham3176 wow! I’m a nurse & I’ve recently started doing IVs & I’m shaking like crazy!! I spoke with my primary care doctor last week & she prescribed propranolol & it helped. I even noticed my heart rate lower, at work my heart rate was 104 at rest 😳 we’ll get through this strong 💪🏾

  • @gowthami7701
    @gowthami77012 жыл бұрын

    Even I have tremors since my childhood

  • @dhandekrushna4055
    @dhandekrushna40552 жыл бұрын

    Are you from India?

  • @gowthami7701
    @gowthami77012 жыл бұрын

    @@dhandekrushna4055 yes brother

  • @dhandekrushna4055
    @dhandekrushna40552 жыл бұрын

    @@gowthami7701 aapne treatment nahi liya ?

  • @dhandekrushna4055
    @dhandekrushna40552 жыл бұрын

    Mujhe bhi ET hai jab mai 18 complete hua tab se yeh badh Raha hai

  • @gowthami7701
    @gowthami77012 жыл бұрын

    @@dhandekrushna4055 iam taking propranolol & no more treatment

  • @maryjones8726
    @maryjones87262 жыл бұрын

    Get tested for a vitamin B12 deficiency.

  • @KishBish
    @KishBish2 жыл бұрын

    I have tremor and my B12 was elevated..

  • @maryjones8726
    @maryjones87262 жыл бұрын

    @@KishBish Sally Pacholok in her book "Could it be B12?" states that there is much controversy as to what constitutes a normal result for B12. She believes the "normal" serum B12 threshold needs to be raised from 200 pg/ml to at least 450 pg/ml.

  • @KishBish
    @KishBish2 жыл бұрын

    @@maryjones8726 mine is 1824 pg/mL lol.. I know bc I recently had labs and specifically requested my B12, magnesium, and D3 numbers.. I supplement over what is suggested, so I keep an eye on things.. I'm not really sure what is causing the tremor, but I've had it since I was a teen (I'm 46) and the only thing that ever completely stops it is Klonopin, but I haven't taken that in years.. could be my dental amalgams, who knows..

  • @colefox2882
    @colefox2882 Жыл бұрын

    Ah “B12 deficiency” . . Every ET, PD, MS & ALS patient’s dream. 🙃

  • @HBD777
    @HBD7774 ай бұрын

    @@colefox2882wanted to say this lol. People who don’t have it totally get that it’s probably just b12. All the tests and seizures point right to the vitamins 😂

  • @williambolton4698
    @williambolton46982 жыл бұрын

    I have inherited Essential Tremor like Ryan from birth. I have a private theory about my tremor. Over the years I have come recognise that, counter intuitively, when I relax my tremor increases. I think that during my daily life at work and elsewhere, I subconsciously monitor my tremor and something somewhere in my mind helps to reduce the strength of the shaking. However, when I'm at home and I'm feeling very relaxed, I think I drop that subconscious monitor and as a consequence, the tremor becomes much more violent when I try to eat or drink a cup of tea. I suppose we all have different experience of ET but i'm guessing that many people have been surprised when they notice Ryan's tremor as he is otherwise quite a cool character. It's my completely unscientific theory but I do think that perhaps Ryan had the unconscious monitor switched on during the filming.

  • @kishamarang4849
    @kishamarang4849 Жыл бұрын

    Ur condition is not by ET it's a signs of Parkinson's disease it's also like ET but Parkinson causes shaking hand or body when u are in rest while essentially tumor cause shaking of hand when ur circus or do something

  • @TheHansBeekhuyzenChannel
    @TheHansBeekhuyzenChannel2 жыл бұрын

    I had ET since my 20th. At 66 it got so worse that drinking from a cup or glass was extremely difficult since my hands were shaking severely. I also developed a head tremor over the years. I tried six types of medication but they didn't solve the problem. So in 2021 I underwent the DBS operation. I explained why in a video. Two weeks after the operation I made another video. The videos are not sponsored in any way.

  • @TheHansBeekhuyzenChannel
    @TheHansBeekhuyzenChannel2 жыл бұрын

    2 days ago I had ET since my 20th. At 66 it got so worse that drinking from a cup or glass was extremely difficult since my hands were shaking severely. I also developed a head tremor over the years. I tried six types of medication but they didn't solve the problem. So in 2021 I underwent the DBS operation. I explained why in this video: kzread.info/dash/bejne/lKN1zbaLeMbAaKw.html. Two weeks after the operation I made this video: kzread.info/dash/bejne/oI17ltZyg6u3iaQ.html

  • @TamiePryor
    @TamiePryor2 жыл бұрын

    I noticed that my son starting having them in middle school. We were told that they are hereditary but we do not know of anyone in the family who has them. Does anyone in Chloe's family have them?

  • @carikshawn4201
    @carikshawn42013 жыл бұрын

    cannot hear Jamie..they needed to have him talk with a mike...

  • @_blew_a_fuse_7372
    @_blew_a_fuse_73723 жыл бұрын

    Lack of dopamine causes this take vitamin d for it it raises this crucial chemical in the brain and crosses the blood brain barrier these stupid dr aren't going to tell you this for the sake of profit

  • @bobbybaucom9440
    @bobbybaucom94403 жыл бұрын

    In high school, I began to notice that my handwriting was so laborious. It was necessary for me to grip the pencil so tightly. In my twenties, it manifested itself just as I got a good job here in Las Vegas that required a lot of writing. I can't begin to tell you how difficult that made my job. I went to a renowned medical facility to see a neurologist who diagnosed my problem as an essential, or familial tremor. It has only effected me for tasks like handwriting, never for holding a cup, typing, or other things. Finally, the tremor got so bad that my PCP put me on propanolol, a blood pressure medication that, oddly enough, helps a lot of people suffering from this type of tremor. That has helped a bit but not a great deal. Simple tasks like filling our forms at doctor's office or updating my information for a passport or driver's license renewal were difficult. For a couple of years on my job, I changed over to using my left hand, but the tremor gradually began to affect that hand as well. It was with a great deal of relief the day I retired and knew that I would never have to earn a living where writing was a necessary part of it. My heartfelt sympathies go out to Ryan and the others who suffer from any type of tremor. I wish he had given us more information on his problem now as he didn't seem to be shaking in the video he made. Whatever, I wish him the best and thank him for posting. Oh, does anyone know what causes these tremors? What is the defect in the body that results in this problem?

  • @vanessaharling1957
    @vanessaharling19573 жыл бұрын

    I was dealing with full on head tremors at age 12 ,I wish my tremors had been in my hands only

  • @mary-annebarnett654
    @mary-annebarnett6543 жыл бұрын

    I have had this since my late teens/early twenties & I am 68. I am going through a bad phase of tremor up through my head, which makes it almost impossible, even with mindful breathing and yoga relaxation techniques to get any rest. My head shakes, so do my arms and hands. I am currently taking 40mg of propanalol twice a day which has little or no effect. Any suggestions would be gratefully received as I am struggling to cope with daily tasks & doing my computer based job is a struggle.

  • @anishsharma2485
    @anishsharma24852 жыл бұрын

    There is surgery option deep Brain stimulation and gamma knife

  • @jamesryan9137
    @jamesryan913715 күн бұрын

    Look into guided ultrasound, non invasive and really effective.

  • @richardsharpe5878
    @richardsharpe58783 жыл бұрын

    Thank you Ryan. This is very helpful. My teenage grandson has essential tremors, I am searching for ways to support him. Lately he has been going to acupuncture which seems to help.

  • @dvijay461
    @dvijay4612 жыл бұрын

    Hi, That's very nice of you! Any update on your grandson? I am trying acupuncture to see if it helps mine.

  • @remykisjes821
    @remykisjes8219 ай бұрын

    Is it working? will look it up hope it works.

  • @richardsharpe5878
    @richardsharpe58789 ай бұрын

    It definitely helped and lessened the symptoms@@remykisjes821

  • @jaisekotaissa
    @jaisekotaissa3 жыл бұрын

    This is so encouraging. I have just started getting shaky hands and my work involves heavy use of computers. But slowly I have started using my feets to type as a workaround in case it gets very worse.

  • @Joey71420
    @Joey71420 Жыл бұрын

    Are you serious? I'm scared now.

  • @acs2735
    @acs2735 Жыл бұрын

    Yes it gets worse. My typing/texting is slowing. Also repetitive tasks with hands - organising papers, carrying boxes is becoming very difficult.

  • @carolasbury5290
    @carolasbury52903 жыл бұрын

    Thanks Ryan my son has just started shaking in his hands and he is very scared about it, can you get a hold of me

  • @doglover7377
    @doglover73773 жыл бұрын

    I got essential tremor and live in Scotland I have it in my legs at the top and I allso have it in my arms and hands I would like. to find a group near me in clackmanninshire to meat people just like me

  • @anishsharma2485
    @anishsharma24852 жыл бұрын

    Bro I also have tremors in my hands, arms and legs but my tremors are not present during movement or rest. They are only present when my body part is completely still

  • @dhandekrushna4055
    @dhandekrushna40552 жыл бұрын

    @@anishsharma2485 hi Bhai I have essential tremer since I was 18

  • @dhandekrushna4055
    @dhandekrushna40552 жыл бұрын

    @@nivedita.9089 In pichale 5-6 months se kafi mehsus kar raha hu jyada social places par Jana bhi kam kar diya hai

  • @dhandekrushna4055
    @dhandekrushna40552 жыл бұрын

    Mai abhi msc kar raha hu but ab college Jane me bhi sharam aati hai

  • @dhandekrushna4055
    @dhandekrushna40552 жыл бұрын

    @@nivedita.9089 Kafi negative thoughts aate rehte hai agar medicines na lu toh hand writing bhi achi nahi aati

  • @wanderer5581
    @wanderer55814 жыл бұрын

    Let's hope they can accelerate the program and make it available to more people. I am not far behind Geoff condition wise, and am desperate to get this debilitating condition reduced. Thanks for all the good work !

  • @seleldjdfmn221
    @seleldjdfmn2214 жыл бұрын

    Good Stuff. What App is That? I really want to be youtube friends :O

  • @ari220884
    @ari2208844 жыл бұрын

    I’m 35 years old and I have shaky hands since I was 9 years old. I tried to get help over the years, but I was always told by doctors that my hands shook because I was a nervous and anxious person. The tremors have got worse along the years, this week I decided to some search on KZread about shaky hands, that’s when I found out about essential tremors. I talked to my doctors about essential tremor and I’ll start taking medication for it soon. Hopefully it will help, it’s difficult not knowing how bad the tremor will be in few years and how it will keep affecting my life.

  • @Gemby13
    @Gemby133 жыл бұрын

    Hey, I have essential tremors also, is your medicine is works?

  • @marlonjaimes5420
    @marlonjaimes54203 жыл бұрын

    @@Gemby13 it helps but not to much

  • @wilsondoguiles931
    @wilsondoguiles9312 жыл бұрын

    What medication do you take

  • @ari220884
    @ari2208842 жыл бұрын

    @@Gemby13 Propranalol, it's usually used to control high blood pressure. It works for me, but if I forget to take, I feel headache.

  • @ari220884
    @ari2208842 жыл бұрын

    @@wilsondoguiles931 Propranalol, it's usually used to control high blood pressure. It works for me, but if I forget to take, I feel headache.

  • @MrPhilipjenkins1966
    @MrPhilipjenkins19665 жыл бұрын

    Well done tony

  • @nowayjose9564
    @nowayjose95645 жыл бұрын

    How did he treat it? He looks fine!

  • @Gemby13
    @Gemby133 жыл бұрын

    Yea, I also curious

  • @rosiebarajas6741
    @rosiebarajas67419 ай бұрын

    Yes curious since he states he took Propranol for 1 yr. My husband is currently on it and it makes him feel nauseous and drowsy and insomnia at night..😢

  • @jackiefarrell6089
    @jackiefarrell60895 жыл бұрын

    Thank you to Mayor of Sutton for opening the Essential Tremor awareness day March 9th, 2019 and Sutton neighbourhood grant for their support. Around 70 people attended, many who had the disorder had never met others before and some not even aware of National Tremor Foundation. But they left having made new friends and knowing there is a support group in Sutton . Contact: Jackie Farrell for more group information at [email protected] or NTF at www.tremor.org.uk

  • @lindahe8195
    @lindahe81956 жыл бұрын

    How did you treat the tremor? please

  • @laurenrootham7868
    @laurenrootham78686 жыл бұрын

    Hey, Chloe! I don't know if you remember me from some of your German classes at Uni, but hope you're well! Just wanted to say that I think it's fab that you're speaking out and talking more about your essential tremor and I have a lot of admiration for that! Keep doing what you're doing, and don't let it stop you from achieving all you dreams and wishes! Und ich hoffe auch, dass deine Zeit in Deutschland Spaß gemacht hat! Take care, girl! :) P.S. And if it's any consolation, I barely even noticed your tremor!

  • @lindahe8195
    @lindahe81956 жыл бұрын

    Lauren Rootham How did you treat the tremor?

  • @jackiefarrell4894
    @jackiefarrell48946 жыл бұрын

    Thanks Ryan for sharing your Essential Tremor experiences. So pleased you were able to attend the NTF Open Day. It was great to meet you in Oxford.