I just wanna say I admire your strength to continue on, even making videos when you always feel so terrible. My health is really bad as well and I have similar conditions to you, and I do relate so this isn’t coming from someone being like “oh you’re so strong” I know you have no choice but to be strong, because I’m in the same boat. But I just admire that you make these videos even though you feel terrible because I’ve been wanting to start doing stuff like that but I just can’t bring myself to mostly due to I just don’t do well with social stuff and it feels social to me lol but also because my symptoms are too bad to figure out how I’d do it. Hope you’re having a better day than you typically do. ❤

@GeorginasJourney

Ай бұрын

Thank you so, so much for this 🥹☺️☺️☺️I know what you mean about how ‘you’re so strong’ can be taken the wrong way in this community, but since everything I do does take me so much strength, I really appreciate that you’ve said and acknowledged it ☺️ And you’re so strong too, I can tell 🫶🏽

@HannahMcNabb-2024

Ай бұрын

@@GeorginasJourneyaww thank you so much. It really does take so much to get from one day to the next. You seem like you’d be a really cool person to be friends with and if you want we can dm on whatever platform? Because I have chronically ill friends but they all are more functional than I am, it’s like I still feel like a disconnect, between me and them, and you and I seem to have a lot in common healthwise and maybe we have a lot in common otherwise too. And I’d just like to add if you do want to talk, there is no obligation ever to respond there is no obligation because I know I’ve been at points actually many times where I’m just too freaking exhausted or some other symptom to even respond to anyone. Sometimes for days or weeks. I just feel like you and I would really relate to one another. I think we are around a similar age as well. I’m 23. Let me know if you want to.

@HannahMcNabb-2024

Ай бұрын

@@GeorginasJourney so I didn’t know if your heart on my comment meant you wanted me to dm you or what, fine example of me not doing well with social stuff 😂. But I followed your insta. No pressure to reply or follow back, just wait until you’re up for it, just wanted to let you know 😊

Magnetic eyeliner is a wild concept! I'm having a hard time imagining how that is even possible? My eyes get so irritated when I try to wash off mascara- I can never seem to fully get it off and the little specs get it my eyes and it uses up so much energy. That's great to hear that laser hair removal is working out for you!

@GeorginasJourney

Ай бұрын

Thanks! I honestly dread the laser appointments every time they roll around as the crash is so bad that week (verging on hospitalisation type of bad), but every time the appointments have come up, I’ve made the choice to go, which tells me that deep down, it’s worth it for me- and I think it probably is. It worries me that I give the wrong impression when I say things are worth it when the physical cost is worse than most people can imagine, but I’m learning to be okay with that anyway- no one will ever truly know what I go through to do the things I do, and that’s fine, no one actually needs to know :) I’ve considered those too but there are some great comments on this video about that and how exhausting people have found it. I know personally there’s no way I would manage it atm, it has to be done multiple times a week!

I couldn't get magnetic lashes to work well either and it's so fidly 😴 l get vegan lashes applied that stay on for several months and that does me for that. Side note haven't shaved for over 10 years and I love being a mammal with my little curlies. Gives me more energy to attend to my head hair to grow fuller.. bloody pots 😅

@GeorginasJourney

Ай бұрын

Oh no, sorry you were sucked in by the idea too haha, they were too good to be true 😂 Ooh your lashes sound good though! Would I just google ‘lash extensions’ to find someone who does something like that? A lot of people are doing the same these days which is great 😊

I have moderate hEDS, POTS and MCAS. I got my eyebrows professionally microbladed, did professional hair removal under my arms and I get my hair professionally straightened every 6 months. Every extra minute of sleep makes a huge difference for me, so being able to look presentable without spending too much time on self care is key!

@GeorginasJourney

Ай бұрын

You’re absolutely killing it on that front haha, they’re all things I’ve wanted, considered or looked into at one point or another!

This was so interesting/useful! I enquired about laser hair removal about two years ago but they wouldn’t let me do it because of the combination of medications I was on which was such a disappointment! Glad you’ve been able to access it☺️

@GeorginasJourney

Ай бұрын

Thank you! & so sorry it wasn’t an option for you at the time, have you researched online to see if it is genuinely not preferred, or if they were just not willing to take on such a complex case? My place has a nurse running part of the practise and she has several patients with severe M.E & even vascular EDS (life-limiting & shortening, very serious) in her clinic as she is able to make a full assessment x

@HannahElizabethAvery

Ай бұрын

@@GeorginasJourney Thank you! I did a bit of research at the time and I think it was because of anti-depressants that could make me more photosensitive. I might try again though, as my meds have changed since! Thank you☺️

Great video! I do at home IPL hair removal on my whole body as I have PCOS, and it's such an intense workout! The beginning phases will take longer and I need to use it more frequently, so I'm just trying to push through until I can move down to the faster setting which is less exhausting and less frequent!

@GeorginasJourney

Ай бұрын

Thanks for sharing this- I’d honestly considered it myself a few times but a few factors had held me back, the physical effort it takes to do it isn’t covered in any videos online either, so thanks for taking the time to tell me & I’m going to pass this on to my friend who was considering it too, if that’s okay? I hope you get to the faster & easier point soon 🤞🏽🤞🏽 Sounds like it’ll be worth it to stick with it!

@lotusflower474

Ай бұрын

Do you think it would be hard to do if only doing it on a small area? I have hirsutism (with no known cause) and I have to shave my chin every single day. I want to try at home ILP hair removal for it so I can stop shaving.

@Zack-bs9mi

Ай бұрын

@@lotusflower474 I am the moderate end of severe and coping with doing a small area. 3x a week.

@GeorginasJourney

Ай бұрын

In case it’s helpful to know, I actually get one singular zap on my chin, it only takes 5 secs, but the light is super intense even with the protective goggles & my eyes closed, so I’m not sure if I could do it myself with my eyes shut & in a difficult to reach area like that- my 1 zap is done underneath my chin though, not on the face part of the chin. My lady also checks the hair follicle & double zaps (on rare occasions it’s needed) to ensure I get an effective treatment every time without fail

@GeorginasJourney

Ай бұрын

Oh wow, is that how often it’s advised to do it? Also, I appreciate you saying where you fall on the severe scale for reference as the severe category is such a big spectrum in itself, so that will be really helpful for anyone who’s looking for the info you shared 😊

I am too lazy to do makeup. I rarely did it before I got ill. Now I never do it. I do still shave which is exhausting.

I’m going to look into doing laser hair removal at home. Just need to research it.

@GeorginasJourney

Ай бұрын

I recommend reading the other comments on this video video as someone has said it’s very exhausting to do it yourself

@KristiTalk

Ай бұрын

I’ve had professional done 20 years ago, and for me it was permanent. For me, I have redhead gene and the laser can be turned up higher. I use at home laser hair treatments now. For me it works quite well. It thins your hair first and will feel soft, then it grows really slow. For example my underarms I shave every 3 days, with the laser I can go just over a week.

@KristiTalk

Ай бұрын

Also should be noted, it doesn’t treat blonde, gray, or colorless hair. 🤷🏼‍♀️

I’ve wanted to get laser hair removal because if I let the hair on my legs grow after not shaving, it hurts me. I don’t know if I could handle getting it done and I don’t know if there’s anyone around me who does it, also the cost. I have seen at home hair removal tools but I don’t know how I’d react to that.😅 I put sunscreen on the other day and immediately got a rash on my leg, I never know how I will react with my MCAS.

@GeorginasJourney

Ай бұрын

If it helps, most laser places let you do half legs, where it’s just the lower legs for half the time & half the cost!

@GeorginasJourney

Ай бұрын

Alternatively, some people have more success with waxing