Пікірлер

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  @alexgarofalo8247Күн бұрын

  These are spot on and make me laugh! Thank you for doing these vids- and with great attitudes.

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  @moebanshee16 күн бұрын

  Dr stood across the room.. never came near me.. says fibromyalgia...I was told " take antidepressants or be in pain until you die"

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  @dianewristen20 күн бұрын

  I WAS DIAGNOSED WITH LUPUS BY THE LAB, BUT WHEN THE DR. LOOKED AT THE REPORT HE SAID I DON'T HAVE LUPUS THAT IT IS SJOGRENS. THIS WAS 20 YRS. AGO. I HAVE HAD A LOT OF PAIN WITH THIS AND PSORIATIC ARTHRITIS

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  @holisticliberty743021 күн бұрын

  I think the biggest insult I got was from my cousin just before she blocked me. I had made some unkind statements about a certain presidential candidate on Facebook. I have several Facebook friends all kinds of different opinions, beliefs and backgrounds. Most things I put on facebook are upbeat and positive. I don’t block my friends whose opinions are different. I’m an independent I believe we’re all entitled to our opinions , beliefs and choices. My cousin was upset because a positive person like me has such negative things to say about a certain candidate. She told me I can’t have it both ways and that perhaps my negative attitude is what’s causing me so much pain and suffering. Then she unfriended me. I’ve been in pain for years. I don’t think it’s because sometimes I don’t care for someone’s attitude , actions or opinions. If I’m mostly a positive person that doesn’t change because I express not so nice feelings and thoughts about someone. It just makes me human. Not disabled just human. I found that quite insulting to blow off my condition to not liking someone.

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  @Why1231827 күн бұрын

  Same, except the antibiotic hasn't cured my infection even after three separate weeks of taking them.

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  @afoxcatartvideos4877Ай бұрын

  I planing on getting a tattoo. I am educating myself in case my body takes the tattoos and forms like a scar

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  @strawberyberriesАй бұрын

  I have lupus. Luckily it was fairly easy to diagnose because i had the most common lupus symptoms (butterfly face, rash, hair loss, etc). I love how the joke wasnt offensive at all, but of course the idiot fans will bring it into actual serious stuff and make it offensive to peoppe who actually have lupus.

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  @aikidodude05Сағат бұрын

  I mean fans will always be fans and they will push things to far. jokes funny till you its repeated endless and that's not really the fault of the show creators people are just unoriginal. for example getting called short because im 5 11 and have a chip about not breaking 6 foot was funny the for a little while as a nice gag but now its hah funny you said the thing arnt you such a funny you know the inside joke (meanwhile im mentally picturing punching them in the face till they move on) you got to learn to just roll with people repeating stuff because they want to feel apart of a group or include you in their group ect ect ect.

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  @BuddhavibezАй бұрын

  I was diagnosed with raynauds in 2012, fast forward, and after researching further I now believe it’s a symptom of Lupus. I am in the process of going back to see my G.P and this time I’m not playing I want. firm diagnosis. Twice I’ve had raised lupus markers from blood tests and then it was dismissed

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  @BuddhavibezАй бұрын

  Sue them

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  @OnlyJalenPhd2 ай бұрын

  It took me 9 years to get a diagnosis! I had a rheumatologist tell me it’s all in my head, and I needed to see a psychiatrist. I did t go back to another doctor for 6 years!!! On my PCP’s strong recommendation, so I finally went to a different rheumatologist, and he nailed it down immediately! I was so angry at the other doctors, and I called that particular doctor’s office and told them that one lab test, would have given the definitive diagnosis.

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  @deathjr1122 ай бұрын

  3:21 so I have MS. I’ve had it since I was 15-16. And to get to the MS diagnosis because like most autoimmune diseases there’s no specific test for them so when they finally decided on MS they had Narrowed it down to Lupus and MS because my symptoms only fit those two. I don’t know how they came to the MS diagnosis because for awhile I was out of it but I do know they did a spinal tap and a bunch of MRIs

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  @mandy818412 ай бұрын

  I met a guy online and didn't tell him about my chronic illness until the first time we met and he called me a liar and said I was hiding things from him and he could never trust me. He got very angrg with me.

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  @Emileigggggh3 ай бұрын

  I remember (around like 2009ish?) seeing a post about someone who was dying from organ damage or something caused by lupus and someone literally quoted the meme. Disgusting. And then for that to be the main thing most people think of when thinking of this disease that can be really serious really pisses me off. Also the whole "rarity" thing is something I think I'm facing with h-EDS - it's considered "rare" and was never considered a possibility for me even though now it looks so clear to me and at least I have hypermobility spectrum disorder which would have been helpful to know when I was a teenager in too much pain to go to school or do anything. And like, yeah, h-EDS is not NEARLY as rare as they seem to think, it's just super underdiagnosed because the symptoms don't get taken seriously, and I must have just been faking to get out of going to school or living my life at all, I guess. Anyway thank you for making the videos you make!

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  @micaelaopoku-mensah70823 ай бұрын

  What do you specialise in? It's so hard to find a WFH job these days, and it's difficult to manage a chronic illness in the office 😰

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  @sailorVenus2254 ай бұрын

  I know this is an old video but it reminds me of when my doctor told me I have anxiety, I said I did not, and she said "You need to think deeply about what is not right in your life or relationships" . Nice. Due to my (at the time) unexplained tachycardia and palpitations

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  @Rflower14 ай бұрын

  My sister called me to confirm that I actually had reconstructive surgery and removal of tumors in my hand. When I first told her, she glossed over it like I said that I was going to the nail salon. I have Rheumatoid Arthritis, Lupus, Hashimoto Disease, along with chronic fatigue syndrome, degenerative disk disease, Neuropathy and Radiculopathy. I live alone but take care of myself with the help of God. I still get people calling asking me for advice and prayers and to vent but if I need to vent, ask for prayers, I'm told that I am strong, asked where is my faith and how I should be grateful that I am not ad sick of yada yada because they're really sick.

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  @sheerazhenderson5724 ай бұрын

  Hello, Firstly I just wanted to say how brave you are sharing your diagnosis story and thank you. I was diagnosed with Lupus together with Sjogrens. My journey to diagnosis has some similarities as I’m sure exist for lots of other people with autoimmune disease. It’s so emotional receiving a life altering diagnosis without all the doubt which stems from the medical profession. I’m so sorry you had to go through this experience. I also feel upset and angry at missed opportunities to diagnose, misdiagnosis and also how I’ve been treated alongside my fellow sufferers. To say that you have a mental health issue as a way of not diagnosing or even testing is as you said unethical but also hurtful. This is what I feel needs addressing in the medical profession. I’ve recently joined a support group - so many similar stories. It’s bad enough living with Lupus without the full support of the medical community who care for us. I also feel I’ve suffered silently with other illnesses such as fibromyalgia etc. What I feel needs to happen before the appointment is for patients to fill out tickbox forms so all symptoms can be checked. I’m saying this as brain fog and stress at medical appointments can mean that we under-report our symptoms. Medical staff proper need training in looking out for the overall picture. Just to share - at a physio appointment the medical professional actually told me ‘there’s nothing wrong with you’ and handed me a booklet on RA with exercises. I had to tell him at a further appointment that ‘with respect, you’re not my doctor’ and declined all further consultations from this person. This in my opinion is medical bullying and is prevalent in the NHS to avoid diagnosis and then treatment.

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  @loveurneighbor48044 ай бұрын

  18 years of this. ANA positive, then negative, then positive, then negative. Diagnosed fibromyalgia, Depression, osteoarthritis and on and on.

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  @marcilk75344 ай бұрын

  I have autoimmune markers for limited scleroderma but no diagnosis yet. I’ve been watching my fingers for any signs of developing raynauds, which could lead to a diagnosis of limited scleroderma. Well, all I can hope is that for whatever reason I have these autoimmune markers, I don’t actually ever develop the disease.

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  @Jonn.boyszzz124 ай бұрын

  I’ve been sick 2 days in from taking antibiotics. Is this normal

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  @bigbadmumm14 ай бұрын

  They always say vasculytis as a symptom

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  @Rainkitty44 ай бұрын

  What blood tests did you ask to get? Also, what scans?

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  @yvonnejohnson10045 ай бұрын

  “My fried had that but she she went to see Doctor so and so and he’s cured her.”

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  @yvonnejohnson10045 ай бұрын

  “I’ve never heard of it” so therefore it doesn’t exist.

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  @Heckyeahellothere5 ай бұрын

  Love the "My Wife and Kids" reference lollll (okay, now I'll watch the rest of the video)

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  @LuciaA-nj2jc5 ай бұрын

  Very interesting, feeling how the bloating and pain receded within approximately two months made all the difference, I simply go’ogled the latest by Tilly Strankten and her Ovarian Cyst Guide and although it really took about 10 weeks for it to totally shrink and vanish I’ve never felt so light and relaxed.

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  @iloveshaakah5 ай бұрын

  You rock!!!!!

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  @user-pr2tl1zt7m6 ай бұрын

  Oh god my GP actually said this to me n I didn't know what she was talking about 🤦

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  @savagesfortruth6 ай бұрын

  My ra doctor said I don’t have lupus even though I got a second opinion from my primary care doctor put I have sle lupus and my ra said oh you don’t have lupus or ra even though two doctors told me I had the two diseases and now she said it’s just fibromyalgia even though my labs are all over the place

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  @rossco126 ай бұрын

  Good video 👍🏻

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  @Christinesobsevations6 ай бұрын

  Yup . You look fine to me. Such rubbish talk …

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  @nicolabeckford63367 ай бұрын

  I have Raynaud's and this content has been so helpful and that I am not alone on this Raynaud's journey 😅 I think people who don't have the condition respectively don't understand how it can be debilitating and frustrating it can be and it can be lonely knowing that there's support out there just helps soften the blow for this incurable condition ❤

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  @Clifford4247 ай бұрын

  Omg I did Insanity one summer 😢then got diagnosed with Lupus that December 😅

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  @dgsmith99697 ай бұрын

  I'm sick and tired of rheumatologists. They don't take the time to really diagnose autoimmune conditions and like to say the patients is depressed and then give a fibro diagnosis while snickering. I really hate medical care in the US.

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  @marcelinolopez40157 ай бұрын

  i started taking antibiotics for bacterial sinusitis. symptoms started improving after a few days of taking doxycycline, even though i had anxiety and some sleep disturbances. but then these last few days i have been very sleepy and fatigued. today is my last day on them. my overall sinusitis symptoms are fine but the fatigue is killing me. is this common with anyone?

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  @timeforme90807 ай бұрын

  After years of seeing drs and not getting any answers I found one that supposedly specialized in diagnosing difficult cases. The Dr tried to convince me I had mold toxicity and wanted me to start on hyperbaric chamber therapy which is very expensive. Turns out he owned the hyperbaric clinic. After reviewing all my bloodwork on my own (I'm an RN) I realized that I had labs that pointed toward Lupus or another autoimmune disease. I went to a Rheumatologist that took one look at me and said he didn't think I had Lupus but would run more tests. He was so arrogant and I felt like he was totally discounting my problems. He called me a week later and apologized because the bloodwork was positive for Lupus. Not sure how this would have turned out if I hadn't been a nurse and referred myself to a specialist. Our healthcare system in the US is very broken.

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  @anitabowdon99327 ай бұрын

  Hi just after watching your video! Same thing is happening to me! I have the symptoms of Lupus 😩 but I don't have Lupus... right well okay thanks doctors...I've even had a butterfly rash on my face and everything else that comes with it.

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  @drummist10007 ай бұрын

  It’s a great show, and it shows the doubt experienced by carers and loved ones. We don’t live in a sterile world where your feelings are protected. This is a gritty show and real life.

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  @sonicbalabusteh6 ай бұрын

  from a cast member: everything was manipulated and distorted. even the words of our doubtful carers. editors can make viewers believe anything.

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  @Is.JESUS-Alone7 ай бұрын

  Please any advice for me 😢😢i had a stitched on my forehead a month ago .... Im scared of how the scar will look like

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  @Is.JESUS-Alone7 ай бұрын

  Please help me i have stitches on my forehead as a dark skin girl ...im scared of how the scar may look

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  @MrDinodb7 ай бұрын

  So... Don't hate me for this but I met a girl whom is truly sweet... But she has shared me details of her medical troubles regarding her hips and suffering of long covid... Which will probably affect her in the long term... Both have a wish to have children in the future but... with the risk of mortality involved I am so afraid to simply take the leap and be with her and well lose her or ... Watch her suffer in the future and its something I can do nothing about. I am conflicted in my choice here and am worried that I may look bad when I judge someone based on their medical deficiencies... Especially when it comes to children in the future.

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  @Ess_K_Games6 ай бұрын

  I've got that same problem right now, so you're not alone there

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  @majozajo7 ай бұрын

  As an artist, thank you. I've been struggling to find a good references on this topic.

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  @mimischunemann92327 ай бұрын

  yes! thank you for this video! I need to show this to everybody, not feeling alone in this is so valuable, my illness is one thing to deal with in my life but the discrimination is a whole other thing that is often worse than the illness itself for me, thank you for showing that this needs awareness!

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  @donlee42387 ай бұрын

  im black and my skin scars white. not sure how to "un" fade it.

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  @suzybrose8 ай бұрын

  Aww my daughter went through all this too. She first had anemia, then narcolepsy, then lupus. She was having joint pain a few hr but she thought it was normal and never said anything. Fibromyalgia was added. Lupus can cause narcolepsy is what our sleep neurologist told us. We through about 4 doctors before I could elget an iron panel. All Ana labs are pos and they should have been tested in the statt of her journey. She's now 18, starting to feel maybe better. We have had about 3 yrs of same labs every 3 months.. ridiculous.

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  @luluthedoberman74908 ай бұрын

  I straight up tell them on dating apps, from the get go! I let the vulnerability out and sure there are assholes and people who think they know better than you and even feel the need to tell you - But the silver lining is: You will quickly weed out the ones not for you. They will step out sooner than later and that's actually a blessing because it saves you time and energy, effective because you cut to the chase quick. Sometimes radical self acceptance and vulnerability can feel scary but I think it's confidence and vulnerability that is attractive. Remember too, you are not your diagnosis.

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  @darlenelavigne78118 ай бұрын

  I was told that yes I am tired and am in pain (it prevents me from sleeping and I need sleep because I work in a hospital), and my doctor said “this is you life now. Live with it.”. 🤷‍♀️

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  @carriefrn8 ай бұрын

  Great explanations and video - and you have an amazing attitude despite the mistreatment you received from the medical system. I’m sure this video helps so many - including me (although Lyme disease is what was the underlying issue)

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  @ItalianaK18 ай бұрын

  Literally crying!! Thank you SO much for sharing! I thought I was alone in this moment! ABSOLUTELY the same scenario for me. Fast forward- diagnosed, treatment started, learning life with Lupus. BUT it’s good to know I’m not alone

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  @bethelbethel8459 ай бұрын

  When my kid was little every parent around me restricted their kid’s fat and carb intake, but fed them tons of aspartame. On the theory that aspartame was newish I tried to keep my kid from aspartame, and their treats included real sugar and carbs. In moderation of course. Now I have diabetes and some of my crunchier friends shame me for enjoying diet fruit spreads that have aspartame. I can’t catch a break! 😂