One of the best explanations so far! All the questions in my brain were answered ❤

@SotonbrainhubUk1

2 ай бұрын

🥰🥰🥰

I like ur fast presentation , u dont repeat , and the information moving smoothly gently to the memory

I am a nurse with a long, segmented syringomyelia. This has been the best explanation I have come across about how symptoms are caused. Thank you.

@SotonbrainhubUk1

Жыл бұрын

Thanks so much

i cant concentrate on what youre saying bc your voice is too relaxing!!🤣🤣🤣

@hafsams3220

4 жыл бұрын

going through the same situation!

@missamande805

3 жыл бұрын

Same here!!,🤣

Fantastic video! Would be useful to know about potential motor symptoms. Thank you.

short & sweet, thank you sir

This is not completely accurate. I have severe permanent damage from 3 large syrnixes in the cervical spine. Permanent pain, loss of temperature and pressure sensation *unilaterally* in a cape-like presentation of my left upper body. Trunk to the bottom of my face, left breast all the way down left arm. Concentrated damage in my 3 outermost left fingers and especially concentrated in my left scapula/subscapula. I had an especially severe case and never regained motor function or sensation after decompression surgery 16 years ago. I'm not a scientist, but I wanted to chime in and say that it is not always a bilateral presentation. Thank you for the video.

greatly explained thank you very much

Thank you so much! It was really helpful.

This has told me more clear than my doctors

Excellent explanation, many thanks. I would add that syringomyelia is quite rare, affects both men and women the same and tends to present in the 30s or 40s.

Very helpful and informative

Great and considering video

Thank you so much .

Great video

Thank u...informative video

I have it spread across a few of my lower thoracic. Symptoms seems to be very alike except that I am affected in my legs and feet rather than my upper body, and as a result I have quite a bit of problems with balance and sometimes even walking.

thanks man,,,,,

Nice explanation of the symptoms. Having this at the C6 level I can add tingling/numbness of fingertips and toes as well as pain between shoulder blades and heart. Long walks, physiotherapy with rubber bands, swimming backward and sitting on gymnastic ball instead of chair at work, using small roll behind neck while sleeping instead of pillowcase; are all helpful simple therapies. Controversial and questionable, I have also tried to elevate salt consumption, which brings higher risks of high blood pressure but could draw liquids from syrinx into bloodstream without operation. Hopefully allowing syrinx to collapse upon itself to have a chance to heal. Again "saline" therapy is controversial but seems to have helped. So far I could postpone surgery.

@SotonbrainhubUk1

6 жыл бұрын

Thanks for the comment. I really hope the therapy works for you. We use these videos to primarily educate medical students about the relevant clinical anatomy. Thank you for sharing your story and we wish you well.

@kerryrose1428

6 жыл бұрын

Muuip could you give me a run down of your first symptoms and how yours was discovered. I have just been given a possible diagnosis of a Syrinx and just had MRI done and now being sent to Neurology about diagnosis. I've had back problems for many years and had a decompression for Cauda Equina Syndrome about for years ago. Trying to find if my symptoms line up with those of other Syrinx sufferers as I don't get headaches that a lot of people say they do. I have numbness and pins and needles in fingers in both hands, my left leg is numb and my toes are numb with pins and needles, it only really affects my left lower limbs. I have an awful pain between the shoulder blade with a stiff neck that can be fine one day and the next I'm in extreme pain again. My lower back had always had pain. I get pins and needles in my face and the tip of my nose( this has only happened a few times) I have woke up a few times at night and can't feel or move my arms and hands, and the dizzy spells are getting worse. I'm in the UK and our health service is at capacity so things don't move quick enough for a quick diagnosis, just wondering if you could shed some light. Kindest regards

@jc-sb3rb

6 жыл бұрын

you more than likely have a syrinx, prepare for that. stop googling, will just make you more anxious

@stephaniesilva5912

5 жыл бұрын

I heard water pills may work. Did this all work fro you? I found out I have a thin one c4-c7 from a injury that happened a few months ago I’m very scered

@homemagar3670

Жыл бұрын

Hello how are you doing now? How is your symptoms now?

THANKYOU!

Very helpful ❤

good presentation

Useful.

Amazing video with incredible illustration. What is the program that is used in these videos?

@SotonbrainhubUk1

6 жыл бұрын

Thanks! These are done using the sketches app.

@michaelhaddad968

6 жыл бұрын

Soton Brain Hub thank you!

excellent

banging video

I need a Doctor, my syrinx is T2-T10 in the thoracic area. Who do you recommend in the Texas area?

i was born with spina bifida myelomenigocele, Then a few years ago developed symptoms of arnold chiari malformation & a syrinx, i get the pressure headaches if im not careful & other random stuff but the one thing i'm wondering about is can any of those things cause weight loss, or muscle loss? i'm sure i'm losing one or the other but finding it difficult to find anywhere with weighing scales accessible by wheelchair so i can check, there is one place, the wheelchair centre but its shut for obvious reasons. its been 1 year since i last got weighed.

@markorollo.

2 жыл бұрын

@Hagen Meyer thanks for commenting, im finding there are so many symptoms of these conditions, just been looking into symptoms of something else ive been getting more strongly than usual lately.

I have a question do you know if syrinx’s cause seizures? Not the epileptic ones but like a absent or focal seizures or something like that … does anybody know

I’ve read that with syringomyelia you are supposed to avoid neck flexion. Can you provide reasoning for this?

T2-T6 right now not doing so good anyone know extra info

Great video:-):-) can you tell me best surgeon in the United states to treat this diseases??? Thank you

@ericmentzer8846

4 жыл бұрын

Dr.Welch Upenn philadelphia

@michaellui74

2 жыл бұрын

@@ericmentzer8846 thank you sorry so late

Please tell that surgery really works in Pakistan ??

I was not symptomatic when diagnosed I was seriously assaulted at work as a nurse and 11 months after the assault my shoulder wasn't healing so they did an MRI I have one at C3 at 10cm and two lower down in the T there are 5 cm each I was also diagnosed with trigeminal schwannoma in meckels cave, on the brain stem and entwining into my cerebellum Im the only patient in my state with these two rare conditions My Drs have not seen the two conditions together before They have seen them separately They hav

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My mother has lost the sensation of hot/cold in her right hand, is this the symptom of SM ? Also she experiences severe pain around the back & rare neck section ! Help please

@lydiademarek

2 жыл бұрын

Probably just take her to see a doctor to start with @abhizxpixel