I was diagnosed with Sjogerns a few months ago I have a dry mouth dry eyes bad teeth etc. I was finally diagnosed when I started having more neurological symptoms such as numbness in my hands and feet My leg would go out from under me I was sent for an MRI for MS which was inconclusive finally sent to a rheumatologist who specialize in Sjogerns and was finally diagnosed I didn’t want to do plaquenil so I tried the ketogenic diet and have been having great results in a short period of time . All neurological symptoms are gone and dry eyes and mout are not as bad . Going to keep on this diet and praying the good results keep up .

I was just diagnosed with Sjogrens syndrome. I had never heard of it and knew absolutely nothing about it, so informational videos are so helpful in understanding what I am dealing with. Any tips and advice is so helpful as well. Thanks for making your videos about your experience.

How were you diagnosed?

It’s great to hear you talk about Sjogrens. It’s a serious disorder and it definitely doesn’t get enough air time. Most doctors don’t have much of a clue either. If anti-Ro and anti-La are negative, they dismiss the idea one has Sjogrens even though they meet the clinical criteria. There is an “Early Sjogrens Panel” that tests anti salivary protein, anti parotid and carbonic anhydrase. These are the first bio markers for Sjogrens and some people never have Ro and La antibodies (here!). I’ve had Sjogrens for 20 years now and I’m fortunate to have very good doctors who never stop educating me because Sjogrens can evolve. For some, the disorder is just as damaging as Lupus so it’s extremely important to have intelligent doctors and to do as much of your own research as possible. 🙏💪💜

does anyone else experience swallowing difficult with thick saliva

I have sjrgoens an have had it now for 9 years maybe longer juat did not know. So sense last Nov i got sick with the flu an then in Dec again. Well it attacked my nerves. I went numb an weak. I had no feelimg from head to toe but it went slow. They thought i had GBS. But that was neg an the nero actually figured out it was from the sjrogens. Super scarey

I would love to hear about treatments for everything, lung problems and experiencing loss of taste and smell!

Did you try taking bone broth they said that good for leaky gut and Immune diseases? Please tell me if that works or no because I have Sjogren and I’m sorry for my English is bad 😞💔

I have most of the problems you mentioned re:SJ. I have another one that has just started to show symptoms - the majority of my pancreas is atrophied. I have low grade pain so far in that area. I understand that if my pancreas stops working completely, I will be thrown into diabetes. Thank you for sharing.

for me, the most difficult part of being diagnosed with sjogren's was that my doctors told me to just use over the counter eye drops, etc for the dryness and it was difficult to find good products. this was in 2013 and there was much less information on it online. i think it would be very helpful to share different products that work for different people and create a list of the best products out there for different needs

Hi l have sjogrens for 20 year's. The very bad news for me is l complained about my consultant, not a good idear, l haven't been treated very well at all

Sweetie I’m 61 have plug’s inserted in my eyes.. Also diagnosed with SLE 40 years ago God bless positive energy coming your way 🦋💜🙏🏼

I love that you make these videos. I to have Lupus , sjogrens, RA , fibro and a few more. I love hearing other people's experience. I also would love to hear more about lung issues as I am now having those issues. Ty!

Wonderful video, Thank you!

I was recently diagnosed with sjogrens. By a naturopath. And all while being recently tested by my conventional pcp for adrenal issues as I have an adrenal mass, enlarged liver, several allergies, and my pcp didn't think anything was alarming enough to send me to a rheumatologist or hematology. My ND looked over my labs and there's many labs that point to sjogrens even though my pcp undermined my positive ANA labs.

I have sjorgrens as well with all the symptoms! very debilitating, worst is the burning mouth had the eye tests and biopsy, i was so fit before now get very tired quickly. Love the way you explained it, because people dont get it! Well done in explaining the symptoms i have used your video to help my family understand! Fit to this they couldn't comprehend.

Thanks for the video on sjogrens and lupus!

Wow second time clicking on this channel yesterday was the Salivary glands . My mother as Sjogren's Syndrome wow think it time for me too call the Doc tomorrow if that disorder that can be inherited 😮 yes indeed seeing the signs

Please please please keep posting videos. The comments are also helpful. I would love more information about anti_inflammatory diets, different symptoms that are experienced. Sjogren’s is a difficult condition, I’m still learning about it and determining what medication, treatments are helpful.

Hi I love how positive you are. Did your rheumatologist prescribe you medicine? And do they suppress your immune system?