Пікірлер

• 
  @GeorginasJourney11 сағат бұрын

  3:30 was probably the most life changing one of all for me & I’ve never heard anyone say it before, but it’s made me treat myself with a lot more kindness & compassion this year ☺️

• 
  @ladymc202113 сағат бұрын

  Thank you a million times over for these videos as they are quite comforting as I qill be having to have the surgery this fall as my organinal tests say "suspicious" but they cannot confirm anything until it has been taken out like you. Strange they still do biopsies etc and still cannot determine until it is taken out and chopped into a million pieces in a lab. My thyriod actually works fine they said and so did my blood tests, but the actual biopsies being suspicious, they said we could wait 6 months to a year and get a scan again and see, but I am not willing to take that chance and want it out asap. Mine is 3.8 cm so smaller than yours actually which is crazy. But I will need both sides out. So will be on thyriod meds after that forever. It is a better alternative than tge other thing if ya know what I mean. So thank you for all your feedback on this journey it truly helps me be brave ❤

• 
  @randomchannelonyt912519 сағат бұрын

  I love your videos, I don't know if I said this before, but I feel like your channel is the best when it comes to chronic illness, your tips are very unique and very useful. Thank you!

• 
  @kristinab613523 сағат бұрын

  Lovely to hear from you I know the reason we haven’t is because of health reasons and I hope the carers will make your life easier in the long run 🙏

• 
  @GeorginasJourney21 сағат бұрын

  Thank you ☺️ I barely have any care hours a week despite having the funding for it now, but definitely better than nothing after a yr interviewing people & £400 of my own money spent on ads

• 
  @Cloudbuster1987Күн бұрын

  I use Brave browser on my phone and PC, it blocks ads on KZread for free, I couldn't recommend it enough.

• 
  @GeorginasJourney21 сағат бұрын

  Oh wow, I haven’t heard of that!

• 
  @sarah-janehollitt8927Күн бұрын

  I have been enjoying scratch art for a low energy art activity. I just do a couple mins at a time when im well enough. Its easy to pull out my draw and put away when im done

• 
  @GeorginasJourneyКүн бұрын

  My friend and I were talking about these just the other day!! Fab idea! 💡

• 
  @Kris-ib8snКүн бұрын

  Can you put a sign on your door asking visitors to please wear a mask and a basket of surgical or N95 masks near your bedroom or inside your front door?

• 
  @GeorginasJourneyКүн бұрын

  That’s a great idea, thank you! Yes! ☺️ atm the masks are on my bedside trolly which ofc is not the most helpful haha!

• 
  @oliviac6736Күн бұрын

  Hey! I just came from your video on childhood signs of EDS, I’m 13 and me, my family, and my doctors have speculated I could have it, especially considering it runs in the family and your video really helped me. Watching it I realized how many things I’ve experienced from the EDs criteria. My toes and finger turn white in the cold so Reynolds, I am nauseous all the time, I’m always either too hot or too cold nowhere in between, my hips pop constantly, my shoulders subluxate, I’m hyper mobile and a few other things. Anyhoo the reason I’m commenting is that the small chance you see this I was wondering if you could tell me if I’m just really unathletic or if u had these symptoms too and it turned out to be POTS. Whenever I go up and down stairs I get really winded and feel my heart rate go way wayyy up and it takes a while for it to go back down and for me to catch my breath. Sometimes when I stand up I have to sit back down immediately because I get dizzy and I see spots or my eyesight just blacks out. Also I take a sport and things that are easy for other kids my age I get out of breath fast and dizzy and sometimes blackout too. The reason I’m not sure this is POTS thought it because I’ve never fainted or passed out, even though it’s felt like I might before. Thanks for putting EDS and chronic illness content out by the way, it means a lot to me because my aunt has a really severe case of EDS and POTS and much more and she’s been through so much and she’s love your channel. Sorry this wasn’t quite about this video, I just thought you’d be more likely to see this comment here. Thanks ❤

• 
  @losingmyfavoritegame8752Күн бұрын

  HERRO! 👋😀

• 
  @GeorginasJourney11 сағат бұрын

  Hey! Good to hear from you!! 😊😊😊

• 
  @yureituesdayКүн бұрын

  Your art is quite good. I really like your style

• 
  @GeorginasJourney11 сағат бұрын

  Oh thank you! ☺️

• 
  @ruby3200Күн бұрын

  Glad to see you again!🙂 Thank you for telling us you were joking, I actually thought you were serious. I don’t know if it’s because your humor is different and you joke differently being British-especially with your tone and mannerisms, or if it’s just my brain fog, but I can never tell if you are joking or not.😅 I’m glad I’m not alone in not being able to do crafts. For me it takes a lot of energy and effort (other things like showering are a bit easier for me than for others- everyone is different). I have been saying how much I miss coloring, I can’t because it hurts my hands to hold the pencils and sitting up. I can never find the time to do hobbies I enjoy because I’m using the energy for something else or I’m resting. I did manage to make bracelets with my sisters yesterday and I had so much fun! I recommend jewelry making because you can buy beautiful cheap beading sets online and you can do it in bed while lying down. It still takes energy, but it is an easier craft. Another thing that might be helpful if you are wanting to paint is buying a water brush. It’s a paintbrush that holds water inside it so you don’t have to constantly dip your brush into water and also risk a spill. You could buy a paint brush cleaner too. I was wondering if you or anyone else has any advice on hEDS?I got diagnosed in February, and I continue to get worse. I’ve never dislocated anything but I have subluxations constantly, and they continue to worsen and spread to other joints. I’m worried I’m going to start dislocating. Is there anything I can do to help prevent subluxations? My therapist mentioned exercises but I can’t do those as of now due to low energy. Sorry for the long comment.🫠

• 
  @GeorginasJourneyКүн бұрын

  As a general rule of thumb, KZread would never pay a KZreadr with less than 10K subscribers £1million haha 😂 & thank you so much, I’m so glad you got to make bracelets with your sister & enjoyed it ☺️ were they normal bracelets or did you do the viral Taylor Swift style ones? ☺️

• 
  @ruby3200Күн бұрын

  @@GeorginasJourney No I’m not a Swiftie. I do use the same beads (clay beads), but I found that glass beads are the easiest to use. Kits usually come with string,beads,charms, and sometimes scissors. The only extra I buy is glue to seal the knot. I love making them for myself but also for family,friends, or even caretakers and doctors. I can’t help them physically so being able to make something is nice.

• 
  @GeorginasJourneyКүн бұрын

  @@ruby3200 ah nice! For instability, most people will just recommend splints, braces, KT tape or physio, for the most part, or if you’re particularly worried about a joint, you could ask your dr if you need to be referred to a specialist who can assess whether surgery is needed

• 
  @ruby3200Күн бұрын

  @@GeorginasJourney Do those things help with subluxations and popping/cracking or just dislocations? Unfortunately there is no one near me that specializes in EDS so I feel kind of lost and confused about it and don’t really know what to do about symptoms, especially weird ones. It’s like I mention it to doctors and they don’t give me an actual answer whether or not my symptoms are from EDS, and what to do about it. I try to do research online and still feel like I come out empty without answers. 😣It’s starting to frustrate me. Thanks for the advice.🧡

• 
  @julie_uk_Күн бұрын

  Could you recommend an ai purifier please? I'm looking into getting one for my dog as he has breathing issues

• 
  @GeorginasJourneyКүн бұрын

  Yes! Shark, I think it’s called the Never Change or something like that & has easy slide out filters to remove any fur it’s picked up too (this is different to you having to buy & replace the internal filter every few months, like most alternatives). Very pricey, but it is £50 off atm ☺️

• 
  @julie_uk_Күн бұрын

  @@GeorginasJourney ahh cool thank you

• 
  @julie_uk_Күн бұрын

  *air not ai

• 
  @yureituesdayКүн бұрын

  Shark definitely

• 
  @julie_uk_Күн бұрын

  Hi Georgia 😊

• 
  @ecologist_to_beКүн бұрын

  I've always used the thing on the end of the jar tool as a ring puller as I have a similar device. Crafts are so exhausting. I've been working on the same cross stitch for 14 years. 😅 M.E is a killer of crafts. My mum was shocked to realise I'd yet to read the book she gave me after a year of having it. lol

• 
  @GeorginasJourneyКүн бұрын

  Ooh thank you! Thats what I thought about crafts, but I know loads of people with ME who love it! I think most of them have lots of care & family support though & few pets to care for, whereas I know for me & you, we would choose caring for pets above all else, where possible…& you do a damn good job at it ❤️‍🩹☺️

• 
  @josephrochefort99892 күн бұрын

  Ouch Ouch Ouchie. They are a blessing but I still dreaded using them. I imagine it is easier for women as the catheter is very short. At home though if you drop one you can wash it with soap and water, then use it. You can also buy the inexpensive latex gloves pharmacy grade to use when inserting the catheter. When you are young you never imagine having to carry a catheter bag, or a diaper bag when you are an adult.

• 
  @GeorginasJourneyКүн бұрын

  It’s actually worse for women as we can’t see where to put it & so it’s so painful prodding around. For most, what you described is a recipe for superbugs & many have needed bladder removal surgery from superbugs sadly too. Yes, no fun at all!

• 
  @user-js4sb4qq2h2 күн бұрын

  Worry, anxiety, obessive thoughts, obsessive veganism or vegetarianism can cause stomach upset and digestion problems.

• 
  @user-js4sb4qq2h2 күн бұрын

  RDA or recommended daily allowances are only enough to keep you from getting scurvy. I take about a 1000 mg to 2 g of fish oil, primrose oil, and borage oil day and you can take 2 or 3000 mg of Vit C a day easily and when you're sick your body needs more.

• 
  @michaelas46296 күн бұрын

  I have hyper mobility and I guess also undiagnosed heds. I had my braces when I was teenager and it hurts so much. I had braces only downstairs and many times my braces I mean the wire snapped. After years of wearing braces it was time to put them down. But after that I needed to pull out all wisdom teeth. And after that I’ve got permanent titanium I guess retainer downstairs.

• 
  @GeorginasJourney5 күн бұрын

  That’s the permanent retainer I advised in the video so that’s great you got it 😊

• 
  @Godngoals6 күн бұрын

  Im 23, pursuing Masters and Professional course together, im suffering with stomach erosions, skin rashes, GERD and h pylori infection from past 3 years , in the beginning I got misdiagnosed and wrong diet was suggested to me which eventually made my symptoms worse, once I was the most active student in the class, college topper and had a lot of friends, now people ask me why i lost weight, they pity me, tell me that I dont trust God enough to cure me, i lost all my friends as i couldn't meet them often, honestly nobody truly understand your problems until and unless somebody goes through the same shit as you, i avoid meeting and talking to people as i look pale and keep bringing up stuff i dont want to hear.. Its important for you to know that Google doesn't always say true facts, if anybody say that stomach related problems are temporary and goes of in just few months- thats a huge lie!! The truth is it takes lot of patience, right medications and very bland, baby like diet, for years to cure it completely.. Right now i am again on Ayurvedic treatment and diet, Im on blad liquid diet only for 5 months now.. I hardly get enough energy to study, slowly getting better tho, my doctor told me that i need another 6-7 months to be ok again and cure this, he sounded promising tho.. I have exams coming up as well, Im saying all this because I want you people to know, i understand your pain, you will be fine again, focus on things you can control, you can change nothing by overthinking your past or future, listen to your body, give it what it needs, love your organs which are hurt or not working well, treat them as a hurt pet which needs your love and care, whatever you cant control leave it in God's hands and forgive and let go your trauma and past mistakes..God makes all things beautiful again "In His time", Right now be consistent in your studies and do your best.. God bless you❤

• 
  @Michelle_11155.7 күн бұрын

  Does it hurt?

• 
  @GeorginasJourney7 күн бұрын

  @@Michelle_11155. Im pretty sure I would have gone over pain levels of it all in the video ☺️

• 
  @Michelle_11155.7 күн бұрын

  @@GeorginasJourney oh yeee

• 
  @cyntiasantos45279 күн бұрын

  I'm in the middle of the process and I'm so scared, I do have osteoarthritis in so many parts os my body. Thank you so much for this video

• 
  @GeorginasJourney9 күн бұрын

  @@cyntiasantos4527 wishing you all the best, university’s are usually really supportive and accommodating!

• 
  @ManaBDew10 күн бұрын

  Try a cardiologist visit. Too 🫶😇😁

• 
  @GeorginasJourney10 күн бұрын

  @@ManaBDew my medication comes from my cardiologist 😊

• 
  @TruthSeeker41015 күн бұрын

  You Dysautonomia too? You need to see a functional medicine doc or natural path and get tested properly from mold & Lyme.

• 
  @GeorginasJourney14 күн бұрын

  @@TruthSeeker410 yes, dysautonomia too. I inherited it all from a parent who is equally sick, spent months in hospital & was in a care facility by age 50, so it can’t all be put down to mold or Lyme for me. It is genetic.

• 
  @TruthSeeker41015 күн бұрын

  You may be living in hidden mold. That and Lyme diseases triggers MCAS.

• 
  @GeorginasJourney14 күн бұрын

  I have a parent with my conditions who has spent months (must be years in total) of their life in hospital & then moved into a care facility by age 50. So we are certain my conditions are genetic & inherited. Even down to having body parts fail & then having to be removed, such as the thyroid.

• 
  @baconlatte16 күн бұрын

  The brain and the body are one. Nothing originates in the brain or body in isolation. Also genes dont cause disease except in the case of true rare hereditary disorders.

• 
  @GeorginasJourney15 күн бұрын

  Great 😊

• 
  @Voldycat16 күн бұрын

  So I'm sure you looked great at the wedding but the slide show of photos did make me laugh

• 
  @GeorginasJourney15 күн бұрын

  @@Voldycat I’ll show you the real ones later 😂

• 
  @Bluetoothedshark16 күн бұрын

  I have a tri-ride T-rocks, it's not cheap, but for where I live, (Cornwall) it gives me the power, speed and range for me to get out into the countryside, use the roads, but still able to use the bus and train. It's amazing.

• 
  @GeorginasJourney16 күн бұрын

  @@Bluetoothedshark that really does sound great!

• 
  @fibromyalgia0917 күн бұрын

  I play with filters on Snapchat then edit them free on youcut to help me get through the boredom its like learning to edit film while stook in bed x anyway all my love x one day we will have a cure xxx

• 
  @carolinadoglover138918 күн бұрын

  I fainted yesterday and after the faint i vomited, i thought i was going to die, i was sweating like crazy, honeslty it was the Worse experience

• 
  @GeorginasJourney18 күн бұрын

  @@carolinadoglover1389 vomiting after fainting is extremely common but I’m really sorry you went through that, as just because it’s common doesn’t mean it’s not awful 😞

• 
  @inspiremearts20 күн бұрын

  Can you do video on the safest wipes

• 
  @GeorginasJourney19 күн бұрын

  None are truly effective sadly

• 
  @inspiremearts20 күн бұрын

  Another thing that can cause pain and more infections is wipes you use I've had a lot of trial and error and I do still feel frustrated what kind of wipes you recommend I am allergic to just about everything in general so when it comes to wipes I knew I had to be careful the nurse suggested to get water wipes which I used but I still ended up with infections and I don't I'm not sure if water wipes actually truly clean the area well enough I use the ones that don't have a bunch of stuff in them and are for sensitive and then finally I tried to use the bzk wipes and I don't know if those are fully safe because you actually don't want to make yourself too sterile you still need the proper fighting bacteria to stay this is where we really like don't know where the fine line is it's so hard and frustrating but I think this is one of the reasons why we are still get infections no matter what we do because it depends on the delicate balance of the bacteria and wipes that either sterilize too much or don't sterilize enough or have other ingredients that shouldn't be put on the delicate area

• 
  @GeorginasJourney19 күн бұрын

  There is no wipe that can truly kill all bacteria so d-mannose, hipprex (methenamine) or low dose antibiotics are also usually needed too

• 
  @inspiremearts20 күн бұрын

  Sister have you tried going down a size if it's painful going and it's usually too big I had the same problem it caused a lot of inflammation and swelling and pain and then painful spasming as stream an emptyingcomes to an end. The catheter you are using as an example looks very big like the size that they automatically give everybody once I switch down to a 12 French everything was perfect. I do believe in theory that when it's too big you end up starting to build up scar tissue the reason I think this happens is because the holes in the end of the catheter scrape the skin as they're going in and then you end up getting swelling and inflammation and the more swelling than the more the holes in the catheter scrape. Another thing that helps is some brands are quite stiff for the straight catheters the one that I settled on has a slight curve and is very flexible so it's able to follow whatever curves especially because a lot of times we don't realize that we actually always put it in at an angle from the actual urethra pathway that can also cause swelling the brand that I use is in infyna chic

• 
  @GeorginasJourney19 күн бұрын

  Thank you so much!

• 
  @MrSolenoid21 күн бұрын

  Have you tried the SmoovOne? I have that and it's awesome and fast. Does 7 mph on flat surface.

• 
  @GeorginasJourney20 күн бұрын

  @@MrSolenoid I haven’t! This video is pretty old now but I’ve heard great things about that one! So glad it’s going well for you!

• 
  @kevnagi396021 күн бұрын

  I have a thyroid removal surgery in less than 2 hrs so happy for you and thanks for sharing

• 
  @GeorginasJourney20 күн бұрын

  @@kevnagi3960 I hope it went ahead, went smoothly, and that you’re on the road to recovery now! 🫶🏽

• 
  @Truhurtz21 күн бұрын

  I’m currently in a hotel bed and breakfast single father 3 children had a great job but my wife was irresponsible and abandoned the kids so I could not work spent all savings lost house now using credit cards ect it’s a terrible situation but I try to be positive and uplift people but the truth is is see people and family’s not eating well and it hurts. My children are young so won’t remember this because I’m shielding them I take them out in the morning and come back late so all we do is sleep have breakfast and leave I have a car so that is a god send but I got a ticket today so was not happy I also think the head gasket has gone but as long as it moves it’s a blessing. To be honest I’m struggling but I can show it my kids deserve and are used to better but I resigned my job last nov it was a great well paid job and it still keeps me afloat today because of credit I built up I never had to use credit cards but I’m currently in 3k debt and one emergency away from a catastrophe pi ray for me please.

• 
  @GeorginasJourney17 күн бұрын

  The most important thing is- you got the kids, you’re winning, even though it doesn’t feel like it right now. And when you get through this, it’ll all be worth it, as you’ve got the most valuable thing of all, your children. Keep pushing through, where there’s a will, there’s a way!

• 
  @ElkeTS22 күн бұрын

  You have such a comforting personality ❤ I always feel better after watching your videos. Hope you can find some relief from the suffering ❤

• 
  @Voldycat23 күн бұрын

  Gi I would (un)happily sacrifice our friendship if it meant that you were well

• 
  @jodim606423 күн бұрын

  I'm 42 and have been having episodes since 18 or 19 years old. It's horrible. I literally can not function

• 
  @GeorginasJourney21 күн бұрын

  I’m so sorry, it really is awful, have you had a gastric emptying study to check it isn’t gastroparesis?

• 
  @HannahElizabethAvery25 күн бұрын

  This was so interesting/useful! I enquired about laser hair removal about two years ago but they wouldn’t let me do it because of the combination of medications I was on which was such a disappointment! Glad you’ve been able to access it☺️

• 
  @GeorginasJourney23 күн бұрын

  Thank you! & so sorry it wasn’t an option for you at the time, have you researched online to see if it is genuinely not preferred, or if they were just not willing to take on such a complex case? My place has a nurse running part of the practise and she has several patients with severe M.E & even vascular EDS (life-limiting & shortening, very serious) in her clinic as she is able to make a full assessment x

• 
  @HannahElizabethAvery20 күн бұрын

  @@GeorginasJourney Thank you! I did a bit of research at the time and I think it was because of anti-depressants that could make me more photosensitive. I might try again though, as my meds have changed since! Thank you☺️

• 
  @Joseph-w3z27 күн бұрын

  ❤😂

• 
  @GeorginasJourney23 күн бұрын

  ?

• 
  @Joseph-w3z23 күн бұрын

  @@GeorginasJourney !!

• 
  @Joseph-w3z23 күн бұрын

  Mcas is a different term I thought 🤔💭

• 
  @Catlily527 күн бұрын

  I am too lazy to do makeup. I rarely did it before I got ill. Now I never do it. I do still shave which is exhausting.

• 
  @kalegolas29 күн бұрын

  I am in the process of getting tested because of joint issues and so on, and hEDS is one of the suspected diagnosis. And the only thing I dont relate to by this is that I cant reach my hands behind my back 😅

• 
  @nelliesmith898529 күн бұрын

  i’m actually bawling right now. if any doctor had ever considered eds i could have saved myself so much phys and mental torture. f this “health””care” system it’s literally the biggest fraud of all time

• 
  @sanscholte1189Ай бұрын

  Great info. Thanks.

• 
  @KellyJohnson-dr5obАй бұрын

  My name is kelly and i have lots of different Medical diagnosis that keeps on appearing as I get older I’m 17 going on 18 so I have too take 3 medicine prescribe to me lots of vitamins for different reasons that i have been in the hospital for many different reasons and some i have to stay in the hospital to hello from sugars and all tips of stuff and normal people hospital things too they hade me taking bad tasting medicine in the hospital and out of the hospital but not at the moment i am not so i get it doesn't taste good at home after i left the hospital from days after sugars so i get it you will find the help that you need but you will need to keep on having hope and sharing you storys

• 
  @hellosighАй бұрын

  I'm scared I have/will develop something like this, I had a thyroid ultrascan which confirmed an enlarged thyroid. There's been no follow up since and it's hard to get an appointment especially as I have multiple follow ups to do. My fatigue is more malaise now, it's worse than it's ever been. My nodules aren't lumpy, nothing that's noticeable but around the time of my scan I did complain about the left side feeling numb. I really hope it's nothing and that I get a follow up appointment soon

• 
  @GeorginasJourneyАй бұрын

  Hopefully no news is good news!

• 
  @hellosighАй бұрын

  I was prescribed propranalol after complaining about my palpitations, the doctor passed it off as anxiety and still does, but I have long covid and I'm pretty sure I developed POTS along the way, my doctor's and physio just haven't given me firm answers as to the reason for my ongoing chest pains, shortness of breathe and rapid heart beat. Propranolol 10mg deffo helped with the palpitations. I'm now doing my own research on POTS and natural remedies because no one else is going to help me with that. This video was to the point and very useful, thank you!

• 
  @GeorginasJourneyАй бұрын

  Sorry you’re going through all that, let me link you a video in case you’d like to test for pots at home so you can have some idea just for yourself to know what you’re body is doing and what the normal ranges should be!

• 
  @GeorginasJourneyАй бұрын

  How To Test For POTS At Home | Poor man's Tilt Table Test kzread.info/dash/bejne/hWur1tSrf8q5h5s.html (best to do the test in the morning, midday or afternoon, it’s less accurate in the evening & at night in some people!