Stage 4 Lung Cancer: Fighting for a 2nd Opinion (Squamous Cell Carcinoma) | Amy’s Story (1 of 3)
Amy worked most of her life in oil refineries, from administrative work to a machinist. Also an avid cyclist and lover of dogs, she was enjoying life. But her whole world was turned upside down in 2018 when she was suddenly hit with a stage 4 diagnosis: lung cancer, squamous cell carcinoma.
Full story & transcript → Updating soon
Amy's Video Series:
1) Stage 4 Lung Cancer: Fighting for a 2nd Opinion: This Video
2) Biomarker Testing Changed Everything: MET Amplification: • Biomarker Testing Chan...
3) Radiation Therapy & Follow-Up : • Living with Stage 4 Lu...
The interview has only been edited for clarity.
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Contents of this video:
00:00 - Intro
00:59 - Tell us a little about yourself
02:13 - Tell us about your first symptoms
03:13 - What did the primary care doctor say?
03:57 - What's going through your mind during the tests?
04:29 - What were the next steps?
05:05 - Dealing with the wait for results ("scanxiety")
05:53 - The moment of diagnosis
07:37 - How did you break the news to your loved ones?
08:28 - Did you look for a second opinion?
09:34 - What were the next steps with treatment?
10:39 - Guidance in terms of finding the right doctor
12:35 - How did the second doctor explain the diagnosis?
13:28 - What were you feeling about possibly joining a clinical trial?
15:11 - What to look out for in the clinical trial paperwork
16:37 - Efficacy of the KEYTRUDA treatment
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#lungcancer #lcsm #squamouscellcarcinoma #stage4 #stage4cancer #thepatientstory #patientstories #cancerstories #cancerpatient #cancersurvivor
Пікірлер: 41
We’d love to hear from you: Did you get a 2nd opinion - why or why not? Share with us a comment below 👇
@dorisjoseph8269
Жыл бұрын
I got a second and a third opinion. There was descrepancy on staging of disease and even on treatment. The third oncologist offered hope and was very sure of himself....I am under his care still.
@kellyg9885
Жыл бұрын
I am unable to locate the continuation of this story. My Dad is on his third and apparently last line of defense for Stage 4 Squamous NSCLC w/ MET Amplification. I’m wondering what treatment Amy and her doctors attribute her success to?
@ThePatientStory
Жыл бұрын
@@kellyg9885 Hi Kelly! The links to all the videos in a series is in the description if you click "Show More." Just in case, here are the other 2 links: 2) Biomarker Testing Changed Everything: MET Amplification: kzread.info/dash/bejne/iW2FrJmtmquZhps.html 3) Radiation Therapy & Follow-Up : kzread.info/dash/bejne/kZaky85mZpavoLw.html
@godschild3640
11 ай бұрын
@@dorisjoseph8269. I have stage 4 non small cell lung cancer Adenocarcinoma. How come we don’t get pain meds , how come the doctor hasn’t told us how fast it grows how long it takes to metastasized to the other organs what size are the masses are pretty much anything through acting like Keytruda , it’s going to curate how come they won’t tell us how long we have to live and be honest with us how come, I see people on the Internet over and over again every day saying how much pain that they are going through and how much they’re suffering and no pain medicines are given how come cancer patients are being abused that’s my question
I swear to God Stephanie is like an actual genius. Every single time I watch The Patient Story I am absolutely blown away by how good she is at this. Unbelievable.
I've been recently diagnosed with non-smal cell lung cancer. Surgery is the first treatment that is recommended. I will do that. I have been invited to join a clinical trial and I'm very excited about it. I would always jump at the chance to join a clinical trial as I feel that clinical trials offer the latest and most advanced treatment
With the treatment I have received from doctors, it is important you stand up for yourself, after all it’s your money and your life🤗🙏
Feel very blessed to live in the UK. Having the NHS is a game changer. Been through a cancer diagnosis and fortunately had the BEST team taking care of me. In remission presently.
@ThePatientStory
Жыл бұрын
Mary, that is so wonderful... and how it should be for everyone! Thank you for sharing 🙏. -Stephanie
@amymac41890
Жыл бұрын
@mary Saunders you are SO blessed! Wish we would take care of our people here in the United States. It’s a shame we don’t!
@marid1580
Жыл бұрын
You are fortunate - here in the US our health care costs are the highest in the world yet our care is rated 18. Many lose their home & retirement to pay for treatments. It’s shameful
@marid1580
Жыл бұрын
@@amymac41890 my thoughts exactly- healthcare here is shameful with many losing their homes or retirement accounts to pay for treatment
@JennyL.I
Жыл бұрын
You're lucky. My cousin didn't get the same treatment.
Hi Amy - sending heartfelt healing hugs your way. Holding you in my thoughts, heart and prayers. 💗🙏💗🙏
I pray for you 🙏🙏🙏
I think the combination of inhaled hydrogen ( metabolic dysfunction) and negative ion generators/ ultrasonic misters , for getto hydroxide generators ( nk cells stimulation ) has limitless potential. Lung cancer is probably the easiest dance .
Like Amy I am also suspicious of the cov'd vaccine since after I got the shot I came down with shingles and two weeks after I got over shingles, this lymph node on my neck swelled up. No other symptoms. It's so strange because I am in excellent physical health. I run every day, bike ride, lift weights, do pull ups, push ups and sit-ups daily. At a good lean weight like always 6' 135 pounds-- a real runners build and I feel great. Haven't gained or lost weight. For being 66 years old I feel in such good health and I eat such a healthy diet-- no fried foods, no dairy, no egg yolk, no processed food and mostly vegetarian.
@CrystalSaysSo
Жыл бұрын
Simply my thoughts on what happened and perhaps why. If you've ever had chicken pox ( you can have them as a child and there be little to no pox marks) the virus lives in the fluid around your spinal cord. When your immune system is challenged in some way, you can have a recurrence. Since your body is learning the virus to be able to recognize the C shot, you're body is very mildly busy, and it can allow shingles to keep right up. Not medical advice!
@stevefabian477
Жыл бұрын
@@CrystalSaysSo Thanks Crystal for your sincere reply and concern. I'm just on a watch and wait mode right now until I see Moffitt for the 1st time in late September.😎
@stevefabian477
Жыл бұрын
@Tommy De Villiers I have no other symptoms and just hope it's a slow growth malignancy.
@CrystalSaysSo
Жыл бұрын
@@stevefabian477 Absolutely, Mr. Steve! Gotta put "A million years" of being a RN in Critical Care to use. Truly love trying to help. I do hope you'll let us know what else you learn. And congratulations on your lifestyle! That's just Awesome! Take care and stay well!
@stevefabian477
Жыл бұрын
@@CrystalSaysSo Thanks so very much Crystal and I'll let you know how my 1st appointment goes at Moffitt. I'm just hoping I can make a impact on the lymph node with the vegan diet that I'm on now and no fried or processed food.
Didn't she say she worked in the oil refineries?
Make sure he isnt a highschool chemistry teacher with 2 cellphones and weird connections to the closest kfc owner
Allah raham on them
Cure the disease
Because obviously you get the highest concentration of h2 easily and you get the bonus ions even before the nk cells
I’m really frustrated that they told you over the phone knowing that you were driving. Imo any staging discussions should be handled in person, whether they are good or bad
We’d love to hear from you: Did you get a 2nd opinion - why or why not? Share with us a comment below 👇
Why was it considered stage 4?
@wyde1340
7 ай бұрын
When i was first diagnosed, It had metastasized to my shoulder, lymph nodes, adrenal glands, hips and femurs.
The word is "jibe."
Give me the good ol’ NHS any day…