Thank you for making this video. I was diagnosed 2 days ago, and my head has been spinning since.

@LymphomaAction

2 жыл бұрын

Hi AngryD. Thanks for your message. I imagine that this might be a really difficult time for you - having just been diagnosed. We've got lots of information on our website to help support you - please do have a look when you feel the time is right. If you are in the UK you can also use any of our services to get in touch (see more here: lymphoma-action.org.uk/support-you ) Best wishes.

I appreciate the way you speak, so clear with a compassionate tone.

I was diagnosed with SLL over 10 years ago and no treatment yet. Doing well. My labs have charged very little and no symptoms. I was diagnosed when removing nodes for breast cancer. The surgeon noted the nodes were odd Texans suspected lymphoma. I’m very grateful for my surgeon and for doing so well 10 plus years now.

@LymphomaAction

Жыл бұрын

Thank you for sharing some of your story. We are glad to hear you are doing well and we send you our best wishes.

Thanks for explaining it in an easy to understand way.

2 1/2 + years feeling generally unwell and wbc/neutrophils low that we know of for over 2 years. I will have four blood tests with wbc in the low to mid 2 range and then a spike to 3.4 and that repeats. Bone marrow biopsy indicates small lymphocyte aggregates and more results from marrow are expected any day. My very first symptoms were I can’t seem to get a decent nights sleep and severe neck pain. I got a new bed and more pillows than I care to admit. I’m so fatigued with some bizarre nerve symptoms as well as hearing loss, blurred vision, head and vocal tremors, dizziness, lower than my normal low blood pressure… I have had hypothyroidism for the last 25 years and I wonder constantly if my thyroid is playing a role in all this. My neurologist can’t find anything definitive based on MRIs and nerve conduction study. This is one of the most frustrating parts of being sick - very few answers and no diagnosis. Thank you for the video.

@LymphomaAction

Жыл бұрын

Thank you for your comments about the video. We are sorry to read that you have been feeling unwell for more than two and a half years and of the symptoms you have been experiencing. We are not medically trained but imagine it is likely to be a difficult time for you particularly as you say you have very few answers and no diagnosis. It seems like a good plan to keep talking to your doctors and we hope that you are able to get the answers you are seeking. - we send our best wishes

I am 58 today. I am battling cll for one year. Currently I am on tablet ibrutinib. I am quite well but one thing is making me anxious enough. My body weight is losing gradually. Please suggest me how to survive and also food supplements.

@LymphomaAction

Жыл бұрын

Hello, we're sorry to hear you have been diagnosed with CLL, and imagine it's likely been a difficult time. Lymphoma affects people individually, and although weight loss can be a symptom of lymphoma, it can also be caused more commonly, by other less serious conditions, therefore, we would suggest talking with your medical team about the weight loss and your concerns. Generally, a well balanced diet is recommended, and this may be something you might consider discussing with your team. We would always suggest that it's important to talk with your team before taking any supplements. You may wish to read our information about diet and nutrition hear, if you feel it may be helpful lymphoma-action.org.uk/about-lymphoma-living-and-beyond-lymphoma/diet-and-nutrition We send our best wishes to you.

Sll can be curable dr