Freddo the Wheelchair Guy
Freddo the Wheelchair Guy
A channel focused on helping fellow paraplegics dealing with the complications of spinal cord injuries, from spasms to mental health. Documenting my life since my accident, the highs and the lows, with honesty
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so relatable😅..me too has couple of funny story as spinal cord injury person.. bro nice🙌chatting video make more content like this..love❤️ from Nepal 🇳🇵
Patreon take quite a heft fee, too. I believe "buy me a coffee" is the best for the creator in what they receive.
As far as trampoline parks,once you get older one is not so enthusiastic.Also once your child reaches 12,they want no part of your instructions or advice. You both are heroes accomplishing so much,yet still in an upbeat mood.
The older they get, the harder it is to cope. My stepdad was diagnosed when he was in his early 90s. My mom was in her late 80s and having to deal with the same questions and conversations everyday, took it's toll on her. When my stepdad had to go to a nursing home, my mom was devastated. Every cross word and scolding that she had with my stepdad came back to haunt her. She cried every night for the month before she died. She saw him one time after he went to the nursing home, then died unexpectedly three days later. I honestly think she died of a broken heart. My stepdad died four months later, missing his 95th birthday by eight days. The last couple of years have been really hard!
I'm a 61 year old, able-bodied woman and I have been mourning and grieving, not only the loss of my parents in the last couple of years, but also the fact that I will never have children. I always wanted to marry and have a family.....that never came to pass and now I'm looking at the fact that I may never find "the one." It's like I went from being a girl to being an old maid and didn't have a life in between. 😕
Great talk! Brian’s empath spirit shines through ☀️
I actually taught my son how to ride his bike lol. It was not pretty 😂. It was a lot of yelling and telling him to get back on the bike. That last time your kid is able to sit on your lap is bitter sweet 😢.
I’m not disagreeing with Britt, there are definitely cool perks of the SCI and wheelchair use, but (negative take here) I feel like those are way outnumbered by the times I can’t get around and I can’t experience something with my kids. And I consider myself very highly functioning. Finishing with some positivity, I do see my kids being more compassionate and aware of inequity than most kids their age. So bonus there.
I agree, it’s an interesting concept and quite thought provoking. Glad it got you thinking about it!
i literally cannot believe you said u thought christine was near her period when she was so upset ........oh Fred !!!!!!!!!
I’ve had a lot of girlfriends. Trust me, I know when I see the signs and 9/10 I’m right Obviously I’m not perfect and am able to take the criticism fairly and indulge in a healthy discussion that highlights my flaws, but sometimes, it is a hormonal overreaction, which is still a delicate situation to be handled with care.
@FreddotheWheelchairGuy my husband is in complete agreement with you ...he reckons he knows my cycle better than me and full disclosure he does....it's just that weird thing that you just never want to admit any emotions are tied to your period .....I hope you didn't think I was seriously having a go at you!!! I was saying it joking around
omg ....you have to start guiding newly injured people ..Fred already does through me showing my pts his content ...you have no idea how invested my younger pts become because the way he talks is not medical but real life experience ...I am a registered nurse on a sci injury unit and i use so much i have learnt through you guys to guide these guys
i have never been grateful for food poisoning !!! I did not make it home and my car never recovered .......😂
There’s always a reason for gratitude!
Brit i think you get the extra attention because you are beautiful....not because of the Wheelchair 😅
so as a bit of take away advice i got from the beginning of the talk is that the quicker you become independent the quicker you can join in ....seems like obvious advice but until i heard your story when you were young Brit i didn't think of that ....i think this vid is going to be so helpful for my young pts which are all young guys at the moment
I tried to wake at 2 am but fell asleep 😂😂😂 one day u guys have to do a live on our time ...oh well watching now ❤
😊🤝😊❤
Not boring at all. It's awesome to here conversation that I can relate to. Alot of the things you chat about are stuff I've mulled around in my head. Very helpful. 🤘😎
Great feedback thank you 😊👍
I bought a big pack of micro fibre glasses cleaning ehh mini towels? Damn, forgot the word. Well, stuff to clean my glasses. I just leave them all around my room, so i never have to search long for one when i leave the house.
10 minute program?!? i would love to hear about your diet. thanks for letting me listen to a great conversation.
You’re welcome! More with Brittney every week, we livestream on Tuesdays. In about an hour actually I’m pretty lucky with the ten minute bowel program, I’ll talk more about it if you want on another episode
can you share your diet? i’m struggling to find the foods that work for me.
Women have the additional problem of having periods. As an able bodied person I had a bad experience just yesterday. I was in the cinema and when I stood up, 2 hours of discharge which was squeezed in, released. Luckily I live just across the road. Went fully clothed into the shower as I had to rinse out my clothes anyway.
Peace!!!
Hello guys, thanks for the chuckles. Sadly, we’ve all been there with you in poo-ville at sometime or another.
The plane one is due to air pressure, I use an air cushion on long haul flights and as you fly up it inflates as the air pressure drops. This happens in your guts, if there’s any air/gas in your guts when you go up it expands… bingo bongo farto… de gas pills may help
I thought the cabin was pressurised to avoid this.
@@FreddotheWheelchairGuy you would think so but it’s the reason our ears pop. It’s the pressure change and gas expanding
thats why i dont leave the house...
Well you won't have any funny stories if you never leave the house!
Could be proctitis (google it) caused by infection perhaps. Worth contacting your doctor.
You might have internal hemorrhoids. What you're describing is a symptom.
I will research that! Thank you
The worst nightmare for all us wheelies
On a plane, yes. Absolute nightmare! Funny in hindsight tho!
i envy your openness with your “party tricks”. i hide mine and am very embarrassed by the whole situation.
Thanks 👌🏼👌🏼
Thanks for the demonstration.
I like the logo you finally chose in the thumbnail. Interesting discussion about accessible toilets. As an able bodied person, I have used accessible toilets. We also sometimes need to pee or shit urgently, and if it is a chance to jump the queue, yes. And what is the chance that another wheelchair user is using the loo when you need it? Yes, rare, but could happen. Or sometimes a person who looks able bodied but might have extra needs and options an accessible toilet offers, like a fold down baby changing as a shelf for equipment, let's them use this toilet. Like a lot of signs these days say, not every disability is visible.
I get that this may be a concern for people with invisible disabilities, but people in wheelchairs physically cannot get into any other stall. It may be more convenient for other mobility challenged individuals to use the accessible stall but for us there is no alternative. The ideal solution would be to make more stall accessible so that it's not as big of a deal if other people are using them.
You guys get along very well, and I can see why you do this weekly. I wish more people would watch and listen to this as I think you both give a lot of “real world experience”. I am the A-B half of an Inter-Abled Couple and I learn useful info from you. I liked the story of Brit’s attendance at the big rodeo (I think it is the world’s largest), and yes, that guy was very rude. Beyond that, I sort of understand, from a capacity point-of-view, why each wheelchair spot only has space for one Able-bodied person. But… as part of my organizational efforts to move the world to a more Accessible and Inclusive point, the impression I get is that someone who uses a wheelchair doesn’t have a family and that the Able-bodied spot is only for their caregiver/attendant/PCA. Yes, sometimes that is true. But it is so unreasonable and misguided! In Brittney’s case, and she is certainly not unique, she has a family of 4 and it is a bloody shame that they can’t all sit together at an event. Myself and my organization will work on this unfair situation. Sorry for my rambling, but I learned from the best lol !
oh that was me about time zone cos the live was at 3.30 am in Australia ....I can't help that i like u two !!! i have never seen anyone in the Wheelchair section in Australia act like that when i have taken pts that i have stayed in touch with somewhere ....people are super helpful and at concerts the Wheelchair section is right at front
why on earth would that group be soooo rude ?? people are so entitled
yay so love you 2 ❤
Guilty of making my wheelchair a convenient excuse to not go out. I also make my bladder an excuse. Neither is an actual barrier, they just necessitate more planning. Gonna go listen to the full podcast!
Yes, it does become a habit, but summertime is when there are less excuses to make a solid effort to experience fresh air and new things 😊 We can talk about this on Tuesday I appreciate the comment! ❤️
@EmpoweredPara hey i need u guys to do a live stream when its not 3.30am in Australia !!! haha
So true, a Wheelchair is absolutely not a reason not to go out. Hell, I would likely need to use a Wheelchair in order to get out when I am in my 30s so I think that is a good reason for me to go out more and I wont stop when my lets stop being able to carry my body that far
Great attitude! Go for it! 😊✌️
tHanks for the video
Thanks Fred, curiously I'm also going out more, I really make an effort to go out more and it is true that it is rewarded. I remember the video when the neighbor removed the snow from your car and my neighbor painted the facade of my house,😅😒😒😜
Summertime is the time to get out, enjoy yourself 😊✌️
gosh i am guilty of not spending much time going out aside from work and i do not have a sci ....we can all benefit from this advice ! i wish i had been able to join your live vid you did but it was 3.30am in Australia 😢
You can always enjoy it after we go live, I think the conversations are relevant. Like any other podcast conversation, just no editing!
@FreddotheWheelchairGuy i know but i like the live ....I already listen to podcasts but it's nice to interact with you two ...your conversations are so genuine and always teach me something ..i have done a masters in nursing yet so much information i give my pts has come from watching you on your journey to your new life ...obviously not a life you may have chosen but boy you have evolved over the years from the bits you share and its truly inspirational how you continually pull yourself back when it looks like you are sinking a bit ..life lessons for us all
Here's a sneak of the next clip for those who read the comments! kzread.info/dash/bejne/mah9tNOqo6zPk9I.html&ab_channel=FreddotheWheelchairGuy
If someone says hello Ladies and gentlemen, I always hear it the way Freddo says it in my head. 😁
HELLOOOO LADIES
I've used braces for many years Canned hard work. Here I'm UK quality and reliability is a big issue. Seriously thinking of reverting to Power chair full time. Great video. THANKS
The thing that worried me the most about being paralyzed is that there is no one to take care of me. I struggled taking care of myself as an able body person. You seem like a very determined and positive person I'm sure you can overcome anything.
Struggle makes you stronger 💪 I’m sure you’re stronger than you think you are.
You have super beautiful and delicious feet 😍
I must be very bad because... I very much agree with your opinion on the topics discussed in the podcast😜😜🤟🏼🤟🏼♿♿ Thank you both
Another likewise paraplegic from Western Germany here: i can only back up your experiences (six years ago learning to tie a Shoe in bed with one Hand in half an Hour and than - drenched in sweat - being asked by the Nurse „and what‘s up with the other one“? - this is just my kind of humour and spirit). And here i am now, back from a three day Festival, a week with my two Boys and heading to Berlin tomorrow (a 700km drive) and all by myself. The only thing that cant be measured is personal growth - the progression may be slower for us, but nonetheless do we feel it and live the best of our lifes. Cheers to that, mate and best of luck in the Finals tomorrow!
Wonderful comment! So glad you found it resonated with you. Thank you!
I watch these and cry. Simply because I feel guilty. I have bilateral L4, and L5 incomplete fractures. Plus I have T11, and T12 incomplete fractures too, and a month ago I was told my C 4,5,6,7 is severely compromising my spinal cord and 6,7 have to be removed with spacers and fuse my neck. I cry because I'm still walking by the grace of God I'm still walking. I feel so guilty I have had no physical therapy, no arm crutches, no wheelchair, and absolutely no medical intervention at all. Just a mri and Dr confirmation of the incomplete fractures. When at ER getting a full spine body MRI. The ER didn't believe me even as I explained you can see and feel the step-offs. I told the Dr my whole family, we are like circus freaks. If your medical reference book tells you I'm supposed to turn purple with pink poka dots, I won't ever and the rest of my family wouldn't either, but do the test and it will come back with these results you think are not the cause just apologize and remember that ever patient no matter what you've seen as a Dr, there maybe another me that comes for you help. Dr's Confirmation was T11, T12 incomplete. He apologized. Just remember God's a funny man in the way he makes us learn and why. You'll probably never see another person like me the rest of your career. As an EMT I know my situation as far as walking still, it is wildly uncommon and just not normal. I give thanks to God for this. I'm now transferring to a new life of mobility after this cervical surgery and thanks to people like you helping me learn about what I'm in for helps more than you know. I see my world like a quote in a Richard Bach book called Illusions The Adventures of a reluctant Messiah. I suggest reading it because you will find yourself in this book in the oddest ways and it's all positive. There's a quote that says...From Richard Bach - 'What the caterpillar calls the end of the world, the master calls a butterfly.' Thanks for helping me see
That’s a lovely quote. I’m glad the video resonated with you ❤️✌️
What terrifies me more than being in a wheelchair and having no leg function is the whole toileting issue.This humiliation makes me think that I would seriously consider self deletion.How do spinal cord victims handle it?
Great question. I’ve been there. My whole channel is dedicated to advice to newly injured folk about handling the situation and the complications that come with it. There are so many videos I could recommend, if you’re serious about the answer then have a browse. Start with “3 years as a paraplegic” The TLDR is that it all gets better with time and what used to be hard becomes much easier.
I really struggle with transfers because my triceps are weak. Can you suggest some exercises? Thanks.
Adapt to Perform has a great KZread channel that I would highly recommend for this.