Things They Didn't Tell You At Diagnosis... (P2)
...and you ought to know. Part 2.
Using my experience of 31 (or is it 32 now?) years of MS I share some learning of mine with you.
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After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.
Email: dominic@theMSguide.com
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Пікірлер: 17
This is brilliant Dom ❤
😮 I have had that mystery ear pain off and on for 30 years. I was diagnosed with MS 9 years ago. You are the first to suggest that it’s MS related. I’m right there with you in everything other the need for approval from others. I have always had a take me as I am attitude.
Great info & surprisngly cheered me up listening/ bonding with you..thankyou
@theMSguide
10 күн бұрын
Pleasure, thank you.
I’ve had 2 Spinal Taps as some say and really not a big deal. Maybe lucky but if told to get one by all means go for it. 👍
Hello Dominic! Thanks for your advice💥 Be well
@theMSguide
13 күн бұрын
Thank you.
Can you say more about bone pain? I’m having this and my neurologist says can’t be MS. It is mostly joints, not RA or any arthritis they can find. Also numbness in my hand is horrific, I hate it so much along with all the muscle I lost in it, uncoordinated. Shoulder pain. Blood on fire. So so tired. Feet hurt. Just pain… Depression and anxiety. 19 years dx. 52 now with av8 yr old which makes it so incredibly difficult as I am not the mom or human I want to be. Only child. Thank you for this sharing I appreciate you.. Bone pain….?
@theMSguide
13 күн бұрын
I don’t know your circumstances but my immediate reaction is to change neurologist. I have had a range of pain over the years and you aren’t the first person I’ve heard say what you have. Are you in the UK?
@jodicrews8996
12 күн бұрын
I’m in the US. I go to a well known MS Center. My neurologist is great but she said no joint pain is MS? The other pain I am in PT, and take meds. Nothing can help numbness. Blood on fire med can help lots of time. Fatigue I have never asked for meds, as I have anxiety so bad I’m afraid it will make it more so? I take med for anxiety but need therapy. Can I ask why you say I should change neurologists? Because she said joint pain can’t be MS? Or bone pain in feet? Thank you so very much for answering. I’m happy to discuss where I go, but not in a public comment. I don’t know how else to share. Again thank you. I just didn’t know if you had more details on bone pain…
@theMSguide
12 күн бұрын
@jodicrews8996 can you seek a second opinion at the very least?
@annmariemoreno3904
9 күн бұрын
I have secondary MS was diagnosed in year 2000 get nausea dizziness comes and goes once twice monthly scary lasts all day when it comes .
@annmariemoreno3904
8 күн бұрын
@@theMSguide hi I'm in USA
It’ll kill ya