raynauds gets so overlooked. it may not be life threatening but it does change how we live our lives

I was diagnosed with Raynaud's when I was 2 years old. my best tip would be to put your hands in your armpits when they get really bad. It's the warmest place on your body!

@Wigwampig

3 жыл бұрын

I got it when I was 6-I actually put my hands on my neck-Not sure why but I always wear a scarf so for me That is the warmest place.Its annoying because some people in my class used to think it was contagious (which it isnt )I also get it in my toes,ears and lips as well as my fingers-Thanks for the tip by the way!

There’s also the possibility of blood rushing too quickly back to your hands if you heat them up too fast - that will cause swelling, blistering, and a lot of pain. Also, chilblains are a symptom of Raynaud’s. Cramps and pain in the joints are possible as well just from overuse. Not being triggered by the cold. In hot weather, your affected areas will swell and turn bright red as well.

I’ve always had cold hands and feet for as long as I can remember.. today my middle index finger turned white and numb for half a hour.. I think I need to see a doctor. Thanks for the video.

@aeilanilicas7193

5 жыл бұрын

zoe birch did you get it checked out?

@badass1g

4 жыл бұрын

That happened to me too a while ago it freaked me out.

@silverfullbuster9177

3 жыл бұрын

@@badass1g I literally came from outside and noticed that my fingers are blue. Dint know if I should get checked out. How's did you get diagnosed and has it improved

@born19808

2 жыл бұрын

My middle finger and middle toe are the most sensitive

My aunt who is a nurse diagnosed me with this while we were swimming in Lake Superior with my cousins. It was July so the naturally cold water was as warm as it was gonna get, and while it was cold my cousins were all content but my hands turned nearly 100% white and they *hurt.* I also have a lot of the risk factors, female, "child bearing age", I live in a colder climate, I have family who has it, etc. Happy to know I'm not alone!

@heyitsme669

2 жыл бұрын

do you know if it means that we are allergic to the cold or not?

I have Raynaud's and this content has been so helpful and that I am not alone on this Raynaud's journey 😅 I think people who don't have the condition respectively don't understand how it can be debilitating and frustrating it can be and it can be lonely knowing that there's support out there just helps soften the blow for this incurable condition ❤

Very well spoken

I do indeed have Raynauds syndrome. I've had it for a decade or so now or, at least that's how long I've been diagnosed. When I was little, my mom thought I was very odd. I would get cold and never really warm up but, as I got older, being cold would be severely painful. I'm also asthmatic, so winter kinda sucks for me but, it's still my favorite season. I can always put more on but, once you're hot wdyd 🤔🙄? Anyhow glad I found you on here, please make lots of videos. I'm a big fan and as soon as I figure out the whole podcast thing, I'll watch those too! Your voice is very soothing.

Great video 👊

I used to ski and found wearing silk gloves, then hand warmers and then mittens helped my fingers. Not sure why, but mittens are way better for me! Also if you keep you core warm, it means less blood is needed to keep your main internal organs warm to keep you alive, therefore your extremities may be warmer! Not a doctor, just my experiences and tips!

Thank you so much You are a blessing

Thank you for the video! You are a good soul.. My Raynaud's was diagnosed when I was 19 and it's pretty uncommon in tropical countries is what the doctors say..

Thanks so much its crazy in the cold. Will try socks 😀

Great video! 👍 I suffer with this only in my feet. My toes and soles turn yellow and go numb. I find having wool fleece insoles helps, but I’ll certainly take a look at the link for the socks you use. Thank you! 😁

I have it.... You are beautiful and I appreciate your comments on this. I feel like a jerk when its cold and I do not want to go out.... Not many people really get it. To them It is just an inconvenience.

Good video 👍🏻

I bought a pair of heated gloves, charged via usb, which were very expensive at about £100 but the heat is great and really helps with my Reynaud's and stops my hands getting really cold as they always have even on a relatively mild day since I was very young. I mostly live in the Highlands of Scotland which is very silly for someone with Raynaud's so I try to escape to my holiday home in southern Spain as often as possible as I never get it there.

My feet 🦶 are always cold 🥶 even when l wear two pairs of socks 🧦 even when am in bed 🛌 for hours...sometimes cannot sleep 😢😢😢😢

@vibaj16

3 жыл бұрын

makazzy tinotenda same, my toes are numb even in shoes and socks

@tiffmercer4306

3 жыл бұрын

Me too. I cannot sleep when my feet are cold. I went sledding and we were waiting in lines and my toes were so cold they were stinging so bad so I had to climb the hill rather than take the conveyor belt up just to keep my toes from hurting so bad...and I was wearing wool socks and winter boots.

@born19808

2 жыл бұрын

Ya me too maybe it’s bc another part of ur body is cold (I’m in bed right now literally dyinggggg I’m in Canada🥶)

I was diagnosed with raynauds in 2012, fast forward, and after researching further I now believe it’s a symptom of Lupus. I am in the process of going back to see my G.P and this time I’m not playing I want. firm diagnosis. Twice I’ve had raised lupus markers from blood tests and then it was dismissed

Always helps me to run my hands and feet under hot water for a bit. Really helps get the blood flowing again. No wonder I like taking so many showers per day.

Thank you very much for the video and explanation. In just a few minutes of like 2 degrees (c), my fingers beging hurting so much. Everywhere else is fine including my toes, just the fingers. You would think that after going indoors and warming up it will normalize, but NOOOO! my fingertips continue hurting for days. Armed with this info, I'm off to my doctor. (Just hope it's primary) Thanks again.

I always got burning when I went from cold to hot even when I was very young, I am always so much colder than every other person. I was in france and it was about 28°C and i was in the sea, but my fingers still went white. My mum took a photo because obviously you cant just go to the doctor when it happenes. So I got diagnosed when I was 11 ish I think. I was walking to school once and I didn't have my gloves, but when I got to school I was crying And i couldn't stand due to the pain, I felt sick. I have glives that have silver in them, they help lots

I finally broke down & bought electric gloves last winter- best decision! They’ve saved me many attacks.

@Sun-branch

3 жыл бұрын

The brand is Wenjuda. The ones I have come with a button for 3 levels of warmth, which works great.

Yeah both the tips of my index fingers are doing this..turning yellow white..no pain just feels numb..it lasts a few minutes until I get back home from a five minute walk

Cold hands warm heart my gran used to say lol

I am a TA in elementary and around the end of the year, I sometimes get pulled to sub for periods of time. I was subbing in a 2nd-grade class that wasn't one of the few I usually am sent to support but a girl I sort of knew came up to me saying that her finger had suddenly started to her and I look and this finger is like bright ass red. I know kids can be sneaky so I did try a few things, we went to go wash it off and I even got the red marker from her own bag and asked her if it was okay if I put the red marker on her other finger so we could compare if she was trying to pull a fast one on me. But the marker finger washed off way easier and wasn't as bright. The nurse brought a different kid back to the room (one of the students punched him trying to get water) and I brought the girl over and asked about it and she said it was just chip dust, it stains horriblyy, but like... sure she did have Doritos at snack but at most that shit stains orange not bright ass fucking red. It was close to the end of the day, and the nurse wouldn't give her anything for it so I just looked it up, found this, and told the girl to have a discussion with her mom when she gets home. I always leave 30 minutes before dismissal but when I left her hand was still red but she said it didn't hurt as much. It was close to the last day of school so I was too busy and never really got to follow up but I hope she's okay. I do hope deep down the nurse is right it's just a stain cause I don't want my students to be in pain. But also I'll be mad for being played like a fiddle. But what you said in this video sounds a lot like what we were discussing and a tiktok I stumbled across led me to remember that girl and then look it up again to come to your video. Great presentation you really explain things well. EDIT: I wasn't with the kids all day and didn't have much time to look up color change so it might have started earlier in the day. IDK she never said anything about other colors.

My hands and feet turn blue when I'm in the snow, when I'm playing video games my hands feel freezing for hours after, they get painful like I'm dipping them in lava and it's just so fun- I've lived with it all my life and am getting gloves to wear indoors

I might have this condition. I've dealt with swellen fingers that bruised after the swelling goes down. It's painful and uncomfortable. It also effects my feet. I've had bruises from it on the bottom of my feet. My hands randomly bobble up and the vocals pop causing the bruises. The first time it happened I was in grade school. I was anxious that day because we had two tests. My hands and feet were icy cold, my friends thought it was funny and odd. They tried helping me get warm but it didn't work. In class my pinky and middle finger started swelling up and it got painful. I showed the teacher and she sent me to the nurses office. They didn't know what to do. They called my mom. It happened often when I was younger. Now it usually happens after I have a few days of stress. My face also bloats and my eyelids bruise. Once it looked like I was punched in the face. I've been to the doctor for it but they said they don't understand what it is. I've never been diagnosed with anything that can cause it. I am going to speak to my doctor about the possibilities of Raynaud's disease. It would make sense. Thank you for sharing. It's so much help. ❤️

I had raynauds for years but never had ut checked, unfortunately this year it got so bad! So i decided to get diagnosed and got referred to a podiatrist consultant! Results are in, i have secondary of Raynauds syndrome! I keep getting these muscles spasm attacks regardless of how many sicks or thick boots i am wearing! But i get attacks and is unbearable! My tips is derp heat cream which helps and deep heat plaster too!

@pault9544

2 жыл бұрын

I also get muscle spasms in my feet and my raynauds is also likely secondary due to having lupus. Try soaking your feet in Epsom salt. It could be due to lack of magnesium. It does seem to help my muscle spasms

I've had this since I was 12

@laurynembree6430

4 жыл бұрын

Same

@rebekahl840

3 жыл бұрын

I was 10 or 11

@laceygilson9781

3 жыл бұрын

Me too, now 17

This happened to me all the time and because I used to do ice skating it happened a lot and looking back I now know

Think I have it. I pedal bike for exercise in winter and temperature about 37 F. or 4 or 5 C and when coming home my hands are super cold. Hard to move and even hard to unlock door with the key. Hands look like a whitish colour. I put hands under warm running water and slowly hands get better. Guess I have to get a new body in heaven to rid me of this problem. God bless.

I have rheumatoid arthritis and Im certain I have this Raynaud's. My hands and feet are always cold, when I'm outside and it's cold out they turn splotchy red white and purple. It is extemely painful when they get cold it feels like they are on fire and smashed and broken, it hurts so bad to ride my bike in to work right now because it's becoming winter. When I go indoors , if I don't actively try to warm my hands up they take a really long time to go back to normal. Also when I come in from the cold , my hands turn super bright red from my knuckles down my fingers and BURN and throb and tingle so bad for quite some time. I am always cold. I have a liver disease on top of RA, I've been hoping that this unbearable coldness will go away after I am fully treated but it doesn't seem to be getting any better. The GI doctor told me all of the symptoms I have must be from RA because she has never had anyone with them for their liver. Can't treat RA until I'm done with that liver stuff. I believe I had this for a long time, as well as the RA and just lived with it unknowingly until I got sick from my liver problem and then all of this autoimmune disease stuff became a major problem. This sucks. I just want to feel warm again it isn't even December and I'm begging for summer to come back because I had a few months of relief.

I don’t remember when i first noticed it i thought it was so weird and i don’t know anyone else who had it so i didn’t know it had a name untill a couple years ago

Hi from Canada I have raynauds syndrome I just found out this year lol❤️❤️❤️

I have autoimmune markers for limited scleroderma but no diagnosis yet. I’ve been watching my fingers for any signs of developing raynauds, which could lead to a diagnosis of limited scleroderma. Well, all I can hope is that for whatever reason I have these autoimmune markers, I don’t actually ever develop the disease.

I’ve had this scene I was 1 now I’m 10 a couple months ago me and my friends were playing outside it was really cold I didn’t have gloves 30 mins later my whole hand was pure white and stinging my friends all ran away😐 wow great friends

@oliviarowhm9281

5 жыл бұрын

I forgot to tell ya this part we were at camp Potawatomi with my class

Yeah, I have and is getting increasingly worse with age. I'm rediscovering the amount of clothes to wear at mildly cold temperatures as I'm ALWAYS COLD

@newdawn7106

2 жыл бұрын

Fleece helps both normal clothing and pyjamas

I have this disease for the pass 7 or 8 years, I have it on my hands and feet and my some parts of my face.My doctors try to find out whats wrong with me bc I have a red spot that appears on the back of my neck and my body hurts all the time. I also have to wear 100% sun screen bc if the sun probably why im pale and I also have red dots all over my face its embarrassing for me to be out the older I get the worse it has become.

I know this is an old video, but any recommendations on warm leather boots? My toes get so freezing that I struggle to walk and I lose sensation in them. I need a smarter pair of boots for work. My sheepskin Emu boots are great outside of work.

I recently just got diagnosed with it :)

@alexkimberly7057

3 жыл бұрын

It all end with a new song, for what Dr Salami on KZread did to me, for helping me eradicate Raynaud's disease within 14days of using his herbal medicine, you are truly a great man. If you suffer from Raynaud's please get his natural herbal medicine because i know the pain I went through.

Me in severe pain and shivering while watching (ps. I was diagnosed)

My 9 year old has lupus and raynauds and gerd syndrome. It’s a real struggle dealing with a chronic condition. Especially when you’re only a small child. Keep being positive :-)

@aeilanilicas7193

5 жыл бұрын

jo berry i have the same exact symptoms

@pault9544

2 жыл бұрын

I also have lupus and raynauds. I used to have GERD seriously but a prescription of nexium for an extended period of time cleared up the symptoms and have not dealt with serious issues since. I have had the raynauds for 7 years now and thankfully it's mild.

I got it on my nose when I was skiing at like - 35 degrees

My feet turn purple sometimes and feet are typically freezing even when it’s not that cold . My hand and nose are usually cold too but I don’t always have the hand change color . I’m not sure if I have it or not .

I have learned to keep open en closing my hand in to a fist not to hard just to keep them moving...

This only happens to one of my hand and mainly my thumb . It only turns blue in the cold, no paleness.

I’ve always had cold hands and feet. They’re rarely warm, but today I noticed some of my toes had turned completely white which hasn’t happened before and I’m 33. I’ve also got chillblains on my fingers now. 🤷🏻‍♀️ Might have to contact doc and find out if this is what’s going on.

I was diagnosed and mines like really severe it’s caused me a lot of pain and loss of my childhood and will continue to do that as it has caused me other health problems such as alopecia which isn’t the best ngl

@alexkimberly7057

3 жыл бұрын

It all end with a new song, for what Dr Salami on KZread did to me, for helping me eradicate Raynaud's disease within 14days of using his herbal medicine, you are truly a great man. If you suffer from Raynaud's please get his natural herbal medicine because i know the pain I went through.

Raynaud's is from Lyme disease. Treat your Lyme, like my mother did, no more Raynaud's.

I’ve always had the symptoms and never knew this was Raynaud’s until I was in nursing school and learned about it and realized “oh my gosh I think I have this” and sure enough got diagnosed by my Dr. It definitely sucks and is painful in my fingers and toes, my boyfriends sucks it up and let’s me use his skin to warm up my hands and feet (he’s like a HEAT box). I live in hot hot Florida in the US and it makes no difference, the second I’m in air conditioning it acts up.

I have it only on my toes and it turns numb and pale, I try to warm it up and after a while the blood comes back usually

Watch the video by Andrew Perlot, in which he uses a simple ice water bath. I’ve been doing it for a while now and it’s helped me tremendously. I’m a total believer. No more freezing feet for me. It sounds stupid and crazy but it worked wonders me!

@donttreadonmetal5073

5 жыл бұрын

I wrap my fingers around ice paks to kill the itching and tingling. Dressing warmly and keeping warm is a total myth because coddling the disease makes it worse. My hands swell up because I'm warm and outside is cold. In Raynauds the body wants the outside condition, whether it's hot or cold, so if you're outside your hands don't swell up. but at the same time they turn purple and white and shrivel up and hurt because they're frozen. It's a trade-off. In the summer it's warm outside and warm inside, so no problem of course, but in winter, my hands at least need cold temps to not swell and become unbendable. You have to force the disease to like the cold temps. That's why the ice water therapy works.

@sister2mysoul

4 жыл бұрын

@@donttreadonmetal5073 thank you!

My hands and feet are always cold. Both in winter and summer but there's no change in color in my hand or feet or any kind of sensation. It's just cold. Sometimes my nails got blue in winters but it's normal when you're cold so I don't know what's wrong with my hand and feet😒

Hi, I haven't been to the doctor yet so can you tell me if I have the disease you have? My legs and arms are mostly cold, when it's warm outside just like summer, then it's okay, but it sometimes happens in a warm room that I can't warm my arms and legs. The skin color on my arms and legs always changes, ie they are always like blue hands,purpels etc...mostly my problem is not that my hand and legs are cold, but it irritates me that my skin color changes.The problem appeared to me 4-5 years ago, but the last 1-2 years have been getting worse and worse in terms of cold on the hands and feet and changing skin color. Mostly my body is warm and my hands and legs(toes) are cold

Please, please add pics of your raynaud's. All the pics I've found are white people, I need to see what it looks like on darker skin tones

I typically have to put my feet in a bucket of warm water to get them back to normal but I also find that the symptoms aren’t as bad when I exercise regularly.

Thank you so much for this video and the sock suggestion!!! Im wondering, at what temperature do you experience raynauds symptoms? I feel mine below 72ish degrees

@donttreadonmetal5073

4 жыл бұрын

anything below 60

@akkoonassis9045

2 жыл бұрын

I get pretty cold 70 and below. It has to be below 60 for me to start to feel it's unbearable,below 50 and I get the hand pain and color changes upon warming up and I'm in misery

I just subscribed to your channel. I went to my dr today because I've been experiencing burning, stinging, and swelling for about 3 weeks on my fingertips when I touch anything cold or frozen. The most frustrating part for me is trying to clean my meat before cooking. My dr never said I had Raynauds, she pretty much said it's the nerves in my fingers. I know I have Raynauds based on the symptoms.

I've never met anyone that has it in that area though

My case of raynauds is really weird - I was born with it which the doctor who diagnosed me said he’d never seen before? Anyone else born with it or is it acc just me?

i have it severely in both of my feet up to my ankles. i hate it So Much™️

I’m not sure if I have it, can anyone help me? My hands have always been cold even at room temperature, and when it’s cold and I’m outside they go dark purple and the fingers go orange. Never white though. Also, they warm up reasonably quickly (30-40mins) and I’ve never felt any of the pricklyness or something. Is it likely I have it?

Please help i have secondary raynoulds

I have Raynaud's but it doesn't affect me that much, cause only my feet are affected

My mum has Raynaud’s phenomenon and I think inherited it from her my fingers and toes are always cold, my bones hurt and my nails are blue and I feel dizzy and faint all the time

Is it possible to have this only in the toes? My toes turn white and numb like this, but there usually isn't any pain, and my fingers don't turn white (even though my hands and feet are usually always cold, even when I'm not feeling cold). I've always had this, but it never really bothered me, and I just thought it happened to everyone when their feet got cold.

@rosalindacsrbajal1804

5 жыл бұрын

Kat yes, I have this disease and I have it on my hands and feet....my face too

@aeilanilicas7193

5 жыл бұрын

Rosalinda Csrbajal so do I

I am doing research on raynauds atm. I've been asked if I've got it several times. When I am outside and get cold my hands go purple with orange blotches. They become painful and difficult to use. The pain is a stingy kinda pain. My finger joints get achy when I move em. I dont know why it happens and it doesnt quite sound like raynauds

@unitedfc7784

3 жыл бұрын

How r u now

I've had this since I was 16 and it's just in my nipples. Its extremely painful and embarrassing because the only thing that makes it feel better is to rub the area to get the blood flow going as well as warm up the area. So being in the nipples you can imagine how I look in the winter. As I got older I'd what people think and just explain why I'm rubbing my chest lol

@newdawn7106

2 жыл бұрын

Bra pads will sort this out

Blaaaaah

Looks painful

I’m trying to self diagnose myself rn lol I think I might have a mild case

@donttreadonmetal5073

5 жыл бұрын

keep your hands exposed in mild cold temps force the body to like it and get used to it.

@donttreadonmetal5073

5 жыл бұрын

Nathan Charlesworth only somewhat it's just a start. I recommend pressing your inner hands and swollen knuckles against ice packs during flare-ups. I find that when I do that I don't have swelling or itching for a good couple of weeks after that.

does it mean you are allergic to the cold???

@Pathologyformedicalstudents

2 жыл бұрын

Raynaud's is usually triggered by cold temperatures, anxiety or stress

I have raynoud desease how to cure it??

@jayyylaroz1332

4 жыл бұрын

No cure :/

My doctor will not send me for tests but I have all symptoms for the past 2 years so we’re pretty sure I have it but my doctor won’t do anything for me

Send me your finger nails in a tab of masking tape making a small square with your name written on it . Ill test it on you and see if i can get rid of yours as well. I got you. Funny thing is I was 8 also very similar story wow.

I truly think this is caused or at least aggravated by vaccinations.

@Dana24968

5 жыл бұрын

What makes you think that?

@em8842

5 жыл бұрын

I get so exhausted by comments like this. Why would this be caused by vaccinations? Are you just going by gut feeling, which as we all know is much more reliable than thorough scientific research and testing? Are you one of those people who believe that vaccinations are the root of all evil, and who would much rather just have whooping cough, measles and polio come back and become deadly epidemics again? I'm tired.

@shelleygold4923

5 жыл бұрын

@@em8842 not sure why you would be exhausted, vaccinations have many many side effects including arthritis and people younger than the average age, I have a daughter in her twenties that was directly affected bite her DPT shot when she was 2 years old. This vaccination made her autistic and she has a myriad of health conditions now one of which is this particular disease. There is no history of arthritis in my family whatsoever. Do your research

@shelleygold4923

5 жыл бұрын

@Kat I would also like to add that my sister-in-law and I have the same pediatrician and vaccinations came from the same lot. She has two children with full-blown Asperger's and structural problems with their bones and so forth. Our children were absolutely fine prior don't even get me started

@em8842

5 жыл бұрын

@@shelleygold4923 What doctor told you that any of those health issues were caused by vaccinations? Just because someone is autistic and also vaccinated, or has arthritis and is also vaccinated, does not mean that one was caused by the other. Also, the people who cannot be vaccinated because they experience side affects (which is always a risk, like with literally ANY medical treatment. Chemo and radiation has WAY worse and more common side effects, but you still get chemo and radiation, because it's better than dying of cancer.) are exactly the people who are protected when the majority of people ARE vaccinated. Herd immunity. Do YOUR research, and don't claim that your own personal and biased experience trumps actual scientific research, statistics and decades of medical experience. Vaccinations DO NOT cause autism, it has been thoroughly debunked. People like you are putting people at risk - babies, the elderly, immunocompromised people. Plus, I would rather my child has autism than dies of polio or the measles or infects and kills someone else's child. So yes. Sorry for the rant, but yes. I'm tired. And vaccinated. But I don't blame my vaccinations for being tired.