UPDATE: if you are seeing this video, I want to let you all know that it was costochondritis and I experienced this pain throughout 2017. In 2018 I purchased the Backpod (not sponsored) and after 1 week I had no more pain. This may not work for everyone but I would advise you to look into it and read the reviews. I still have no pain 11 months later. THE BACKPOD: amzn.to/2PusLCx

@lordalvinresurreccion3130

4 жыл бұрын

Did you experience shortness of breath due to costochondritis? I feel it :(

@katiewagner45

3 жыл бұрын

I do and it’s like tight pressure that comes in episodes

@lestrella2781

3 жыл бұрын

Have you months were you with this pain until disappeared ? I have been a year and a half . Maybe I try the backpod but I asked the page because I have scoliosis and I don't know if I can use the backpod. I hope I have your luck and can get out this nightmare . I'm sick , it's hard for me to breathe , it's not just pain. 😥😭

@stephaniehamlet2474

Жыл бұрын

Did u have shortness of breath?

I think the most frustrating thing about being a young adult with Lupus is that you have to put life on hold. Often times people don't understand why and say "oh but how are you so sick....you're so young"

I'm sorry your going through this. I understand exactly how you feel because I am going through the same thing currently. I will keep you in my prayers!

Praying for your recovery, stay positive please ! Keep us posted on your status . God bless you my love .

I hope you find out what is going on. I have had costochondritis years ago. I send you love, peace & gentle hugs, Debbie 💜

❤️ Stay strong ❤️ I had a similar experience a few years ago. My doctor could not figure out what was going on. I was in so much pain for 3 months! One night I was in pain about 7 hours. I went to the hospital and this old man, the doctor, who I have never seen before asked if I had gallstones? Then I went through a scan and it was positive😊 I had surgery and feel just fine now.

I am still praying for you. I know its hard, trust me, I do. But pray and yes, try to excercise. Walking and using my elliptical has been helping me. ALOT! Please keep the faith God bless

Oh honey, I'm so sorry to hear you're suffering. Sounds like pleurisy but my ulcer causes that same pain your describing to where I am doubled over in pain and that causes anxiety which causes me to feel like I can't breathe and my throat starts to feel like its closing up. But that's just me. Lupus affects everyone differently as you know. I'm praying for you sweetie. Keep us posted when you can.

Stay strong! Much love from Germany! :)

How are you doing? With so few lupus KZread personalities you are important to the community. Your pal in lupus Bill

@HealWithSamantha

7 жыл бұрын

Thanks for checking up on me! I am doing much better. Still in a lupus flare but nothing compared to before. I'll have a video up soon! Hope you are doing well.

@ranchugoldfish3822

7 жыл бұрын

I stabilized some place in middle symptoms there but not to debilitating. Glad you are doing better. Hang in there we're on you're side.

You Re in my thoughts and prayers...I have been there!

prayed for you, please keep us posted

Im so glad i found this video cause i have had this myself for years on and off with lits of test and doctors telling me its all in my head, i have ordered the backpod and hope it helps me too

Oh. my. So sorry you're going through this! :c Sounds so bad! Chest pain of all sucks so much, it hits you right in the middle. And the nasty way it radiates up the neck, and for me down my left arm, ugh. (mine's heart related, at least I know and it's bearable now!) Not much I can say, except I'm crossing all my fingers for you!

When you first started talking about your pain i was waiting for you to say it was costochondritis - it sounds like it. It's horribly painful. Apparently lidocaine patches can help but haven't tried that myself yet.

I just got diagnosed with h pylori and peptic ulcers... Very painful. I hope you feel better soon!

I have had a worsening expanding rib pain from the mid 80's. My pain is on the front lower right quadrant. It has now expanded and started to migrate across the lower ribs. The pain started as infrequent and tolerable. Now it is constant and can be crippling. I have had lots of breathing issues. After years no one knows anything, however the doctor does believe me and treats the rib pain. After years of breathing issues again no one knows much. I do have asthma. Again my rheumatologist does believe me. I had to get a medical retirement. My trips to the ER has increased over the years with my pain and breathing issues. I like your channel best because you have SLE as well. Get well Bill

i hope you feel better.. Godbless you

I have not had anything like that with my lupus,but I sure hope you find out what it is and feel better soon😟

I hope you will be out of pain very soon!!!!

Hang in there. Fellow lupie. I get a hot stabbing pain through my chest into my lung. The only things that stop it is ibuprofen as soon as it starts, water and rest. Im on strong pain meds, prednisone and so on. The one thing that stopped it for awhile was when I was on oxygen for an extensible amount of time.

I had that kept going to doctor over and over they would say oh it's just anxiety and they also did xrays well ...one night apparently i was asking for help in my sleep and groaning my daughter came in and said I'm taking you to the ER so she took me and didn't remember anything after that all I remember is waking up from the ICU ...I had pneumonia and septic shock apparently it attacks fast ....when you have a cold well I don't want to scare you but Lupus is a very serious disease do not take it lightly ...at all..I pray you are doing much better stay away from sick people with colds etc always wash your hands

I feel for you💖

I hope you get well soon. It's funny how I have the same symptoms since about almost 2 weeks 😢 and yes I have chest discomfort, chest pain, tachycardia, I get short of breath really easy,it hurts to breath or take deep breaths, my left shoulder hurts really bad and I have to sleep almost sitting down and I wake up with a sprain neck 😩 I called my doctor requesting and x ray I just want to make sure it's not fluid in my lungs and just had my X-rays done on Friday and haven't gotten the results back. Hope everything with you gets better. I will keep you in my prayers. God bless you and remember... we have lupus , but lupus don't have us😉 Much love 😘🙏🏻

Lyme Disease, I saw that on Mystery Diagnosis before. You need to test for this disease. Another possible diagnosis could be Achalasia.

I have costochondritis and currently am in the middle of the worst flare I’ve ever had. It started 2 weeks ago as an aching pain that spread across the top of my upper back and chest. It’s traveled some down my sternum. I went to the ER on Wednesday and got a shot of toradol, which helped for a few hours. The pain has gotten better but it still feels like someone is sitting on my chest. Everything is super tight and I feel like I can’t breathe even though my oxygen is all good. Definitely a horrible and scary experience. I hope yours has gotten better!

@bratishabiswas5881

Жыл бұрын

Hi Jessica, how are you now? I'm also suffering from costocondritis

Hey Samantha, I am going through the same thing you went through. For the last year or so on and off, Ive been having these chest pains and its like a sharp or burning pain. Like you it can radiate into my neck or arms and ive been to the ER multiple times and they said its not my heart.

I had the same thing. I been diagnosed with it so many times

Omg 😲 I been going through the same exact thing 😭 for weeks now!!!

Have they looked into pleurisy? I've been dealing with it for 2 years. Praying for you.

Do people treat you better when you say you have lupus rather than fibromyalgia? I’m so scare to go to hospitals because they think I’m looking for pain meds

Just ordered the backpod today..... I have had this prob since 2015😪😪

Hang in there girl. I’m experiencing the pain as you. First I was diagnosed with Gerd, then after 4 o5 visits to the ER REGARDING PAIN IN MY CHEST, the final doctor believes it is costochondritic. I was in constant pain for 3 months,, the doctor gave me steroids for 5 days, after which the pain started to subside. When I start to feel like it’s flaring up I put cold pack for 15 minutes and heating pad for 15 minutes. Sometimes I would do this for few hours. It’s seem to relive the pain. I know the feeling you are not alone.

@briellegraham9788

3 жыл бұрын

I can relate to you I have gastritis and dealing with costochondritis they said mine was because of my gastritis

I’m a lupus SLE and fibromyalgia sufferer i get chest pain including irregular heart beat, anxiety and panic attacks Non of them the cause it’s very scary it can feel like heart attack.did it go to your shoulders ?

Hello dose it feel asif your heart is been affected due to the pressure in the middle of your chest ????

As a Lupus patient, have your doctor check your potassium levels. Might not be the case for every patient, but potassium supplements(550mg daily) stopped all of my chest pains. I've heard this is common among Lupus patients, so check with your doctor to see if it might help, and to find the correct dose to take. In the few times I've gone without the supplement for a couple of days, the chest pains came back, so for me the chest pains and potassium level were definitely related. Potassium helps the body to regulate the balance between sodium and water(which can decrease swelling of the tissues around the heart). I went through many doctors, before my current one made this diagnosis. Thank you for sharing your experiences with all of us. I hope you feel better soon.

I get this but towards my side near my ribs

Have you had an echo? I've been struggling with chest pain since September and they narrowed it down to pericarditis (most likely) or pleurisy. Sounds like you've got some plans in place and some difference in your symptoms. Just wanted to share my diagnosis. It's only been presumed as I never had an effusion, but my rheum says most causes of chest pain in lupus can't be firmly diagnosed because inflammation isn't visible on chest X-ray or often echo. Hugs Sam... This type of pain sucks. I slept sitting up for weeks and weeks... Ugh.

I’m dealing with the same crap right now. Two days before I’m suppose to leave for a two week holiday. Go figure. FML

💓

Costocondritis worsen pain means that ur going to heal sooner (personal experience)

How are you doing?

Could it be costocondritsis ? I have it and it is intermittent. The first time I was diagnosed with it was I went to the hospital because my doctor thought I punctured my lung. Or do you have any heart problems ? I also have tachycardia, it wasn't found on an egk, echo, halter, or stress test. they found it on a tilt table test. Once I got put on medication and stabilized I felt a lot better now "knock on wood" it only happens when I don't take my medication or am late taking it

@lifewithbeenie

7 жыл бұрын

Samantha Griffenkranz hello! what helps with your costochdritis? have you been prescribed Lyrica ever for it? or had any type of intercostal nerve blocks?

@MsGriffendore

7 жыл бұрын

Trust Illusions I take cymbalta but it doesn't help with that. It's just something I have to live with. I sleep with 2 pillows and I use Advil but other than that I can't do anything

I Samantha, What do you mean by your “heart was overworking?”

Hey, I'm new to your channel, but for the life of me I can't remember where I seen it. Are you on Lupie Groupies or Lupus Warriors? Anyways, yes I have had this before and hopefully my experience may help you. I started having these weird chest pains out of nowhere. It was very worrisome because I have a serious family hx of cardiac dx. My dad had his first heart attack with 5 bypasses at 42 or 43 but not sure and can't ask because he ultimately passed with one at age 63. My son who is very physically active was dx with some heart dysfunctions at 8 when my husband was practicing for his nursing cardiac exam by listening to all of our hearts. Luckily I'm a nurse also and I took my son to work the next day and got the ball rolling. Anyway... do you happen to have Raynauds? That happen to actually be one of my first symptoms. What my chest pain turned out to actually be was my Raynauds was also causing arterial spasms in my chest. Which is usually not common in Raynauds, it usually only affects hands, feet etc. I began taking Nitro tabs as normally indicated and I couldn't believe it actually worked! I felt so relieved, there was a medication that actually fixed a problem within minutes from the time symptoms started. I had never experienced that before and I'm sure none of you had either. Even pain medication never actually takes all my joint, muscle, skin, hair (kidding on that one) but y'all get my point, lol, away. This may not apply to you, but in the case it did I wanted to share my experience. Good luck to you and message me on FB if you have any questions.

@armide1

4 жыл бұрын

Ashlee Virostko Hi sorry that’s an old post I am wondering I have Raynaud disease my doctor is telling it is primary means not caused by any ring but I feel I can differ co I have neuropathy he told me to use adapts 30 same the one you used but I am scared to use it because I might cause a stir up of migraine I would be grateful if you give me your feedback

is your chest pain located more under your ribs? I've been getting pain like that for the past few years and it has not yet been able to be explained. i have a history of blood clots along with my lupus but that has been ruled out. (I've had several PE's over the years.) I've also had several intercostal nerve blocks as well as a cryoablation, but those didn't really work. neither did PT. the pain is always there unless I take pain killers or now, lyrica. this kind of points to nerve pain but it is so bad most of the time. it makes me so miserable & exhausted. and like most other weird lupus symptoms, it is difficult and frustrating to try to explain or get others to understand. but I was just wondering if you or any one else in this community experiences this or something like it and has advice on how to alleviate or deal with it. also, I have not really been on KZread in a few years, but was very happy to see that you are still making these videos. keep up the great work and I hope that you are having more better days lately than crappy ones! :) xo

@HealWithSamantha

7 жыл бұрын

Seems like a common thing among those with chronic illnesses. I'm just glad it hasn't come back since then.

Is it not acid reflux? With the lack of saliva you develop GI problems. It could also be anxiety attacks. If you have a normal EKG and all that it could just be anxiety. Usually anxiety and lupus/sjs go hand-in-hand.

@modusbee9092

2 ай бұрын

You sound like all the doctors I have been rotating through.

Hang in there Sam! I know you want to get back to normal but don't push yourself too much. I know some people are suggesting pleurisy but I've had that and doctors can usually hear it from listening to your chest. I hope they figure it out soon I know chest pains can be scary I've had my fair share. I'll be praying for you sweetie.

I was sent to the rheumatologist and the nurse told me "pleurisy is not autoimmune we never treated pleurisy"...........uh I had an autoimmune book in my hand...lol....pleurisy is on 2 pgs in the book in black and white............GEEEEEEEEEEEEEEE WONDER WHY i AM DEPRESSED ??? duh !

Anxiety?

@citlalie9791

6 жыл бұрын

gnphoto21 I have that and is a mix of anxiety inflammation and movement

zebras ............diagnosis

I think they are grasping at straws with the H.Pylori diagnosis. It would not cause these breathing issues. Some people with mysterious symptoms can benefit from hot cold therapy. That means getting into a hot tub for 10 to 15 minutes and then a cold water dip. They have inflatable hot tubs and a person could use a chest freezer for the cold dip. What do you think? My wife has similar symptoms and she just started using an 8 Channel Lymphedema Machine. They also make whole body units. They manually move the lymphatic fluid. My wife says that it is really helping.