imagine being told that your cancer isn’t advanced enough to begin chemotherapy. it makes zero sense

@Zayaxa

Жыл бұрын

You hit the nail on the head. It's absurd.

@gothicanimegirl44

Жыл бұрын

Sorry your legs not broken enough to be set. Come back when it's a compound fracture.

@elizabthharris6741

Жыл бұрын

I was told that. That my 3 severe BONE infections weren't a break so, see ya. I had to drive 30 minutes to the next town. Ended up being in hospital 4 months and lost the leg. I wasnt the right kind of sick in August 2022. America has been like this since covid cause if you get sick during covid times, it is written off. Not valid. Oh, EDIT: and I had been begging for testing for 5 years solid of woundcare at said hospital, for wounds that would not heal, and Losing my ability to walk without a walker. Begging. No use to try to get a frickin peg leg. Medicare pays shitall wen you are disabled ...which I am now.

@JasperisCasper

Жыл бұрын

actually... cancer not being advanced enough for treatment is a thing. insurance wont pay for a lung surgery for me until nodules are a certain size. so doctors see them and watch and wait until they're big enough for removal. The only deciding factor for healthcare should be what a patient and doctor decide is needed. money and insurance and bullshit shouldnt affect it.

@skaio.5279

Жыл бұрын

@@elizabthharris6741 Wow, this is absolutely unbelievable ... How are you even able to accept that and go on is beyond me. Have you shared this story with many people? Did you get any justice, was this problem acknowledged by those who failed you??

Believe me, the “you’re not thin enough for treatment” thing has been around since the 80s. I presume the bar is even lower now. Back then it was because it was a less well-known illness, but now it is because the whole thing is broken. My brother is dying of cancer because his doctor refused to send him for tests for 2 years. And he is not the only person I know in that situation. Also, anyone over the age of 75 I know who has been into hospital in the last 2 years has been badgered to sign a DNR. My mum was left in tears by someone shouting at her that she had to sign it. My neighbour had several doctors asking her to sign when she went in last month. And they have heard the same from their friends.

@Honeyin2013

Жыл бұрын

That’s disgusting that they will sacrifice the old and ill instead of fixing the issue

@nothanks5162

Жыл бұрын

...ok, I don't want to be disrespectful. I am honestly curious as to why your brother did not change that doctor. Like, I changed my doctors every time I had something until I found one that helped. If someone goes: nothing's wrong. And I'm in pain, I will just go to someone else. 'Cause what that translates to me is: I don't know what to do, but I am too proud, or I am not allowed to say it.

@Brynwyn123

Жыл бұрын

​@@nothanks5162they often won't let you

@gemmagreene362

Жыл бұрын

@@nothanks5162 It was during covid. He is a middle-aged man who is disabled due to a stroke and has no dependants - he’s the bottom of the barrel, as far as they are concerned. Also, he could only get telephone appointments and changing doctors during covid was not an option.

@pri.sci.lla.

Жыл бұрын

The DNR should never be forced to be signed but, CPR does have a very low chance of working (5-10%) and almost always causes a lot of damage. Ribs are broken, the lungs are bruised and the body is traumatized. People in the medical field aren’t miracle workers. I believe they went about it the wrong way but I also believe their intentions were to prevent further suffering. I’m not in the human medical field, I work in veterinary medicine but I’ve seen what CPR does to a body a lot of the times DNR is the right choice. I personally will be a DNR.

I loved that woman. She was so kind, and always answered my comments. The healthcare system is fucked up and they failed her. May she rest in piece❤️

I am an ednos victim who was told “you meet the criteria- we just don’t accept your insurance.” I am still quite sick. In the United States - they just let us die or to suffer.

@beatrizotaviano-xr3fq

Жыл бұрын

Freak!! You are literally paying! How come????

@avgeek-and-fashion

Жыл бұрын

@@beatrizotaviano-xr3fq Since Reagan, healthcare is not a human right: it is lazy ppl mooching from govmt money. See also "welfare queens" or the AIDS epidemic. Thus, there is no universal health care provided by the govmt, everything is on the individual. Some workplaces will provide health care insurances if you are lucky.

@taytay4458

Жыл бұрын

Because we live in the USA where profit is king and the patient is completely disposable. It’s just how it is here. The health insurance companies have bought off the politicians. It’s hard to fight against that level of corruption

@laurad4822

Жыл бұрын

​@@taytay4458So well said and so true! ✌️

@laurad4822

Жыл бұрын

​@@GothicBluJ Sorry you were denied help! You helping yourself is incredible but you are correct that it isn't entirely about the weight! I hope you finally get the help you need! ✌️

I believe they knew she was sick enough but ruled her as a lost case because of how severe her ed was. And then lied about her not being sick enough, always excuses.

@Nermeen.

10 ай бұрын

They could help her to live, she could be saved 💔

@rileystonge

10 ай бұрын

If they really believed she was a lost cause and going to die then she should have been getting end of life care so she didn’t have to suffer such a painful death :(

@kristajones7202

10 ай бұрын

​@@rileystongeI'm in the US. Some doctors refuse to take patients that have a high chance of dying so they don't have a patient death under their care.

Wales has about as many inhabitants as Berlin has, and Berlin DOES have treatment centers for people with eating disorders. I feel that Wales, and in fact most of the UK, is criminally neglected in favour of London and its surrounding areas.

@essaly7969

Жыл бұрын

I agree with your point, but you can't really compare a 'country' to a city. Berlin has 4127 people per square kilometer, Wales has 150. Lower Saxony would roughly be the equivalent of Wales in terms of population density.

@pendafen7405

Жыл бұрын

As someone from Gwent (south-westernmost county in Wales) living with a chronic illness, I sadly can confirm that this is the case for NHS healthcare in general.

@gozerthegozarian9500

Жыл бұрын

@@essaly7969 Fair point. But Lower Saxony still has psychological help for people with eating disorders. Not in the most rural parts of it maybe, but certainly in the urban/suburban parts.

@essaly7969

Жыл бұрын

@@gozerthegozarian9500 Oh I for sure agree that the NHS is worse. But regardless of the country, mental health centers are always rare to non-existent in areas that aren't densely populated. And that is a real problem, since there are many people living in rural areas who need help, including people whose mental health issues simply prevent them from living in cities or from moving. I hope online therapy will become more and more common for those people, but we need more funding.

@ffaeye

Жыл бұрын

Yeah, its London vs the rest of the UK. Funding to deprived areas is cut in favour of London because that's where tory mps reside. They must have the best services even if those services are still shit.

A girl I was inpatient with died a few months ago. She was 15. FIFTEEN. She spent 90% of her last few years in and out of Aussie hospitals, the care was free but it made her worse every single time.

@unpeuconfusee

Жыл бұрын

so sorry for your loss. i was coming to the comments to say similar, that IP treatment can make people worse and should be avoided if at all possible. i've had IP that made me so worse, and thankfully a residential program that helped me at least break out of the absolutely worst parts of my ED and not end up in hospital with it again. but even the decent place was traumatic at times. if there is any chance someone can pull themselves out, then its better to avoid the potential problems treatment, and particularly failed treatment that amounts to abuse. sadly i don't think this was the case for Amy Ellis, she couldn't pull herself out, needed treatment and its a travesty she didn't get it.

@emmy.vosper

Жыл бұрын

@@unpeuconfusee it’s amazing you could find some treatment that helped, unfortunately it wasn’t until I stopped seeing professionals altogether that I (very slowly) recovered on my own… it makes me so angry how treatment can fail so many people

@warum3952

Жыл бұрын

Because it's not "care". Formula tube feeding is extremely dangerous to ED patients. She died of an iatrogenic death.

@trunkb73625

Жыл бұрын

@unpeuconfusee are you a counselor or an ED professional? Because if not please don't come into the comment section telling other people what they should avoid. IP treatment could save someone's life. Recovery is not a one size fits all, and it's not always going to be comfortable.

@unpeuconfusee

Жыл бұрын

@@trunkb73625 I didn't say what anyone should or shouldn't do, I stated what in my opinion is better if it's actually and detailed why. It should have been abundantly clear that I wasn't considering a one size fits all given I mentioned both IP and outpatient options. No one is reading my comment to get ideas about what treatment they should consider for their ED and I am allowed to state my opinions based on multiple IP treatment stays in multiple countries over years. Your comment was so off the mark that I wonder if you tagged me by mistake.

As a fellow Welsh woman and someone with Autism/ARFID, I'm terribly sorry and angered to hear this. Deigryn hiraeth a dreigla'n dawel. Nos da ac huna mewn hedd, Amy.

@KimiikoZ

Жыл бұрын

❤

@We_Are_All_Vultures

Жыл бұрын

✨🕯️

@johnkoch9315

Жыл бұрын

I was convinced you’d be cursing someone out until I translated it

@pendafen7405

Жыл бұрын

@@johnkoch9315 well, there's a lot of damning things I could say about Westm!nster, the T0ry govt., NHS etc., but I'll refrain from such classless futile rants on touching tribute video posted in a general global entertainment forum🙃

@flowersforthedead5182

Жыл бұрын

I wish I could hear you say that. I love Welsh. For me it's the language of the fairies. Can't speak it lol. But it's beautiful.

When i was seeking ED treatment in Wales i was told if my bmi dropped in 2 weeks id be eligible for treatment. I decided to gain weight and recover alone, it was the hardest thing ive ever done and made way worse by a broken system

I have lost 2 friends to anorexia. I feel so weird about some of us (group of girls who met through mental illness sites or hospitals) have ended up so differently… some are recovered and have relationships and kids, some are still fighting but functional in society, some are still patients and some are dead… I feel weird having survived but still struggling.

@tianna1116

10 ай бұрын

I have the same exact experience, but with addiction not ED. I’m so proud and grateful to say I am in the group that is living a happy, healthy “normal” life. Confused feelings about the rest…

@hazysyd

3 ай бұрын

Please pray for their souls in purgatory that they may quickly enter heaven. Even if you are not religious (I am Catholic), this is a beautiful and efficacious prayer to pray anyway! St. Gertrude Prayer: Eternal Father, I offer Thee the Most Precious Blood of Our Lord Jesus Christ in union with the Masses said throughout the world today for all the holy souls in purgatory, for sinners everywhere, for sinners in the universal church, those within my own home, and within my family. Amen.

@Purpie_Slurpie

16 күн бұрын

@@hazysyd cringe

Love your message at the beginning. They absolutely need to stop discouraging creators from talking about these issues. Many people rely on the anonymity of KZread and other platforms as a starting point for their treatment, and blocking these conversations by way of demonetization does far more harm than good.

@iciajay6891

Жыл бұрын

This is a big issue for ppl who survived csa and assault. We get sensored when trying to find help or help others. And in a way keeps the power with abusers. I am also disabled due to my abuse, and I have issues getting care in my country as well. And the fact you can't talk about any of this is vile and barbaric.

@shessomethingelse1639

Жыл бұрын

I unfortunately only heard about Amy (most likely because I don't use tiktok) just today and checked out her tiktok. What a sweet, sweet lady she was. I couldn't watch her tiktok's without tearing up. I didn't even know her and I feel devastated by her passing. Even her amazon wishlist was full of necessary items and was updated three days before her passing. I feel so heartbroken. The mental health treatment system needs to change. May Amy Ellis rest in peace without pain

@SlpBeauty333

Жыл бұрын

It's actually even worse than that. If you post links to help for ED or other conditions, YT removes the link. It is just so fucking frustrating that they "don't have the resources to moderate content". Then why did you let me post it? It makes absolutely no sense. My phone's Chrome has all the pages open so I can always put up help links... and then they'll be gone. Grrrr. Don't even get me started on IG. They're really bad about much of it. But I posted about Taylor Swift and her ED and everyone thinks it's either funny or says I'm using the wrong terminology. FFS it's the most lethal mental illness out there and yes, it does primarily affect women. The other ED can get little blue pills to your door at your convenience. Seriously!?! It's all just too much some days. Blanket fort anyone? It's just chilly enough tonight in NYC for one. Lots of love from NYC ❤️

@ofherbsandaltars

Жыл бұрын

Yeah, it's been a bit nuts lately - demonetisation sucks, but recently they've also started putting 'over 18 only' bannings on videos that often don't warrant it, and that video is then essentially blacklisted by the algorithm too - it's getting so hard to have a frank discussion about anything important here... (let alone trying to grow your channel - I've long stopped using useful search tags, because the minute you insert a MH type word, they'll crack down on that video...but then nobody new sees that video either. UGHughUGHugh!)

@CrossfireHurricane-vw3pe

Жыл бұрын

​@@ofherbsandaltars that's awful Dorian. 🙁 But thank you so much for speaking out about these important topics anyway, you always do such an amazing job and I really appreciate it.

This story is so similar to Lique Faith in the Netherlands. She has a KZread channel called Lique. She desperately wants to live. And her ED started when she was a child because she had unrelated medical issues (she did not want to lose weight in the normal sense). She has intestinal issues which were not adequately treated so the only way she could stop the pain was to stop eating. She has written book and has a master's degree in the nutrition field. She so badly want to live but what's rare is that she needs 2 treatment plans. Medical Team and ED Team and her diabetes is very rare. CAN SOMEONE HELP. OH NO, I JUST SAW SHE DIED 5 DAYS AGO. THE SYSTEM LET HER DOWN. RIP LIQUE AND AMY.

@magalufff

Жыл бұрын

Oh my God, I just mentioned her in my comment that I’m worried about her because she hasn’t posted for some time and I’m worried that she might not be with us anymore. this is a heartbreaking news, she wanted a help so badly but none of the hospitals was willing to take her as they were saying that there is no free bed for her. I was shocked because I thought Netherlands are quite wealthy country, I live in Poland we are much poorer but it looks like is the same. thank you for this information, I can’t believe it I’m about to cry…

@NaomiDollxoxo

Жыл бұрын

@@magalufff oh no, I’m sorry you just found out. It’s tragic. She was too far gone before she got into treatment. The treatment feeding tube was making her very Ill and casing her massive diarrhea. So she was suffering. They made her choose suffering for the rest of her life possibly (4 weeks of feeding tube that may not keep her alive) or remove it & certain death, but she was too scared to choose & passed away anyway during that time to choose. Makes me mad that’s the choice they gave her

@rudemaminsynek5925

Жыл бұрын

Oh no, not Lique too! Shame on all that failed her. This is a gut punch. Her strength, resilience, kindness and sweet nature will not be forgotten. Her optimism never waned despite knowing the realities of the care available to her. Fuck, man. I hope that where she is now, everything is beautiful, and nothing hurts.

@sofie79

Жыл бұрын

@@NaomiDollxoxo Lique decided not to have the feeding tube, and a couple of houres later she died. she let go, and let God... she is now a beautiful Angel-ique. free fom pain and suffering

@margodphd

Жыл бұрын

@@NaomiDollxoxo Oh my wish I could say God but..... There's intravenous feeding options for a reason, I was fed trough IV myself and so was my father dying of cancer due to dysphagia,it seems like there was every indication to put her on intravenous feeding. Unfortunately, TPN as it's called,is often a sparing ground for dietitians,hospitalists, GI doctors and other specialists. I was the unfortunate intern during clinical rotations in Poland to suggest TPN for patient with severe digestive issues due to generic disorder - who like the person mentioned, also suffered tremendously every time she ate,and the amount of scathingly angry comments..it's as if their opinion being on top mattered more than patients comfort,and in the case mentioned - life... It's heartbreaking that on their road they haven't found ONE doctor that would fight for them. Just one to advocate for them when they couldn't... I don't understand how the people I'm studying with, much younger than me as I've switched careers, from radical hopefuls fully engaged with patients, can turn into selfish,cold bastards. Killers,at times...

It's awful up here in Scotland too. The tories have blood on their hands.

@pendafen7405

Жыл бұрын

The fact that this story comes out of Wales, a historically Labourite nation which gave us Aneurin Bevan, is beyond scandalous and disgusting.

@YouHadMeAtHalo

Жыл бұрын

it’s awful anywhere other than the south :( and even then it’s the barest of funding. they’re sick.

I got asked recently by a random doctor if I was bulimic, even though it was mentioned a minute ago that I was anorexic because he didn’t think it was possible since I’m not severely underweight. He then proceeded to say that I “looked healthy or just slightly underweight”. Thankfully it didn’t fuck me up too much, but I was just shocked by his ignorance

@marjol3in

Жыл бұрын

I'm so sorry for your experience

@nomanejane5766

Жыл бұрын

U can have both anorexia and bulimia

@marjol3in

Жыл бұрын

@@nomanejane5766 I thought that was called anorexia binge/purge type. I had that in 2004, although my behaviors were bulimic.

@789quicky

Жыл бұрын

Unfortunately that doesn't surprise me 🤦

@tuntalia

Жыл бұрын

Eek!! The nerve some doctors have

I hear that a lot- that patients are “abusing” staff. In my experience, it's the other way around: gaslighting, neglect, and outright cruelty will make people angry. But your legitimate anger Is then reframed as abuse. The system is being quietly dismantled and its reputation driven into the ground, but it's all by design. That's how greed works.

@spinelessdevil

10 ай бұрын

It's so disgusting

@youretoopolitical8611

10 ай бұрын

Nurses and health care providers are belligerant, blitheringly idiotic bullies.

@notasb4

9 ай бұрын

There is so much abuse in the health “ care” system. It’s a joke that “care” is even a part of what that so called medical treatment is referred to as !! Doctors, nurses, surgeons and other related medical personnel seem to have lost compassion and empathy and most importantly doctors seem to have forgotten the Hippocratic Oath which promises “First, do no harm” I mean doctors don’t technically take that oath any longer nor is it a legal statement or requirement but I think as one human being to another and the fact that a person is putting their lives in the hands of the medical professionals that doctor would be in the field to do just that, “no harm” and for the good of others but I honestly don’t think that is the case much anymore 😢

it’s not the same as ED, but I live in America and haven’t been able to see a doctor regarding my CPTSD in over six years. I just cannot afford it. It just breaks my heart that the UK appears to be falling into the same path, for most of my life that’s where I wanted to escape to.

@iciajay6891

Жыл бұрын

I'm in Canada. It is not much better then the UK here. But we seem to be holding on. I also have CPTSD. I'm having issues getting mental and physical care for it. I am disabled due to my csa. But it is horrifying to see what is going on in the UK. And us being censored on social media trying to find help is absolutely keeping power in the hand of abusers.

@Vi-wj1md

Жыл бұрын

im from the uk and id rather be in the US at this point

@jasperjazzie

Жыл бұрын

@@Vi-wj1md am in the us, am honestly not sure why you'd want to be here,,but also it feels like there's not many decent places to be...i would suggest we all go to canada, but who knows

@sbubby3658

Жыл бұрын

@@jasperjazzie nah, don't come to canada, our healthcare system is falling apart as well

@Stopthisrightnow560

Жыл бұрын

Australia is going down too. We're worse than the UK so that says a lot.

i was devastated when i heard ab amy, she replied to so many of my comments and she was so sweet 💗 may she rest in peace

I live in Wales and I see it all too often. Im an atypical anorexic but luckily live where I can get help an my ED team are amazing. Sent me to DBT, seen a dietician, and a psychiatrist. I have to drive 45mins each way to see them, but I'm getting help. However, my friend lives just a 20min drive from me and is under another borough, is so much more at risk than me and can't get any help at all. It's sickening

It breaks my heart when I hear that an ED has taken yet another life. Hearing stories like Amy's makes me realise how very lucky I am. I was fortunate enough to be able to recover with a great deal of help. It makes me so incredibly angry that this woman was basically abandoned by the U.K. healthcare system and left to die. Rest in peace, Amy. You deserved so much better from the NHS.

I have a friend who is currently on palliative care due to her extreme ED and how long she’s had it. Her organs are in failure and there’s nothing doctors can do at this point. I cannot explain how much her just being halfway to death breaks my heart. I’m not usually emotionally but even while typing this I’m tearing up. She has been posting on tiktok and she gets horrid comments even though she’s on her death bed, all of it hurts so much.

@Stopthisrightnow560

Жыл бұрын

Drop her link if you want and I'll go send her some love. Sending you some love too; it must be so hard being in this limbo. ❤

@ellisseliss3554

Жыл бұрын

Yes we will support her💜

@cutebunny6690

Жыл бұрын

Aw :( I am really sorry for your friend and I am sorry for you

@kathleengivant-taylor2277

Жыл бұрын

For starters iam so sorry too hear about ur friends advanced eating disorder and yes this could have been prevented had she received help early on. I feel awful for her family and friends cause there is nothing that can be done. Hope family and friends can find peace and healing at some point. I thankfully suffered from anorexia and bullimia and thank god every for my recovery as I was days away from death multiple times due too my eating disorders

@warum3952

Жыл бұрын

It's not that there's nothing doctors CAN do. It's that doctor's don't KNOW what to do, or they just don't care about patient with a "self-imposed, unnecessary disease". Even damaged organs can regenerate under the right care.

I can smell the bullies scuttling out of the sewers to say that she 'deserved it' for not reaching out for help and staying sick despite the help not being there in the first place

@ofherbsandaltars

Жыл бұрын

I swear, the lowest reach of scuttling cockroaches online has GOT to be the forum that specifically forms itself around mocking mentally ill people (usually girls) who are perceived to 'not be trying', meaning, apparently, that stoning them to death with cruel words and memes and bullshit is absolute A-ok. -_- Like...jeez. Of all the things to do with your time, and of all the people to direct your hate towards, yes, choose someone who's barely managing to keep their head above water as it is. Vile. Much as I love the internet, I so hate the way it's created gathering grounds for these fetid individuals, egging each other on to greater cruelty... :-/

@juliancalero8012

Жыл бұрын

@@ofherbsandaltars the internet is a tool and it's being abused

@Bexstarartist

Жыл бұрын

@@ofherbsandaltars like unapologetic? 😢😢

@We_Are_All_Vultures

Жыл бұрын

​@@Bexstarartistlike kiwi farms

@pickledragonrebel

Жыл бұрын

I don't have e an Ed but I've dealt with clinical depression for decades. Mental health and health care in general in canada is also in a dire condition. Covid has highlighted the deficiencies and fragility of health care systems in most countries. A terribly dangerous situation.....

Liquor faith also passed this week. She was 42 & in treatment & it wasn’t working. It was making her sick & she was too far gone. It’s so sad. She didn’t want to die either

oh dorian, I’m SO glad you are talking about this. im absolutely not in the headspace right now because i was a lover and supporter of amy for a while so I know this will break my right now, but I can’t even tell you how much I appreciate you having this conversation. her blood is unequivocally on their hands. I’ll revisit this another time, but so much love to you as always

Dorian, you're more intelligent than most of the so-called experts. Your channel will help more than most Dr visits. Blessings to you!

The fact that this story comes out of Wales, a historically Labourite nation that gave us Aneurin Bevan, is beyond scandalous and disgusting. Bechod.

@chickennugget3325

Жыл бұрын

There just is not enough money in the NHS right now (Ty tories) for so so many disorders, and yet remember when Theresa May promised more money for Mental Health services? Where?? Rest in peace Amy, dwi methru credu hon, ond ar yr un pryd, dwi'n gallu.. rhag cywilydd yr Llywodraeth DU.

@LotusesGalaxyOcean

Жыл бұрын

Let’s be honest and remember that flooding the country with immigrants is a part of the massive strain on the nhs. This is a major issue if you just check the number of people arriving per day and per year then it is very obvious.

@richardcrook2112

Жыл бұрын

Labour and Tory parties are both the same. There is not enough money to provide healthcare for the population. A population that is growing from people living longer and because of immigration. The taxes don't even begin to cover costs. It doesn't matter if some of the immigrants work for NHS they still need paying, with borrowed/printed money no less!

@amye6281

10 ай бұрын

I grew up in Wales and currently live in England (I’ve also received ED treatment in both places) the difference between nhs funding in general in these countries is stark. They both lack funding, but there is a healthcare emergency in Wales, it’s on the brink of collapse. England (esp London) will always look after itself first unfortunately.

As an American, this video was so good and I learned so much. I really don’t want the uk to become another US, like it seems like it’s becoming… please vote, people, and learn about who you are voting for and what they truly stand for. Not just what you hear from campaigns. REALLY look into who you are supporting to affect your daily life in legislation. Being an American, I can’t stress how important it is to vote and unveil who you’re voting for for who they truly are. Vote on the smaller scale too, that is really what causes change. If you vote locally and on a smaller scale, it affects how it turns out when it goes up the ladder… VOTE VOTE VOTE!!!

@phoebegee54

Жыл бұрын

Sadly I've been slowly losing my faith that the UK won't go down the same path over the last five years or so.

@Exorsizzle

Жыл бұрын

Just vote harder!!!!!!!!

@Dinnyeify

Жыл бұрын

Not only vote (ABSOLUTELY DO VOTE THO) but also raise awareness of societal issues, pressure the authorities to take action, participate in activism, protest if you can! Talk to people you know about politics and how they can help too ❤

@kidaria1333

9 ай бұрын

Votinh doesn't chanhe anythinh anymore since 20 years. All political parties are contolled by the same billionaire networks. This has nothing to do specificly with the tories and Brexit. Many countries are close to bancrupty since 2007/8 and now even the economical stronger ones vouching for the whole EU are crumbeling. This is why they cut so much social budget. The whole refugee miration with millions of people has a massiv impact on the social budget and housing market too. This is why people voted for Brexit and the tories.

An American woman here. I didn’t realize until recently, almost 30, how screwed up our healthcare is. I’m self employed so I pretty much have to re-evaluate and/or change my policy every year. This year I made sure my OBGYN was covered but little did I know that the blood work they did IN OFFICE was considered a different company and processed in a different lab and they billed me $1500 for it with no warning. Mom helped me repeal and get out of that but dang I gotta be more cautious next time… that’s insane. I’ve paid less for out of pocket blood work before. I had 10 or so vials taken for $250 and way more tests at a different location… Insane:

@ArtistCreek

10 ай бұрын

Helpful hint . My medical only covers 20% of labs so I find out what they want and rder them myself and pay out of pocket directly through quest or anylabtestnow. I just have the results faxed to my Dr. Tell the Dr you can't afford all the labs and they will modify what they actually need and not just order them because it's standard. My last ones were $129 and had I done them at the clinic my Dr is at it would have been $600

@youretoopolitical8611

10 ай бұрын

Even better- don't go to a gyno. Being a woman is not a disease.

@ovgem

8 ай бұрын

@@youretoopolitical8611 your health down there is very important, especially if you have pcos, planning to get pregnant, etc

I loved Amy’s honest posts. We spoke on TikTok a few times and I was devastated to hear about her passing. 😞

This hurts so much to hear. I'm Swedish, and one week ago I finished free of charge outpatient CBT-E for my atypical (yes, ATYPICAL, not even in a horrible physical condition). It was a group therapy that lasted for 20 weeks, and as patients we were taken so well care of. I wish that for absolutely everyone suffering from an ED. Getting healthy by yourself is incredibly difficult if even possible, and you should be able to get the treatment you need without worrying about having the money for it.

A similar thing is happening to Medicare (NHS equivalent) in Australia. We used to say you had to be dying to get treatment but it seems as if even that isn't good enough these days. 😣 Rest in peace, Amy, and I do mean rest. You deserve that much at least. ❤

I've been following that woman for the past 2 years, she was so sweet, so kind. She did not deserve this. My dad only just moved from his job as a mental health nurse for patients with eating disorders and let me tell you, the funding was awful. There is half the amount of staff needed on the job at any one time. They only have enough people to help people who are quite literally dying, people who are months away from the point of no return. The government needs to do something about this, they need to fund the NHS more point. blank. period.

@Bexstarartist

Жыл бұрын

I don’t believe there is an excuse for it in this 21st century. They have plenty of money to spend on nonsense. 😢

@Call-me-Al

Жыл бұрын

They're intentionally underfunding it, because there is a lot of money in being the ones who privatize healthcare...

Unless a “professional” has suffered from an ED, I always feel that they can’t possibly understand how controlling they are. They just can’t grasp it or understand. It is all consuming and so awful to live in and through. I wish they understood more about the stress and anxiety. The paranoia. The fear. They never will. It breaks my heart.

@marjol3in

Жыл бұрын

True. They don't understand

@hannahcollardgray4448

11 ай бұрын

So true, the whole idea that ‘specialists’ say ‘I understand’ when they have studied for a while but have no lived experience really annoys me. How can you empathise properly with no experience of your own?

@tianna1116

10 ай бұрын

I’m studying to be a psychologist and though I’m not done with my studies, I spend a LOT of time listening to podcasts/ KZread videos and trying to truly understand different disorders. ED’s are one I had very little understanding of, but in the last couple years I have a better grasp. I still don’t truly KNOW what it’s like or exactly what would help, but I’m hoping to learn that before I start treating people

@flowerpower4065

10 ай бұрын

I feel the same about drug counselors who have never did drugs, there is no way they could ever relate or understand addiction.

@hyacinna

10 ай бұрын

​@@hannahcollardgray4448that is what is called empathy, humans are probably the best creatures at it

I went through her TikTok to get the full story before I make any judgements on the situation… and it broke my heart Her body had problems with digesting food and ‘ejecting’ it She tried to eat more, but suffered with Refeeding Syndrome I understand if the doctors don’t know how to treat her because they are not qualified- but I just do not understand why she was rejected a referral for treatment that could potentially save her life She was ready and willing to receive the help that she needed- she was literally begging for it The “you can’t help people that don’t want it” just does not apply here My deepest condolences to her loved ones Rest in Peace, Amy

This is heart breaking. This isn’t ok. I can’t imagine the suffering she endured, and what her family are going through now. Another KZreadr Angelique also passed away a week ago. She was desperate to get well too. We need to do better.

It sounds like things are turning into the US where you live. My small intestine perforated in 2020 due to Crohn’s. I woke up in the worst pain of my life, with pain in my appendix area (there was about a 20 inch stretch of small and large intestine that was infected/inflamed) and a 104 F fever. I sat there for 2 days, with no visitation due to covid. I was in an overflow hallway so the times I was awake, I’d see people with a minor cough walk back themselves with a nurse. I’d later learn that our local hospital was getting pay outs from the states for cocos cases. In those two days, my intestine ruptured even more. At some point I called my husband saying I hadn’t seen a doctor. I thought I’d been there a few hrs. He told me it had been a day and a half. He called and complained. Several hrs later I was in surgery. Being the squeaky wheel does help. Anyway, I woke up about 2.5 days later after 3 major surgeries, at least two flat lines, a coma, and half a million in debt. I woke up without the ability to walk since the infection damaged my nervous system. I’ve gotten back that ability now, but I still have nerve issues. Luckily I got approved for Medicaid and disability. I was actually fast tracked because my case was a statistical improbability. I was declared the worst case of Crohn’s for someone my age (30 at the time) that the top GI doc in the state (and top 5 in the country) had ever seen. It still took 6 months. Medicaid covered my hospital bills retroactively, thank the gods. The first thing I said when I woke up was ‘how the fuck am I supposed to pay for this,’ and then I asked to be put back in the coma until something changed.

@compulsiverambler1352

10 ай бұрын

The problem is going to keep getting worse because covid infections have made and continue to make people long-term sicker, and repeat infections are continuing unmitigated and unreported on and uncared about despite them increasing the chance of complications such as permanently weakened immune systems and autoimmune diseases. Treatment for people with traumatisingly bad, PTSD-inducing covid infections were based on keeping covid patients out of hospital if at all possible, to reduce the spread, it was awful, and that is going to happen again as the healthcare systems around the world strain under the weight of a covid-weakened population that is getting sicker and sicker in a long-term way due to the long-term effects of infections and repeat infections on the body. People with covid and O2 saturations below 85% were begging for oxygen and treatment and being refused, and in the UK somebody wasn't admitted to the hospital despite having an O2 saturation of 60%, they were just told to use their usual pressurised sleep apnea thing which isn't even suitable for covid respiratory problems, it's now known. So many people died at home because they couldn't get an ambulance to come inside when they called and said it was covid, nobody wanted covid patients in their hospitals if they could help it. A Canadian doctor said that she begged for help in a hospital and was told she wasn't eligible despite having had to stay awake for 3 days because she couldn't breathe automatically anymore and had to force every single breath and it felt like broken glass was inside her lungs. Covid patients had to meet criteria that go far beyond what people with other infections had to meet to go inpatient or get any support at all, from the fever to the O2 level to the delirium and signs of sepsis, it was insane. And still they won't install HEPA filters to prevent the spread, and still they won't give ANY public servicex announcements about the ways to minimise the chance that you'll get life-changing, hobby-ending, career-ending and relationship-ending Long Covid due to infections and reinfections, they just don't want people to know how devastating to your life it can be to go to work without a HEPA filter and catch covid because if people were faced with how horrendous it is and how little help there is if you're not rich, that they'd DEMAND employers use HEPA filters. It's going to be the death of civilisation, just give it another few generations, and the mass disability that results and the lack of help for ordinary people who become disabled, will collapse the economy like nothing before it, all because old people in charge of corporations didn't want people to demand they install HEPA filters and allow remote working to save future generations from the destruction of the healthcare system.

Hey Dorian, I'm so sorry to hear you weren't able to move to somewhere you could get treatment. I don't know if you watch Philosophy Tube, but she semi-recently made a video called something like: "I emailed my doctor 133 times/The failures of the NHS" and it was a fascinating, if depressing, look into the hierarchy of the NHS and how far it takes you to complain and complain and complain. I live in France, where we also have a pretty solid healthcare system, but as a disabled person, i've def seen the limits of it and where it fails people like me and you. You have my deepest compassion and empathy, and I hope that Amy has peace wherever she believed she'd go.

@Cat-tastrophee

Жыл бұрын

I kept thinking of Abby's video as well. It's maddening.

@marjol3in

Жыл бұрын

​@@Cat-tastrophee Abby who?

@tf7602

Жыл бұрын

​@@marjol3inAbigail from philosophy tube

thank you for mentioning amy.. im so hurt by her sudden death. it happened so quick and out of the blue as a warning to others with eds please get help sooner before you have the same fate😢 rest easy amy she was a sweet person . im glad i met her through tiktok and got to interact with her..she really made u feel like you existed and her comments were always super sweet and kind..

Lique faith also passed last Sunday from all the same things, she lived in the Netherlands, she also wanted to live, lique faith has a KZread channel

@Ella-kn9qd

Жыл бұрын

My first comment was deleted I don't know what words it wouldn't let me say so I tried to reword it

@Ella-kn9qd

Жыл бұрын

Lique was 42 , she had just finally gotten into treatment but they weren't helping her and she passed in the hospital

@skaio.5279

Жыл бұрын

Oh no what??? I remember having her videos recommended some time ago, I can't even imagine that she's dead now ...

@billieeilish4735

Жыл бұрын

wait WHAT NOOO

@malamaurer4043

Жыл бұрын

😢💔😭

This is so hurtful..In Italy, the health system is just as tragic as in the UK unfortunately.

@maya07_11

Жыл бұрын

even worse

THE STUFF ABOUT CAMHS IS TRUE!! I haven't gone there for ED, but for an autism diagnosis, I also went there for trying to (heavy topic right here) trying to throw myself off something which would have yeah.. and you know what they said? your moms not very tall she could've easily held you back.. they dismissed me, its the whole you're not sick enough mentality, its horrific

@Stopthisrightnow560

Жыл бұрын

Oh, that's so fucked up. I'm so sorry.❤

@PuffTastic

Жыл бұрын

@@Stopthisrightnow560 I'm going to try move camhs workers soon when I go to college so hopefully I'll have a better experience

@sarahgibbons9737

Жыл бұрын

How dare they 😞😢 not only is it bad enough a service but they make those ridiculous statements too. I'm sorry. I'm so sorry.

@FronteirWolf

5 ай бұрын

Yep sounds similar to what someone in adult services said when my mum told them that she was having to lock my clothes up so I couldn't get them to do you know what. She said "if that keeps you safe, keep going" My mum was also told I was only attention seeking, so she didn't need to do suicide watch and crisis tried to discharge me the day after an attempt or something like that. My dad wasn't taking that though.

Wales not having a ED specialist is mostly bc we’re largely under English control with our health care and to an extent education. We don’t get much control where our health funding goes and are often second priority (if that) to English MP’s who could actually get smth done.

@sdwp91

Жыл бұрын

To think that the UK wastes money with the royalty and yet the people don't have adequate Health care is infuriating

@okayyish

Жыл бұрын

Scotland also lacks mental health services, and the ones we do have are terrible, the NHS only cares about England and puts all their funding there :/

@Moocow2003

Жыл бұрын

Not even. Just the SOUTH of England. And if you live there, it's still easy to fall through the cracks.

@youretoopolitical8611

10 ай бұрын

The French solved that in 1789@@sdwp91

@Woodman-Spare-that-tree

9 ай бұрын

Actually Wales gets free prescriptions and England doesn’t. So you are NOT “under English control”.

This happened to my sister. She was told not bad enough even tho she was a walking skeleton. I think anymore loss she would die. This was 20 yrs ago. So its always been like this. I cant remember now the weight they said she had to get to but it was crazy. I think she was half a stone to much. Thankfully she made a recovery on her own. Its a stupid policy anyway as the best way to treat an eating disorder successfully is to catch it quick

i was told by a doctor while in a mental stay to "lose a few more pounds and then we'll talk" bc i was technically at a 'healthy' weight for my height, even though i had dropped nearly 80 lbs and was being reported by wardmates for not eating. it's insanely disheartening and only makes people spiral harder. its so difficult to be taken seriously and to find treatment that actually bothers to tackle what needs tackling.

@cutebunny6690

Жыл бұрын

Wtf...I'm so sorry this happened

My heart feels heavy for her, I hope she is at peace where she is or is reborn a new. I’m glad you spoke up about this.

I was on the CAHMS waiting list for two years off of the back of multiple refused referrals and only getting on it once they emergency assessed me after a hospital visit, after those two years they sent me a letter asking if I wanted to be taken off of the list. I've seen it a lot of times, often CAMHS waits for people to age out of the service rather than giving you any treatment, because once you age out you are no longer their issue. The waiting times are meant to be a matter of months, rather than a matter of years. This is considering that I live in the South but not in a major city. The state of the NHS as it currently is cannot continue

I wish I'd known her channel sooner, but watching her content now is honestly helping me so much. Im on the edge of relapsing and its such a huge help to remind me this is NOT what I want.

@MissLizzy882

Жыл бұрын

@LucyDaviess Thank you so much, lovely person!! 💖💖💖 I really appreciate the encouragement!

@andreaodonnell2159

Жыл бұрын

I hope you find the strength to recover. Life is worth so much more x sending ❤

Your makeup is devastatingly beautiful in this video. Great video.

I miss her dearly. I couldn’t even bear to watch this video until right now. My heart aches so badly for her. She wanted life so bad. I hope her soul rests peacefully. 💔

And i thought germany was bad. I work in a therapist clinic as a Minijobber (I check documents, patient files, help with accounting etc) and I also man the phone. So many people call and we just have no open spaces. Everytime a new therapist starts or someone has a space open we open our waiting list back up and it’s just a shitshow for me and my colleagues. To have to tell people that come from inpatient treatment or desperately need a therapist that the soonest appointment is months out is heartbreaking. I myself needed help and I’ve always been lucky to get it quite quickly but if I had had to wait my problems would have become close to unfixable. How many of these people would have needed just a few appointments but due to the waiting now need longterm care?

20:01 what you’re saying about wartime protocol- this might not be the case with my situation, but i feel like you’d understand my feelings about this more than my therapist did. i’m 17, currently on the waiting list for an ASD assessment, and when my therapist chased up my referral they told her i was being “prioritised” because i’m already under the ED team and receiving help for mh. this was great news to the people around me but it makes me feel sick, imagine all the people who have zero support for their mh in the first place and have been shoved to the bottom of the waiting list below people who already have some support. it may or may not be related to the war time protocol thing, but you talking about that made me think of this

@pendafen7405

Жыл бұрын

You're very fortunate to have been fasttracked for ASD assessment, and to be so young getting it. I'm so relieved, excited and thrilled for you! Many people (including myself) wait literal years into adulthood for the same. As Dorian says, system is congested and broken, to say the least.

@marjol3in

Жыл бұрын

I was prioritised too due to severe bulimia. But I was also declined, because there aren't enough therapists available. So no help. 😢

In Canada where we also have public health care we have similar problems. You have to be among the “sickest” to get hospitalized care. But there are very few beds in these programs and some people wait up to a year. The older you are and longer you’ve been I’ll, the worst it is. You are then medically stabilized, fed, and churned out. Private clinics to do the deeper work are outrageously expensive and also have long wait lists. The wild part is if you are “sick enough“ to need inpatient care, you are going to be “too sick” to get private residential care. People will die waiting without help even when they desperately want it here too.

@MusikGirl23

Жыл бұрын

Yeah. I’m in a western province. I got funding, after ‘failing’ my home province’s services, to go to residential in Ontario. But I had to suffer through my province’s horrible care that left me with a lot of trauma first…and now my province doesn’t even send out of province now…thankfully, I’ve been in recovery almost 4 years, and have no intention of going back into anorexia. And TBH, one of the reasons I have no intention is because my home hospital is so horrible.

@missknight9

Жыл бұрын

@@MusikGirl23 I’m so sorry you were put through that. As privileged as I know I am for the multiple rounds of life saving treatment I’ve received, it has come at a high cost. Medical trauma seems like something that shouldn’t be possible in modern medicine, but the treatment I received the last few years has made me terrified to step foot near hospital even as a visitor. Which is a problem with the ED ravaged body I’m left with. It’s definitely been a motivator to keep me working towards recovery, but I know that if I do relapse one more time I will refuse treatment. I hope no one else ever has to experience this, and it’s devastating to know it’s still happening.

@MusikGirl23

Жыл бұрын

@@missknight9 yeah. I’ve already said that if I relapse in any significant way, there is no way I am doing inpatient or day programming here in my province. I’d only *maybe* consent to something called nutrition clinic, but likely not even that. I had to heal a lot of trauma from my home province while in the out of province program. And there’s still some I’m still working on in therapy-almost five years later. Treatment *should*not*cause*trauma*!!!!

@ladidaohoh3168

9 ай бұрын

In Canada it seems really bad in the cities, I live in a small town in Canada and our healthcare fingers crossed is still quite good.

I'm in Hampshire southern England and I've almost finished my... strange experience with an eating disorder service called April House... I've come out of it feeling ultimately worse!! After a year on a waiting list being sick several times due to huge drops in weight. I've lost even more weight since starting therapy with them and they've now told me I should 'look online for some more casual resources because you aren't ready for treatment' . Can anyone else relate to this experience?? I've honestly tried taking my own life within the past couple days since hearing this news and I can't help but feel exactly how she is feeling. I'm very grateful I wasn't charged for that experience because lord would I feel a whole lot worse right now.

@zebnemma

Жыл бұрын

I have a plethora of mental illnesses and such myself but not ED(I has ED in my teens but I kinda stopped it on my own after 2 years). Looking for online help might actually not be as crazy as you think it sounds. I myself went to therapists on and off for years but for me it never really fixed the issues long term, more like putting band-aid on in the moment for a gushing wound. Then last year I found that one can signup for cognitive behavior therapy but online(for different mental stuff). And there it teaches you more in depth about the ins and outs of your condition so you understand the situation better and can self scrutinize your own behaviors and then once you become more aware of your "triggers" or behaviors you can start to change it and it teaches you to have a different mindset about it. And in the course there's homework after each chapter that says you have to write up a plan on things you are going to do instead of your previous behaviors. And then after you've done the things you write how it felt and if you were scared or anxious to break your behaviors etc... And then you send it in to the therapist that is assigned to you and they respond with some commentary and encourages you for doing great progress and conquering your fears etc. I found that this type of online help has helped me a billion time more then sitting wasting 1 hour of my life at the psychologists office. I don't know why but it was just never effective for me at all. I needed in depth information so I could do self help, going in depth like that is probably not so easy if you only have an hour and you can't remember everything at the top of your head... But also I'm sorry to hear about your suicide attempt. :( I've been there done that for many years myself being on and off about that. You think you might be a hopeless case but I thought so about myself too but if I can change then so can anyone!! If you are willing to put in sweat, blood and tears and grab your demons by the balls. If you can be brave like that you can get better, one day at a time. But also remember that this change is going to be slow, very slow. One day at a time. Keep doing things that terrify you, challenge your perceptions and get better self confidence once you realize "wow I have forced myself to do the things that make me uncomfortable so much lately that I'm starting to get used to it and I don't feel as scared anymore". And you might also realize your previous mindset was not a "truth" as you thought. It was a skewed perception by your own mind, which you have created from years and years of mental illness, it will alter your mind over time to feel negative about everything. You overcome your challenges like that.

@carolcyr8553

Жыл бұрын

I'm sorry to read that you've tried taking your own life. I only wish I knew what to say to help. All I can say is that there are lots of good people out there who care. Another thing I wanted to say is when mental health practitioners say you "aren't ready for treatment," it's bullshit. What it really means is that they don't have the treatment available that would help you right now, right where you are. "Not ready for treatment' just means that they are incompetent. Or underfunded, as I guess is the case in England.

@cemeterygxtes

Жыл бұрын

I’m in Hampshire too and healthcare in general is abysmal, considering the county is apparently known for being wealthy. I’m from a very deprived council estate, surrounded by richer areas, and the divide here is SO obvious. I was lucky enough to access counselling for social anxiety/agoraphobia, but it didn’t really do anything. Keep in mind, my fear of leaving the house was so bad that I almost failed my GCSEs, had no support from my school and lost all of my friends. I had to leave my house to get counselling which just made me feel worse/like a failure. It was group counselling as well, so I was agoraphobic and having to share my personal business in front of other teenagers… lol

@saffrondeo5429

Жыл бұрын

April house! Yikes I went through that service, safe to say it was a place that did not help me at all !!

@elizabthharris6741

Жыл бұрын

Please keep fighting. Stupidity can't last forever. I hope. But the US is this ad. They turn you worse, keep you sick to keep you in the system. Keep your file coming back. Cause they get paid every time you come into the system at these rehabs and specialty hospitals.

Yeah, here in Germany the health care systems on the same state like the NHS. It took me 7 years to find a specialist for my Dissociative Disorder. Now I found one, turns out I will need the approved therapy sessions for the damage done by beeing not helped for 7 years in an acute state. When thats done, Im back to state zero with no help again, cause the health care system then says you have to wait for 2 years to get new therapy sessions. And by the way, Im walking around with a broken food that wont heal and cannot find someone that is interested to take care of a complicated case. Even me will have to look for new concepts of thinking to deal with that.

Amy was a beautiful soul and as someone who lives in wales and is in ed recovery being in wales is terrifying , people either end up with no treatment or they go thriigh a loop of admission to general and or acute psych wards and then being discharched as "being admitted is making you worse " qhen in reality the person would be getting worse in or out of hospital but they dont have the training to deal with ed's a vwry close friend of mine uses an ng to keep hydrated and get what little nutrition her ed willl allow and when she went to acute they insisted she remove her ng even tho its the only way she can get anyting in they woild give her ensure/fortisip drinks and just walk away thus she didnt have any of thwm and woild (ill just say use behaviours to not givee ideas to younger viewers) but she didnt drink them., then she would be discharged as she "was not getting better" who can gwt better in an acute ward with no trianing no meal support and not getting blood tests or anything either (she wouldnt allow them to weigh hwr for obv reasons ) but yea saying the acute ward issnt helping so home you go when your gwtting worse there what do they expect ans then she would be in and out of general for hwart aruthmias and poor kidney function etc and again discharge cauae "we cant help we dont even have mental health training lwt alone ed training " her outpatient team said "if you were in england youd be in an edu" and it angers me so mich especually as she lives a 3 min walk from the severn bridge so if she lived a 10 mon drive away she woild be in england but instead she lives in wales being told she would get the right help if she lived ever so slighly firther away in the right direction Im terified i will loose her Amy was an amazing pwrson who despite her own suffering always willing to help other people who followed her and it makes me so sad and angry that she wanted so so bad to get hwlp to get bettwr to live her life and she couldnt get it and that despite all the findraising and all the will in the world to get help and get on track she passed before that could happen i remmeber her last video and everyone on there urging her so so much to go to hospital asap as she was so so poorly but shenwas so tired and it was so late and she just wanted to sleep and she sadly did not wake up She will be so so verry missed by the ed community and mental health community and what tou said about treating the most likley to recover ive seen that they told my friend they wont send her to an edu as shes been ill too long and it wont work , its disgisting And welsh assembly government ? Shame on you ,shame on you

i used to follow her... i stopped using tiktok and i stopped seeing updates on her, but i did write down one of her poems in my notes app. hearing she's passed is heartbreaking...

I’ve been discharged from ED services multiple times due to not “engaging” properly or not making progress, or exhausting the treatments available (which is bull, there were more options). It’s completely fkn backwards logic and it is. Very. Dangerous. Edit: I’m in an area that DOES have ED treatment, I literally live a 15-minute walk away from the day care/outpatient centre. And they still won’t take me on as a patient because I’m currently medically stable (in the past I have been very much “sicker”).

Im from a small town in Wales, and have been on a waiting list for 7 years for PTSD, its terrible down here..

she was truly an angel. she was so grateful for the support, comments and gifts she was sent. i have been following her for ages and i was devastated by the news. may she rest in peace ❤️

I'm very lucky that I live in austria, where the mental health care is actually really good. I have been in and out of the psych ward for most of my adult life, I have been to rehab and I take appropriate medication for my diagnosis (not an eating disorder) It's terrifying that some countries treat mentally (and physically) ill people like that

@warum3952

Жыл бұрын

If you have been "in and out of the psych ward" for most of your adult life, it doesn't sound like mental health care is any good. Why have you not healed? Because psych meds are not curative, they keep you in a state of sickness.

@luisehafenscher

Жыл бұрын

@@warum3952 I get why you'd ask that but with my diagnoses and comorbidities it's really hard to fully recover. But they're always very understanding and caring. I haven't actually been there in two years because the last time (I was there for almost 10 weeks in 2021) was actually really helpful!

@warum3952

Жыл бұрын

@@luisehafenscher Ich hatte auch eine lange Liste an Diagnosen und Komorbiditäten. Ich kann den Pessimismus nachvollziehen, es ist aber mehr möglich als du dir vorstellen kannst. Ich habe damals auch nicht daran geglaubt, dass es jemals besser werden würde, das ist ein Teil der "Krankheit".

@luisehafenscher

Жыл бұрын

@@warum3952 Ich glaub auch nicht daran dass es nie besser wird, ich tu außerhalb des Krankenhauses viel dafür. Aber ich bin extrem dankbar dass ich über all die Jahre die Psychiatrie hatte, die mich immer wieder aufgefangen hat. Ich danke dir für deine netten Worte! Es ist schön zu sehen, dass man nicht allein auf der Welt ist

@warum3952

Жыл бұрын

@@luisehafenscher Trotz meiner Kritik am medizinischen System war ich auch dankbar für stationäre Aufenthalte, weil ich sonst überhaupt keine anderen Möglichkeiten hatte, in eine andere Umgebung und unter Menschen zu kommen.

In London the NHS chucks people out of Eating Disorder clinics if their mental health issues are complex. I pretty much lost the same amount as what I weighed at my lowest weight from my highest weight (in nine months) -a whole person's worth. I ended up at an outpatient place to avoid the dangers of refeeding syndrome. Some of it was useful but I was basically not given any outpatient ED therapy because I'm autistic with past trauma. They gave me occupational therapy though. I got discharged because I was deemed 'too complex'. And ended up underweight... At my old underweight set point. Luckily I didn't want to get down to the silly low weight I was in my early 20s. But probably a lot of other people with EDs who have complex mental health issues would keep plummeting, getting sectionned and in a revolving door situation of being fattened up and then starving themselves extremely, with no psychological support, just being fattened up in a locked room, and let out again to repeat. Yeah... And postcode lotteries too! Lots of boroughs/ NHS community commissioning groups simply don't have adult ED services locally. London can be a postcode lottery too in that regard. Best I can do on my own really is not get any worse. As for the cost of food with the cost of living crisis, gaining weight is expensive too. When people get referred out of borough too - that's really difficult for people who're autistic (like I am) too. What I encountered n the NHS (in London) was pretty mad to be honest. For some unfathomable reason the psychiatrist at the ED clinic seemed to think that wanting to be skinny is going to magically go away if I'm forced to talk about every trauma I've been through - but ED thoughts run deeper and are more pervasive than that. In the end I bought a MANTRA therapy textbook to try and take some of that in... On my own! Hopefully so I don't relapse into being much worse than I am now... But my mental health is very tenuous. Hope you are feeling OK right now x.

@Moocow2003

Жыл бұрын

FUCK you're the first person I've seen mention the cost of food! When you're already feeling guilty about seeing your weekly shop get more expensive, it hurts that food is getting prohibitively expensive too.

This hits close to home as an American. I'm fairly certain she would have gotten better treatment here which is shocking. My cousin died from this hopelessness of being told whether you live or die is not our problem and no doubt the depression and stress of having to have somebody die to live, which is hard on my family because of an immense sense of pride. If you can't afford your meds you have to find a way to get them, and they are not affordable, and he lost his job from being sick. My uncle also had a transplant and I was very happy he still fought tooth and nail, still felt entitled to his life, and he lived a full one.

@mrdad-zl9zl

Жыл бұрын

Yeah but it would be around the same price for the place she wanted to go. She received basic treatment but needed something more intensive which is very expensive. In the US the basic in patient care would price out many people.

When I heard she'd passed away I genuinely started crying. She was such a lovely person and doing such important work spreading awareness and I wished so hard that she would get receive the help she wanted and needed :(

Simply thanks, Dorian. Endless gratitude for all what you do. The text intro🙌🏻, this video that I haven' t still watched. Cannot imagine a better homage to Amy. 🧛🏻‍♀️🖤

Read the comments...Healthcare is awful around the world. It's time to stop Big Business from running and ruining our lives. Things will only change for the better when we, the collective people, stand up and take back our human rights.

I'm stuck on someone wanting to move to America... Our mass shootings, healthcare, and the legal system are truly not worth it.

@pickledragonrebel

Жыл бұрын

The US is on the brink of losing democracy. It's terrifying

@BackyardButcher

10 ай бұрын

Then LEAVE..

@jupiterbacchus4223

10 ай бұрын

@@BackyardButcher lol like we ain't trying.

@BackyardButcher

10 ай бұрын

@@jupiterbacchus4223 NGL.. I was going to shit post, but honestly, I think that humans as a species are proper f* ked.. no need to defect after all👍

I've read This is going to hurt by Adam Kay as preparation for my medical school interviews. I'm honestly scared to be joining the NHS with the way it is now, especially when it comes to mental health

CAMHS & adult services over the years have told me: “If you’re actually depressed you wouldn’t have happy days” “You’re probably depressed because you’re bisexual” “Are you trans because you want to impress your mum?” “Maybe you’re the reason you’re being bullied lets see how we can change that” “You’re not in a bad enough state to need that”

Hi Dorian, just FYI my treatment (USA) was comparatively priced. If you haven’t seen it, this is what the show Breaking Bad is about-a teacher who turns to a life of crime to pay for cancer bills.

The fact that the NHS is in such a mess yet it still sounds BETTER to me than the U.S. Healthcare system is astounding. I had to go to the hospital in Tennessee last weekend and I spent 10 hours in the waiting room vomiting and bleeding all over the floor begging for help only to be told to stop making a mess. Then they told me it was just an ovarian cyst and that it will go away on its own then left me with a massive bill. I haven't eaten in over a week, and I can't get out of bed due to the pain. My dad has been sneaking me IV meds from work to keep me hydrated and my mom has been trying to convince me to eat but I can't bring myself too because I'm so scared of the pain and vomiting.

thank you so so much for discussing this!! 💖

Thank you for that anecdote on imposter syndrome, it’s a very relatable symptom that can help people sympathise with eating disorders since it comes up in other illnesses. It’s one of the biggest reasons people don’t get help for their problems and professional gaslighting (aka GP’s) doesn’t help.

@Stopthisrightnow560

Жыл бұрын

Having realised I have AuDHD, I can relate to so many symptoms and it's really opened my eyes on how similar Anorexia is to just... Neurodivergence. It's troubling in that ND isn't to be cured, but there's gotta be somewhere we can go from that information.

This is so sad. I know the American healthcare system is probably not any better, but yikes it's so crazy to hear how the NHS handles things over there. Everyone who needs it should have access to help no matter what. I hope someday that will be a reality in every country! 💜

I’ve watched your videos for ever. I have an ED, which as I’ve aged I realized never really goes away. It’s just controlled. And your content helps sooo much. You have no idea 💜

Welsh person here. I think there needs to be far more awareness on how awful the mental health services are here so I really really really appreciate you talking about the issues. Without going into depth I've been trying to get help for my mental health for about ten years now and it's... It's been a battle and I'm most definitely losing. If it's not textbook anxiety and/or depression you're genuinely fucked. There's no other way to put it you're just fucked if you want help. Even if you go private by the sounds of things it's a 50/50 if they'll even be worth the money. It's sad but her story doesn't surprise me at all.

Breaks my heart that she fought so hard to live and to get her life back. Still so young, brokes my heart to think that if she had just had a chance she would have made it back to being healthy and happy. RIP 🖤. Btw Dorian you look beautiful today. That shade of lipstick, the elven tiara and the ripped black top, I need to copy your look 💜.

Feel like this deserves its own comment; If you live in the United States and you have to go to the hospital, Ask for a "Charity Care" application. It does not matter if you think you make too much, apply anyways. It is a percentage system, so even if you dont qualify for full coverage you can atleast get a percentage taken care of. Most hospitals are "non-profits" legally and in order to maintain that status, they HAVE to offer Charity Care and approve so many people otherwise they will lose their non-profit status. If you currently have hospital bills, call the financial department, and ask for an application. It can also be applied to past visits/bills.

@mrdad-zl9zl

Жыл бұрын

Is that available for intensive long term inpatient care though?

This is truly heartbreaking. Hopefully her legacy will lead to things improving for others somehow in the future. Thanks for making this video and sharing her story.💙

Thank you for the incredible awareness you bring to this subject!!! My daughter suffers with an ED, and it has not been easy. Listening to you speak so openly is truly inspirational!!! The syndrome of "not sick enough" is a global problem unfortunately. In South Africa, we have been sent all over the place, and 3 years down the road, we are no closer to tackling this problem than we were in the beginning. It is so sad to see her go from trying to throwing it all away, all because her doctors aren't even listening to her. You are inspiring to listen to. Everything is so clearly expressed. With such total openness and honesty. I learn so much from your work. You are awesome!!! The world needs more individuals like you who are willing to bust open the myths and spread the truth of the matter. Thank you for being such an inspiration to us ❤

Every time I hear about someone else dying from their ED my heart breaks into a thousand pieces. It's too real. RIP Amy, you deserved the world.

i live in greece and we also dont have an ed clinic in the whole country. from what research ive done we dont even have doctors that specialize in eds. it all falls down on general psychiatrists and unspecialised nutritionists which is incredibly infuriating

@Jkjoannaki

10 ай бұрын

Στο αιγινητειο έχουν

@Jkjoannaki

10 ай бұрын

Όχι μονο ψυχιατρους εξειδικευμενους, αλλά και νευροψυχολογους και κοινωνιολογους που έχουν πείρα στις διατροφικές διαταραχές

@grey8211

10 ай бұрын

@@Jkjoannaki χαίρομαι που το ακουω αλλά πριν κάποια χρόνια που εψαχνα δεν υπήρχε τίποτα. Τουλάχιστον υπάρχει κάποια προσπαθεια

Your commentary is very important and simply refreshing. Puts a whole new light on other ED ppl & even on my mental illness. Thank you ❤

Not sure how your channel was recommended to me, but I love your message and how you present it. We need more people like you in this world.

I just looked at her TikTok and I’m in tears. She was such a bright light and had so many goals and was fighting so hard. She deserved so much better

thank you for making this, dorian. much love

All that you’ve said about the NHS, I feed this so much. My sister has severe OCD and is frequently suicidal and has been told she is not stable enough for treatment, yet she has been given no help to get to a more stable place. She has been spiralling downwards for years now and it really does terrify me because I just don’t see any positive end. She has both physical and learning disabilities as well as the OCD, and was given night watch carers (in addition to the carers she needs during the day) for a while after our mum died, but that was taken away after a while even though she told them she still needed it. When she asked about getting the night watch care back after a serious self harm attempt she was told that since it was only a self harm attempt and not a suicide attempt then she didn’t need extra help. My partner and I are both quite severely disabled with conditions that effect us both physically and cognitively so there is a big limit on what we can do to help her other than me being there for her to talk to, and our dad is limited help. We have nobody else except carers so we don’t have any way to make ourselves heard. I do definitely feel like my sister is an example of the funding being put into someone who they think is more likely to get better as she has had treatment before that didn’t help (partially because they don’t tend to take into account and adjust to the fact that understanding what’s being said and expressing herself can be hard for her with her learning disability and autism), and she has attempted suicide several times so I guess they wouldn’t consider her a good survival chance. It’s awful. Also my partner and I are really afraid of the state of the NHS because we both have so many medical issues and are on benefits as we are both too sick to even get out of bed a lot of the time, let alone work, so we would be screwed without free healthcare. We talk sometimes about what we will do if we can’t get our medications anymore or if one of us gets ill enough that we needed to go to hospital (other than for things like injuries etc) now that we don’t feel we can trust anymore that we would get all the care needed in a hospital in a life or death situation. We have also been surviving for years with both of us getting only the amount of care I am assessed as needing (which is not really even enough to cover all my own needs) even though we both need care, because we have kept asking for my partner to be assessed by a social worker and we keep getting told that a referral will be put in for her to get an assessment, but nothing ever actually happens about it. We are lucky to have carers who are willing to unofficially help her while they are here for me, but that obviously means that we both go without a lot of our needs met. The assessments for how many care hours are granted get continually tighter too. Many things that were taken into account that a carer needed to help with aren’t any longer (like help grocery shopping, keeping the house clean, doing laundry, etc., all of which a bed bound person obviously can’t do) and at the same time, the assessment on whether you can afford to pay towards your care (as in give a monthly payment to social services for the care that they provide and agree that you need as an absolute basic level of care, not paying for extra or anything) gets harsher too, so they ask your full account of income and basic expenses (food, electricity, rent, etc.) then start asking what you spend your disability benefits on, and each thing you bought specifically for your disability they then start saying ‘did your doctor tell you to get this? No? Well then it doesn’t count’, like I’m going to waste my doctors time with everything I’m going to have to buy myself anyway! Or for things like braces, bandages and over the counter medication, ‘you should get that prescribed by your doctor so it doesn’t count’ even though my doctor has specifically told me that the NHS no longer allows him to prescribe them! Then they won’t count anything you can’t provide a receipt for either, so it ends up with almost nothing actually being taken into account. Don’t get me wrong, I’ve had some decent social workers, but they always write down what they actually want to do for me and then say ‘what we’ve asked for won’t get past the board, this lesser amount of help is what will probably actually get granted. I’ve also had some awful social workers who wanted to just give me agency care to come in for half an hour 3 times a day for long enough to make a sandwich (which I wouldn’t be able to eat) or even one who told me that since I’m bed bound then I don’t actually need care at all because I can’t do anything anyway so what would I need help with! Sorry for the long rant, but, yeah, the whole system is really broken and sucks lol

The postcode lottery where I live is so horrific I can’t even access my GP.

I haven't watched the whole video yet, and I imagine it will put me in a much more serious mood than I am now, but I just wanted to say that your eye makeup is absolutely gorgeous here! It looks like a sunset! And can I say that the matching eyebrows really work, too? It's one of my favorite looks that I've seen in your videos, Dorian. I wanted to comment and say that before the topic got so heavy it felt silly to write that.

I watched Amy a lot a while back, I can't believe she's passed away, I had no idea. may her soul rest in peace she was a comfort to many that needed it. She was always so kind and understanding in the comments. My deep condolences to any of the other people in her life that lost such a gold hearted person. 🕊

So thankful you're speaking about Amy, her case has never recieved the attention it deserves 😢

Thank you SO much for bringing awareness to these topics! I’ve been in recovery for years but I still very much appreciate these vids! I’ve been dealing with health issues and issues with my teeth due to my ED in the past and now I tell anyone I think it could benefit what it’s done to my body.. This situation is so sad… I’m sending her family and friends tons of love & light along with you and everyone here! ❤🧿

Im not even 2 minutes in, i know nothing about Amy at all except for her name at this point, but im already tearing up. Im 31, and 29 of those years i was very, very suicidal and had attempts. But i have never really wanted to die. Ive always fought it as hard as i can, my brain is just broken in that aspect. But i luckily did find help and the right meds through public healthcare in the us. I feel so sad that Amy wasn't taken care of. I hope i can make it through this video

I cried when I found out. She was such a pretty soul, she wanted to get better so bad... She just needed help. Its so unfair... rest in peace Amy

I’m happy you’ve given your insight into this, so important and educational. You articulated this so well

As your neighbor (I'm French), I sympathize a lot with the medical situation in your country because mine is only one step behind. We close entire services in hospitals because their are a shortage of nurses because our fucking government does want to pay these people a decent salary, but we have found billions of euros to send big guns in Ukraine. Several people are dead, basically by lack of care at the hospital. On a personal level, my father in law needed a surgery, this surgery was performed at 600 km of my domicile because it was the only neurological surgery block available (understand here "with nurses in it") and now we can't send him back. There is no place for him here, and he needs daily care. These politicians deserve a trial and not a fair one. So, a lot of sympathy over the see !😘 To finish on a positive note : your make up is astonishing in this video 🤩

@Stopthisrightnow560

Жыл бұрын

That's so fucked. I hope your dad is doing better. We're supposed to have publicly funded medical care too but even in Australia, your dad would've had to rely on a completely volunteer run Flying Doctors service and that's ridiculous.

It's annoying how the NHS is being overworked with staff being underpaid. The amount of "administrators" being hired in comparison to actual health professionals is alarming, the NHS is broken and the Government is doing nothing about it to restore it to its former glory. I'm a student paediatric nurse and I try to make sure every patient and family I see receive great care. I hope to get into child and adolescents mental health practitioner level just to prevent these things from happening. I really hope us as a country can band together to look after our health in a way that is better for both patients and professionals

thank you for covering her story, she was an absolutely wonderful soul (may she rest in peace)

It is very compassionate to make a video about this story. We need to spread the word. May she rest in peace, but may her struggle be recognized. We could all be her if we're unfortunate enough.

We are having the exact same problem with our health and mental health in NZ. Massive wait times for surgery, or treatment, leading to a big increase in patient aggression. I work in healthcare, and it's poorly paid, stressful and requires a lot of training. Lots of our nurses are heading to Aussie for better pay and conditions. It's a fucking mess.

Someone in authority needs to be taken to court over her death

Thank you for doing a video about her.... it broke my heart.