Thank you. We are stronger when we speak our truth together,.

@iamwendy80

2 жыл бұрын

It's hard unless you walk in those shoes

It continues to get harder and harder as we age as caregivers. I cannot handle the level of stress that I did 30 years ago and yet here it is.

@alisonraiche5350

5 ай бұрын

I am with you. Our government has failed us.

ABSOLUTELY SPOT ON!!!! PTSD; YOU CAN'T KNOW IT TILL YOU LIVE IT; ISOLATION; HYPER VIGILANCE; LOSS OF SELF; AND EXTREME EXHAUSTION, DEPRESSION AND ANXIETY! WE NEED MORE OF US TO ARMY SOLUTIONS ON SOMETHING DIFFERENT THAN THE PLATFORMS THAT WE ARE EITHER USE TO, OR COUNTING ON! MORE INNOVATIVE RESOURCES AND OUT OF THE BOX THINKING!

Thank you for making this incredible documentary and giving caregivers everywhere a voice to be heard. You really don't realize just how difficult it is until you hear it from other parents.

Felt this all the way to my soul. I am in my 50s and since my late 40s have been the sometime caregiver for my disabled sister (our dad is AWOL and our mother deceased). No help whatsoever from even extended family. No support at all or even a check-in by government. Our mother did this for decades and I'm convinced she smoked herself to death to get a reprieve. It hurts.

This is spot on and as a caregiver I never realized the day in the life until I lived it. Would love to connect.

yes at last and thank you , i had someone post your link and asked for me to sign up , i did , my son is rare, very rare , we are with the udn , im a single parent , we have over 60 active doctors and therapist , its just me and him i have special needs guardianship now with him being 18 and can't drive or work etc, he can't even try to get food stamps till he is 22 and has 20 food allergies and on medical food that is on back order from last month , we fight countless pa battles on his meds over and over again , the gas prices and such im out over 600 a month just in gas to and from everything and just can't afford it no more , no codes for the rare special needs either , so many things we can't get , heck i have been trying to get a ramp for my house for over 3 yrs now its unreal , i could go on all day how hard it is but my biggest worry is what will happen to him when im gone ...thank you so much for doing this , we are unseen and unheard and so much suffering in many areas

Sole carer to my severely disabled son for 15 years now and I'm miserable, sick and falling apart

Yep. 22 years for me so far ... and at 21 all the pediatric supports dropped off. As I get older my biggest fear is what if I can't do this anymore? There are only 2 ways this is going to end - 1 - I will outlive my daughter, or 2 - I will become incapable of her care or die and she will.... uhh... actually there does not seem to be an answer to that. She needs hospital level care. No answer.

Where do I find the actual movie? What platform to rent?

I have 3 boys with autism one more severe and I'm just so tired

I'm one of those moms.

No one cares. I am at the end of my rope. I am dying inside