Really wish the majority of autism research wasn't focused on children. There's no support for adults, and what exists is infantilizing or plain wrong. It's much more difficult to get the beginning of supports because of this.

Around the 18-minute mark hit me hard as a mom with 2 kids with autism. This is exactly how it's happened for us. I'm so glad it's not us, but it's also devastating to think how many families are also impacted like this.

The bracelet at the end is a fascinating idea. This isn't being marketed as a self-help device for autistic people to monitor emotions through physical stimuli? There could be huge opportunity to help the community there, but it's just being given to caretakers to prevent meltdown.

@UCLA are there any ongoing trials in 2024 that patients can enroll in regarding Emotional Regulation ?

Where can the EDI be accessed? Articles seem to have some sample items. It would be great to access the full Inventory.

is the EDI available in Spanish?

If ABA was in use with aversives during and before the time of the fecal smearing, well, WTF would you expect? That’s demeaning abusive torture! I’m an autistic adult and while I was in speech therapy for easily half or so of elementary, words wouldn’t have been where I stopped if I were abused like that, especially if that was done to keep me from the required stimming, or I was forced into unpleasant sensory areas. You’d be lucky to only get fecal smearing, and I will make no apologies for that. If someone did that to me as an adult, they’d best be able to run fast and never be in reach ever again.

Where can the EDI be accessed?

ARE THESE NT'S JUST GASLIGHTING US.... please stop trying to help us lady we do not need your help 😮

Why do some NT'S just want to waste my time... 1/4 of an hour in and this lady is waiting my time... No science here... Just NT mumbles... mumbles... mumbles... Incoherently 😂😂😂

20 Min and she still hasn't said anything 😂😂😂 NT'S ... so much life to waste