Thank you for sharing. I have a daughter with Temporal Lobe Epilepsy and people keep thinking she has behaviour problems or needs a Psych. Helping me understand how you feel helps a lot. My daughter has disabilities and cannot articulate as well as yourself. Stay brave, you help and support people by sharing.

I’ve only had these experiences when i was a child, and in my late teens. For me it started with a normal feeling of dejavu, but then very quickly just pulls you into what in that moment feels like real dream memories you’ve had and you remember everything about it. Then boom, it’s gone, and you just feel like you came back from a different plane of existence

@beckyfranklin6964

Жыл бұрын

Wow! Never knew this was epilepsy until now! No wonder my nurse practitioner put me on meds that help prevent epilepsy. I didn't understand why but I've explained so much to her about myself. Thankfully she pays attention!

@MalamuteMan1

11 ай бұрын

I had this too and then nearly always it caused me to faint/blackou when I was a teen.. I'm 44 now and have started to feel them happen again without fully blacking out.

@nicky132

2 ай бұрын

I have the same experience but I also get nauseated and distressed when "come back".

I just started having these symptoms. I sound freaking crazy trying to explain it to people. My doctor doesn't even have an answer for me. That's why I'm happy I found your video. At least I know I'm not alone or crazy.

@PaintingPowers

4 жыл бұрын

Mr. Awesome Cat Fuzzypants I kept it to myself for years. I started noticing a pattern in all of it but I still had a difficult time trying to describe it out loud. I would tell my family about it but it never sounded serious to warrant their concern, just ‘hmmm that’s weird’. I felt like I was seeing a dream in my head of something I felt like I dreamed before. Everything felt like it had happened before. Sometimes there would be words or phrases I was hearing in this dream state but I couldn’t even tell you what I was hearing. As it would come on, I would suddenly get very hot and slowly I’d feel sick in the pit of my stomach. And this overwhelming sense of doom would rise and it was terrifying while it was happening. Some are worse than others but when it’s happening, it feels like the world is ending. I would also smell a weird smell that I couldn’t describe either. Then as suddenly as it came on, it would go away. For years, I just figured it was something I would just live with and manage them by fanning myself until it was over. I didn’t really tell the doctors because it honestly just sounds crazy. Some people thought I was just having a panic attack but I knew that wasn’t it. One day I decided to google search exactly what I described to you, and I found temporal lobe epilepsy. My self diagnosis was eventually confirmed and an MRI showed that I have scar tissue on my temporal lobe which is what is causing the seizures. I can’t tell you exactly what triggers the seizures but I know stress, stimulants like caffeine and sometimes certain lighting trigger them. I notice I have them more often around my menstrual cycle as well.

@mystry9756

4 жыл бұрын

I started having similar symptoms when I was 12 years old. Then it would happen every once in every few year. It felt like the worst tummy pain and somebody put poison in my mouth. I didn’t know to describe it or never been to doctor for this.

@ilovedyou88

4 жыл бұрын

I started having these sort of auras years ago. At first they happened only once in a great while. Over the years they became more frequent with additional symptoms. I never took medicine since I wasnt losing consciousness. 10 years later the auras led into grand mal seizures and now I have no choice but to take medicine everyday 😩 but at least no more auras or full blown seizures

@c_dubbzz6127

4 жыл бұрын

@@ilovedyou88 can you stop these when they first start so they don't get worse?

@kristifrroku3170

4 жыл бұрын

I am also a victim of it...Surely...I have synesthesia and I see people's aura and object's halos ... I am seeing multi familiar things also...But it is a common thing...1/3 of the world have it...But we are the safest ones...We are lucky to have it because we have the warning from our inner intuition and that allows us to be protected and in a very safe place...That's how auras attack.

I get deja-vu. A smell. A feeling like I’m falling. And a perception of looking at myself from above. All at the same time.

I appreciate the way you tell it as being "injected into a dream" and the "story set up" is a perfect description. Unknowing I had epilepsy, when I was younger I'd describe it "I'm going back into an old forgotten dream, I've been here before, but it was in a dream". I called them flashbacks. Thank you for sharing, April!

@jeterman29ny

3 жыл бұрын

Thank you both, I have this exact thing. The flashes of a dream you can't remember having is exactly how I feel. I always tell my wife that it's like i remember all the dreams I ever had and that its so scary that if these really are my dreams, that I dream this much. Also, whats really odd with me is sometimes at night when I dream, I literally feel like I'm in the dream for like months or even years. I wake up and its like I was in a coma for years or something and it really freaks me out bad.

@alyssalynn2040

3 жыл бұрын

This is exactly how it happened to me too. It was so strong I felt nauseous

@SoSweetKhryssie

2 жыл бұрын

This! So I’m not crazy.

@SoSweetKhryssie

2 жыл бұрын

@@alyssalynn2040 I throw up every single time!

@echastee

2 жыл бұрын

I'm getting an EEG because of videos like this that so intelligently described something so similar to my experience. Infected into a dream does describe these episodes I have of sudden dream recall and it's a lot like those deja Vu feelings and sometimes they're followed by a sudden sense of impending doom. I feel like something is messing with my head sometimes. But it has to be like this And I wonder if they'll have me do a sleep deprived EEG or how it all works. I'm nervous but I want answers.

I feel like crying. This is exactly what I’ve been experiencing.

@brandonbosworth1829

3 жыл бұрын

Same

I've been getting these since I was a child. Never knew what it was, called it "Deja Vu's". My parents didn't really believe me when I explained it to them! Feel so much relief hearing I'm not alone!

@whatyssjhsswhatsysys1504

3 жыл бұрын

Can u explain how urs was? I feel like everything I see I remember it. I feel like I have seen it and then I sit down and start to think where have I seen this. ITS LIKE THIS With everything in my life. It’s so exhausting I’m thinking all the time

@Maxi.Dounut

3 жыл бұрын

Same here, had it since I was a child and referred to it as “deja vu seizures”. My parents didn’t see it as something serious either, but I got checked for epilepsy two years ago In order to figure it out but they found nothing. I think this type of epilepsy isn’t very researched on and there’s little knowledge about it sadly.

It's unfortunately very common for people to suffer with these deja vu auras for years before they're finally diagnosed with temporal lobe epilepsy (TLE)). Part of the reason is because people generally think epilepsy is just the dramatic fall-to-the-ground and shake kind of thing. They don't realize that there are many other types, too. And like in April's case, many of them don't cause unconsciousness. Thank you, April, for explaining what deja vu auras feel like. I also have TLE, but my auras present as waves of intense nausea and sweating lasting several minutes. I was misdiagnosed at first. Finally I saw a neurologist who tested me and put me on epilepsy meds. After trial and error with several epilepsy meds, my seizures are under control. I wish the same for you.

@blacktourmaline3944

Жыл бұрын

You are absolutely correct because I used to have vivid deja Vu dreams since I was a child at 45 I had my First seizure

@user-ih4fd9sf8x

11 ай бұрын

This 👏🏼 to me the worst part is that, the lack of awareness that causes to take so long to be diagnosed. It took them 7 years to diagnose me ( since I started going more and more at 14). However , counting the fact that I had always felt the same way, it took them 21 years.

@04Steph08

11 ай бұрын

Mind sharing what you tried and failed and what worked?

@ellaparrilla

8 ай бұрын

How did you get them under control?

@chasityj.4130

7 ай бұрын

Yep. When a therapist told me to get checked when I had one in front of her, I thought “she doesn’t know what she is talking about. I don’t collapse and stuff.” Long story short I blacked out while driving from having one. Thankfully the wires on the side of the interstate saved my life with my seatbelt as well. Got tested, yep. Temporal epilepsy

Omg you are literally the 1st person who was ever able to explain what happens to me!! Mine sometimes wake me up in the middle of the night and are super scary. Sometimes they happen in the middle of the day and I try to tell people what it feels like and they look at me like I'm nuts. To me it feels like DeJa vu mixed with remembering my dreams and they're usually the scariest dream ever I'm remembering and it feels like I'm in actual hell. I always say "I wouldn't wish this on my worst enemy." I also get visual auras where its like there's a ripple in my vision. Usually that goes away only if I go in a dark room for like a half hour with silence like a migraine. Super scary and I'm sorry you go through the deja vu part too.

@diannadolly

2 жыл бұрын

Sorry you’re dealing with this. Do you take any meds? I hope you’re feeling better

@jeterman29ny

2 жыл бұрын

@@diannadolly I don't take anything currently. Thank you for that

@diannadolly

2 жыл бұрын

@@jeterman29ny well i hope you're doing better :)

@takeanotherlook2065

2 жыл бұрын

Meds do help, but unfortunately this is one of the more challenging versions to manage.

@elisdeskovic2851

2 жыл бұрын

Omg I also woke up from dream once and had this feeling so Weird

I actually understood and related to every word, its refreshing to hear it from another person and be reminded that I'm not going crazy

FINALLY!! Somebody describing exactly how I feel.

"injected into a dream" is perhaps the best analogy to describe an aura that I have read 👍

wow... the first time ive heard it described by someone other than me as "being injected into a dream that was already set up"... thank you im sharing this with my family to help give them context.

I just forwarded your video to my wife to let her know what it feels like for me because your description is the best I’ve heard. I’ve learned to sit down immediately. I have also found if I’m dehydrated and or lack of sleep they are more likely to occur. Good luck young lady.

@MrStephenwatershed

26 күн бұрын

The best I've heard too. Thanks April.

I have these exact same seizures. 20 years now. It’s awesome to know others understand the same experiences.

I've often thought of it as stepping into the body of an alternate version of myself who lives in an underlying, coexisting reality.. A much darker, almost hell-like reality that is always there and always _has_ been there.

@jeterman29ny

3 жыл бұрын

Holy crap. You hit the nail on the head

@njparady

3 жыл бұрын

Yes

@adrianacosta807

3 жыл бұрын

Been there, feeling is almost like claustrophobia.... but , I somehow tell myself right away to ignore it and it's " not happening " and seconds later it goes away... try it!

I've been trying to find answers for what's going on with me. I get deja vu, accompanied with anxiety, impending doom, and the feeling I am going to die soon. Really sucks ngl

@DanielMartinez-hr2zu

4 жыл бұрын

Yeah that’s where I am right now. Such a horrible place to be in.

@skao7089

4 жыл бұрын

I have that too m suffering

@jujuthatsme8867

4 жыл бұрын

I keep getting these deja vu episodes....a few days ago I had my first tonic clonic seizure.....waiting to see a neurologist now

@KingNeptune151

3 жыл бұрын

Lamictal kind of helps

@dalexa81

3 жыл бұрын

I’m glad I’m not the only one

I know exactly what you're talking about....

11 years on since the SPSs began as a result of big brain aneurysm, I still return to these videos just to touch base. What is MOST important is the realisation that I am not the only one experiencing these crazy symptoms. Indeed when they started I was scared to share how they happened in case people thought I was making it up. Listening to you I feel like you do in that that we are not alone and know others who share the same condition, YET, when a seizure starts until back to normal (10-30mins) I feel as lonely as a person can feel. The sense of doom and the feeling of .....’why me?’......’oh no, not again’.....etc is irrational yet real. Yet also there is some strange sense of comfort when one begins ! A part of it is quite pleasurable! Perhaps the adrenaline rush? I don’t know. I do know that talking and listening and sharing is good especially with those who share the same things. Only those who do , could understand. Whilst others, even health professionals say the do....they don’t! You are clearly emotional and that’s normal. Suffering this is a burden know doubt and we all must share the burden for each other. Especially in awareness raising so keep posting and keep sharing your experiences with everyone you meet. It’s good for you. I will be thinking about you here in Scotland. Xxx

Yes, I felt so alone about this. Thank you so much for sharing this. But no one would believe me. It started happening a year ago and did it ever since. And I hate it.

Hey! I was just diagnosed on May 12 2019. I have trying to find someone who understands. I haven't had my EEG yet but my neurologist feels that will give the answer. I have been struggling emotionally, short term memory loss, nauseous, uncontrollable pain in my head and leg. I'm so tired of it but I know I have to live with it. Your videos helped me tonight. You saved my life. Thanks.

@isabels2973

5 жыл бұрын

Those are all symptoms of severe anxiety

@AminASTRIxXx

4 жыл бұрын

I did EEG the problem is that it’s just watching for brain activity for a certain timeframe, which usually doesn’t reveal much since the abnormal brain spikes are rare for some ppl like me.

@mamabear331

6 ай бұрын

@@isabels2973 if this is anything like what I have, it’s definitely not anxiety! I can actually feel the misfiring in my head. It tingles and tightens up in my temples and goes across the forehead. Is it triggered by anxiety, ptsd, abuse, head injuries? Possibly! Although it’s not anxiety alone! Definitely neuro and misfiring! I’ve had two separate , 2yrs apart, 7 day 24 hr EEGs that shows it.

Best description I've ever heard. I've had "deja vu " as long as I can remember. I was told that it was because I'm an old soul and have been reincarnated many times. Then I explained it to mt neurologist after my first public seizure and he explained that it was an aura. My wife takes video and talks to him for me since I very rarely remember anything. Apparently I have a few different types. It is scary and I'm not legally allowed to drive making life even more difficult and scary. But I wouldn't want to put others in danger either.

I had those when I first had epilepsy. I know exactly what you are talking about! So many doctors ignored it!

You hang in there sweet girl! I'm beginning this journey in my late 50s and it's not fun. I am praying for you. 💖

I've been watching youtube videos of every topic imaginable for years and this is the best one I've ever watched because I don't feel alone or crazy anymore. Describing it to anyone is so difficult, and I'm good with words. Thank you so much for taking the time to verbalize the sensations because, I know all too well, it is so hard to do. The way you describe it is exactly how I experience it. I'm not on medication and haven't seen anyone about it because, though I've had them for years, I can go months without them. Anyway, thank you so much for giving me someone I can point to and say, hey, look, she has them, too.

Please, keep making videos about this. This helps me understand a friend that I met a school, who has this. They try to explain it to me, and I am trying to understand. This video helps.

THANK you for this video. Ive been dealing with the deja vu feeling for years never understanding what was going on. It didn’t happen for awhile and then it started happening more and i would have 20 of these deja vu episodes in a row. I did research and found out about this epilepsy and i was in shock. I would have never thought this was what it was and i never thought i would be experiencing something like this. I have not gone to the neurologist yet but i Plan to after a bad Spell that left me very out of sorts. Its only been the deja vu feeling and nausea and heat and then not feeling like myself for days. God is good though and has helped me through some very difficult days involving these and i feel renewed knowing more about this. Thanks for this video tho bec it Does feel like your crazy sometimes when you describe it to others. I will be praying for you as well! Stress is definitely a trigger for me so take care of yourself! Its going to be okay and Gods got you and your gonna make it through! Sending love!

Thanks for sharing. You just described what I am going through and it really is hard to explain. It is scary because it feels like your brain is being taken over. 😕

I’ve been struggling.. for soo soo long. I got diagnosed with Idiopathic Epilepsy [tonic clonic epilepsy] at age 14 and I’m now 26. I was seizure free for 5 years thinking I was one of the special ones to grow out of the dam Illness. I just recently started having my episodes again. What I get before my episodes are Dej ja vu / auras.. they scare the living crap out of me. You described them perfectly and to hear someone say it makes me feel a little better. I’ve talked to some others with epilepsy and they don’t get what I get and it made me feel so out of place an so confused. These auras have been happening more an more recently and makes me feel like a zombie.. like I’m in another world. Thank you so much for sharing this takes a lot to do ❤ I hope you’re doing well

@ek_kahani_sunata_hu

Жыл бұрын

Also having same kind of symptoms

I'm 55, writing from Italy. I've tried to describe this stuff for 40 years. Those 'crisis' started when I was 15, in 1979. They went on for 5 or 6 years, then stopped for a while and came back when I was 24. After a couple of years they were gone. Sometimes I still can 'smell' them coming, but they don't. I seem to remember a parrot and and a white corridor, the feeling of deja vu was unpleasant but I had to go through it all, there was something irresistible. After each crisis (sometimes 4 or 5 every day) I felt exhausted and sweaty and all the 'dreamy images' were instantly impossible for me to remember. I'm very touched by your video: after 40 years I've found someone able to tell my story. Thank you, and sorry for my bad english.

So so happy I found this. Now I can show my friends and mom how it feels! I could never describe it well enough but you did perfectly! Have you ever noticed it come on when you may be stressed or anxious? That seems to be when it happens to me the most. I gotta get to the doctor! Thank you for sharing your story. Definitely makes me feel better to know I'm not alone!

@aprilcoles

5 жыл бұрын

katie konopka Stress is definitely a factor for me but I’ve noticed that I’m even less resilient on days when I haven’t slept well. I’m still trying to get into a good self-care routine because I went from 2013-2017 without any grand mals but I was very staunch about my self care during that period. I wasn’t aware at that time that I was epileptic and it has become quite a challenge since My seizures have become uncontrolled. I now deal with the impediments of memory loss, migraines, and limitations related to the condition like my inability to drive. It makes it difficult to scout out affordable organic foods, engage in community, and find friends-even taking a bath in an empty home is no longer a relaxing option; all of these things were a big part of my stability before. Im still hoping to overcome these things to establish a schedule that can help me reduce my stress and anxiety. I’m glad my video helped, I must admit I still feel very vulnerable in front of the camera.

@stephenmcginn6872

5 жыл бұрын

Oh yeah Katie! Stress and anxiety are major triggers for me. Hard not to be stressed sometimes but getting to the Doc is step one buddy. Keep in contact.

@Dredziowata

4 жыл бұрын

You are not alone , and you are not freaking out . Jeez I remember me having my first attacks and I thought I will be crazy till the rest of my life XD hahaah

@elisdeskovic2851

2 жыл бұрын

I noticed it come when temperature are high in my case,in summertime

i suddenly get deja vu and a sudden roller coaster feeling that makes me feel nauseous and hot for a minute. while it happens i kinda stop in my tracks. the tiles on my floor and sometimes the lighting in the room or the smell might trigger me. it feels like im put into a dream (but i cant even remember when i had the dream or if i even had it). it goes away after 2 minutes at the most but after i have it i try thinking about what actually happened and i cant describe it to anyone. the 2 worst parts are the nausea and the fact that i feel i cant really go to the doctor and get a proper treatment if the doctor is incompetent and that itll get worse and i lose my memory and stuff

I feel a sense of relief having a better understanding of what's going on with me and knowing that there's others that experience the same thing. I remember the first few times, thinking to myself that maybe I was having early schizophrenia or dementia and feeling scared that maybe I would go into that deja vu/dream state and not come back. The immersion feels so intense that I was worried I would get stuck there permanently and my physical body would be here, like a vegetable or something, with no way to communicate what happened to me. Now that it's happened several times I feel like I'm able concentrate better during the immersion and I make an effort to remember bits and pieces of the "dream". I'm trying to make sense of where I'm going off to but then the nausea brings me back to reality and I feel completely exhausted and disoriented afterwards. It only last a few seconds but the fatigue lasts for a while after it's over.

I have this all the time, I'm so happy to have found this video because I always try to describe this to my family and they think I'm crazy. WOW THANK YOU. I no longer feel dumb!

I have these too and was diagnosed with Epilepsy. Which turned into a Grand Mal seizure in September. I feel silly for wanting to try for disability, but it has become more than just a temporary thing. After they happen, I’m no good. I’m exhausted and weak. I have three babies, so I have to just go go go. But the thought of working a job and holding down a job seems impossible. Even one less physically demanding because of how bad these have made my memory. I’m constantly forgetful and struggling with holding a decent conversation. I’m stuck between even trying. I feel like since it’s not constant grand mal seizures that DDS would laugh at me for even attempting.

@RestingInGodwithAshley

Ай бұрын

I put in an application and waiting on a decision because I feel just like you... my neurologist have had to up my dosage twice since I had my 1st seizure almost 2yr ago

I started experiencing these type if deja vus when I was 18 years old.. it stayed at that until december of last year when I had my first epileptic seizure.. I honestly don’t know what’s going on but thank you for sharing this video🙏🏻

You've got this girl! I know you don't know me but im also epileptic and I've got your back!!!

I had a right temporal lobe intracerebral hemorrhage almost a year ago that destroyed most of my right temporal lobe. It has left me with similar seizures to yours. I totally understand what you mean. hearing these from you is like someone explaining my seizures. It is devastating. Mine first started with auditory hallucinations but now it starts with the Deja Vu thing. Sometimes it is accompanied by a train of racing thoughts. I hope your situation has gotten better now.

i’m 14 i have this too and it’s frustrating that people think i’m just insane trying to explain it to them but my main question is if i should be worried

When I first started having temporal lobe seizures I had this same feeling compounded with a very strong smell. Over the years my auras changed to more of a strong thought or memory, if I give in to thinking of this thought or memory I have a seizure. Sometimes I'm able to avoid them if I change my thought process, like start singing a song or anything to get the urge to think of what I'm trying to remember out of mind. I know it sounds strange and I don't know anyone who has this type of memory or thought aura.

@sydneykratz192

3 жыл бұрын

i’m exactly like this.

@takeanotherlook2065

2 жыл бұрын

On occasion it’s happened to me and I must stop listening to a song that brings back an old memory because it triggers the seizure. I didn’t know anyone else had that issue.

@Lov3RUs

Жыл бұрын

I also have this same problem

Refreshing hearing from you. the auras I have are very euphoric. It feels like people are trying to reach me. I’ll have the same aura over and over throughout a time period. Strangers appear to me in this state, yet I feel like I know them. I also have tonic clonic seizures, all of which increase around my menstrual cycle

@JB-hj3xj

Жыл бұрын

I’m glad to see a recent response. I think I got mine because of Covid.

I've been looking for this description for 30 years. Exactly what I've experienced

I hope you're doing really well. I started getting them from decongestants. I collapsed in September and was unconscious. All tests came out good. They recently started again and they are terrifying. I've been depressed and hope I don't lose consciousness again. I got hurt pretty bad. Anyway, thanks to all for sharing their stories. I'm sorry anyone is going through this, but it's comforting to feel less alone. My best to all.

Very good description, it sounded like you were exactly describing my experiences with TL seizures. The sudden flash of something “injected into a previous dream” is spot on. Also the depersonalization. Thanks for sharing your story, it’s good to know I’m not alone.

Everything you said is so accurate to what I get. How you explained it as you feel misplaced and not in the real world sense. Also, how it is so familiar and nearly like you’ve been their in a past life I haven’t been diagnosed but I have just turned 18 and I can remember having these ‘flashbacks’ or as my dad calls it ‘déjà vu’ moments for years. I feel as though mine come from things that trigger something inside me, I can feel it starting and a majority of the times I can stop it, sometimes I can’t stop it and sometimes if I feel safe and in the right place I let it be. But, it is scary! If I’m alone I feel as though something is going to take me away from this life, I hear voices and think I see these imaginary characters nearly like people are trying to abduct me and I feel as though I might die. I also feel as though when I get this that I am fully aware and not impaired, so I can do anything and I’m able to do everything but it feels like sometimes I’m not in control of my body and it feels as though something will happen. For example, today I had one and it was when my father was driving me to go to dinner, it happened randomly with no tell tail signs and I felt as though I was going to jump out of the car(even though I wasn’t and didn’t have the urge to) but it was like someone was trying to control me. I don’t know if anyone can relate but I’d love to hear what you guys have to say as it is something I am coming to terms with and trying to understand. The most important part is that I am in control and most of the times I can fight it when I feel the sensation start.

This is exactly my life. I live alone and before treatment, I had an avg of 6-8 complex partial temporal lobe seizures a day. I've tried several meds and am on three right now but the game changer was the ketogenic diet. Now, I only have clusters every 2 weeks or so. Rarely, they generalize. My advice: get all new kitchenware that has automatic shut off, e.g., pressure cookers, toaster ovens, quick boil kettles, etc.; get on the keto diet; get to know all of your neighbors; carry at least two days worth of your meds, 8ncluding rescue meds with you (you can get spare bottles with correct labels from your pharmacy), wear a medical bracelet, and keep a journal of every aura & sz you have in your phone's calendar.

Thank you for the video, it helped me. I've been experiencing what I call "flashbacks" for the past year. It's the aurus but it's like a dream inside my head. I see people who I know and I think I can explain it to my husband and then I can't remember the stuff I've just seen so I sound crazy. Just last night I had an actual seizure in my sleep that caused my entire body to get stiff and I couldn't breathe. My husband was there for me thank God. I'm going to see the doctor tomorrow. I hope you're feeling better.

Thank you for this video. I feel happy at least someone know what i feel.... When its happen. Thank you so much. Lets survive soldiers. 💪🏻💪🏻

Thank you for the description. It has now given me the words to describe it to my GP and psychiatrist.

It's like you read my mind. Exactly how I feel and glad that I am not alone. Someone told me the other day that I inspire them because if I can do it then so can they. Know that you are not alone and that we will all get through it together. Keep going for as long as you can. Focus on the moment. Yesterday is history and the future can wait. Remind yourself of what you have also made it through like if yesterday was a bad day for example. That will make you feel strong. You are not crazy or weird. This is something that we can not help and did not ask for.

watching this actually made me bawl, i am 18 and struggle multiple times daily with the temporal lobe seizures very badly because of a 45 minute grand mahl seizure Get better lovely - you are SO strong.

Thanks for making me feel better.. I feel so crappy due to seizure auras/deja vu. I literally get them so often and they are the same repetive thoughts as well. I loved the video very relatable. We'll get over seizures, fighting! 👍

I have been having seizures for a few years now. They have been changing lately. I have been going through this aura you are having plus auditory issues, feelings of anxiety and hysteria, chest pain... I am praying for you. Thank you for posting this. I feel less alone now.

I have been having these since i was a teenager and im 35 now. It was gone for a few years and then back sporadically. Its happened a lot over the last couple pf months and im trying to get it looked at. I am keeping a "seizure" diary now and i have tried videoing myself or writing down the thoughts i have as they happen and they make zero sense even to me 5 mins later. I work alone at home so no one sees it like it do 😢 I have seen it described as a euphoric feeling and that again sounds right to me! Thank you for this video 🙏

Finally I found someone I can relate to, Yes it is the strangest thing ever and it's the scariest.. When I have that feeling it leads to a day in childhood where we went to picnic in a bus, that particular memory comes on repetitively, and the worst part for me is, the way the environment and surrounding feels exactly the same as that day, the sun , the brightness everything, even the feel and smell of the surrounding, (I don't get any particular smell, just a feel) and sometimes if I am concentrating on something it feels like whatever I am concentrating on tends to draw me in, in ,in and I have to look away to prevent that ,sometimes it feels like things have become cloudy and many of these things happen , and snap I go blank I don't remember anything, I finally come back only to forget what I did the entire day, where I was etc. And then terrible headaches For me,It's the worst feeling in life I can relate to you, hope yo feel better ,sending you lots of good and warm wishes

I know this was posted 4 yrs ago but I also have the "deja vu auras". Mine are a bit different. I'll have a quick "memory". Usually of a face or something that has happened, whether real or not. But, once it happens, my mind goes crazy to figure out "who" it is or "what" it is that just flashed. I can only describe it as my mind goes through a ton of files, like in a library, to remember. But, because I'm fixated on it, that is when I will have my seizure. I used to have Grand Mal seizures. My seizures have since changed. In fact, I'm pretty sure I've had every kind there is to have.

I have this exact same condition And I have to say that you explained what's going on better then any1 I've herd yet. I call it an ACID TRIP when the aura hits. But just know ur not alone. Much luv 🙏🙏🙏

Thank you, April. Awesome job describing the experience! Very difficult to explain to others. I get a lot of comfort hearing others talk about it and that I'm not alone. We'll get thru this together!

I totally understand what you mean. I'm having it now. I had surgey and now wondering how things are going to go. But, thank you for being here for us. It's important!

@aprilcoles

4 жыл бұрын

Bigfoot thank you for the comment 💜 let me know how the surgery works out! 👍 I’ve heard some great things about surgery outcomes and it’s something that I’ve thought of. Doctors were able to find the origin of my partial episodes in my right temporal lobe but they’ve yet to have me monitored during a generalized seizure. I had to move for financial reasons before I got a chance to see if I am eligible for surgery 🤷🏼‍♀️🤦‍♀️

@yetibigfoot7350

4 жыл бұрын

@@aprilcoles it took me living in Arizona and my heart stopping during an status episode. That was crazy! But, it's been a few weeks and I'm almost healed enough for the surgey. Seems our seizures come from the same area. I'm honestly still learning. Ha ha not sure if it's the heat cooking my brain but my seizures are certainly changing. So, I love these videos. Again, thank you!

@yetibigfoot7350

4 жыл бұрын

@@aprilcoles hoping that changes for you!

Reminds me so much of trying to explain this to a doctor when I was 8 and first starting having seizures, so hard to get out into words and that can be quite isolating in and of itself. I just found your video as I've been having auras recently again for the first time in years, was really helpful to find you talking about it, Hope your managing with your own epilepsy and hanks for making this!

I'm searching the answer of my condition for years. And at last I found this video of yours. Mine just kinda mild I guess. I experience this weird deja vu maybe twice or thrice a year. Everytime it attacks me it feels like I don't feel myself and I'm deafening like it's really like a dream. Then things start to look even more weirder. I can predict the sentence which the person/people around me talk about. Pretty weird, really. What's more weird is that the sentence they spoke is exactly what the people spoke the last time I had an extreme deja vu. I don't know how I did it. Later on I can feel that it's very hot around me and I'm starting to sweat a lot. Then I feel like I want to sleep, my body's so tired like I wanna rest. Really weird. Hope I can counsult a doctor soon cause I'm really worried about my condition even it just occurs twice or thrice a year.

Thank you so much for sharing what you experience in those symptoms or what my doctor call as "auras". It just made me realize that I really am not exaggerating for the same feelings like deja vu and that "injected into a dream" feeling until this time. Though my medications have decreased my generalized seizures, these auras are still in me. Hope we get through this together.

It's always been difficult for me to describe as well. Even last night (June 13) I got that "Deja's vu" at work, but couldn't describe it to my coworker, then I had one of the biggest seizures in the last 6 months. Afterwards I didn't remember a thing and could hardly move, think, or speak. I barely recognized the two coworkers who were helping keep me from getting hurt during the convulsions for 15 minutes after it ended

I don't know if you will see this comment, but I just wanted to say that I really appreciate your courage to share this online even though you sound like you feel so vulnerable. It really helps people like me who are not familiar with epilepsy learn what symptoms may look like, and it looks like there are a lot of people in the comments going through something similar who've found comfort in your video. Hang in there, I hope things are better now. All the best to you. edit: I was just reading all the comments. you are doing amazing things, honestly changing a lot of people's lives. stay strong!

My first episode of 'extreme de ja vu' started last year. I hate explaining it to people because they probably think I'm crazy. But it's as if you're remembering a dream, like it really happened, over and over again throughout the day and your brain is just adding extra elements to this dream, sort of like dreaming when your awake? alongside your stomach rising and feeling sick, sort of like the feeling in your stomach when you go on a rollacoaster. I had a brain scan last year which appearently showed no abnormalities. I had another set of episodes a month ago, Dr refusing to see me as they literally care about covid only right now. Today they've happened again, I feel silly but I've had a good cry, because I find it so scary and I know if I ring the Dr's monday they will fob me off again. They don't seem to understand my symptoms 😞.

@chhandameher6445

2 жыл бұрын

I don't have family history of epilepsy but I getting déjà vu many times but I also think that's my anxiety because one day I get déjà vu then I research about déjà vu and I also know about epilepsy then I saw a "real" video of temporal lobe seizure then I scared to get seizure then I getting déjà vu like feeling for some nanoseconds. I am scared because I also have anxiety disorder and I think anxiety can cause seizure.

@callumsullyfitness

Жыл бұрын

The irony for me here is that mine started when I got covid, that was almost a year ago. But everything this woman has just explained Is what I experience when I told the doctor he said its long covid, I'm like know. I know full well what is is, it's time to bite the bullet and go for a scan

@ChrisWZM

Жыл бұрын

@@chhandameher6445how are you??😢

Perfect description, I feel exactly the same but could never describe and put into words. Thank you

I really appreciate you posting videos like this. I go through the same thing, and can relate so well. It’s so comforting knowing there are other people out there describing the same feelings that I have. I wish you the best 💕 sending good vibes

@aprilcoles

5 жыл бұрын

Quinn Foster 💜💪💜 Taking one for the team! 😅 It’s difficult discussing things that make me feel so, well, disabled! But I KNOW our community needs more visibility; there just isn’t enough awareness and support 💜💜💜💜💜

I know exactly what you're talking about; I get an almost identical series of events when I'm having an "aura". When I get one, I tend to get several a day, hours apart, for a few days. I can't properly communicate; my family has learned that, when I'm silent and start making random repetitive movements, something is up, and they keep an eye on me. It's terrifying and simultaneously fascinating.

I get this same exact feeling with the auras. I've been having these partial seizures for years (probably 11 or so years). I'm conscious throughout and can speak etc just very confused and find it hard to string a sentence together. I get the 'dreamland' feeling u describe too where I can be sat in my house and know exactly where I am just everything seems very strange and a little unfamiliar. I've have an MRI and EEG with no luck of diagnosis so far. I assume it is from a traumatic brain injury i sustained when I was 10 years old. Maybe from, like you, scar tissue on temporal lobe.

Thanks for sharing your experience along with history and the symptoms. Wish you full recovery and good health.. I'm also epileptic (tonic-clonic seizure) since 11th of February, 2019 and the journey is really is really difficult and feels pessimistic most of the times. Because of the insecurity you feel that doesn't let you believe on your oneself..Better if you note down the triggers, situations and things that triggers seizure can be easily avoided. And please set your diet plan, its really effective.

Was just randomly browsing and I came across this. Logged in to drop you a quick message. The "dream" description is quite a good way of putting it. Its like as soon as I get there everything has been pre-written and I know exactly whats about to happen next. It doesn't matter where I am, everything just feels like im viewing it through a familiar lens again. My aura is around 1/2 minutes so I always get a chance to have a walk around this dream world and gently, steadily prepare for the seizure thats about to come. I usually find a safe space, make it comfortable, lay down and then prepare for the chaos thats about to ensue lol. Theres a bit of fear but each time im actually surprisingly calm and collected about it. I describe it as the feeling of walking down the street, turning the corner and realising you left your keys in the front door! It's actually quite funny coming back around afterwards and looking at the horror on peoples faces if they have never seen one before. If its a really strong one i'll be knocked out for the rest of the day/night. Your not alone. We are out there too. Just keep on doing your thing you will be ok :D.

This is the first person that described when I go through when I have my auras or partial seizures as there sometimes called this exactly what it feels like being injected into a dream or world that may or may not exist that feel so familiar and like you said you can talk through the first part of it but if it gets more intense you can't really talk but you're still aware

These started for me after too much anesthesia after cancer treatment. You’ve helped me know I’m not crazy or alone in this. ❤️

I had my first one last night. I usually have grand mals. It was honestly terrifying and the most confusing thing I’ve ever been through. Thank you for talking about it. I’m still so new to it. It helped me understand it more. Thank you

This exactly mirrors my experience with TLE. It’s so frustrating to explain it to people. I was complaining about these symptoms for years, and I don’t think I ever would have been diagnosed if I hadn’t had a tonic clonic in front of a physician. My first tonic clonic was witnessed by my boyfriend, who called 911…the EMTs just thought I was on drug and didn’t want to take me in…he demanded they take me. I have no memory of it. Just waking up combative in the ER while they were accusing me of being high on meth because I had a blood test positive for amphetamines because of my PRESCRIBED ADHD meds!!! I have the deja vu-style focal seizures mostly under control with meds but they always pop up a week before my period. It’s all so strange. Sometimes during these seizures it feels like I’m on the cusp of remembering something very profound and important and then poof…it disappears. They can be scary but sometimes it can feel almost euphoric. Now I’m ranting a bit, I hate that we struggle with the symptoms that are invasive to others but impact us so much..the headaches, fatigue, body aches, confusion, brain fog…all that stuff. This condition is real even if the symptoms aren’t noticeable to others.

You did a wonderful job explaining the deja vu seizures. I've had to live with them and Jamius vu seizures for over 40 yrs. but then my neurologist told me that the moment I started to feel any type of seizure start up I was to tighten up all the muscles in my body and make my hands into tight fists for a few seconds and if I did it fast enough it would stop the seizure and take my word it has stopped many of these seizures so give it a try. I wish you and everyone out there only the best it's time for the world to wake up and learn about epilepsy and how we are normal everyday people just like them.

I had a weird dream about two months ago that felt pretty realistic. It wasn’t until about a couple weeks later that the dream came true, and ever since I’ve been reliving the dream. So I’ve been experiencing constant deja vu for the past few weeks. Ever since then I’ve been afraid to do anything because I’ve been scared that something bad is going to happen to me. I’ve been trying to figure out why I’ve been feeling this way, and I just now learned about temporal lobe epilepsy. After reading all the symptoms of this, I believe I have it. I’m now 20 years old and I just moved out from my moms house. I’ve told her and my father about this, but they haven’t really said anything about it. I’m really not sure what I need to do about it. I know I should go to the doctor, but I’m unemployed right now due to covid and I do not have insurance. So I do not have the money right now to even go to the doctor.

I myself also suffer from epilepsy. I am praying for you. Be blessed. 4:41

Thank you so much for this video. You've helped me so much, I've never been able to put into words exactly how these symptoms feel but you've hit the nail on the head. It really is like Deja-Vu in like a daydream form. I used to get it bad as a kid, roughly 8 years old, but it soon went away. I'm 24 now, and it's started coming back. However now I'm going to be able to go to the Doctor and explain myself now. I honestly can't thank you enough! I hope you're doing okay!

I can’t honestly believe someone could sum up what I found impossible to explain. I’ve just been diagnosed in June 23. And it’s up and down. Had 3 brain seizures Thursday gone, hospitalised. Hopefully the meds work. Thank you.

Ever since I could remember I thought I had psychic powers. Turns out it was just temporal lobe epilepsy… *womp womp*

Thank you for helping me not feel alone and crazy

I been having my symptoms or whatever it is getting really frequest this past month/week, im happy i found your vid because it helps me know im not just going insane and is probably worth getting looked into.

The way you speak reminds me of the way I speak when I am hanging on by a couple threads. All I can say is that the Lord has gotten me through everything thus far and I pray you believe and that He helps you too.

I'm in the same boat with seizures. Praying for you 🙏

Thank you! I don't get out much either. Be well. Yes we are friends.

Your description is very good.

Wow, this video was great!!! I am going through the same exact thing----for 50 years. You will make it! I have had soo many seizures of various types, but the way you describe the deju vu kind is spot on.

Lovely video, & thank you kindly for it. Been having this problem for 6yrs now myself, it's nice to know I'm not alone in this myself. Things can get pretty emotionally hectic sometimes. I hope and pray 2020 can be a better year for you and us all,

I had an MRI yesterday. Ive had depersonalization and derealization all through highschool and anxiety and depression. My mom says its anxiety but lately I feel very weird. What I experience is almost like an acid trip... things distort and look like a fishbowl lense. I get extremely paranoid. Straight lines look wavy or grow amd shrink. Things look close and far away, change from 2D to 3D. I get extreme vertigo. I then can hear voices and wierd intrusive thoughts like sometimes ill wake up from a nightmare that feels like I've had it before a long time ago and my body will feel tingly and wirey and electrical. And my head will feel loud and scary. They can be my voices or other peoples voices. And I will have wierd thoughts like pandas like pickles and theres a girl in a red cloak out on the sidewalk. Why is she out on the sidewalk? Legit word sallad in my brain. I just think up random words and sentences and it is tiring. And sometimes I will laugh and cry and get super tired and drool. And I can feel my eyes blink a lot, I see weird colors when I close my eyes and patterns and faces that are scary. I know they aren't real. I thought i was schizophrenic so I didn't tell my doc at first. I thought it was then sleep paralysis but that doesn't last off and on for 3 hours and me being delirious and conscious. Cuz like it also happens during the day. Ive also had convulsing and tics in my hands and shoulders or head that I cant control. I feel like I'm legit going crazy. Im always so tired and confused after they happen and I want to sleep. It could be siezures. I dont know. Time will tell?

Thanks for sharing. I had a recent diagnosis of focal seizures and it’s been difficult to describe. God bless friend we will get through this

Thank you very, very much for sharing your experience. I’m in the midst of trying to untangle the mess of strange symptoms I’ve been living with for years and my doctor finally told me that he thinks this might be what is going on… I’m torn between relief and despair, thinking of all of the years I’ve spent suffering and begging for doctors help and being told I’m mentally unstable and nothing more, thinking of all of the pain I’ve suffered struggling .. there might be an answer, perhaps even help if this is the correct diagnosis. So, simultaneously relieved and terrified, (and a little angry, admittedly) and grateful to you for sharing something incredible difficult to explain and unimaginably difficult to live through.

You are not alone love, keep your head up beautiful!

Five years ago I had a 61 mm meningioma brain tumor on my frontal lobe that totally messed up my olfactory and optic nerves. I no longer have a sense of smell, and am about 95% blind now. For the last year I’ve been having these strange feelings as well… For me it only takes one trigger word being spoken… I start repeating that one word over and over in my head… Then I get this weird feeling of déjà vu… Then I get this feeling of euphoria course through my entire body and goosebumps from head to toe… Then I get really nauseous and feel like I’m going to throw up. All this happens in like 5 seconds, the nausea lasts sometimes several minutes and at times I get lightheaded as well. These “déjà vu seizures“ have been happening to me every couple of weeks for about a year, then last March I had an out right seizure where I had to be taken to the hospital. My neurologist said my seizure was caused by a viral brain infection, not by my brain tumor. I was put on seizure & anxiety medications, but have since been weaned off of it. I’ve had another three of those weird déjà vu seizures since then.

@jeterman29ny

3 жыл бұрын

I'm so sorry you've been through so much. Here to talk if you need it.

Thank you for this video April -- you are awesome! Those of us in similar situations (and everyone else) are pulling for you.

Going through this today... Was diagnosed last December.... I started a new job last month and think I've over pushed myself too hard this month, had a déjà vu seizure this morning... Head is all foggy and I keep repeating myself to people without meaning it... The worst part for me is the headaches I get a few hours later I feel like I can't move.... I hate feeling limited in my life due to my illness 😞

Thank you so much for the way you’ve describe what’s happening to you. This started happening about 3 years ago. My doctors said I was having stress seizures. I did some research and it kind of described what I was going through. But I knew it wasn’t everything I was experiencing. I started crying when you talked about twitching And the way you talked about being injected into a dream. Because that’s a indication, that I’m leading into seizure. I have felt so alone for the last three years. Thank you so much for making this video. And making me feel like I’m not alone.

CBD...... I have been on CBD for a year now and my epil. activity has dropped if not almost stopped. Do the homework about it and trust mother earth and her meds. It really does get better I promise..... Much love sweetie.....

@orladowdsroddy3983

3 жыл бұрын

where do you get it from? im in uk

You are describing exactly what I felt as a teen when I would have a LOT of these 'episodes'. I was taken to a doctor and they did a EKG brain scan thing but nothing ever came out of it. I remember actually passing out once and luckily my friend was there because I hit my head when I fell. I had to lay down for hours afterwards I was so tired. But when they weren't that bad I remember that feeling of being hot towards the end of each episode and afterwards. The uneasy feeling during it of approaching doom, but also that everything was very familiar and also feeling numb to everything. I had never heard the term Temporal lobe epilepsy until now. I hardly have any episodes now (I think) but my memory has gotten way worse over the years.

@thech33f39

5 ай бұрын

If you've ever felt one of these you should pull an all nighter and then go in for an EEG. I came a cunt hair away from literally dying one day because I almost drove home from work because I was having "panic attacks" but someone else drove me home. I had a grand mal seizure in the car, the "panic attacks" were focal seizures in the temporal lobe.

I have just started to have these. I have a dream like state, a sense of deep anxiety and impending doom followed by feeling sick. I had three episodes on Monday and have no idea what it is. I am 53 and my Dr thinks it was a migraine. This has happened off and on for 6 years. Now 3 days later I still feel as though the world is not right. I am lost

@aprilcoles

5 жыл бұрын

Mark P try to contact a neurologist and get an EEG (electroencephalogram), I was able to get an inpatient V-EEG (I was videotaped in the hospital for the 12 day duration of the test). It sure was worth it to get a confirmation but it felt like pulling teeth getting them to refer me for the correct test.

@Mark..P

5 жыл бұрын

April Coles Thanks April. At the moment they think it is migraine related but I want to know for sure. I am just trying to research as much as possible on this subject and of others that have the same episodes.

@aidaningram1658

4 жыл бұрын

Yep I have the same things.