I just found your channel after going to the doctor this past Friday. He mentioned POTS to me and until then, I had never heard of it. I went home immediately after and started doing research. I'm 43 years old and have been trying to find an answer for over 30 years. Not one doctor has believed my symptoms and I had gone to the top doctors at Shands and Mayo. I live in Florida and life has been very challenging with how hot it gets. Anyways, your channel has helped tremendously and I finally don't feel alone in this anymore or that it's all in my head.

@purity4all

Жыл бұрын

@karenbarbosa Do you have Ehlers Danlos syndrome?

You're helping me so much, Aimee. I had Covid in March of 2020 and I think I now have POTS. I spent all day yesterday out in the sun and I thought I was dying all day today. I had no energy, I felt so weak, I was so clumsy, and just felt awful. I ordered an ice pack and I already have a portable fan. Hopefully I can get through the rest of the summer.

I feel your pain honey. I deal with it myself. Been suffering from it since i was like 14 or 15. Its hard to get through a day of work in the spring and summer. Got a doctor appointment monday, maybe they can find a diagnosis or something.

Great video. Thanks. I have many autoimmune disease and just cannot tolerate heat. Besides the things you mention, if I feel overheated I begin getting a rash on my chest and arms. It’s strange because it happens even if I have not been in the sun. Besides everything you talked about another thing I have to do when I start feeling really bad is this. I have a larger flat rectangular ice pack. I keep it frozen (or probably a large package of frozen peas) and when things feel bad, I bring it out, cover with a thin towel and lay down with the frozen pack on my neck. Placing it on the back of your neck helps cool everything down and helps you feel better.

Watching this in winter because my work has upped the heat inside since everyone else is freezing while i feel wonderful in the cold 😂

I am going to get one of those little fans! I always thought it was a little silly idea as I have only seen them on people who looks like drama queens (not, because they have the fan, but for all the other actions). But now I realised I NEED IT!!! My heat intolerance is pretty bad so this can be so HELPFUL! Thank you Aimee!

@Aimee_Esther

2 жыл бұрын

Wishing you the best with your illness!

This is so helpful. I’m determined to not kick myself into a flare this summer

I too am a mother with fibromyalgia and heat intolerance thank you for making videos it helps me to feel less alone the hot weather coming right now has been debilitating me I’m having a very very very hard time

I have a heat intolerance as in humidity in the weather steam from the shower or heat in the kitchen while cooking I have heat exhaustion and fatigue. I need water and air sometimes I wonder if that is all I need to help me with this. When we travel I can't do all the outdoor activities I would stay in the room or do the crafting activities instead

Girl first of all your hair looks so good! But I love these tips for anyone in Utah!! 🤣

@Aimee_Esther

5 жыл бұрын

Thanks girl!!!

I got diagnosed of Fibromyalgia 4 months ago, after a month I have this flu like symptoms no coughing of course just the elevated temperature and its really hard to sleep at night and I really feel the sun is biting or burning my skin terrible even just for few seconds. I have mention this to my doctor but he just listen. I have LABS done and shows no infection.

Just googled 80F and it is 26 Celsius! That is a great temperature limit for going out! I do not think that I could move anymore in that heat. I start having trouble when the temperature goes to 65-70F. Basicly sunny days are not great. Luckily I live in West Coast of Ireland where the rain is a norm 😁 💧☁🌈 Maybe that's why my tolerance is so low? My body haven't build up slowly to tolerate heat.

@Aimee_Esther

2 жыл бұрын

That sounds amazing! I'd love to live somewhere that rains a lot. My husband and I have considered it for my health (also we both love rainy weather haha). But with family and his job here it's hard to make such a big move.

@politereminder6284

Жыл бұрын

Lucky you. I live at the equator. It's hot all year round. 🥵🔥. 26° is an average day for me . And I have pots, fibro heat intolerance.

Oh I understand all your issues. I live in south texas where summers start early and temperatures range from 90’ s to 110 +. Yikes😩

I'm sorry about all those sacrifices you have to make missing out on the outdoor activities. I agree on the Book club being a great make up for the loss.

@Aimee_Esther

5 жыл бұрын

Thanks so much!!😊😊

Do you get light headed in the heat?

@Aimee_Esther

2 жыл бұрын

Yes! It's the worst.. :/

Yes ........ summer .... also when in October it gets cold ....

I’m using a neck fan my sister got on Temu. It’s like this necklace like thing I wear which on hotter days.

Can you have pots without heat intolerance? I seem to have more cold intolerance. I guess I do find it difficult in a hot car though, but 80 degrees is okay for me ...

Book club a great idea. Might need to find one online. X

@Aimee_Esther

5 жыл бұрын

It's been a lot of fun! I used to hate reading but now I really enjoy it!

I have fibromyalgia, p.o.t.s, sjogrens, diabetes, arthritis, tmj disjunction and high blood pressure. I cope with it all fairly well most of the time. It’s the passing out all the time that I hate. Even when I have sat spandex tried to prepare myself to get up, it still happens. Who has any ideas on this?

Anyone else with this condition feel a funny squirrel feeling 24/7 in their chest and abdomen it’s like an anxious uncomfortable tug or pull hard to explain

I am suffering from heat intolerance and anhidrosis if you had any suggestions please help me after little bit activity i also become overheated and i became breathless like heart failed help me

@Aimee_Esther

4 жыл бұрын

I would just take exercise lightly. You might do best with weightlifting. That's what I do! Cardio makes me SO sick! I have a video about how I exercise with orthostatic intolerance. Those ideas may help!

@JamesBrown-hs6vg

3 жыл бұрын

My sweat glands work, but my body just doesn’t turn them on. Please help

@stuntmanlove

3 жыл бұрын

Do they know how you got anhidrosis?

@everbard3071

2 жыл бұрын

I know I'm two years late, but I have anhidrosis too, and I recommend a spray bottle filled with cold water. It works as artificial sweat. Just spray yourself down, especially your face. It feels so nice and helps keep you cool. I use it when I play sports. It gets over 100 degrees Fahrenheit where I live.

I live is slc . Just got diagnosed with pots. Can I ask who your doctor is? Glad I found you soft hugs: ))

@Aimee_Esther

5 жыл бұрын

Hello! I haven't seen a doctor recently about my POTS, because I have been able to control my POTS very well on my own, and they never seemed to help me. I know most people around here see Dr. Cortez at the U. She has great reviews from my POTS friends! :)

@chelseyhaddon6847

5 жыл бұрын

I live in Idaho! Only a few hrs away from salt lake and I agree with the flare ups with the heat!

@Aimee_Esther

5 жыл бұрын

Heyy!! I went to school in idaho! BYUI grad here! So nice to meet you and im so sorry youre dealing with this!

@chelseyhaddon6847

5 жыл бұрын

@@Aimee_Esther oh in Rexburg! Nice I live in blackfoot !!! And ya it's not fun I'm also a mom to a 3 year old boy

@Aimee_Esther

5 жыл бұрын

@@chelseyhaddon6847 totally get that! I have a 9 month old! It is hard but so worth it. I think i have been to blackfoot before, or at least driven through it! Small world!

This sounds like me

HI AT NIGHT IF ITS REAL HOT AND IT IS WERE GETTING 108 OUTSIDE NOW TWO DAYS IN A ROW IN CALIFORNIA SO I USE A NICE WET WASH CLOTH LAY IT ACROSS MY HEAD OR AND CHEST AND IT REALLY HELPS YOU TO COOL OFF.IM ALWAYS HOT AND NOT SURE WHY.I HAVE FIBROMALGIA MAYBE THATS. WHY.PLUS A FEW OTHER IMMUNE DISEASES. IM JUST SO TIRED OF THE HEAT .IM LIKE YOU DON'T LIKE IT PAST 80.BUT THATS NOT VERY OFTEN WE HAVE 80S. HERE.USUALLY WE HAVEV80S IN MAY AND A LITTLE IN JUNE BUT THIS YEAR WERE AT 108 AND 110 ALREADY ITS 🔥 HOT YES.IM NOT A HEAT KINDOF PERSON NO. I LIKE FALL THE BEST. WINTER SOME BUT I HAVE PROBLEMS WITH THE COLD AS WILL. MY HANDS AND FEET GET REAL COLD. IVE GOT REYNAULDS PHENOMENON ITS A IMMUNE DISEASE ALSO.SO ITS HARD TO BE COLD MY FINGERS SPLIT OPEN AND BLEED AT TIMES SO GOT TO WEAR BANDAIDS ALOT GO THREW BOX'S OF THEM.ITS AWFUL .SO GOT TO WEAR GLOVES ON MY HANDS ALOT IN WINTER TIME.I HOPE THIS WAS INTERESTING TO YOU. TAKECARE MY FRIEND .BE SAFE NIGHT NIGHT😴😴🐺🐱🐾🐾🐾🐾👣🐺🌴🌻🌸🌹🙏

u said daughter 😳 i thought for sure you were fourteen

@Aimee_Esther

3 жыл бұрын

26 ha!