What tools do you use to help you live well with your MS or chronic illness?

@ahmeterwinog6295

6 ай бұрын

I am using a cane (temporarily). It has been helpful indeed.

@maryamjamimansoor8919

6 ай бұрын

I don't use any stick . Am very scard to walk coz I fell many times and i lost my teeth tooo so I use my wheelchair and move bt that is giving me very bad backaches, now most of the time am on bed it's very difficult to turn over etc 😑

@ahmeterwinog6295

6 ай бұрын

@@maryamjamimansoor8919 Selam aleyküm sister I am very sorry to hear this. I understand your fear. Have you tried PT? Perhaps that can be helpful and help you also overcome the fear of falling.

@EvenSoItIsWell

6 ай бұрын

So glad you are finding a cane useful!

@EvenSoItIsWell

6 ай бұрын

Oh, I am sorry that has happened. Yes, physical therapy may be helpful.

I have Parkinson’s and I find your shows enlightening and helpful. Thank you!

@EvenSoItIsWell

3 ай бұрын

Thanks Don! I appreciate your feedback and your watching!

Wowwww nice vidio I was lost coz of ths MS Masha-Allah ur vidio gave me strength to love life . I thought my life is of noooo use coz of negative thoughts and answers from people . Am suffering for 23 years 😢 am inside the 4 walls I want to enjoy my life today your vidio gave me strength I will bring all my lost dreams alive 💪 💪 txz a lot mam 🙏

@EvenSoItIsWell

6 ай бұрын

Thanks for watching! I am so glad you found it helpful!

Hi Vicky Thank you for your video! I am a 34 year old male that got recently diagnosed with RRMS. I am using a cane temporarily until my PT feels I am ready to walk without my cane. The cane has been useful indeed whilst walking, especially after my first relapse and after my two Ocrevus infusions. Greetings from Mexico and Happy New Year!

@EvenSoItIsWell

6 ай бұрын

Thanks for watching and checking in Ahmet! So glad you are finding your cane a helpful tool! Happy New Year to you too!

@ahmeterwinog6295

6 ай бұрын

@@EvenSoItIsWell thanks, Vicky. I had been following your channel and videos as I also have Asperger’s syndrome (which makes me more prone to anxiety), and your relaxation videos have been very helpful! Thank you kindly for your kind wishes ^_^. Stay positive!

I use an alinker!

@EvenSoItIsWell

5 ай бұрын

Brilliant! They are such a cool mobility aid!

I feel so sad. I go ghosted by a person I was dating and it was going so well. They said they couldn't handle my MS. 😢 feels like a life sentence.

@EvenSoItIsWell

6 ай бұрын

Oh goodness! I am so sorry that happened. Keep being the goddess you are! There are others out there that will not see MS as a problem. I hope you find joy, shenanigans, and love in the new year!

@goddess.110

6 ай бұрын

@EvenSoItIsWell thank you and please continue your lovely inspiring videos. They are so informative and joyful to see ❤️ 🙏

@Lisa_P73

6 ай бұрын

I can relate. I was ghosted by someone I was dating and also friends, or people I thought were my friends. I will spare you what some of my family did and said. It has truly been interesting this last year. I was diagnosed in February 2023. It's been one heck of a learning lesson on all fronts. I always push myself too hard and too far to the point that my symptoms completely flare up-my form of denial I think 🤷‍♀️. I've gotten better at realizing my limits, but I still need to work at it. I am working at changing my diet, and I do good for a period of time then revert back to some of my old ways. Either way, I'm still holding positive I'll get better at changing and making better life choices as time goes on. I do my best to keep my eyes forward and not to look backwards. I do miss the old me and the things I use to be able do. I go to therapy every week trying to see if I can get any of it back, but time will tell. Try to stay strong and know you are not alone. I urge you to become part of a group like MS Teams. I met some wonderful people on there that are at all different places on their MS journeys.

@EvenSoItIsWell

6 ай бұрын

Good on you for moving forward and trying to make changes! Making changes to our diets can be hard and we can have times where we revert back. Keep trying to make improvements.

Hello how are you? I enjoy your KZread so much that it lets me know that I'm not alone. With MS and diagnosed with lupus there is help or comfort. I use my cane or a sit-down walker to help me to get around places. I love to cook as well so my husband bought me a lot of gadgets I can use lol to help me. You have a blessed day.

@EvenSoItIsWell

6 ай бұрын

Hello! So glad you enjoy the channel. So awesome that you use tools to help and so you can continue to enjoy cooking!

Hi I am interested in the all terrain Rollator are they fairly quiet or do they rattle a lot? I had one and it was so noisy and rattled when pushed along pavements, so am looking for a quieter option.

@EvenSoItIsWell

6 ай бұрын

Oh excellent question! I am actually going to be testing and reviewing a rollator soon. I will definitely test it out and listen for the rattles and noise.

Does anyone know ehat this means? Oligoclonal Bands, CSF View trends bands Value 4 Oligoclonal Bands View trends bands Value 1 Oligoclonal Band Interp View trends Normal value:

@EvenSoItIsWell

6 ай бұрын

I can’t give medical advice but oligoclonal bands in CSF (central spinal fluid) can be an indicator to help diagnose MS.

@pattischmitz2680

6 ай бұрын

@@EvenSoItIsWell thank you.. how come there are 2 different numbers.. 4 1?

@EvenSoItIsWell

6 ай бұрын

@pattischmitz2680 I am sorry, I am not sure. Did you have the test twice? And a possible comparison? Or perhaps they ran the sample twice and got two different readings? Definitely ask your doctor.

@pattischmitz2680

6 ай бұрын

@@EvenSoItIsWell the one says csf and the other one doesnt.. didn’t know if there 2 different test?

@EvenSoItIsWell

6 ай бұрын

@@pattischmitz2680 I am not sure. Everything I have read has not classified them into different categories.