Awesome advise, I was diagnosed with Advanced Prostate cancer (Gleason Score of 9) in Nov. 2020 and have been on Hormone Therapy since. My 6 month CT-Scan has should more than a 50% decrease in tumors, and a decrease in lesions. I feel a whole lot better now compared to 2 years ago.

@lume5040

2 жыл бұрын

My dad also diagnosed PC last September Gleason score of 9, his PSA level is 103, he had TURP operation last September 28 and start Bicalutamide 50mg, after a month his PSA resulting in 14.55 which is a good result, and he will be schedule on his radiation therapy next week, his urologist told ask he want to inject him a LH-RH agonist,

Three Cheers, man. You will an inspiration to me as I am also a stg 4 prostate cancer bone metastases patient since April 2018

@raminkhoshaba3900

2 жыл бұрын

Hi I am diagnosed the same how are you doing. Can you please let me know what treatment you are doing. Thank you Ramin

@prakashkm984

2 жыл бұрын

I first started with vitamin B12 deficient,started with B12 injection which opened up inside my body resulting in lots of blood clot the same went to my brain and had to undergo 2 brain operations inside a month, then my blood parameters went unstable on checking my PSA WAS 148, and bone metastases ,I was made to take 9 cycles of chemotherapy and alternate zolodronic acid for bone strength, as on date I have taken almost 15 doses of it,after nearly 2 years my PSA started to increase & I was on Abiraterone Acetate for nearly a year after which my PSA again started to increase, now since past two months I am on Enzalutamide 80×2=160mg per day and my PSA is stable ,all this along with pain & palliative care with morphine as the main pain killer, all this since I was diagnosed with prostate cancer stg 4 bone metastases in the month of May 2018

@thomasfholland

2 жыл бұрын

@@prakashkm984 I personally know what you’re going through. Back in January 2008 I was dx with advanced stage 4 PC. Gleason score of 5+4 and a PSA of 3,280. My bone scan showed over 100 metastatic tumors with some ribs having 2-3. I was 47 years old at the time and my journey started when I broke my neck due to the 5th neck vertebrae collapse (there were 7 tumors in my neck vertebrae alone). Yeah, I’ve needed to also take OxyContin due to the pain. And geese how I hated the heat flashes due to the hormonal therapy! Don’t ever give up and be with the people you love the most. Redacted: During the past 14 years I have been better world’s class health care at the Karolinska University Hospital here in Stockholm, Sweden. Of course there have been periods when I didn’t think I was going to pull through again. Especially when my very first prognosis was “I would most likely live 2 months, maybe 3 if I got lucky.” - said both of my oncologists. Like you I’m getting the Zometa (bisphosphonate) intravenous every 4 weeks. I’ve been doing that for 13 1/2 years now so that’s a lot of treatments. Been on the hormonal therapy since day one and even though I got my breast nipples the radiation treatment they’re still getting bigger slowly but surely!! Right now I think I’m on my 3rd type of hormonal therapy, Pamorelin La 11.25Mg depo Injection every 6th month. Don’t know why but for some reason the hormonal therapies have been causing some form of an accelerated arthritis in my major joints. Didn’t mention that I’m chemically castrated through I don’t remember the name of the medicine since it was 14 years ago.

@prakashkm984

2 жыл бұрын

Thanks Thomas, for your inspiring reply to me, I have not lost any hope & have been fighting the disease even though sometimes I can't withstand the pain in my waist and thigh bones, morphine is controlling my pain to some extent and some other medicines which help in the control of pain but with no side effects and also zolodronic acid once in 3 months for bone strength . Now on Enzalutamide 80mg×2,.

Very inspirational Bob thank you 👍 I was diagnosed in Nov 2020 age 54 with advanced PC, and as you say you can't let it stop you, you have to keep going as long as you can!! Best wishes bud 🚗💨

Thanks Alex for sharing this incredible story with us with this wonderfull guy ! You don't know how helpfull all those video of you and Dct Sholtz are a "big plus" in our life and our journey trought the cancer. (sorry for my bad english) . Best regards from Belgium to you and all those who pass by

Thank you Bob for the inspiration. Thank you PCRI for having Bob on.

What a great guy and alex your right a real inspiration! Thanks PCRI for this video!🙏🙏

He's so right about finding the right doctor.

What an inspiration!!!! Thank you for telling your story!!!

Thank you, Bob! I was found PC with the G score of 8 in the last April, and went through Radiation between June and August of this year. The blood test I had 2 weeks ago showed PSA of 1.15 (it was 80 plus before). I don’t know if I will be in this for a long fight. However if I do, I will follow your steps!

I am also prostate Cancer patient having surgery last year

@RH-xd3nx

2 жыл бұрын

You ok now?

Best wishes

I'm just at the very beginning of this process. My PCP found my PSA was elevated and sent me to see a urologist who scared the hell out of me. Even though my PSA was trending down at the time he was suggesting random biopsy and would not even consider anything else like an MRI guided biopsy where they can overlay the MRI image on the ultrasound to do a guided biopsy. I went to another for a second opinion and this urologist ran some tests like an additional PSA and a CAT and a cystoscopy. My PSA was also decreasing at the time. He didn't seem too concerned after the testing and asked me to come back in six months. That's next month. I'll be 72 next month too. I think I'll talk to him about multi-parametric MRI that Dr Schultz spoke about and go from there. I am a bit scared though thinking about possibilities. There's been no history of PC in my family. PCRI has been a terrific resource though. I live in the Baltimore/DC area so I hope we have very good prostate cancer resources nearby. Thank you PCRI for all you do.

@jimk7964

2 жыл бұрын

Tom, my primary care doc referred me to a urologist who wanted to perform a random biopsy without prior imaging. The urologist said an MRI would not add value and might not be covered by insurance (Medicare). I went to a second urologist who was happy to perform mpMRI prior to biopsy (which was covered by Medicare).

@kevinvitale8980

2 жыл бұрын

My business health care provider, none of the doctors thought I needed an MRI. I went out of network and found one of the top Prostate radiologist and first thing he suggested was the MRI.

Very encouraging. My diagnosis actually gave me a new perspective on life. At 64, I started competing in boxing and won a championship in Texas. I am facing some more treatment. My PSA has relapsed after surgery radiation and ADT. Thank God for PSMA scans. They found a lesion on a lymph node. S/P lymph node extraction. PSA is 0.131. It’s promising yet realistically facing more treatment. Still planning to compete in NJ in October, I like what Bob said, don’t rush into things, and research. Don’t sacrifice survival for quality of life. What keeps me hopeful is new treatments like PSMA radioisotope. Diagnosis of prostate cancer does not have a finish line. Just keep on moving.

@steveward2394

Жыл бұрын

How are you doing. I box a heavy bag at the gym

@FelipeGarciaJrMD

Жыл бұрын

@@steveward2394 I won a light heavy weight championship in NJ, headed to Vegas in February to compete again. I keep beating the odds. I feel great, yet still facing more treatment. 😒 Thank you for replying.

🇨🇮🇨🇮 great story 👏 congratulations to Dr's and man in question Bob.. 🙏😇💜 keep safe 🙏

Great interview!