Glad to see someone that cares.

figure I have about 6 months of mobility max. This is a life changer for me. I miss walking so much but the pain is such that Im on daily pain meds. I have been having prolotherapy treatments for a few years while looking for a surgeon, but here in Canada Im having trouble finding one. Bless you doctor for being so forward thinking and innovative

@montanaliving4769

3 жыл бұрын

I'm having mine in Missoula next month. The last few months after 12 years I'm unable to walk much at all for the hip pain it has caused despite pain medicine. Good luck and God bless

@janiceeasley150

Жыл бұрын

@@montanaliving4769 yes

Nice to see you Doc!

Great video . i just had si spinal surgery. Keep up the great work and videos thank you

Great discussion

S.I JOINT HAS DESTROYED MY LIFE AT THE AGE OF 32 LOST MY JOB GIRL DR THINK IM CRAZY BECAUSE THEY DONT KNOW ANYTHING ABOUT IT . SO IM FLYING TO USA TO SEE THIS DR BECKS AS HE IS MY LAST HOPE

@montanaliving4769

3 жыл бұрын

I hope you found your answer! Yes we are the crazy ones and they get paid big bucks to tell us that instead of doing thier dam job!

@sunnypreet378

3 жыл бұрын

Hey, did u get urself checked and go for the procedure. Please do repky, will be obliged. Thanks.

I had this surgery by Dr Beck himself. He stated to me That the surgery would not make my pain any worse. I did not have to use crutches before the surgery, a week after the surgery I had to use crutches as the side the fusion was done, the hip was in horrible pain. I had to be on crutches for a year after the surgery and I’m now looking into having the screws removed. It has been a horrible painful ordeal

@asparagusbear3323

5 жыл бұрын

I had a bad experience with ifuse mostly hip problems and pain when walking which was NOT there before surgery. Bad surgery IMO.

@arnoldfeldmanmd

3 жыл бұрын

The patient is fooled by the physician and industry.

@montanaliving4769

3 жыл бұрын

I have extream hip damage and swelling caused by my bad si joint after 12 years. Im afraid after my surgery next month that may hit my lumbar. The lumbar already has problems. However these 2 comments are the only ones I have seen in extensive reading that said they come out worse. Its horrible pain so I pray you both find not only relieve but also what is actually causing it to start with if not the si.

@Isaac5123

2 жыл бұрын

Oh no how terrible for you

I love the bit where he says Si sufferers are all Crazy ha ha! yes I've been through this stage with every medical professional I've ever met! Until recently I never met a consultant that believed me.... now I've found my saviour...5 years on x

@Isaac5123

5 жыл бұрын

hottieas69 great to hear you have found a saviour. I will see in two days

@cheribarker1870

5 жыл бұрын

Did you have SI joint fusion/surgery?

Great information.

This is amazing. I have sacroilliac joint disfunction and this gives me a lot of hope.

@samippudke

3 жыл бұрын

Did you lifted heavy weight since pain started ? bcoz it happened to me 2 year back.

@quintonandre8870

2 жыл бұрын

i guess I am kinda off topic but does anybody know a good place to stream newly released series online ?

@jacobysean1055

2 жыл бұрын

@Quinton Andre flixportal :P

@quintonandre8870

2 жыл бұрын

@Jacoby Sean thanks, I signed up and it seems to work :) Appreciate it!!

@jacobysean1055

2 жыл бұрын

@Quinton Andre You are welcome xD

Dr. Beck, do you consider pelvic misalignment caused by SIJD when fusing?

awesome, can you do it without the metal? i'm allergic to metal, had to have the screw taken out of my foot bc it made me sick. i feel so vindicated watching this…..i was told that joint could not hurt me! i knew that's what it was!!!!

I had a severe car accident 21 years ago and I remember that I had a wound on my lower abdomen that looked like a black caterpillar. They kept looking at my lower back and finding nothing. Now I know that this all makes sense. I think that my Levator Ani muscle group has been trying to make up the difference in regards to the instability in the sacroiliac joints. Does that sound logical? Because I think the same muscles used in child birth are the Levator Ani muscles.

I am wondering if you have talked w/ Dr. Beck since then on the thoughts of using 2 titanium rods vs 1? My Dr feels that 2 is better but I am unsure simply bc it does not look to be enough space on the ridge to do 2. Can you tell me more about this please

@montanaliving4769

3 жыл бұрын

I can tell you im a little lady. 5 foot, 120 pounds and they plan to use up to 3 on me.

What if there's a problem with the pelvis being twisted?

How do I find a surgeon with experience is this way of doing SI surgery?

I'm seeing my neuro tomorrow about getting the fusion on my si joint.. I'm nervous about which procedure is best.

I'm having this very same surgery in May. This was very informative!

@smokewitmomz9147

5 жыл бұрын

Me too on May 1st 2019 In San Francisco !! I've had my L4 L5 S1 fused in October 2018 so hopefully having this on both sides will lessen my pain and I'll be walking again !!

@itsadifferentworld8571

5 жыл бұрын

Oh wow. So you’ve had this done before? My surgeon offered to do both sides at first. I automatically told him let’s just do the side that has the damage the most. Now I’m second guessing that because some time has gone by and now both sides hurt so bad that I’m thinking about letting him do both sides

@smokewitmomz9147

5 жыл бұрын

@@itsadifferentworld8571 I've had the rest of my lower back fused now I'm having the sacarilliac fused also on both sides but I heard if you dont need both sides then just do one less is better

@itsadifferentworld8571

5 жыл бұрын

Momma Marijuana Thanks for the information. I see the surgeon again on 5/2 and we will discuss it again

@leilastakun1770

4 жыл бұрын

Where can I see this doctor?

I will be having this surgery next month with the triangle shaped one. It's been 12 years of dragging my leg around and opiods to tolerate the constant pain. It's only been 4 years since they decided that was the problem. I have had at least 40 injections in my. Lumbar and si joint and 8 nerve ablations as well. Im on 60 milligrams of hydrocodone daily. I was diagnosed 4 years ago with rhumatoid arthritis and sjogrens. They believe the si joint was the first joint hit. Im scared but can't take the pain anymore. If it even eliminates half the pain and allows me to walk again I will be happy. Its actually pretty disheartening how many people are afflicted yet how few doctors know this. I have had doctors, many, tell me its all in my head to which I respond, no mostly my bottom!

@indigenousamerican3148

2 жыл бұрын

How are you doing now? I ask because ive also been dealing with Si pain for 11 years and will eventually have to get surgery.

@montanaliving4769

2 жыл бұрын

@@indigenousamerican3148 oh hurry, dont wait. Mine was very bad, it had broken apart. Woke up without the usual pain, was going upstairs 2 hours later. Could walk 5 miles by the 3rd month. Its surgery so it takes time to heal but I sure wish I had known years sooner.

@indigenousamerican3148

2 жыл бұрын

Wow, that you very much for the response mam. Yes i will get on that. Barely going through the hoops with my new doctor. But yeah im gonna have them send me for Si injections to make sure thats were my pains stems from. I started wearing an Si belt last week and oh boy it helps me tremendously. Ive had multpile Mri scans over the years and it shows nothing. Yet i have the searing leg pains that switch from side to side and occasional hip pain and groing pain. Thank you very much for your input 🙏 Have a blessed day.

@indigenousamerican3148

2 жыл бұрын

Im glad you are doing much better after all these years.

@montanaliving4769

2 жыл бұрын

@@indigenousamerican3148 yes it is time before you do mess the spine up. 14 years and 50 at least doctors looking at everything else because they have not been taught feels pain. Thank God they figured it out!

Hubby is a marine & when he was training in jump school, his parachute didn’t open in time and he was pummeled to earth after a jump. He was instantly disabled at the age of 21. Since then, the only solution was ibuprofen and injections. It didn’t help. He finally gave in to the titanium rods in his SI joint. It did stabilize his hip but the pain continues......

I've had debilitating SI joint pain for 18 yr. With soooooo many pills they ate a hole in my stomach and made me a zombie and 100s of injections with only temporary relief for about a week. I am now told I need the surgery which I've known all along. The never ending pain has robbed me of my 30s and 40s. His explanation of putting the screws in posteriorly rather than laterally does seem less invasive/traumatic to muscles, nerves and vessels.

@bluejeans1773

5 жыл бұрын

@Cheri Barker hope yur doing well.. Did u have the surgery? Im very the same problem.

@montanaliving4769

3 жыл бұрын

Oh gosh, so sorry, 12 for me, can't imagine 18 and yes mine got real bad at 47 but had ached terribly since 32. Now at 59 I'm getting the surgery next month. The first goal on my list is to take my grandson fishing. He is 12 now and I've never gotten to.

What is this particular kind of si joint surgery called? Doesn't sound like the one they want to do on me

Interested in getting more info on this

I see Dr. Beck next week. Will follow up

@barbaramazzocca4605

7 жыл бұрын

Well buz, did you see Beck and did he do the surgery?

@babybrodyn

6 жыл бұрын

buz meyer how did it go?

@montanaliving4769

3 жыл бұрын

Missoula is where I'm having my surgery as well next month. I live in Montana 250 miles from there but see my rheumatologist there as well. My 2 surgeons have 308 of these done already so that makes me feel better.

Excellent Interview. My 23 yo son had a internal hemipelvictomy in June 2012 for a chondrosarcoma. In 2014 with worsening pain he had 3 SI joint injections with varying results. He is now on opioid pain meds and disabled and we are looking at definitive surgery for what we perceive is SI Joint dysfunction. His surgery took about 50-60% of the posterior SI joint due to the wide excision for the cancer. We were evaluated by a physician well acquainted with the IFuse system who stated that there was probably not enough joint to get 3 triangular prosthesis in, and he has never used 2 in the past. We have been seen by an orthopedic trauma surgeon who recommended the rialto method which are screws, and he was sure he can get 2 in by a lateral approach. I would like Dr Beck to see the CT scans and determine if his approach would be beneficial for my son or can you share any information on who has performed this minimally invasive approach regardless of device on patients who have had cancer surgery of the pelvis. Thank you

How many implants are needed?

I cannot go to Montana for surgery. How do I find a doctor in the South Carolina area who has experience with this type of surgery?

@montanaliving4769

3 жыл бұрын

Look up ifuse system, they list doctors in each state. I live in Montana, 200 miles from Missoula where I will be having it done in May this year. Coincidently I moved here from Charleston SC.

Some surgeons employ three implants or screws for triangulation purpose. What is your take on that approach?

im a double amputee, hit by train at 9 months of age. im 41 now. ak on left leg and hip disarticulation on r. I have bad low back nerve pain, a laminectomy was done 3 yrs ago, to fix arachnoid cyst. I was feeling great till few months ago. my groin goin numb butt cheeks too. I get a feeling of squeezing or pressure in tailbone area, and horrible shooting, stabbing, electric shock pain in r side....can the si joint be a cause of this, or maybe a big part of pain. im miserable, getting overweight from not crawling n moving around. need to get fixed right. I live in Illinois....thank you for the information. any advise would be a huge help..

@cherissehall1234

3 жыл бұрын

I hope you are doing better, and found a Dr. ..... Ur symptoms remind me of my own. Im just doing my research on this SI fusion procedure . Peace ✌

Trying 6 years for help waiting for I-fuse surgery. Very painful 8 on the scale but not constant.

I have had off and on pain in my lower left back and now my right side. about three months ago the pain has come back and this time won't stop and it is very severe. I went to pain management and he prescribed percecot and I have had two injections. I went to a nuero spine doctor and told me I needed to see an orthopedic doctor who specializes in the sacroiliac. this is after x-ray and MRI. I then went to an orthopedic doctor and he just did backs and said my right hip had osteoarthritis and showed bone to bone. I have horrible pain in my left low side and it goes down my left leg. I am having a hard time finding any orthopedic doctor who does sacorilliac. I live near Canton and Akron Ohio. my question is can anybody recommend an orthopedic doctor in my area that specializes in this

@montanaliving4769

3 жыл бұрын

No I can not but the symptoms you describe are some I have as well. After 12 years mine is so bad they can actually see on it the xrays.

Dr What about stairs?? What is the expectation for walking stairs after the surgery??

@montanaliving4769

3 жыл бұрын

Great question that I have to ask my surgeon since my house has no entry without them. I have been unable to visit my downstairs for years.

Is this canada

Well call me crazy then. I tried prolotherapy and a hip reconstruction but no help. But the pain did disappear with lidocain injections! (Then it came back even worse) I had several surgeons miss it and misdiagnose me. My osteopath who does the prolotherapy was able to see a lot more with a thorough ultrasound exam and needle guidance. He said my SI was hyper mobile and also starting to fuse itself. The scar tissue was so thick it was bending his needles. Yup my gluteal is basically paralyzed and it messed my gait up so bad my hip wore out prematurely. I'm debating if I should do an SI fusion or a total hip replacement next. Ive been dealing with this for over 25 yrs now. I'm scared of surgeons after the last one put me into cardiac arrest then left my hip dislocated for over 8hrs. And they tend to just recommend whatever they're selling, then the next surgeon I talk to says I shouldnt have gotten that procedure done.

Anybody have an SI fusion and total hip replacement all in one go?

I had two spinal fusion surgeries. The second was because the first failed and the hardware became lose. I was just starting my health career when this happened so I was fresh to the idea of back surgery. Looking back now which was 7 years ago my pain management doctor and my surgeon NEVER even mentioned that my SI joints could be bad. Despite me telling them that a lot of my pain was not in the center of my spine but rather down my leg, in my butt, and off to the side of the lower back. Of course I did not know anything nor heard about SI joint surgery. I just knew about the joint from anatomy. Seven years later, 30+ injections, years of PT, 2 spine surgeries, "I" final spoke up and said Im going to get my SI looked at. In my area only 4 surgeons do SI surgery. And I live in a hospitals city of big time hospitals. So I went to one doctor and he suggesting doing an SI injection to see if that was my pain. I did it three weeks ago. They did a MAC so I was asleep. Don't remember anything. It was wonderful. The next day my pain went down by 50%. No joke. I knew that it was my SI joint. Today I saw the surgeon and he said I could wait it out with another injection that only puts a band aid on it. I said nope....I want surgery. In 7 years with several surgeries on my body, I said I WANT this surgery. I am scheduled in three weeks to have my left fused followed by my right when I am healed. My point behind all of this. If your having low back pain make sure you get your pain management to consider SI joints and your surgeon to consider it. Do not let them talk you into fusing your lumbar without considering this and having testing done like me. Looking back I really did not need a lumbar fusion. I have been through hell every since. ALWAYS get a second opinion if you have decent insurance. Medicine is a practice. Every doc has a different opinion. What works for one person may not work for you. Everybody is different. And push your doctor to review your MRI or CT scan. With all do respect to radiologist, they don't see inside the body. They are trained to look at imaging, period. I work with docs in the OR. I can tell you many times when a doc said, "that was not on the MRI." Radiologist miss things all the time. Not because they are not looking. They just don't apply what they know to what the body looks like cut open. The radiologist completely missed my unfused spinal fusion and lose hardware. As soon as my surgeon saw the MRI he knew it did not fuse and the screws were lose. Get your doctor to look at the MRI, not read the dictation from the radiologist. Some docs go right off the radiologist report and don't look at the MRI.

@montanaliving4769

3 жыл бұрын

Bless you! Been at this for 12 years now. Thank God I never let more then injections and ablation done to my lumbar. Im almost immobile now due to the damage it has done to my hip. It is excruciating pain so when my surgeon asked how I lived with it this long I leet him know that only he and my anesthesia guy and primary care doc did not call me crazy. At least 20 other doctors have. Going in next month for the ifuse surgery. Can't wait.

@maryhensley233

2 жыл бұрын

I have had it all ,,sijoint also 4back surgerys ,still in pain

I think the bigger issue is getting insurance and Medicare to pay for surgery without a billion trials

@montanaliving4769

3 жыл бұрын

I do not have generous insurance. I have been through 12 years of hell with this. Im having the surgery in May and my insurance is covering it, all but my deduct.

For those who want up to date information on Dr. Beck's procedure, there is a Facebook group which is dedicated to discussion of the procedure Dr. Beck developed. facebook.com/groups/RaltoTalk There is a LOT of useful information there and we have well over 130 members so you can hear feedback from patients who already had the procedure and from those contemplating the procedure.

Had this surgery in 2016 worst mistake of my life!!! Been in chronic pain since...

the SI joint DOES move. It functions to transfer weight from torso into legs. Fusion puts more pressure on the spine and the hip. It amazes me how ignorant these doctors are of the realities of surgery, maybe they don't want to know. fusion ALWAYS causes more load above and below. It's a risk Doctors don't tell patients about.

@Captain_Brown_Beard

5 жыл бұрын

Check the ifuse triangle bolt system. Much better

@asparagusbear3323

5 жыл бұрын

@@Captain_Brown_Beard I'm glad people are having success with this procedure. The problem is diagnosis. The list of symptoms are pretty broad and scans are not accurate. I believe I was diagnosed incorrectly and it has resulted in hip problems and muscular imbalances. Make sure you get a good diagnosis a 2nd, 3rd opinion :)

@montanaliving4769

3 жыл бұрын

The movement is very slight. My right si joint was fused congenitally and my left is getting the ifuse done next month. Without fusion there is pain and damage already in my hip and lumbar facets on that side. Mobility is just as important as pain management. I can't sit, stand, walk or lie on my back for any length of time. It can cause people to become suicidal so its better then no option after 13 years of horrid disabling pain.

@catmoore2443

Жыл бұрын

Hi I know it's been 3 years, but I have Ehlers Danlos Syndrome and my pelvis came apart. I had pelvic fusion surgery in 2016, i had two plates in the front with a bone graft as the pubic bone disintegrated. I had a bolt through the Si joints from one hip to the next , within a year and half the bolt became loose and was moving causing issues . I then had another surgery in 2019 in which 6 bolts ,12 stoppers , a wire mesh around my lower spine and a horseshoe plate placed over everything. It was pioneering surgery at the time. I'm thankful for the surgery but now I can't sit or stand for long . I can't walk more than 50 meters and sleeping is a great issue with side or back sleeping as many pillows are involved. I cannot find anyone who have had pelvic fusion surgery. Every time I try to research its always spinal fusion ,I just want to speak to anyone that has pelvic fusion surgery to see how they are getting on . To compare pain management ect . Apologies for long post .

I went to dr beck. He stated he wouldn’t even do an exam. He stated I was old and I needed to do stretches. I was 56 at the time. I went until I couldn’t walk. Went to anther dr!!!!! On my 4 th pain shot. To appease the insurance. Next is surgery. I’m not crazy. Shame on this dr.

I can't wait to see Dr beck in Montana I'm in Australia been in massive amount of pain anty imflam nerve blockers are not working pain in my him lower back front shooting down my leg . Can't walk more then 100 mt befor i have to stop the pressure builds so bad I brake down and cry . I'm in Australia Dr hear are shit soon as I say s.i joint they all told me to go away your crazy

@montanaliving4769

3 жыл бұрын

I hope you got here and got it fixed. The docs here are not any better. I have been to at least 20 and after 12 years at last found the surgeon to do mine. I live in Montana and he is in Missoula but not dr. Beck. Am having the ifuse done.

@maisonstevens

Жыл бұрын

Hi also in Oz also have the same problems and experience how are you did you get the procedure ? Would be great if you can reach out

Omg!

SI Joint Fusion is a LAST resort surgery. I regret having this surgery since it has produced hip problems, piriformis pain, and pubic symphysis pain. Do NOT get this surgery unless you are unable to stand/walk without severe pain. The SI joint DOES move. it provides extra give for the hip. It makes about as much sense as fusing a hip or a knee.

@nickname6569

3 жыл бұрын

Thanks for your opinion, its significant information///

@montanaliving4769

3 жыл бұрын

After 12 years and lots of damage to my lumbar and hip it is my last option. My other is fused from birth so at least only one to do but after 12 years of pain meds and uncountable other procedures im unable to walk, sit, stand or lie on my back for more the a few minutes. Its time and im ready. I will at least have the satisfaction of knowing I did all I could if they have to increase my pain med. Rhumatoid arthritis on top of it does not help.

⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰⏰

For God's sake, don't have this done! The bones are SUPPOSED to move. Don't go to the doctor or the surgeon, go to the Osteopath, who will realign the bones . Ask for exercises to strengthen the ligaments to keep them in alignment. Then they can move as designed and return to centre after each step you take. This kind of surgery is last resort for bone erosion problems, NOT the pain of a displaced sacroileac or lumbosacral joint. It's a 20 minute job & £50 if sorted by an Osteopath. Doctors & surgeons don't know what Osteopaths do.