The secret I've kept off YouTube.

Үй жануарлары мен аңдар

I've talked about my family and career, but never this. Story time.
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Music
"Envision" Kevin MacLeod (incompetech.com)
Licensed under Creative Commons: By Attribution 4.0 License
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Пікірлер: 252

  • @chibifayth
    @chibifayth Жыл бұрын

    Thank you all so much for the support for both of us. It truly means the world to us. You have been such a supportive community. Seeing the outpour of love and and encouragement, it is truly overwhelming in the most positive way. Thank you for listening to our story. I hope this gives a little window behind the scenes and how difficult things can be for us both while I suffer with this condition. You are all so important of Bentley's passion and drive to keep going in this hobby and I could not be more proud. Thank you all.

  • @elc2468
    @elc2468 Жыл бұрын

    I am so sorry, Bentley. Trigeminal neuralgia is a devastating and horrific condition, for the suffering and their loved ones. I worked with a lady that has a daughter with trigeminal neuralgia and she showed me a video of her daughter having one of her attacks. She showed me this video, not to make a spectacle of her daughter, but to throughly explain what happens and to spread awareness. I never forgot that video. It broke my heart at how truly awful this condition is. You and your wife are in my prayers and I'm sending healing vibes. I'm so glad you have your fish to bring you peace and beauty. ❤

  • @DaniKenAquatics
    @DaniKenAquatics Жыл бұрын

    Prayers for your wife man I fight pain everyday from my Injuries from my Marine Days and my wife Fights her Cancer everyday Both of you stay strong ❤

  • @debhalld9794
    @debhalld9794 Жыл бұрын

    Bently your support means EVERYTHING to her! I had a disabling neuro pain disorder. At age 25 I asked my doctor to remove my right leg. He wouldn't. I was blessed to eventually have the level of pain reduce itself (miracle). Yes, suicide is common. I, like her, have people to live for. Your loyalty, and ability to adjust to her needs is what will keep her going. Praying for her healing!!! 🙏P.S. I never believed in chiropractic medicine. It ended up helping me. Any pain/sympton reduction is a huge blessing. Oh, I'm in my sixties now. Keep the faith!!!

  • @Silver_Creek_Aquatics
    @Silver_Creek_Aquatics Жыл бұрын

    My heart pours for y'all. My cousin just recently passed away from a 30 year run of undiagnosed/unknown severe pain issues. Her parents and sister stayed with her and had to tend to her 24/7 to give her as much comfort as she could till her body gave out. They tried everything, but noone could figure out what it was. I absolutely understand what it takes to comfort someone in a time of need like this. Absolutely keep looking at the positive. We'll be praying for y'all!

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    My condolences to your family. 30 is far too early to lose someone

  • @ejfishes7610
    @ejfishes7610 Жыл бұрын

    You wife and family come first Bentley. Period. I’m glad fish bring you and your wife some peace and joy. I think it’s wonderful that the hobby brought you two together and that you’re there for her when she needs it the most. I will have you and your wife in my prayers. You’re an old soul Bentley! Your friend- Eric

  • @cooksthegarden8794

    @cooksthegarden8794

    Жыл бұрын

    I found this video by chance. I wasnt a subscriber, but now I am. You are one of the unique caring souls in this hobby and I'm glad to support your channel. My wife found fishkeeping through me and has helped her through her struggles. We went from 1 tank to 9 tanks, and now it has become our happy fish room.

  • @ericisaacson6432
    @ericisaacson6432 Жыл бұрын

    I'm sorry Bentley. I'm currently entering Disability because of MS. Not being able to walk. Losing function of my arms. Just about to celebrate my 41st birthday next month it's amazing to have a special someone to assist. Fishkeeping is a new hobby I picked up. Thanks

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    My heart goes out to you. MS is hard to deal with, but I hope the wealth of research can help it be easier in the near future. Until then, enjoy that little slice of nature you have with fish, mine always brings me comfort and a little time to let the brain wash away some stress.

  • @UBINCOGNITO
    @UBINCOGNITO Жыл бұрын

    God bless you and your wife. Once worked with a student with same condition. After no good results, parents removed all sugar, carbs, and starches. Forever. Huge improvement. Seemed to make medications more effective. Maybe ask a doctor. Praying for you both.

  • @jcote1974
    @jcote1974 Жыл бұрын

    This may sound strange, but this was beautiful and painful. A wonderful tribute to your wife, though wrapped in pain & notable suffering. Keep well all that you treasure. ❤

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    Thank you Jeff. While we certainly have struggles, it's made our bond incredibly strong. She is what drives me to always strive to be better.

  • @Dom_Rick
    @Dom_Rick Жыл бұрын

    You are a rare person Bentley. You genuinely want to help people in this hobby who you don’t know for nothing in return. I will be praying for your family.

  • @jamestabor2001
    @jamestabor2001 Жыл бұрын

    Bentley. My wife has this ailment as well. I feel for you and her both. It’s hell for both but especially your wife. I’m glad to hear the fish keeping hobby also brings some peace and comfort as it does my wife and I. My wife has told me on more than 1 occasions that fish have saver her life. And that it why we have 20 aquariums totaling over 600gal 😂. You guys keep your head up and don’t let it get you down!

  • @Kaitlin.D
    @Kaitlin.D Жыл бұрын

    Thanks for sharing, I know that couldn’t have been easy. I’m so glad she’s found something to keep her going because as a person who suffered from chronic pain as a child I know just how important finding that thing is, for me it ended up being training and showing dogs. Also you’re awesome and I’m sure your support means the world to her! Having my mom there to advocate and be my memory and words at doctors appointments for me when I was in too much pain or too exhausted to do it myself meant the world to me. Honestly the only thing that got me through that time in my life was my dogs and my mom. Chronic pain is awful and it’s so discouraging when one doctor can’t help so sends you onto the next. I want to encourage you both not to give up on that hunt for relief though. It took 8 or 9 years to finally be diagnosed and it was the doctor who I vowed would be the last I’d “waste my time with” who finally put all the pieces together.

  • @cherellzandell6139
    @cherellzandell6139 Жыл бұрын

    Oh Bentley, I'm so sorry that you two are going through this. It goes to show that you never know what someone else might be dealing with. It takes courage to share, it shows even more so what kind of a beautiful person you are, and your wife as well. When I've heard her on your live streams she had the sweetest sounding voice. Based only on listening to you on KZread for quite a while now, I think of you as a smart, thoughtful and kind person & that makes me think she would have to be as well. Take care of each other first, think of KZread last, I think that most of us are happy to hear from you whenever you can!

  • @relapsed_reefer
    @relapsed_reefer Жыл бұрын

    I am sorry to hear about all this. My wife had a stroke a few years ago, so i understand how hard it is to watch loved ones go through these hardships.

  • @Alphuh
    @Alphuh Жыл бұрын

    I fell and experienced whiplash a few years ago and have had nearly constant neck pain that has resulted in a huge number of severe headaches originating from the back of my skull that I'd just accepted as my 'new normal'. Your description of the Occipital Nerve struck a cord with me and after looking into it, I've got a lot to think about. The symptoms list of Occipital Neuralgia just reads like bullet points about the worst part of my life and reading about it has made me feel 'seen' in an unbelievable way. Thank you. Seriously. Thank you. Telling your story is the reason I will know what to bring up to my doctor with specificity beyond "headaches" and maybe experience some relief in the future. I never expected this while browsing fish videos.

  • @mexicalifishkeeper
    @mexicalifishkeeper Жыл бұрын

    No one truly know what we deal with when the camera goes off. Thank you for sharing something that is so personal. I hope your wife can find some relief in the near future.

  • @mangala666
    @mangala666 Жыл бұрын

    I knew there were health issues, and I knew it stemmed from that car crash - but damn. My heart to her and you. ❤ I’m glad you two have found each other!

  • @PapaShrimpTX
    @PapaShrimpTX Жыл бұрын

    Thank you for sharing Bentley ... I definitely understand what you're saying about "sometimes KZread has to take a seat" ... that is where I am currently - letting KZread take a back seat so I can focus on me for a little bit. Much love and respect!!!

  • @TheGreenAzumarill
    @TheGreenAzumarill Жыл бұрын

    Know that the both of you are incredibly strong. Thank you especially for not giving up on her just because this happened. Thank you for giving her your support all these years. And thank you for giving her a reason to keep going.

  • @paddyboyy
    @paddyboyy Жыл бұрын

    We love you Bentley. My family and I will pray for you guys.... As part of your community we are here for you BOTH... She is your 1st priority and I wanna say thank you for being the man that most people aren't, by making sure she's always good..... ❤❤❤❤🙏🙏🙏

  • @CatladyKiefFingers_deLarios
    @CatladyKiefFingers_deLarios Жыл бұрын

    Seeing the pain in your face when you speak of your wife's pain is touching because it's obvious how much you care. She's incredibly lucky to have someone as her partner who makes her a priority. I think I'll nonchalantly have to play this video while my partner is in the room so he can see a good example of being there for someone. I have some chronic health issues and while I don't feel constant pain, I know how difficult it can be explaining why you can't do something someone else may be able to do due to a medical issue, so props for that as well. It takes courage and helps others out there suffering through similar stuff feel less alone. I'm so sorry y'all are going through this. I pray they make some advances in medicine that will help her. In the last decade they've figured out so much that was just a dream before, so never lose hope. ☮️💜&🐠

  • @caewalker9276
    @caewalker9276 Жыл бұрын

    You do what you need to do and be there for your wife Bentley. Can you give her my love and best wishes. Thanks for sharing. It's a hard thing to realise you're not super man and can do everything. Fish literally saved my life. I live with pain everyday and it can lead us down a really dark path. Just be that little bit of light in her day and I think you both can survive this. Thank you so much for sharing. 🙏💚👍🤗

  • @SusanMonk-nx2qv
    @SusanMonk-nx2qv Жыл бұрын

    I have always admired your vast knowledge and helpfulness, but my respect for you has just grown exponentially. Thank you for sharing. I hope it helps you to know your ‘fan club’ is behind you and supports you 100% as you and your wife face these struggles.

  • @mattdowling955
    @mattdowling955 Жыл бұрын

    This hits home far too hard Bently and has me in tears. I have 2 beautiful little girls under 4 and 2 years ago my wife was diagnosed with a very rare lung condition that will ultimately end her life early. How early we don't know. My God am I scared though. The idea of trying to raise these wonderful little girls alone is terrifying. Your comment on wishing you can take it all on from your wife can not be more true. Every day I wish it was me so she would be here for these girls, she's never done a single thing wrong in life, yet I have plenty. from the bottom of my heart I wish your wife the absolute best in health and hope you don't have to go through any of the worst possible outcomes.❤

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    My heart goes out to you. What matters is making every moment you have matter and never giving up hope. We do our best for those we love, that is what matters most in this world

  • @nabokovfan87
    @nabokovfan87 Жыл бұрын

    Oh man. Those things are extremely hard. I am going to struggle to listen to the full story on this one. I couldn't imagine Bentley. Im very sorry to the both of you about what happened. I know that was extremely tough to share. My heart goes out to the both of you.

  • @vparish6271
    @vparish6271 Жыл бұрын

    Bentley, thank you for telling us. Your courage and forthrightness shine through the narrative. I have MS, and my husband of 28 years supports me in ways I would never have expected. Our relationship has only strengthened and deepened throughout the hard times. May you and your wife build more strength, happiness, grace, and gratitude together through it all. We'll still be here when you have the time for this wonderful hobby:)

  • @Melbatoasty
    @Melbatoasty Жыл бұрын

    Wow. So sorry you are going through this. My spouse has MS and he was just commenting today how he is so appreciative of the little things in life. You are both lucky to have each other for support. I know it couldn't be easy to share all this with the world, but I'm sure it will benefit everyone to take a moment to pause and think how precious each day is. Take care and thank you for all you do!

  • @ImpulseHobby
    @ImpulseHobby Жыл бұрын

    So sorry to hear that. My wife has got a facial neuralgia during her pregnancy. She couldn't blink and suffered by pain. It was 11 years ago. Happily one of my relatives practices traditional Chinese medicine. He provided a course of acupuncture for her. All of her face was covered by pins, some of them with smoke. I don't know how exactly it called. Also he put the pins along the spine. I don't remember exactly, but it was about 10-15 sessions. and in every session was some different disposition of that pins. She also takes some medicines via dripping system. The course was about a month. So she was healed. Besides of that I strongly recommend you to learn about carnivore diet. Many many neurological problems could be eliminated with strict course of that diet. I'm sorry for my poor English. Thank you Americans! Kind regards from Ukraine.

  • @ES-fc9cy
    @ES-fc9cy Жыл бұрын

    Thank you for sharing Bentley. My husband had severe, chronic back for years but nothing like you’re describing with your wife. He joined an online support group and found it helpful. That’s wonderful that you have both found peace in fishkeeping.

  • @rickey698
    @rickey698 Жыл бұрын

    Man, this video really broke my heart! I was just scrolling through and the topic caught my eyes. It’s just amazing how we sometimes complain about minor issues when others like your wife goes thru these horrible things daily😢😢😢I pray for a breakthrough and healing.❤

  • @karenhansen388
    @karenhansen388 Жыл бұрын

    Thanks for this posting. I'm sorry for your wife's troubles. It sounds like you're a great support for your wife. I have had back and nerve pain, and surgery. I can empathize. No one knows what her pain is. Thank you for supporting her. I like your fish posts too.

  • @MMed2472
    @MMed2472 Жыл бұрын

    My Mother suffers from this condition. Its hard to see her go through it. I know where you're coming from. Hang in there man.

  • @traceya8699
    @traceya8699 Жыл бұрын

    I'm glad you and your wife have each other Bentley. Thank you for sharing your story. I suffer from a lot of nerve pain in my shoulder, neck and head and often wonder if I have undiagnosed neuralgia. They've tried physiotherapy, pain relief and even nerve blocks but nothing has helped. Then ten years ago on top of this pain I had a subarrachnoid haemorrhage. I was in a lot of nerve pain yesterday when I watched your video but only now feeling well enough to respond. Happy to hear fishkeeping helps. Take care

  • @tjautocross
    @tjautocross Жыл бұрын

    Bentley, thank you for sharing this story with us! I can only imagine the journey Jocelyn’s condition has taken you both on. Just know we are here when you have something to share, but we also understand supporting your life with Jocelyn has to come first. ❤

  • @streettrash4220
    @streettrash4220 Жыл бұрын

    Thanks for sharing. Dealing with chronic pain conditions personally, and my spouse. I have a damaged spine and reactive arthritis. When it flairs up it’s crippling and I can’t do anything without help. My whole body swells at every joint. Spine, knees, fingers, etc. fortunately for me there is a medication which works, but it is extremely expensive even with insurance. My spouse has a nerve disorder where her body is constantly sending erroneous pain signals to her brain. She has a very good specialist, also extremely expensive, and gets to participate in a lot of trials and studies. There’s no known cure and varying levels of efficacy in treatment plans. The mental health aspect of dealing with chronic pain is such a hugely overlooked aspect, and though people might empathize, there’s no way for them to fully comprehend just how difficult life becomes. Just getting out of bed to face the day is a huge accomplishment knowing that it will only bring suffering and pain. That wears on even the strongest fighter.

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    My heart goes out to you both. For us it has been about finding her purpose and joy in the little things. Big dreams of travel or such might no longer be possible, but even a short trip to a local beach helps. Together we can continue to build our life. I hope you both can do the same!

  • @streettrash4220

    @streettrash4220

    Жыл бұрын

    @@BentleyPascoe same. We adapt. It’s helps that we have such a strong foundation in each other. She is absolutely my person. Sounds like you’ve found yours as well. Life hasn’t turned out the way we imagined it all hound and starry eyed, but we forged a bond stronger than most. I fight through it for her, and she for I. We enjoy the little things and time spent together. Take care Bentley.

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    @@streettrash4220 precisely how we feel. Our bond is special. We found so much more about us going through this, more than we would have otherwise. Cheers!

  • @Scaperoot79
    @Scaperoot79 Жыл бұрын

    I'm heartbroken for you both. May your love for your wife bring her a measure of comfort and peace through this. I pray for her healing and joy.

  • @laurabustos6560
    @laurabustos6560 Жыл бұрын

    Bentley, as someone who is a sufferer of a rare disorder that causes insurmountable pain as well, please know you guys aren't alone. I've got such a rare disorder that there is no research, no treatments, no cure. I suffer from many of the symptoms your wife does and I totally understand the suicide nickname. It flipping sucks!! I'm in the same boat as well, with surgery being super risky and only having a 30-40% success. It feels like, sometimes, there's no hope and despair will rule. But please know, it might not get better overnight, but there are and will be good days! You do you, you totally and completely deserve to take time to keep your family together and enjoy what you can. Thank you, really, seriously, thank you for sharing your guy's story. It always helps to know there are people out there that understand and support you, even from afar. You guys are awesome and appreciated!! ✨♥️✨✌️ Edit; I am sure you guys prob have better docs than I do (crappy govt medical 😅) but thought I'd throw this out there, though I'm sure with all the docs you've been too, you may have heard of it... But I've been on Belbuca (bupronorephrine) for over a year now, and it's really helped with the nerve pain, without the fuzzy side effects of other pain meds. I wish you guys the best on this lifelong journey that is trying to figure out what the heck we have and how to deal with it! ♥️

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    My heart goes out to you Laura! We're working on getting her set up with a new pain specialist, I'll certainly keep this in mind when we get rolling to ask about it!

  • @laurabustos6560

    @laurabustos6560

    Жыл бұрын

    @@BentleyPascoe I usually don't talk about meds etc. For privacy sake, but it really has helped me without feeling like a zombie all day. I guess bupronorephrine was first used like methadone, to get ppl off heroin. But it hits the same pain receptors that morphine does without that groggy feeling. Hope you guys have a wonderful day. 🙏♥️✌️

  • @nabokovfan87
    @nabokovfan87 Жыл бұрын

    That tank behind you is a lot more beautiful knowing that she helped you with it.

  • @claywise43
    @claywise43 Жыл бұрын

    Praying for you all. My wife deals with severe depression and anxiety, so I can relate. Family first. Everything else is second.

  • @Poeseewi
    @Poeseewi Жыл бұрын

    I lost a friend to TMJ, kudos for your wife for surviving and dealing with the pain. She must really love you which makes you a very lucky man. Healing thoughts to both of you. 💖

  • @CeezHypancistrus
    @CeezHypancistrus3 ай бұрын

    Nothing wrong with being vulnerable, being human. Youre a good man for being there for her, not being selfish. Love and family are the most important aspects of our lives and sometimes we take them for granted than something like this comes along and puts everything into perspective. Prayers out to your wife and your family

  • @cobaltlegend
    @cobaltlegend Жыл бұрын

    I watch and sometimes participate in their streams over on Twitch, and I knew she had some bad chronic pain, and I think I understand what it's like, I can probably too easily put myself into other people's shoes, but I never knew it was as bad as you had explained it in this video. I love the part of the story where you are talking about how she is past the mental pain of it all, that is amazing! Keep it up, try not to ruin yourself! Now I understand more of the importance of streaming to her, I will try my best to make it to her streams more to make her hobby a future job that can support her through everything she and you go through.

  • @novaglacrr6114

    @novaglacrr6114

    Жыл бұрын

    Tis my brother, btw

  • @stanemmot2750
    @stanemmot2750 Жыл бұрын

    I’m so sorry. I understand the pain and love. It is beyond understanding. Have faith and love her more. I will ask our Lord to comfort both of you. I wish I could do more.

  • @madhatterjones4781
    @madhatterjones4781 Жыл бұрын

    You are an amazing man Bentley. So much honour and strength. So sorry for your wiges pain

  • @anjumdanielle4764
    @anjumdanielle4764 Жыл бұрын

    My heart is with your wife & you 💗 Please don't ever hesitate to rely on the community if there's anything we can do, even if its just to listen. The way your wife & you care about others, others care for you too 💛💛💛

  • @falconmyst
    @falconmyst Жыл бұрын

    YOU ARE AWESOME!!! No apology needed. THANK YOU for the courage of sharing. My wife surffered a paralyzing stroke; being a caregiver is hard. I'm Bipolar. She is disabled but not qualified for it.

  • @johnmanrow2667
    @johnmanrow2667 Жыл бұрын

    My heart really goes out to both you and your wife. The chronic pain I have in my lower back, in the neuropathy I have in my feet, gives me the empathy to understand the great pain good both of you have suffered. Although the amount of pain that I have to deal with, must be very minor compared to your wife's absolute agony. My pain is just part of the medical conditions that I have, that make it difficult to do things that many people take for granted. I know your pain is many times worse than what I am going through. I was also blessed with a wonderful wife. She passed on 10 years ago on May 12th 2013. She also had a number of severe medical conditions. Whatever she went through, I suffered along with her. I know you suffer along with your wife as well. Somehow, we all make it through these things. I pray for all blessings for your family. I know that I'm thankful for the time that I had with her. You are truly a blessed man, that knows great love. We are all your friends, and we are blessed to know you.

  • @missyshell_mishell
    @missyshell_mishell Жыл бұрын

    This truly touched my heart on a level that not much does. Our situation is vastly different, but the part that I truly understand is how much time and energy it can take to love someone the way they deserve to be loved. I’m a stepmom to two teenage boys. The 18 y/o has Angelman Syndrome, a rare genetic condition he’s had since birth. For the last 4 years I’ve been his primary caregiver and he lives with me & his dad 24/7. I’m not comparing your wife and him, I’m elevating the similarities in how our hobby helps us and our family. And how it does have to take a seat at times. A spiritual/emotional/mental balance is something I don’t take for granted anymore. It’s work. But it’s so worth it. You’re both in my warmest prayers.

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    It's amazing at times how staring adversity in the face shows us who we are and how special our bonds can be with another soul. Whether it's our born family or chosen family, we find a way to give as much as we can.

  • @missyshell_mishell

    @missyshell_mishell

    Жыл бұрын

    @@BentleyPascoe couldn’t have said it better myself…wow. What beautiful words. Life is something else, ain’t it.

  • @aquaenthusiast9185
    @aquaenthusiast9185 Жыл бұрын

    Dear Bentley, I am very sorry to hear this. I wish you both all the power and luck in the World🍀

  • @philipellis1865
    @philipellis1865 Жыл бұрын

    God has given you and your wife the strength to endure! Prayers 🙏

  • @XCaliKev
    @XCaliKev Жыл бұрын

    👍😎 I’m so sorry that happened to you both. Pain like that is no joke. Screw KZread if it gets in the way. Will be praying for you guys.

  • @wcdeich4
    @wcdeich44 ай бұрын

    Your wife's bravery in handling this with an online community is truly inspiring🙏

  • @2ndflooraquatics609
    @2ndflooraquatics609 Жыл бұрын

    WOW..... your wife is a strong woman to go through all of that & kudos to you for being her support. My husband is dealing with a similar issue that started a few mo ago. They have diagnosed him with 3 diff types of cluster headaches, your wife's symptoms sound eerily similar to what he has, although his is behind one of his eyes. The stabbing pain behind his eye & the sensation on that side of his face never goes away. He finally found a medication that has cut the pain a little, but it's always there. We keep our hopes that something will give & maybe he can find relief. Thank you for sharing...... I had this playing while we were doing water changes & we both just stopped & listened with shared empathy.

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    Cluster headaches are truly terrible. My condolences and I hope you are able to find some comfort for your husband. A friend deals with cluster headaches and I am always worried for him.

  • @trenamarie9820
    @trenamarie9820 Жыл бұрын

    I can’t imagine how difficult this is for you and especially your wife. I’m sorry this is happening to two wonderful people. Your a great husband to stand by her through this horrible disease. Some men would not have.

  • @MusingsFromTheDen
    @MusingsFromTheDen Жыл бұрын

    Sending you and your wife lots of love. Being disabled myself, I completely understand how life throws spanners in the best laid plans. Your channel is so interesting and you come across as such a lovely guy, I'm sure all your subscribers completely understand if/when you need a hiatus. 😊 ❤️

  • @danielmcnamara4708
    @danielmcnamara4708 Жыл бұрын

    (I'm not crying...you're crying.) Thank you for your courage and vulnerability in sharing this with us, Bentley. You have no one here to answer to and owe none of us an apology of any sort. Still, it's sometimes nice to remember our shared humanity, in a world that increasingly strips us of it - between the amplification of false divisions, replacement of tangible relationships with algorithm-driven devices, and countless ways we have to distract ourselves from the personal and interpersonal realities we'd rather not deal with. This is a nice reminder of the power and importance of returning to our humanity and being compassionate with one another. Thank you for that, and thank you for accepting the daily charge of taking care of the people in your life - of showing love and generosity and empathy and grace. Those things trickle down to everyone else - not only in your example and public testimony, but also in the reserves of those goods that those you've touched now have available to share with others.

  • @andysfishden6506
    @andysfishden6506 Жыл бұрын

    Im sorry to hear this story about you and your wife. No one knows what happens "behind the scenes" for the people we follow here on KZread and other social media. My wife has a couple of cheonic health conditions that also cause her a lot of pain, and soentimes i have to put my fish on the back burner to be with her and to help her and our kids. Im praying for you and her, and keep on going!

  • @kaeliecaulfield7798
    @kaeliecaulfield7798 Жыл бұрын

    Wow. My heart goes out to you. This video made me full blown cry seeing how much you care for and love her. Such a sweet person you are. Thanks like always Bentley. Always a little bit of positivity and inspiration in your videos. ❤

  • @sydmiller2973
    @sydmiller2973 Жыл бұрын

    Hey brother I totally get it. My sister, my dad and I all live with chronic pain and I know the struggle of trying to work your entire life around what's manageable. I really hope you're saying all this because you're comfortable with us knowing and haven't been pressured by people asking for more content because that's a horrible situation to be in

  • @CarolynnMc01
    @CarolynnMc01 Жыл бұрын

    Goodness. Your poor wife having to endure that kind of pain Please send my blessings and all good thoughts to her. I'm so sorry to hear this.

  • @josephripley1641
    @josephripley1641 Жыл бұрын

    So sorry to hear this brother, we pray for your wife's complete healing and restoration! 🔥🔥🔥 🙏🏼🙏🏼🙏🏼

  • @ianfire-water685
    @ianfire-water685 Жыл бұрын

    Hey Bentley. Thanks for sharing. My mom had (past tense) Trigeminal Neuralgia for over 30 years. She's 85 now. Around 2015 she was at her wit's end; I don't have to tell you the details. We took her to see docs here in Philly that suggested surgery that actually worked. It was not easy but it was successful. I hope your wife can find something to get some relief. Keep at it, you never know what new approach is out there.

  • @AndrewMellor-darkphoton
    @AndrewMellor-darkphoton Жыл бұрын

    Watching your fish play in the background is enough for my fish video needs.

  • @lizettebusquets4305
    @lizettebusquets4305 Жыл бұрын

    I'm so sorry, Bentley! Chronic pain of any kind is debilitating, but neuralgia is very tough to deal with. Your wife is very brave, and you're a good man. My thoughts are with you both. Family always comes first, and I thank you for sharing.

  • @missterspoon
    @missterspoon Жыл бұрын

    i live with a similar thing after a head injury 9 years ago (still undiagnosed) good luck to you both on your journey forward, i found fish and music in the last 3 yrs or so to help the balances of life

  • @madhatterjones4781
    @madhatterjones4781 Жыл бұрын

    Your emotion and pain for her is true love. Amazing Humans

  • @EduardoRosario468
    @EduardoRosario468 Жыл бұрын

    Thank you sharing your story of love and strength.

  • @stevesmith6022
    @stevesmith6022 Жыл бұрын

    Wow man taking care of your family is the main thing in your life good luck to you both big respect…your a good man

  • @danielfigini2450
    @danielfigini2450 Жыл бұрын

    dang man, what a story. I've only caught a couple of your vids here and there, never subscribed (until now)... but you're a good dude! Your wife is just as lucky to have you as you are to have her. It appears that you make eachother better versions of yourselves. I'll send up a prayer for her, and that they soon come up with a treatment for her condition, and to be strong an keep pushing through the pain. I will also pray for you and your wellbeing so you can continue to be there for her and support her. It's not everyday I find someone (especially online) who inspires me to be a better husband and father. Keep it up bro, and don't worry about those who just want more content from you, your priorities are on point!

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    I absolutely feel that she makes me a better person. Without her. I would not have the drive that I have to continuously improve whether it's in my career field or in other places in life. She is what makes me always strive for something better.

  • @garyconnor9705
    @garyconnor9705 Жыл бұрын

    Bentley you da man! Everyone has there drama, tragedy, heartache and set backs , your a very understanding individual and it shows in your talks posts and videos, as for telling this story shows lots of guts and as far as me who you don’t know but from a few posts to you and all your KZread followers we support you to the fullest!!!! Your KZread friend gary

  • @boebender
    @boebender7 ай бұрын

    Thank you for sharing such a personal part of your life. Merry Christmas to you and your amazing family. Your love for your wife shows in the pain in your face. Keep on fishing and sharing your knowledge. We all appreciate you so much.

  • @Kermit.D
    @Kermit.D Жыл бұрын

    I will be praying for you and your wife for strength and healing God bless your family

  • @ReneesZooTube
    @ReneesZooTube Жыл бұрын

    Thank you for sharing with us. 💖 I've dealt with disabling chronic illness for over 20 years now and it affects my ability to enjoy the fishkeeping hobby, but I find ways. I love breeding guppies and doing outdoor tub/container ponds. My husband is in a similar position to you because of my health issues. You're not alone. 💖 My integrative functional medicine doctor has worked with me and many others with neural therapy treatments, which are related to trigger point injections. Not sure if your wife has heard of neural therapy, but it can be incredibly helpful for pain management and pain conditions. It's helped me so much in so many ways. Just figured I'd share in case it might be helpful.

  • @huntersharddrive6951
    @huntersharddrive6951 Жыл бұрын

    This is very sad but also very beautiful. The love and commitment you explain here is sadly not known or experienced by everyone. We never know what tomorrow will hold but whatever it is believing tomorrow will be a better day can make a big difference. Prayers to you both 🙏

  • @stevenking2088
    @stevenking2088 Жыл бұрын

    Thank you for sharing this. My wife has some health issues as well. Not as serious as what you described. But I have to do a lot for her. It is encouraging to hear your story.

  • @Electrolab28Ag
    @Electrolab28Ag Жыл бұрын

    Bentley, My Heart is saden by this news... My Wife has something similar but not as devestating as your wife, I can understand your hurt and pain. It hard to see someone you love have to suffer like that and there is nothing you can do about it. My prays are with you and your wife. God blessing on you both.

  • @LadyKej
    @LadyKej Жыл бұрын

    Thank you for sharing your story. That took so much courage. I commend you for the love, support, and strength that you provide for your wife, just as a husband should.

  • @amylu4346
    @amylu4346 Жыл бұрын

    Thank you for being a kind and attentive husband to your wife. You are both lucky to have one another. I hope you get the information you are looking for by sharing. Tell your wife we all wish her the very best.

  • @datboi7599
    @datboi7599 Жыл бұрын

    Happy to see that you’ve found a hobby that helps divert the trauma from the past. I hope she lives the best life she can

  • @reginaphalanges7331
    @reginaphalanges7331 Жыл бұрын

    Bentley, thank you for sharing these personal struggles! I'm hopeful that your lovely wife will be able to recover from these devastating injuries! My best friend's husband passed away on April 25th. Cardiac event.. he was too young, 55. Sending positive thoughts to you and your wife! (Jolene)

  • @reelthing4u
    @reelthing4u Жыл бұрын

    as someone who lives with disabling chronic pain i understand what your wife is dealing with .

  • @jasabasenara8124
    @jasabasenara8124 Жыл бұрын

    So sorry to hear this. Let's all send her healing and love. ♥️

  • @michelerogers5017
    @michelerogers5017 Жыл бұрын

    That is heart breaking Bentley. Sending you both lost love and prayers from Down Under.

  • @nismo717
    @nismo717 Жыл бұрын

    Praying your Wife and you Bentley. 🙏 your love for your wife is inspiring and you are a great person. From the first video in watched of yours I could always tell you a genuine good person. Love your videos and love you for opening up.

  • @BarnokRetro
    @BarnokRetro Жыл бұрын

    Thanks for sharing Bentley. It's an awful lot to deal with. Your love for her showed through, loud and clear. You are lucky to have each other, health issues are some of the worst, we always wish we could help our people more, but there really is only so much we can do. She's more important to your existance than any faceless you tube viewer, she always comes first. We'll be here to enjoy your next videos, whenever you have the time, energy, and desire to make them.

  • @kasperaquatics
    @kasperaquatics Жыл бұрын

    My prayers are with you and your wife. Take time for your family first, we will be here whenever you get a chance to hop in here. I deal with pain issues myself in a daily basis. Take care and wishing you all the best.

  • @FishEZ
    @FishEZ Жыл бұрын

    Thank you Bentley for sharing your story (and your wife's). I always try to keep the fish in their proper places and remember that life happens first and the fish swim around it. Stay balanced and keep fish in their proper place. At the same time, the fish can be the distraction we need when when life try to pull us down. --and thank you so much for the help you've given me as well. It's the little things that go a long way. It's much appreciated. - Michael

  • @carolyng40
    @carolyng40 Жыл бұрын

    Bentley, I am so sorry your wife suffers from this. I hope she will get relief in time. Thank you for your honesty. I have some understanding of pain as my spine has ‘gone’. I’ve had a couple of surgeries as I had bone spurs growing into my sciatic nerve roots. The only thing they can offer me now is fusing the lower half of my spine and no certainty it would help my pain levels and may make it worse. I also have Polymyalgia Rheumatica and neuropathy in my feet, sometimes they feel like they are on fire at night. I’m gradually picking up and have really enjoyed my tropical fish, more than ever before. I mainly keep rainbow fish. I’ve learnt quite a bit watching your videos. Now it’s time for me to get back into work and I will be looking for fully remote software development roles. I will pray for your family. I am glad she has your support and gets pleasure from your tropical fish.

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    Best of luck in your search, I've seen a number of full remote dev roles recently. Seems to be more small companies valuing remote work

  • @vigilum
    @vigilum Жыл бұрын

    We love you guys, Bentley. Your wife's story has given us some ideas to ask the doctors about. Thank you for sharing.

  • @John-Ebsen
    @John-Ebsen Жыл бұрын

    You had told me a couple years ago about her illness, but not how it happened. My Mom and I are praying for you both. I've never understood people demanding content from someone who doesn't do youtube for a living. I love your content and never expect more than you can produce in your spare time.

  • @shanephillips4621
    @shanephillips4621 Жыл бұрын

    So very sorry to hear this about your wife Bentley. My prayers are with the both of you.

  • @sharonh6315
    @sharonh6315 Жыл бұрын

    Just recently subscribed and I must say, what a beautiful and remarkable couple you must be. It takes true strength of character to live with such a condition as your wife has and I admire her greatly that she still has the strength to be supportive for you when dealing with her own health issues. It can be so draining to have chronic pain (arthritis from old injuries for me but it’s very minor pain compared to what she has). For you both to be so strongly supportive of each other is a truly beautiful thing to see.

  • @sharonh6315

    @sharonh6315

    Жыл бұрын

    Oh, and you never need to apologize for making family your priority!

  • @HalfManHalfCichlid
    @HalfManHalfCichlid Жыл бұрын

    Thanks for sharing your heartfelt journey. I too have a similar circumstance. My wife has a chronic and crippling back condition we have been dealingcwith going on 5 years. My aquarium hobby provides a healthy respite from seeing her in pain, and i cannot imagine life without those escapes daoly to underwater paradises in my fish room.

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    It's very tough, especially when we know it's not something we can fix. That might be the hardest part for me as someone who likes fixing problems. This is the puzzle I can't solve. Instead I just have to do all I can to give her love, support and the best possible life. That in itself is quite fulfilling.

  • @Jeannie.B
    @Jeannie.B Жыл бұрын

    💝 Wishing you and your wife all the best. Thank you for sharing your story.

  • @Giftig--Daniel-P
    @Giftig--Daniel-P Жыл бұрын

    Hey Ben, I deal with several chronic maladies, including pain. I'm able to work, but it's definitely highly impacting. I appreciated this a lot. I said a prayer for you that you might find some more answers or relief, or in the least that things won't get worse. Best wishes.

  • @twinlamps
    @twinlamps Жыл бұрын

    Much love and support to you both Bentley. You have helped a lot of folks and your wife. Brave video

  • @dckyle
    @dckyle Жыл бұрын

    Amen brother. You have such a beautiful soul Bentley. May God bless you and everything you do for so many. Your honesty and vulnerability is truly inspiring.

  • @ronmurray4191
    @ronmurray4191 Жыл бұрын

    A very brave couple. Stay strong. Your channel is an inspiration!

  • @johnm8657
    @johnm8657 Жыл бұрын

    Thanks for sharing Bentley. Take good care of her. I know you will.

  • @vikkirountoit497
    @vikkirountoit497 Жыл бұрын

    Sounds like you two have a great relationship:) You seem to have a good grasp of what she is dealing with. That kind of pain is hard for people who don't have it to understand. I’m sorry to hear that she has this and glad to hear she has created a solid online community with gaming. Completely different and on a lower pain scale I assume, but I have an "undifferentiated" inflammatory issue per my specialists with related intermittent pain that gets quite intense. Daily pain going on 4 years now. Big part of the issue is that my feet will get painful spasms that feels like the top bones are being crushed or will feel like I’m stepping on fire or glass. The other part of the issue is that I get long periods of pain in different joints that seems very random. It can hit my shoulder, elbows, wrist, knees, and ankles - seems to stick in an area for a few weeks then dissipate and start up in another area. Some days I can walk for hours, some days I can walk for 10 min, on rare days I can’t bear weight without a cane or crutches. A lot of things that I used to take for granted are now extremely difficult/painful/time consuming. I can tell you - my husband does NOT understand the amount of pain involved. I still find it hard to accept that I'm dealing with this and not push myself so hard I go past the point of needing to knock myself out with brandy or stronger meds at the end of some days. Hiking, gardening and fishing have been mostly replaced with super healthy eating, aquariums and houseplants.

  • @BentleyPascoe

    @BentleyPascoe

    Жыл бұрын

    Understanding it has been a matter of us communicating. She's found videos of others who have similar issues and sent them to me to help understand her pain in the words of others. We've talked and been to hundreds of doctor appointments. Like life, it's a process.

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