It would be so awesome if Lauren made some vlogs on her experience

Lauren has such a different personality to you it's so funny. I'd love to see her vlog.

@lauren3596

5 жыл бұрын

Alfie I definitely had to be a little more PG for her channel 😂

Thank you Lauren!! It WAS insane ... "I'm just going down for my fourth general anaesthetic in a week and by the way I made a whole sweater...." What the actual hell??

@lauren3596

5 жыл бұрын

sarahwithstars hard to keep up with my superhero big sis 😂🦓❤️

I love seeing Lauren talk and open up. She’s such a lovely person ♥️

@lauren3596

5 жыл бұрын

Laura Elise love you Laura ☺️❤️

I would love to see Lauren's journey. She is so brave and is dealing with everything so well. All my best to Christina, Lauren, their Mom and Dad and to all people who deal with issues. Love you all!

I’m so glad that Lauren has gotten her validation , it’s so hard to know something is wrong with your body but the doctors can’t find something . It felt like I won the lottery when I finally (after 20 years) got diagnosed with M.S. 🥳 . God bless family 🥰 !

@lauren3596

5 жыл бұрын

Love you girl❤️thanks for being part of our little chronic illness fam

@BornAgainFarmGirl

5 жыл бұрын

It’s really comforting to have friends who understand Lauren 🥰 . Have a wonderful night 💗 !

My son was born with spina bifida occult’s and was misdiagnosed as a newborn. They gave me another diagnosis but was rediagnosed at 14 . He had to have spinal surgery to remove scar tissue on his spine or face become paralyzed, impotent, and incontinent. As a mom, it was very scary. He had the surgery and so far so good. He is now in his late 30’s. I’m so glad you are starting to feel better!❤️

Lauren - thank you for being so open and honest. It's interesting to hear more of your story too 😊 And yes I'd watch a vlog you made! Christina - nice to see you back at home and so glad you got to go to Hamilton 😁

@lauren3596

5 жыл бұрын

Emma Cooper would love to be in the vlog more❤️thanks for watching

I think it would be awesome for Lauren to vlog her experience.

Yes! I would love to see Lauren's vlog too. No two people are exactly alike. I can relate to ignoring the food intolerance. I get new intolerances all the time and right now it feels like it is escalating. Sometimes I revolt and eat things that make me ill and then I have to pay for it. But I still do it. My whole digestive system hates me. I feel like I am fighting my own body instead of cooperating with it. Still fighting my EDS maybe? Thank you so much for another video. Love your vlogs. Makes me happy to see you shine after theatre. ❤

Your Mum and Lauren are the best. Lauren is 100% right and completly valid and understandable to feel pushed to the side. And very nice of you to make sure she knows that you know that is what has happeneded. Such a lovely family.

Lauren is so funny! I love her sarcastic side.

@lauren3596

5 жыл бұрын

Stefanie Roy ;)

@StefanieRoyMusic

5 жыл бұрын

@@lauren3596 I laughed out loud when you were talking about the orange slices and you said, "That's why nobody wanted us on their team!" hahaha

@35:32 all three of you speaking at once brought me joy. Made me miss my extended family. We definitely need another chat with Lauren time videos. She I think would benefit from expressing her feelings.

I am so glad that Lauren decided to participate more! I hope to see more sister fun together :D And maybe one day the channel will be renamed to Doherty sisters and we will have vlogs twice a week :D (no pressure though). I also look forward to your audio book reviews, wink wink.

@lauren3596

5 жыл бұрын

Jana Reads Too I would like loveeee that but I think Christina is a little too OCD to ever let me near her channel 😂

@sarahwithstars

5 жыл бұрын

@@lauren3596 bless you! We love you angel and never want you to feel 'less than' or less valued when we love you and always want to offer you support and love at any and every opportunity 💕😘 xxxxx

@lauren3596

5 жыл бұрын

sarahwithstars so sweet Sarah ❤️ we love and appreciate you

@karenstraily4115

3 жыл бұрын

@@lauren3596 Would love to see videos from your journey. 💗

I'm so glad Lauren and your mom got their gifts🤗. Yours should be arriving any day now😉. I would love to see vlogs from Lauren as well. Of course, I'm saying this with 2 months worth of unedited video and a dead laptop myself☺

@lauren3596

5 жыл бұрын

Chronic Butterfly the journal was so incredibly thoughtful and we can’t wait to break into the teas!❤️thank you so much we love you

I had a nice giggle when I saw you pull out that small stool. That was so cute, and I found it so funny. I'm glad you could find other uses for it. I am also glad Lauren shared some of her story, for a few different reasons. One, my EDS daughter has been diagnosed with a neurogenic bladder this year. It's tough, because it is something no one really wants to talk about. She is having bowel issues, as well. I was shocked when, all of a sudden, I hear some of Lauren's story. My daughter's MRI in June was normal. A recent x-ray showed she has an "incomplete fusion of the posterior elements of S1." I did ask to have them take a second look at her MRI in that area, just in case there is something more there they did not see the first time (we have not heard back yet). Now, listening to Lauren's story, I'm glad I did, and it really makes me wonder if they won't find more as my daughter gets older. I would love to hear more of Lauren's journey. In addition, my daughter also has Celiac Disease. Is that gluten free makeup Lauren is using? My daughter is just now getting into makeup. I'm sure she would love to watch vlogs and reviews of gluten free products, if that is something Lauren is interested in doing. Thanks for another great video, and thank Lauren for also sharing in this vlog.

Hi Christina, Lauren. It was lovely to see Lauren take part in your vlog and wish her luck, strength on her journey with eds. I so understand the "growing pains" fob off having suffered since I was 8, diagnosed at 30 and now I'm 45. It's a long journey with many ups and downs and l am so happy to know you have such a strong, faithful family unit. Always sending healing wishes xx

@lauren3596

5 жыл бұрын

Shevonne Hutchins the lovely chronic illness community gets us through everyday ☺️ lots of love and healing wishes to you

@shevonnehutchins6007

5 жыл бұрын

@@lauren3596 thank you. 💖x

Love you guys! Lauren was so candid, open and vulnerable, I applaud you all. Christina, thank you for sharing always.

Such a nice vlog, your family are lovely. Was great to see Lauren, I could really relate to her fear of being sick after surgery, before many major surgeries I’ve had this has been my overriding fear as I have emetophobia. Would be great if Lauren started some vlogs too. Keep taking everyday at a time, you’re wonderful xxx

@lauren3596

5 жыл бұрын

Ali Turner the struggle is so real girl ❤️

@Ali-T

5 жыл бұрын

Lauren Doherty it really is, such a nasty phobia 💕

@billiebluesheepie2907

5 жыл бұрын

Lauren Doherty ohhh me too. ...and as well as the vomiting (nooooo!), I’m terrified of having a general anaesthetic too as my mum and sister have both ‘woken up’ as they were going into the operating theatre, but both were paralysed and felt and heard everything but could not do anything. My mum told the nurse in the recovery room and the nurse said it wasn’t possible and it was just a bad dream. Mum said “you were worried about my heart rate going up and were talking about it, it was because I felt everything and was full on panicking because I couldn’t let you know”. They said it couldn’t happen again as they would use a different drug but it’s happened three times for my mum. My sister and I have refused all general anaesthetics since, but we all have EDS so I’m guessing that we’ll end up back in theatre again at some time. Billie.

@lisalisa13green

5 жыл бұрын

Fellow emetophobe here! When I heard her say that, it reminded me of myself. I can handle anything, just please don’t make me ill or put me near others that are contagious with a stomach bug. I loved seeing that honest part of her personality.

lmao I am with Lauren about Christina post surgery. The last few vlogs I am like "Girl! you just got of anesthesia and you look and sound like that?!? I got my wisdom teeth pulled and I cried incoherently for 30 minutes straight as I came off anesthesia"

Christina, I'm so glad your doing good! Happy about the Shunt working as well. Lauren is super Sweet and she should do more videos with you. I would Love to see her Journey. Your Mom is super Awesome. Your whole Family is just Wonderful and I'm glad your all there to support each other. This was a great a vlog this week and hope see more of Lauren as well. Hugs, Lisa from mi💙🌈

Yay you got the buttons! It's so surreal seeing them on KZread, glad you like them and hope you have fun with them xx

It was so sweet to hear Lauren open up and talk about her feelings and how Christina's journey affected her. It would be lovely if she vlogged her surgery experience! I would definitely watch :)

Hi Christina, it’s so nice to see you doing well. I’m so happy you and your mom were able to go to Hamilton ! That theater was so beautiful and the play sounds amazing. I loved seeing Lauren and I’m sorry to hear she will need surgery for tethered cord. You are such an amazing and loving family, thank you for all the inspiration give just by being you. Love and blessings to you all. ✨💖💖💖✨💫

So beautiful to see all 3 of you feeling the love ❤ 🙂 Yay to all the beautiful kind supporters you have, such generous & thoughtful gifts. Great to see you having a good week considering everything you have been through recently. 😱😳 Welcome to the blog officially Lauren! ❤Big hugs from NZ. Love Nicole xoxo

It was great to see you home and happy! Thank you for taking us with you on your EDS adventures. I found your channel shortly after I started watching Emily Hayward. Through her I found the Frey Life and through the Freys, I found your family. You have all been my chronic illness support group since and I can't thank you enough.

Oh my goodness! Such a great vlog! So so excited for you getting to see Hamilton!!!! People can be so very good, it’s refreshing too be reminded of that! I ABSOLUTELY LOVED seeing the interactions with your sister and your mom. It’s so interesting and relatable for me in a couple different ways, being an EDS momma of two boys, omg youngest having EDS also. I know my oldest son definitely feels “back burnered” at times with his mom and brother needing a lot of care. I try so hard to make it better for my older son so I got tears in my eyes to hear your moms thoughts of being glad for Lauren. Thank you to you all for being willing to show us this part of your lives, it’s probably not the easiest topic to talk about even without an audience! And Lauren I would love to follow you in a vlog!! Do it!!! Much love to you all!!!❤️❤️❤️❤️

Lauren, you're a wonderful sister. Be proud of yourself, always. You are a very strong person.

I was diagnosed with hEDS in April and one of your brace/splint videos brought me to your channel, it has been such a comfort after my diagnosis!

BEST EVER!!!!!! ABSOLUTELY LOVE SEEING SIS AND MOMMA WITH YOU, BEING SILLY AND GIRLS TIME!!!!!!

It would be really cool if Lauren showed up in the vlogs more and to see her experience (provided she's comfortable with that)!

So nice to see you and your Momma back in the comforts of your own home again!! I'm sure your Dad and Lauren missed you greatly!! How wonderful to also see the three ladies enjoying some quality time together!! 💞

😭😭😭 Lauren is breaking my heart! My adoptive daughter was diagnosed with joint hyper mobility and her first thing was “I don’t want to end up like Mommy.” This video hits so close to home. The biggest advice I can give is to take the person who went through the toughest and learn from what went wrong. You can’t stop it if you start to deteriorate but you’ll know the signs now. So many hugs and prayers!

I love watching you three open the mail that viewers send you. It is so nice to see so much positivity and love in the chronic illness community even though each person is going through a difficult journey. I hope that you continue to film and upload the mail time stuff. It all makes me smile so much. Keep on fighting strong, and God bless!

It's so funny how your family is always talking over each other. 😂 at one point all 3 of you were talking & you all just kept talking until you finished your sentences

@lauren3596

5 жыл бұрын

Megan Smithers it took so long for Christina to edit together pieces where we weren’t all talking 🤣

I'll be praying for Lauren that all goes well 🌸🙏🏼🌸

Oh so nice to get to know Lauren a little better.

Would love to see Lauren vlog about her surgery, but also her experience in a family system with chronic illness, and her life! Hope you got that cake, I have a box of funfetti in my pantry!

aww loved seeing Lauren talk and feel more included. would also be very interested to see things from her perspective and a vlog on her surgery/journey would be great. love seeing all of you and yes we are invested in your lives, there are many of us other zebras/chronic illness warriors out here that feel connected to you and are very thankful to be able to be apart of your lives even in a small way

Yay, more Lauren!!

Lauren reminds me so much of my little sister and I LOVE hearing her side of both having a big sister that is very affected by EDS (like me) and her not being as sick so it makes her feel neglected at times! I am going to make much more of an effort to make sure my sister won’t feel that way again thanks to you three🙏🏻❤️

Lauren vlog for sure. There are so many ways to be in this chronically family. I do not share most of your (Christina's) problems, but you absolutely make me feel less alone.

Oh my I'd love to hear more from lauren!! I always love when she cameos in your vlogs!

@lauren3596

5 жыл бұрын

😄❤️🦓 also your profile picture is sickening, not sure if that’s you

First!! Yay love u girly!!! iv been waiting for ur next upload so thank u!!!💛 also ur amazing!!!!

P.s sew Velcro to the bottom of your cushion and glue the other half of the Velcro to your stool. It works 😀x

That sucks because your teeth are really beautiful. Hope it's an easy fix that doesn't cause more mouth trauma, i.e. metal. It's so lovely to see you peppy and with makeup on...If you're not wearing any, then that's just not fair that your skin is so beautiful, even with makeup, your skin is amazing.💕. As a mom of a young adult with EDS, I have to give major kudos to your parents...they have raised two incredible, strong, sweet, beautiful young women. And mom, don't forget to pamper yourself a little now that your home. 👏👍💕Yes to Lauren's vlog. 🤗

Yes would love to see Lauren's journey. You and your sis together is something special.

It was really beautiful to hear from Lauren and to see her processing and validating her experience. I was a younger sibling to a very sick older child. I relate so hard to the struggles of being sidelined while growing up. That's a lot to process on it's own... not to mention your own health/life journey. I have EDS & co... and REALLY struggled with "coming out" with it, for so many reasons, but primarily because I was afraid of it becoming my identity (internally and to those around me). I want my life to be full and to be respected as a whole person, not just an unfortunate body with an illness. I really believe that making that a reality begins with self acceptance and self respect. Kudos to Lauren for being on that journey towards a healthier physical and emotional future 💕

Yes Lauren! Please vlog!!

I loved seeing Lauren and her perspectives on eds and I would love to see more of her!!! Also twitches is such a good Halloween movie!!!!

So glad you got to see it!🤗👏🏻👏🏻

I am a 24 yr old female and I have EDS and a L O T of the other illnesses encompassed under the umbrella-- I have had 1 surgery, I am on a bucket load of medications everyday, and I am in physical therapy but otherwise I do not present outwardly that I have EDS. (Other than subluxing and visible chronic pain.) I am on the lower end of the EDS spectrum of how I am effected. I agree it is important to see other people on the spectrum and see how they are handling it-- I have defiantly learned some tips and tricks from Christina's channel! I would love to see Laruen's vlogs as well-- as I feel like I could relate more to her case of EDS being less severe than Christina's. Either way; we are all here to stick together and tough it out! #ZebraStrong

Yes Lauren! Make a vlog for sure

Love you guys♥️

such an amazing family!!!

Maybe Lauren was on your vlogs before I started watching, but it’s great to see her on them! I’d love to see more of your family on the vlogs, they seem great! ♥️

I loved seeing your mom and Lauren in the vlog. 🤗

I love this vlog one of the best thus far! I think it would be great to see more of Lauren in your vlog!

I'd totally watch Lauren's vlog!

What a fun video. Glad that Lauren shared with us and is feeling better about how she fits in. Yay!

YES Lauren, I would love to see a blog from you!! Been following Christina and your family for a while now.

I have a neurogenic bladder too from an unknown eds cause so I use catheters. I totally feel u Lauren! And still being a teenager myself it can be so awkward to talk about but thank you it def makes me feel less alone 💖 and I’m sooo glad u got to see Hamilton Christina! Thanks again for making these vlogs and helping those of us with eds feel less alone :)

I loved this video because I totally relate to Lauren. I'm so glad she is feeling included more. She is so sweet and gorgeous. I hope she will be in all the blogs to come.

Thank you for informing us on this disease and letting us share in your journey. Love your family!

Awesome video! I'm glad to see you having a chance to enjoy life, get closer to family and start to heal after so many surgeries.

I’ve been a huge fan ever since you’re video "Living with EDS a day in my life” been a faithful subscriber ever sense 😍

Great video! It's awesome to see Lauren get involved and have people acknowledge her struggle and health as well.

As a mom that has EDS with two kids with EDS that are very different hearing Lauren's side is very good for me! My daughter has more severe EDS and needs a lot more attention physically where my son has more neurological issues (and we assume Tethered Cord and will find out next week). He is much more shy about his health issues than she is, she uses it to make friends where as he uses it to remove himself from the world.

Lauren thank you so so much for being willing to share your journey as well! 💜 Would love to see vlogs from you when you are wanting to do them! Your perspective on all this is absolutely valid and absolutely something that so many people could be helped by hearing and seeing whenever you are able to share. Sending love light, and healing energy for your surgery in January 💜 Sending more love and light too for your whole family 💜

Hi Lauren! Great to see more of you on the vlog. Love to hear whatever you feel comfortable sharing. Totally feel you on the health issues anxiety. Whether it’s your own health or someone you love. My anxiety has been off the charts bad, and I also have terror of vomiting. And now fear of fainting, since my POTS has become so unpredictably intense. So yes, if you are willing, share your surgery with severe anxiety and all that entails! I’m sure many can relate. You 3 ladies are an amazing bunch.

I'm so glad you are doing better!!!!!! On your stool, you can wrap a little coban(they make a latex free kind of needed) around it in a few places, put a piece of nonslip rug stuff, or put a silicone pot holder on it. Any of them will help keep your tushie in place. On baby good starters, they make some called puffs that are barely flavored rice snacks that completely dissolve in your mouth quickly. You will be able to tell when you pick the can up that weighing 1 of them would be impossible on any scale most of us have at home. There are 25calories in 60of them. Anyway, they are on of the best things to start with and rarely cause nausea if you eat 10 or so at a time and build up. It also has a cerealish texture which may decrease sensory issues from not eating in so long. There is an adult form similar called puffcorn. It's made by Cheetos and comes in cheese and bitter popcorn flavors. They are great for movies when you can't have popcorn. Unfortunately, they are slathered in flavor just like Cheetos and could be a big issue of things like that bother you. It's good to see you up and around!

I would absolutely love to watch Lauren's vlogs!

Lauren, you can doooiitt!!

Your family is so adorably sweet. I know how hard this has been on them and I LOVE that you talked about that all together. I would love to hear more from Lauren, about your dynamics as siblings and sufferers, and even more on some of the ways this has been hard on your family. I know that's personal, but it's also so relatable and honest. And, it gives us all a chance to support you better and be there in a meaningful way. I also know I caught ya on Insta about the next time you may be in Hershey, but please please know that if you, your mom, your sister, or anyone wants to hang out at my place or spend time with us doing something fun, we're right around the corner. If Lauren wants to visit you, but needs somewhere to stay, my home is hers :) It's of course clean, sterile, as accessible as can be, quiet and EDS friendly ;) I'm sending you tons of love!

So glad you got to see Hamilton! Your mama is awesome by the way.

You 3 are so adorable, love you all 🌸🙏🏼🌸 praying for you all to be blessed and happy and that all your health trials find solutions. Thank you for helping me by allowing me on your journey. I've learned so much about my EDS from all of you. And Christina you are so right about the growing pain DX. They used that one on me all the time 😏.

Hi Lauren!!!! You three are the best!!!!!

Christina look up Invisalign. I have hypothyroidism and get a lot of swelling in my sinuses as well as migraines, so I need imaging done frequently. Regular metal braces were out, but the Invisalign was fantastic because I could wear it, _and_ they're removable if anyone wants them out. Just saw that he recommended them already, I hope you're able to figure things out! Keep on keeping on!

You are so very beautiful and I hope everything is going well for you. You have such a positive attitude and your outlook on life is inspiring.

I came back at a more normal hour since I watch this at around 4am (the lovely things EDS can do to you) and to be perfectly honest, this has to be one of my most recent favorite vlogz. I remembered finding you when I was suspecting I had EDS so you were this strong advocate and when we started talking more personally and I mentioned I was from Costa Rica and you told me your sister would love to meet here. So Lauren, it's not easy to open up, I would love to have a complete and complex either written blog (since I think i'll take less take editing) about what you are going through, especially since I was a late bloomer (I was diagnosed 2 months before I turn 28, but sure like you said those were just growing pains -_-) I also love each one in the family got a little something, in a way you have welcome us into your house, your lifes and we are beyond grateful for that. I know my mom and I, we keep you all in our prayers, our family might be small but like I always tell my mom when things get rough, Mom remember 2 Corinthians 4:7 we do things by the power beyond what is normal may be God's and not from us. And we Zebras prove that every single day.

Christina, also want to add, send someone to the Dollar Tree or Dollar General if you have one by you. Buy one roll of shelf liners, they are like a sticky net-like material. I put a piece under my laptop on my desk and lapdesk to prevent it from sliding around. I think it would do well to keep your cushion in place if you still like your old set up!

The video that brought me to your channel. Was diagnosed with eds the importance of early intervention. I have been diagnosed with a great many things. Hypermobilty being one. Trying to get eds diagnosed but its practical unheard of and treated in the uk. Your story intrigues me.

Hello to Lauren and your mum too, I should send you my favorite tea, Lauren should totally vlog her surgery x

I would love to hear more from Lauren!

so nice to see more of your sister. im sorry she has to go through some painful days but im sending you both gentle hugs. i have lupus and your loose tooth.. girl i feel u. most of me teeth are loose and ive had a number of them shaved, root canal-ed and pulled.. so good luck, hope its an easy fix.

Oooo on sorry about he toot issue.. And understand the braces issues... Blessed EDS mouths - my mouth is so small they had to pull 5 of my teeth just to make room for the ones I now have. (And I never had any wisdom teeth come through and I only have one they could find) and I had braces for 5 1/2 years because my teeth were literally in sideways. Snagged tooth I was. Lol your stool!!!! Foot stool??? How exciting you got to see the show!!! So cool and so glad you got to see it!! Hi sis (Lauren) so good to see you! Nope not growing pains at all so TC. Yep real life... And so glad they were able to clearly tell, now you guys can move forward in hopefully a healing process! It really is real and something to be taken care of! We care about you! And yes it varries so much from person to person and yes we would love it have you vlog! What special gifts that all of you have received ! Lol the masks to much fun! As always great weekly video! Great big gentle hugs to all of you!!

Omg I would love a Lauren Mini series... and I feel you, as long as I don't throw up they can do what they want to me😂. I've already said this to my hip surgeon. Also so glad to see you are doing so well Christina... 😁😁 xx

When you said that there's no actual bite, or that it's different every day - oh yeah, I get it. EDS and TMJ are two of my worst bugaboos. Chewing is a challenge. Small bites and no crunchy stuff.

Praying for your whole family

I would love to see Lauren's vlogs. You and your sister remind me of my girls. Ashleigh is 16 and Rebecka is 13. Ashleigh has had more EDS related health issues so far but Rebecka has some also. I like seeing both of you in your vlogs. You have helped us find our way through this illness. When Ashleigh started to have MCAS symptoms I knew where to take her and what was going on so that I could support her better and not freak out as much with it. We really appreciate your videos. Thank you so much!!

Eagerly waiting for your videos

Yaaaaasssss Lauren!!!!!! Do some vlogs!! Start a channel!!!! I’m watching this on the day of your surgery! I hope it goes well!!! Love all of you!!! 💜💜💜

Yes, it would be very interesting to see a surgery vlog from Lauren.

I would love to see more of Lauren :)

Aww, I’m sorry Lauren. I hope you’d escape. Mine ended at L3 as well. I felt so much better after having it done. Hope you do too! Hang in there Christina! No more surgeries 🤞🏻🙏🏻

Lauren we would love to see more of you! Not only do you seem like a very sweet, intelligent, unique, and interesting persyn, but with EDS being such a complicated and diverse disease I think that it is really important to show all experiences on the EDS spectrum. I also think that it is especially important to show what all the different neurosurgeries and other neuro-related treatments look like because so many of us do end up needing one neurosurgery/neuro-treatment or another. I myself have a seizure disorder, have had three neurosurgeries (one discectomy and two fusions), am in the process of getting two more scheduled, and am looking into tethered cord myself, which would then mean yet another neurosurgery should I have it, which would then bring my grand neurosurgery total to six (I mean I know this doesn't beat Christina's fabulous record, but ya know, I'm making an effort to catch up to her haha (obviously totally kidding - I have a bit of a dark sense of humour)). I know you sometimes feel a little forgotten because Christina's health too often requires sudden and immediate treatment and attention, but please know that I also hold a little place for you in my heart, as well as your mum, in addition to the place I have there for Christina 💕💜💕💜 And to Christina, whom I am assuming is reading this if indeed she does have a moment to look at her yt messages, I luv ya girl and I am just so so happy for you that you got to see Hamilton - you more than earned it (oh and my little gremlin pup says hi) 💕💙💕💙

There is a roll of nonstop stuff at Wal-Mart in the shelving liners kitchen area. You could cut a piece and place it between the pillow and the stool top. Your pillow would not slip around any more. Just my two-cents worth. I love the stuff.

Hi Christina, I just want to say thank you for making your videos because thanks to them I have learned a lot about EDS. I was desperate surcharging for answers about my illness until I saw one of your videos and immediately, according to what you were explaining, I knew that I have EDS. The next day I called my doctor and I pushed everything possible to make my doctors listening to me and sent me to see a specialist. Finally I got the answer that I was looking for five years after seeing doctors and more doctors. I was diagnosed with hEDS (last year) by specialist at Mass General Hospital in Boston. After that, everything makes sense to me. Now I understand why I feel the way feel and that I’m not crazy. My pain is real and my illness is not an excuse to look for attention like some doctors thought it. Thanks again, because of you, I am getting the right treatments. I love you and your entire family. God bless you.

Hi Christina 🤩 so I have binged watched most of your videos and only found out through one that your also a Arnold-Chiari Malformation Warrior like me, I am new to my journey but also have hardware in my spine rom a car accident I was in 18 years ago. I love your honesty so if possible could you talk a little about your experience with being diagnosed with it to where you are with it now I would appreciate it. 💝💜much love to you and your family. Twinnie

You're both amazing characters :)