Thanks for sharing, Samantha! Hugs from Portugal.

Glad i found your channel. I am newly diagnosed but sick for 12 years.

AHHHH love to see such great looking numbers 🎉 i just had some labs done and i only got my cbc back so far but thank god its looking good 🎉 usually if somethings wrong my white count hits the floor so I’m happy 🥰

Hello and thank you. I go back to the doctor for lab work at the end of this month. I was diagnosed this year. You are showing proof that everything is going to work out. I have been a vegetarian for bout 5 years. I am just now adding fish to my diet. Try protein shakes. That’s what I used to assist with my protein. Keep sharing it helps those that are new. Thank you once again.

Thanks for sharing. I don't have lupus, but you guys keep appearing in my feed, and it was nice to see how strong you are. I don't know what I have. I had to take iron for a while for being anemic, but my kind or whatever was where I didn't need a blood transfusion, but my red blood cells were smaller and not getting enough oxygen. I am not concerned about that, and it seems odd to me. My oxygen is fine. I'm a fatty diabetic though.

Mixed Connective Tissue Disease (MCTD) is often misdiagnosed or wrongly diagnosed by doctors, which is frustrating. MCTD is much more specific than the term/dx that gets too loosely thrown around. It's also not just an umbrella term; it's more specific than that. It is a combination of a positive U1-RNP antibody in the presence of an overlap of 3 specific autoimmune diseases, those being Systemic Lupus Erythematosus (SLE), Polymyositis (PM), and Systemic Sclerosis/Scleroderma (SSc). Often doctors will give a MCTD diagnosis when what they really mean is either: a) Undifferentiated Connective Tissue Disease (UCTD) where a patient has some elements of autoimmune connective tissue diseases (AI-CTDs) without really fitting the box for one in particular; or 2) a combination of two or more accurately diagnosed specific AI-CTDs. For example, while I have "a mix of AI-CTDs", I don't have MCTD. My AI-CTDs are Antisynthetase Syndrome (ASS) with Polymyositis (PM), and Relapsing Polychondritis (RP). I also have other autoimmune diseases that aren't connective tissue diseases (they're gastrointestinal, dermatological, and neurological), and a connective tissue disorder that is genetic, not autoimmune. I have 5 positive autoantibodies: PL-7, gastric parietal cell, anti-ganglioside GM1, cold agglutinins, ANA (in two patterns - speckled and mitotic spindle).

Samantha! ❤ thankful for still sharing with us. Your numbers look awesome. You look so happy and healthy. I will be moving over to more plant based. Hopefully lupus will be into Remission. Do you have any suggestions so vasculitis? Glad your doing well! Have you thought about babies?

@HealWithSamantha

11 ай бұрын

Hello! Thank you. Good luck on your plant based journey. I think eating more plant based has been beneficial for me, I hope you have good results as well. I have only had experience with vasculitis in my eye. They gave me prednisone to treat it at the time. I would check with your doctor on the best route to take. As for babies, I am still considering. Since I am 30 now, it may happen soon as long as my numbers are stable. :)

I've got my first rheumatologist appointment on Saturday, after showing i have anti ccp antibodies in my blood. I have been in chronic pain for 4 years and had numerous mri's on my spine and brain but nothing shows up, accept normal wear and tear for someone my age (59) I can hardly walk because my spine feels like its being crushed. Plus neck/shoulder/hands/stomach etc pains really get me down. I'm trying not hard not to hope to get a diagnosis because the disappointment I experience hits really hard. Especially when they say nothing wrong and its past trumor trapped in my body 😢

I had several bloodwork results flag included positive ANA, RNP and a bunch of the kidney numbers. But since my numbers aren’t super, super high she told me to come back in a year. I’m so sick I can’t imagine waiting a year to do anything. 😢

@HealWithSamantha

11 ай бұрын

Oh man, that is such a bummer. A year is a long time to wait. Do you have symptoms as well?

@faithmomlife1504

11 ай бұрын

@@HealWithSamantha yes, very symptomatic including 9 of the 11 lupus criteria. I’m in the process of waiting for a second opinion.

@HealWithSamantha

11 ай бұрын

@@faithmomlife1504 Okay, good. That was going to be my suggestion! Sorry to hear you are in pain and dealing with this.

@e.williams13

5 ай бұрын

Take all your labs and get a second opinion

@charvankerck3426

Ай бұрын

I understand. sub clinical numbers are not important to Western med docs.

I'm impressed by your anti-dsDNA levels! Mine have always been crazy high. I have UCTD (basically a Venn diagram of Lupus, Sjogren's, and RA-mine leans more toward Lupus). No nephritis, thankfully, and my levels have improved dramatically since starting Benlysta. It's still positive but it's the lowest it's ever been for me. I used to watch your videos years ago when I first got sick, so I'm happy to see you're doing so well! Which immunosuppressant(s) are you currently taking? I just came off MTX after three years this time around and only take prednisone as needed, which is huge for me because for the longest time I needed MTX, Ben, AND pred.

Thanks so much for sharing your journey. Daily living can be challenging as we get older. it gets soo hard to wake up every day to live. Work out eat well take meds and supplements the schedule is quite exhausting. All your efforts and hard work are paying off - i am shouting hope you hear me? YOU LOOK AMAZING SAM!!!

@charvankerck3426

Ай бұрын

sams not over 40. just wait 20 years . see what changes take place after battering this disease for years. takes its toll, especially when docs are so ill-informed.

Thanks for sharing. The low globulin and elevated Bilirubin are more an indicator of liver damage or disease, not to do with a vegan diet, more likely a result of medication. Would like to see your lactate level too.

Thank you for sharing ❤❤❤

Hi Samantha. It feels like it takes 3 doctors to figure this out. No one will give me a definitive diagnosis.

@charvankerck3426

Ай бұрын

only 3? dentist, 2 rhumatologists, 3 eye specialists including corneal dr . 1 GP. plus dermatologists. . I am going to go functional med.and keto diet . can't hurt.

@SWilla00946

13 күн бұрын

​@charvankerck3426 ill start with it can hurt. It has hurt people. Keto might work but for most it doesnt.its only clinically used in seizure treatment or with diabetics. Aip is recommended to help you find what foods flare your symptoms but after that, the Mediterranean diet is what usually helps us. Keep fighting for diagnosis and treatment. Supplements help but they cant save you. Im going through something similar. I'm seeing my 10th doctor tomorrow. My first hematologist

@charvankerck3426

13 күн бұрын

@SWilla00946 I understand. we lost a granddaughter to seizures. keto didn't work for her. we have a long line of diabetics, some T1 and some T2. I have eliminated processed foods, grains, and sugar. so, basic keto. has helped with some of the issues like major bowel problems. so just keep trying . if I never get a diagnosis from a doc, I know what diet has helped. ps. off Bp meds also, which gave me headaches. dizziness. and vision problems. so, life's improved this year . keep trying.

I seen a rheumatologist two years ago and he diagnosed me with Lupus and has not ordered any labs since.

Yeah, time to get my routine blood work done. My complements are always low :( trying to get them up.

ME TOO GIRL! hemolytic anemia and lupus 🧛🏻‍♀️💜

Thank you for sharing How are you being treated? Do you use diet and lifestyle?

Hi Samantha Thank you! This video helped me to understand how to read ANA test results. My daughter suffers from some kinds of autoimmune disease. Now I figure learning about lupus and RA is a key. Please give us suggestions about autoimmune diet that are very helpful for you.

Helpful info thanks. Have lupus, raynauds, sjogrens. Would be interested to see update on medications you have tried and your experience with them if you have time. I take plaquenil and have taken prednisone but feel unsure about trying the injections.

@HealWithSamantha

11 ай бұрын

This is a great video idea. I can definitely plan on filming an overview of my experience.

Hi Samantha, is it possible to have RA with a negative RF and positive lupus blood test results?

I have ana postive but I have sjogrens and I was iron deficiency anaemia

I had a positive ANA speckled titer 1:160. I was also diagnosed with Hereditary Hemochromatosis in February. My Ferritin is over 3,000. My Ferritin is not going down after 3 months of phlebotomies. I also have cirrhosis due to iron overload. I suspect I might have lupus due to other symptoms. I just had blood work done. Idk why but doctors don't seem to take the ANA seriously "because it can mean a lot of things."

Plz help lol really no joke so the Dr thought I had MS my ANA was negative but all of my blood work is showing inflammation:( my liver is good my kidney are good so he said I could have lupus or connective tissue disease I’m so lost now idk what’s going on so is it possible for me to have autoimmune and the ANA show nothing:(

Sam, at one stage you followed Dr G's protocol. Did you return eating animal products?

Is it every time you catch Covid you get hemolytic anemia because I have costochondritis tmj vcd slipping rib not sure if I have rheumatoid arthritis dont know what tests to get for diagnosis but for me I caught Covid this Christmas and ive got jaundice and other symptoms currently waiting on blood test results but in your situation do you see your hemolytic anemia coming back after Covid or not sorry if this is a bother

I’m curious as to how you got these crisp results, all mine from a hospitalization in 2019 were “abnormal” without much clarity.

What exactly do you eat ? Im kind of vegan too just some time fish but i dont have good weith

My most recent CRP was 20. Before that it was 53. I’m still undiagnosed with anything for sure other than I do have Lyme disease. My ANA was negative but my symptoms are pointing to Lupus.

@9doyouknow09

8 күн бұрын

Do you have fever due to high crp?

Were your Monocytes and Neutrophils ever elevated with Lupus?

What is the name of tests

My wife has many symptoms of Lupus. What do you think is necessary to tell the doctor? I hear they hardly ever diagnose Lupus.

@venomx4093

2 ай бұрын

Demand an ANA, CRP, ESR test for starters. You can also order these privately, but no insurance covers it.

@SWilla00946

13 күн бұрын

I hope she is being monitored. Lupus is a manageable condition when being properly treated

You did Dr.s Brooke Protocol that didnt work?😢

@rw8373

9 ай бұрын

I'm curious about this also she didn't do an update after finishing the protocol

Samantha I would like to help