thank you for sharing.

@livingwithsjogrensdisease1550

7 ай бұрын

😊💜💙

Lucky you getting to see a doctor haven't seen a rheumatologist or GP even with all this for at least 3 years here in the UK collapsed twice on the street unable to breath because its now affecting my breathing.

@livingwithsjogrensdisease1550

7 ай бұрын

Oh my, ❤️‍🩹 🙏, access to care is so important and the lack of is frightening esp now with your breathing affected. Heavenly Father thank you for your amazing grace & love. Thank you for Chickpeat..., and keeping her going; through all she suffers you are holding her. Please shelter her, blanket her with protection safety, we ask that needed doors open before her to the all the care she needs, fill her with your warmth Lord & Your incomparable omnipotent peace, in name of Jesust Christ your son we ask it, amen. 💜💜💜

@ChickpeatheTortie

7 ай бұрын

@@livingwithsjogrensdisease1550 - Hello - Thank you for that - unfortunately things are very very bad with the NHS its gone downhill big time I could tell you things that you would not believe. The good old days when working class people were given access to excellent healthcare are well and truly over in the UK

I really understand and hear you ❤thank you

@livingwithsjogrensdisease1550

7 ай бұрын

Thank you. I hope you are feeling well & enjoying holidays. 💙 💜

I'm overwhelmed, but all autoimmune testing is coming back normal, although she didn't run much testing. I do have Hashimotos, but believe there is more going on. How do I accept this?

@livingwithsjogrensdisease1550

4 ай бұрын

I understand. Symptoms, finding answers & solutions, holding on to hope is all a very overwhelming thing. These days im choosing to focus on what i have control over, & influence over, to believe myself, what i know about things, myself & symptoms to be true. A. When labs are normal symptoms can still occur B. With autoimmune disease we are more vulnerable to develope another C. Many symptoms have multiple causes that don't necessarily show up in labs D. You are the one who knows your body best. You know when something is off, not right. E. I can't change people, cant open a providers eyes, no control over that. I can choose a different provider, see a naturopath doc, learn from others who battle autoimmune disease etc, that takes time & effort, doesn't alleviate stress in the moment though. F. Providers can get it wrong especially when they are focused only on labs for diagnosing & prescribing related medications, so knowing there are other resources & treatment options can help. Please keep in mind that you are a whole person made up of many parts physically, mentally, spiritually & emotionally & personal history. I believe you! Any provider that dismisses what's going on with you just because a CBC or other lab come back normal is unacceptable! Letting this thing & symptoms just take over you, destroy your life, rob your joy & peace is not an acceptable answere from providers in that they offer no other options for patients. You are in every way worth fighting for! ❤️ I also pray a lot for wisdom to help myself, and for healing. Sorry for going on so much. 💜💙🩵💚

@janmartell9792

4 ай бұрын

@@livingwithsjogrensdisease1550 , thank you.

@magalieroger2613

4 ай бұрын

PLEASE check Dr Brooke GOLDNER GOODBYE LUPUS WEBSITE...She can REVERSE most of the auto immune diseases.... with super market food.... program is free... She's a life saver.... I've been on her hyper nourishment program for 2 1/2 weeks... I'm seeing improvement. Take care ..God bless 🙏🏽

what do you think the best medicine and supplement ? thank you

@livingwithsjogrensdisease1550

20 күн бұрын

There are several medications that work to reduce inflammation and immune system attack on the body. Best to consult rhumatologest which meds are best for each patient. I can only say what I've had experience with. Plaquinill worked well for me, made my skin itch sometimes. Many people have no side effects from it. Eye damage began so had to stop plaquinill 3.5 years ago. Methotrexate worked good for my systemic inflammation but side effects were hard for me. I had a little nausea next day, increased fatigue 2 - 3 days after weekly doses. Some people have no issues with it at all. Last summer I quit methotrexate, just couldnt deal with side effects anymore. Feb 2024 rhum agreed to try me on Arava. A family member takes it, says it works great & no side effects for them. I tried it March 2024 but had bad reaction. I read only 10% of people have reaction so 90% people do great. So now can't take Arava & rhum won't try me on anything else till I try methotrexate again. So restart it soon. Diet change has helped me a lot, am doing anti-inflammatory diet. I take a lot of suppliments based on my conditions, provider recomendations, viewer comments & Dr Burg on youtube. Currently take: (calcium magnesium & potassium) twice a day, vit D3 so calcium can get back into my bones per Dr Burg. Also taking fish oil, CoQ10, turmeric, cranberry, vit B complex, B1 (thiamine), & take Folic Acid-needed daily with methotrexate per it depletes Folic acid. There are other meds, some given by IV infusion. I'd really like to try low dose naltrexone but my docs don't/won't prescribe it. I also saw a naturopath doc who did labs then started me on a magnesium suppliment drops for too low magnesium in my cells. It really made a big difference while on it. Sorry this is so long.

@mlaniado98

19 күн бұрын

❤😊

@mlaniado98

19 күн бұрын

Thank you very much for your help and support good job I'm on hidroxquianel but not happy about it we need better treatment good week