"I was scared of losing him. I was scared of him not having a quality of life."
• Spinal Muscular Atroph...
The mother of a 12-year old boy with SMA Type 1 talks about mourning the loss of her dreams for her son, while also celebrating the happy milestones he has reached that she could not have hoped for -- he graduated 6th grade! If your child has SMA Type 1 or another pediatric life threatening illness, this mother's perspective may help you find your way. Visit us at www.courageousparentsnetwork.org to see more videos.