Teens With Incurable Conditions: How We Manage Our Health | On The Red Dot - Chronic - Part 2/4
15-year-old Jue Ming wants to take his first solo trip beyond his neighbourhood. But his parents have been resistant to the idea due to his Haemophilia B condition. How will Jue Ming convince his concerned parents to let him take that day trip?
At lunch, 13-year-old Constance bravely explains to her new schoolmates why she must prick her finger for blood before every meal. How do they respond when she reveals her Type 1 diabetes condition to her new friends?
Meanwhile, 18-year-old Dominic enjoys a strong bond with his parents and three siblings. However, 18-year-old Venetia faces challenges with loneliness and frustration as she perseveres to manage her treatment for POTS (Postural Tachycardia Syndrome) without significant emotional support from her parents.
00:00 Introduction
00:58 Jue Ming makes a case for a solo trip to town
04:19 Constance shows her friends her insulin device
06:11 Is haemophilia caused by genetics?
10:07 Venetia’s lonely medical journey
17:54 Home infusion for haemophilia B
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About On The Red Dot: CNA's weekly programme documents the stories of ordinary Singaporeans and celebrates their resilience, identity and sense of belonging.
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Пікірлер: 104
Felt very sorry for the boy who had to inject himself several times but failed. Seeing his grandma crying made it even very depressing! God bless him!
@kimjinjin2464
Ай бұрын
Praying for his recovery so that he doesn’t need to be injected anymore
@rzh3518
Ай бұрын
It’s so hard to watch it I had to pause multiple times! He is a strong boy and I really do hope he will be blessed.
@christinesung8884
Ай бұрын
I got teary when I saw his grandma crying😢
@mdpluv4427
Ай бұрын
They can hire a nurse just to inject the iv line so they dont need to go to the hospital if they have all the materials at home.
@vars1449
Ай бұрын
@@kimjinjin2464 There is literally the word incurable in the video title thus he is unable to recover.
I really sympathise with Venetia… I could never imagine having parents that show little care about my health, let alone having a medical condition that serious. Really wish her well and to have a strong will to overcome the obstacles ahead of her to pursue her dream. Nursing is such a tough job, especially with the manpower crunch, long hours and strenuous work, hopefully she is able to be in full control of her health.
@trozallasmith3173
Ай бұрын
I was in the same boat growing up and still am now that I'm 23. It was the toughest thing imaginable. I have seen pediatric cancer patients going through treatment alone. It is so sad
Love Jue Ming's positivity and his love and respect for his parents. I hope the home infusions get easier for him!
@random_hooman101
Ай бұрын
Knew him since p1 his sooo positive and joyful to be around
@MKiurinuRigold
Ай бұрын
The other kid who has POTS I feel so sorry for her Her parents … I don’t have words I don’t wish to say anything that will demean my humanity and dignity I hope the young girl will have concern and love from extended family members As well as care from others I don’t have any sisters so I find it in my heart to want to care for young girls
To go to the doctor without parents is quite a daunting experience especially at Venetia age. Venetia is all alone and reaching out to her parents.
CNA thanks for this series! I feel so sad for Venetia, the poor girl having to go through all of this. I wish her all the very best in her journey. and love Jue Ming's positivity!
Venetia, you are strong. You can get through this! Medical technology advancement is improving by leaps and bounds these days so don't give up! Shame on the parents for letting a young girl getting through this medical condition by herself.
Venetia be encouraged. I know someone with congential heart condition with no cure and working as a nurse for 20 odd years already. She also faced all ups and downs alone but she is still going strong. You can do it too! 💪🏻
Venetia is very unfortunate that she has a family that isn’t there to give her support.
@arsenal_84
Ай бұрын
Hope she can become a nurse if that's really something she js striving for. All the best ! Don't give up until you have try your best.
Venetia is a strong woman ❤ love and hugs go out to her
@vars1449
Ай бұрын
What is your definition of strong?
Jue Ming is adorable! He doesn't limit himself just because of his disease. Venetia broke my heart, I really feel that her parents shouldn't dismiss her condition like that. But I can feel that she has a tenacity that will last her through tough times as well! Jiayou all the kiddos here!
grandma crying broke my heart. If I may, insert the butterfly needle at a closer angle to the skin, I'd usually recommend 30 degrees ish. Near an open window when it's bright or with a powerful lamp will help so can see the veins better, hold the skin taut with the other hand before insertion. Perhaps there can be home care visits arranged for him so a nurse can assist, please ask the doctor if that's possible.
😢 all the kids are so brave. Wishing them all the best in managing their illness. My child has Type 1 diabetes too. Totally can relate to what they and their families are going through. May the gal with POTS be able to successfully proceed to work as a nurse.
Venetia 😢 oh man. Kiddos with chronic illnesses is just really heartbreaking to hear...
21:52, man.... feel sorry for the grandma seeing her son like that.
Venetia❤ You are strong and you will get through this! We are all rooting for you!
wtf @ venetia’s parents.. girl had to grow up so quick.
@ameliatan0309
Ай бұрын
some parents dont deserve to be parents. i'd be so happy and treasure her as my daughter.
@MKiurinuRigold
Ай бұрын
@@ameliatan0309 Love ❤your message That is very true
my brother also has hemophillia A and is very rare in Singapore, this series shows the reality of how the hidden conditions are also as important and not easy to go through everyday life but will try to make most of their life like a normal person. Is a condition for life. Thank you CNA for these series !
Venetia parents is the worst kind in the whole EARTH! who can show no concern (paying for test and not giving mental support is absolutely MENTAL); are they even her parents? no parents is as horrible as Venetia.. going through the medical journey without any mental support is typical from the older generation parenting method; paying for her medical insurance and medical bill is what parents should do as the parent but no mental support is sickening to any human being with emotions; imagine if Venetia is able to control her illness and neglect her parents cos there is bitter root in there which will manifest and the hurt the parents did will affect how she deals with her own parents
Respect for these brave young warriors seeing how they deal with their medical conditions with calm courage! Thank you CNA for another excellent documentary series!
Jue Ming and his family seem so lovely to be around. I, too have chronic conditions but it's not easy to be so positive! Jiayou! I'm encouraged by you
Ahhhh 😢 not just the children are so brave. So are their parents 😢😢❤❤❤
21:52 - It's great that Jue Ming can talk to his grandmother using Cantonese.
Stay strong and healthy, Venetia.
The reward for managing the chronic medical condition well is a normal life. Do persevere and at the same time enjoy what life has to offer.
Jue Ming is so strong and brave! Really respect him for his attitude and positive mindset!! Watching his Grandma crying really broke my heart! Really respect all these brave young warriors. Thanks CNA for the excellent documentary series.
Thank you CNA for another meaningful program, keep up the good work!
These kids have 1 thing in common. They have a very positive mindset which is very important if you are diagnosed with a lifelong chronic medical conditions.
@vars1449
Ай бұрын
Venetia literally said why me? this is the opposite of having a very positive mindset🤨
@Missy_Ai
Ай бұрын
@@vars1449Probably because she don’t have good emotional support throughout the journey
The boy!!!! He is so strong :( god bless take all their pain.
Made me cry too when I see his grandma cried.... 😢
What the heck !! Why Venetia’s parents are not concerned about their daughter ???
@matreen427
Ай бұрын
I have second thoughts on this. This is from her POV, Emotionally they may not be there, but from I see, minimally they supported her financially which medical bills in Singapore will bleed you dry. They could have just told her to find part time jobs to foot her own bill.
@katie54377
Ай бұрын
For real like wtf
@goop847
19 күн бұрын
@@matreen427the lack of emotional support makes it much much much more difficult to cope and live with it
@KatJade269
17 сағат бұрын
@@matreen427Really? 🤔
I have POTS, people don't realise how awful it is, add in other common comorbidities and life is often pretty miserable. All my life I haven't been taken seriously, I was told that I should shut up about pain because everyone has pain. When I was seriously ill as a result of pots and severe dehydration from a gluten allergy that gave me good poisoning type symptoms for 2_4 days family said I'd feel better if I moved or went for a walk!
Jue Ming, you are so brave.
加油 to all the kids in this series. Sending ❤ from Malaysia.
Should show alot of series like this
Can also engage speedoc etc (home care service) to help with the insertion of cannula instead of going to the A&E
Teen with pots here. I want to hug her😞
The angle of the needle insertion is wrong
God bless all of them.
I dont have POTS but do have something sybdrome like know as hyper mobility spectrum disorder (HSD). Recently sublux my knee and people does not get it why I fall easily due to joint laxity and instability. Alot of times the pain during no flares or injury is the worst so can relate. I am not diagnose with hEDS but have to jump to multiple specialist just to get them and understand, run special test which I requested to rule out things. Getting a diagnosis is still what I want as it saves time for me repeating to people.
加油 everyone of U!!!!!!!
I relate to Venetia
not to be a self diagnoser but im pretty sure i have pots,, like it comes and goes every few months and all my symptoms are exactly the same as venetia's but the only thing stopping me from getting an actual diagnosis is that im broke asf and my family 10/10 wouldnt support me at all LOL so idk what to do anymore
I was diagnosed with POTS in my second year of nursing school too. It’s not easy..
I should shut up when I want to complain . I hope they have an easier life moving forward .
God enjoying the show
Feel worse for the girl who’s parents didn’t believe her. She’s going to have a harder road without support. In the US you can get a trained animal to help you recognize the symptoms for POTS before you feel them and can help her live on her own. I hope that comes to her country
How come the girl still using the old method of pricking the finger instead of using a scan meter for checking blood glucose?
@btswiththemess3886
Ай бұрын
She might not like that method or she’s just used to the old method
@chloescafe1077
Ай бұрын
scan meter less accurate
Its a Fortune to be Normal, May Fate grant these kids an easier journey from here on......🙏
Constance is. Very pretty and if anyone bullies her for her condition I will find their location😊
How is Venetia managing her POTS symptoms whilst pursuing Nursing? She shared that her symptoms are triggered by positional changes such as bending down and standing up. Are there any accommodations made at work? Any memo from her main physician to advise what activities she should avoid at work? My assumption is that bedside nursing ie. in the wards may require tasks that involve positional changes, like transferring patients, emptying urine catheter bag hooked below the patient's bed, monitoring markings on chest drain, retrieving things etc. How is Venetia navigating these? Please don't get me wrong. I believe NUS ran medical checks for prospective students and reached the decision that she is a suitable candidate. Just curious how she's managing her nursing duties with her condition.
@Missy_Ai
Ай бұрын
Nurses are not found merely in wards. There are nurses doing counselling or research too.
@ashley8980
Ай бұрын
@@Missy_Ai She's still in uni (according to part 1). It is compulsory to undergo attachments in the wards as part of the nursing curriculum.
@Missy_Ai
Ай бұрын
@@ashley8980 Bedside nursing expected from student nurses are different from registered nurses. There are tasks they cannot do.
Parents of Venetia, make sure you stay healthy else no one will take care of you when you are sick and old. So cold and heartless. Should not have became parents at all in the first place. Thinks you value face 面子 more 😠
Should get some professional training for his home infusion
jue ming is in wsc!?!
PAP is obviously the only responsible and caring party in s'pore.❤❤
^^ Hi Venetia Hope to be able to meet you in real life in the future ❤ Hopefully we might bump into one another some day
I wish all the best to venetia (on a side note: Maybe she should join the pharmacy profession instead. Pharmacy can tell you how a little pill or injection will save someone's life. They also do less heavy lifting...aside from cartons. :>)
SDP’s healthcare plan is a total affront to the current practise of commercialization of healthcare in Singapore.
“Healthcare is a need and not a commodity,” said Dr. Gomez, to drive home the point that for-profit healthcare systems have failed to support citizens in the fringes of our society.
@jer2911.L
Ай бұрын
Can Dr. Gomez really sponsor all the poor people, or is it just a CON.
Paul Tambyah proposal intends to provide financial coverage for “compulsory basic health, accident and pregnancy” for all Singaporeans and permanent residents residing in Singapore for more than six months annually.
@jer2911.L
Ай бұрын
Who is Paul Tambyah? Is he that RICH to provide financial coverage for Singaporeans. Please don't SCAM us.
Asian Parents: "T1DM? Why not Type 2????".
@kimjinjin2464
Ай бұрын
Type two is due to one’s diet. It’s something that is non-genetic
@d00mch1ld
Ай бұрын
@@kimjinjin2464 Type 2 DM is caused by both genetic and environmental exposures.
@Missy_Ai
Ай бұрын
Type 1 is pancreas not producing insulin at all. Type 2 is pancreas not producing enough insulin.
@d00mch1ld
Ай бұрын
@@Missy_Ai not entirely correct. Both conditions are where insulin is not having the desired effect (insensitivity to insulin). T2DM, to the contrary is insulin insensitivity, so there is plenty of insulin around. Just that it isn’t having the same effect as it use to, or you need more of it to have the desired effect.
@Missy_Ai
Ай бұрын
@@d00mch1ld Where you get that theory? Mine is from medical textbook though
Lol Venetia parents. Shame on u!!!!!
what kind of maniacs eat rice with a fork
he so young why the white hair???
@Chels-fl5hf
Ай бұрын
Most likely from his blood condition. Lack of certain vitamins and minerals, such as vitamin B12, iron, and copper, can affect melanin production and contribute to premature graying.
@ColouredPixels
Ай бұрын
@@Chels-fl5hf interesting!
Venetia gives weird vibes. liar kind of vibes.
For the catheter first there's a lot of great videos on how.to.do it successfully but stay low and straight. Practice on small rubber tubes under banana skin or clothes! I wish the girl with POTS success with her life, she will find support with friends who can be family.
The angle of insertion should be less than 30 degrees with the butterfly