I was pregnant with a baby boy who was said was going to have Klinefelter syndrome, he was born still born at 28 weeks. 😭 I got a chance to hold & name him. He was given a birth certificate & everything!! I think about him often, which is what brought me to your channel. 🙏🏾 I know he is in a better place! 🙏🏾💙 I pray for ALL of you that are living & dealing with Klinefelter. 🙏🏾🫶🏽🙏🏾 What a blessing to live & share your stories, to help us out that have no clue, but deal/dealing with this… YOU ALL are the real heroes!! 👏🏽🙌🏽 Just know my son is a guardian Angel 👼🏽 watching/protecting you ALL as well! 🥰 R.I.P Ja’meer J. Berry 🙏🏾👼🏽💙

I have klinefelter too, It really doesnt stop you from doing anything, you just look a bit different than "normal". Do whatever you want, become a soldier, cop, marathon runner, bodybuilder, teacher, vet, drill sergeant, attorny, builder, ... This sounds cliché but its a straight up fact: you CAN do anything! Myself, I wanted to be able to run marathons, started training a few months ago, started to notice I was really good at it, already can run faster and further then most of my friends whove been running for 2-3 years. But pushed myself too hard an am currently injured, but pain is temporary, it will heal and I will be able to continue running towards that goal of a marathon and I will be able to run a marathon one day.

@abelayomide2088

3 жыл бұрын

Know that, not all XXYs have the same symptoms or to the same severity...

@alien_menace971

3 жыл бұрын

You might try become a soldier today, but in 1974 it didn't happend for me.

@desireandfire

2 жыл бұрын

@@abelayomide2088 yup! It's a spectrum. I don't have all symptoms and haven't been diagnosed but I feel like it's pretty obvious to see now that I searched it up. I have a feminine looking body but never EVER any enlarged breasts (they are just gaining muscle now that I exercise), I also have where most my body fat goes to my stomach. I have adhd and I don't feel great mentally and physically a lot of the time and I blame it on not enough sleep or a bad diet (which could also be apart of the problem) but it makes sense that it could be from KS so im hoping to get tested soon. (I have my chest bone popping out too but I think that's a symptom of another syndrome)

@neverstoplearning3451

5 ай бұрын

@@desireandfire Bro same to same problem I also have this problem and I don"t have cheast fat but have fat at Hip . please reply do you have hip fat and do you start TRT ??

As a former 26+ year elementary school teacher I sadly regret that I did not know about this medical condition. It should be mandatory teaching for educators, others working with children. The three of you are saints for shedding light on this topic. You will help many children to have a better life. I wish the three of you the very best always.

I'm Peter and I was diagnosed at 30 with Klinefelters Syndrome. I reached 6'8" at the age of 15 and was morbidly obese. I got into a healthy lifestyle at 19 and am.able to maintain a 225-235 scale of weight. I'm infertile from birth but have a loving wife of nineteen years. I've been unable to grow muscle mass and have gynocomastia. I use Androgel (50% the RX) and have good energy. My small business has generated an average of $85000 profit the last decade.

@LivingwithXXY

3 жыл бұрын

Thank you for sharing.

Thank's for the video. I wish you all the best! Keep on inspiring.

Im studying for Gen Pathology class. It is amazing to see such content in KZread. You guys gave me a motivation to study through my medical classes. Thank you very much!

I love these videos and the courage you all have to share your stories. You are helping countless others!

@LivingwithXXY

Жыл бұрын

Thank you so much!

Love this so much!

Yeah, I never got a diagnosis from a doctor, but I don't believe I need one to know. I learned it when I started doing studies on why I have large hips and saw many other signs and symptoms that are related to it. Math struggles, somewhat with speech, terrible short term memory, never could gain muscle, etc... Of course, I ended up getting married and we've tried having a child for two years and still nothing. However, I still ended up joining the Military prior to learning this and have served for 12 1/2 years.

@Cjharps2442

4 жыл бұрын

That's amazing. I 100% can relate to horrible short memory. It's quite an issue, and my good friends help me remember things, cause most of the time if they ask me if I remember something from the previous week, I most likely don't. Even as close as 4-5 days ago everything becomes a massive blur, unless I have a visual of it.

@tims7686

3 жыл бұрын

If you have wide hips(feminine hips) and narrow shoulders it just can be genetic, not necessarily syndrome

@desireandfire

2 жыл бұрын

@@tims7686 I have feminine hips and narrow shoulders but haven't been diagnosed. I have lots of mental and internal symptoms of KS so i think I might have it

@johnwang9914

Жыл бұрын

The karyotype test is really definitive. It might give you some peace of mind to just get tested. The medical student syndrome where you believe you have whatever you hear about is a real thing. You don't want to go through life blaming everything on something that you only know might be true.

@trey87

Жыл бұрын

@@johnwang9914 Well my wife and I eventually had a child. She was born March 4, 2021. Even if I have KS, I'm not sure if I'm too worried about it anymore, since that was my main concern.

Hey guys keep educating us on xxy!

@LivingwithXXY

9 ай бұрын

Thank you

My son was diagnosed 6 years ago and is in a downward spiral! I pray he see these videos!♥️🙏

@trey87

Жыл бұрын

Show these videos to him.

@lynnleglaire4819

Жыл бұрын

I hope he can watch these videos. Talk to him. It’s a lot of info at the age of 30.

Thank you for this channel! I'm looking to learn more from real people as I have a child who was dx in utero and I'm still learning. He's currently a happy and healthy toddler.

@beckymyers7982

9 ай бұрын

I'm also a mom, my son was dx in utero as well. He is currently 27 and an excellent diesel mechanic altho he struggles at times with the emotional/social challenges of being "different". I'm so happy to have discovered this channel and I hope my son will tune in as well. I would be happy to talk more with you.

@MommaAnj

9 ай бұрын

@@beckymyers7982 a few years later and he's now 7. Healthy hyper and incredibly observant and smart!

I can relate. I’m a very visual learner. Show it to me a few times and I’m good to go. It also seems that we have an internal drive to always work hard. I always thought it was because I spent 4 years of high school on a ranch, but I think it could also be a KS trait as well.

@rickevans7941

Жыл бұрын

Omg yes! I bust butt! Always thought it was my upbringing never realized it may be KS trait.

@valeriumoscalu7580

2 ай бұрын

I can relate to this too! Show me ones I will remember forever! Tell me 10 times I will forget!

My father was a urologist and did not know about Klinefelters until I was diagnosed. He studied up and was able to help diagnose many young men. Selling painter and landlord on the side of a strong 19 yr career in freight with one of the big 3. Pretty normal life here

Ryan, I remember a video of yours where you "beekeeping", was that on Andy's property?

Is there any way to purchase the test online and just go take it at labcor or something like that?

I am undiagnosed still, at 46. But the evidence I have it is rock solid. But yeah, I also managed to have a decent life, eventually. Still frustrated it wasn't spotted in my teens so that I could have been given testosterone to fix a few things when I was still developing. But it's not controlling my life anymore. Thanks for the videos. Good work.

@slickrick4129

3 жыл бұрын

The best evidence is genetic testing

@lynnleglaire4819

Жыл бұрын

Maybe, if you do the testing, you can get hormonal therapy…

@rvkpt

Жыл бұрын

@Slick Rick very expensive. Maybe one day.

@rvkpt

Жыл бұрын

@Lynn LeGlaire I have been on TRT for the last 4 years now.

Just started to suspect of maybee having Klinefelter too..

😍😘💕💞 thank you

My dad has it, I want to know more because I don't think he knows much about it. Thank you

@LivingwithXXY

2 жыл бұрын

Thats awesome!

@florentricome6077

Жыл бұрын

If he has it, he s not ur dad…

@neverstoplearning3451

5 ай бұрын

​@@florentricome6077ks man can become father by IVF

I was about to say, this just seems like a normal couple of guys, then I heard Andy's 54 and holy shit he looks 20.

@Jadae

2 жыл бұрын

I am wondering if there is more collagen in the skin of XXY that gives it more elasticity.

@rickevans7941

Жыл бұрын

Youthful appearance is the one silver lining with us KS guys

Hi i also have been diagnosed with osphegilitis a shrinking of my food pipe making swallowing difficult is this connected to ks?

@LivingwithXXY

4 жыл бұрын

Not sure. We are not doctors.

@rickevans7941

Жыл бұрын

I have KS and EoE it could be related due to IgE involvement

I was diagnosed at 23 xxy non mosaic and I got married at 24 tried having kids for 3 years, nothing happened did I,v,f and we had twins but they didn’t live long around 11 months, we adopted a baby after 13 years. my biggest struggle is my weight I cannot loose weight and I try so hard I’m on androgel pumps and can’t loose weight, so hard and frustrating looking for advice

@rz5b1qszkdf44

10 ай бұрын

just get on testosterone and throw in some Anavar from time to time (especially in the summer)

Testosterone replacement therapy, HCG (for fertility,and or breast tissue removal and you’re good. I think I have it as well at age 20 but my testosterone came back “normal” at 500 ng/dL but I experience every symptom that’s related with low t and my doc (not physician) said I’m fine :( 🤦‍♂️😤

@BARBELLS-AND-BUDS

4 жыл бұрын

My testosterone came at 403 And my doctor and endocrinologist said I'm fine. I said I have all the symptoms of low testosterone and people my age are supposed to have around 650 on average. I talked to a TRT clinic and they prescribed me testosterone. I haven't taken it yet because I'm nervous. I'm watching videos to see people inject it and hear their stories. I Don't think i have KF but just regular low T.

@LivingwithXXY

4 жыл бұрын

You have to get a karyotype to get an answer

My 2nd second husband has this. I left after about 2 years due to all the behavioral issues he has. I don't know if it's the Klinefelter Syndrome and/or separate psychiatric problems, but frankly, he's dangerous. Part of the healing process for me is to understand what was going on with him. I would rather believe that he couldn't help how he is, but a big part of me believes that he's aware of and intentionally an abusive person. Would you be able to shed any light on this?

@rickevans7941

Жыл бұрын

We aren't like that. We're empaths. Sounds like he was hurt and allowed the cycle to continue. Hope you both find peace and love

@Inflec

10 ай бұрын

Sounds like your ex could have been a narcissist besides having Klinefelter's. Ppl with Klinefelter's may tend to be empathetic but they are certainly not immune to narcissistic or sociopathic tendencies.

How about relationships?

I'm married to a man just diagnosed with this syndrome after 60 years. It is killing my marriage and pushing him away from the people who love him the most. My kids (not his). He attacks for no reason. I need help and support. Well he does. People understand the syndrome but I don't see much on the profound psychological trauma it causes to a person especially when undiagnosed for his entire life. Is there support groups, pod casts, anything that can help us as a family.

@LivingwithXXY

3 жыл бұрын

Www.livingwithxxy.org We have a podcast on our website that can be found on apple and spotify.

@paulahello7435

3 жыл бұрын

@@LivingwithXXY Thankyou so very.much!!

@milymartinez6766

2 жыл бұрын

@@paulahello7435 una pregunta disculpe el tiene hijos con uds quisiera saber si el no tuvo problemas de fertilidad

@angelmoreno6577

2 ай бұрын

​@@milymartinez6766soy español de 72 años y tengo 2 hijas. No estoy diagnosticado de Klinefelter, pero he tenido muchos de los síntomas, sobre todo entre los 15 y los 25. Caderas anchas, poca fuerza y desarrollo muscular, genitales pequeños, no micro. En esos años, mi vida fue un infierno socialmente. A los 25 encontré un trabajo que requería esfuerzo físico y fuerza. El primer año fue terrible, después mi vida empezó a cambiar, me hice más fuerte, aumentó mi peso y por suerte la grasa se me iba a la cintura, como les pasa a la mayoría de los hombres, si me hubieran aumentado las caderas hubiera sido imposible para mí, con compañeros muy machotes A los 33 me casé, tuve mis hijas y ahora deseo hacer un análisis para saber si tengo el sindrome

i was diagnossed at 41 im now 48 years old

@LivingwithXXY

3 жыл бұрын

Thanks for sharing!

Can someone with klinefelter’s be average height (around 5’9-5’11) if they have a lot of the other symptoms (elongated limbs, pear shaped figure, higher pitched voice, slightly feminized facial features)? Age is mid 20s. Also strong possibility of high functioning autism and slightly above average intelligence

@LivingwithXXY

Жыл бұрын

Yes

I’m 19 I have Klinefelter syndrome I’ve know I’ve had it since age 10, my parents knew since I was 3. I still have depression. I’ve been taking testosterone in my thigh since age 17. My doctor lied and told me once I’d start taking it I’d gain a ton of muscles and facial hair, that didn’t happen. I feel like the doctors lied just so I would start sooner. I don’t feel any different from when I didn’t take it. I can’t have kids none of my sperm live. I live in a small town I am being laid off November 4th due to slow work and rehired at the end of the month when Black Friday happens. I make $100 more than when I worked at McDonald’s I currently work for NRI. Have attempted suicide multiple times. Still scared what lies in the afterlife but idk what to do with my life I’m not passionate enough to take anything in university so I feel like I’m living a pointless life.

@JBittermusic

4 жыл бұрын

please keep fightimg to stay alive, dont let negative thoughts take over become a fighter its in you

@barbaradivita880

4 жыл бұрын

You are only 19! Life changes a lot and believe me, college is a waste of time for most! I am over 50 & I have friends that still haven't paid off their student loans fully! If there is something you like to do, do it and have fun.

@angelineandrade589

4 жыл бұрын

Aidan I'm sorry the T shots didn't deliver the results you wanted; you might want to talk to your doctor about other T delivery systems (patches, gels, etc) and dose levels that might be more effective for you. You are still very young. My boyfriend has Klinefelter's and didn't get diagnosed until 45 years old. That means he's never been on T. This late in life he doesn't feel it would be worth it to go on T, but he may end up changing his mind depending on how he feels as he ages. He too suffered from depression and suicide attempts in his youth, but I'm happy to say that things got so much better for him and they certainly will for you too. He went to graduate school and became a very successful healthcare professional. Life is about choices; you too have the power within you to become who you are meant to be.

@Ayoalfie

4 жыл бұрын

Aidan, Fuck the world and their pointless opinions. You matter. And while you still have the chance to walk on this Earth don't allow anyone to steal that away from you not even your depression. You can make it through this Aidan! Know, it's only a storm you're going through but there's something bigger and better watching for you once you conquer than battle. But, I need you to keep moving forward Aidan. Don't give up! You are loved and you are worthy of life!! You belong on this Earth! And one day you'll see your purpose and use this as a testimony. But, right now I need you to say to yourself and look in a mirror - "I am worthy beyond measure" "I love every part that makes me who I am" "I will get through this storm" "I love you". Keep speaking positive things into your atmosphere and witness a shift to move within your life. But, I need you to continue to fight. You are not alone. Don't give up Aidan! There's still more for you in this world!!!

@munmunhazarika5247

4 жыл бұрын

995775072 watsapp me ks bros.... Life always felt sad yet with few splashes of joy. We fell on the wrong side of natural selection or runt of the litter. But things could have been even more worse..... I blame god only him fuck the Lord...

I want to go get checked but idk 🤷‍♂️ I’m scared I’m 16 I have wider hips and gynomecostia and I’m pretty tall not unusually tall but still

Is Klinefelter's Syndrome detected at birth or no? I feel like I have it but I'm not for sure, but since it's a chromosome disorder it seems plausible that it would be found early on.

@LivingwithXXY

2 жыл бұрын

Yes it can be found at birth. NIPT testing

@piridede6604

Жыл бұрын

My grandson to be(12 weeks pregnancy) just diagnosed 2 days ago......

@beckymyers7982

9 ай бұрын

My son's XXY was discovered on amniocentesis when I was pregnant, so we were expecting it. Then after he was born we had him tested (by a blood sample) to confirm it. These tests are not necessarily done unless you want them or ask for them. In my case, amniocentesis was recommended because I was 41 having my first (and only) child.

bro on the left is 54. he looks like he’s 35

@oceanrocks

Жыл бұрын

If he just lost weight he’d look 26.

@orenz.272

11 ай бұрын

​@@oceanrocks No

@jeremyfitzgerald8240

10 ай бұрын

That is a benefit of XXY, you look much younger than you actually are.

@ErnieKings27

8 ай бұрын

@@jeremyfitzgerald8240 that make sense, actually I think I have this I will get my testosterone levels checked. After all these years I guess getting to know this is actually quite a relief. Cheers from Mexico

how could u all get mustache???

@LivingwithXXY

4 жыл бұрын

Some people can grow facial hair.

How do you dudes have so much facial hair???

@militsokappa8545

Жыл бұрын

Probably trt

I just found out and I’m 18. I found out because I had non stop hand shaking and they did blood test and I found out.

@srrler1531

4 жыл бұрын

What ? Non stop hand shaking 😂?

@LivingwithXXY

4 жыл бұрын

Glad you found out.

How did the middle guy had kids?

@LivingwithXXY

2 жыл бұрын

Donor sperm

My wife and i just had our 3rd child. 49 xxxxy. 2 weeks old. We are so lost. Dont know what to think. Im still trying to swollow this pill. We found out yesterday. Any help would be beyond helpful. How do we approach this? He looks like a boy, doctors said there are no female organs. Should we do trt therapy? Should we wait? Would it be better for development to start early? We had never heard of this before. We have 2 older boys, 2 and 5. Im worried this will become a burden on us and cause neglect towards the other 2. We are so lost.

@LivingwithXXY

Жыл бұрын

Hey Tom, This is Ryan our president of Living With XXY, The only non profit I know about that works closely with boys who are 49XXXXY is www.thefocusfoundation.org. I do know a few families personally with this diagnosis I can connect you with if you email me Info@livingwithxxy.org

I have the following: Taller than average Mental disorders Learning disorders Considering how far into puberty I am, I have very little chest or facial hair. Long arms and legs Probably more that I’m forgetting. I’m getting curious now.

@MrJObajobas

3 жыл бұрын

Could also be marfan syndrome

@desireandfire

2 жыл бұрын

@@MrJObajobas I have a chest that sticks out so I think I could have marfan or KS

Military veteran. Found out thru Endocrinologist....have 47xXY. .........

My brother have the sk they can't find girlfriend

Im taking my 10 year old to see a dr as im concerned about the size of his testicles and penis. Hes also been diagnosed with adhd but i have a feeling it may be because he has KS as i read behaviour and concentration is linked to it. He has flat feet too

@rickevans7941

Жыл бұрын

Yep I had flat feet. Walked on my tip toes they say.

I think I may have this, may I ask does testosterone therapy hurt ?

@GentlesirGibbles

4 жыл бұрын

You can only know from a karyotyping test. All babies born in the USA after 1994 have mandatory prenatal testing for this. It's a genetic condition. Happening on the sub-microscopic scale; you can't really 'observe' yourself having it. Testosterone therapy is a bit easier now; albeit somewhat costly. Pain is either from injections or getting the testosterone gel on sensitive areas ( forgetting to wash your hands post application)

@dmanbiker

4 жыл бұрын

Get your doctor to do a bloodwork for testosterone levels. That's how they found it in me. I wasn't diagnosed with XXY until years later, but the treatment is TRT either way.

@srrler1531

4 жыл бұрын

Herbert Laughlin or..... you can get the needle like I do which hurts but it’s the best option

@adrian-linisteanghel750

3 жыл бұрын

No it doesn’t hurt speak to your doctor rather than trying to figure it out yourself. There is help out there

Do they had small hands, small private part, low energy, less growth when they were diagonized?

I have XXXY syndrome

Damn the host is a cutie!

Can you join military with such a thing?

@Melaniice

3 жыл бұрын

Ofcourse you can don't let anything stop you

@jwhippet8313

Жыл бұрын

Sure. They don't test for it, but consider if the military is the right path given the symptoms.

How do these people have beard being a xxy

@LivingwithXXY

3 ай бұрын

Because some people with XXY grow beards just like the rest of the population. Some are on testosterone which helps.

Put the camera at waist height and put your guest in chairs where they will sit up straight. Sitting up straight indicates important news that everyone needs to hear. Notice how newscasters always sit up straight.

@rickevans7941

Жыл бұрын

Not that kind of video my guy lol

fertility issues?

@LivingwithXXY

3 жыл бұрын

Yes most of us can’t biologically have children, but this isn’t the only way in becoming a father.

@BrendanMcClelland

2 жыл бұрын

@@LivingwithXXY do you have any videos regarding fertility?

@amys.9626

Жыл бұрын

@@LivingwithXXY Hi,can you tell me if this is KS?The following traits and characteristics are: Height: 2.07 cm Longer arms and legs More narrow shoulders Really wide hips No cheast hair Patchy face hair,on the chin he has hair Smaller head Had asthma as a boy Dyslexia Tremor Real problems with anger violent Please answer,grateful

@orenz.272

11 ай бұрын

​@@amys.9626 Go get tested

And it’s said that there is only two DNA genders yet there is actually three!

@LivingwithXXY

9 ай бұрын

We are men. Not a 3rd gender.

@neverstoplearning3451

8 ай бұрын

​@@LivingwithXXYyess we are men even tom cruise and George Washington has klinefelter syndrome and they are the most successful in their life Love from India

@kunalc1854

5 ай бұрын

@@neverstoplearning3451 are bhai tu ze bhi ye vala problem hai tu bata bhai muje bhai hai par me tu masterbestion bhi kar ta hu aur ladki se attract bhi hota hu bhai reply de na

@neverstoplearning3451

5 ай бұрын

@@kunalc1854 haa bhai detail me baat karte hai insta use karte ho??

@neverstoplearning3451

5 ай бұрын

​@@kunalc1854hello bhai 👋👋