My daughter is 8 years old & has seizures when she's asleep at night & early morning, between 11pm -8am. It started about a year ago when she was 7. Her Dr prescribed levetiracetam & now the Dr is slowly switching it to oxcarbazepine. My daughter told me that she felt her seizure coming because of a tingling in her foot.

@benhallo1553

Жыл бұрын

Exact same as me, I’m 24

@Pherretfish

Жыл бұрын

I think I’m experiencing the same thing. I also had a tingling sensation in my foot or pins and needles. But when it was happening IF it was, I was aware and could see but not move at all and my head also felt extremely tingly. I eventually broke out of this state though.

@Pherretfish

Жыл бұрын

@@benhallo1553 can you tell me more about how you feel before after and if it’s possible during that time?

@GothicPoet

Жыл бұрын

I am 42 and I started getting seizures at the same age as your daughter. Mine wasn't at night though and I didn't have them often. I developed epilepsy in my 30's and I started having them at night and it started to happen in the daytime too. I am taking medication now and it's helping. I will keep you and your daughter in my prayers. I hope she improves. ❤

@user-ht7nz5eb2x

8 ай бұрын

I started to have seizure at the age of 9. At first it was during sleep... But then it developed..I started to have seizure in school. But now it's under control... I'm also using levetiracetam tablet 😊....It's been 5 years since I started this medication... It's under control now... But sometimes I feel that it won't cure but then I realise there many people out there with worse conditions than mine...So all I have do is live happily 😊

Very informative for me Thank you very much sir 🙏

I was just diagnosed with epilepsy today, i am 13. I was sent home a week or two ago with wires attatched to my head for an overnight scan of my brain and stuff, and apparently i have been having nocturnal seizures, which makes alot of sense now that i look back on what people have told me i do during my sleep. I had one seizure during the daytime back in january a couple days before my birthday, and thats what warranted this entire thing.

@m3kbeatz

9 ай бұрын

Can u describe how it looks and feel? Thanks

@nataliedesormeaux6559

9 ай бұрын

I also have nocturnal epilepsy and started when I was twelve or thirteen years old. I am now 46 years old and my epilepsy is doing well with carbamazepine medication also called Tegretol. I also had an aura I guess you would say before seizures. Next day my arms and legs would be sore, often sick to my stomach and bit my tongue. But last seizure was in my 20’s very lucky indeed with anti convulsant med that’s helps me. I could not outgrow of my seizures. But learned that it’s a part of me and i am doing well with that.

@petuniahead9982

8 ай бұрын

Hope you are doing much better now

I turned 25 three months ago, and I am just learning about this. I only had grand mal seizures whenever I was sleeping, my first being 2 week after I turned 13 years old. I'm not photosensitive, and ever since I was put on medication I experienced day time partial seizures. Wow, I can't believe this. Thank you!

My son (6) had his first seizure last night in his sleep, and now i’m so worried it might happen again but now we are little smarter! Most scaring is that he was not able to breathe so gonna keep a watch now every night. Thank you for clearing this a little! Waiting for the tests and everything feels so bad.

@QueefBurglar069

7 ай бұрын

I had undiagnosed epilepsy up until I was diagnosed at 16. Another thing to watch out for is staring spells. My parents thought my staring off was linked to dissociation from ADHD, but they couldn’t have been more wrong. They’re actually a type of absent seizure, which are seizures that affect the brain and consciousness but not the body. It starts off as a feeling of Deja vu, almost like you’re remembering a dream you had forgotten and it’s all coming back at once. My head would start to pound and I could literally hear my heartbeat in my ears. I would start experiencing flashes of light, get extremely hot and sweaty, nauseous, and eventually start heaving and gagging which will sometimes lead to vomiting. Please pay attention to those signs. While I don’t experience convulsing seizures as often, these absent seizures are EXTREMELY common for me and has even prohibited my ability to drive. They’re hard to notice too. Prayers for you and your son, this is an extremely scary disorder. Especially when you have no idea what’s causing them

I've had these all my life at night but only recently realised what they was after I was sleep deprived and they happened whilst I was a wake. Few weeks later I had a night full of them, cluster TCs, fucked me up for about a week my body hurt that much. It's been months and I'm still waiting to see a neurologist 😩 I'm tired of being tired and aching all the time with nowhere to turn

@matthewhlavenka6233

Жыл бұрын

Right here in the same boat. Lemme know what helps you

@jedheart8059

Жыл бұрын

Same here. If I start losing sleep, I begin to have seizures. If I continue without catching up on sleep, I get myoclonic twitches and atonic seizures. I may sleep all day after those and need to keep catching up on sleep until I can get back to going to sleep earlier.

I’ve only been diagnosed with generalised seizures, but I live alone so I don’t really know. I’ve been “sleepwalking” for quite some time now, doing things with no memory after. Like I do when I’ve had seizures during the day. Terrifying when I discovered I had turned on the oven with food inside.

@ediebug4757

2 ай бұрын

I hope you can reach out to someone in the medical field (a Dr especially)& get some help for whatever you're experiencing...be safe 🙂

Thanks for this informations❤ Brain focus while we were sleeping is so important for us

What about seizures being misdiagnosed in ways of sleep apnoea ?

This is what happened to me. I started having seizures at night in my sleep. I started waking up and the seizures started and they started happening in the day until I developed epilepsy. I hurt my shoulder in my sleep because I kept having seizures and it hurt my shoulder. I had to get physical therapy for my shoulder and I got on seizure medication. I was told I need to go to the hospital if I have more than one seizure and if I don't come out of the seizure. It affects my heart and lungs too. I have been to the hospital for it and they didn't allow me to leave until my heart and lungs started working well. The most painful seizures are the ones that affect my muscles and they are hard on my body. I get bruises sometimes from the muscle spasms. I am on medication now and I am doing better.

When im about to fall asleep aura sometimes get triggerd dont know why.

I get myoclonic clusters all night long some nights. It keeps me awake and it doesn't stop until 4:30am. It's draining and exhausting. I think it's more likely to happen if I eat sugar in the day without knowing it. Or around hormonal changes. I've been on the ketogenic diet for the last few years because medication just wasn't helping me.

I have this for the past 15 to maybe more doing this mostly.always wondered why and now I found out I'm not the only one like this.

Hi, I have a question I had seizures for like 15 years Now I can’t remember basic things, like my name,clothes and foods names . I thought I was the only one that had seizures just night when I was sleeping.

Question is, Does Dr. Omar danoun have epilepsy? I've heard some neurologist and epileptologists have epilepsy themselves

@DrOmarDanoun

Жыл бұрын

Great question.. Yes some Epileptologists have epilepsy but this is rare I think

Plz tell me when i sleep and i need to go to washroom. During heavy sleeping feeling.Jerking situation happens. What kind a seizure it is. Plz guide

Just to clarify: Nocturnal epilepsy is when you only have grand mal seizures while asleep. When awake, you never have grand mal seizures. I used to be diagnosed with that along with temporal lobe epilepsy(one where you feel that deja vu thing and have hallucinating senses of some sort). Then it got worse like about 5 years after, wherein it changed from nocturnal to being just the usual grand mal which means basically, now even while awake i also have seizures.

Dr. I have had nocturnal seizures for 4 years. But I continued my medication till recently provided that I shouldn't avoid 7 hours of continuous sleep

@jinucyriljames643

Жыл бұрын

Also travelling on aeroplane and migrating to another country will require sleep deprivation to an extent. Besides, once I get there, I will have to adapt to the new sleep cycle(day time and night time are different). I doubt that it's risky. Can you clear my doubt??

@DrOmarDanoun

Жыл бұрын

Please review the video on seizure triggers it has all the information

What's natural remedies for it?

@DrOmarDanoun

Жыл бұрын

No natural remedies for epilepsy

I feel like I’m having this rn, whenever I try to fall asleep I get this weird tingling and an adrenaline spike

@patski7105

7 ай бұрын

Same

I have a complicated form of epilepsy… I have grand mal seizures at all parts of the day… usually within a short time after taking my meds. if I don’t follow up with some cannabis…

@MannyAdams-sr6zs

7 ай бұрын

Me too, what medicine did the doctor prescribe you ?

I have history of epilepsy but seizures only happen once a year my mom thinks I'm dreaming 😂

I remember when I stood up and went to my parents room during a seizure and they said I was like a zombie :o

My seizures almost exclusively happen in the shower(temporal lobe auras). Why is that?

Hi i am nocturnal.... I only got my in my sleeps.... And I am taking xbaren 300 medicine from last 3 years..... But I don't understand what to do

WhT to do please?😢

I have a question or 2. I’m 43, had 3 nocturnal grand mal seizures. 3 weeks apart. Very bad. 1st my 7 year old seen but didn’t know, #no memory stayed asleep, 2nd. Wife saw, called 911, I’m unconscious but fighting with all that came and they shot me with a seductive, #i remember flashes of seizure, feeling trapped in a hole cannot move, and the fighting, 3rd, wife recorded. I tried to leave after to work but she stopped me. I remember Nothing. I’m on 750mg Letv and very very emotional. Why do I remember my 2nd one??? Does a sedative affect u after a seizure???? What else can I take instead letv???

@DrOmarDanoun

Жыл бұрын

I am sorry I cannot provide medical advice online or answer personal questions without knowing the patient well . Please discuss with your neurologist

@TheBitcoinCave

Жыл бұрын

Thank you. I learned more from your videos then from the 36+ hours in hospital and doc offices.

It's been 8 yrs I had epilepsy but I was fine in 2 to 3 yrs of medication and after that I had small seizure when the 3rd yrs was about to complete . Then after I had to take medication for 4yr. Now i am fine but I had some symptoms of partial seizures I blink my eyes abnormally like a short period of time but it happens. So I am on medication right now and maybe this is going to last yrs I hope.😊

I have seizures in my sleep. I'll even dream that I am only wake up to find myself in a seizure.

I have nocturnal sezuires it’s gotten so bad I had one three times

Is this more common with people with narcolepsy?

What is the difference between nocturnal sezures and confusinal arousals ??

@DrOmarDanoun

Жыл бұрын

Two different conditions. Nocturnal seizures is Epilepsy

@saharabed4009

Жыл бұрын

Can u please differentiate the symptoms ?

@blueskyalldayeveryday

Жыл бұрын

Good question. I found this video, hope it helps: kzread.info/dash/bejne/omGi3MGPYqWdmMo.html

My brother is 13 years old we just discovered he can collapse we thought it was because of cold weather but then he had it again, hopefully nothing bad.

visceral epilepsy ? I have body goosebumps several times a day. I had a brain tumor removed from the right temporal lobe in 2016 no seizures sinse then ,now I have visceral epilepsy any thoughts

@DrOmarDanoun

Жыл бұрын

Please review the video on aura had your detailed information

🗣️my doctor 🧑‍⚕️ dignose me with grandmal sezuire I have them sometimes in my sleep 🛌🏿 if I don't take my epilepsy medicine after my brain 🧠 tumor surgery but I had 4 sezuire episodes in the day before to but my doctor told I have take my medicine for forever

I have never had epilepsy/seizure fits before in my life of my knowledge until now @ 27, & the only happen when I'm asleep? I went to the doctor w/ symptoms of tongue injuries & bedwetting where I discovered the terrifying discovery 😢

@MannyAdams-sr6zs

7 ай бұрын

Me too , 🤦🏾‍♂️ what medicine did the doctors prescribe you ?

Night for me....I wake up gasping for air and convulsing....Absolutely fcuking horrible. The feeling after is one of the worst feelings I believe you can experience....

I have nocturnal seizures i have had them since 4 and im now 13

Have my seizure at night i was 11 and my seizure stop i outgrow my was 12 in 2022 and I 13 this year i turning 14 September 25

I'm getting a new thing,a big flash always in the corner of my right eye,like round flash,always in the corner

I woke up with my whole body suddenly hurting as if I've done serious body workout like in the fitness, must've meant my whole body tensed up or something in my sleep, the body pain was still there for few days and gradually disappeared, exactly like body workout. I've also had pretty big tongue injury, biting my tongue in my sleep

@Vibbe_rant

Күн бұрын

Me too exactly the same

@Vibbe_rant

Күн бұрын

Did you try any medication? Do you still get sleep seizures?

Mines it happen all day.

My 17 year old son has seizures at night with tongue biting. He then spits extra saliva for the rest of the day. Slimy and tough saliva, a little foamy

I have hallucinations at night, can that be from seizures?😅

I have Nocturnal Seizures.

I have only night time seizure

In the morning sometimes 😅😅😅

Hey Doctor , I have a question. My son is two years old and they said he has SPTAN1 gene mutation it’s really affecting him. Can you help him or do you know of any doctor? Please get back to me

Ive got nocturnal epilepsy. Its fucking awful. Mine are as a result of a brain injury due to my ex

Please Help Me. I have epilepsy only When i sleep it doesnt matter if i sleep in night or day but it only happens when i sleep.

@DrOmarDanoun

Жыл бұрын

Yes. Please review the video on nocturnal epilepsy