Thank you, myself, my children, and my niece all have eds/adhd/pots. Such a great presentation.

Good speak, but love to hear some more. Missing some details and having lots off questions because off it. Just love this so much, that I could follow this for a whole day. Much love Debbie Hellenbrand

This was wonderful and I it can help my child.

James...Jamie for me, your words are outstanding and so very important for us all!🙏🙏💯💯

thank you so much for this talk and looking forward to tomorrows presentation on mcas!

I hope you help her in any way .

@omanita7289

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I'm m wishing she gets all the possible help.

could this be related to mast cell activation syndrome and the activation of microglia cells in the brain?

I have a girl has EDS syndrome , she is seven years old , her weight is 13 kilos , and she has a lot of symptoms one of them in her hurte, coronary artery dilated , she has duobl bend in her backbones , verey soft and thin skin , thick hair all over the body , shortnees of the upper extremities of the hands and legs , she underwent two surgery when she was six month to obstetrical dislocation repair, round eyes , pale skin , hypermobility , small lower jaw , pigeon breast .

@TheEhlersDanlosSociety

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Please contact our helpline team - you can find the details at www.ehlers-danlos.com/eds-helpline/

@omanita7289

Жыл бұрын

Connect whit The he Ehler Danlos society, hopefully you find people to talk and advice you 🦓

@amalfojo2421

Жыл бұрын

What we afarid about is the problem in her heart we wish she has better life without any bain .

I discovered it when I was 38 years old and I discovered my son's life when he was 9 years old and it changed mine and my son's life ❤ it would be cool to share this experience! Edilson Greghi @james kustow