My wife has mast cell. She has been blown off by all Doctors but one who is a holistic doctor and he put her on a blood type diet and lo and behold her attacks almost completely went away. She is also triggered by mold and stress! But she has been much better and we now try to stay away from triggers.

Great info and it's nice to have a mix of Natural & Allopathic Doctors working together. I am watching to try to regain my life now that I am a Long Hauler sufferer.

My MCAS was caused by COVID. I have no idea how to calm them down… I cannot eat properly anymore 😞

@jennahamilton1687

2 жыл бұрын

Me too!

@polyforge3d

2 жыл бұрын

Same here!

@polyforge3d

2 жыл бұрын

@@Rescuemaven It's the same for me - I feel better after exercise. But I can't eat any wheat or histamine products. I have bouts of symptoms after them - pain all over my body, burning skin, itchy and swollen mouth, joint pain, shortness of breath, constricted throat. Avoiding histamine and taking activated charcoal (which absorbs histamine) helps me.

@polyforge3d

2 жыл бұрын

@@Rescuemaven Absolutely the same!

@TJ-rb9rk

2 жыл бұрын

Same here 😩

Some people in the MCAS facebook group say that vaccines affect them. I had a bunch of mercury fillings when I was a teenager and now I'm 60 years old. I have had sensitivity to sugar since childhood. My symptoms to histamine food is feeling hypoglycemic and brain fog. I didn't figure this out for 45 years and no doctor helped me figure this out. I read that cytokines affect blood sugar and that histamines affect blood sugar. No doctors know this?

There's a whole lot of wisdom nuggets in this one video! Thank you! 😊

I did a strict anti-inflammatory diet and supplemented along with a low stress lifestyle to fix a plethora of symptoms.

Thank you for post this!! Thanks for the support ❣️🥰

This was a great overview of treatments for MCAS. Thank you!!!

What an excellent video! Thank you

I was tested by the Mayo Clinic and finally was diagnosed with MCAS.

@tacocat8608

9 ай бұрын

Which Mayo Clinic? I was scheduled to be seen at the Arizona campus and they called me to tell me they wouldn't treat me for MCAS. I don't know where to turn at this point.

@Butterflylovely5

9 ай бұрын

@@tacocat8608 Hello there, we’ll actually I didn’t went there in person, my allergist ordered the test and warned me they were extremely expensive and I was paying out of pocket, I went ahead and she send me to a local hospital were they draw my blood and gave me a huge gallon to pee for 24 hours and they told me they will send it out to the lab because they didn’t did those “fancy test” I only knew that Mayo Clinic did the testing until I got the results, and confirm that I do in fact have MCAS.. my treatment didn’t change much really I just wanted the diagnosis so in case I have to go to the hospital emergency room they know I’m not crazy. I hope you find someone who can help you soon, I spend a fortune before I figure out wth was wing with me 🥺😢

@leannshort2211

19 күн бұрын

@@tacocat8608 You might be able to get some sort of testing, but the Mayo Clinic does not treat MCAS specifically. I know, I called and spoke with a lady from the Mayo Clinic in Minnesota. She told me none of their clinics have Mast Cell specialists. Seriously?! You are the Mayo Clinic!! 😒👌🏻🤦🏻‍♀️ I have had to figure this out on my own. STILL dealing with this BS after getting Covid over 3 years ago, April 2021! Check out eating pro metabolically. There are some great channels on here and podcasts about it. Look into Ray Peat articles. Also, reducing stress as much as possible is HUGE!! I can’t stress that enough. Do mindfulness exercises and meditation. Earthing and healthy sun exposure. No Dr has helped me. I am still working on me and trying to figure this out. Childhood trauma plays a big part also, so I now just started seeing a therapist that specializes in Somatic Experiencing. Regulating the nervous system is key! I hope this helps! ❤️❤️

Great video! Never thought of histamine until recently. What made a HUGE difference for me is fasting. I've had MCAS for two years and nothing helped. In the beginning I noticed a change cutting out dairy and wheat from my diet. But when I recently started to do prolonged water fasts I seem to be completely healed. I did two 36 hour fasts in three days and it was like flipping a switch. I don't get triggered from cleaning my house anymore, I can manage hot baths and I can even work out. I've got my life back after two years pretty much house bound.

Low histamine probiotic has done the trick for me. I’ve gone through two years of unbearable symptoms including HBP.

@manimuthiah418

Жыл бұрын

Could you please specify the supplement you are taking, Thanks

@gl8715

Жыл бұрын

Did you hv food intolerance? I can only eat 3 things

@bornwin-sx9oz

Жыл бұрын

@@gl8715 I have a hard time with foods that have a sauce or anything spicy and absolutely no alcohol. The health food store carries probiotics. I purchased one that says for colon health.

@isaacjmay

Жыл бұрын

@@manimuthiah418 seeking health sells one. Maybe this Colon one has the same strands?

@driver3604

Жыл бұрын

@user-zb9ow8ke9n Could you please share the exact brand name? Thanks!

Lyme & relapsing fever disease triggered mcas in my youngest (turned 9 today). I can't get her off of pepcid/benadryl/quercetin for more than a day without the hives coming back. Our dr swore up and down it's a food allergy... thankfully the allergist refused to do a panel on her. Last time she had one, she spiked a super high fever for days, and it proved nothing more than the allergies I already told them she had. It's hard to get drs who know anything about this stuff.

@onatarabandrui8375

Жыл бұрын

Rheumatologist, immunologist, or a geneticist.

@alfredclark3167

6 ай бұрын

Most have no clue

@leannshort2211

19 күн бұрын

@@francinemitchell3809 I am so sorry. Yes, they are absolutely clueless. Have you ever heard of the GAPS diet? Mainly homemade meat stock to heal and seal the gut lining. This will probably help significantly. Dr. Natasha Campbell-McBride wrote the books. Hope this helps. ❤️

I had knee replacement 3 years ago and felt so sick. I started breaking up huge hives and my lip swole up. I was diagnosed as having mast. I take celirizine hydrochloride 10 mg every night to keep these symtons gone. Thank goodness

Great summary, thanks. Got Hyperadregenicn POTS but have these flare periods where MCAS may be the underlaying trigger with what you so well presented.

@restorativewellnesscenter

2 жыл бұрын

Thanks for the kind feedback Fredric!

@francescoschettino5726

Жыл бұрын

whats your stack looking like?

This is what my wife is dealing with. She has attacks twice a month that last a week or more. She is lucky to have a full week of feeling well. Most Doctors tell her that the swelling and hives have nothing to do with the vomiting and severe pain in abdomin. She can’t eat or drink for almost a week.

@restorativewellnesscenter

2 жыл бұрын

Hopefully she can find answers and relief Bill!

@makaelamcmahan6899

2 жыл бұрын

I have MCAS and I have horrendous abdominal pain and vomiting. Could eat for a month last year. Accupunture really helped me and a drug called viberzi

@joannerombach7589

2 жыл бұрын

oh ok

@Poultrychick

Жыл бұрын

If she has a elevated tryptase serum she may have HaTS. Symptoms overlap with MCAS and are treated the same.

@hopefaithstarlight1207

Жыл бұрын

Medical marijuana will help her eat. I can’t eat w out pain either and most food and water hurts me. Gummies and RSO help; aka THC. When I don’t take marijuana I’m a mess. When I take marijuana people think I’m healed temporarily…not pushing Thc just saying it helps me and I have stayed alive by the grace of God for 11 years when I almost died and now w this medicine marijuana I can have somewhat a decent life until God takes me home. It works. It sure helps nausea and lack of hunger! It sure helps pain pre Op! And post op! Have a good day love you💜❤️🤍

I am needing some doctors like you near me!! This is all the symptoms I have. I definitely need help! I’m on 6 histamines a day and still not helping.

Thank you so much for this information , I so wish you worked here , is there a book written by you ? I had odd problems when young which slowly built up. I also was diagnosed with Laxligaments + fibromyalgia . Hormone problems , stress child problems , developed to a few food/ meds reaction , bigger stress problems , stroke x2 hour apart with encephalitis. This made me react to a lot more , all antibiotics, foods , even things used on the body , air sprays and has been so very difficult, told stress because of stroke, then got Covid three times, told other hospital Dr. Long Covid and is sure I have Mast Cell Activation Syndrome and now given Loratidine by my doctor but no other help. Thanks again , Jules

Vagus nerve is a problem, particularly with excessive stress. The vagus nerve runs the length of the body and involves various organs, including the gut and liver.

@michelle-vl3me

5 ай бұрын

Is there a way to repair the vagus nerves?

@leannshort2211

19 күн бұрын

@@michelle-vl3me Yes! There are mindfulness exercises and Vagal nerve stimulation exercises you can do! I am still working on this as childhood trauma can play a huge part! Needless to say my nervous system has been dysregulated since I was a child. I never knew the extent of which it affected me until my adult years… 😔 Found a therapist recently who specializes in Somatic Experiencing to help heal the nervous system from trauma. Might be worth looking into. ❤️

2016 i broke out with mcas on the front of my calves. It drovr mr insane quickly. Dermatologist pointed me to quercetin. After long trials not much helped long term. Triggers? Excessive stress, too hot, too cold and heightened autoimmune issues. Very informative vid.

I have a script to get the urine / blood test for MCAS but here is the problem: I react badly to all corn derivatives. and after I do this test to prove I have MCAS I am supposed to take antihistamines. but all antihistamines contain corn derivatives! so I am supposed to take a corn s derivative to stop a reaction from a different corn derivative! it makes no sense! the corn exposure also gives me Pots on top of the other reactions. so I am busy avoiding tons of stuff. have bad reactions to food, chemicals, scents. etc. as far as I know this is all genetic.. including the MCAS. the MUSC did a study and it seems that MCAS travels on the gene for hEDS.. which is why the 3 are often seen together: pots, EDS, MCAS (plus gut problems). its genetic!

@carolbarker6064

Жыл бұрын

It definitely is genetic. I have hEDS, Pots, Autism, and Adhd. My Dad had all of these and my two sons have all the diagnoses plus undiagnosed MCAS as I do.

@maryjohnson753

5 ай бұрын

I had to use a compounding pharmacy to make corn free & preservative free medicines for histamine & mast cell issues. Lotions & capsules. Very pricey, but had no choice.

@travelinglifeofafoodie2971

5 ай бұрын

What about albizia plant

@leannshort2211

19 күн бұрын

@@carolbarker6064 Same! My Dad had allergy symptoms also. My son and daughter do also as well as myself. Pro metabolic eating helps, as does regulating the nervous system to actually finally HEAL! I had a lot of childhood trauma. So did both my parents. Evidently trauma affects DNA and genes and can absolutely pass down from generation to generation. I have recently found a therapist who specializes in Somatic Experiencing to help with childhood trauma and helps to re-regulate the nervous system. Mindfulness and Vagal nerve exercises also help. ❤️

@leannshort2211

19 күн бұрын

@@sarahb.6475 This is true, it is genetic. But, we can turn our genes on and off by diet and lifestyle changes. What I mean by that is eating pro metabolically, mindfulness and Vagal nerve exercises. Reducing stress as much as possible is key. I had a lot of childhood trauma that manifested into physical symptoms. After Covid everything got 100x worse! Not unheard of that injury or illness will do this. Got Covid over 3 years ago, April 2021. Now July 2024 and still suffering!! Things are slowly getting better with the implementation of pro metabolic eating, a good collagen powder supplement along with making my own homemade chicken broth with chicken feet as it provides a lot of gelatin and collagen to help heal and seal the gut lining. I eat mostly, whole organic food as much as possible. I read food labels! I have recently found a therapist who specializes in Somatic Experiencing to help heal from trauma and re-regulate the nervous system. This is huge! Please also look into Ray Peat articles. Hope this helps! ❤️

I cough and cough at everything one day, and only a few things the next day. It seems to be processed foods which get me coughing every time. I had covid back in July 2023 and everything seemed to go downhill from there.

@leannshort2211

19 күн бұрын

@@TheRobbieflower SAME!! 😭 Covid April 2021 for me. Over 3 frickin years and still suffering!! Had to leave my job by December 2021 because symptoms were unbearable and I couldn’t function. Brain fog, severe fatigue and memory loss/ concentration was severe. Chronic respiratory and GI symptoms. Allergies to everything now! Waited 2 years to file for SSDI because I really thought I was going to get better and get back to work! I am only 43!!!! 🤬😭😔 Got Covid at 40. Of course the Government doesn’t seem to want to acknowledge long Covid sufferers, so I’ll seriously be shocked if my SSDI is ever even approved! 😒 Have a friend who applied for SSDI because he has prostate cancer. They denied him after his prostate was removed and said he had to get it AGAIN in order to be approved… WTF?!! 🤬 So his cancer has returned and maybe the 2nd time around they’ll give it to him. Ya know, in the event that it may take his life! Sorry as hell criminals!!! 🤬 So now I feel pretty dumb for even bothering to file! Some things have improved a little. I stay away from most processed foods now. I make sure and check labels. Eating pro metabolically and focusing on a lot of healthy proteins, mindfulness and Vagal nerve exercises to help re-regulate the nervous system is HUGE!! Hope this helps! ❤️

Covid for me…. Along with hyper POTS and Raynauds

What about Hyperbaric Oxygen Chamber Therapy

I have had chronic hives for 8 years, battled on and off with sibo, constant candida, and h. pylori along with tons of food sensitivities. I cannot even with ketotifen, quercetin and lower histamine diet, fully get rid of hives and now I feel stuck on meds b/c when I try to get off my body goes nuts. I'm so discouraged and not sure where to go from here. It's hard when you work so hard and know that your work doesn't get "rid" of the illness, it is just managing it, and even then, any trigger can cause struggle. :(

@els7362

2 жыл бұрын

I would Investigate heavy metal toxicity

@prov2.3-5

2 жыл бұрын

I am so sorry. I'm in a similar boat and it can be so overwhelming and discouraging. I don't know if you know Jesus, but I find rest for my soul in him. He is with us through our struggles and he uses everything for our good. I'm learning to trust in him through this.

@sarahcodispoti3983

2 жыл бұрын

@@prov2.3-5 yes!! I do love Jesus and my greatest problem and need has been solved in Him. Thank you for your encouragement! I'm sorry you're in a similar boat. It does cause us to have to lean on and trust him though and it is a precious thing to have him WITH us in the valley of the shadow :)

@prov2.3-5

2 жыл бұрын

@@sarahcodispoti3983 Yessss! Good to hear, and so true ❤️

@Butterflylovely5

2 жыл бұрын

Yes unfortunately is a genetic condition! Once is triggered we will have it for the rest of our life 😢😪

I developed MCAS after having IVIG treatments for chronic Lyme disease. Then COVID happened. I took antihistamines for 6 weeks twice a day. Then I took cromolyn sodium for my GI symptoms. Then I took ketotifen for breathing issues. Recently got Covid again and it has triggered symptoms throughout my body

@leannshort2211

19 күн бұрын

@@alfredclark3167 I hear you!!! Same here! 😒😔😭 I am so sorry. I can look back now, before ever getting Covid and realize that I had some “allergy” type nuisance problems for years before I ever got Covid. Had seen an ENT for 10 years who always just said I had allergic rhinitis and chronic sinusitis 🤦🏻‍♀️ Always pushing meds and nasal rinse steroids. Nothing worked. Even Montelukast didn’t do anything for me after my body got used to it. Then I got Covid over 3 years ago, April 2021. STILL suffering!! 🤬🤬 I’m have implemented pro metabolic eating, taking a high quality collagen powder supplement, I make my own homemade chicken broth and use chicken feet among other parts I source from a local farmer. Better nutritional profile and the gelatin and collagen is more prevalent in chicken feet. Helps to heal and seal the gut lining. Also, stress is a HUGE factor! I have had to learn this the hard way. I had a lot of childhood trauma so regulating my nervous system is key. I have also recently found a therapist who specializes in Somatic Exeriencing to re-regulate the nervous system. I have dealt with this for many years, just never knew it could effect me later down the road with such debilitating, physical conditions! I also have chronic Lyme disease. Unfortunately, most everybody probably does. It’s not until and illness or injury that sometimes brings it to the surface and the symptoms present! I also tried Ketotifen. Never did anything for me. Neither did Quercetin. The naturopath I used to see only wanted to push supplements out the wazoo and a $5,000 Lyme treatment. Yea, just as bad an any main stream medical Dr! 🤬 I finally realized I had to take this into my own hands. Also look into Buteyko breathing exercises. They really do help! Pro metabolic eating, Ray Peat articles, mindfulness and Vagal nerve exercises. Hope this helps! ❤️❤️

Do you work with patients that have ME/CFS?

I'm interested in FMT to recolonize the gut as I'm allergic to all supplements, even IV vitamin, meds and sensitivities to all foods. MCAS stabilizer doesn't help. Do you offer FMT enema or pills? There are clinics who offer FMT but for CDiff only but you can buy some in Spain. Hope you can offer that too

nervous system is overun

@leannshort2211

19 күн бұрын

@@grahamnovak1629 I just replied to someone about this. Absolutely correct! Regulating the nervous system is KEY!!

Could memory be a histamine trigger

how long does cromolyn take to work?

I believe chronic stress is a trigger, too

@leannshort2211

19 күн бұрын

@@kellio8087 Absolutely it is!!! I have suffered from long Covid for over 3 years, and found this out the hard way! Working on re-regulating my nervous system with mindfulness and Vagal nerve exercises. I also recently found a therapist who specializes in Somatic Experiencing to help me heal from years of childhood trauma. A long road, but I’ll get there one day. ❤️

Third Space Syndrome please explain this condition. What are the treatments for this?

I have been just told I have this. I Also have reactivated mono, mthfr mutant genes, etc. I've been tested for inflammation which is always high. I also can't absorb vitamins so I do injections b12 and my D is always low as well. I'm allergic to everything. Seafood, steroids of any kind, grass, mold, pet dander, the list goes on. Also medical diagnosis I have a slew. I swell with heat bad. I've gained weight cant lose. My chiro wants to put needle in ear for a time and a spray for tongue he says. Do u have knowledge of this?

It’s frustrating not to be able to know what my triggers even after so many test done. I go into a full on anaphylaxis shock and I end up in the emergency room because I go unconscious. Now I’m living w fear and anxiety. The Epi pens failed me the last time I had an episode. Benedryl also failed me one of the times I had an episode. I don’t know what else to do.

@carolbarker6064

Жыл бұрын

I totally understand what are going through. I had an anaphylactic reaction in November last year. My doctor referred me to an imunologist. I was due to see them in January. Unknown to me the immunologist canceled my appointment and sent back my referral to my GP saying they can't treat people with MCAS!! I'm diagnosed with Hypermobile EDS and POTs among several others. I did my own research and contacted the EDS society. They gave me a list of doctors that can treat MCAS in the UK. I wrote my GP a letter ( as it's hard to get an appointment ) with the details of a consultant who can treat me. I'm hoping the GP does my referral soon as it will be months before I can get an appointment to be seen. It's so frustrating , I suffer with so many symptoms and have been flaring since last May. I got treated like a hypercondriact when I took the letter into my GP surgery. I kept explaining to the manager and staff ( who opened the letter that I had addressed to my GP !) My letter was just put in a folder to be passed onto the secretary sometime next week. I hope you manage get the help that you need. Take care

@analyzgmz5267

Жыл бұрын

@@carolbarker6064 wow, I’m so sorry you’re going thru all that as well. It’s frustrating how we have to do our own research. Hope you get the help you need as well.

@breezylyn2168

Жыл бұрын

You are having the same things I am !! Omg ! Somethings happening since covid I swear ! Are you male or female ? Are urs triggered by your period or ovulation ? If your female... when did yours start ?

@breezylyn2168

Жыл бұрын

​@Carol Barker weird you say that my first one was in November. Now I'm having them monthly and becoming more frequent

@analyzgmz5267

Жыл бұрын

@@breezylyn2168 hi. Im a female. Too much to write on here but I e been doing more research on my own and I believe I know where this is coming from. I talked to my doctors and they’re as shocked as I am. Like, really? Lol. Anyway I started 2022 I believe. But I have pcos and I think this is what it started. The more I thought about it, it just made sense. I’ve been thru so much testing and no one can figure out my triggers. So I said, bingo!!!! I might need to have my ovaries removed. I’m not sure. I need to talk to my OB-GYN and ask more questions. I wanted to upload the article here but didn’t know how.

Hi! New subscriber here! My son has mold toxicity and two types of Bartonella. He’s going crazy, and his doctor (Thank God I found her!) thinks he’s having a herx reaction. However, I keep seeing things about mast cells. I think this is the issue. What is causing the head pressure? Is it toxins? Sugar? Diet? He’s on a prescription antihistamine, stopped his antibiotic, and is taking 800 mg ibuprofen 3 times a day. He keeps talking about this head pressure, but I don’t know what’s causing it. He smokes a LOT! Oh, BTW, breast implants cause this stuff! Pure toxins! I had to have them removed 4 years ago, change my lifestyle and diet, and I’m still not well!

@ProPlayer-gg5uu

2 жыл бұрын

Probably low stomach acid leading to no B12 absorption. Can also be low magnesium. Google diet to raise stomach acid. Supplement magnesium and B complex.

@artsiecrafty4164

Жыл бұрын

Ibuprofin, a lot of it! I can’t ever take one. Smoking a lot! Causes inflammation.

@maryjohnson753

5 ай бұрын

He's ruining his liver & kidneys with that much ibuprofen.

Personally I dislike the word syndrome. It implies not knowing.. Yet in life there's always a correlation of cause albeit the investigation into cause may take time and effort.

I take cromolyn 20 minutes before every time I eat. It's great. It's changed my life. Singulair made me want to die, not ideal. I also take ketotifen for it. I take low dose naltrexone for my hEDS pain, it's great. I still react, but much less severely. Instead of anaphylaxis, it's just gi urgency.

@virginiastephenson3086

Ай бұрын

How to get a cromolyn prescription? As far as I know it's been discontinued in the US? I have asthma from the histamine issues so this would be a lifesaver for me!

Do you do telehealth visits?

@restorativewellnesscenter

2 жыл бұрын

Yes we do!! Please feel free to contact our office for details. www.restorativewellnesscenter.com

Curious as to whether NAC can help as I've heard it could also cause MCAS.

@alfredclark3167

6 ай бұрын

I’ve found NAC quite helpful with these issues

How do you treat mycotoxins at the same time? Or get rid of mold first, then focus on MCAS?

@waleyefish9026

4 ай бұрын

I don't think it is possible to get rid of all the mold spores. It's airborne, and the allergist gives mold spore counts to TV every day🤧.

Can MCAS ever be healed?

@TheBushRanger.

Жыл бұрын

Yes

@josephinepiccinich4254

Жыл бұрын

@@TheBushRanger. how?

I’m really about to give up. I don’t want to, but MCAS is really bothering me.

I wonder if COVID gave my baby MCAS bc she had very mild baby eczema then it turned into her being allergic to everything I eat as I’m breastfeeding. I’m down to a very limited diet. I wonder also about mold bc we had some flooding in our home for a while and had to redo it all

@breezylyn2168

Жыл бұрын

Same .going through similar

@lindapelle8738

Жыл бұрын

Mold wrecked me.

@lauriekline178

Жыл бұрын

Nope. Covid doesn’t cause mcas.

Feel my mast cell problem most likely due to living so close to a pylon when 4 then having tonsils out at six...

Where are y’all located... wish i could be seen at your office 😭😫

@restorativewellnesscenter

2 жыл бұрын

We are in southeastern Pennsylvania. We do telemedicine with patients around the country though!

Mine started after my tonsils were removed in my early twenties.

Can they also cause nausea amd a feeling of fullness too soon upon eating?

@lindapelle8738

Жыл бұрын

SIBO caused that with me, you can test from gastroenterologist, holistic dr or naturopath or just order one online.

Mine from long COVID.

1/4 ppl have a gene that doesn’t detox from mold and the doctors Dx is CFS. This is a huge mistake beware. Stanford university have found mold to be a part of why CFS is actually mold induced biotoxin illness. Mast cell, mCAS is most likely an underlying comorbidity. Inflammation leads to cancer…love to you. Marijuana fights mold- CBG and CBGa. Marijuana fights inflammation and helps stabilize mast cells for me my cd4 cut in half by using RSO/THC.

@lindapelle8738

Жыл бұрын

Can you order this online and if so, where? I live in CA.

@tangieshogelola6898

Жыл бұрын

What does all this mean?

@EricasEsthetics

Жыл бұрын

..and marijuana contains mold.

@EricasEsthetics

Жыл бұрын

⁠@@tangieshogelola6898 24% of the population has either MTHFR or another gene which makes it difficult to detox from mold which we get from water damaged buildings and from many food sources. You can develop biotoxin illness from the mycotoxins that mold produces and it can lead to (or be thought of as) CFS or chronic fatigue syndrome.

@EricasEsthetics

Жыл бұрын

@@tangieshogelola6898 MCAS (mast cell activation syndrome) is often triggered when a person has biotoxin illness or toxic mold exposure. The underlying “cytokine storm” (immune cells that overreact and are difficult to calm down, causing hella symptoms) that is happening produces extreme inflammation, which some people believe is one cause of cancer.

Hysterectomy triggered histamine then abuse triggered MCAS - triggered by foods / hrt / chemicals … The rage and ill health has me housebound

Dupixent please talk about this injections self administered,targeting 2 specific Interleukins.

Mine started in benzodiazepine withdrawal which has also caused constant frantic hyperphagia and complete intolerence of all meds and supplements & thrown me into menopause which makes treating it impossible. It mostly causes sudden loss of muscle tone as soon as I put anything in or on my body, breathe anything much etc. I have Craniocervical instability which I know can also be a factor but can’t treat that because of the muscle tone problems. I have also had ME/CFS for 27 years. I dint have any histamine symptoms. I react badly to Quercetin, B12 injections, Turmeric, LDN, all the mast cell stabilisers etc etc. I have no idea where to start. Do you do online consults? I am in the U.K.

@mesoso4205

Жыл бұрын

Hi , sorry to bother you ! Have you found any solution to your problem ? I am dealing with the same situation. I can t take any suppliments

@JustME-ft4di

Жыл бұрын

@@mesoso4205 Unfortunately not. If I could I would do FODMAP diet but withdrawal caused frantic hyperphagia. I am going to try some specific probiotics. And if that doesn’t help Transcranial Magnetic Stimulation.

@naga_says

10 ай бұрын

Hi I was reactive too and am taking levocetrizine for the itch. natural mast cell stabilizers - Onion, apples, cucumber, moringa leaves. Someone who cured it has also recommended amylase enzyme so planning to try it.

@JustME-ft4di

10 ай бұрын

@@naga_says I can’t take anything. React to it all. I dint have the skin reactions. Mine are neurological.

6 functional practioners for cfs eds and mast cell and not one has healed me lol

@EricasEsthetics

Жыл бұрын

Same. Maybe look into DNRS? It helped me more than anything else

@gardengirl9099

6 ай бұрын

@@EricasEsthetics could you please explain what this is.

@Navigatingwellness

6 ай бұрын

@@gardengirl9099sure, DNRS is dynamic neural retraining system..a program designed by Annie Hopper to use brain rewiring techniques to heal from all sorts of trauma, chemical sensitivities, etc. There is one by Gupta as well. The one I took focuses on the limbic system, and retrains your body to get back into a parasympathetic state so that you can heal, but I won’t recommend them because I had a bad experience with them. But the two I mention here are the original ones anyway.

My wife has MCAS yet doctors refuse to call it! 10 years we have tried to get help yet only one to help is a holistic doctor who put her on a blood type diet and some natural supplements. She is not cured but has many less attacks. Before was every other week with a week of feeling ok then another attack!

Thank goodness for the stethoscope.

@traceytansley1659

Ай бұрын

Lol

Is middle guy introvert

What would cause an infant to have mast cell ?

@maryr7593

4 ай бұрын

Genetics. See this video: kzread.info/dash/bejne/l2SYsbOmeLSoetI.htmlsi=ldGE9Kw2Bs1BqolK Excellent vid that explains the origin story behind the chemical sensitivity and mast cell activation syndrome. Also if you use scented products in the home...any scented products, laundry soap, dish soap, body lotion, air fresheners, 'essential oils', etc. Also if the baby food has any artificial dyes, preservatives, etc...baby might be sensitive to those things and body is responding. If baby is allergic to pollens, known IgE allergens...this is different than mast cell. Though mast cells also cause the allergies but mast cell activation is your immune cells reacting to very low levels of chemicals, foods...like broccoli...which is not a normal allergic food.

🌟🗽

I cured my mast cell activation. I was allergic to almost all foods. Now I’m eating everything. It so stinking simple.

@JonathanJones33332

Жыл бұрын

Please share?

@kymhocaluk9408

Жыл бұрын

I went on a super strict low histamine diet, then I discovered from hour and hours of research a specialist,her name is Dr Maggie here on Utube .. she said when a new patient comes to her she starts them on probiotics. Well I went to her online shop and discovered all the strains she uses, checking the probiotics she sells. I purchased them off Amazon. And no lie the severe itching and migraines and horrible hives, were gone the next day. I’m a week into the probiotic. And I feel great. She believes it from gut problems so we need to address the gut. Hope that helps.

@vanessarenae5169

Жыл бұрын

What did you do?

@kymhocaluk9408

Жыл бұрын

@@vanessarenae5169 look at the post above yours.

@lindapelle8738

Жыл бұрын

Hi, I never saw a post on this site where you shared what you did to heal. Would love to hear the protocol you followed. Thank you!!!

Here is a dr video from 6 months ago...where they actually found the root cause: kzread.info/dash/bejne/l2SYsbOmeLSoetI.htmlsi=ldGE9Kw2Bs1BqolK Excellent vid that explains the origin story behind the chemical sensitivity and mast cell. activation syndrome. Thought you might enjoy the explanation too. The is dr refers to EDS...this is the hypermobility condition that affects the connective tissues.

Long covid happened ugh

I changed my diet to vegan and it all went away

kombucha is a disaster

Number ONE RED FLAG of BS …. wearing a stethoscope outside of patient assessment/treatment area or context

Food sensitive and histamine isn't the problem or root cause. This video is a joke.

@94DanielJ

6 ай бұрын

What is

@burnswhenpees

2 ай бұрын

​@@94DanielJGenetics

Psychosomatic

the root cause of real MCAS is epigentic. This is useless and nonesense here.

I fix that tooth paste & mout wash soo l dulote till just enough two wash & bicarb with paste two 🌹🌟🥹